#me-cfs — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #me-cfs, aggregated by home.social.
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RE: https://vis.social/@lia_pas/116920216340348395
Unbound is now available to watch on YouTube! https://www.youtube.com/watch?v=mxK6UKtWuLc
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RE: https://vis.social/@lia_pas/116920216340348395
Unbound is now available to watch on YouTube! https://www.youtube.com/watch?v=mxK6UKtWuLc
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Well, looks like I might have to postpone breaking them in. Depends on whether the current flare-up will improve (drastically) tomorrow. 😬
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Well, looks like I might have to postpone breaking them in. Depends on whether the current flare-up will improve (drastically) tomorrow. 😬
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The unusual method I use to help encourage me to rest 5-7 hours per day
What do you do to help encourage yourself to rest?
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The unusual method I use to help encourage me to rest 5-7 hours per day
What do you do to help encourage yourself to rest?
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Factors Associated with Fibromyalgia Diagnosis amongst People Meeting Criteria: Results from UK Biobank
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Factors Associated with Fibromyalgia Diagnosis amongst People Meeting Criteria: Results from UK Biobank
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RE: https://mastodon.social/@NichtGenesen/117031541066177194
#Liegenddemo am 07. oder 08.08.für schwer von #mecfs Betroffene
#Berlin
#Oldenburg
#Köln
#Frankfurtammain
#Regensburg
#Essen
#Hamburg
#Stuttgart
#Göttingen -
RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100
2 days to go. Apart from the 24 who have indicated their interest on the FB event, two others (a patient & a parent) have told us they hope to go and two other patients have told us they might go. There were six people at the last meet-up. #MEcfs #PwME #CFS
#mastodaoine @mecfs -
RE: https://mastodon.ie/@IrishMECFSAssociation/116954067547991100
2 days to go. Apart from the 24 who have indicated their interest on the FB event, two others (a patient & a parent) have told us they hope to go and two other patients have told us they might go. There were six people at the last meet-up. #MEcfs #PwME #CFS
#mastodaoine @mecfs -
ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing by Davenport et al
https://link.springer.com/article/10.1007/s12018-026-09326-0
Screenshot from latest Science for ME @s4me weekly update
#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid
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ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing by Davenport et al
https://link.springer.com/article/10.1007/s12018-026-09326-0
Screenshot from latest Science for ME @s4me weekly update
#MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid
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Forward ME (UK):
Briefing Paper on Clinical assessment of people with very severe ME/CFSScreenshot from latest Science for ME weekly update
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Forward ME (UK):
Briefing Paper on Clinical assessment of people with very severe ME/CFSScreenshot from latest Science for ME weekly update
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Long Covid Advocacy 101: 03. The Biopsychosocial Model
https://www.longcovidadvoc.com/post/bps
From the Science for ME @s4me weekly update:
A thorough and critical look at the origin of the biopsychosocial model and its devastating consequences. The article has an excellent visual summary of its key points.
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Long Covid Advocacy 101: 03. The Biopsychosocial Model
https://www.longcovidadvoc.com/post/bps
From the Science for ME @s4me weekly update:
A thorough and critical look at the origin of the biopsychosocial model and its devastating consequences. The article has an excellent visual summary of its key points.
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CW: joke about medical gaslighting, ME/CFS
@ContraindiKate Funny! 😄
I have no idea whether this study on glymphatic clearance is any good (I don't have the background or ability to evaluate research studies) but there's a discussion thread on the S4ME forum here:
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CW: joke about medical gaslighting, ME/CFS
@ContraindiKate Funny! 😄
I have no idea whether this study on glymphatic clearance is any good (I don't have the background or ability to evaluate research studies) but there's a discussion thread on the S4ME forum here:
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(UK) Action for ME
ME: A Guide for Educatorshttps://www.actionforme.org.uk/resource/me-a-guide-for-educators/
Science for ME @s4me weekly update:
“A useful document outlining the symptoms and impact of ME/CFS, and adaptations and support that teachers and schools should provide for pupils with ME/CFS”
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(UK) Action for ME
ME: A Guide for Educatorshttps://www.actionforme.org.uk/resource/me-a-guide-for-educators/
Science for ME @s4me weekly update:
“A useful document outlining the symptoms and impact of ME/CFS, and adaptations and support that teachers and schools should provide for pupils with ME/CFS”
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Our latest News in Brief summary (in two parts this week) has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 27 - Aug 2.
