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#chronic-illness — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.

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  1. If the 1st dr. had taken me seriously & prescribed an antibiotic worth a damn i wouldnt be in this position rn

    He said flat out he didnt believe me?
    Thought in 2 days my body would naturally clear it. I know my body. He gave me an antibiotic that was 1 tab for 5 days. It barely touched it. I told my pcp. She didnt wanna give me antibiotics either. Its been 6 weeks of sickness.

    Im #disabled + have asthma.
    Believe disabled ppl.

    #chronicillness #medicalgaslighting #spoonie #disability

  2. Bibipins is a Black disabled queer owned company in Alberta that sells-- are you ready for this-- cute medical braces, compression garments, adaptive gear, and accessories. Also binders. What a dream!

    bibipins.com/

    #disability #ElbowsUp #ChronicIllness

  3. CW: Telegraph article on young disabled women, addendum

    Also, I never spelt this out in my post the other day, but of course that Telegraph article is Long Covid denial as well. All these young people not feeling well - it must be imaginary! Of course it couldn't be anything to do with a famously disabling virus still in low-level circulation every day of the week!

    #Telegraph #denial #ChronicIllness #LongCovid #snark

  4. Brain fog, pain, fatigue. Feeling pretty flat right now, so I'm going to curl up and watch some Netflix until I manage to sleep. Have a great day. Be kind to yourselves♥️

    #brainfog #fibromyalgia #disability #ptsd #heart #kidneys #fatigue #chronicillness #chronicallyill #rest #disabled

  5. Dr Oz brags about shutting down half the hospices in Los Angeles and says that “no one complained“.

    Dead people can’t complain.

    Their grieving families were likely too busy trying to support them in their final moments to complain.

    Dr Oz is an absolute ghoul and a eugenicist.

    #ableism #uspol #hospice #eugenics #disability #chronicillness

  6. Hey y'all! Can you uplift for Lucy, maybe chip in? Every dime helps! She's totally out of insulin so it's #urgent!

    #mutualaid #directaid #disabled #artist #poverty @[email protected] @[email protected] @disabledvoices @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spooni

  7. I have an appointment this afternoon with a doctor in the local pain clinic. Mostly what I want is to understand whether I can stop taking the two medications that I'm currently taking and perhaps to learn some new strategies and skills to deal with pain.

    Last night I made a list of things I want to talk about because often I go blank when I walk in to a doctors office. As I made my list and then organized it, I realize that going blank is my version of dissociating. Not only that, just making the list caused me to dissociate and I had to tug myself back into my body.

    So today should be fun. I hope it's useful and that he's not a dick.
    #ChronicPain #ChronicIllness #WhiteCoatSyndrome

  8. The countdown is on until my next operation in approximately a week. Preparations begin now, because everything takes 5 times as long with disability anyway, let alone additional pain etc. I'm nervous, but determined, and have a plan for the week that includes rest, and some time for creative things like journalling and reading, to take the edge off a little.

    The main thing I'm concerned about is being able to get ready meals for recovery, afford the meds I'll need, and also the taxi/uber to and from the hospital, which is quite far away-its hard work when there's no one to drive or care for me in person in that sense. I'm keeping that faith though that things will work out😁

    I've made a pinned post with my Ko-fi for what I need to be able to get through it all(put in in comments here too). If you could share it and help where you can please friends, it would be greatly appreciated.

    #disabled #chronicillness #chronic #chronically_ill #disability #severepain #hanginginthere #optimistic #countdown

  9. RE: me.dm/@kshernandez/11722634544

    18 came in! Can anyone match!?

    1 means new beginnings and rebirth
    8 means, among other things, inner strenth and financial reward!

    chuffed.org/project/blessks

    vnm: skillingmesoftly
    pypl: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  10. A very short, restless night of sleep in this house, again.

    I can't lose hope tho, I've come too far to lose now.

    If you also have hope, please be kind and help close this out!

    Chuffed.org/project/blessks (deets and tally)
    vnm: skillingmesoftly
    pypl: kshernandezinc

    #mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

  11. If I had a dollar for the amount of blood tests and urine samples I have had to do over the years with disability(and especially recently with additional health stuff), I'd be able to afford my groceries and bills without issue😂😅

    #disabled #disability #medical #chronicillness

  12. RE: social.saarland/@achim/1172207

    Fühle dich von ❤ gedrückt, liebe @afelia ! Ich wünsche dir, dass dein Zustand sich bald bessert 🌻
    Und ich danke dir für deine wie immer wahren und wohl gewählten Worte. Die Frage nach dem Wert ist für mich in einem Crash immer noch fast unerträglich. Wortmeldungen wie deine sind da bisweilen sehr wertvoll und tröstend. Danke, dass du sichtbar bleibst! 🫂
    #mecfs #chronischkrank #chronicillness

  13. This is shameful discriminatory and misogynistic reporting.

    People aren’t choosing disability to be “cool”.

    Young women don’t have to “prove” to you that they’re sick.

    Disability rates are skyrocketing because we’ve left a disabling virus rip through the population for over 6 years.

    The insinuation that disabled women who post about their experiences are “entrenching a culture of economic inactivity” is ableism.

    They want to shame us into being silent about our suffering.

    Make noise.

    Let’s tell the Telegraph this disgusting article should be retracted

    telegraph.co.uk/news/2026/09/0

    #ableism #eugenics #disability #chronicillness

  14. 4/
    “It can be helpful to explore abandoning (or at least curbing) an achievement-orientation to life (i.e., life is about a checklist of completed accomplishments) and instead adopting an experience-orientation to life (i.e., life is about having all kinds of varied pleasant and difficult experiences that we can use for various things like connection or growth).”

    #chronicillness #spoonie #mecfs #longcovid
    @mecfs @longcovid

  15. One of my chronic conditions has been flaring badly lately and my doctor wouldn't renew my prescription for the one med that's been getting me out of bed for the past year, and also wouldn't order any diagnostics or refer me to the relevant specialist. My partner has been telling me for years: You need a new doctor. So, yes, he's right. But also that's easy to say.
    #chronicillness

  16. You won't believe this. I did 2 minutes of yoga this morning and it completely cured my genetic joint problems and restored my mental health!

    Ok. Not really. I'm actually just stuck on the floor and tooting this while I figure out how to get up.

    #Exercise #ChronicIllness #ChronicPain #ShitPost