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#me-cfs — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #me-cfs, aggregated by home.social.

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  1. How to Manage and Treat Post-Exertional Malaise (PEM)

    youtube.com/watch?v=Na5znc92ylY

    Screenshot from September AMMES newsletter

    #MEcfs #LongCovid #PEM #PwME #CFS
    @mecfs @longcovid

  2. How to Manage and Treat Post-Exertional Malaise (PEM)

    youtube.com/watch?v=Na5znc92ylY

    Screenshot from September AMMES newsletter

    #MEcfs #LongCovid #PEM #PwME #CFS
    @mecfs @longcovid

  3. How to Manage and Treat Post-Exertional Malaise (PEM)

    youtube.com/watch?v=Na5znc92ylY

    Screenshot from September AMMES newsletter

    #MEcfs #LongCovid #PEM #PwME #CFS
    @mecfs @longcovid

  4. How to Manage and Treat Post-Exertional Malaise (PEM)

    youtube.com/watch?v=Na5znc92ylY

    Screenshot from September AMMES newsletter

    #MEcfs #LongCovid #PEM #PwME #CFS
    @mecfs @longcovid

  5. How to Manage and Treat Post-Exertional Malaise (PEM)

    youtube.com/watch?v=Na5znc92ylY

    Screenshot from September AMMES newsletter

    #MEcfs #LongCovid #PEM #PwME #CFS
    @mecfs @longcovid

  6. Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

    link.springer.com/article/10.1

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS @mecfs

  7. Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

    link.springer.com/article/10.1

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS @mecfs

  8. Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

    link.springer.com/article/10.1

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS @mecfs

  9. Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

    link.springer.com/article/10.1

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS @mecfs

  10. Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

    link.springer.com/article/10.1

    Screenshot from September AMMES newsletter

    #MEcfs #PwME #CFS @mecfs

  11. RE: disabled.social/@tomkindlon/11

    Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

    #Australia #Melbourne #MECFS #LongCOVID

  12. RE: disabled.social/@tomkindlon/11

    Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

    #Australia #Melbourne #MECFS #LongCOVID

  13. RE: disabled.social/@tomkindlon/11

    Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

    #Australia #Melbourne #MECFS #LongCOVID

  14. RE: disabled.social/@tomkindlon/11

    Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

    #Australia #Melbourne #MECFS #LongCOVID

  15. RE: disabled.social/@tomkindlon/11

    Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

    #Australia #Melbourne #MECFS #LongCOVID

  16. "On this page you will find ongoing ME/CFS clinical trials looking for participants"

    All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

    ammes.org/clinical-trials

    #MEcfs #PwME #CFS #LongCovid
    @mecfs @longcovid

  17. "On this page you will find ongoing ME/CFS clinical trials looking for participants"

    All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

    ammes.org/clinical-trials

    #MEcfs #PwME #CFS #LongCovid
    @mecfs @longcovid

  18. "On this page you will find ongoing ME/CFS clinical trials looking for participants"

    All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

    ammes.org/clinical-trials

    #MEcfs #PwME #CFS #LongCovid
    @mecfs @longcovid

  19. "On this page you will find ongoing ME/CFS clinical trials looking for participants"

    All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

    ammes.org/clinical-trials

    #MEcfs #PwME #CFS #LongCovid
    @mecfs @longcovid

  20. "On this page you will find ongoing ME/CFS clinical trials looking for participants"

    All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

    ammes.org/clinical-trials

    #MEcfs #PwME #CFS #LongCovid
    @mecfs @longcovid

  21. 📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
    #longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

    ✍🏻 Petition: c.org/rpdVrZ7ZtW

    ❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte

  22. 📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
    #longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

    ✍🏻 Petition: c.org/rpdVrZ7ZtW

    ❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte

  23. 📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
    #longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

    ✍🏻 Petition: c.org/rpdVrZ7ZtW

    ❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte

  24. 📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
    #longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

    ✍🏻 Petition: c.org/rpdVrZ7ZtW

    ❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte

  25. 📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
    #longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

    ✍🏻 Petition: c.org/rpdVrZ7ZtW

    ❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte

  26. If you like and are able, you can donate for #mecfs research:

    mecfs-research.org/en/support/

    Thanks! 💙🌈

  27. A visualization of how 'much German' politicians are investing into #mecfs #research and what the damage to society is in one year..

    Image description:

    Left:
    A very small pile of money: investment over 10 years
    (500 million euros)

    Right:
    A huge pile of money: the estimated combined costs for ME/CFS and #PostCovid in just one year
    (64 billion euros)

    Screenshot:

    (German, no subtitles)
    ardmediathek.de/video/mehr-wer

    Numbers:

    (German)
    bmftr.bund.de/DE/Forschung/Ges

    (English)
    mecfs-research.org/en/news-cos

  28. A visualization of how 'much German' politicians are investing into #mecfs #research and what the damage to society is in one year..