https://s4me.info/threads/news-in-brief-july-2026.51240/#post-710977
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Our latest News in Brief summary (in two parts this week) has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 27 - Aug 2.
https://s4me.info/threads/news-in-brief-july-2026.51240/#post-710977
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From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
From @onelife_livedwell on IG:
Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with. -
Chronisch Antifa:
Ich gründe eine online Antifa Gruppe für Menschen mit chronischer Erkrankung und Behinderung, die eingeschränkte Energieresserven haben, oder aus anderen Gründen nicht an lokalen Gruppen teilnehmen können.
Komm gerne auch dazu, wenn deine Energie sehr begrenzt ist. Wir sind ME/CFS freundlich.
https://signal.group/#CjQKIA8keVehCp3oomV8kJXAkyahb6Ht69s7DVt9tPgP3TlbEhAtDJXHzJAMa6-p29FgDXdS
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Chronisch Antifa:
Ich gründe eine online Antifa Gruppe für Menschen mit chronischer Erkrankung und Behinderung, die eingeschränkte Energieresserven haben, oder aus anderen Gründen nicht an lokalen Gruppen teilnehmen können.
Komm gerne auch dazu, wenn deine Energie sehr begrenzt ist. Wir sind ME/CFS freundlich.
https://signal.group/#CjQKIA8keVehCp3oomV8kJXAkyahb6Ht69s7DVt9tPgP3TlbEhAtDJXHzJAMa6-p29FgDXdS
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For more information about this film, including cast names and bios, see director Sara Nesson's website:
https://www.saranesson.com/unbound
I've also attached an important disclaimer (see image) from the website.
2/2
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For more information about this film, including cast names and bios, see director Sara Nesson's website:
https://www.saranesson.com/unbound
I've also attached an important disclaimer (see image) from the website.
2/2
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"Unbound: Illness is not the end of dance"
A short film
(about 6 1/2 minutes)"Twenty bodies. One thread of movement. Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality."
https://www.youtube.com/watch?v=mxK6UKtWuLc
For blind or visually impaired viewers there's an audio track with descriptions of the movements.
1/2
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"Unbound: Illness is not the end of dance"
A short film
(about 6 1/2 minutes)"Twenty bodies. One thread of movement. Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality."
https://www.youtube.com/watch?v=mxK6UKtWuLc
For blind or visually impaired viewers there's an audio track with descriptions of the movements.
1/2
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ME Research UK:
Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: https://bit.ly/4vNixld
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ME Research UK:
Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: https://bit.ly/4vNixld
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ME Research UK:
Our July 2026 e-newsletter is now available!
Covering this month’s ME Research UK updates, including the Big Give Pledge opportunity, it is only a click away - https://tinyurl.com/2f9y8cpx
Stay informed and engaged with our community.
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ME Research UK:
Our July 2026 e-newsletter is now available!
Covering this month’s ME Research UK updates, including the Big Give Pledge opportunity, it is only a click away - https://tinyurl.com/2f9y8cpx
Stay informed and engaged with our community.
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From the Solve ME/CFS Initiative:
📢Check out our latest Research 1st Roundup!
Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here:
https://ow.ly/fYGq50ZuS5M -
From the Solve ME/CFS Initiative:
📢Check out our latest Research 1st Roundup!
Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here:
https://ow.ly/fYGq50ZuS5M -
@Lassitudor mein Antrag wurde abgelehnt, ich komme noch "zu gut" klar.
Dass man aus #MECFS eine psychische Erkrankung für Anerkennung machen muss, lese ich aus dem Artikel nicht. Wohl aber, dass sowohl die Kriterien als auch die Begutachtungssituation völlig an dieser Erkrankung vorbei gehen #fürsiegetestet -
Pflegegrad bei #MECFS durchsetzten - muss man daraus eine psychische Erkrankung machen, ob Pflegegrade zu bekommen?
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2/
Changing clothes largely means putting on my clothes on in the morning and taking them off at night, along with washing. I try to avoid it as much as possible apart from that as I try to avoid wasting energy.
I already did it sitting down.
#PwME #Spoonies #MyalgicEncephalomyelitis
#mecfs #longcovid @mecfs @longcovid