#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
4/
“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid -
https://www.europesays.com/ch/126338/ Novartis announces Lp(a)HORIZON Phase III topline results for pelacarsen in patients with elevated Lp(a) and established cardiovascular disease (CVD) #AdHoc #ChronicIllness #Innovation #Novartis #ReimagineMedicine
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One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness -
One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness -
One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness -
One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness -
One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness -
You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!
Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.
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You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!
Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.
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You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!
Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.
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You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!
Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.
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You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!
Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.
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https://www.europesays.com/ch/126202/ Novartis announces Lp(a)HORIZON Phase III topline results #AdHoc #ChronicIllness #Innovation #MediaRelease #Novartis #NovartisPharmaAG #ReimagineMedicine #SwissStockExchange:NOVNSW
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OH FOR....
Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.
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OH FOR....
Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.
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OH FOR....
Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.
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OH FOR....
Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.
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OH FOR....
Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.
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The Looking Glass
Alice peers through a looking glass and discovers another version of herself—one untouched by pain, grief, fear, and survival. What follows is a quiet reckoning with freedom, resilience, imagination, and the strange ways we learn to recognize ourselves.https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/
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The Looking Glass
Alice peers through a looking glass and discovers another version of herself—one untouched by pain, grief, fear, and survival. What follows is a quiet reckoning with freedom, resilience, imagination, and the strange ways we learn to recognize ourselves.https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/
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The Looking Glass
Alice peers through a looking glass and discovers another version of herself—one untouched by pain, grief, fear, and survival. What follows is a quiet reckoning with freedom, resilience, imagination, and the strange ways we learn to recognize ourselves.https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/
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The Looking Glass
Alice peers through a looking glass and discovers another version of herself—one untouched by pain, grief, fear, and survival. What follows is a quiet reckoning with freedom, resilience, imagination, and the strange ways we learn to recognize ourselves.https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/
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My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia
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My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia
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My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia
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My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia
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My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia
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RE: https://lgbtqia.space/@aceofcosmicspace/117209647785511701
Thank you! I only need $30 to go to reach my goal to get the food I need now. Please help if you can. Boosts help too♥️
#boost #mutualaid #disabled #disability #chronicillness #community #bisexual #lgbtqia #trans #assist
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Ok, cute tie-in!
Thanks, #TubiThursday friends.
Please uplift my ask for #urgent move?
I appreciate you all.
https://me.dm/@kshernandez/117205123370324265
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/117205123370324265
If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
From Canada 🇨🇦
‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications
Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs -
Who can match the 35 received today
A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon
I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.
Do they? Can you?
All is appreciated!Deets and ways to aid: https://linktr.ee/khernandez
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Who can match the 35 received today
A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon
I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.
Do they? Can you?
All is appreciated!Deets and ways to aid: https://linktr.ee/khernandez
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Who can match the 35 received today
A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon
I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.
Do they? Can you?
All is appreciated!Deets and ways to aid: https://linktr.ee/khernandez
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Who can match the 35 received today
A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon
I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.
Do they? Can you?
All is appreciated!Deets and ways to aid: https://linktr.ee/khernandez
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Who can match the 35 received today
A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon
I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.
Do they? Can you?
All is appreciated!Deets and ways to aid: https://linktr.ee/khernandez
#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂 -
my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂 -
my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂 -
my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂 -
What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...
Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.
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What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...
Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.
-
What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...
Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.
-
What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...
Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.
-
What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...
Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.