#chronicillnesswarrior — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronicillnesswarrior, aggregated by home.social.
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Today is my first day on methotrexate - one of the long-term drugs I've been given for my "strongly positive" rheumatoid arthritis. To be honest, I was pretty terrified of taking it. I realised it's obviously a bit of a heavy duty drug: weekly dose, titrated, and closely monitored.
I've written previously on how I feel about medication but I know that for now at least I'm going to have to submit to it. So I avoided looking into it too deeply. In fact - and I know some people will frown at this (or worse) - I got ChatGPT to give me just the headlines: what to expect in terms of how it might make me feel; what side effects to look out for; what to be concerned about if it showed up. And frown (or worse) all you like - for me, it was the best way to go about it. I knew that if I read the full information leaflet, I'd end up freaking out and not taking it. And I kind of knew I had to.
Well, I took my first dose last night. I've got to tell you, even the packaging looks ominous. I've never seen a black blister pack before. What's that all about? But I took the four tiny tablets and went to bed.
1/2
#RheumatoidArthritis #ChronicIllness #AutoimmuneDisease
#LivingWithRA #SpoonieLife
#BodyListening #HealingInProgress #SupportingMyBody
#RheumatoidRevolution
#ChronicIllnessWarrior #SelfCare #medication -
Someone sent me this screenshot ❤️🩹 so I thought I'd share it here x
#ChronicIllness #SpoonieLife
#BodyListening #HealingInProgress
#ChronicIllnessWarrior #SelfCare -
From @onelife_livedwell on IG: There’s a grief that comes with Long COVID [Tom: and other conditions too] that no one really prepares you for:
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The grief of not recognizing your own body.
The grief of missing old routines.
The grief of friends who faded away.
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It’s deep, layered and real. And there’s uncertainty too, of not knowing what might happen next.
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[deleted to fit]
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#longcovid #chronicillnesswarrior #feelings #invisiblegrief #spooniesupport #processingemotions -
🌟 Introduction Post 🌟
Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:
🧑💻 Who I Am
- Conservative #Christian woman and #Aroace
- Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
- Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍
I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.
🐾 Meet Squeaker!
I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!
📚 What I’m Studying
I'm currently learning:
- Digital Accessibility through the BIT Accessibility Analyst Course
- Literary Braille Proofreading via the NLS
- Programming on platforms like freeCodeCamp and Codecademy
My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.
💡 What I Do
I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:
- Facebook: Multiple Disabilities Peer to Peer Support Group
- Discord/Mailing List: MultAbilities
- Clubhouse: People with Multiple Disabilities
Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!
🎮📖🍴 My Interests
When I’m not advocating or studying, you can find me:
- Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
- Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
- Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
- Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀
I also love swimming 🏊♀️ when my health allows it.
🛠️ My Goals
One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:
- Provide peer support groups
- Help fund assistive technology
- Advocate for education and employment opportunities
- Collaborate with disability-focused organizations to improve accessibility
For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝
🤝 Let’s Connect!
I’m always happy to chat about:
- Accessibility in #tech or tech in general
- Disability advocacy
- Programming (#HTML, #JavaScript)
- Braille
- Books
- Or just life in general!
Feel free to follow me here or check out my website at laniecarmelo.tech.
#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign
- Conservative #Christian woman and #Aroace
-
🌟 Introduction Post 🌟
Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:
🧑💻 Who I Am
- Conservative #Christian woman and #Aroace
- Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
- Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍
I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.
🐾 Meet Squeaker!
I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!
📚 What I’m Studying
I'm currently learning:
- Digital Accessibility through the BIT Accessibility Analyst Course
- Literary Braille Proofreading via the NLS
- Programming on platforms like freeCodeCamp and Codecademy
My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.
💡 What I Do
I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:
- Facebook: Multiple Disabilities Peer to Peer Support Group
- Discord/Mailing List: MultAbilities
- Clubhouse: People with Multiple Disabilities
Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!
🎮📖🍴 My Interests
When I’m not advocating or studying, you can find me:
- Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
- Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
- Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
- Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀
I also love swimming 🏊♀️ when my health allows it.
🛠️ My Goals
One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:
- Provide peer support groups
- Help fund assistive technology
- Advocate for education and employment opportunities
- Collaborate with disability-focused organizations to improve accessibility
For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝
🤝 Let’s Connect!
I’m always happy to chat about:
- Accessibility in #tech or tech in general
- Disability advocacy
- Programming (#HTML, #JavaScript)
- Braille
- Books
- Or just life in general!
Feel free to follow me here or check out my website at laniecarmelo.tech.
#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign
- Conservative #Christian woman and #Aroace
-
🌟 Introduction Post 🌟
Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:
🧑💻 Who I Am
- Conservative #Christian woman and #Aroace
- Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
- Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍
I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.
🐾 Meet Squeaker!
I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!
📚 What I’m Studying
I'm currently learning:
- Digital Accessibility through the BIT Accessibility Analyst Course
- Literary Braille Proofreading via the NLS
- Programming on platforms like freeCodeCamp and Codecademy
My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.
💡 What I Do
I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:
- Facebook: Multiple Disabilities Peer to Peer Support Group
- Discord/Mailing List: MultAbilities
- Clubhouse: People with Multiple Disabilities
Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!
🎮📖🍴 My Interests
When I’m not advocating or studying, you can find me:
- Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
- Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
- Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
- Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀
I also love swimming 🏊♀️ when my health allows it.
🛠️ My Goals
One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:
- Provide peer support groups
- Help fund assistive technology
- Advocate for education and employment opportunities
- Collaborate with disability-focused organizations to improve accessibility
For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝
🤝 Let’s Connect!
I’m always happy to chat about:
- Accessibility in #tech or tech in general
- Disability advocacy
- Programming (#HTML, #JavaScript)
- Braille
- Books
- Or just life in general!
Feel free to follow me here or check out my website at laniecarmelo.tech.
#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign
- Conservative #Christian woman and #Aroace
-
🌟 Introduction Post 🌟
Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:
🧑💻 Who I Am
- Conservative #Christian woman and #Aroace
- Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
- Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍
I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.
🐾 Meet Squeaker!
I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!
📚 What I’m Studying
I'm currently learning:
- Digital Accessibility through the BIT Accessibility Analyst Course
- Literary Braille Proofreading via the NLS
- Programming on platforms like freeCodeCamp and Codecademy
My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.
💡 What I Do
I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:
- Facebook: Multiple Disabilities Peer to Peer Support Group
- Discord/Mailing List: MultAbilities
- Clubhouse: People with Multiple Disabilities
Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!
🎮📖🍴 My Interests
When I’m not advocating or studying, you can find me:
- Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
- Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
- Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
- Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀
I also love swimming 🏊♀️ when my health allows it.
🛠️ My Goals
One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:
- Provide peer support groups
- Help fund assistive technology
- Advocate for education and employment opportunities
- Collaborate with disability-focused organizations to improve accessibility
For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝
🤝 Let’s Connect!
I’m always happy to chat about:
- Accessibility in #tech or tech in general
- Disability advocacy
- Programming (#HTML, #JavaScript)
- Braille
- Books
- Or just life in general!
Feel free to follow me here or check out my website at laniecarmelo.tech.
#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign
- Conservative #Christian woman and #Aroace
-
🌟 Introduction Post 🌟
Hi everyone! 👋 I'm Lanie Molinar Carmelo (she/her), and I'm thrilled to join the amazing community here on allovertheplace.ca! Here's a little about me:
🧑💻 Who I Am
- Conservative #Christian woman and #Aroace
- Totally #blind and #ActuallyAutistic, living with multiple #chronicIllnesses
- Advocate for #DisabilityRights, passionate about creating a more inclusive world 🌍
I'm a #UsabilityTester and an aspiring #AccessibilityConsultant, working to make technology better for everyone, especially those of us with disabilities. I'm most passionate about helping those with multiple disabilities, as it's an area that doesn't get enough attention.
🐾 Meet Squeaker!
I'm also the proud human to my 10-year-old Miniature Pinscher, Squeaker, who is the best little companion anyone could ask for. 🐕💖 He drives me nuts sometimes, but I don't know what I'd do without him. My profile picture features me with Squeaker, and my header shows him wrapped in a blanket with just his adorable face peeking out!
📚 What I’m Studying
I'm currently learning:
- Digital Accessibility through the BIT Accessibility Analyst Course
- Literary Braille Proofreading via the NLS
- Programming on platforms like freeCodeCamp and Codecademy
My goal is to develop accessible apps that empower people with disabilities, contribute to open-source projects that promote inclusion, and just do what I can to make the world more accessible.
💡 What I Do
I run or co-lead several online support groups for people with multiple disabilities. These groups provide safe spaces to connect, share resources, and talk with others who "get it." You can find them here:
- Facebook: Multiple Disabilities Peer to Peer Support Group
- Discord/Mailing List: MultAbilities
- Clubhouse: People with Multiple Disabilities
Right now, my focus is on growing these groups and making connections with others who are passionate about supporting multiply disabled individuals. If you're interested in joining or collaborating, feel free to reach out or check out my website at laniecarmelo.tech, where you'll find links to all the groups!
🎮📖🍴 My Interests
When I’m not advocating or studying, you can find me:
- Exploring #technology and experimenting with self-hosting on my Raspberry Pi 🖥️
- Reading #SciFi, #Fantasy, #Mystery, and some nonfiction 📚
- Playing #AccessibleGaming titles like incremental games, puzzles, RPGs, roguelikes, and MUDs 🎮
- Enjoying delicious food—especially #chocolate, #seafood, #milk, and #cheese 🍫🧀
I also love swimming 🏊♀️ when my health allows it.
🛠️ My Goals
One day, I hope to found a nonprofit organization to support multiply disabled individuals. The nonprofit would:
- Provide peer support groups
- Help fund assistive technology
- Advocate for education and employment opportunities
- Collaborate with disability-focused organizations to improve accessibility
For now, I'm focused on running my support groups and building connections that could help make this dream a reality. If you have ideas or resources—or just want to chat—let me know! 🤝
🤝 Let’s Connect!
I’m always happy to chat about:
- Accessibility in #tech or tech in general
- Disability advocacy
- Programming (#HTML, #JavaScript)
- Braille
- Books
- Or just life in general!
Feel free to follow me here or check out my website at laniecarmelo.tech.
#Introduction #DisabilityCommunity #AccessibilityMatters #Blindness #AutismAcceptance #ChronicIllnessWarrior #TechForGood #DisabilityAdvocate #OpenSourceProjects #BrailleLiteracy #GamingWithDisabilities #InclusiveDesign
- Conservative #Christian woman and #Aroace
-
Hello #spooniecommunity ☺️
My name is Hannah; it's good to be here with y'all!I can't wait to meet some amazing people here. Introduce yourself?
#disabled #disability #DisabledCommunity #disabilitycommunity #spoonie #spooniesupport #spoonielife #chronicillness #chronicillnesswarrior #mentalhealth #mentalhealthmatters