#chronic-illness — Public Fediverse posts

The countdown is on until my next operation in approximately a week. Preparations begin now, because everything takes 5 times as long with disability anyway, let alone additional pain etc. I'm nervous, but determined, and have a plan for the week that includes rest, and some time for creative things like journalling and reading, to take the edge off a little.

The main thing I'm concerned about is being able to get ready meals for recovery, afford the meds I'll need, and also the taxi/uber to and from the hospital, which is quite far away-its hard work when there's no one to drive or care for me in person in that sense. I'm keeping that faith though that things will work out😁

I've made a pinned post with my Ko-fi for what I need to be able to get through it all(put in in comments here too). If you could share it and help where you can please friends, it would be greatly appreciated.

#disabled #chronicillness #chronic #chronically_ill #disability #severepain #hanginginthere #optimistic #countdown

RE: https://me.dm/@kshernandez/117226345444356892

18 came in! Can anyone match!?

1 means new beginnings and rebirth
8 means, among other things, inner strenth and financial reward!

https://chuffed.org/project/blessks

vnm: skillingmesoftly
pypl: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

RE: https://lgbtqia.space/@aceofcosmicspace/117226113967982260

You're amazing, fediverse! I'm only $195 away from my goal, so that I can get what I need in the lead-up to my next operation, and for recovery. Thank you to those who have already helped. Please help me meet my goal. Being ill, disabled and under the property line is stressful, and I'm extra stressed about the upcoming operation, and being able to manage. Your help means the world♥️

#boostforvisibility #MutualAidRequest #transcrowdfund #DisabledSocial #disability #communitymatters #comminitycare #thankyou #appreciated #gratitude #fedi #cats #witch #lgbtqia #chronic #chronicillness

RE: https://lgbtqia.space/@aceofcosmicspace/117226113967982260

Thank you to everyone who's helped so far! I appreciate you all♥️
Please boost and help me(disabled trans guy) reach the rest of the goal(only $195 to go!)and help me prepare for my upcoming surgery and recovery, so I don't need to stress about transport, meds and food.

#medical #aid #boost #disabled #chronicillness #queer #lgbtqia #bisexual #tired #fatigue #hope #love #optimistic #grateful #gratitude #mutualaid #mutuals #fediverse #fedi

RE: https://lgbtqia.space/@aceofcosmicspace/117226113967982260

Boost for reach, help where you can, fediverse! Poverty plus disability is hard AF.

#boost #boostplease #MutualAidSavesLives #MutualAidRequest #mutualaidspace #MutualAidMonday #MutualAidThread @mutualaid #letsgo #help #trans #lgbtqia #transgender #chronicillness #disabilityrights #disability

A very short, restless night of sleep in this house, again.

I can't lose hope tho, I've come too far to lose now.

If you also have hope, please be kind and help close this out!

Chuffed.org/project/blessks (deets and tally)
vnm: skillingmesoftly
pypl: kshernandezinc

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

BOOST PLEASE.

The time has come where I need to prepare for my upcoming surgery and hospital trip. As a disabled trans man below the poverty line, I need to be able to get there and back via Uber/taxi, as well as then have enough ready meals/frozen meals etc for the week after surgery when I get home, as I won't be able to cook or manage for myself. I'll also need meds. If you can help me reach my goal of $220 to cover transport, meals and the meds I'll need to get me through this, it would be very greatly appreciated. (⭐Needed by the 10th of Sept please so I have time to prepare. Things take 5 times as long to do when you're disabled and don't have transport⭐).😅 Thank you so much ♥️EDIT: Only $195 needed now to reach my goal.
#mutuals #communitymatters #friendiverse #friends #fedihelp
#meds #mutualaid #mutualaidboost #mutualaid #disability #chronicillness #operation #disabledcrowdfund @mutualaid #boostforreach #trans #lgbtqia #queer #bisexual #urgent #thankyou #gratitide #optimism #health #wellness #community #communitysavestheworld @AnthonyJK #hope #keephopealive #youcandoit #love
#kindness #kindnessmatters #KindnessIsPunkAF @Drippy_Spudd #nuerodivergent #ahdh #autism #manifest #transcrowdfund #smalldonation #pleaseboost #antipovertyservices @edendestroyer @ellespeaks @broadwaybabyto

https://ko-fi.com/aces_funhouse

If I had a dollar for the amount of blood tests and urine samples I have had to do over the years with disability(and especially recently with additional health stuff), I'd be able to afford my groceries and bills without issue😂😅

#disabled #disability #medical #chronicillness

RE: https://social.saarland/@achim/117220772698874452

Fühle dich von ❤ gedrückt, liebe @afelia ! Ich wünsche dir, dass dein Zustand sich bald bessert 🌻
Und ich danke dir für deine wie immer wahren und wohl gewählten Worte. Die Frage nach dem Wert ist für mich in einem Crash immer noch fast unerträglich. Wortmeldungen wie deine sind da bisweilen sehr wertvoll und tröstend. Danke, dass du sichtbar bleibst! 🫂
#mecfs #chronischkrank #chronicillness

This is shameful discriminatory and misogynistic reporting.

People aren’t choosing disability to be “cool”.

Young women don’t have to “prove” to you that they’re sick.

Disability rates are skyrocketing because we’ve left a disabling virus rip through the population for over 6 years.

The insinuation that disabled women who post about their experiences are “entrenching a culture of economic inactivity” is ableism.

They want to shame us into being silent about our suffering.

Make noise.

Let’s tell the Telegraph this disgusting article should be retracted

https://www.telegraph.co.uk/news/2026/09/05/disability-became-cool/

#ableism #eugenics #disability #chronicillness

Can anyone spot me a few e-gift cards for groceries? it would help me out a lot.

On my wishlist. https://throne.com/kswriteshere

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness

You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!

Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.

#Exercise #ChronicIllness #ChronicPain #ShitPost

OH FOR....

Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.

#chronicillness #ehlersdanlossyndrome

The Looking Glass

https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/

My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia

RE: https://lgbtqia.space/@aceofcosmicspace/117209647785511701

Thank you! I only need $30 to go to reach my goal to get the food I need now. Please help if you can. Boosts help too♥️

#boost #mutualaid #disabled #disability #chronicillness #community #bisexual #lgbtqia #trans #assist

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer