#livedexperience — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #livedexperience, aggregated by home.social.
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A new hidden cost of accessibility I discovered this morning…
Today was supposed to be a day where I could get out and about through our local transit system. I was supposed to catch the cab out to my partner's work and the public bus home. Until we woke up and saw rivulets of rainwater flowing down our little side-street. A veritable downpour. I use forearm crutches (or a rollator) when I go out to shop, to wander, or to just be not at home. I have extensive issues with walking unaided--more than just normal clumsiness, I have been known to walk into […] -
A new hidden cost of accessibility I discovered this morning…
Today was supposed to be a day where I could get out and about through our local transit system. I was supposed to catch the cab out to my partner's work and the public bus home. Until we woke up and saw rivulets of rainwater flowing down our little side-street. A veritable downpour. I use forearm crutches (or a rollator) when I go out to shop, to wander, or to just be not at home. I have extensive issues with walking unaided--more than just normal clumsiness, I have been known to walk into […] -
A new hidden cost of accessibility I discovered this morning…
Today was supposed to be a day where I could get out and about through our local transit system. I was supposed to catch the cab out to my partner's work and the public bus home. Until we woke up and saw rivulets of rainwater flowing down our little side-street. A veritable downpour. I use forearm crutches (or a rollator) when I go out to shop, to wander, or to just be not at home. I have extensive issues with walking unaided--more than just normal clumsiness, I have been known to walk into […] -
A new hidden cost of accessibility I discovered this morning…
Today was supposed to be a day where I could get out and about through our local transit system. I was supposed to catch the cab out to my partner's work and the public bus home. Until we woke up and saw rivulets of rainwater flowing down our little side-street. A veritable downpour. I use forearm crutches (or a rollator) when I go out to shop, to wander, or to just be not at home. I have extensive issues with walking unaided--more than just normal clumsiness, I have been known to walk into […] -
Lived experience and diaspora documentation preserve the voices, memories, and identities of people shaped by migration, displacement, and cultural transition. By sharing personal stories, communities keep history alive while honoring resilience, identity, and belonging across generations. 🌍✨
https://www.mayabutalid.com/lived-experience-diaspora-documentation/
#DiasporaStories #CulturalIdentity #LivedExperience #MigrationStories #PreservingHistory #HumanConnection
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The Journey of a Glass Child: Embracing Uniqueness
Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/
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The Journey of a Glass Child: Embracing Uniqueness
Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/
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The Journey of a Glass Child: Embracing Uniqueness
Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/
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The Journey of a Glass Child: Embracing Uniqueness
Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/
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The Journey of a Glass Child: Embracing Uniqueness
Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]https://dreamspacestudio.net/the-journey-of-a-glass-child-embracing-uniqueness/
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The opacity of unclear pipelines
The waste of administrative burden
Built by sellers, for sellers: https://massaxis.com
#BuiltByUsers #RealWorldSolutions #SalesBackground #AuthenticProduct #LivedExperience #PracticalDesign #SellerKnowsBest #FieldTested #RealProblems RealSolutions #TrustTheBuilder -
NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2) -
NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2) -
NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2) -
NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2) -
NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2) -
https://www.europesays.com/ie/446250/ Andy Lim and Joyce Lye’s ‘ANJOY’ approach to faith, figures and forward planning in property #AndyLim #ANJOY #Business #clients #Éire #IE #Ireland #LivedExperience #Lye #PersonalFinance #PersonalFinance #PropertyOwnership
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Do you want to help prioritize ME/CFS research studies? Then this survey is for you!
Open Medicine Foundation (OMF) has a new clinical trials program, CTN Lite, and they want your input.
"CTN Lite Patient & Caregiver Survey: Shaping the Priorities of OMF's Clinical Trials Network"
https://docs.google.com/forms/d/e/1FAIpQLSeTmvjcIAM9xWEIvJXuBx_L99wmBHqwYuJ2xOwjQOtGkZl8Zw/viewform
ME/CFS patients (regardless of trigger) & caregivers can take this survey (about 20 minutes long), available until May 15.
