#disabilitysupport — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #disabilitysupport, aggregated by home.social.
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Anyone Can Be Your NDIS Support Worker. Who Is Keeping You Safe?
Reflections from several years on the scheme.
I have been on the NDIS for several years. A recent re-hiring process clarified something I had long suspected. The scheme has a workforce problem, and participants are the ones bearing the brunt.
There Is No Mandatory Registration Requirement
Under current Australian law, participants who self-manage or plan-manage their NDIS funding can hire any person as a support worker. Independent support Workers require no registration or minimum training standards.
The worker who enters your home, learns your medical history, handles your medications, and has significant authority over your daily life may have no formal preparation for any of it.
The NDIS Quality and Safeguards Commission exists and handles serious complaints, including abuse, neglect, and criminal conduct. Boundary violations, confidentiality breaches, and chronic unpreparedness that fall below that threshold leave participants largely without recourse. Skilled and ethical workers bring those qualities from their own formation and prior training. When those qualities are absent, the participant discovers this after the fact, and any remedy is slow, uncertain, and theirs alone to pursue.
That is the baseline. Everything that follows is built on it.
The Dog
My service dog performs specific medical functions. His effectiveness depends on remaining focused and oriented to me.
Some workers reach for him the moment they walk through the door. They do not ask.
Touching a service animal without permission is a safety violation and, in some contexts, carries legal weight under Australian disability discrimination law. A worker entering the home of a participant with a service animal has a professional obligation to understand what that animal does and what it requires. That preparation belongs to the provider. Its absence transfers the risk to the participant.
This is a professional standard.
What the Certificate III Does Not Cover
The Certificate III in Individual Support is the standard qualification in this sector and takes between six and twelve months. For many workers, it is completed online with minimal supervised practice hours, and it does not prepare them for the clinical and ethical complexity of supporting people with invisible or fluctuating conditions.
A worker with their cert may have no framework for how fatigue functions in ME/CFS or autistic burnout. Why pushing through is sometimes dangerous, why capacity varies day to day in ways that cannot be read from a plan approved six months ago, and why the participant’s account of their own condition is the primary source of accurate information.
Workers who arrive without that preparation fill the gap with assumptions. Correcting those assumptions, educating the person sent to support them, translating their own experience into terms the worker finds legible — this falls to the participant. That work is skilled and exhausting, and no NDIS plan funds it.
A Plan Is Not a Person
An NDIS plan records approved supports, written at a point in time by a planner who may have spent an hour with the participant. What it cannot capture is what a Tuesday looks like after a bad night, or how that changes what Wednesday can hold.
Workers who treat the plan as a complete picture end up supporting the document. When the participant’s actual day diverges from what the plan implies, some workers become confused, inflexible, or subtly sceptical. The participant then carries that response throughout the day.
Confidentiality Is Not Discretionary
Support workers enter your home and learn about your health, medications, finances, and relationships. The ethical obligations around that information are clear. Workers routinely underestimate them.
Information moves in cars and waiting rooms, in casual exchanges during handover. Shared without consent in contexts the participant did not choose, each instance is a breach — and the pattern across a working relationship represents a significant, under-reported ethical problem in the sector.
Providers who do not train explicitly for this are not taking their duty of care seriously. The Commission’s framework addresses the most serious breaches. Below that threshold, the everyday end goes largely unmonitored.
A Diagnosis Is a Starting Point
Workers who arrive having already decided how a participant communicates — based on a diagnostic label rather than a conversation — are making a category error with professional consequences.
Autism produces significant variation across individuals, as do acquired brain injury, cerebral palsy, and many mental health conditions. Experience with one person transfers little to the next. The participant is the authority on their own communication and needs. Workers who approach that through the filter of what they already think they know require the participant to work harder to be accurately seen.
Being Present Is the Job
A worker on their phone during support hours has decided where their attention belongs. That decision reflects on the worker and the provider, and on a regulatory environment that permits it without consequence.
Participant time is funded. Divided attention during that time is a failure of basic professional conduct.
Punctuality Has Clinical Stakes
For participants with fatigue conditions, medication schedules, or appointment windows that cannot flex, a late worker is sometimes no worker at all. The window closes, an appointment is missed, and the energy available at nine o’clock is gone by ten.
Workers who treat punctuality as a matter of general courtesy have not been told what the costs of late arrival are in this context. Providers should tell them, in writing, before they begin.
Handover Exists for a Reason
When workers do not read handover notes, participants repeat themselves. Questions get asked that the notes had already answered. Avoidable errors get made. The first portion of support time becomes unpaid orientation, delivered by the person the support was supposed to serve.
Reading the handover is the floor — it signals that a worker understands preparation begins before they arrive.
The Re-Hiring Process
When a support worker leaves, the participant does not simply wait for a replacement. A position description must be written, applications reviewed, interviews conducted, and a hiring decision made with incomplete information about a person who will have access to their home, their medical records, and significant portions of their daily life.
After that comes orientation, and the contextual knowledge that made the previous support functional has to be rebuilt from the beginning.
None of this is funded. The NDIS has no category for the labour of maintaining access to support, and for participants with high support needs or complex conditions, that labour is substantial.
What Competent Support Looks Like
Workers who are good at this job arrive having read the available documentation, ask before they act, and give more weight to what the participant tells them about their own needs than to any plan or file. When something changes during a shift, the response is immediate and adaptive.
Their presence does not generate additional work for the participant — that is the measure. Support that requires the participant to manage, educate, or compensate for a worker’s preparation gaps has redistributed the load rather than reduced it.
What Needs to Change
Mandatory registration for all NDIS workers, regardless of how a participant’s plan is managed, would create a baseline of accountability. Genuine consequences for ethical breaches — including low-level, chronic ones — would change the conditions under which workers operate.
Revised training requirements are long overdue: supervised hours in complex support settings, explicit coverage of invisible conditions, service animal protocols, confidentiality obligations, and fluctuating capacity. These are the preparations the role demands.
Wages need to rise. Turnover in this sector is directly linked to pay, and the continuity of support is a safety condition for many participants — the relationship carries clinical knowledge that cannot be quickly or cheaply reconstructed.
Participants also need a complaints mechanism they can use without fear of losing their support. Accountability cannot depend on participants absorbing the risk of speaking up.
The Principle and the Practice
Participant choice and control sit at the centre of the NDIS. On paper, participants are experts in their own lives and directors of their own support.
That principle requires a workforce framework capable of supporting it. At present, workers enter participants’ lives with significant authority over their access, safety, and daily functioning, operating under training requirements and accountability mechanisms that do not match the weight of what they are being asked to do.
Positioned at the centre of a scheme designed around their needs, the participant often ends up holding the system together when it fails to hold itself together.
That is worth saying clearly, and worth changing.
Share this with someone who trains support workers, manages a disability provider, or influences workforce policy. The problem is documented. The changes required are known. What is missing is the will to treat this workforce and the people it serves with the seriousness they both deserve. #NDIS #DisabilityRights #DisabilitySupport #SupportWorkers #DisabledPeople #DisabilityAdvocacy #Accessibility #AusPol #Australia
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Anyone Can Be Your NDIS Support Worker. Who Is Keeping You Safe?
Reflections from several years on the scheme.
I have been on the NDIS for several years. A recent re-hiring process clarified something I had long suspected. The scheme has a workforce problem, and participants are the ones bearing the brunt.
There Is No Mandatory Registration Requirement
Under current Australian law, participants who self-manage or plan-manage their NDIS funding can hire any person as a support worker. Independent support Workers require no registration or minimum training standards.
The worker who enters your home, learns your medical history, handles your medications, and has significant authority over your daily life may have no formal preparation for any of it.
The NDIS Quality and Safeguards Commission exists and handles serious complaints, including abuse, neglect, and criminal conduct. Boundary violations, confidentiality breaches, and chronic unpreparedness that fall below that threshold leave participants largely without recourse. Skilled and ethical workers bring those qualities from their own formation and prior training. When those qualities are absent, the participant discovers this after the fact, and any remedy is slow, uncertain, and theirs alone to pursue.
That is the baseline. Everything that follows is built on it.
The Dog
My service dog performs specific medical functions. His effectiveness depends on remaining focused and oriented to me.
Some workers reach for him the moment they walk through the door. They do not ask.
Touching a service animal without permission is a safety violation and, in some contexts, carries legal weight under Australian disability discrimination law. A worker entering the home of a participant with a service animal has a professional obligation to understand what that animal does and what it requires. That preparation belongs to the provider. Its absence transfers the risk to the participant.
This is a professional standard.
What the Certificate III Does Not Cover
The Certificate III in Individual Support is the standard qualification in this sector and takes between six and twelve months. For many workers, it is completed online with minimal supervised practice hours, and it does not prepare them for the clinical and ethical complexity of supporting people with invisible or fluctuating conditions.
A worker with their cert may have no framework for how fatigue functions in ME/CFS or autistic burnout. Why pushing through is sometimes dangerous, why capacity varies day to day in ways that cannot be read from a plan approved six months ago, and why the participant’s account of their own condition is the primary source of accurate information.
Workers who arrive without that preparation fill the gap with assumptions. Correcting those assumptions, educating the person sent to support them, translating their own experience into terms the worker finds legible — this falls to the participant. That work is skilled and exhausting, and no NDIS plan funds it.
A Plan Is Not a Person
An NDIS plan records approved supports, written at a point in time by a planner who may have spent an hour with the participant. What it cannot capture is what a Tuesday looks like after a bad night, or how that changes what Wednesday can hold.
Workers who treat the plan as a complete picture end up supporting the document. When the participant’s actual day diverges from what the plan implies, some workers become confused, inflexible, or subtly sceptical. The participant then carries that response throughout the day.
Confidentiality Is Not Discretionary
Support workers enter your home and learn about your health, medications, finances, and relationships. The ethical obligations around that information are clear. Workers routinely underestimate them.
Information moves in cars and waiting rooms, in casual exchanges during handover. Shared without consent in contexts the participant did not choose, each instance is a breach — and the pattern across a working relationship represents a significant, under-reported ethical problem in the sector.
Providers who do not train explicitly for this are not taking their duty of care seriously. The Commission’s framework addresses the most serious breaches. Below that threshold, the everyday end goes largely unmonitored.
A Diagnosis Is a Starting Point
Workers who arrive having already decided how a participant communicates — based on a diagnostic label rather than a conversation — are making a category error with professional consequences.
Autism produces significant variation across individuals, as do acquired brain injury, cerebral palsy, and many mental health conditions. Experience with one person transfers little to the next. The participant is the authority on their own communication and needs. Workers who approach that through the filter of what they already think they know require the participant to work harder to be accurately seen.
Being Present Is the Job
A worker on their phone during support hours has decided where their attention belongs. That decision reflects on the worker and the provider, and on a regulatory environment that permits it without consequence.
Participant time is funded. Divided attention during that time is a failure of basic professional conduct.
Punctuality Has Clinical Stakes
For participants with fatigue conditions, medication schedules, or appointment windows that cannot flex, a late worker is sometimes no worker at all. The window closes, an appointment is missed, and the energy available at nine o’clock is gone by ten.
Workers who treat punctuality as a matter of general courtesy have not been told what the costs of late arrival are in this context. Providers should tell them, in writing, before they begin.
Handover Exists for a Reason
When workers do not read handover notes, participants repeat themselves. Questions get asked that the notes had already answered. Avoidable errors get made. The first portion of support time becomes unpaid orientation, delivered by the person the support was supposed to serve.
Reading the handover is the floor — it signals that a worker understands preparation begins before they arrive.
The Re-Hiring Process
When a support worker leaves, the participant does not simply wait for a replacement. A position description must be written, applications reviewed, interviews conducted, and a hiring decision made with incomplete information about a person who will have access to their home, their medical records, and significant portions of their daily life.
After that comes orientation, and the contextual knowledge that made the previous support functional has to be rebuilt from the beginning.
None of this is funded. The NDIS has no category for the labour of maintaining access to support, and for participants with high support needs or complex conditions, that labour is substantial.
What Competent Support Looks Like
Workers who are good at this job arrive having read the available documentation, ask before they act, and give more weight to what the participant tells them about their own needs than to any plan or file. When something changes during a shift, the response is immediate and adaptive.
Their presence does not generate additional work for the participant — that is the measure. Support that requires the participant to manage, educate, or compensate for a worker’s preparation gaps has redistributed the load rather than reduced it.
