#me-cfs — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #me-cfs, aggregated by home.social.
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CW: Links between conditions: LC, ME/CFS, PTSD, RA, MS
"The findings suggest that chronic fatigue syndrome (also known as ME), long Covid, post-traumatic stress disorder (PTSD), rheumatoid arthritis and multiple sclerosis (MS) may be driven by common underlying mechanisms. ...
"The study found that genes linked to each illness were feeding into the same major biological systems - including immune and inflammatory signalling, mitochondrial energy production, metabolic regulation, stress-response mechanisms and neuroendocrine signalling."
Interesting!
And also a bit comical to suggest that ME/CFS and Long Covid have "largely been viewed as separate disorders", when people with ME/CFS had been saying "hey watch out, this seems similar" since practically the minute LC was identified, or even before!
True about the other three conditions, though. I don't think I've seen _those_ linked (to each other or to the first two), or not commonly at any rate.
Thanks to @trendless for the link.
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Here is the link in the image
https://baker.edu.au/research/clinical-trials/friends-study
#MEcfs #LongCovid #POTS -
(Melbourne, Australia)
I was contacted to see would I highlight this as they are struggling to recruit their target.I haven't done a deep vet but see that Chris Armstrong is involved which reassures me
#MEcfs #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs @longcovid #auscovid19 #PwME #CFS #ME #MyalgicEncephalomyelitis
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From Belgium 🇧🇪
Epigenome-wide profiling identifies distinct DNA methylation architecture underlying ME/CFS and fibromyalgia symptom burden
https://link.springer.com/article/10.1186/s12967-026-08824-5
Screenshot from latest Science for ME weekly update
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“Fatigue is this term that’s so banal and non-exceptional. We accept it as completely mundane and something that everyone should be: fatigued.”
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"Emily Lim Rogers looks at the labor it takes simply to exist while sick in her new book Sick Work: Exhaustion, Labor, and Invisible Illness, through the lens of ME/CFS. We spoke about the history of the condition..."
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Liebe Altonaer, da geht doch sicher was! Macht mit für die Altona 93 1.Frauen. Vielleicht schaffen wir es ja diese Saison aufs Treppchen.🥳
#altona93 #guterzweck #mecfs
RE: https://bsky.app/profile/did:plc:nivbrsdbseetbwgsatc22tpw/post/3mukjfdivo22d -
Living with ME & fibromyalgia: ‘In 10 years, I had 10 pregnancies. It was a decade of loss, & a fight to get the family we wanted’ (Paywall)
Link for Dublin Fringe Festival's "Chronically Hopeful", Sept 6-9
https://www.fringefest.com/festival/whats-on/chronically-hopeful
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“The Relentless Work of Being Sick”
“A new book examines the labor of getting chronic illness diagnosed and treated—for those lucky enough to get care.”
https://www.motherjones.com/media/2026/09/rogers-sick-work-duke-press-qa-interview-chronic-illness/
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #spoonie
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Ich liege im Bett und langeweile mich extrem, kann auch keine Videos mehr gucken.
Habt ihr Fragen zu #MECFS? -
Edzard Ernst, a German professor emeritus of Complementary Medicine, has written a short and critical article on his blog about a planned study in Canada on the alternative method Lightning Process as LC-treatment
https://edzardernst.com/2026/08/the-lightning-process-a-new-trial-is-starting/
#LongCovid #MEcfs @mecfs @longcovid
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ME/CFS charity & awareness event in Cologne, Germany 🇩🇪
https://www.reddit.com/r/cfs/comments/1vzptcw/a_huge_mecfs_awareness_event_is_happening_in
Screenshot from latest Science for ME weekly update
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From the NIH's in-patient study in the US
Functional enrichment of immune targeted gut microbiota in post-infectious myalgic encephalomyelitis/chronic fatigue syndrome
https://www.nature.com/articles/s41598-026-64807-y
Screenshot from latest Science for ME weekly update
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“Accelerating Severe ME/CFS Research”
(August 6, 2026) by the Solve ME/CFS Initiative -
"Congress can finally make progress on this chronic disease" by Dr Subramani Seetharama
https://ctmirror.org/2026/08/31/congress-can-finally-make-progress-on-this-chronic-disease/
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Check out the latest News in Brief (August 24 - 30) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-august-2026.51739/#post-717698
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