#chronic-illness — Public Fediverse posts

RE: https://mastodon.social/@ellespeaks/116577870668805077

Good news: One v generous person covered my meds. So grateful! 🥲💙

Now its my phone bill and food.
Trying to get some funds for food first as im ⚠️ OUT ⚠️ and diabetic

5$ goes a LONG way, ANYTHING helps

V: d_fay
P: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #chronicillness #chronicpain #leftist #lesbian #sapphic #lgbtq #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty
@[email protected]
@disabledvoices
@[email protected]
@lgbtq

$238/$450
Food $ RQ for Diabetic disabled lesbian🌷

$212 to go for May, goal is $100 for food asap, no later then 5/21

Anything helps, 2$ is a box of pasta!
(Tysm to anyone who helped cover meds! On to food 🥲)

V: d_fay | PP: peach77 🌻🌷

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #chronicpain #leftist #lesbian #lgbtq #kofi #helpneeded #gofundme #directaid #queer #diabetic #hunger #poverty
@[email protected] @[email protected]
@lgbtq
@disabledvoices

When are the repurposed drugs coming that will replace the psychobabble? I need them now! #ThereForME @[email protected] @[email protected] #ME #Chronicillness #LC #PEM #POTS #LivesWeCannotLive #MissingMillions @[email protected] @[email protected]

Happy fund friday

Mutual aid checkpoint!
Rules:
- no graphic images
- no hateful language
- share the thread
- share others requests

#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lgbtq #lgbtqia #kofi #helpneeded #crowdfunding #gofundme #directaid #queer #diabetic #hunger #poverty #bipoc #homeless #fundfriday #MutualAidThread

Resting, resetting, and listening to my body. 🧘🏻‍♀️

I’ve missed you all, but the fatigue has been taking the lead lately. 🫩

I have to keep reminding myself that it’s okay to slow down when your body asks (or demands!) it. 😴

Please take this as a reminder to check in with yourself and get proper rest when needed so you can take on the world! 🌎

Love & Hugs 🤗

#jenniesjourney #jenniesworld #chronicillness #healing #selfcare

I’ve had to move apartments and it’s been absolutely brutal on my baseline. The setback has been humbling, terrifying and frustrating in equal measure.

This is life with chronic illness.

Everything is so much harder.

Any significant upheaval can cause major losses of function.

To make matters worse I found mold in my closet and it appears most of my wardrobe got contaminated.

It’s just been one thing after another.

A friend is trying to salvage them, but with the severity of my MCAS I suspect I may have to toss and replace.

That said, hit me up with any tips you might have for removing mold and mildew from clothes. Or hidden gems for finding cheap but comfortable, ethical clothing. I can only wear loose cotton and my clothes were all good quality (and I hate shopping).

I plan to write a series of articles once I recover, including one about housing instability and another about setbacks and contingency planning when chronically ill.

Thank you to everyone who’s been supporting me and patiently waiting for me to get back to writing!

#chronicillness #ableism #mcas #disability

In remission but wondering if coffee, a beer, or Diet Coke is off the table?

After 24 years with Crohn's, here's my honest answer — including what I actually drink and why. The answer is more nuanced than most people want to hear.

https://ibdmovement.com/coffee-alcohol-and-carbonated-drinks-in-ibd-remission-my-experience/?utm_source=mastodon #CrohnsDisease #IBD #ChronicIllness #IBDAwareness

Honestly, I am totally here for this strategy. ;)

#spoonie #ChronicIllness

goals tbh

#disability #ChronicIllness #autoimmune

MS isn't always a 'brave journey'—sometimes it's just a 14th meltdown and a broken internal thermostat. 🌡️ If you’re done with the toxic positivity, these captions are for you. No filters, just the messy, wobbly truth.

#SpoonieLife, #MultipleSclerosis, #ChronicIllness, #MSAwareness, #InvisibleIllness

Read more: https://mooddrafts.com/ditch-the-fluff-real-ms-captions-for-your-darkest-days/

Posting for World MS Day isn't just about orange ribbons—it's about honoring the 'terms and conditions' of a body that moves at its own pace. Whether you're a warrior or an ally, your voice matters. Let's make the invisible visible. 🧡

#WorldMSDay, #MSWarrior, #InvisibleIllness, #MyMSDiagnosis, #ChronicIllness, #MSAwareness

Read more: https://mooddrafts.com/world-ms-day-captions-powerful-ways-to-share-your-story/

So sorry to everyone I owe replies to … the move was far harder on me than I anticipated. A number of items need to be completely thrown out which is a huge unexpected expense… and only about half my stuff actually got moved in the time we had.

Needless to say I’m having to accept that my baseline is shattered and it might be a bit longer than usual before I can be writing again.

Nothing good comes from pushing our bodies past what they can do, so I’m focusing on rest and finishing this move.

Honestly I wish there was secure and affordable housing for disabled people for life. Being forced to move when you can’t even get out of bed is one of the most stressful things you can be put through … and it Happens to way too many of us.

I fully plan to write an article on housing instability and discrimination against disabled people once I’m back to baseline !

In the meantime I need suggestions for cheap but safe online retailers where I can replace clothes. Due to a severe mold problem in old apartment almost everything has to be tossed. With my severe MCAS I can’t wear a lot of fabrics so if anyone knows of a unicorn store please let me know (my go to Canadian brand has become too expensive for me)

#disability #ableism #chronicillness #mcas #eugenics #clothing #mold #mecfs #housingisahumanright

May 12 is Awareness Day for ME/CFS. Myalgic Encephalomyelitis (aka Chronic Fatigue Syndrome) Ironically I’m stuck in bed today with dizzying fatigue. Or maybe that’s not ironic? Anyhow, to ‘celebrate’, here’s an oldy but a goodie - describing what it’s like in the style of Mary Poppins 😂🤣
#ME #MECFS
#ChronicIllness

https://youtube.com/shorts/F0AQFplvw6A?si=gFW8N5A4ggZgdyQK