#chronic-illness — Public Fediverse posts

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“It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

#chronicillness #spoonie #mecfs #longcovid
@mecfs @longcovid

One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
#chronicillness

You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!

Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.

#Exercise #ChronicIllness #ChronicPain #ShitPost

OH FOR....

Being allergic to my MEDICAL ALERT BRACELET is a NEW FUCKING LOW.

#chronicillness #ehlersdanlossyndrome

The Looking Glass

https://kandiblaze.wordpress.com/2026/09/04/the-looking-glass/

My pain medication was lowered a week ago due to it likely being the source of the swelling in my legs. I've barely been able to function because of the pain. I've also been having to go to a nursing care centre daily for wound care for 3 days now, and sitting on the exam table for 40+ minutes makes my pain way worse. Today I needed physical help getting back into the car, because I was so sore and weak. I also had to cancel an outing today due to pain. #ChronicIllness #Fibromyalgia

RE: https://lgbtqia.space/@aceofcosmicspace/117209647785511701

Thank you! I only need $30 to go to reach my goal to get the food I need now. Please help if you can. Boosts help too♥️

#boost #mutualaid #disabled #disability #chronicillness #community #bisexual #lgbtqia #trans #assist

RE: https://me.dm/@kshernandez/117205123370324265

If I had misspelled kitties as tiddies, I wonder if anyone would've matched this 35 by now... tiddies.

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

Who can match the 35 received today

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?
All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂

#MCAS #chronicillness #spoonie

What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...

Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.

https://www.nbcsandiego.com/news/local/ucsd-granted-11-3m-to-develop-smart-blood-cells-to-improve-military/4068510/

#ChronicIllness #SmartBloodCells #POTS #Military

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

Classes officially start today.

It’s eclipsed by:

I see my Rheumatologist this afternoon because of this massive flare up I have been in for a month that’s nothing like what I’ve experienced before.

I’ve very likely failed this biologic (#5) and have to switch meds. The med I’m most likely to try next that’ll stop all of this pain?

… there is a shortage of.

FML I hate being chronically ill.

#chronicIllness #disabled #disability

Living with ME & fibromyalgia: ‘In 10 years, I had 10 pregnancies. It was a decade of loss, & a fight to get the family we wanted’ (Paywall)

https://www.independent.ie/lifestyle/living-with-me-and-fibromyalgia-in-10-years-i-had-10-pregnancies.-it-was-a-decade-of-loss-and-a-fight-to-get-the-family-we-wanted/a/160468721.html

Link for Dublin Fringe Festival's "Chronically Hopeful", Sept 6-9

https://www.fringefest.com/festival/whats-on/chronically-hopeful

#MEcfs #chronicillness #PwME #CFS #ME #MyalgicE
@mecfs

The Class Work Project have a call out for submissions on disability and chronic illness for their next issue of their journal Lumpen.

https://theclassworkproject.com/lumpen-19-call-for-submissions/

#writing #OpenCall #disability #ChronicIllness

RE: https://mastodon.social/@ellespeaks/117185849880983055

stalled
$50 needed asap + anything for food (almost out)

Im diabetic and do not have family to turn to. I have food allergies so food pantries arent ideal unfortunately

I appreciate any help at all + am v grateful. Thank you!

V: d_fay
P: peach77
Ko: https://ko-fi.com/ellespeaks

#Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #helpfolkslive2026 #lgbtq #queer @povertyandinequality @disabledvoices @queer @[email protected] @directaid @[email protected] @lgbtq

after nearly a year of waiting i have finally been diagnosed with #fibromalgya. another result of surviving systems of oppression, exploitation & abuse since birth, with no one batting an eyelid whilst only ever getting the message that it's my own fault, i need to change my lifestyle, i am probably overreacting, making it up, exaggerating & just fucking lazy.
i am looking great btw! why don't i go find a job?

just another stigma on top of the many others i am labelled with.

i am greatful that it is now officially recognised as a #ChronicIllness.

Wikipedia says: as of 2022, neurologists and pain specialists tended to view fibromyalgia as a real pathology.[345

https://en.wikipedia.org/wiki/Fibromyalgia

before that there was severe stigma in the medical scientific community. unfortunately the rest of society takes generations to catch up, so i'm sure i'll continue to get ignorant bastards judging me, as i have been most of my life.

please #educate yourself & share this to raise awareness.

#press #health #IndependentMedia #GenerationalTrauma #CPTSD #BPD #DysthymicDisorder #MentalHealth

#ThereForME
#WomensHealth
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

Dear Fediverse, can you please help me find the overlap between these three groups?

A: people willing and eager to wear a respirator indoors
B: people interested in board games
C: people living in or close to berlin

I can't be the only one, right? Boosts would be highly appreciated, maybe you know someone who knows someone...? Thank you!

#stillmasking
#maskup
#wearamask
#covidisnotover
#longcovid
#chronicillness
#berlin
#boardgames
#brettspiel
#venndiagram