#me-cfs — Public Fediverse posts

Wer spenden mag und kann:

Bild
https://www.ardmediathek.de/video/mehr-wert/schwer-krank-und-unsichtbar-leben-mit-me-cfs/br/Y3JpZDovL2JyLmRlL2Jyb2FkY2FzdC9GMjAyNVdPMDIxMzY5QTA

#mecfs #postcovid

Julia @[email protected] · 2026-09-19 · 07:50 UTC

Mehr Forschungsgelder für #mecfs

Bildbeschreibung:

Links:
Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
(500 Millionen Euro)

Rechts:
Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
(64 Milliarden Euro)

Quellen

Zahlen

https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen_node.html

Wer spenden mag und kann:

Bild
https://www.ardmediathek.de/video/mehr-wert/schwer-krank-und-unsichtbar-leben-mit-me-cfs/br/Y3JpZDovL2JyLmRlL2Jyb2FkY2FzdC9GMjAyNVdPMDIxMzY5QTA

#mecfs #postcovid

Julia @[email protected] · 2026-09-19 · 07:50 UTC

Mehr Forschungsgelder für #mecfs

Bildbeschreibung:

Links:
Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
(500 Millionen Euro)

Rechts:
Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
(64 Milliarden Euro)

Quellen

Zahlen

https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen_node.html

Wer spenden mag und kann:

Bild
https://www.ardmediathek.de/video/mehr-wert/schwer-krank-und-unsichtbar-leben-mit-me-cfs/br/Y3JpZDovL2JyLmRlL2Jyb2FkY2FzdC9GMjAyNVdPMDIxMzY5QTA

#mecfs #postcovid

Julia @[email protected] · 2026-09-19 · 07:50 UTC

Mehr Forschungsgelder für #mecfs

Bildbeschreibung:

Links:
Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
(500 Millionen Euro)

Rechts:
Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
(64 Milliarden Euro)

Quellen

Zahlen

https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen_node.html

Wer spenden mag und kann:

Bild:
https://www.ardmediathek.de/video/mehr-wert/schwer-krank-und-unsichtbar-leben-mit-me-cfs/br/Y3JpZDovL2JyLmRlL2Jyb2FkY2FzdC9GMjAyNVdPMDIxMzY5QTA

#postcovid #mecfs

Julia @[email protected] · 2026-09-19 · 07:50 UTC

Mehr Forschungsgelder für #mecfs

Bildbeschreibung:

Links:
Ein sehr kleiner Geldhaufen, die Investitionen über 10 Jahre
(500 Millionen Euro)

Rechts:
ein riesiger Geldhaufen, die geschätzten Kosten für ME/CFS und #PostCovid zusammen, in nur einem Jahr
(64 Milliarden Euro)

Quellen:

Zahlen:

https://www.bmftr.bund.de/DE/Forschung/Gesundheit/MedizinischeForschung/Postinfekti%C3%B6seErkrankungen/postinfekti%C3%B6seerkrankungen_node.html

Wer spenden mag und kann:

#Behinderung
#Bücherei
#Bibliothek
#Hörbuch
#disability
@mecfs

#mecfs #postcovid

Julia @[email protected] · 2026-09-19 · 07:12 UTC

Hörbucher kostenlos ausleihen für #mecfs Betroffene!

- unter https://www.hoerbuecherei.at/ registrieren

- bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

- Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

- gilt auch für Deutschland (vllt noch andere Länder?)

Wer kann und mag:
Spenden an die Hörbücherei Österreich sind willkommen.💙

#mecfs #behinderung #bucherei #bibliothek #horbuch #disability

Julia @[email protected] · 2026-09-19 · 07:12 UTC

Hörbucher kostenlos ausleihen für #mecfs Betroffene!

- unter https://www.hoerbuecherei.at/ registrieren

- bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

- Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

- gilt auch für Deutschland (vllt noch andere Länder?)

Wer kann und mag:
Spenden an die Hörbücherei Österreich sind willkommen.💙

#Behinderung
#Bücherei
#Bibliothek
#Hörbuch
#disability
@mecfs

#mecfs #behinderung #bucherei #bibliothek #horbuch #disability

Julia @[email protected] · 2026-09-19 · 07:12 UTC

Hörbucher kostenlos ausleihen für #mecfs Betroffene!

- unter https://www.hoerbuecherei.at/ registrieren

- bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

- Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

- gilt auch für Deutschland (vllt noch andere Länder?)

Wer kann und mag:
Spenden an die Hörbücherei Österreich sind willkommen.💙

#Behinderung
#Bücherei
#Bibliothek
#Hörbuch
#disability
@mecfs

#disability #horbuch #bibliothek #bucherei #behinderung #mecfs

Tom Kindlon @[email protected] · 2026-09-18 · 22:31 UTC

(Melbourne, Australia)
"The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

https://mecfs.org.au/get-involved/participate-in-research

https://mecfs.org.au/get-involved/participate-in-research

#mecfs #longcovid #pwme #cfs

Tom Kindlon @[email protected] · 2026-09-18 · 22:31 UTC

(Melbourne, Australia)
"The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

https://mecfs.org.au/get-involved/participate-in-research

#mecfs #longcovid #pwme #cfs

Tom Kindlon @[email protected] · 2026-09-18 · 22:31 UTC

(Melbourne, Australia)
"The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

https://mecfs.org.au/get-involved/participate-in-research

#mecfs #longcovid #pwme #cfs

Tom Kindlon @[email protected] · 2026-09-18 · 22:31 UTC

(Melbourne, Australia)
"The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

https://mecfs.org.au/get-involved/participate-in-research

#cfs #pwme #longcovid #mecfs

Tom Kindlon @[email protected] · 2026-09-18 · 22:31 UTC

(Melbourne, Australia)
"The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

https://youtube.com/playlist?list=PL6DvSeQZZdtGdCzozAvUqgkFR0vm0W7Wh

#mecfs #longcovid #pwme #cfs

Mx. Luna Corbden 🪿🐸 @[email protected] · 2026-09-18 · 18:31 UTC

@springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

Guided meditations are good because me just telling myself to relax and breathe doesn't work.

YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

https://youtube.com/playlist?list=PL6DvSeQZZdtGdCzozAvUqgkFR0vm0W7Wh

#mecfs

Mx. Luna Corbden 🪿🐸 @[email protected] · 2026-09-18 · 18:31 UTC

@springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

Guided meditations are good because me just telling myself to relax and breathe doesn't work.

YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

https://youtube.com/playlist?list=PL6DvSeQZZdtGdCzozAvUqgkFR0vm0W7Wh

#mecfs

Mx. Luna Corbden 🪿🐸 @[email protected] · 2026-09-18 · 18:31 UTC

@springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

Guided meditations are good because me just telling myself to relax and breathe doesn't work.

YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

https://youtube.com/playlist?list=PL6DvSeQZZdtGdCzozAvUqgkFR0vm0W7Wh

#mecfs

Mx. Luna Corbden 🪿🐸 @[email protected] · 2026-09-18 · 18:31 UTC

@springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

Guided meditations are good because me just telling myself to relax and breathe doesn't work.

YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

https://youtube.com/playlist?list=PL6DvSeQZZdtGdCzozAvUqgkFR0vm0W7Wh

#mecfs

Mx. Luna Corbden 🪿🐸 @[email protected] · 2026-09-18 · 18:31 UTC

@springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

Guided meditations are good because me just telling myself to relax and breathe doesn't work.

YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.