#cfsme — Public Fediverse posts

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

(US)
Tell Congress: Fund ME/CFS Research Now

Deadline is April 15 I believe

https://solvecfs.quorum.us/campaign/157943/

Image is from the AMMES April 2026 newsletter

#MEcfs #PwME #ME #MyalgicE
@mecfs
#CFSME #MEeps #CFIDS #SEID #NeuroME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.

When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.

#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more

You know you’re chronically ill when the drs is always selected whenever you open your contacts 😂

Absolute nightmare getting through this morning, I managed a to get a telephone appointment, I’ll go to walk in/A&E if anything gets worse.

#Fibromyalgia #Fibro #Type2Diabetic #CFSME #CFS #ME #Depression #Anxiety #Agoraphobia #AuDHD #ADHD #Autistic #Allergies #MCAS #HistamineIntolerance

You know you’re chronically ill when the drs is always selected whenever you open your contacts 😂

Absolute nightmare getting through this morning, I managed a to get a telephone appointment, I’ll go to walk in/A&E if anything gets worse.

#Fibromyalgia #Fibro #Type2Diabetic #CFSME #CFS #ME #Depression #Anxiety #Agoraphobia #AuDHD #ADHD #Autistic #Allergies #MCAS #HistamineIntolerance

My body has been failing me for a while now, but it feels like it hasn’t taken a day off for ages.

I now have a swollen little toe, big toe on same foot hurts, and general feet cramping. My thumb is still slightly swollen, my knees are worse. But it’s probably just a #FibroFlare

I’ve got pain relief and compresses, and resting them as much as possible.

I think I need a new doctor.

#Fibromyalgia #Flare #CFSME #ChronicPain #Diabetic #AuDHD #Autistic #ADHD #Diabetic #MentalHealth #IBS #OAB

I just got told ‘I hope you get well soon’ so I rage bought this t shirt. I’ve been meaning to buy, every time there’s a campaign. They also do an easy to read font. This campaign by The Chronic Iconic ends in 2 days.

https://www.weareprintsocial.com/campaigns/rainbowngws-3

#NotGettingWellSoon #Fibromyalgia #Fibro #CFSME #CFS #ChronicPain #ChronicFatigue #FibroFog #BrainFog #Anxiety #Depression #FibroFlare #ADHD #Autistic #AuDHD #IBS #Diabetic #TheChronicIconic #ChronicAndIconic #WeArePrintSocial

#EpsteinBarr virus-acquired immunodeficiency in #myalgicencephalomyelitis —Is it present in #longCOVID?

Free full text:
https://tinyurl.com/25e8vwt4

Hypothesis paper discussing the role of #EBV in #postCovid

@longcovid #PwLC #PostCovidSyndrome #LC @covid19
#COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @mecfs

#MEcfs #CFS #MyalgicE #PwME #ChronicFatigueSyndrome #MyE #ME #millionsmissing #CFSME #CFIDS

#EpsteinBarr virus-acquired immunodeficiency in #myalgicencephalomyelitis —Is it present in #longCOVID?

Free full text:
https://tinyurl.com/25e8vwt4

Hypothesis paper discussing the role of #EBV in #postCovid

@longcovid #PwLC #PostCovidSyndrome #LC @covid19
#COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @mecfs

#MEcfs #CFS #MyalgicE #PwME #ChronicFatigueSyndrome #MyE #ME #millionsmissing #CFSME #CFIDS

Posted @withregram • @decodemestudy Today is #NationalDNADay Genetic studies have transformed our understanding of many diseases. By studying your DNA, we aim to identify the genetic differences in those with #MECFS. Join #DecodeME today https://shorturl.at/kmnK7
#PwME #DNA #GWAS #Genetics

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #cfsme

Posted @withregram • @decodemestudy Today is #NationalDNADay Genetic studies have transformed our understanding of many diseases. By studying your DNA, we aim to identify the genetic differences in those with #MECFS. Join #DecodeME today https://shorturl.at/kmnK7
#PwME #DNA #GWAS #Genetics

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #cfsme

Posted @withregram • @decodemestudy Today is #NationalDNADay Genetic studies have transformed our understanding of many diseases. By studying your DNA, we aim to identify the genetic differences in those with #MECFS. Join #DecodeME today https://shorturl.at/kmnK7
#PwME #DNA #GWAS #Genetics

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #cfsme

Posted @withregram • @decodemestudy Today is #NationalDNADay Genetic studies have transformed our understanding of many diseases. By studying your DNA, we aim to identify the genetic differences in those with #MECFS. Join #DecodeME today https://shorturl.at/kmnK7
#PwME #DNA #GWAS #Genetics

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #cfsme

Posted @withregram • @decodemestudy Today is #NationalDNADay Genetic studies have transformed our understanding of many diseases. By studying your DNA, we aim to identify the genetic differences in those with #MECFS. Join #DecodeME today https://shorturl.at/kmnK7
#PwME #DNA #GWAS #Genetics

@mecfs @cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #cfsme

From: Solve ME/CFS Initiative

Our latest journal includes our newest class of #RamsayResearchers, exciting updates about the reach of our #HowLong? PSA & interview tour, a community support resource guide & more! http://ow.ly/ffmF50M3ICf

"Ramsay researchers have gone on to earn $8 million in follow-on funding, much of it from the NIH. That's a 8x return on our investment in preeminent scientists & researchers driving toward treatments"

#MEcfs #CFS #PwME #CFSME #CFIDS @longcovid #LongCovid

really need to get out of this cycle I’m in. But I crash out straight after work as I physically cannot stay awake or function much past it. Then before I know it it’s 10/11pm and I’m awake.

It’s frustrating but managing chronic fatigue and headaches etc is tricky #NEISvoid #ChronicIllness #FibroProbs #Fibro #Fibromyalgia #FibroFog #ChronicPain #CFS #CFSME #MECFS #ChronicFatigue #ChronicFatigueSyndrome #Spoonie #MentalHealth #MentalIllness #bpd #newbie #MadMastodon #TwitterMigrant #Disabled 💜