    Image description:

    Left:
    A very small pile of money: investment over 10 years
    (500 million euros)

    Right:
    A huge pile of money: the estimated combined costs for ME/CFS and #PostCovid in just one year
    (64 billion euros)

    Screenshot:

    (German, no subtitles)
    ardmediathek.de/video/mehr-wer

    Numbers:

    (German)
    bmftr.bund.de/DE/Forschung/Ges

    (English)
    mecfs-research.org/en/news-cos

  29. A visualization of how 'much German' politicians are investing into #mecfs #research and what the damage to society is in one year..

    Image description:

    Left:
    A very small pile of money: investment over 10 years
    (500 million euros)

    Right:
    A huge pile of money: the estimated combined costs for ME/CFS and #PostCovid in just one year
    (64 billion euros)

    Screenshot:

    (German, no subtitles)
    ardmediathek.de/video/mehr-wer

    Numbers:

    (German)
    bmftr.bund.de/DE/Forschung/Ges

    (English)
    mecfs-research.org/en/news-cos

  30. A visualization of how 'much German' politicians are investing into #mecfs #research and what the damage to society is in one year..

    Image description:

    Left:
    A very small pile of money: investment over 10 years
    (500 million euros)

    Right:
    A huge pile of money: the estimated combined costs for ME/CFS and #PostCovid in just one year
    (64 billion euros)

    Screenshot:

    (German, no subtitles)
    ardmediathek.de/video/mehr-wer

    Numbers:

    (German)
    bmftr.bund.de/DE/Forschung/Ges

    (English)
    mecfs-research.org/en/news-cos

  31. A visualization of how 'much German' politicians are investing into #mecfs #research and what the damage to society is in one year..

    Image description:

    Left:
    A very small pile of money: investment over 10 years
    (500 million euros)

    Right:
    A huge pile of money: the estimated combined costs for ME/CFS and #PostCovid in just one year
    (64 billion euros)

    Screenshot:

    (German, no subtitles)
    ardmediathek.de/video/mehr-wer

    Numbers:

    (German)
    bmftr.bund.de/DE/Forschung/Ges

    (English)
    mecfs-research.org/en/news-cos

  32. Noch 2 Tage bis zum Wahlergebnis. 🗳️
    Unsere Wahlprüfsteine und die eingegangenen Antworten sind jetzt gesammelt veröffentlicht.
    Lest selbst. Vergleicht selbst. Macht euch selbst ein Bild. 👇
    drive.google.com/file/d/1lUqTv

    #BerlinWahl2026 #NichtGenesenBerlin #MECFS #LongCovid #PostCovid #PostVac

  33. Mehr Forschungsgelder für #mecfs

    Bildbeschreibung:

    Links:
    Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
    (500 Millionen Euro)

    Rechts:
    Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
    (64 Milliarden Euro)

    Quellen

    Bild
    ardmediathek.de/video/mehr-wer

    Zahlen

    bmftr.bund.de/DE/Forschung/Ges

    mecfs-research.org/news-costre

    Wer spenden mag und kann:

    mecfs-research.org/support/

  34. Mehr Forschungsgelder für #mecfs

    Bildbeschreibung:

    Links:
    Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
    (500 Millionen Euro)

    Rechts:
    Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
    (64 Milliarden Euro)

    Quellen

    Bild
    ardmediathek.de/video/mehr-wer

    Zahlen

    bmftr.bund.de/DE/Forschung/Ges

    mecfs-research.org/news-costre

    Wer spenden mag und kann:

    mecfs-research.org/support/

  35. Mehr Forschungsgelder für #mecfs

    Bildbeschreibung:

    Links:
    Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
    (500 Millionen Euro)

    Rechts:
    Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
    (64 Milliarden Euro)

    Quellen

    Bild
    ardmediathek.de/video/mehr-wer

    Zahlen

    bmftr.bund.de/DE/Forschung/Ges

    mecfs-research.org/news-costre

    Wer spenden mag und kann:

    mecfs-research.org/support/

  36. Mehr Forschungsgelder für #mecfs

    Bildbeschreibung:

    Links:
    Ein sehr kleiner Geldhaufen stellt die Forschungsgelder für postinfektiöse Erkrankungen über 10 Jahre dar (ME/CFS inbegriffen)
    (500 Millionen Euro)

    Rechts:
    Ein riesiger Geldhaufen stellt den geschätzten Schaden durch ME/CFS und #PostCovid zusammen für 1 Jahr dar
    (64 Milliarden Euro)

    Quellen

    Bild
    ardmediathek.de/video/mehr-wer

    Zahlen

    bmftr.bund.de/DE/Forschung/Ges

    mecfs-research.org/news-costre

    Wer spenden mag und kann:

    mecfs-research.org/support/

  37. Mehr Forschungsgelder für #mecfs

    Bildbeschreibung:

    Links:
    Ein sehr kleiner Geldhaufen, die Investitionen über 10 Jahre
    (500 Millionen Euro)

    Rechts:
    ein riesiger Geldhaufen, die geschätzten Kosten für ME/CFS und #PostCovid zusammen, in nur einem Jahr
    (64 Milliarden Euro)

    Quellen:

    Bild:
    ardmediathek.de/video/mehr-wer

    Zahlen:

    bmftr.bund.de/DE/Forschung/Ges

    mecfs-research.org/news-costre

    Wer spenden mag und kann:

    mecfs-research.org/support/

  38. Hörbucher kostenlos ausleihen für #mecfs Betroffene!

    - unter hoerbuecherei.at/ registrieren

    - bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

    - Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

    - gilt auch für Deutschland (vllt noch andere Länder?)

    Wer kann und mag:
    Spenden an die Hörbücherei Österreich sind willkommen.💙

    #Behinderung
    #Bücherei
    #Bibliothek
    #Hörbuch
    #disability
    @mecfs

  39. Hörbucher kostenlos ausleihen für #mecfs Betroffene!

    - unter hoerbuecherei.at/ registrieren

    - bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

    - Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

    - gilt auch für Deutschland (vllt noch andere Länder?)

    Wer kann und mag:
    Spenden an die Hörbücherei Österreich sind willkommen.💙

    #Behinderung
    #Bücherei
    #Bibliothek
    #Hörbuch
    #disability
    @mecfs

  40. Hörbucher kostenlos ausleihen für #mecfs Betroffene!

    - unter hoerbuecherei.at/ registrieren

    - bei "Nachweis der Berechtigung" den Punkt "beigefügte Kopie von ärztlichem Attest" auswählen

    - Nachweis der Diagnose ME/CFS (G 93.3) hochladen (schwärzen persönlicher Daten erlaubt), z.B. Arztbrief

    - gilt auch für Deutschland (vllt noch andere Länder?)

    Wer kann und mag:
    Spenden an die Hörbücherei Österreich sind willkommen.💙

    #Behinderung
    #Bücherei
    #Bibliothek
    #Hörbuch
    #disability
    @mecfs

  41. (Melbourne, Australia)
    "The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

    mecfs.org.au/get-involved/part

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

  42. (Melbourne, Australia)
    "The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

    mecfs.org.au/get-involved/part

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

  43. (Melbourne, Australia)
    "The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

    mecfs.org.au/get-involved/part

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

  44. (Melbourne, Australia)
    "The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

    mecfs.org.au/get-involved/part

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

  45. (Melbourne, Australia)
    "The MELLOW Study is investigating hormonal biorhythms and multisystem disruption in ME/CFS and Long COVID"

    mecfs.org.au/get-involved/part

    #MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

  46. @springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

    First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

    I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

    Guided meditations are good because me just telling myself to relax and breathe doesn't work.

    YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

    I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

    I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

    youtube.com/playlist?list=PL6D

    #MECFS

  47. @springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

    First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

    I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

    Guided meditations are good because me just telling myself to relax and breathe doesn't work.

    YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

    I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

    I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

    youtube.com/playlist?list=PL6D

    #MECFS

  48. @springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

    First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

    I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

    Guided meditations are good because me just telling myself to relax and breathe doesn't work.

    YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

    I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

    I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

    youtube.com/playlist?list=PL6D

    #MECFS

  49. @springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

    First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

    I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

    Guided meditations are good because me just telling myself to relax and breathe doesn't work.

    YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

    I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

    I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

    youtube.com/playlist?list=PL6D

    #MECFS

  50. @springdiesel Yeah. Years ago I improved my sleep, which didn't cure my MECFS but certainly helped.

    First thing, I got a health watch. Started with an old Fitbit then got a Garmin. It gives me semi-objective feedback about how stressed I am, how well I slept, and how much energy I'm getting from it. At the time, my stress levels were maxxed *while I was sleeping*.

    I tried lots of things but now with feedback. Meditating before sleep made the biggest difference.

    Guided meditations are good because me just telling myself to relax and breathe doesn't work.

    YouTube is a great source for these. You can search for specific topics and times. So "ten minute sleep meditation, "20 minute calm meditation."

    I have a playlist of sleep meditations. I'm guessing there are AI ones now so this might give you a start without having to sort through those.

    I keep "day" meditations on a separate list, for focus, anxiety, healing type things where I want to stay awake after. They really help, too, in a different way.

    youtube.com/playlist?list=PL6D

    #MECFS