#chronicillnesswarrior — Public Fediverse posts on home.social

Tom Kindlon @[email protected] · 2026-04-11 · 15:50 UTC

From @onelife_livedwell on IG: There’s a grief that comes with Long COVID [Tom: and other conditions too] that no one really prepares you for:
⠀
The grief of not recognizing your own body.
The grief of missing old routines.
The grief of friends who faded away.
⠀
It’s deep, layered and real. And there’s uncertainty too, of not knowing what might happen next.
⠀
[deleted to fit]
⠀
#longcovid #chronicillnesswarrior #feelings #invisiblegrief #spooniesupport #processingemotions

#longcovid #chronicillnesswarrior #feelings #invisiblegrief #spooniesupport #processingemotions

Tom Kindlon @[email protected] · 2026-04-11 · 15:50 UTC

From @onelife_livedwell on IG: There’s a grief that comes with Long COVID [Tom: and other conditions too] that no one really prepares you for:
⠀
The grief of not recognizing your own body.
The grief of missing old routines.
The grief of friends who faded away.
⠀
It’s deep, layered and real. And there’s uncertainty too, of not knowing what might happen next.
⠀
[deleted to fit]
⠀
#longcovid #chronicillnesswarrior #feelings #invisiblegrief #spooniesupport #processingemotions

#longcovid #chronicillnesswarrior #feelings #invisiblegrief #spooniesupport #processingemotions

Lanie @[email protected] · 2025-02-10 · 08:25 UTC

🌟 Introduction Post 🌟

Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

🧑‍💻 Who I Am

Conservative #Christian woman and #Aroace
Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍

I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

🐾 Meet Squeaker!

I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

📚 What I’m Studying

I'm currently learning:

Digital Accessibility through the BIT Accessibility Analyst Course
Literary Braille Proofreading via the NLS
Programming on platforms like freeCodeCamp and Codecademy

My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

💡 What I Do

I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

Facebook: Multiple Disabilities Peer to Peer Support Group
Discord/Mailing List: MultAbilities
Clubhouse: People with Multiple Disabilities

Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

🎮📖🍴 My Interests

When I’m not advocating or studying, you can find me:

Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀

I also love swimming 🏊‍♀️ when my health allows it.

🛠️ My Goals

One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

Provide peer support groups
Help fund assistive technology
Advocate for education and employment opportunities
Collaborate with disability-focused organizations to improve accessibility

For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

🤝 Let’s Connect!

I’m always happy to chat about:

Accessibility in #tech or tech in general
Disability advocacy
Programming (#HTML, #JavaScript)
Braille
Books
Or just life in general!

Feel free to follow me here or check out my website at laniecarmelo.tech.

#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

#christian #aroace #blind #actuallyautistic #chronicillnesses #disabilityrights

Lanie @[email protected] · 2025-02-10 · 08:25 UTC

🌟 Introduction Post 🌟

Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:

🧑‍💻 Who I Am

Conservative #Christian woman and #Aroace
Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍

I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.

🐾 Meet Squeaker!

I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!

📚 What I’m Studying

I'm currently learning:

Digital Accessibility through the BIT Accessibility Analyst Course
Literary Braille Proofreading via the NLS
Programming on platforms like freeCodeCamp and Codecademy

My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.

💡 What I Do

I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:

Facebook: Multiple Disabilities Peer to Peer Support Group
Discord/Mailing List: MultAbilities
Clubhouse: People with Multiple Disabilities

Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!

🎮📖🍴 My Interests

When I’m not advocating or studying, you can find me:

Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀

I also love swimming 🏊‍♀️ when my health allows it.

🛠️ My Goals

One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:

Provide peer support groups
Help fund assistive technology
Advocate for education and employment opportunities
Collaborate with disability-focused organizations to improve accessibility

For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝

🤝 Let’s Connect!

I’m always happy to chat about:

Accessibility in #tech or tech in general
Disability advocacy
Programming (#HTML, #JavaScript)
Braille
Books
Or just life in general!

Feel free to follow me here or check out my website at laniecarmelo.tech.

#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign

#christian #aroace #blind #actuallyautistic #chronicillnesses #disabilityrights

Shantell Powell @[email protected] · 2024-05-15 · 21:32 UTC

I went to the gym today where I did Nordic curls, goblet squats, kettlebell stuff, and running.

I’m always worried about the running. I used to race regularly, mostly cross country, but also mountain races and obstacle course races. Since hormonal changes knocked me for a loop, running has been extra hard. I have hypermobility, which means that I have to rely on a lot of muscular endurance because my toes and Achilles tendons are loose and floppy. Until I have all those muscles built up, running often results in pain in my toes and along the top of my foot.

I’d really like to be able to run regularly again. I miss being able to do 10km mountain courses. I really really REALLY hope the air quality, temperature, and my health conspire to let me do this again. If I can run again, it’s better for us all. It means the country isn’t on fire again.

In other news, ever since doing chin-ups on Monday, I’ve been unable to straighten my arms. The DOMS are real. Looking forward to being able to do unassisted pull-ups and chin-ups again, too.
#FitAfter50 #ChronicIllnessWarrior #menopause #fitness #running #ClimateDiary #CanadianWildFires

#fitafter50 #chronicillnesswarrior #menopause #fitness #running #climatediary

Shantell Powell @[email protected] · 2024-05-15 · 21:32 UTC

I went to the gym today where I did Nordic curls, goblet squats, kettlebell stuff, and running.

I’m always worried about the running. I used to race regularly, mostly cross country, but also mountain races and obstacle course races. Since hormonal changes knocked me for a loop, running has been extra hard. I have hypermobility, which means that I have to rely on a lot of muscular endurance because my toes and Achilles tendons are loose and floppy. Until I have all those muscles built up, running often results in pain in my toes and along the top of my foot.

I’d really like to be able to run regularly again. I miss being able to do 10km mountain courses. I really really REALLY hope the air quality, temperature, and my health conspire to let me do this again. If I can run again, it’s better for us all. It means the country isn’t on fire again.

In other news, ever since doing chin-ups on Monday, I’ve been unable to straighten my arms. The DOMS are real. Looking forward to being able to do unassisted pull-ups and chin-ups again, too.
#FitAfter50 #ChronicIllnessWarrior #menopause #fitness #running #ClimateDiary #CanadianWildFires