What Needs to Change
Mandatory registration for all NDIS workers, regardless of how a participant’s plan is managed, would create a baseline of accountability. Genuine consequences for ethical breaches — including low-level, chronic ones — would change the conditions under which workers operate.
Revised training requirements are long overdue: supervised hours in complex support settings, explicit coverage of invisible conditions, service animal protocols, confidentiality obligations, and fluctuating capacity. These are the preparations the role demands.
Wages need to rise. Turnover in this sector is directly linked to pay, and the continuity of support is a safety condition for many participants — the relationship carries clinical knowledge that cannot be quickly or cheaply reconstructed.
Participants also need a complaints mechanism they can use without fear of losing their support. Accountability cannot depend on participants absorbing the risk of speaking up.
The Principle and the Practice
Participant choice and control sit at the centre of the NDIS. On paper, participants are experts in their own lives and directors of their own support.
That principle requires a workforce framework capable of supporting it. At present, workers enter participants’ lives with significant authority over their access, safety, and daily functioning, operating under training requirements and accountability mechanisms that do not match the weight of what they are being asked to do.
Positioned at the centre of a scheme designed around their needs, the participant often ends up holding the system together when it fails to hold itself together.
That is worth saying clearly, and worth changing.
Share this with someone who trains support workers, manages a disability provider, or influences workforce policy. The problem is documented. The changes required are known. What is missing is the will to treat this workforce and the people it serves with the seriousness they both deserve. #NDIS #DisabilityRights #DisabilitySupport #SupportWorkers #DisabledPeople #DisabilityAdvocacy #Accessibility #AusPol #Australia
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Anyone Can Be Your NDIS Support Worker. Who Is Keeping You Safe?
Reflections from several years on the scheme.
I have been on the NDIS for several years. A recent re-hiring process clarified something I had long suspected. The scheme has a workforce problem, and participants are the ones bearing the brunt.
There Is No Mandatory Registration Requirement
Under current Australian law, participants who self-manage or plan-manage their NDIS funding can hire any person as a support worker. Independent support Workers require no registration or minimum training standards.
The worker who enters your home, learns your medical history, handles your medications, and has significant authority over your daily life may have no formal preparation for any of it.
The NDIS Quality and Safeguards Commission exists and handles serious complaints, including abuse, neglect, and criminal conduct. Boundary violations, confidentiality breaches, and chronic unpreparedness that fall below that threshold leave participants largely without recourse. Skilled and ethical workers bring those qualities from their own formation and prior training. When those qualities are absent, the participant discovers this after the fact, and any remedy is slow, uncertain, and theirs alone to pursue.
That is the baseline. Everything that follows is built on it.
The Dog
My service dog performs specific medical functions. His effectiveness depends on remaining focused and oriented to me.
Some workers reach for him the moment they walk through the door. They do not ask.
Touching a service animal without permission is a safety violation and, in some contexts, carries legal weight under Australian disability discrimination law. A worker entering the home of a participant with a service animal has a professional obligation to understand what that animal does and what it requires. That preparation belongs to the provider. Its absence transfers the risk to the participant.
This is a professional standard.
What the Certificate III Does Not Cover
The Certificate III in Individual Support is the standard qualification in this sector and takes between six and twelve months. For many workers, it is completed online with minimal supervised practice hours, and it does not prepare them for the clinical and ethical complexity of supporting people with invisible or fluctuating conditions.
A worker with their cert may have no framework for how fatigue functions in ME/CFS or autistic burnout. Why pushing through is sometimes dangerous, why capacity varies day to day in ways that cannot be read from a plan approved six months ago, and why the participant’s account of their own condition is the primary source of accurate information.
Workers who arrive without that preparation fill the gap with assumptions. Correcting those assumptions, educating the person sent to support them, translating their own experience into terms the worker finds legible — this falls to the participant. That work is skilled and exhausting, and no NDIS plan funds it.
A Plan Is Not a Person
An NDIS plan records approved supports, written at a point in time by a planner who may have spent an hour with the participant. What it cannot capture is what a Tuesday looks like after a bad night, or how that changes what Wednesday can hold.
Workers who treat the plan as a complete picture end up supporting the document. When the participant’s actual day diverges from what the plan implies, some workers become confused, inflexible, or subtly sceptical. The participant then carries that response throughout the day.
Confidentiality Is Not Discretionary
Support workers enter your home and learn about your health, medications, finances, and relationships. The ethical obligations around that information are clear. Workers routinely underestimate them.
Information moves in cars and waiting rooms, in casual exchanges during handover. Shared without consent in contexts the participant did not choose, each instance is a breach — and the pattern across a working relationship represents a significant, under-reported ethical problem in the sector.
Providers who do not train explicitly for this are not taking their duty of care seriously. The Commission’s framework addresses the most serious breaches. Below that threshold, the everyday end goes largely unmonitored.
A Diagnosis Is a Starting Point
Workers who arrive having already decided how a participant communicates — based on a diagnostic label rather than a conversation — are making a category error with professional consequences.
Autism produces significant variation across individuals, as do acquired brain injury, cerebral palsy, and many mental health conditions. Experience with one person transfers little to the next. The participant is the authority on their own communication and needs. Workers who approach that through the filter of what they already think they know require the participant to work harder to be accurately seen.
Being Present Is the Job
A worker on their phone during support hours has decided where their attention belongs. That decision reflects on the worker and the provider, and on a regulatory environment that permits it without consequence.
Participant time is funded. Divided attention during that time is a failure of basic professional conduct.
Punctuality Has Clinical Stakes
For participants with fatigue conditions, medication schedules, or appointment windows that cannot flex, a late worker is sometimes no worker at all. The window closes, an appointment is missed, and the energy available at nine o’clock is gone by ten.
Workers who treat punctuality as a matter of general courtesy have not been told what the costs of late arrival are in this context. Providers should tell them, in writing, before they begin.
Handover Exists for a Reason
When workers do not read handover notes, participants repeat themselves. Questions get asked that the notes had already answered. Avoidable errors get made. The first portion of support time becomes unpaid orientation, delivered by the person the support was supposed to serve.
Reading the handover is the floor — it signals that a worker understands preparation begins before they arrive.
The Re-Hiring Process
When a support worker leaves, the participant does not simply wait for a replacement. A position description must be written, applications reviewed, interviews conducted, and a hiring decision made with incomplete information about a person who will have access to their home, their medical records, and significant portions of their daily life.
After that comes orientation, and the contextual knowledge that made the previous support functional has to be rebuilt from the beginning.
None of this is funded. The NDIS has no category for the labour of maintaining access to support, and for participants with high support needs or complex conditions, that labour is substantial.
What Competent Support Looks Like
Workers who are good at this job arrive having read the available documentation, ask before they act, and give more weight to what the participant tells them about their own needs than to any plan or file. When something changes during a shift, the response is immediate and adaptive.
Their presence does not generate additional work for the participant — that is the measure. Support that requires the participant to manage, educate, or compensate for a worker’s preparation gaps has redistributed the load rather than reduced it.
What Needs to Change
Mandatory registration for all NDIS workers, regardless of how a participant’s plan is managed, would create a baseline of accountability. Genuine consequences for ethical breaches — including low-level, chronic ones — would change the conditions under which workers operate.
Revised training requirements are long overdue: supervised hours in complex support settings, explicit coverage of invisible conditions, service animal protocols, confidentiality obligations, and fluctuating capacity. These are the preparations the role demands.
Wages need to rise. Turnover in this sector is directly linked to pay, and the continuity of support is a safety condition for many participants — the relationship carries clinical knowledge that cannot be quickly or cheaply reconstructed.
Participants also need a complaints mechanism they can use without fear of losing their support. Accountability cannot depend on participants absorbing the risk of speaking up.
The Principle and the Practice
Participant choice and control sit at the centre of the NDIS. On paper, participants are experts in their own lives and directors of their own support.
That principle requires a workforce framework capable of supporting it. At present, workers enter participants’ lives with significant authority over their access, safety, and daily functioning, operating under training requirements and accountability mechanisms that do not match the weight of what they are being asked to do.
Positioned at the centre of a scheme designed around their needs, the participant often ends up holding the system together when it fails to hold itself together.
That is worth saying clearly, and worth changing.
Share this with someone who trains support workers, manages a disability provider, or influences workforce policy. The problem is documented. The changes required are known. What is missing is the will to treat this workforce and the people it serves with the seriousness they both deserve. #NDIS #DisabilityRights #DisabilitySupport #SupportWorkers #DisabledPeople #DisabilityAdvocacy #Accessibility #AusPol #Australia
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Hughes Unleashes Expletive-Laden Tirade Over NDIS Reductions
Australia's NDIS faces major changes. Up to 160,000 people could lose support by 2028. Find out how these budget cuts affect participants.
#NDIS #DisabilitySupport #Australia #BudgetCuts #NDISChanges
https://newsletter.tf/australian-ndis-cuts-160000-lose-support/
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Up to 160,000 Australians might lose NDIS support by 2028. This is a large number of people who rely on the scheme for daily living.
#NDIS #DisabilitySupport #Australia #BudgetCuts #NDISChanges
https://newsletter.tf/australian-ndis-cuts-160000-lose-support/ -
Some Compassion And Support Sure Would Be Nice,
I have so many unseen issues, most don’t realize the true difficulty I endure each day, first I don’t sleep well, for many reasons, from a brain that is constantly in overdrive, to relentless nightmares, to being in constant pain, to not having a decent supportive bed to sleep on, so my days start of painful, tired and overwhelmed before I even get going, Often I go hungry because living in #poverty I simply can not afford #food to eat, I typically only get around 600-800 calories a day when a man my size and age should be getting around 3000 calories a day, as a result despite my appearance I suffer from malnutrition, I have a great deal of difficulty cleaning my tiny cave, from not being able to afford the basics to have cleaning supplies to being physically limited in my ability to do so, I cant hardly bend over, nor can I very easily get up and down off the floor, taking a shower can simply become a serious challenge, and often leaves my exhausted not to mention I cant often afford the basics for personal hygiene, simply washing a dish or standing at the stove at times can be brutal on my back, then there are chores I need to tend to as part of my rent, and those absolutely can be a painful and exhaustive event for me, and those around often don’t even realize and expect more as a result, and if I say I have had enough today, I am questioned, because they assume I did what I did with ease, but they have no idea of the pain and struggle I had to endure to deal with to accomplish the tasks at hand, reading has become trouble some, as world become very blurry and melt together, writing is becoming increasingly difficult, as finding the words is getting harder and harder, being creative used to help but I have been in so much pain, and under so much stress that I often cant even muster up the energy to attempt to be creative, not to mention my camera is failing, my laptop is struggling, and again no money to obtain what I actually need, I have no #healthcare because the laws people pass have really messed that up, and after years fighting to get it resolved I have given up, so I fight through each day to just to suffer the next, I reach out constantly for financial support yet receive nearly nothing compared to what I actually need, this #disable man exists in #poverty, constant pain and my #anxiety exacerbates my #ptsd, my #bipolar cycles, and several other issues, my blood pressure has been all over the place and frankly in a rather obscenely high range for to long, my core body temp has been far lower than the average, while I often feel as though I am on fire, things get darker with my sight each day, and yet to bright, I hear and see so much that is not actually there, so very much wrong and no support nor help to be found, it would really truly help if people could and would help me #fundriase the money I need each day to live, and the money I need to set up a life where I can take care of myself and lessen the effects of poverty and disability on an aging body and mind.You can encourage my continued useless #poetry, creativity and expression of self, #commentary, random thoughts, #philosophy and ideas, and by doing so your helping to feed, house and clothe a #disabled man living in #poverty, $5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…
#bipolar, #woctxphotog, #anxiety, #cashapp, #DisabilityAwareness, #DisabilitySupport, #disabled, #food, #FromHungerToHope, #fundraise, #groceries, #health, #HopeRestored, #MentalHealthMatters, #MutualAid, #MutualAidHelp, #Paypal, #poverty, #PovertyRelief, #pasjrwoctx
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Some Compassion And Support Sure Would Be Nice,
