#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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A paramedic has been fired for telling a stroke patient to “stop being a baby” and that she was “choosing to be sick”
Disabled people hear this all the time.
This type of abuse and judgment is far too common in healthcare.
Patients aren’t believed and many die as a result.
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Yesterday's therapy wiped me out today. Unpacking things you spent years burying leaves you feeling completely drained.
On top of that, I am grieving the church.
My faith has not wavered, but in-person worship stopped working a while ago. Looking online has been disheartening. So much of what gets recommended is prosperity preaching that turns belief into a financial investment, peddling prophecies for money while telling anyone who remains sick or struggling that they lack enough faith.
Real care gets lost in that environment. I have never experienced a community that reaches out when someone goes missing, builds accommodations from the start, and holds space for sorrow instead of demanding an instant, tidy resolution.
Jesus spent his life alongside the people religious systems pushed aside, yet finding that same heart online feels rare. If you belong to an online Christian gathering that lives this out and prioritises accessibility over spectacle, I would love to hear about it.
#FaithCommunity #AccessibilityMatters #ProgressiveChristianity #ChurchTrauma #MentalHealth #ChronicIllness #FaithOnline
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 23-Aug-2026 02:07 UTC+7 🚨
⏳ $141/$250 for groceries, $109 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$452 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
Three good things today:
Managed some housework and organizing in between resting today. It feels good to be able to accomplish even a little, and feel somewhat "normal".
The feeling of very early spring in the air even though today was a bit overcast.
Learning more about my system, and doing more healing work with system/constellation-mates.
#3GoodThingsToday #ThreeGoodThings #plural #disabled #chronicillness #neurodivergent
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“If you were really sick you would just go to the hospital”.
Disabled people hear this ALL the time.
Sometimes, the hospital is dangerous.
Four patients at Ascension Saint Thomas in Nashville suffered severe complications after they had potassium injected into their epidurals Instead of pain medication.
At least one patient is paralyzed from the sternum down.
Genuinely hard to imagine how this occurs by “accident”.
https://www.cbsnews.com/news/nashville-hospital-drug-mix-up-complications/
#disability #chronicillness
#healthcare #medicalerrors #tennessee -
RE: https://mastodon.social/@ellespeaks/117133232648522265
Stalled still! $0/$500
Absolutely any help matters and piles up fast! Thank you
💕💕#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @disability @creativearts @[email protected] @[email protected] @mentalhealth
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"Run the Dishwasher Twice"
https://sfllivestreamsredditfree.medium.com/run-the-dishwasher-twice-free-79535ac7deb
"I began to tell him you’re not supposed to"
Therapist: “Why the hell aren’t you supposed to? If you don’t want to scrub the dishes & your dishwasher sucks, run it twice...Rules do not exist.”
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I think the PEM from my antidepressant withdrawal is starting to show up
#chronicillness #mecfs #myalgicencephalomyelitis -
"Questions to ask when evaluating evidence from clinical trials" By Simon Spichak
https://thesicktimes.org/questions-to-ask-when-evaluating-evidence-from-clinical-trials/
Although this makes some references to long Covid when giving examples, it's relevant and informative for all conditions
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 22-Aug-2026 02:25 UTC+7 🚨
⏳ $78/$250 for groceries, $172 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$515 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
I think it's time to admit my #chronicillness means I won't be able to get back to some things and that my 2 #3dprinter probably should be sold to free up space. Trouble is I've no idea of any groups or people around Crieff who might be interested in a big #Voron 2.4r2 350 I built myself and a PrusaMIni+ I've had for a while.
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From @onelife_livedwell on IG: Interoception is your body’s ability to sense what’s happening on the inside. In athletes, we call this body awareness, but in chronic conditions, it’s too often labeled anxiety.
#chronicillness #spoonie #mecfs #longtermillness #longcovid @mecfs
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Chronic illness friends: a gentle reminder that you do not have to take advice from anyone who hasn't needed recovery time after taking a shower.
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 21-Aug-2026 16:25 UTC+7 🚨
still urgently need (40h with no movement -- nearly 2 days):
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
RE: https://kinkycats.org/@aces_funhouse/117132569232104100
Posted on my alt, but if anyone can help it would be much appreciated. Please boost for reach etc.
#mutualaid @trans #lgbtqia #chronicillness #disabled #MutualAidRequest
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 21-Aug-2026 06:25 UTC+7 🚨
still urgently need (30h with no movement -- over a day now):
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
EDIT: I decided on the Daylio app. It stores data on the iphone (not the cloud) and I can back it up on my computer. The price is reasonable for a one time purchase and I can modify it to suit what I'm specifically trying to track.
Does anyone have a recommendation for an app (edit: for iphone) that would track my day-to-day health? I'm hoping for something that doesn't, in return, track me and my data. I know it's a big ask.
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Sympathetic 3-minute TV piece:
'I miss my freedom': Young woman with chronic fatigue shares reality of living with ME.I had to set my VPN to the UK to be able to watch it
Discusses fluctuating disabilities and how she uses a mobility aid despite being able to walk a little (like myself)
#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#chronicillness #Spoonie -
RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 20-Aug-2026 20:10 UTC+7 🚨
still urgently need (20h with no movement):
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon today for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
My GP is sick of her patients dying:
“A few million dollars or less each would be enough the sick & disabled live their whole lives. A drop in the bucket for the rich. Instead they’re left to die.”
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It’s been a few days…
And I've needed those days to recover. Between bloodwork last Thursday and scheduled in for X-rays tomorrow as well as getting five appointments for myself, one for my youngest, and one for the both of us scheduled--you could say I'm a bit overworked. Not only getting everything scheduled, but getting transportation scheduled for these appointments. It can be tiring. And because it can be tiring, I haven't had much time to be creative over the last few days leading up to a mild fever […]https://ceriashwardauthor.wordpress.com/2026/08/19/its-been-a-few-days/
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The Economics of Survival by Fred Rossi: "Twelve Percent"
https://darthfoo.substack.com/p/twelve-percent
https://s4me.info/threads/fred-rossi-writings-related-to-me-cfs.47324/post-713080
Screenshot from latest Science for ME weekly update
#LongCovid #MEcfs #PwME #chronicillness #Spoonie @mecfs @longcovid
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RE: https://wrzky.com/mutual-aid-request-august/
🚨 UPDATE 20-Aug-2026 02:40 UTC+7 🚨
still urgently need:
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon yesterday for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
Thank you, thank you 🙂↕️💜
@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @wrzky
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund -
🚨 UPDATE 20-Aug-2026 02:30UTC+7 🚨
still urgently need:
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon yesterday for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet — past its 16 August deadline. I’m afraid they are going to cut off my water and internet again.‼️$520 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goalThank you, thank you 🙂↕️💜
@mutualaid @mutualaid @mutualaidspace @disability @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund
