#me-cfs — Public Fediverse posts

🧵
From ME Research UK

Sleep dysfunction can be a deeply isolating symptom, shrinking individuals' daily functional hours.

The symptom burden & ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations

#MEcfs #PwME #CFS @mecfs
1/

🧵
From ME Research UK

Sleep dysfunction can be a deeply isolating symptom, shrinking individuals' daily functional hours.

The symptom burden & ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations

#MEcfs #PwME #CFS @mecfs
1/

🧵
From ME Research UK

Sleep dysfunction can be a deeply isolating symptom, shrinking individuals' daily functional hours.

The symptom burden & ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations

#MEcfs #PwME #CFS @mecfs
1/

🧵
From ME Research UK

Sleep dysfunction can be a deeply isolating symptom, shrinking individuals' daily functional hours.

The symptom burden & ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations

#MEcfs #PwME #CFS @mecfs
1/

🧵
From ME Research UK

Sleep dysfunction can be a deeply isolating symptom, shrinking individuals' daily functional hours.

The symptom burden & ripple effects can impact mental health. We urge anyone in distress to consider reaching out to appropriate organisations

#MEcfs #PwME #CFS @mecfs
1/

From Japan 🇯🇵

FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full

"No group difference or partial correlation remained significant after correction for multiple testing."

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

From Japan 🇯🇵

FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full

"No group difference or partial correlation remained significant after correction for multiple testing."

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

From Japan 🇯🇵

FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full

"No group difference or partial correlation remained significant after correction for multiple testing."

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

From Japan 🇯🇵

FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full

"No group difference or partial correlation remained significant after correction for multiple testing."

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

From Japan 🇯🇵

FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations

https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full

"No group difference or partial correlation remained significant after correction for multiple testing."

#MEcfs #LongCovid #CFS #PwME @mecfs @longcovid

2/
The patient organization NichtGenesen has submitted this 11-page letter in German to Springer Nature. It criticises a new book chapter on 'Chronic Fatigue Syndrome' that includes stigmatizing language.

#MEcfs #CFS

@NichtGenesen @mecfs

2/
The patient organization NichtGenesen has submitted this 11-page letter in German to Springer Nature. It criticises a new book chapter on 'Chronic Fatigue Syndrome' that includes stigmatizing language.

#MEcfs #CFS

@NichtGenesen @mecfs

2/
The patient organization NichtGenesen has submitted this 11-page letter in German to Springer Nature. It criticises a new book chapter on 'Chronic Fatigue Syndrome' that includes stigmatizing language.

#MEcfs #CFS

@NichtGenesen @mecfs

2/
The patient organization NichtGenesen has submitted this 11-page letter in German to Springer Nature. It criticises a new book chapter on 'Chronic Fatigue Syndrome' that includes stigmatizing language.

#MEcfs #CFS

@NichtGenesen @mecfs

2/
The patient organization NichtGenesen has submitted this 11-page letter in German to Springer Nature. It criticises a new book chapter on 'Chronic Fatigue Syndrome' that includes stigmatizing language.

#MEcfs #CFS

@NichtGenesen @mecfs

"Lebendig begraben" https://www.nordkurier.de/regional/uckermark/lebendig-begraben-dreifache-mutter-erleidet-jahrelange-tortur-wegen-mysterioeser-einschulung-4868947

#MeCFS #EndMECF #ME_CFS

"Lebendig begraben" https://www.nordkurier.de/regional/uckermark/lebendig-begraben-dreifache-mutter-erleidet-jahrelange-tortur-wegen-mysterioeser-einschulung-4868947

#MeCFS #EndMECF #ME_CFS

"Lebendig begraben" https://www.nordkurier.de/regional/uckermark/lebendig-begraben-dreifache-mutter-erleidet-jahrelange-tortur-wegen-mysterioeser-einschulung-4868947

#MeCFS #EndMECF #ME_CFS

"Lebendig begraben" https://www.nordkurier.de/regional/uckermark/lebendig-begraben-dreifache-mutter-erleidet-jahrelange-tortur-wegen-mysterioeser-einschulung-4868947

#MeCFS #EndMECF #ME_CFS

"Lebendig begraben" https://www.nordkurier.de/regional/uckermark/lebendig-begraben-dreifache-mutter-erleidet-jahrelange-tortur-wegen-mysterioeser-einschulung-4868947

#MeCFS #EndMECF #ME_CFS

Ich habe einen Unterpunkt zu #MECFS hinzugefügt (übernommen, ohne Debatte auf dem Landesparteitag) indem wir ein NRW-Forschungszentrum, spezialisierte Behandlungszentren und Aufklärung fordern.

Ich habe einen Unterpunkt zu #MECFS hinzugefügt (übernommen, ohne Debatte auf dem Landesparteitag) indem wir ein NRW-Forschungszentrum, spezialisierte Behandlungszentren und Aufklärung fordern.

Ich habe einen Unterpunkt zu #MECFS hinzugefügt (übernommen, ohne Debatte auf dem Landesparteitag) indem wir ein NRW-Forschungszentrum, spezialisierte Behandlungszentren und Aufklärung fordern.

Ich habe einen Unterpunkt zu #MECFS hinzugefügt (übernommen, ohne Debatte auf dem Landesparteitag) indem wir ein NRW-Forschungszentrum, spezialisierte Behandlungszentren und Aufklärung fordern.

Ich habe einen Unterpunkt zu #MECFS hinzugefügt (übernommen, ohne Debatte auf dem Landesparteitag) indem wir ein NRW-Forschungszentrum, spezialisierte Behandlungszentren und Aufklärung fordern.

Tomorrow I need to chase up the DWP about my PIP claim again (this journey began in June 2025).

Can I remember where I put the contact details for the specific department that isn't the DWP that deals with this? I cannot.

I have put in yet another request for any sort of resolution to the disability assessment the Job Centre is supposed to be doing to be met with total silence.

I guess I could just try not to be disabled? I think that's what they want me to do.

#mecfs #disability #PIP

Tomorrow I need to chase up the DWP about my PIP claim again (this journey began in June 2025).

Can I remember where I put the contact details for the specific department that isn't the DWP that deals with this? I cannot.

I have put in yet another request for any sort of resolution to the disability assessment the Job Centre is supposed to be doing to be met with total silence.

I guess I could just try not to be disabled? I think that's what they want me to do.

#mecfs #disability #PIP

Tomorrow I need to chase up the DWP about my PIP claim again (this journey began in June 2025).

Can I remember where I put the contact details for the specific department that isn't the DWP that deals with this? I cannot.

I have put in yet another request for any sort of resolution to the disability assessment the Job Centre is supposed to be doing to be met with total silence.

I guess I could just try not to be disabled? I think that's what they want me to do.

#mecfs #disability #PIP

Tomorrow I need to chase up the DWP about my PIP claim again (this journey began in June 2025).

Can I remember where I put the contact details for the specific department that isn't the DWP that deals with this? I cannot.

I have put in yet another request for any sort of resolution to the disability assessment the Job Centre is supposed to be doing to be met with total silence.

I guess I could just try not to be disabled? I think that's what they want me to do.

#mecfs #disability #PIP

Tomorrow I need to chase up the DWP about my PIP claim again (this journey began in June 2025).

Can I remember where I put the contact details for the specific department that isn't the DWP that deals with this? I cannot.

I have put in yet another request for any sort of resolution to the disability assessment the Job Centre is supposed to be doing to be met with total silence.

I guess I could just try not to be disabled? I think that's what they want me to do.

#mecfs #disability #PIP

#MECFS : Schwer erkrankt, doch oft nicht ernst genommen | BR24

https://share.google/t5VLXbefth9jiMm4K

#MECFS : Schwer erkrankt, doch oft nicht ernst genommen | BR24

https://share.google/t5VLXbefth9jiMm4K

#MECFS : Schwer erkrankt, doch oft nicht ernst genommen | BR24

https://share.google/t5VLXbefth9jiMm4K

#MECFS : Schwer erkrankt, doch oft nicht ernst genommen | BR24

https://share.google/t5VLXbefth9jiMm4K

How to Manage and Treat Post-Exertional Malaise (PEM)

https://www.youtube.com/watch?v=Na5znc92ylY

Screenshot from September AMMES newsletter

#MEcfs #LongCovid #PEM #PwME #CFS
@mecfs @longcovid

How to Manage and Treat Post-Exertional Malaise (PEM)

https://www.youtube.com/watch?v=Na5znc92ylY

Screenshot from September AMMES newsletter

#MEcfs #LongCovid #PEM #PwME #CFS
@mecfs @longcovid

How to Manage and Treat Post-Exertional Malaise (PEM)

https://www.youtube.com/watch?v=Na5znc92ylY

Screenshot from September AMMES newsletter

#MEcfs #LongCovid #PEM #PwME #CFS
@mecfs @longcovid

How to Manage and Treat Post-Exertional Malaise (PEM)

https://www.youtube.com/watch?v=Na5znc92ylY

Screenshot from September AMMES newsletter

#MEcfs #LongCovid #PEM #PwME #CFS
@mecfs @longcovid

How to Manage and Treat Post-Exertional Malaise (PEM)

https://www.youtube.com/watch?v=Na5znc92ylY

Screenshot from September AMMES newsletter

#MEcfs #LongCovid #PEM #PwME #CFS
@mecfs @longcovid

Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

https://link.springer.com/article/10.1186/s12967-025-07433-y

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS @mecfs

Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

https://link.springer.com/article/10.1186/s12967-025-07433-y

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS @mecfs

Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

https://link.springer.com/article/10.1186/s12967-025-07433-y

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS @mecfs

Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

https://link.springer.com/article/10.1186/s12967-025-07433-y

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS @mecfs

Diagnosis of chronic fatigue syndrome using beat-to-beat autonomic measurements

https://link.springer.com/article/10.1186/s12967-025-07433-y

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS @mecfs

I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖

#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness

RE: https://plasmatrap.com/notes/arc2btyjx2

I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖

#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness

RE: https://plasmatrap.com/notes/arc2btyjx2

I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖

#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness

RE: https://plasmatrap.com/notes/arc2btyjx2

I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖

#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness

RE: https://plasmatrap.com/notes/arc2btyjx2

RE: https://disabled.social/@tomkindlon/117294411734528757

Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

#Australia #Melbourne #MECFS #LongCOVID

RE: https://disabled.social/@tomkindlon/117294411734528757

Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

#Australia #Melbourne #MECFS #LongCOVID

RE: https://disabled.social/@tomkindlon/117294411734528757

Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

#Australia #Melbourne #MECFS #LongCOVID

RE: https://disabled.social/@tomkindlon/117294411734528757

Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

#Australia #Melbourne #MECFS #LongCOVID

RE: https://disabled.social/@tomkindlon/117294411734528757

Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?

#Australia #Melbourne #MECFS #LongCOVID

Begrudgingly sharing my desperate #mutualaid request again since I'm unfortunately still in need, and I'm so sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness

RE: https://plasmatrap.com/notes/arc2btyjx2

"On this page you will find ongoing ME/CFS clinical trials looking for participants"

All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

https://ammes.org/clinical-trials

#MEcfs #PwME #CFS #LongCovid
@mecfs @longcovid

"On this page you will find ongoing ME/CFS clinical trials looking for participants"

All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

https://ammes.org/clinical-trials

#MEcfs #PwME #CFS #LongCovid
@mecfs @longcovid

"On this page you will find ongoing ME/CFS clinical trials looking for participants"

All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

https://ammes.org/clinical-trials

#MEcfs #PwME #CFS #LongCovid
@mecfs @longcovid

"On this page you will find ongoing ME/CFS clinical trials looking for participants"

All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

https://ammes.org/clinical-trials

#MEcfs #PwME #CFS #LongCovid
@mecfs @longcovid

"On this page you will find ongoing ME/CFS clinical trials looking for participants"

All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international

https://ammes.org/clinical-trials

#MEcfs #PwME #CFS #LongCovid
@mecfs @longcovid

📣 Neuer #blogbeitrag sowie #petition online: Ein #Appell an den #gesetzgeber
#longcovid, #postcovid & #mecfs: Wenn der #staat seine #schutzpflichten verletzt

✍🏻 Petition: https://c.org/rpdVrZ7ZtW

❗Wichtig! Dieser Beitrag spiegelt die Meinung der Autoren wider. Die Autoren sind keine Juristen. Die hier dargelegten juristischen Argumentationen dienen der politischen Aufklärung und Diskussion und ersetzen keine individuelle Rechtsberatung. Für rechtliche Schritte