#greatestmedicalscandal — Public Fediverse posts

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The film "Chronically Ignored" will be available online for the first time internationally, starting Friday, June 6th, at 9 a.m (German Time). The link will be this one here:
https://vimeo.com/ondemand/chronicallyignored

"Chronically Ignored" is an investigative documentary about a dark chapter in the history of medicine.
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#ME #MEcfs #ChronicallyIgnored #greatestMEdicalscandal #chronicillness #longcovid #FQAD #MCAS #EDS #POTS #CCI #SFN #MEawareness

Lotties Spendensammlung für mehr Forschung zu #MEcfs läuft noch. Wenn ihr etwas erübrigen könnt, bitte spendet. Wenn nicht: auch das Teilen hilft. Hier, im Whatsapp-Status, auf Insta, wo auch immer ihr so "unterwegs" seid. Endspurt.

Über 620.000 Betroffene in Deutschland werden aktuell noch komplett im Stich gelassen. Für nicht wenige ist das gesamte frühere Leben weg, sie sind komplett haus- und bettgebunden.

#MEcfs #MEawareness #ME #greatestMEdicalscandal

https://www.betterplace.org/de/fundraising-events/49365-gemeinsam-fuer-mehr-sichtbarkeit-und-forschung-bei-me-cfs

Gibt es Berliner*innen, die bereit wären, für #MEcfs in regelmäßigen Abständen Mahnwachen vor dem Bundestag abzuhalten? Ähnlich wie "Fridays for Future", nur für #MEcfs? Ist vielleicht eine Schnapsidee, aber ich werfe es mal in den Ring.
#Berlin #MEcfs #longcovid #awareness #protest #mahnwache #demonstration #charity #Support #allies #Fight4ME #greatestMEdicalscandal #Solidarität #MEawareness

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#GreatestMEdicalScandal #MyalgicEncephalomyelitis #PwME #MECFS #MedicalMisogyny #InternationalMEawarenessDay

Written by my mum then digitised by me, as she struggles with computerised devices.

Myalgic Encephalomyelitis- Valerie B’s Story, originally written on September 2024

This evidence-heavy video is aimed at journalists and people who may have some knowledge of #MECFS but want to learn more about the #GreatestMedicalScandal. I’ve put the transcript on medium with links to ~100 references.

https://medium.com/@abrokenbattery/me-cfs-scandal-explainer-eb4c1bfb7464

From Broken Battery:

A fantastic segment on the #GreatestMedicalScandal LBC call in with Natasha Devon discussing #MECFS, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT. Full segment (44 mins edited)
https://youtu.be/g8jYj7dIM7w?si=zCwWWjxAuz1m_e2M

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

The ME Scandal - LBC call in with Natasha Devon - YouTube
Adam @ABrokenBattery

A fantastic segment on the #GreatestMedicalScandal

Full segment (44 mins edited)
LBC call in with Natasha Devon discussing #MECFS, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT.

https://www.youtube.com/watch?v=g8jYj7dIM7w

After decades of dismissal by doctors, a new NIH study has concluded ME/CFS is a neuroimmune disease. In fact biological abnormalities have shown up in research for decades but been ignored. A brave journalist needs to cover the #GreatestMEdicalScandal #JohnVsJonVsME

#MECFS

After decades of dismissal by doctors, a new NIH study has concluded ME/CFS is a neuroimmune disease. In fact biological abnormalities have shown up in research for decades but been ignored. A brave journalist needs to cover the #GreatestMEdicalScandal #JohnVsJonVsME

https://www.johnvsjon.com/

May 31st #pwME organised a socmed storm 'celebrating' the last day of #MEawareness month. Calling on famous tv hosts Jon Stewart and John Oliver to make the #GreatestMEdicalScandal a topic in one or both of their shows. Decades of medical neglect caught in poignant memes. Here are some of them.

In Netherlands this would be something for @arjenlubach

#longcovid #pais #NietHersteld #mecvs #mecfs

There's a whole campaign trending today over on twitter to get John Oliver or Jon Stewart to cover #MyalgicEncephalomyelitis and #LongCovid
under the hashtags #JohnVsJonVsME and #GreatestMEdicalScandal

@mecfs @longcovid

See also: https://www.johnvsjon.com