#me-cfs — Public Fediverse posts

Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.

https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450

Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁

https://s4me.info/threads/welcome.38181/

@mecfs @longcovid

#MEcfs #PwME #LongCovid #PwLC #S4ME

From Germany 🇩🇪

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full

https://s4me.info/threads/postural-orthostatic-tachycardia-syndrome-in-adolescents-with-me-cfs-%E2%80%94-a-case-control-study-2026-leone.52372/

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME @pots @mecfs

From Germany 🇩🇪

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full

https://s4me.info/threads/postural-orthostatic-tachycardia-syndrome-in-adolescents-with-me-cfs-%E2%80%94-a-case-control-study-2026-leone.52372/

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME @pots @mecfs

From Germany 🇩🇪

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full

https://s4me.info/threads/postural-orthostatic-tachycardia-syndrome-in-adolescents-with-me-cfs-%E2%80%94-a-case-control-study-2026-leone.52372/

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME @pots @mecfs

From Germany 🇩🇪

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full

https://s4me.info/threads/postural-orthostatic-tachycardia-syndrome-in-adolescents-with-me-cfs-%E2%80%94-a-case-control-study-2026-leone.52372/

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME @pots @mecfs

From Germany 🇩🇪

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

https://www.frontiersin.org/journals/pediatrics/articles/10.3389/fped.2026.1836407/full

https://s4me.info/threads/postural-orthostatic-tachycardia-syndrome-in-adolescents-with-me-cfs-%E2%80%94-a-case-control-study-2026-leone.52372/

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME @pots @mecfs

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon on Wednesday, September 30

Hopefully we’ll see some of you there
https://irishmecfs.org/blog/wednesday-september-30-dublin-informal-mecfs-social-meet-up-hosted-by-tom-kindlon-irish-mecfs-association

Carers/parents/similar welcome.

#MEcfs #PwME @mecfs

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS

https://www.sosmitmensch.at/nicht-sichtbar-nicht-versorgt

#mecfs #longcovid

Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS

https://www.sosmitmensch.at/nicht-sichtbar-nicht-versorgt

#mecfs #longcovid

Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS

https://www.sosmitmensch.at/nicht-sichtbar-nicht-versorgt

#mecfs #longcovid

Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS

https://www.sosmitmensch.at/nicht-sichtbar-nicht-versorgt

#mecfs #longcovid

Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS

https://www.sosmitmensch.at/nicht-sichtbar-nicht-versorgt

#mecfs #longcovid

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid

A health update: month 6 of #Lyme-induced #MECFS #PAIS relapse.

Now finally biting the bullet and trying that joyless low-histamine diet while phasing out those darn antihistamines. Even the ones that are not supposed to, make me drowsy. No alc, no coffee, low sugar too. Have pity with me.

Cleared my schedule until late October. I have a life to live, and trying to push through this condition really *does* just make it worse.

You cannot fight this disease. So try to be gentle to yourself.

A health update: month 6 of #Lyme-induced #MECFS #PAIS relapse.

Now finally biting the bullet and trying that joyless low-histamine diet while phasing out those darn antihistamines. Even the ones that are not supposed to, make me drowsy. No alc, no coffee, low sugar too. Have pity with me.

Cleared my schedule until late October. I have a life to live, and trying to push through this condition really *does* just make it worse.

You cannot fight this disease. So try to be gentle to yourself.

A health update: month 6 of #Lyme-induced #MECFS #PAIS relapse.

Now finally biting the bullet and trying that joyless low-histamine diet while phasing out those darn antihistamines. Even the ones that are not supposed to, make me drowsy. No alc, no coffee, low sugar too. Have pity with me.

Cleared my schedule until late October. I have a life to live, and trying to push through this condition really *does* just make it worse.

You cannot fight this disease. So try to be gentle to yourself.

A health update: month 6 of #Lyme-induced #MECFS #PAIS relapse.

Now finally biting the bullet and trying that joyless low-histamine diet while phasing out those darn antihistamines. Even the ones that are not supposed to, make me drowsy. No alc, no coffee, low sugar too. Have pity with me.

Cleared my schedule until late October. I have a life to live, and trying to push through this condition really *does* just make it worse.

You cannot fight this disease. So try to be gentle to yourself.

A health update: month 6 of #Lyme-induced #MECFS #PAIS relapse.

Now finally biting the bullet and trying that joyless low-histamine diet while phasing out those darn antihistamines. Even the ones that are not supposed to, make me drowsy. No alc, no coffee, low sugar too. Have pity with me.

Cleared my schedule until late October. I have a life to live, and trying to push through this condition really *does* just make it worse.

You cannot fight this disease. So try to be gentle to yourself.

Conspirituality 325: Long COVID Profiteers

The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-update

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Conspirituality 325: Long COVID Profiteers

The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-update

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Conspirituality 325: Long COVID Profiteers

The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-update

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Conspirituality 325: Long COVID Profiteers

The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-update

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Conspirituality 325: Long COVID Profiteers

The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-update

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid

1/

Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o

Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o

2/

"Seventeen participants (35%) were classified as hypovolemic, 21 (43%) as normovolemic, and 11 (22%) as hypervolemic."

"findings suggest that static blood volume deficits alone are unlikely to be the principal determinant of OI in ME/CFS."

#mecfs #cfs

@mecfs

2/

"Seventeen participants (35%) were classified as hypovolemic, 21 (43%) as normovolemic, and 11 (22%) as hypervolemic."

"findings suggest that static blood volume deficits alone are unlikely to be the principal determinant of OI in ME/CFS."

#mecfs #cfs

@mecfs

2/

"Seventeen participants (35%) were classified as hypovolemic, 21 (43%) as normovolemic, and 11 (22%) as hypervolemic."

"findings suggest that static blood volume deficits alone are unlikely to be the principal determinant of OI in ME/CFS."

#mecfs #cfs

@mecfs

2/

"Seventeen participants (35%) were classified as hypovolemic, 21 (43%) as normovolemic, and 11 (22%) as hypervolemic."

"findings suggest that static blood volume deficits alone are unlikely to be the principal determinant of OI in ME/CFS."

#mecfs #cfs

@mecfs

2/

"Seventeen participants (35%) were classified as hypovolemic, 21 (43%) as normovolemic, and 11 (22%) as hypervolemic."

"findings suggest that static blood volume deficits alone are unlikely to be the principal determinant of OI in ME/CFS."

#mecfs #cfs

@mecfs

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

https://mecfs.rti.org/news/

Register
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration

#mecfs #cfs #pwme #longcovid @mecfs @longcovid

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

https://mecfs.rti.org/news/

Register
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration

#mecfs #cfs #pwme #longcovid @mecfs @longcovid

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

https://mecfs.rti.org/news/

Register
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration

#mecfs #cfs #pwme #longcovid @mecfs @longcovid

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

https://mecfs.rti.org/news/

Register
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration

#mecfs #cfs #pwme #longcovid @mecfs @longcovid

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

https://mecfs.rti.org/news/

Register
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration

#mecfs #cfs #pwme #longcovid @mecfs @longcovid

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

The Hidden Hierarchy of Illness

https://journals.sagepub.com/doi/full/10.1177/27536351261431723

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs

Trial By Error: Norway Disability Case Exposes Flaws in Draft Guideline for “Long-Term Fatigue–including ME/CFS”

https://virology.ws/2026/03/13/trial-by-error-norway-disability-case-exposes-flaws-in-draft-guideline-for-long-term-fatigue-including-me-cfs/

Screenshot from September AMMES newsletter

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs