#chronic-illness — Public Fediverse posts

Guuuuurl this year is kicking my ass

#chronicpain #chronicillness

Yes I'm a positive thinker and an optimist, and also I'm very much over all the physical pain today. Stress about upcoming bills and being under the poverty line only add to it all. I'd really love a break😅

#disabledlife #disabled #poverty #tired #chronicoain #plural #chronicillness #cptsd #neurodivergent #fatigue

RE: https://lgbtqia.space/@aceofcosmicspace/117147013935846651

Still struggling, friends. The stress is impacting my other conditions. Any help is greatly appreciated.

#MutualAidRequest @[email protected] @[email protected] @MutualAidBot #witch #mutualaidspace #mutualaidsaveslives #disabledmutualaid #disabled #chronicillness #chronicillnesswarrior #ptsdmutualaid #fibromyalgia #kidneysurgeryjourney #hearthealth #chronicpain #lgbtqia #bisexual #communitycare #plural #pluralgang

RE: https://mastodon.social/@ellespeaks/117136737602448332

$25/$400 - $375 to go for fundraising portion

15 more people sending $25 each will get me to my goal. I do not have any one else to fall back on. I cannot work due to disabilities

Any help is so appreciated

V: d_fay
Pp: peach77

#mutualaid #MutualAidSavesLives #MutualAidRequest #disabled #spoonie #queer #lgbtq #tech #chronicillness #chronicpain #directaid #helpneeded @[email protected] @[email protected] @directaid @queer @lgbtq @disabledvoices @disability @spoonie @creativearts #creative #gofundme #boost

About the What Is Myalgic Encephalomyelitis Like? (WIMEL) writers:

The WIMEL writers are an international group of people living with ME and related illnesses who come together to write. Our goals are to advocate and spread accurate, truthful information and awareness about ME, especially to healthcare professionals, students, and policy-makers who may have limited knowledge about the illness.

Website: https://wimel2.wordpress.com/

@mecfs

2/2

#MEcfs #ChronicIllness #Disability #Essays #Writing

“Hope to outlast the storm”: How severe ME impacts two brothers

https://thesicktimes.org/2026/08/21/hope-to-outlast-the-storm-how-severe-me-impacts-two-brothers/

"ME is like being in a raging storm while caught in the open ocean. You can’t think, you can’t breathe, and you are constantly thrown about by circumstances out of your control. You can’t even move in any direction because you have no control over your life. All you can do is hope to outlast the storm without going under."

1/2

@mecfs

#MEcfs #ChronicIllness #Disability #Essays

RE: https://lgbtqia.space/@aceofcosmicspace/117147013935846651

Please boost for me, and if you can help out so I don't need to choose between this bill and other essentials, it would be greatly appreciated.

#trans #lgbtqia #lgbtqiaplus #transgender #disabled #disability #chronicillness #struggle #survival #povertykills #pleaseboost #boostforreach #optimisticbutexhausted #exhausted #fatigued #fibromyalgia #ptsd #chronic_stress #chronicfatigue #kidneys #hearthealthawareness #heart #plural #depression #anxiety #neurodivergent #gratitude

@aceofcosmicspace Same. It's so lovely! 😊

#ChronicIllness #MEcfs #Disability

Do you know how awesome it is to see all your bloomscrolling and nature posts, as someone who is very often bedbound due to disability? On the days when I can't leave home, I can experience the beauty of outside world thanks to all your pictures on my timeline. It helps a lot. Thank you, fedi❤️

#bloomscrolling #nature #naturephotography #disabled #chronicillness #chronicillnesswarrior #disability #Bedbound

A gentle reminder that you can be an optimistic, generally positive person and still have days where it's all too much. It's okay to feel sad. It's okay to feel exhausted from it all. Treat yourself gently.

#treatyourselfgently #chronicillness #disabled #disability #chronically_ill

Really feeling this currently. Sending love to my fellow chronic illness fedi friends❤️

#chronicillness #disability #disabled #hanginthere

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 24-Aug-2026 04:55 UTC+7 🚨
still urgently need (26h with no movement -- over a day now):
⏳ $141/$250 for groceries, $109 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$452 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

Pain is high today, and meds aren't really helping so far. Oof.

#disabledlife #chronicillness #chronically_ill #chronic_stress

RE: https://mastodon.social/@ellespeaks/117133232648522265

$25/$400
J sent $25! I Just need 15 more people to match this! Any amount is a blessing though🙏🏻

I have to start fundraising for essentials like food and pharmacy soon so its important to try and get any bit on this that i can! Thank you!😊

V: d_fay
Pp: peach77

#Mutualaid #MutualAidRequest #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid
#urgent #disabledartist

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 23-Aug-2026 18:55 UTC+7 🚨
still urgently need (16h with no movement):
⏳ $141/$250 for groceries, $109 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$452 in total still needed this month.
Please support within your capacity. Any amount helps. Boosting this post also helps. I need it shared further than my reach.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

A paramedic has been fired for telling a stroke patient to “stop being a baby” and that she was “choosing to be sick”

Disabled people hear this all the time.

This type of abuse and judgment is far too common in healthcare.

