#chronic-illness — Public Fediverse posts

EDIT: I decided on the Daylio app. It stores data on the iphone (not the cloud) and I can back it up on my computer. The price is reasonable for a one time purchase and I can modify it to suit what I'm specifically trying to track.

Does anyone have a recommendation for an app (edit: for iphone) that would track my day-to-day health? I'm hoping for something that doesn't, in return, track me and my data. I know it's a big ask.

#ChronicIllness

Sympathetic 3-minute TV piece:
'I miss my freedom': Young woman with chronic fatigue shares reality of living with ME.

I had to set my VPN to the UK to be able to watch it

https://www.itv.com/watch/news/i-miss-my-freedom-young-woman-with-chronic-fatigue-shares-reality-of-living-with-me/l4gd5x5

Discusses fluctuating disabilities and how she uses a mobility aid despite being able to walk a little (like myself)

#MEcfs #PwME #CFS #ME #MyalgicE
@mecfs
#chronicillness #Spoonie

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 20-Aug-2026 20:10 UTC+7 🚨
still urgently need (20h with no movement):
⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon today for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$520 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

My GP is sick of her patients dying:

“A few million dollars or less each would be enough the sick & disabled live their whole lives. A drop in the bucket for the rich. Instead they’re left to die.”

#ChronicIllness #Disability

It’s been a few days…

https://ceriashwardauthor.wordpress.com/2026/08/19/its-been-a-few-days/

The Economics of Survival by Fred Rossi: "Twelve Percent"

https://darthfoo.substack.com/p/twelve-percent

https://s4me.info/threads/fred-rossi-writings-related-to-me-cfs.47324/post-713080

Screenshot from latest Science for ME weekly update

#LongCovid #MEcfs #PwME #chronicillness #Spoonie @mecfs @longcovid

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 20-Aug-2026 02:40 UTC+7 🚨

still urgently need:

⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon yesterday for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$520 in total still needed this month.

Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.

https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @wrzky
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

🚨 UPDATE 20-Aug-2026 02:30UTC+7 🚨

still urgently need:

⏳ $73/$250 for groceries, $177 still needed to cover my monthly groceries. I had to manually withdraw $24.38 from Patreon yesterday for emergency food, just to last the next two days.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet — past its 16 August deadline. I’m afraid they are going to cut off my water and internet again.‼️

$520 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@mutualaid @mutualaid @mutualaidspace @disability @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected] @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

The #band called me up to the mic and, with a little help from London (vocals, guitar), I was supposed to sing a surprise song together with the band. Well, after the first shock I just did it, even though I wondered what song it would be 🫣😂
Thank goodness it was a #song that’s almost been with me my entire #50years of being: #TheClash #ShouldIStayOrShouldIGo
I never thought I would get this old, especially with #chronicillness, now I’m ready for the next 50 years of Rock’n’Roll 💃🔥
video by T10

Disabled people have been running asynchronous, energy-aware, home-optimized lives for years. That's not a workaround. That's a preview.

https://onlys.ky/future-in-bedrooms/?utm_source=mastodon&utm_medium=social&utm_campaign=fresh

#Disability #FutureOfWork #ChronicIllness #AccessibilityDesign #Neurodivergent

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 19-Aug-2026 13:55 UTC+7 🚨
still urgently need (2 days with no movement):
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$496 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

For you❤️(and a reminder for me too).

#disabled #chronicillness #disability

Went with a friend to an appointment at the "Highly Complex Care" doctor and the doc did not assume my friend who was *coming in person* despite being *usually bedbound* would want to lie down. What are we doing

#ChronicIllness #mecfs

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 19-Aug-2026 01:43 UTC+7 🚨
still urgently needed:
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$496 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

#ThereForME
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices
@[email protected]

In good news, the pain has kicked off ready for my MRI in Friday.

In bad news I'm in quite a lot of pain and can't do an enormous amount about it.

#ChronicIllness

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 18-Aug-2026 13:40 UTC+7 🚨
still urgently needed:
⏳ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$496 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

*/Old Enemy/*

You, who I thought defeated
Slid through my defenses
And instilled that old fear
Of a life lived in pure suffering

But, old enemy
You return at a disadvantage
For though I still fear you
I fought you and won

Through years of hardship
Loss of my confidence
Terror and sleepless nights
I bested you, with help

So why do you return?
Was my reprieve only temporary
Or, my foolish foe
Do you fear what I am becoming

What I might accomplish
If, free of your binding
I could finally ascend?

#poetry #writing #writersofmastodon #covid19 #LongCOVID #ChronicIllness

https://princessnettles.com/index.php/2026/08/18/old-enemy/

Episode 20: She Wasn’t Expected to Live—But God Had Other Plans | EP 20 Heather’s Story

https://gemsofknowledge.com/2026/08/17/episode-20-she-wasnt-expected-to-live-but-god-had-other-plans-ep-20-heathers-story/

Living with a #chronic disease is difficult, but don’t give up. Stay strong, take it one day at a time, and remember you are not alone. Keep going.

Words shared with me by the headteacher of my former school, John Mutabazi.🙏

#chronicillness #Hope #keepGoing

I was thinking about all the things #ChronicIllness cost me.
I’m normally too busy just surviving to think about it.
Some people mourn the children they’ll never have.
I realised I will most likely never meet the love of my life. That hit so hard.

I was thinking about all the things #ChronicIllness cost me.
I’m normally too busy just surviving to think about it.
Some people mourn the children they’ll never have.
I realised I will most likely never meet the love of my life. That hit so hard.

Day 8 of vertigo + migraine. This morning it waited to pounce until I had been up and awake for a while. So I'm counting that as a win.😵‍💫🫩
#vertigo #migraine #ChronicIllness

A system gap affecting disabled people in Switzerland has left our friend A. with impossible bills to pay after struggling already with financial and bureaucratic nightmares for years.

Please show solidarity with them by giving any amount you can and/or sharing the gofundme <3 thank you!!

https://gofund.me/6240ef58f

#mutualaid #MutualAidRequest #AuDHD #autism #chronicillness #chronicallyill

🚨 UPDATE 17-Aug-2026 20:05 UTC+7 🚨
still urgently needed:
⏳️ $97/$250 for groceries, $153 still needed to cover my monthly groceries. I really need food to survive
⏳️ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳️ ‼️$0/$125 for electricity, water, and internet — past its 16 August deadline. I’m afraid they are going to cut off my water and internet again.‼️

$496 in total still needed this month.

Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.

• https://ko-fi.com/wrzky/goal
• Support options: https://wrzky.com/links
• Real time support ledger: https://wrzky.com/psl

Thank you, thank you 🙂‍↕️💜

Any amount helps. Any support is much appreciated. Please boost this so my request can reach further than my feed. Thank you, thank you 🙂‍↕️💜

@mutualaid @mutualaidspace @mutualaid @wrzky @wrzky @frugalcoffee @disability @QuyetPawz @ellespeaks @edendestroyer

#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund