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#me-cfs — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #me-cfs, aggregated by home.social.

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  1. Well, looks like I might have to postpone breaking them in. Depends on whether the current flare-up will improve (drastically) tomorrow. 😬

    #MECFS #SpoonieLife

  2. Well, looks like I might have to postpone breaking them in. Depends on whether the current flare-up will improve (drastically) tomorrow. 😬

    #MECFS #SpoonieLife

  3. The unusual method I use to help encourage me to rest 5-7 hours per day

    What do you do to help encourage yourself to rest?

    #MEcfs #pacing #rest #pwme #longcovid @mecfs @longcovid

  4. The unusual method I use to help encourage me to rest 5-7 hours per day

    What do you do to help encourage yourself to rest?

    #MEcfs #pacing #rest #pwme #longcovid @mecfs @longcovid

  5. RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go. Apart from the 24 who have indicated their interest on the FB event, two others (a patient & a parent) have told us they hope to go and two other patients have told us they might go. There were six people at the last meet-up. #MEcfs #PwME #CFS
    #mastodaoine @mecfs

  6. RE: mastodon.ie/@IrishMECFSAssocia

    2 days to go. Apart from the 24 who have indicated their interest on the FB event, two others (a patient & a parent) have told us they hope to go and two other patients have told us they might go. There were six people at the last meet-up. #MEcfs #PwME #CFS
    #mastodaoine @mecfs

  7. ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing by Davenport et al

    link.springer.com/article/10.1

    Screenshot from latest Science for ME @s4me weekly update

    #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

  8. ME/CFS and Long COVID Demonstrate Similar Bioenergetic Impairment and Recovery Failure on Two-Day Cardiopulmonary Exercise Testing by Davenport et al

    link.springer.com/article/10.1

    Screenshot from latest Science for ME @s4me weekly update

    #MEcfs #LongCovid #PwME #CFS #ME #MyalgicE @mecfs @longcovid

  9. Long Covid Advocacy 101: 03. The Biopsychosocial Model

    longcovidadvoc.com/post/bps

    From the Science for ME @s4me weekly update:

    A thorough and critical look at the origin of the biopsychosocial model and its devastating consequences. The article has an excellent visual summary of its key points.

    #mecfs @mecfs #longcovid @longcovid

  10. Long Covid Advocacy 101: 03. The Biopsychosocial Model

    longcovidadvoc.com/post/bps

    From the Science for ME @s4me weekly update:

    A thorough and critical look at the origin of the biopsychosocial model and its devastating consequences. The article has an excellent visual summary of its key points.

    #mecfs @mecfs #longcovid @longcovid

  11. CW: joke about medical gaslighting, ME/CFS

    @ContraindiKate Funny! 😄

    I have no idea whether this study on glymphatic clearance is any good (I don't have the background or ability to evaluate research studies) but there's a discussion thread on the S4ME forum here:

    s4me.info/threads/disrupted-gl

    #MEcfs #PwME #Research #S4ME

  12. CW: joke about medical gaslighting, ME/CFS

    @ContraindiKate Funny! 😄

    I have no idea whether this study on glymphatic clearance is any good (I don't have the background or ability to evaluate research studies) but there's a discussion thread on the S4ME forum here:

    s4me.info/threads/disrupted-gl

    #MEcfs #PwME #Research #S4ME

  13. (UK) Action for ME
    ME: A Guide for Educators

    actionforme.org.uk/resource/me

    Science for ME @s4me weekly update:

    “A useful document outlining the symptoms and impact of ME/CFS, and adaptations and support that teachers and schools should provide for pupils with ME/CFS”

    #MEcfs #PwME #CFS @mecfs

  14. (UK) Action for ME
    ME: A Guide for Educators

    actionforme.org.uk/resource/me

    Science for ME @s4me weekly update:

    “A useful document outlining the symptoms and impact of ME/CFS, and adaptations and support that teachers and schools should provide for pupils with ME/CFS”

    #MEcfs #PwME #CFS @mecfs

  15. Our latest News in Brief summary (in two parts this week) has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 27 - Aug 2.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  16. Our latest News in Brief summary (in two parts this week) has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of July 27 - Aug 2.

    s4me.info/threads/news-in-brie

    @mecfs @longcovid

    #MEcfs #PwME #LongCovid #PwLC

  17. From @onelife_livedwell on IG:
    Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

    #mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

  18. From @onelife_livedwell on IG:
    Let’s talk about the unofficial evaluation that can determine belief, treatment, or accommodations. What’s being measured is legibility in the eyes of the system you’re dealing with.

    #mecfs #fibromyalgia #invisibleillness #pwme #cfs @mecfs

  19. Chronisch Antifa:

    Ich gründe eine online Antifa Gruppe für Menschen mit chronischer Erkrankung und Behinderung, die eingeschränkte Energieresserven haben, oder aus anderen Gründen nicht an lokalen Gruppen teilnehmen können.

    Komm gerne auch dazu, wenn deine Energie sehr begrenzt ist. Wir sind ME/CFS freundlich.

    signal.group/#CjQKIA8keVehCp3o

    #antifa #chronicIlllness #MECFS #disabled

  20. Chronisch Antifa:

    Ich gründe eine online Antifa Gruppe für Menschen mit chronischer Erkrankung und Behinderung, die eingeschränkte Energieresserven haben, oder aus anderen Gründen nicht an lokalen Gruppen teilnehmen können.

    Komm gerne auch dazu, wenn deine Energie sehr begrenzt ist. Wir sind ME/CFS freundlich.

    signal.group/#CjQKIA8keVehCp3o

    #antifa #chronicIlllness #MECFS #disabled

  21. For more information about this film, including cast names and bios, see director Sara Nesson's website:

    saranesson.com/unbound

    I've also attached an important disclaimer (see image) from the website.

    @mecfs @longcovid

    2/2

    #MEcfs #LongCovid #NEISvoid #ChronicIllness #Dance #Art

  22. For more information about this film, including cast names and bios, see director Sara Nesson's website:

    saranesson.com/unbound

    I've also attached an important disclaimer (see image) from the website.

    @mecfs @longcovid

    2/2

    #MEcfs #LongCovid #NEISvoid #ChronicIllness #Dance #Art

  23. "Unbound: Illness is not the end of dance"

    A short film
    (about 6 1/2 minutes)

    "Twenty bodies. One thread of movement. Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality."

    youtube.com/watch?v=mxK6UKtWuLc

    For blind or visually impaired viewers there's an audio track with descriptions of the movements.

    @mecfs @longcovid

    1/2

    #MEcfs #LongCovid #NEISvoid #Dance #Art

  24. "Unbound: Illness is not the end of dance"

    A short film
    (about 6 1/2 minutes)

    "Twenty bodies. One thread of movement. Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality."

    youtube.com/watch?v=mxK6UKtWuLc

    For blind or visually impaired viewers there's an audio track with descriptions of the movements.

    @mecfs @longcovid

    1/2

    #MEcfs #LongCovid #NEISvoid #Dance #Art

  25. ME Research UK:

    Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: bit.ly/4vNixld

    #mecfs #cfs #pwme @mecfs

  26. ME Research UK:

    Read more about this newly published research on the glymphatic system in people with ME/CFS at our website: bit.ly/4vNixld

    #mecfs #cfs #pwme @mecfs

  27. ME Research UK:

    Our July 2026 e-newsletter is now available!

    Covering this month’s ME Research UK updates, including the Big Give Pledge opportunity, it is only a click away - tinyurl.com/2f9y8cpx

    Stay informed and engaged with our community.

    #mecfs #cfs #pwme @mecfs

  28. ME Research UK:

    Our July 2026 e-newsletter is now available!

    Covering this month’s ME Research UK updates, including the Big Give Pledge opportunity, it is only a click away - tinyurl.com/2f9y8cpx

    Stay informed and engaged with our community.

    #mecfs #cfs #pwme @mecfs

  29. From the Solve ME/CFS Initiative:

    📢Check out our latest Research 1st Roundup!
    Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here:
    ow.ly/fYGq50ZuS5M

    #mecfs #longcovid @mecfs @longcovid

  30. From the Solve ME/CFS Initiative:

    📢Check out our latest Research 1st Roundup!
    Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here:
    ow.ly/fYGq50ZuS5M

    #mecfs #longcovid @mecfs @longcovid

  31. @Lassitudor mein Antrag wurde abgelehnt, ich komme noch "zu gut" klar.
    Dass man aus #MECFS eine psychische Erkrankung für Anerkennung machen muss, lese ich aus dem Artikel nicht. Wohl aber, dass sowohl die Kriterien als auch die Begutachtungssituation völlig an dieser Erkrankung vorbei gehen #fürsiegetestet

  32. Pflegegrad bei #MECFS durchsetzten - muss man daraus eine psychische Erkrankung machen, ob Pflegegrade zu bekommen?

    share.google/HNyqhiqwlTNcAh4PW

  33. 2/

    Changing clothes largely means putting on my clothes on in the morning and taking them off at night, along with washing. I try to avoid it as much as possible apart from that as I try to avoid wasting energy.

    I already did it sitting down.

    #PwME #Spoonies #MyalgicEncephalomyelitis
    #mecfs #longcovid @mecfs @longcovid