Patients aren’t believed and many die as a result.

https://www.bbc.com/news/articles/c8rnzr8rxjzo

#healthcare #disability #ableism #chronicillness

Yesterday's therapy wiped me out today. Unpacking things you spent years burying leaves you feeling completely drained.

On top of that, I am grieving the church.

My faith has not wavered, but in-person worship stopped working a while ago. Looking online has been disheartening. So much of what gets recommended is prosperity preaching that turns belief into a financial investment, peddling prophecies for money while telling anyone who remains sick or struggling that they lack enough faith.

Real care gets lost in that environment. I have never experienced a community that reaches out when someone goes missing, builds accommodations from the start, and holds space for sorrow instead of demanding an instant, tidy resolution.

Jesus spent his life alongside the people religious systems pushed aside, yet finding that same heart online feels rare. If you belong to an online Christian gathering that lives this out and prioritises accessibility over spectacle, I would love to hear about it.

#FaithCommunity #AccessibilityMatters #ProgressiveChristianity #ChurchTrauma #MentalHealth #ChronicIllness #FaithOnline

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 23-Aug-2026 02:07 UTC+7 🚨
⏳ $141/$250 for groceries, $109 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$452 in total still needed this month.
Any support is appreciated. Please boost so this reaches further than my feed.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

Three good things today:

Managed some housework and organizing in between resting today. It feels good to be able to accomplish even a little, and feel somewhat "normal".

The feeling of very early spring in the air even though today was a bit overcast.

Learning more about my system, and doing more healing work with system/constellation-mates.

#3GoodThingsToday #ThreeGoodThings #plural #disabled #chronicillness #neurodivergent

#ThereForME
@[email protected]
@[email protected]
#ME #Chronicillness #LC
#PEM #POTS #LivesWeCannotLive
#MissingMillions
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@disabledvoices

“If you were really sick you would just go to the hospital”.

Disabled people hear this ALL the time.

Sometimes, the hospital is dangerous.

Four patients at Ascension Saint Thomas in Nashville suffered severe complications after they had potassium injected into their epidurals Instead of pain medication.

At least one patient is paralyzed from the sternum down.

Genuinely hard to imagine how this occurs by “accident”.

https://www.cbsnews.com/news/nashville-hospital-drug-mix-up-complications/
#disability #chronicillness
#healthcare #medicalerrors #tennessee

RE: https://mastodon.social/@ellespeaks/117133232648522265

Stalled still! $0/$500

Absolutely any help matters and piles up fast! Thank you
💕💕

#Mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #maboost #disabled #spoonie #chronicpain #chronicillness #ptsd #crowdfunding #helpneeded #helpfolkslive2026 #lgbtq #lesbian #queer #artist #disabledmutualaid @[email protected] @[email protected] @disabledvoices @disability @creativearts @[email protected] @[email protected] @mentalhealth

"Run the Dishwasher Twice"

https://sfllivestreamsredditfree.medium.com/run-the-dishwasher-twice-free-79535ac7deb

"I began to tell him you’re not supposed to"

Therapist: “Why the hell aren’t you supposed to? If you don’t want to scrub the dishes & your dishwasher sucks, run it twice...Rules do not exist.”

#chronicillness #Spoonie @mecfs
#MEcfs

I think the PEM from my antidepressant withdrawal is starting to show up 🫩
#chronicillness #mecfs #myalgicencephalomyelitis

"Questions to ask when evaluating evidence from clinical trials" By Simon Spichak

https://thesicktimes.org/questions-to-ask-when-evaluating-evidence-from-clinical-trials/

Although this makes some references to long Covid when giving examples, it's relevant and informative for all conditions

#chronicillness #LongCovid @thesicktimes @longcovid

RE: https://wrzky.com/mutual-aid-request-august/

🚨 UPDATE 22-Aug-2026 02:25 UTC+7 🚨
⏳ $78/$250 for groceries, $172 still needed to cover my monthly groceries.
⏳ $0/$218 for meds. Over seven months without medication now, traded for food just to survive. This has to stop.
⏳ ‼️$0/$125 for electricity, water, and internet -- past its 16 August deadline. I'm afraid they are going to cut off my water and internet again.‼️

$515 in total still needed this month.
Please support however you can. Sharing this also goes a long way.
https://ko-fi.com/wrzky/goal

Thank you, thank you 🙂‍↕️💜

@[email protected] @[email protected] @mutualaidspace @disability @edendestroyer @QuyetPawz @ellespeaks @frugalcoffee @actuallyadhd @autistics @[email protected]
#mutualaid #mutualaidrequest #mutualaidspace #disability #poverty #helpfolkslive #mentalhealth #healthcare #chronicillness #neurodivergence #activism #activitypub #fedihelp #fediverse #disabilitycrowdfund #disabilitymutualaid #emergencycrowdfund

I think it's time to admit my #chronicillness means I won't be able to get back to some things and that my 2 #3dprinter probably should be sold to free up space. Trouble is I've no idea of any groups or people around Crieff who might be interested in a big #Voron 2.4r2 350 I built myself and a PrusaMIni+ I've had for a while.

From @onelife_livedwell on IG: Interoception is your body’s ability to sense what’s happening on the inside. In athletes, we call this body awareness, but in chronic conditions, it’s too often labeled anxiety.

#chronicillness #spoonie #mecfs #longtermillness #longcovid @mecfs