#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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Media gaslighting = patient harm
https://chroniclivingtherapy.com/brain-retraining-merry-go-round/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid -
As the UK prepares to vote on Assisted Dying, I want to share Stéphanie Lavoie’s story.
She was a 30 year old disabled Canadian suffering from Lyme Disease & severe malnutrition.
She needed a feeding tube. She was given MAiD instead.
She was only 59lbs when she died.
People will disingenuously say this wasn’t coercion.
That she was suffering so it’s good she had the choice.
But she didn’t NEED to suffer.
She could have been treated.
Starving to death is slow & painful.
Of course she “chose” MAiD.
I urge people to consider if it was a choice.
She was 59lbs and being denied a feeding tube.
She said it best herself:
“Is it ethical to let someone die because they do not fit into one of the famous checkboxes?”
No. It’s not. But our society sees disabled lives as expendable.
https://globalnews.ca/news/10529000/lyme-disease-assisted-death-canada/
#disability #eugenics #ukpol #assisteddying #maid #canpol #chronicillness
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Only a few days left until surgery. Hanging in there!😁
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@[email protected] @mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer
⭐PLEASE BOOST. URGENT⭐
Fedi friends, I hate to have to do this, but I am stuck. As many of you know I'm a disabled trans man currently dealing with stent issues due to kidney stones and other issues. I currently require adult diapers as a result, and while I was stocked up until after my next operation, the kidney infection I have recently been diagnosed with on top has meant I have gone through my stock of diapers in a hurry😅 I can't do without them, but can't afford more. I have done calculations and will need four packs @ $28.68 to get me through until next surgery and through recovery(cheapest I can find that will actually do the job).
I'm so sorry to ask but if anyone could help me meet my goal of $114.72 to get the diapers(free next day delivery), I'd be really grateful, as I'm under the poverty line and just don't have the ability. I'm already in a lot of physical pain with the stent, kidney issues and regular disability-I'd really like to avoid the humiliation of pissing myself without diapers if possible😅 Thank you in advance♥️
#help #disabled #trans #chronicillness #lgbtqia #povertyawareness #disabilitycrowdfund #boostforhelp #incontinence #disabledlife #grateful #gratitide #hope #communitycare #fedi #fedifriends #loveinaction @queer #bisexual #spiritual #pqgan #animallover #creative #DisabledCommunity #TransCommunity #helpplease #assistance #urgent #optimist #boost #boosts #fatigue #brainfog #exhausted #thankyou #appreciation @AnthonyJK @[email protected] @[email protected] @[email protected] @shareish #catlover #cats #dogs #whimsy #toot #lookforthejoys #thingstobethankfulfor -
Washing is done. I think I overexerted myself and used up too many spoons. Pain is high. Back to bed.....but, washing done!😁🎉
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RE: https://mastodon.social/@ellespeaks/117163537926818064
Stalled over a week
Pharmacy over due by 3 days
needing food fundsI've been sick and am going to urgent care tomorrow for whatever I'm fighting off
I need help with getting the rest of September's necessities, i appreciate any help very much! Thank you!V: d_fay
P: peach77#mutualaid @[email protected] @[email protected] #disabled @disability @disabledvoices #lgbtq #queer @[email protected] @[email protected] @queer #artist #spoonie #chronicpain #chronicillness @povertyandinequality
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RE: https://me.dm/@kshernandez/117226345444356892
Not one jot or tittle received.
Can anyone change that so I can move to a safer home?
Deets and tally: https://chuffed.org/project/blessks
other ways to aid:
vnm: skillingmesoftly
pypl: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #housingforall @spoonie @queer
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"We’re very good at rescue. But our institutions and funding arrangements are overwhelmingly organised around responding after illness has developed. Providers are paid for episodes of treatment. Performance is measured by consultations, scans, admissions and procedures. Far less attention is paid to whether people remain healthy, illness is prevented, or whether treatment leaves patients feeling and functioning better."
https://thepoint.com.au/opinions/260729-australia-has-an-illness-system-not-a-health-system
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A lot of people on Fedi have never read the Spoon Theory essay, and it shows.
When you have the time and energy, take a moment to read it. It's truly a gift to yourself and the people around you.
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A memory conjured by Gloria Steinem's passing.
https://ko-fi.com/post/My-Thoughts-on-Gloria-Steinham-N8V826R843
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer @feminism #GloriaSteinem #dorothypitmanhughes #Feminism #USPol #Memories #Childhood #BlackLivesMatter
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If the 1st dr. had taken me seriously & prescribed an antibiotic worth a damn i wouldnt be in this position rn
He said flat out he didnt believe me?
Thought in 2 days my body would naturally clear it. I know my body. He gave me an antibiotic that was 1 tab for 5 days. It barely touched it. I told my pcp. She didnt wanna give me antibiotics either. Its been 6 weeks of sickness.Im #disabled + have asthma.
Believe disabled ppl. -
@shrugdealer tysm!
$325 left for September
$125 due yesterday for pharmacy + foods needed
Please help if you can! been stalled for 6.5 days. Even a few dollars helps a lot.Thank you 💕
V: d_fay
Pp: peach77#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @disabledvoices @[email protected] @[email protected] @queer @lgbtq #emergency #urgent
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$125 due yesterday for pharmacy
Im disabled and cant work. I dont have support from family.
Absolutely anything helps here. No movement in almost 6 days. I appreciate every dollar!!
V: d_fay
P: peach77THANK YOU 🥲
#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #crowdfunding #helpfolkslive2026 #lgbtq #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @povertyandinequality @lgbtq @queer @5=5 -
Bibipins is a Black disabled queer owned company in Alberta that sells-- are you ready for this-- cute medical braces, compression garments, adaptive gear, and accessories. Also binders. What a dream!
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CW: Telegraph article on young disabled women, addendum
Also, I never spelt this out in my post the other day, but of course that Telegraph article is Long Covid denial as well. All these young people not feeling well - it must be imaginary! Of course it couldn't be anything to do with a famously disabling virus still in low-level circulation every day of the week!
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Brain fog, pain, fatigue. Feeling pretty flat right now, so I'm going to curl up and watch some Netflix until I manage to sleep. Have a great day. Be kind to yourselves♥️
#brainfog #fibromyalgia #disability #ptsd #heart #kidneys #fatigue #chronicillness #chronicallyill #rest #disabled
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Dr Oz brags about shutting down half the hospices in Los Angeles and says that “no one complained“.
Dead people can’t complain.
Their grieving families were likely too busy trying to support them in their final moments to complain.
Dr Oz is an absolute ghoul and a eugenicist.
#ableism #uspol #hospice #eugenics #disability #chronicillness
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RE: https://mastodon.social/@Toadlyturtle/117237086564366993
Meeting this STAT means that Sabi and her mom might get to have some food tonight.
Who's got it?
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!
#mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni
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I have an appointment this afternoon with a doctor in the local pain clinic. Mostly what I want is to understand whether I can stop taking the two medications that I'm currently taking and perhaps to learn some new strategies and skills to deal with pain.
Last night I made a list of things I want to talk about because often I go blank when I walk in to a doctors office. As I made my list and then organized it, I realize that going blank is my version of dissociating. Not only that, just making the list caused me to dissociate and I had to tug myself back into my body.
So today should be fun. I hope it's useful and that he's not a dick.
#ChronicPain #ChronicIllness #WhiteCoatSyndrome -
@QuyetPawz @[email protected] Hey Pawz and everyone!
Raising to move to a safer home!!
Deets and tally: https://chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezincOP: https://me.dm/@kshernandez/117227066550867983
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Hi! TYSM
I'm raising to move to a safer home.
Deets and tally: https://chuffed.org/project/blessks
OP: https://me.dm/@kshernandez/117227066550867983
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness #catmom @spoonie @queer
@mutualaidspace @[email protected] @[email protected] @[email protected] @disability @QuyetPawz @ellespeaks @edendestroyer
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Still out of spoons, fedi friends. Back when I'm able.