#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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In case of interest: “How do you deal with negative comments on social media” - SocialHealthNetwork (for health/illness advocates and similar)
https://socialhealthnetwork.com/forums/how-do-you-deal-with-negative-comments-on-social-media
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In case of interest: “How do you deal with negative comments on social media” - SocialHealthNetwork (for health/illness advocates and similar)
https://socialhealthnetwork.com/forums/how-do-you-deal-with-negative-comments-on-social-media
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In case of interest: “How do you deal with negative comments on social media” - SocialHealthNetwork (for health/illness advocates and similar)
https://socialhealthnetwork.com/forums/how-do-you-deal-with-negative-comments-on-social-media
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In case of interest: “How do you deal with negative comments on social media” - SocialHealthNetwork (for health/illness advocates and similar)
https://socialhealthnetwork.com/forums/how-do-you-deal-with-negative-comments-on-social-media
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There Is No Correct Way to Be Poor
The policing of poverty is a form of class discipline. It protects unequal distributions of wealth and power by turning deprivation into evidence of personal failure and obedience into a condition of survival. It teaches people to scrutinise the poor instead of the structures that keep wealth concentrated at the top, making inequality appear earned, moral, and inevitable.
People want to believe the world is fair, so if someone is poor, they must’ve failed somehow. That belief protects the comfortable from confronting a harsher reality: poverty is produced and maintained by an economic order in which some people accumulate property, profit, and security because others are underpaid, overcharged, indebted, displaced, and kept desperate enough to accept whatever conditions are offered to them.
Dividing poor people into “deserving” and “undeserving” serves that order perfectly. It allows society to ration help through surveillance, shame, bureaucracy, and humiliation while leaving the distribution of wealth and power untouched. The scrutiny stays fixed on whether a poor person has suffered correctly enough to deserve relief, while the people and institutions controlling wealth remain largely beyond examination.
When people are closer to poverty than they want to admit, enforcing these rules against other poor people can feel like buying safety or respectability. If they can prove that someone else is lazy, irresponsible, fraudulent, or morally inferior, perhaps they can convince themselves that their own precarity is different. Disciplining people below you does nothing to move you closer to the people above you. It gives you none of their property, capital, political access, or protection from catastrophe. It recruits you into defending a hierarchy that can discard you just as easily.
That is the class contradiction at the heart of it: workers are encouraged to police one another over scraps while those who control wages, housing, credit, land, and capital continue deciding the conditions under which everyone else lives. A person on a salary is taught to resent someone receiving assistance, while the landlord raising the rent, the employer suppressing wages, the company cutting benefits, and the wealthy extracting far more from society frequently escape the same moral scrutiny.
When poverty is framed as a moral, behavioural, or skill issue, the people with the most power get to keep that power. The system is also disabling by design: it creates and worsens illness and disability through deprivation, overwork, inaccessible healthcare, unsafe housing, and chronic insecurity, then punishes people when those conditions make them less able to work. Employers can suppress wages. Landlords can keep raising rents. Governments can refuse to guarantee housing, healthcare, childcare, or income.
There is no manual for “how to be poor correctly,” because poverty is a material condition shaped by decisions about wages, rent, ownership, taxation, debt, public services, labour rights, policing, and who is allowed to control resources that everyone needs.
The obsession with how poor people spend money reveals the hierarchy plainly. A poor person is expected to justify every meal, every purchase, every moment of pleasure, while wealth itself is rarely subjected to comparable moral scrutiny. The poor are asked whether they deserve a small comfort. The rich can possess more homes, land, money, and power than they could use in several lifetimes without being required to justify the accumulation with anything approaching the same intensity.
A serious response to poverty requires reducing the power of those who benefit from deprivation and expanding the material power of the people living under it. That means trusting poor people with resources and dignity: unconditional cash, stable housing, healthcare, childcare, strong labour protections, and wages that actually cover life.
People generally know what they need to survive. Deprivation keeps people desperate enough to accept exploitation, and the moral language surrounding poverty helps make that arrangement appear natural, deserved, and inevitable.
So stop demanding that poor people prove they deserve to live. Stop making survival conditional on obedience, humiliation, employability, productivity, or moral purity. Guarantee the material conditions people need to survive, take power away from those who profit from keeping people desperate, and make hoarded wealth the thing society is forced to justify.
#poverty #disability #politics #disabilityjustice @disability @disability #neurodivergence #activism #writer #mentalhealth #healthcare #capitalism
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There Is No Correct Way to Be Poor
The policing of poverty is a form of class discipline. It protects unequal distributions of wealth and power by turning deprivation into evidence of personal failure and obedience into a condition of survival. It teaches people to scrutinise the poor instead of the structures that keep wealth concentrated at the top, making inequality appear earned, moral, and inevitable.
People want to believe the world is fair, so if someone is poor, they must’ve failed somehow. That belief protects the comfortable from confronting a harsher reality: poverty is produced and maintained by an economic order in which some people accumulate property, profit, and security because others are underpaid, overcharged, indebted, displaced, and kept desperate enough to accept whatever conditions are offered to them.
Dividing poor people into “deserving” and “undeserving” serves that order perfectly. It allows society to ration help through surveillance, shame, bureaucracy, and humiliation while leaving the distribution of wealth and power untouched. The scrutiny stays fixed on whether a poor person has suffered correctly enough to deserve relief, while the people and institutions controlling wealth remain largely beyond examination.
When people are closer to poverty than they want to admit, enforcing these rules against other poor people can feel like buying safety or respectability. If they can prove that someone else is lazy, irresponsible, fraudulent, or morally inferior, perhaps they can convince themselves that their own precarity is different. Disciplining people below you does nothing to move you closer to the people above you. It gives you none of their property, capital, political access, or protection from catastrophe. It recruits you into defending a hierarchy that can discard you just as easily.
That is the class contradiction at the heart of it: workers are encouraged to police one another over scraps while those who control wages, housing, credit, land, and capital continue deciding the conditions under which everyone else lives. A person on a salary is taught to resent someone receiving assistance, while the landlord raising the rent, the employer suppressing wages, the company cutting benefits, and the wealthy extracting far more from society frequently escape the same moral scrutiny.
When poverty is framed as a moral, behavioural, or skill issue, the people with the most power get to keep that power. The system is also disabling by design: it creates and worsens illness and disability through deprivation, overwork, inaccessible healthcare, unsafe housing, and chronic insecurity, then punishes people when those conditions make them less able to work. Employers can suppress wages. Landlords can keep raising rents. Governments can refuse to guarantee housing, healthcare, childcare, or income.
There is no manual for “how to be poor correctly,” because poverty is a material condition shaped by decisions about wages, rent, ownership, taxation, debt, public services, labour rights, policing, and who is allowed to control resources that everyone needs.
The obsession with how poor people spend money reveals the hierarchy plainly. A poor person is expected to justify every meal, every purchase, every moment of pleasure, while wealth itself is rarely subjected to comparable moral scrutiny. The poor are asked whether they deserve a small comfort. The rich can possess more homes, land, money, and power than they could use in several lifetimes without being required to justify the accumulation with anything approaching the same intensity.
A serious response to poverty requires reducing the power of those who benefit from deprivation and expanding the material power of the people living under it. That means trusting poor people with resources and dignity: unconditional cash, stable housing, healthcare, childcare, strong labour protections, and wages that actually cover life.
People generally know what they need to survive. Deprivation keeps people desperate enough to accept exploitation, and the moral language surrounding poverty helps make that arrangement appear natural, deserved, and inevitable.So stop demanding that poor people prove they deserve to live. Stop making survival conditional on obedience, humiliation, employability, productivity, or moral purity. Guarantee the material conditions people need to survive, take power away from those who profit from keeping people desperate, and make hoarded wealth the thing society is forced to justify.
#poverty #disability #politics #disabilityjustice @disability @disability #neurodivergence #activism #writer #mentalhealth #healthcare #capitalism
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There Is No Correct Way to Be Poor
The policing of poverty is a form of class discipline. It protects unequal distributions of wealth and power by turning deprivation into evidence of personal failure and obedience into a condition of survival. It teaches people to scrutinise the poor instead of the structures that keep wealth concentrated at the top, making inequality appear earned, moral, and inevitable.
People want to believe the world is fair, so if someone is poor, they must’ve failed somehow. That belief protects the comfortable from confronting a harsher reality: poverty is produced and maintained by an economic order in which some people accumulate property, profit, and security because others are underpaid, overcharged, indebted, displaced, and kept desperate enough to accept whatever conditions are offered to them.
Dividing poor people into “deserving” and “undeserving” serves that order perfectly. It allows society to ration help through surveillance, shame, bureaucracy, and humiliation while leaving the distribution of wealth and power untouched. The scrutiny stays fixed on whether a poor person has suffered correctly enough to deserve relief, while the people and institutions controlling wealth remain largely beyond examination.
When people are closer to poverty than they want to admit, enforcing these rules against other poor people can feel like buying safety or respectability. If they can prove that someone else is lazy, irresponsible, fraudulent, or morally inferior, perhaps they can convince themselves that their own precarity is different. Disciplining people below you does nothing to move you closer to the people above you. It gives you none of their property, capital, political access, or protection from catastrophe. It recruits you into defending a hierarchy that can discard you just as easily.
That is the class contradiction at the heart of it: workers are encouraged to police one another over scraps while those who control wages, housing, credit, land, and capital continue deciding the conditions under which everyone else lives. A person on a salary is taught to resent someone receiving assistance, while the landlord raising the rent, the employer suppressing wages, the company cutting benefits, and the wealthy extracting far more from society frequently escape the same moral scrutiny.
When poverty is framed as a moral, behavioural, or skill issue, the people with the most power get to keep that power. The system is also disabling by design: it creates and worsens illness and disability through deprivation, overwork, inaccessible healthcare, unsafe housing, and chronic insecurity, then punishes people when those conditions make them less able to work. Employers can suppress wages. Landlords can keep raising rents. Governments can refuse to guarantee housing, healthcare, childcare, or income.
There is no manual for “how to be poor correctly,” because poverty is a material condition shaped by decisions about wages, rent, ownership, taxation, debt, public services, labour rights, policing, and who is allowed to control resources that everyone needs.
The obsession with how poor people spend money reveals the hierarchy plainly. A poor person is expected to justify every meal, every purchase, every moment of pleasure, while wealth itself is rarely subjected to comparable moral scrutiny. The poor are asked whether they deserve a small comfort. The rich can possess more homes, land, money, and power than they could use in several lifetimes without being required to justify the accumulation with anything approaching the same intensity.
A serious response to poverty requires reducing the power of those who benefit from deprivation and expanding the material power of the people living under it. That means trusting poor people with resources and dignity: unconditional cash, stable housing, healthcare, childcare, strong labour protections, and wages that actually cover life.
People generally know what they need to survive. Deprivation keeps people desperate enough to accept exploitation, and the moral language surrounding poverty helps make that arrangement appear natural, deserved, and inevitable.
So stop demanding that poor and disabled people prove they deserve to live. Stop making survival conditional on obedience, humiliation, employability, productivity, or moral purity. Guarantee the material conditions people need to survive, take power away from those who profit from keeping people desperate, and make hoarded wealth the thing society is forced to justify.
#poverty #disability #politics #disabilityjustice @disability @disability #neurodivergence #activism #writer #mentalhealth #healthcare #capitalism @disability
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There Is No Correct Way to Be Poor
The policing of poverty is a form of class discipline. It protects unequal distributions of wealth and power by turning deprivation into evidence of personal failure and obedience into a condition of survival. It teaches people to scrutinise the poor instead of the structures that keep wealth concentrated at the top, making inequality appear earned, moral, and inevitable.
People want to believe the world is fair, so if someone is poor, they must’ve failed somehow. That belief protects the comfortable from confronting a harsher reality: poverty is produced and maintained by an economic order in which some people accumulate property, profit, and security because others are underpaid, overcharged, indebted, displaced, and kept desperate enough to accept whatever conditions are offered to them.
Dividing poor people into “deserving” and “undeserving” serves that order perfectly. It allows society to ration help through surveillance, shame, bureaucracy, and humiliation while leaving the distribution of wealth and power untouched. The scrutiny stays fixed on whether a poor person has suffered correctly enough to deserve relief, while the people and institutions controlling wealth remain largely beyond examination.
When people are closer to poverty than they want to admit, enforcing these rules against other poor people can feel like buying safety or respectability. If they can prove that someone else is lazy, irresponsible, fraudulent, or morally inferior, perhaps they can convince themselves that their own precarity is different. Disciplining people below you does nothing to move you closer to the people above you. It gives you none of their property, capital, political access, or protection from catastrophe. It recruits you into defending a hierarchy that can discard you just as easily.
That is the class contradiction at the heart of it: workers are encouraged to police one another over scraps while those who control wages, housing, credit, land, and capital continue deciding the conditions under which everyone else lives. A person on a salary is taught to resent someone receiving assistance, while the landlord raising the rent, the employer suppressing wages, the company cutting benefits, and the wealthy extracting far more from society frequently escape the same moral scrutiny.
When poverty is framed as a moral, behavioural, or skill issue, the people with the most power get to keep that power. The system is also disabling by design: it creates and worsens illness and disability through deprivation, overwork, inaccessible healthcare, unsafe housing, and chronic insecurity, then punishes people when those conditions make them less able to work. Employers can suppress wages. Landlords can keep raising rents. Governments can refuse to guarantee housing, healthcare, childcare, or income.
There is no manual for “how to be poor correctly,” because poverty is a material condition shaped by decisions about wages, rent, ownership, taxation, debt, public services, labour rights, policing, and who is allowed to control resources that everyone needs.
The obsession with how poor people spend money reveals the hierarchy plainly. A poor person is expected to justify every meal, every purchase, every moment of pleasure, while wealth itself is rarely subjected to comparable moral scrutiny. The poor are asked whether they deserve a small comfort. The rich can possess more homes, land, money, and power than they could use in several lifetimes without being required to justify the accumulation with anything approaching the same intensity.
A serious response to poverty requires reducing the power of those who benefit from deprivation and expanding the material power of the people living under it. That means trusting poor people with resources and dignity: unconditional cash, stable housing, healthcare, childcare, strong labour protections, and wages that actually cover life.
People generally know what they need to survive. Deprivation keeps people desperate enough to accept exploitation, and the moral language surrounding poverty helps make that arrangement appear natural, deserved, and inevitable.
So stop demanding that poor and disabled people prove they deserve to live. Stop making survival conditional on obedience, humiliation, employability, productivity, or moral purity. Guarantee the material conditions people need to survive, take power away from those who profit from keeping people desperate, and make hoarded wealth the thing society is forced to justify.
#poverty #disability #politics #disabilityjustice @disability @disability #neurodivergence #activism #writer #mentalhealth #healthcare #capitalism @disability
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No progress in 2 days, y'all. Can anyone match 50 or close to it?
Thank you so much!! Blessings to you and your family!
Can anyone match?
https://chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#FatBearWeek #mutualaid #directaid #disabled #artist #queer #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer @[email protected] @[email protected] @MutualAidVisibility @anarchomutual @blackfedi
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No progress in 2 days, y'all. Can anyone match 50 or close to it?
Thank you so much!! Blessings to you and your family!
Can anyone match?
https://chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#FatBearWeek #mutualaid #directaid #disabled #artist #queer #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer @[email protected] @[email protected] @MutualAidVisibility @anarchomutual @blackfedi
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No progress in 2 days, y'all. Can anyone match 50 or close to it?
Thank you so much!! Blessings to you and your family!
Can anyone match?
https://chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#FatBearWeek #mutualaid #directaid #disabled #artist #queer #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer @[email protected] @[email protected] @MutualAidVisibility @anarchomutual @blackfedi
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No progress in 2 days, y'all. Can anyone match 50 or close to it?
Thank you so much!! Blessings to you and your family!
Can anyone match?
https://chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#FatBearWeek #mutualaid #directaid #disabled #artist #queer #lgbtq @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer @[email protected] @[email protected] @MutualAidVisibility @anarchomutual @blackfedi
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Ok I really gotta try to get my physical therapy appointment for my wheelchair request. I just haven’t had the mental energy to call them yet. Hopefully tomorrow so I can get this process going.
#mecfs #chronicillness #pots #hsd -
Ok I really gotta try to get my physical therapy appointment for my wheelchair request. I just haven’t had the mental energy to call them yet. Hopefully tomorrow so I can get this process going.
#mecfs #chronicillness #pots #hsd -
Ok I really gotta try to get my physical therapy appointment for my wheelchair request. I just haven’t had the mental energy to call them yet. Hopefully tomorrow so I can get this process going.
#mecfs #chronicillness #pots #hsd -
Ok I really gotta try to get my physical therapy appointment for my wheelchair request. I just haven’t had the mental energy to call them yet. Hopefully tomorrow so I can get this process going.
#mecfs #chronicillness #pots #hsd -
RE: https://lgbtqia.space/@aceofcosmicspace/117357652183892953
Still in hospital. More bladder scans etc . Waiting to see if I'll be discharged today.
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RE: https://lgbtqia.space/@aceofcosmicspace/117357652183892953
Still in hospital. More bladder scans etc . Waiting to see if I'll be discharged today.
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RE: https://lgbtqia.space/@aceofcosmicspace/117357652183892953
Still in hospital. More bladder scans etc . Waiting to see if I'll be discharged today.
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RE: https://lgbtqia.space/@aceofcosmicspace/117357652183892953
Still in hospital. More bladder scans etc . Waiting to see if I'll be discharged today.
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I am feeling pretty angry and frustrated. I just got the results back from my food allergy tests:
Almonds
Cows milk
Egg whites
Hazelnuts
Peanuts
Sesame seeds
Soy beans
Walnuts
WheatI've been talking with primary care practitioners for decades about digestive issues and no one has thought to do food allergy testing. I'm 68 years old and I wonder how many years I have been needlessly suffering.
I rely on the expertise of the medical industry and they have really failed me.
#FoodAllergies #ChronicIllness
#HealthCare -
I am feeling pretty angry and frustrated. I just got the results back from my food allergy tests:
Almonds
Cows milk
Egg whites
Hazelnuts
Peanuts
Sesame seeds
Soy beans
Walnuts
WheatI've been talking with primary care practitioners for decades about digestive issues and no one has thought to do food allergy testing. I'm 68 years old and I wonder how many years I have been needlessly suffering.
I rely on the expertise of the medical industry and they have really failed me.
#FoodAllergies #ChronicIllness
#HealthCare -
I am feeling pretty angry and frustrated. I just got the results back from my food allergy tests:
Almonds
Cows milk
Egg whites
Hazelnuts
Peanuts
Sesame seeds
Soy beans
Walnuts
WheatI've been talking with primary care practitioners for decades about digestive issues and no one has thought to do food allergy testing. I'm 68 years old and I wonder how many years I have been needlessly suffering.
I rely on the expertise of the medical industry and they have really failed me.
#FoodAllergies #ChronicIllness
#HealthCare -
I am feeling pretty angry and frustrated. I just got the results back from my food allergy tests:
Almonds
Cows milk
Egg whites
Hazelnuts
Peanuts
Sesame seeds
Soy beans
Walnuts
WheatI've been talking with primary care practitioners for decades about digestive issues and no one has thought to do food allergy testing. I'm 68 years old and I wonder how many years I have been needlessly suffering.
I rely on the expertise of the medical industry and they have really failed me.
#FoodAllergies #ChronicIllness
#HealthCare -
Danke liebe Regierung jetzt darf ich wahrscheinlich wieder vor Gericht wegen Cannabis Extrakt. Ich hab ja unendlich Kraft um mich, um so eine Scheiße zu kümmern.
Wieso macht man für bestehende Blütentherapien keinen Übergang zu Extrakten?
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Danke liebe Regierung jetzt darf ich wahrscheinlich wieder vor Gericht wegen Cannabis Extrakt. Ich hab ja unendlich Kraft um mich, um so eine Scheiße zu kümmern.
Wieso macht man für bestehende Blütentherapien keinen Übergang zu Extrakten?
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Danke liebe Regierung jetzt darf ich wahrscheinlich wieder vor Gericht wegen Cannabis Extrakt. Ich hab ja unendlich Kraft um mich, um so eine Scheiße zu kümmern.
Wieso macht man für bestehende Blütentherapien keinen Übergang zu Extrakten?
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Danke liebe Regierung jetzt darf ich wahrscheinlich wieder vor Gericht wegen Cannabis Extrakt. Ich hab ja unendlich Kraft um mich, um so eine Scheiße zu kümmern.
Wieso macht man für bestehende Blütentherapien keinen Übergang zu Extrakten?
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Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
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Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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I am a domme who have P.O.T.S who imbibes POT who enjoys P.O.T ( #postorgasmtorture )& plant POTS I also have Pretty Outstanding Tits
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare
