#disabilityrights — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #disabilityrights, aggregated by home.social.
-
I’m autistic. Here’s what happened to us this week.
- A study of more than 2 million autistic Medicaid enrollees found a life expectancy of 64.9 years—13.8 years below the U.S. average. The biggest gaps included flu, drowning, malnutrition, choking, and pneumonia. Most are preventable.
- An autistic 18-year-old in Tennessee called deputies from a shed where he said he had been living without electricity, water, or a bathroom. His mother and her boyfriend now face caregiver-neglect charges.
- India told clinics they cannot sell stem-cell treatment as routine autism care. The treatment can continue only in approved clinical trials—because the evidence still does not show that it works.
Plus 19 more stories about autistic people facing abuse, disappearing and being found, losing access to care, fighting for school support, demanding accountability, and building spaces where we do not have to mask to belong.
If a doctor overlooks the preventable risks that shape our lives… if turning 18 means the people meant to care for you can abandon you… if “treatment” means someone else gets to profit from false hope… this isn’t abstract policy.
This is the week we just lived.
What does this fight look like where you live?
https://johnnyprofaneknapp.substack.com/p/divergent-times-week-of-september
-
I’m autistic. Here’s what happened to us this week.
- A study of more than 2 million autistic Medicaid enrollees found a life expectancy of 64.9 years—13.8 years below the U.S. average. The biggest gaps included flu, drowning, malnutrition, choking, and pneumonia. Most are preventable.
- An autistic 18-year-old in Tennessee called deputies from a shed where he said he had been living without electricity, water, or a bathroom. His mother and her boyfriend now face caregiver-neglect charges.
- India told clinics they cannot sell stem-cell treatment as routine autism care. The treatment can continue only in approved clinical trials—because the evidence still does not show that it works.
Plus 19 more stories about autistic people facing abuse, disappearing and being found, losing access to care, fighting for school support, demanding accountability, and building spaces where we do not have to mask to belong.
If a doctor overlooks the preventable risks that shape our lives… if turning 18 means the people meant to care for you can abandon you… if “treatment” means someone else gets to profit from false hope… this isn’t abstract policy.
This is the week we just lived.
What does this fight look like where you live?
https://johnnyprofaneknapp.substack.com/p/divergent-times-week-of-september
-
I’m autistic. Here’s what happened to us this week.
- A study of more than 2 million autistic Medicaid enrollees found a life expectancy of 64.9 years—13.8 years below the U.S. average. The biggest gaps included flu, drowning, malnutrition, choking, and pneumonia. Most are preventable.
- An autistic 18-year-old in Tennessee called deputies from a shed where he said he had been living without electricity, water, or a bathroom. His mother and her boyfriend now face caregiver-neglect charges.
- India told clinics they cannot sell stem-cell treatment as routine autism care. The treatment can continue only in approved clinical trials—because the evidence still does not show that it works.
Plus 19 more stories about autistic people facing abuse, disappearing and being found, losing access to care, fighting for school support, demanding accountability, and building spaces where we do not have to mask to belong.
If a doctor overlooks the preventable risks that shape our lives… if turning 18 means the people meant to care for you can abandon you… if “treatment” means someone else gets to profit from false hope… this isn’t abstract policy.
This is the week we just lived.
What does this fight look like where you live?
https://johnnyprofaneknapp.substack.com/p/divergent-times-week-of-september
-
I’m autistic. Here’s what happened to us this week.
- A study of more than 2 million autistic Medicaid enrollees found a life expectancy of 64.9 years—13.8 years below the U.S. average. The biggest gaps included flu, drowning, malnutrition, choking, and pneumonia. Most are preventable.
- An autistic 18-year-old in Tennessee called deputies from a shed where he said he had been living without electricity, water, or a bathroom. His mother and her boyfriend now face caregiver-neglect charges.
- India told clinics they cannot sell stem-cell treatment as routine autism care. The treatment can continue only in approved clinical trials—because the evidence still does not show that it works.
Plus 19 more stories about autistic people facing abuse, disappearing and being found, losing access to care, fighting for school support, demanding accountability, and building spaces where we do not have to mask to belong.
If a doctor overlooks the preventable risks that shape our lives… if turning 18 means the people meant to care for you can abandon you… if “treatment” means someone else gets to profit from false hope… this isn’t abstract policy.
This is the week we just lived.
What does this fight look like where you live?
https://johnnyprofaneknapp.substack.com/p/divergent-times-week-of-september
-
I’m autistic. Here’s what happened to us this week.
- A study of more than 2 million autistic Medicaid enrollees found a life expectancy of 64.9 years—13.8 years below the U.S. average. The biggest gaps included flu, drowning, malnutrition, choking, and pneumonia. Most are preventable.
- An autistic 18-year-old in Tennessee called deputies from a shed where he said he had been living without electricity, water, or a bathroom. His mother and her boyfriend now face caregiver-neglect charges.
- India told clinics they cannot sell stem-cell treatment as routine autism care. The treatment can continue only in approved clinical trials—because the evidence still does not show that it works.
Plus 19 more stories about autistic people facing abuse, disappearing and being found, losing access to care, fighting for school support, demanding accountability, and building spaces where we do not have to mask to belong.
If a doctor overlooks the preventable risks that shape our lives… if turning 18 means the people meant to care for you can abandon you… if “treatment” means someone else gets to profit from false hope… this isn’t abstract policy.
This is the week we just lived.
What does this fight look like where you live?
https://johnnyprofaneknapp.substack.com/p/divergent-times-week-of-september
-
RE: https://lgbtqia.space/@aceofcosmicspace/117292218357187737
If you're following, you'll know @aceofcosmicspace is struggling under the weight of health related issues, and now needs a further unexpected surgery. Please help. Let's make it a little easier on him.
#boostforvisibility #assist #reach #help #lendahand #savealife #MutualAidRequest #mutualaidspace #mutual #communitymatters #wecare #disabled #disabilityrights @broadwaybabyto #kindnesamatters #bekind #give #thoughtful #hope #reality #grateful
-
RE: https://lgbtqia.space/@aceofcosmicspace/117292218357187737
If you're following, you'll know @aceofcosmicspace is struggling under the weight of health related issues, and now needs a further unexpected surgery. Please help. Let's make it a little easier on him.
#boostforvisibility #assist #reach #help #lendahand #savealife #MutualAidRequest #mutualaidspace #mutual #communitymatters #wecare #disabled #disabilityrights @broadwaybabyto #kindnesamatters #bekind #give #thoughtful #hope #reality #grateful
-
RE: https://lgbtqia.space/@aceofcosmicspace/117292218357187737
If you're following, you'll know @aceofcosmicspace is struggling under the weight of health related issues, and now needs a further unexpected surgery. Please help. Let's make it a little easier on him.
#boostforvisibility #assist #reach #help #lendahand #savealife #MutualAidRequest #mutualaidspace #mutual #communitymatters #wecare #disabled #disabilityrights @broadwaybabyto #kindnesamatters #bekind #give #thoughtful #hope #reality #grateful
-
RE: https://lgbtqia.space/@aceofcosmicspace/117292218357187737
If you're following, you'll know @aceofcosmicspace is struggling under the weight of health related issues, and now needs a further unexpected surgery. Please help. Let's make it a little easier on him.
#boostforvisibility #assist #reach #help #lendahand #savealife #MutualAidRequest #mutualaidspace #mutual #communitymatters #wecare #disabled #disabilityrights @broadwaybabyto #kindnesamatters #bekind #give #thoughtful #hope #reality #grateful
-
RE: https://lgbtqia.space/@aceofcosmicspace/117292218357187737
If you're following, you'll know @aceofcosmicspace is struggling under the weight of health related issues, and now needs a further unexpected surgery. Please help. Let's make it a little easier on him.
#boostforvisibility #assist #reach #help #lendahand #savealife #MutualAidRequest #mutualaidspace #mutual #communitymatters #wecare #disabled #disabilityrights @broadwaybabyto #kindnesamatters #bekind #give #thoughtful #hope #reality #grateful
-
BOOST FAR AND WIDE PLEASE!
After my most recent hospital trips, lovely people here on fedi have been asking me what I'll need to get through the next couple of weeks given I'm disabled and under the poverty line, and my last surgery didn't go to plan😔(you can read more on my timeline). I need to recover from that physically, while also now needing to gain strength and wait for yet another surgery at the end of September due to the last one not working😅 Obviously, the setback has thrown things out of whack as far as the food and adult diapers that I currently can't do without, so given people have asked, I have taken stock of what I'll need to get through until next surgery day:
*more ready meals as I don't have the ability to cook right now but need nutritious things that are pre-prepared
*Two more packs of adult diapers to get me through until the next surgery date.
The total cost is $237.15. That will mean I'm fed, and able to rest and recover from my last hospital stay and surgery(where they added another stent), and give myself the best possible chance of being alright to go into the next surgery and have that be a success(and recovery be smooth).
If you could help me reach my goal of $237.15 so I can get those essential diapers and the food I need, it would be very much appreciated. Thank you in advance♥️EDIT: ONLY $90 TO GO NOW TO MEET GOAL!
https://ko-fi.com/aces_funhouse
#help #surgery #disabled #chronicallyill #chrinicillness #trans #transgrndrr #lgbtqia #lgbtqia2plus #disabedmutualaid #courage #hope #thankful #grateful #spiritual #pagan #witch #optimist #disabilityrights #disability #thingstobegratefulfor #attitudeofgratitude #faith #recovery #fedi @mutualaidspace @[email protected] #mutualaidspace #MutualAidRequest #boostforreach #community #kindness #communitymatters @[email protected] #disabledmutualaid #transmutualaidrequest #povertyawareness #food #fibromyalgia #ptsd #cptsd #ptsdmutualaid #chronicpain #FibroWarrior #warrior #brave #determined #support #youareloved #YouAreNotAlone #valid #thankfulness #optimistic #keepgoing #yes #weekend #coffee #weekendvibes #rest @AnthonyJK @MamaLake @tiggy #queer #bisexual #holdon #findthejoys #trending #plural #positive #possibilities
-
BOOST FAR AND WIDE PLEASE!
After my most recent hospital trips, lovely people here on fedi have been asking me what I'll need to get through the next couple of weeks given I'm disabled and under the poverty line, and my last surgery didn't go to plan😔(you can read more on my timeline). I need to recover from that physically, while also now needing to gain strength and wait for yet another surgery at the end of September due to the last one not working😅 Obviously, the setback has thrown things out of whack as far as the food and adult diapers that I currently can't do without, so given people have asked, I have taken stock of what I'll need to get through until next surgery day:
*more ready meals as I don't have the ability to cook right now but need nutritious things that are pre-prepared
*Two more packs of adult diapers to get me through until the next surgery date.
The total cost is $237.15. That will mean I'm fed, and able to rest and recover from my last hospital stay and surgery(where they added another stent), and give myself the best possible chance of being alright to go into the next surgery and have that be a success(and recovery be smooth).
If you could help me reach my goal of $237.15 so I can get those essential diapers and the food I need, it would be very much appreciated. Thank you in advance♥️EDIT: ONLY $90 TO GO NOW TO MEET GOAL!
https://ko-fi.com/aces_funhouse
#help #surgery #disabled #chronicallyill #chrinicillness #trans #transgrndrr #lgbtqia #lgbtqia2plus #disabedmutualaid #courage #hope #thankful #grateful #spiritual #pagan #witch #optimist #disabilityrights #disability #thingstobegratefulfor #attitudeofgratitude #faith #recovery #fedi @mutualaidspace @[email protected] #mutualaidspace #MutualAidRequest #boostforreach #community #kindness #communitymatters @[email protected] #disabledmutualaid #transmutualaidrequest #povertyawareness #food #fibromyalgia #ptsd #cptsd #ptsdmutualaid #chronicpain #FibroWarrior #warrior #brave #determined #support #youareloved #YouAreNotAlone #valid #thankfulness #optimistic #keepgoing #yes #weekend #coffee #weekendvibes #rest @AnthonyJK @MamaLake @tiggy #queer #bisexual #holdon #findthejoys #trending #plural #positive #possibilities
-
BOOST FAR AND WIDE PLEASE!
After my most recent hospital trips, lovely people here on fedi have been asking me what I'll need to get through the next couple of weeks given I'm disabled and under the poverty line, and my last surgery didn't go to plan😔(you can read more on my timeline). I need to recover from that physically, while also now needing to gain strength and wait for yet another surgery at the end of September due to the last one not working😅 Obviously, the setback has thrown things out of whack as far as the food and adult diapers that I currently can't do without, so given people have asked, I have taken stock of what I'll need to get through until next surgery day:
*more ready meals as I don't have the ability to cook right now but need nutritious things that are pre-prepared
*Two more packs of adult diapers to get me through until the next surgery date.
The total cost is $237.15. That will mean I'm fed, and able to rest and recover from my last hospital stay and surgery(where they added another stent), and give myself the best possible chance of being alright to go into the next surgery and have that be a success(and recovery be smooth).
If you could help me reach my goal of $237.15 so I can get those essential diapers and the food I need, it would be very much appreciated. Thank you in advance♥️EDIT: ONLY $90 TO GO NOW TO MEET GOAL!
https://ko-fi.com/aces_funhouse
#help #surgery #disabled #chronicallyill #chrinicillness #trans #transgrndrr #lgbtqia #lgbtqia2plus #disabedmutualaid #courage #hope #thankful #grateful #spiritual #pagan #witch #optimist #disabilityrights #disability #thingstobegratefulfor #attitudeofgratitude #faith #recovery #fedi @mutualaidspace @[email protected] #mutualaidspace #MutualAidRequest #boostforreach #community #kindness #communitymatters @[email protected] #disabledmutualaid #transmutualaidrequest #povertyawareness #food #fibromyalgia #ptsd #cptsd #ptsdmutualaid #chronicpain #FibroWarrior #warrior #brave #determined #support #youareloved #YouAreNotAlone #valid #thankfulness #optimistic #keepgoing #yes #weekend #coffee #weekendvibes #rest @AnthonyJK @MamaLake @tiggy #queer #bisexual #holdon #findthejoys #trending #plural #positive #possibilities
-
BOOST FAR AND WIDE PLEASE!
After my most recent hospital trips, lovely people here on fedi have been asking me what I'll need to get through the next couple of weeks given I'm disabled and under the poverty line, and my last surgery didn't go to plan😔(you can read more on my timeline). I need to recover from that physically, while also now needing to gain strength and wait for yet another surgery at the end of September due to the last one not working😅 Obviously, the setback has thrown things out of whack as far as the food and adult diapers that I currently can't do without, so given people have asked, I have taken stock of what I'll need to get through until next surgery day:
*more ready meals as I don't have the ability to cook right now but need nutritious things that are pre-prepared
*Two more packs of adult diapers to get me through until the next surgery date.
The total cost is $237.15. That will mean I'm fed, and able to rest and recover from my last hospital stay and surgery(where they added another stent), and give myself the best possible chance of being alright to go into the next surgery and have that be a success(and recovery be smooth).
If you could help me reach my goal of $237.15 so I can get those essential diapers and the food I need, it would be very much appreciated. Thank you in advance♥️EDIT: ONLY $90 TO GO NOW TO MEET GOAL!
https://ko-fi.com/aces_funhouse
#help #surgery #disabled #chronicallyill #chrinicillness #trans #transgrndrr #lgbtqia #lgbtqia2plus #disabedmutualaid #courage #hope #thankful #grateful #spiritual #pagan #witch #optimist #disabilityrights #disability #thingstobegratefulfor #attitudeofgratitude #faith #recovery #fedi @mutualaidspace @[email protected] #mutualaidspace #MutualAidRequest #boostforreach #community #kindness #communitymatters @[email protected] #disabledmutualaid #transmutualaidrequest #povertyawareness #food #fibromyalgia #ptsd #cptsd #ptsdmutualaid #chronicpain #FibroWarrior #warrior #brave #determined #support #youareloved #YouAreNotAlone #valid #thankfulness #optimistic #keepgoing #yes #weekend #coffee #weekendvibes #rest @AnthonyJK @MamaLake @tiggy #queer #bisexual #holdon #findthejoys #trending #plural #positive #possibilities
-
BOOST FAR AND WIDE PLEASE!
After my most recent hospital trips, lovely people here on fedi have been asking me what I'll need to get through the next couple of weeks given I'm disabled and under the poverty line, and my last surgery didn't go to plan😔(you can read more on my timeline). I need to recover from that physically, while also now needing to gain strength and wait for yet another surgery at the end of September due to the last one not working😅 Obviously, the setback has thrown things out of whack as far as the food and adult diapers that I currently can't do without, so given people have asked, I have taken stock of what I'll need to get through until next surgery day:
*more ready meals as I don't have the ability to cook right now but need nutritious things that are pre-prepared
*Two more packs of adult diapers to get me through until the next surgery date.
The total cost is $237.15. That will mean I'm fed, and able to rest and recover from my last hospital stay and surgery(where they added another stent), and give myself the best possible chance of being alright to go into the next surgery and have that be a success(and recovery be smooth).
If you could help me reach my goal of $237.15 so I can get those essential diapers and the food I need, it would be very much appreciated. Thank you in advance♥️EDIT: ONLY $90 TO GO NOW TO MEET GOAL!
https://ko-fi.com/aces_funhouse
#help #surgery #disabled #chronicallyill #chrinicillness #trans #transgrndrr #lgbtqia #lgbtqia2plus #disabedmutualaid #courage #hope #thankful #grateful #spiritual #pagan #witch #optimist #disabilityrights #disability #thingstobegratefulfor #attitudeofgratitude #faith #recovery #fedi @mutualaidspace @[email protected] #mutualaidspace #MutualAidRequest #boostforreach #community #kindness #communitymatters @[email protected] #disabledmutualaid #transmutualaidrequest #povertyawareness #food #fibromyalgia #ptsd #cptsd #ptsdmutualaid #chronicpain #FibroWarrior #warrior #brave #determined #support #youareloved #YouAreNotAlone #valid #thankfulness #optimistic #keepgoing #yes #weekend #coffee #weekendvibes #rest @AnthonyJK @MamaLake @tiggy #queer #bisexual #holdon #findthejoys #trending #plural #positive #possibilities