#chronic-illness — Public Fediverse posts

I have to believe that good things happen and that they can happen to me.

$2162 to go and I need it right away!

Please help all you can.

https://chuffed.org/project/blessks
v: skillingmesoftly
p: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

Chronic spontaneous urticaria is awful. Last night I fell into a reddit rabbit hole reading posts about CSU and feeling kind of hopeless. Thankfully I had therapy today and got to talk it out. Part of me desperately needs to vent, part of me is afraid to push people away by complaining about it so much.

But the truth is my body is covered in itchy hives all the time and it fucking sucks. It's especially frustrating because my current treatment is no longer working.

#chronicillness

A blunt question: if your medication ran out, how long would you realistically last?

Not the movie version. The real math—counting pills, stretching doses, guessing how far you'd get.

I ran that math after my Type 2 diagnosis—and spent years watching the genre overlook people like me. Chronic illness is usually a death sentence or a disposable plot device.

Tell me your answer below, then read the post: http://jhrln.link/b/4nC

#Diabetes #ChronicIllness #ApocalypticFiction #Bookstodon

A Tuesday question worth sitting with: if your medication supply ran out, how long would you realistically last?

For diabetics like me, it's a count of days. For many others, weeks. For some, the supply is the deadline.

That uncomfortable math is why I wrote yesterday's post on chronic illness in apocalyptic fiction—and why my latest novel opens with a man hunting for insulin as his blood sugar climbs. No miracles, no easy outs.

jhrln.link/b/4nC

What's your answer? #Diabetes #ChronicIllness #ApocalypticFiction

Michael J Fox received the Bob Hope Humanitarian Award and spoke about how he initially hid his Parkinson’s Disease.

Even with his fame and fortune, he feared the stigma of disability.

He turned that fear into advocacy.

He raises money and awareness and reminds us of the importance of compassion.

I’m eternally grateful to him for showing what disability visibility looks like and for always using his platform to make the world a better place.

#emmys #michaeljfox #Parkinsons #disability #ableism #chronicillness

RE: https://mastodon.social/@ellespeaks/117271041546276204

Please help! Anything helps
Stalled for 12 days

@[email protected] @[email protected] @disabledvoices
@povertyandinequality

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #pmdd #bpd #Kofi #venmo #paypal #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid

When I say I have “brain fog”, this is what is actually going on:
1. I can’t think too much or at all bc my brain literally feels like it’s overheating
2. I can’t have conversations bc I keep forgetting what we’re talking about throughout the convo
3. Also I can’t recall words
4. It makes learning new things extremely difficult

#brainfog #chronicillness #mecfs

Over due by 6 days. Stalled abt 2 weeks.
$325 to go for September necessities

Breakdown:
$125 - pharmacy
$100 - food
$50 - co pay for appointment
$50 - cell phone bill

Disabled, queer, diabetic, estranged from family and living below the poverty line bc i cannot work due to chronic pain and disabilities

I appreciate ANY help 🙏🏻 tysm

V: d_fay
Pp: peach77

#mutualaid #queer #lgbtq #Disabled #disabledmutualaid #spoonie #chronicillness #cat #artist @[email protected] @[email protected] @disabledvoices @lgbtq

I’m on a tour of my relative’s beds in Canada. Joyous days with my daughter
#ThereForME
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS
#MissingMillions
@[email protected]
@longcovidsupport.bsky.social
@[email protected]

Miss our #ChronicIllness and #Disabled communities.

And everyone else.

I’ve lost touch with so many people.

I used to post a lot but now everyone is gone & few people remember me. I’m a lot sicker too but it was nice to get online and say hi 👋🏻

The tech bros wanted to divide & conquer & they did. We don’t live in communities anymore online or in real life.

Miss our #ChronicIllness and #Disabled communities.

And everyone else.

I’ve lost touch with so many people.

The tech bros wanted to divide & conquer & they did. We don’t live in communities anymore online or in real life.

RE: https://mastodon.social/@ellespeaks/117255430152864799

Still stalled, still sick. anything at all helps‼‼🆘️

I do not have anyone else to turn to and I am disabled and cannot work
I really need to start feeling a little better here physically.

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty @[email protected] @[email protected] @disabledvoices @lgbtq

Hey friends. Sad bear, here. Zero spoons. Asking folks to please uplift my asks, please don't forget about me.

Yesterday didn't go very well. No progress. $2300~

It's still important that I move.

Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc

#mutualaid #directaid #disabled #writer #queer #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicillness @spoonie

Polly Patterson - Supporting Clients Through Medical Gaslighting

https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Therapy via Messaging

https://chroniclivingtherapy.com/insights-text-based-therapy/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots

@AAKL
The medical community keeps finding links, declaring one causes the other, then eventually back tracks all while ignoring the probability that ADHD and gut symptoms aren't related directly but are both symptoms of Ehler's Danlos... But god forbid a doctor think of a zebra when they hear hoofbeats. Even there "myth" that cracking your knuckles leads to arthritis is busted without ever stopping to realize if you have EDS then your more likely to crack your knuckles (and other joints) and also have arthritis earlier than most.

Bottom line: Start researching "rare" diseases and you'll start finding a ton of interesting connections and help make countless lives better.

I'll get off my soapbox, sorry.

#ADHD #EDS #ChronicIllness #EhlersDanlos

RE: https://allovertheplace.ca/@RareBird15/117236252976803569

I wrote this post a few days ago when I had $22 to my name. Well, I now have only $1.40 to my name, and my Ollama Cloud Max bill is due today. I tried to chat with my Hermes agent this morning and got a billing error. I use AI for everything, from help communicating and dealing with my severe executive dysfunction, to health tracking and planning for my many doctor appointments, to developing NVDA add-ons and writing, so I'm not looking forward to being without it, and I don't know how long it will be until I get paid. I'm doing usability testing gigs as I get them, but payment for jobs I've completed is at least a few days away.
If you can spare a few dollars to help me keep my access tools running and cover basic needs while I wait for job payments to clear, here is where you can support my work:
GoFundMe: https://gofund.me/f34546df5
Ko-fi: https://ko-fi.com/rarebird15
Even a quick boost or share makes a big difference right now.
#Disability #MutualAid #Blind #Autistic #Accessibility #DisabledWriter #a11y #AssistiveTech #Neurodivergent #ChronicIllness

Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju

*just create a login & scroll to see Warrior Short Film until midnight Sun 13

As someone who took 5+ years to get diagnosed, sadly I can relate

#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain

#ThereForME
#WomensHealth
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@[email protected]
@longcovidsupport.bsky.social
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

#ThereForME
#WomensHealth
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@[email protected]
@longcovidsupport.bsky.social
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

Brain is soup.

#disabled #fatigue #chronicillness #cat

Media gaslighting = patient harm

https://chroniclivingtherapy.com/brain-retraining-merry-go-round/

Screenshot from latest edition of the Chronic Living Therapy email bulletin

#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid

As the UK prepares to vote on Assisted Dying, I want to share Stéphanie Lavoie’s story.

She was a 30 year old disabled Canadian suffering from Lyme Disease & severe malnutrition.

She needed a feeding tube. She was given MAiD instead.

She was only 59lbs when she died.

People will disingenuously say this wasn’t coercion.

That she was suffering so it’s good she had the choice.

But she didn’t NEED to suffer.

She could have been treated.

Starving to death is slow & painful.

Of course she “chose” MAiD.

I urge people to consider if it was a choice.

She was 59lbs and being denied a feeding tube.

She said it best herself:

“Is it ethical to let someone die because they do not fit into one of the famous checkboxes?”

No. It’s not. But our society sees disabled lives as expendable.

https://globalnews.ca/news/10529000/lyme-disease-assisted-death-canada/

#disability #eugenics #ukpol #assisteddying #maid #canpol #chronicillness

Only a few days left until surgery. Hanging in there!😁

#countdown #chronicillness #disabled

Washing is done. I think I overexerted myself and used up too many spoons. Pain is high. Back to bed.....but, washing done!😁🎉

#chores #disability #chronicillness

RE: https://mastodon.social/@ellespeaks/117163537926818064

Stalled over a week
Pharmacy over due by 3 days
needing food funds

I've been sick and am going to urgent care tomorrow for whatever I'm fighting off
I need help with getting the rest of September's necessities, i appreciate any help very much! Thank you!

V: d_fay
P: peach77

#mutualaid @[email protected] @[email protected] #disabled @disability @disabledvoices #lgbtq #queer @[email protected] @[email protected] @queer #artist #spoonie #chronicpain #chronicillness @povertyandinequality