I have so many unseen issues, most don’t realize the true difficulty I endure each day, first I don’t sleep well, for many reasons, from a brain that is constantly in overdrive, to relentless nightmares, to being in constant pain, to not having a decent supportive bed to sleep on, so my days start of painful, tired and overwhelmed before I even get going, Often I go hungry because living in #poverty I simply can not afford #food to eat, I typically only get around 600-800 calories a day when a man my size and age should be getting around 3000 calories a day, as a result despite my appearance I suffer from malnutrition, I have a great deal of difficulty cleaning my tiny cave, from not being able to afford the basics to have cleaning supplies to being physically limited in my ability to do so, I cant hardly bend over, nor can I very easily get up and down off the floor, taking a shower can simply become a serious challenge, and often leaves my exhausted not to mention I cant often afford the basics for personal hygiene, simply washing a dish or standing at the stove at times can be brutal on my back, then there are chores I need to tend to as part of my rent, and those absolutely can be a painful and exhaustive event for me, and those around often don’t even realize and expect more as a result, and if I say I have had enough today, I am questioned, because they assume I did what I did with ease, but they have no idea of the pain and struggle I had to endure to deal with to accomplish the tasks at hand, reading has become trouble some, as world become very blurry and melt together, writing is becoming increasingly difficult, as finding the words is getting harder and harder, being creative used to help but I have been in so much pain, and under so much stress that I often cant even muster up the energy to attempt to be creative, not to mention my camera is failing, my laptop is struggling, and again no money to obtain what I actually need, I have no #healthcare because the laws people pass have really messed that up, and after years fighting to get it resolved I have given up, so I fight through each day to just to suffer the next, I reach out constantly for financial support yet receive nearly nothing compared to what I actually need, this #disable man exists in #poverty, constant pain and my #anxiety exacerbates my #ptsd, my #bipolar cycles, and several other issues, my blood pressure has been all over the place and frankly in a rather obscenely high range for to long, my core body temp has been far lower than the average, while I often feel as though I am on fire, things get darker with my sight each day, and yet to bright, I hear and see so much that is not actually there, so very much wrong and no support nor help to be found, it would really truly help if people could and would help me #fundriase the money I need each day to live, and the money I need to set up a life where I can take care of myself and lessen the effects of poverty and disability on an aging body and mind.You can encourage my continued useless #poetry, creativity and expression of self, #commentary, random thoughts, #philosophy and ideas, and by doing so your helping to feed, house and clothe a #disabled man living in #poverty, $5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…
#bipolar, #woctxphotog, #anxiety, #cashapp, #DisabilityAwareness, #DisabilitySupport, #disabled, #food, #FromHungerToHope, #fundraise, #groceries, #health, #HopeRestored, #MentalHealthMatters, #MutualAid, #MutualAidHelp, #Paypal, #poverty, #PovertyRelief, #pasjrwoctx
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Postpartum depression can affect more than emotions—it can impact your ability to work and daily life. Learn how long disability may last, what factors influence recovery, and why support matters for healing. Read more: https://www.gracetallman.ca/blog/how-long-can-you-get-disability-for-postpartum-depression
#PostpartumDepression #MentalHealth #DisabilitySupport #WomensHealth #HealingJourney #Awareness
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It has been a rough kind of day, I had some rent chores to tend to, which exacerbated both my pain and exhaustion, in between taking many breaks and even now I have not been able to get comfortable enough to relax at all, the wonders of doing anything often spins by #bipolar #mania into drive, which in itself is exhausting, a long time ago I realized how I used to have the energy to ride a bicycle hundreds of miles in a week while working 80 hours, and then later how I could manage working 120+ hours a week without crashing, now eventually that all caught up with me, but in the time since I have done my best to keep my body still and my mind as quiet as I could, as any physical activity seems to through me into a mania induced activation, and it has always been hard to keep my mind quiet, but between the two, along with my constant pain sleep often evades me, so doing chores becomes a fine line of balancing extra pain and at what point does my body refuse to shut down and relax, the sad thing is, there is not pre set limit what works one day may not the next and so on, it is a constant battle of will, and far to often I am stuck in a full speed go even though my body can no longer perform, and that causes more pain more exhaustion and really a great deal of aggravation, in anyevent I am having a hard time chilling out and relaxing and my mind is running so fast it is extremely hard to focus on anything at all;
You can encourage my continued useless #poetry, creativity and expression of self, #commentary, random thoughts, #philosophy and ideas, and by doing so your helping to feed, house and clothe a #disabled man living in #poverty, $5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…
#bipolar, #woctxphotog, #anxiety, #cashapp, #DisabilityAwareness, #DisabilitySupport, #disabled, #food, #FromHungerToHope, #fundraise, #groceries, #health, #HopeRestored, #MentalHealthMatters, #MutualAid, #MutualAidHelp, #Paypal, #poverty, #PovertyRelief, #pasjrwoctx
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It has been a rough kind of day, I had some rent chores to tend to, which exacerbated both my pain and exhaustion, in between taking many breaks and even now I have not been able to get comfortable enough to relax at all, the wonders of doing anything often spins by #bipolar #mania into drive, which in itself is exhausting, a long time ago I realized how I used to have the energy to ride a bicycle hundreds of miles in a week while working 80 hours, and then later how I could manage working 120+ hours a week without crashing, now eventually that all caught up with me, but in the time since I have done my best to keep my body still and my mind as quiet as I could, as any physical activity seems to through me into a mania induced activation, and it has always been hard to keep my mind quiet, but between the two, along with my constant pain sleep often evades me, so doing chores becomes a fine line of balancing extra pain and at what point does my body refuse to shut down and relax, the sad thing is, there is not pre set limit what works one day may not the next and so on, it is a constant battle of will, and far to often I am stuck in a full speed go even though my body can no longer perform, and that causes more pain more exhaustion and really a great deal of aggravation, in anyevent I am having a hard time chilling out and relaxing and my mind is running so fast it is extremely hard to focus on anything at all;
You can encourage my continued useless #poetry, creativity and expression of self, #commentary, random thoughts, #philosophy and ideas, and by doing so your helping to feed, house and clothe a #disabled man living in #poverty, $5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…
#bipolar, #woctxphotog, #anxiety, #cashapp, #DisabilityAwareness, #DisabilitySupport, #disabled, #food, #FromHungerToHope, #fundraise, #groceries, #health, #HopeRestored, #MentalHealthMatters, #MutualAid, #MutualAidHelp, #Paypal, #poverty, #PovertyRelief, #pasjrwoctx
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It has been a rough kind of day, I had some rent chores to tend to, which exacerbated both my pain and exhaustion, in between taking many breaks and even now I have not been able to get comfortable enough to relax at all, the wonders of doing anything often spins by #bipolar #mania into drive, which in itself is exhausting, a long time ago I realized how I used to have the energy to ride a bicycle hundreds of miles in a week while working 80 hours, and then later how I could manage working 120+ hours a week without crashing, now eventually that all caught up with me, but in the time since I have done my best to keep my body still and my mind as quiet as I could, as any physical activity seems to through me into a mania induced activation, and it has always been hard to keep my mind quiet, but between the two, along with my constant pain sleep often evades me, so doing chores becomes a fine line of balancing extra pain and at what point does my body refuse to shut down and relax, the sad thing is, there is not pre set limit what works one day may not the next and so on, it is a constant battle of will, and far to often I am stuck in a full speed go even though my body can no longer perform, and that causes more pain more exhaustion and really a great deal of aggravation, in anyevent I am having a hard time chilling out and relaxing and my mind is running so fast it is extremely hard to focus on anything at all;
You can encourage my continued useless #poetry, creativity and expression of self, #commentary, random thoughts, #philosophy and ideas, and by doing so your helping to feed, house and clothe a #disabled man living in #poverty, $5-10-15 It All Helps, via #cashapp at $woctxphotog or via #paypal at paypal.com/donate?campaign_id=…
#bipolar, #woctxphotog, #anxiety, #cashapp, #DisabilityAwareness, #DisabilitySupport, #disabled, #food, #FromHungerToHope, #fundraise, #groceries, #health, #HopeRestored, #MentalHealthMatters, #MutualAid, #MutualAidHelp, #Paypal, #poverty, #PovertyRelief, #pasjrwoctx
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Most days I only have a few spoons left after dealing with chronic pain, PTSD, nightmares, and mobility issues.
If you’re navigating injury/claim stuff too… you’re seen! ❤
My app @3mpwrApp has a “bad day mode” button built exactly for this! Rest first. We’ve got your back.
#3mpwrApp #InjuredWorkers #DisabilitySupport #SpoonTheory #ChronicPain