#chronic-illness — Public Fediverse posts

From Canada 🇨🇦

‘Prov[ing] What You Already Know’: The Overreliance on Medical Evidence in Adjudicating Ontario Disability Support Program Applications

Free fulltext:
https://digitalcommons.osgoode.yorku.ca/jlsp/vol38/iss1/6/

#MEcfs #chronicillness #Disability #PwME #CFS #hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
@mecfs

A great #WhiskersWednesday shot from a favorite #Twitch stream. #CatsofMastodon

I'm hoping these lovely kitties will inspire folks to help me with my #urgent move goal.

Do they? Can you?

All is appreciated!

Deets and ways to aid: https://linktr.ee/khernandez

#mutualaid #directaid #disabled #artist #queer #lgbtq #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @creativearts @povertyandinequality #spoonie #chronicpain #chronicillness @spoonie @queer

my allergy shots didn’t get delivered yesterday as this is a specific medication can only be given exactly 2 weeks apart not even a day early if I get them of my current schedule I’ll
Have to cancel & reschedule 12 appointments so the next two weeks I need extra support & if I go MIA you know why 😂

#MCAS #chronicillness #spoonie

What irritates me here is that for those of us with POTS could likely have benefit from something like this by increasing oxygen to the brain even though bloodflow is reduced...

Then I wake up and realize this is America where we don't give a shit about giving people better lives, just finding optimal ways of killing more people for profit.

https://www.nbcsandiego.com/news/local/ucsd-granted-11-3m-to-develop-smart-blood-cells-to-improve-military/4068510/

#ChronicIllness #SmartBloodCells #POTS #Military

RE: https://mastodon.social/@ellespeaks/117199420020373951

$25 due in 12hrs!
for my co pay or i have to cancel the appt 🆘️⚠️

Im disabled, queer + estranged from family since losing my gram September 2024. Anything helps!

V: d_fay
Pp: peach77
Kofi: https://ko-fi.com/ellespeaks

#mutualaid #MutualAidSavesLives #MutualAidRequest #helpfolkslive #disabled #spoonie #chronicillness #lgbtq #crowdfunding #gofundme #directaid #queer #hunger #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @queer @disability #disabledmutualaid @povertyandinequality

Classes officially start today.

It’s eclipsed by:

I see my Rheumatologist this afternoon because of this massive flare up I have been in for a month that’s nothing like what I’ve experienced before.

I’ve very likely failed this biologic (#5) and have to switch meds. The med I’m most likely to try next that’ll stop all of this pain?

… there is a shortage of.

FML I hate being chronically ill.

#chronicIllness #disabled #disability

Living with ME & fibromyalgia: ‘In 10 years, I had 10 pregnancies. It was a decade of loss, & a fight to get the family we wanted’ (Paywall)

https://www.independent.ie/lifestyle/living-with-me-and-fibromyalgia-in-10-years-i-had-10-pregnancies.-it-was-a-decade-of-loss-and-a-fight-to-get-the-family-we-wanted/a/160468721.html

Link for Dublin Fringe Festival's "Chronically Hopeful", Sept 6-9

https://www.fringefest.com/festival/whats-on/chronically-hopeful

#MEcfs #chronicillness #PwME #CFS #ME #MyalgicE
@mecfs

The Class Work Project have a call out for submissions on disability and chronic illness for their next issue of their journal Lumpen.

https://theclassworkproject.com/lumpen-19-call-for-submissions/

#writing #OpenCall #disability #ChronicIllness

RE: https://mastodon.social/@ellespeaks/117185849880983055

stalled
$50 needed asap + anything for food (almost out)

Im diabetic and do not have family to turn to. I have food allergies so food pantries arent ideal unfortunately

I appreciate any help at all + am v grateful. Thank you!

V: d_fay
P: peach77
Ko: https://ko-fi.com/ellespeaks

#Mutualaid #MutualAidRequest #MutualAidSavesLives #disabled #spoonie #chronicpain #chronicillness #helpfolkslive2026 #lgbtq #queer @povertyandinequality @disabledvoices @queer @[email protected] @directaid @[email protected] @lgbtq

after nearly a year of waiting i have finally been diagnosed with #fibromalgya. another result of surviving systems of oppression, exploitation & abuse since birth, with no one batting an eyelid whilst only ever getting the message that it's my own fault, i need to change my lifestyle, i am probably overreacting, making it up, exaggerating & just fucking lazy.
i am looking great btw! why don't i go find a job?

just another stigma on top of the many others i am labelled with.

i am greatful that it is now officially recognised as a #ChronicIllness.

Wikipedia says: as of 2022, neurologists and pain specialists tended to view fibromyalgia as a real pathology.[345

https://en.wikipedia.org/wiki/Fibromyalgia

before that there was severe stigma in the medical scientific community. unfortunately the rest of society takes generations to catch up, so i'm sure i'll continue to get ignorant bastards judging me, as i have been most of my life.

please #educate yourself & share this to raise awareness.

#press #health #IndependentMedia #GenerationalTrauma #CPTSD #BPD #DysthymicDisorder #MentalHealth

#ThereForME
#WomensHealth
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

Dear Fediverse, can you please help me find the overlap between these three groups?

A: people willing and eager to wear a respirator indoors
B: people interested in board games
C: people living in or close to berlin

I can't be the only one, right? Boosts would be highly appreciated, maybe you know someone who knows someone...? Thank you!

#stillmasking
#maskup
#wearamask
#covidisnotover
#longcovid
#chronicillness
#berlin
#boardgames
#brettspiel
#venndiagram

With the exception of physical pain, emotional torment, executive dysfunction, and anxiety, I'm doing pretty well today.

#ChronicPain #ChronicIllness #MentalHealth

#ThereForME
#WomensHealth
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

RE: https://mastodon.social/@ellespeaks/117185849880983055

Co pay due in 2.5 days still at 0!
Anything helps and i truly appreciate it 💞

V: d_fay
P: peach77

#mutualaid #disabled #queer #mutualaidmonday #MutualAidRequest #MutualAidBoost #disability #mutualaidsaveslives #lgbtq @disabledvoices @[email protected] @[email protected] @spoonie @queer #artist #poverty @povertyandinequality #directaid #mentalhealth #chronicillness

Now on to calling the insurance company to ask exactly who there thinks they know better than my doctor.

#medical #health #insurance #healthinsurance #disability #chronicillness #ehlersdanlossyndrome

My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/

Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.

#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment

My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/

Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.

#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment

My Book, 'Living Chronic: Conversations That Changed Me, Lessons That Saved Me', is Officially Available | By Brandy Schantz | Courtesy of the PWD Media Co-op
https://www.koehlerbooks.com/book/living-chronic-conversations-that-changed-me-lessons-that-saved-me/

Born from a severe reaction to a Crohn’s medication and 19 months searching for answers: interruption, self-advocacy, and rebuilding.

#LivingChronic #BookLaunch #ChronicIllness #DisabilityInclusion #PatientAdvocacy #CrohnsDisease #Dysautonomia #Leadership #Resilience #Healthcare #DisabilityEmployment

RE: https://disabled.social/@tomkindlon/117181233011091011

Aussies, here you go. Boost for reach.

#disabled #chronicillness #mecfsawareness #mecfs #chronicfatigue