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We’re excited to announce our upcoming #Opioid #Archive National Symposium, Tues, May 12 – Thurs, May 14. Check out the lineup of speakers on topics including #HealthJournalism #HealthPolicy #Epidemiology #DataScience #Archives #ArtificialIntelligence #HistMed #ScienceHistory #HarmReduction #LivedExperience https://oida-resources.jhu.edu/oida-national-symposium-2026/
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We’re excited to announce our upcoming #Opioid #Archive National Symposium, Tues, May 12 – Thurs, May 14. Check out the lineup of speakers on topics including #HealthJournalism #HealthPolicy #Epidemiology #DataScience #Archives #ArtificialIntelligence #HistMed #ScienceHistory #HarmReduction #LivedExperience https://oida-resources.jhu.edu/oida-national-symposium-2026/
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MY|THROAT|A|ROAR
LIVE
Die Boxen brüllen die Riffs
Eine lärmige Erstürmung der Herzen
Geballte Vokale umarmen als Stroboskopblitz
Dieser Augenblick ist auf ewig zentriert
LIVE
The speakers roar the riffs
A raucous assault on hearts
Closed vowels embrace like a strobe light
This moment is forever centered
#fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience
Welcome to the show:
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected] -
MY|THROAT|A|ROAR
LIVE
Die Boxen brüllen die Riffs
Eine lärmige Erstürmung der Herzen
Geballte Vokale umarmen als Stroboskopblitz
Dieser Augenblick ist auf ewig zentriert
LIVE
The speakers roar the riffs
A raucous assault on hearts
Closed vowels embrace like a strobe light
This moment is forever centered
#fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience
Welcome to the show:
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected] -
MY|THROAT|A|ROAR
LIVE
Die Boxen brüllen die Riffs
Eine lärmige Erstürmung der Herzen
Geballte Vokale umarmen als Stroboskopblitz
Dieser Augenblick ist auf ewig zentriert
LIVE
The speakers roar the riffs
A raucous assault on hearts
Closed vowels embrace like a strobe light
This moment is forever centered
#fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience
Welcome to the show:
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected] -
MY|THROAT|A|ROAR
LIVE
Die Boxen brüllen die Riffs
Eine lärmige Erstürmung der Herzen
Geballte Vokale umarmen als Stroboskopblitz
Dieser Augenblick ist auf ewig zentriert
LIVE
The speakers roar the riffs
A raucous assault on hearts
Closed vowels embrace like a strobe light
This moment is forever centered
#fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience
Welcome to the show:
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected] -
MY|THROAT|A|ROAR
LIVE
Die Boxen brüllen die Riffs
Eine lärmige Erstürmung der Herzen
Geballte Vokale umarmen als Stroboskopblitz
Dieser Augenblick ist auf ewig zentriert
LIVE
The speakers roar the riffs
A raucous assault on hearts
Closed vowels embrace like a strobe light
This moment is forever centered
#fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience
Welcome to the show:
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected] -
Most spiritual books describe transformation as transcendent. Some tell the harder truth.
Maria Vyasa gave me permission to trust my own messy process.
What book was honest about the hard parts?
Read the full essay
https://medium.com/@clarainsweden/what-books-couldnt-teach-me-about-yoga-3af80e9c0db9
#spirituality #kundalini #mariavyasa
#yogabooks #transformationbooks #embodiedteaching
#spiritualbooks #awakening #livedexperience -
"Hearing from people with lived experience matters."
Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.
Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.
Representation changes outcomes.
#LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y
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"Hearing from people with lived experience matters."
Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.
Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.
Representation changes outcomes.
#LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y
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"Hearing from people with lived experience matters."
Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.
Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.
Representation changes outcomes.
#LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y
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"Hearing from people with lived experience matters."
Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.
Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.
Representation changes outcomes.
#LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y
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"Hearing from people with lived experience matters."
Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.
Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.
Representation changes outcomes.
#LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y
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Drööhn des Tages
PREYRS-The Wounded Healer
Hier spielt man Rock mit elektronischen Wumms. Die elektronischen Sounds sind kein nettes Beiwerk sondern tragen und prägen die Songs ohne den Crunch der Songs zu eliminieren.
Sehr mächtig und das ist das Überwältigende an den Songs, unheimlich differenziert, kommen die Songs durch die Boxen geschossen.
Jeder der Songs hat einen Groove der den Hörer nicht loslässt. Der Schlagzeuger Michel Mormecha [auch der Produzent der Scheibe] hat ganze Arbeit geleistet.
Frontfrau Amy Montgomery prägt jeden Moment mit ihrer starken Stimme.
All Killers, No Fillers.
Live kann das Duo [verstärkt von einen Gitarristen und einem Bassist] den Groove und Atmosphäre professionell umsetzen.
Manche Bands haben einen positiven Vibe.
Preyrs vermitteln dem Publikum eine positive erdverbundene Tiefe. Bei ihren Auftritt in der Café Glocksee am 17.3. in Hannover nahmen die Musiker in ihre positive Haltung hinein.
Wunderbar, ihr Metalheads
PREYRS - The Wounded Healer
Here, they play rock with an electronic punch. The electronic sounds aren't just a nice embellishment; they carry and shape the songs without eliminating their crunch.
Very powerful, and this is what's so overwhelming about the songs—incredibly nuanced—they burst through the speakers.
Each song has a groove that grabs the listener. Drummer Michel Mormecha [who also produced the album] has done a fantastic job.
Frontwoman Amy Montgomery dominates every moment with her powerful voice.
All killers, no fillers.
Live, the duo [augmented by a guitarist and a bassist] can professionally translate the groove and atmosphere.
Some bands have a positive vibe.
Preyrs convey a positive, grounded depth to the audience. At their performance at Café Glocksee on March 17th in Hanover, the musicians embraced this positive attitude.
Wonderful, you metalheads!
https://preyrs.com/
#preyrs #fuckinghappy #metalhead #rockandroll #keeponrocking #metal #classicrock #rock #vinyl #live #livedexperience #drööhndestages #hannover -
MY|THROAT|A|ROAR
The Next Gig [My Wish]
Amplifier feedback roar
And the crowd jumps
Euphoria-tested frenzy
Stacato steeled with melodies
Strobe heartbeat embrace
Centered in our souls
A somewhat crazy text, but that's what I wish you for your next performance.
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
The Next Gig [Mein Wunsch]
Verstärkerrückkopplunggedröhn
Und die Meute springt
Euphoriegetestetobsucht
Stakato gestählt mit Melodien
Stroboskopherzschlagumarmung
Zentriert in unseren Seelen
#fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience -
MY|THROAT|A|ROAR
The Next Gig [My Wish]
Amplifier feedback roar
And the crowd jumps
Euphoria-tested frenzy
Stacato steeled with melodies
Strobe heartbeat embrace
Centered in our souls
A somewhat crazy text, but that's what I wish you for your next performance.
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
The Next Gig [Mein Wunsch]
Verstärkerrückkopplunggedröhn
Und die Meute springt
Euphoriegetestetobsucht
Stakato gestählt mit Melodien
Stroboskopherzschlagumarmung
Zentriert in unseren Seelen
#fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience -
MY|THROAT|A|ROAR
The Next Gig [My Wish]
Amplifier feedback roar
And the crowd jumps
Euphoria-tested frenzy
Stacato steeled with melodies
Strobe heartbeat embrace
Centered in our souls
A somewhat crazy text, but that's what I wish you for your next performance.
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
The Next Gig [Mein Wunsch]
Verstärkerrückkopplunggedröhn
Und die Meute springt
Euphoriegetestetobsucht
Stakato gestählt mit Melodien
Stroboskopherzschlagumarmung
Zentriert in unseren Seelen
#fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience -
MY|THROAT|A|ROAR
The Next Gig [My Wish]
Amplifier feedback roar
And the crowd jumps
Euphoria-tested frenzy
Stacato steeled with melodies
Strobe heartbeat embrace
Centered in our souls
A somewhat crazy text, but that's what I wish you for your next performance.
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
The Next Gig [Mein Wunsch]
Verstärkerrückkopplunggedröhn
Und die Meute springt
Euphoriegetestetobsucht
Stakato gestählt mit Melodien
Stroboskopherzschlagumarmung
Zentriert in unseren Seelen
#fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience -
MY|THROAT|A|ROAR
The Next Gig [My Wish]
Amplifier feedback roar
And the crowd jumps
Euphoria-tested frenzy
Stacato steeled with melodies
Strobe heartbeat embrace
Centered in our souls
A somewhat crazy text, but that's what I wish you for your next performance.
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
@[email protected]
The Next Gig [Mein Wunsch]
Verstärkerrückkopplunggedröhn
Und die Meute springt
Euphoriegetestetobsucht
Stakato gestählt mit Melodien
Stroboskopherzschlagumarmung
Zentriert in unseren Seelen
#fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience -
MY|THROAT|A|ROAR
FULL[R'N'R] oder Liveeinsatz
Verstärktes Brummen ergreift den Raum /
Licht aus. Konzentrierter musikalischer Ausbruch /
Energien rasen und vermehren sich /
1,2,3 Songs dann endlich guter Sound /
Schweiß und Freude - unsere Begleiter
#keeponrocking #fuckinghappy #punk #mythroataroar #poetry #lyrik #poem
#livedexperience #Liveeinsatz #live -
MY|THROAT|A|ROAR
FULL[R'N'R] oder Liveeinsatz
Verstärktes Brummen ergreift den Raum /
Licht aus. Konzentrierter musikalischer Ausbruch /
Energien rasen und vermehren sich /
1,2,3 Songs dann endlich guter Sound /
Schweiß und Freude - unsere Begleiter
#keeponrocking #fuckinghappy #punk #mythroataroar #poetry #lyrik #poem
#livedexperience #Liveeinsatz #live -
MY|THROAT|A|ROAR
FULL[R'N'R] oder Liveeinsatz
Verstärktes Brummen ergreift den Raum /
Licht aus. Konzentrierter musikalischer Ausbruch /
Energien rasen und vermehren sich /
1,2,3 Songs dann endlich guter Sound /
Schweiß und Freude - unsere Begleiter
#keeponrocking #fuckinghappy #punk #mythroataroar #poetry #lyrik #poem
#livedexperience #Liveeinsatz #live -
MY|THROAT|A|ROAR
FULL[R'N'R] oder Liveeinsatz
Verstärktes Brummen ergreift den Raum /
Licht aus. Konzentrierter musikalischer Ausbruch /
Energien rasen und vermehren sich /
1,2,3 Songs dann endlich guter Sound /
Schweiß und Freude - unsere Begleiter
#keeponrocking #fuckinghappy #punk #mythroataroar #poetry #lyrik #poem
#livedexperience #Liveeinsatz #live -
The most important books in my life were never printed on paper.
My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.
Where does your real learning happen?
#yoga #wisdom #livedexperience
#embodiedpractice #breathwork #morningritual
#Gothenburg #nordiclife #spiritualwisdom -
The most important books in my life were never printed on paper.
My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.
Where does your real learning happen?
#yoga #wisdom #livedexperience
#embodiedpractice #breathwork #morningritual
#Gothenburg #nordiclife #spiritualwisdom -
The most important books in my life were never printed on paper.
My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.
Where does your real learning happen?
#yoga #wisdom #livedexperience
#embodiedpractice #breathwork #morningritual
#Gothenburg #nordiclife #spiritualwisdom -
The most important books in my life were never printed on paper.
My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.
Where does your real learning happen?
#yoga #wisdom #livedexperience
#embodiedpractice #breathwork #morningritual
#Gothenburg #nordiclife #spiritualwisdom -
The most important books in my life were never printed on paper.
My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.
Where does your real learning happen?
#yoga #wisdom #livedexperience
#embodiedpractice #breathwork #morningritual
#Gothenburg #nordiclife #spiritualwisdom -
This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?
I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.
Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.
I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.
If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.
True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.
I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.
#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)
-
This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?
I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.
Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.
I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.
If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.
True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.
I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.
#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)
-
This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?
I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.
Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.
I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.
If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.
True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.
I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.
#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)
-
This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?
I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.
Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.
I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.
If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.
True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.
I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.
#AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)