#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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It’s been a few days…
And I've needed those days to recover. Between bloodwork last Thursday and scheduled in for X-rays tomorrow as well as getting five appointments for myself, one for my youngest, and one for the both of us scheduled--you could say I'm a bit overworked. Not only getting everything scheduled, but getting transportation scheduled for these appointments. It can be tiring. And because it can be tiring, I haven't had much time to be creative over the last few days leading up to a mild fever […]https://ceriashwardauthor.wordpress.com/2026/08/19/its-been-a-few-days/
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The Economics of Survival by Fred Rossi: "Twelve Percent"
https://darthfoo.substack.com/p/twelve-percent
https://s4me.info/threads/fred-rossi-writings-related-to-me-cfs.47324/post-713080
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs #PwME #chronicillness #Spoonie @mecfs @longcovid
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 20-Aug-2026 02:40 UTC+7 🚨
still urgently need:
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon yesterday for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
Thank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @wrzky
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
The #band called me up to the mic and, with a little help from London (vocals, guitar), I was supposed to sing a surprise song together with the band. Well, after the first shock I just did it, even though I wondered what song it would be 🫣😂
Thank goodness it was a #song that’s almost been with me my entire #50years of being: #TheClash #ShouldIStayOrShouldIGo
I never thought I would get this old, especially with #chronicillness, now I’m ready for the next 50 years of Rock’n’Roll 💃🔥
video by T10 -
Disabled people have been running asynchronous, energy-aware, home-optimized lives for years. That's not a workaround. That's a preview.
https://onlys.ky/future-in-bedrooms/?utm_source=mastodon&utm_medium=social&utm_campaign=fresh
#Disability #FutureOfWork #ChronicIllness #AccessibilityDesign #Neurodivergent
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 19-Aug-2026 13:55 UTC+7 🚨
still urgently need (2 days with no movement):
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$496 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
For you❤️(and a reminder for me too).
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PLEASE BOOST. Friends, I have had some unexpected medical test results. I'm a disabled trans man who lives under the poverty line, and I could really use a little love right now. Would you help me get some snacks and ready meals so I don't need to cook for the next little while as I get over the shock and deal with med side effects? My goal is $100 to cover all and keep me going for a little bit. Thank you❤️
Edit: now $65 to meet my goal.#mutualaid #MutualAidRequest #disabledmutualaid #lgbtqia #neurodivergent #povertykills #transmutualaid #transmutualaidrequest #MutualAidSavesLives #chronicillness #chronicallyill #chronicpain #transrights #lgbtqiaplus #hope #goodthings #community
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Went with a friend to an appointment at the "Highly Complex Care" doctor and the doc did not assume my friend who was *coming in person* despite being *usually bedbound* would want to lie down. What are we doing
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 19-Aug-2026 01:43 UTC+7 🚨
still urgently needed:
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$496 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
In good news, the pain has kicked off ready for my MRI in Friday.
In bad news I'm in quite a lot of pain and can't do an enormous amount about it.
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 18-Aug-2026 13:40 UTC+7 🚨
still urgently needed:
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$496 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
*/Old Enemy/*
You, who I thought defeated
Slid through my defenses
And instilled that old fear
Of a life lived in pure sufferingBut, old enemy
You return at a disadvantage
For though I still fear you
I fought you and wonThrough years of hardship
Loss of my confidence
Terror and sleepless nights
I bested you, with helpSo why do you return?
Was my reprieve only temporary
Or, my foolish foe
Do you fear what I am becomingWhat I might accomplish
If, free of your binding
I could finally ascend?#poetry #writing #writersofmastodon #covid19 #LongCOVID #ChronicIllness
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Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story
What does faith look like when healing doesn’t come the way you hoped? Heather was born with a congenital heart defect and wasn’t expected to live. Through multiple heart surgeries, breast cancer, chronic illness, and ongoing physical challenges, God has continued to meet her again and again. In this powerful episode, Heather shares how her struggles have deepened her faith and given her a purpose—to bring hope to others walking through chronic and invisible illness. Sometimes testimony doesn’t say, “Everything is perfect now.” Sometimes it says, “Jesus is still here.” ❤️ -
Living with a #chronic disease is difficult, but don’t give up. Stay strong, take it one day at a time, and remember you are not alone. Keep going.
Words shared with me by the headteacher of my former school, John Mutabazi.🙏
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I was thinking about all the things #ChronicIllness cost me.
I’m normally too busy just surviving to think about it.
Some people mourn the children they’ll never have.
I realised I will most likely never meet the love of my life. That hit so hard. -
I was thinking about all the things #ChronicIllness cost me.
I’m normally too busy just surviving to think about it.
Some people mourn the children they’ll never have.
I realised I will most likely never meet the love of my life. That hit so hard. -
Day 8 of vertigo + migraine. This morning it waited to pounce until I had been up and awake for a while. So I'm counting that as a win.😵💫
#vertigo #migraine #ChronicIllness -
A system gap affecting disabled people in Switzerland has left our friend A. with impossible bills to pay after struggling already with financial and bureaucratic nightmares for years.
Please show solidarity with them by giving any amount you can and/or sharing the gofundme <3 thank you!!
#mutualaid #MutualAidRequest #AuDHD #autism #chronicillness #chronicallyill
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🚨 UPDATE 17-Aug-2026 20:05 UTC+7 🚨
still urgently needed:
⏳️ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive
⏳️ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳️ ‼️$0/$125 for electricity, water, and internet — past its 16 August deadline. I’m afraid they are going to cut off my water and internet again.‼️
$496 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.- https://ko-fi.com/wrzky/goal
- Support options: https://wrzky.com/links
- Real time support ledger: https://wrzky.com/psl
Thank you, thank you 🙂↕️💜
Any amount helps. Any support is much appreciated. Please boost this so my request can reach further than my feed. Thank you, thank you 🙂↕️💜
@mutualaid @mutualaidspace @mutualaid @wrzky @wrzky @frugalcoffee @disability @QuyetPawz @ellespeaks @edendestroyer
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 17-Aug-2026 19:47 UTC+7 🚨
still urgently needed:
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$496 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
People treat the disabled as invisible.
They look past us.
They ignore us.
Rashawn Williams has Down Syndrome and was lost.
He approached Metro workers and no one helped him.
He ended up in their “refuge area” for 6 days because no one checked on him.
He survived but deserved so much better:
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So fun when your own insides, leaves your own insides bloody and bruised. Digestive problems is so much (/sarcasm)
