#chronic-illness — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-illness, aggregated by home.social.
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Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
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Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
-
Just had coffee. One cup coffee, one cup soy milk, 14g agave; I swapped out my favorite soy milk powder for organic unsweetened silk soy. To no ones surprise I have no sinus reaction.
So unfortunately I will have to switch to the healthier more expensive less versatile milk option. I know I shouldn’t look at it as a negative, but it feels like a loss, yet another thing my conditions have taken from me.
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Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
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Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
-
Errands run, dishes done, and bed made with fresh sheets so I can come home to a comfy bed after hospital. Having a little rest, and then we tackle some tidying. I have to fast from midnight, so I'm eating as much as I want until then, and have upped my water intake over the past day so that I give myself the best chance of staying hydrated, and not getting a migraine before surgery(or after, though I'm prone to them after anaesthetic). Resting in between tasks because pain is high, but feeling like I'm on track to being ready😁
#preparing #optimism #hope #focus #disability #chronicillness #chronicpain #hearthealth #kidneys #ptsd #fibromyalgia
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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The predictable body — wakes on schedule, sits for hours, recovers from illness on cue — is a fiction. Society is a monument to a person who has never existed.
#Disability #Ableism #ChronicIllness #Accessibility #BodyAutonomy
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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“I look fine, but dealing with chronic illness is my full-time job” (Pittsburgh's Public Source)
https://www.publicsource.org/pots-long-covid-navigating-invisible-illnesses/
First person account about coping with chronic illness triggered by COVID infection.
#LongCovid #invisibleillness #hiddenillness #chronicillness @longcovid
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I am a domme who have P.O.T.S who imbibes POT who enjoys P.O.T ( #postorgasmtorture )& plant POTS I also have Pretty Outstanding Tits
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I am a domme who have P.O.T.S who imbibes POT who enjoys P.O.T ( #postorgasmtorture )& plant POTS I also have Pretty Outstanding Tits
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
RE: https://me.dm/@kshernandez/116735297261197109
Not one jot, not one tittle received! The abusive environment persists, the abusive people remain.
If you wanna see me out of this situation, chip in.
Chuffed.org/project/blessks
vnm: skillingmesoftly
pp: kshernandezinc#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
-
Not one dime rolled in yesterday. Unusual for a Friday...
Can we change that today, so I can move to a safer home?
Ways to aid:
https://Chuffed.org/project/blessks
vnm: skillingmesoftly
pypl: kshernandezinc
#FatBearWeek#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer
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$211 over due for September
STALLED - food and meds!Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..Even $5 is a HUGE help! Ty!
V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer
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$211 over due for September
STALLED - food and meds!Meds: 17 DAYS overdue
Food: 3 days overdue
I am diabetic and this adds a layer of danger. Im fatigued with brain fog. I just want food to keep my brain alert and on..Even $5 is a HUGE help! Ty!
V: d_fay
Pp: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #chronicpain #chronicillness #crowdfund #lgbtq #queer #gay #poverty #artist #catmom @[email protected] @[email protected] @disabledvoices @disability @lgbtq @queer
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Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
Symptom: Seasonal Variability, Summer ExacerbationMany people with chronic illnesses experience different symptom sets worsening seasonally, including the October Slide.
For me, summer is often my most uncomfortable season. Heat and sunlight intolerances from many of my chronic conditions & their medications, plus seasonal increases to environmental triggers like VOC offgassing, create a miserable confluence.
The climate crisis is a health crisis, and their denials & minimizations are intertwined. Other vector-borne diseases, including [CW image of bug on human skin] diseases spread by ticks are expanding both seasonally and geographically. People with Chronic Lyme are kin to people with fibromyalgia, chronic pain, ME/CFS and long COVID in experiencing medical stigmatization and disbelief.
However, we are not powerless. Our communities offer skills, resiliency, and understanding.
That’s a lot of links! If you’re looking for my top pick, it’s A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles, from the Yale Global Health Review
https://www.illmarks.com/symptom-seasonal-variability-summer-exacerbation/ #chronicIllness #disability #disabilityJustice #heat #MillionsMissing #SciArt #summer #SummerFlare -
RE: https://mastodon.social/@ellespeaks/117305693148190974
Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.$211 to go and absolutely any amount is helpful in reaching it
V: d_fay
P: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts
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RE: https://mastodon.social/@ellespeaks/117305693148190974
Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.$211 to go and absolutely any amount is helpful in reaching it
V: d_fay
P: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts
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RE: https://mastodon.social/@ellespeaks/117305693148190974
Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.$211 to go and absolutely any amount is helpful in reaching it
V: d_fay
P: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts
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RE: https://mastodon.social/@ellespeaks/117305693148190974
Happy Fund Friday!
Im so close to closing September. Down to just meds and food needed.$211 to go and absolutely any amount is helpful in reaching it
V: d_fay
P: peach77#mutualaid #MutualAidSavesLives #MutualAidRequest #maboost #helpfolkslive #helpfolkslive2026 #disabled #spoonie #chronicillness #chronicpain #disabledartist #leftist #lesbian #sapphic #lgbtq #crowdfunding #gofundme #directaid #queer #poverty @[email protected] @[email protected] @directaid @disabledvoices @disability @lgbtq @creativearts
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Apologies if I'm missing your comments today, friends. Notifications are glitchy and health is crap, and the combination means I'm unable to be consistent enough to keep up, currently. Definitely not ignoring you💖
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Apologies if I'm missing your comments today, friends. Notifications are glitchy and health is crap, and the combination means I'm unable to be consistent enough to keep up, currently. Definitely not ignoring you💖
