home.social

#livedexperience — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #livedexperience, aggregated by home.social.

  1. The Journey of a Glass Child: Embracing Uniqueness

    Growing up, I was always the "weird" kid who couldn't fit in, even with my own family, a round peg in a square, rigid hole. I preferred creative things like music, art, and writing, often spending time riding my bike or walking. This was quite different from my peers, who were into sports, the military, travel, boating, and horses—activities my family couldn't afford. So I stayed in my own world, where I was happy and content. My extracurriculars weren't the usual after-school sports. […]

    dreamspacestudio.net/the-journ

  2. NDIS research on social inclusion and community access found three things that matter here. First, skilled, individualised support, including support workers who understand a person’s needs and interests, is vital to enable participation. The lack of accessible transport remains a barrier. Negative community attitudes and poor understanding of disability can limit participation even when formal barriers are removed. Those findings describe my life exactly. It is support workers, not a better taxi app or a generic “community group”, that make my participation in life possible. They do not just “assist with transport" but bridge the gap left by the system. The fact that I can rehearse and maintain my health and mental health is directly tied to that support. The reforms focus on efficient funding and on aligning budgets with needs. However, “need” is being defined in a way that strips it of context. The need is not just “to get to an appointment but to arrive without burning so much energy on navigation that the appointment becomes another trauma. The need is not just “to attend rehearsal," but to be able to participate musically and socially, as a full member of an ensemble, in a way that honours the years of training and work that got me there. The NDIS itself acknowledges that community access and inclusion increase independence, confidence, and quality of life. It funds Assistance with Social and Community Participation as a core support, and Increased Social and Community Participation as a capacity-building activity.
    Plans will be longer, and assessments will be standardised. Foundational supports will eventually be available nationwide. I remember the pre-NDIS life. I would once again struggle with the taxis that did not arrive, the appointments I effectively missed while physically presenteawith rehearsals becoming tests of endurance instead of joy. I know exactly what it would mean to lose my Monday, Wednesday, Thursday, and Saturday support. The government says these changes will make the scheme fairer, more consistent, and more sustainable. Maybe some aspects will. Longer plans could mean less constant paperwork, and standardised assessments could fix some inequities. Foundational supports could help children who currently fall through the cracks. But none of that is guaranteed and does not justify ignoring the people whose lives are most directly on the line. When I say I am scared, it is not because I am resistant to change. I know what it cost me to get from that first version of my life. #NDIS #DisabilityRights #DeafBlind #CommunityAccess #LivedExperience #NeurodivergentRights #AutismAustralia #DisabilityAustralia #FoundationalSupports #ThrivingKids #InclusionMatters #AccessForAll (2/2)

  3. Do you want to help prioritize ME/CFS research studies? Then this survey is for you!

    Open Medicine Foundation (OMF) has a new clinical trials program, CTN Lite, and they want your input.

    "CTN Lite Patient & Caregiver Survey: Shaping the Priorities of OMF's Clinical Trials Network"

    docs.google.com/forms/d/e/1FAI

    ME/CFS patients (regardless of trigger) & caregivers can take this survey (about 20 minutes long), available until May 15.

    @mecfs

    #MEcfs #PwME #LivedExperience

  4. MY|THROAT|A|ROAR

    LIVE
    Die Boxen brüllen die Riffs
    Eine lärmige Erstürmung der Herzen
    Geballte Vokale umarmen als Stroboskopblitz
    Dieser Augenblick ist auf ewig zentriert

    LIVE
    The speakers roar the riffs
    A raucous assault on hearts
    Closed vowels embrace like a strobe light
    This moment is forever centered

    #fuckinghappy #supportindependentmusic #mythroataroar #poetry #lyrik #metalhead #live #livedexperience

    Welcome to the show:

    @[email protected]
    @[email protected]
    @[email protected]
    @[email protected]
    @[email protected]

  5. "Hearing from people with lived experience matters."

    Said at the AICD Governance Summit in the context of serious matters like sexual harassment — and it applies equally to disability discrimination.

    Boards without disabled people in the room will handle disability complaints differently. That gap has real consequences.

    Representation changes outcomes.

    #LivedExperience #DisabilityInclusion #Governance #BlindLeadership #A11y

  6. MY|THROAT|A|ROAR

    The Next Gig [My Wish]

    Amplifier feedback roar
    And the crowd jumps
    Euphoria-tested frenzy
    Stacato steeled with melodies
    Strobe heartbeat embrace
    Centered in our souls

    A somewhat crazy text, but that's what I wish you for your next performance.
    @[email protected]
    @[email protected]
    @[email protected]
    @[email protected]
    @[email protected]
    @[email protected]

    The Next Gig [Mein Wunsch]

    Verstärkerrückkopplunggedröhn
    Und die Meute springt
    Euphoriegetestetobsucht
    Stakato gestählt mit Melodien
    Stroboskopherzschlagumarmung
    Zentriert in unseren Seelen


    #fuckinghappy #poetry #lyrik #poem #mythroataroar #supportindependentmusic #livedexperience

  7. The most important books in my life were never printed on paper.

    My grandmother's terrace in Granada. The Göta River at dawn. My mat during savasana.

    Where does your real learning happen?

    #yoga #wisdom #livedexperience
    #embodiedpractice #breathwork #morningritual
    #Gothenburg #nordiclife #spiritualwisdom

  8. This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

    I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

    Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

    I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

    If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

    True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

    I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

    #AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

  9. This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

    I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

    Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

    I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

    If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

    True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

    I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

    #AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

  10. This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

    I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

    Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

    I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

    If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

    True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

    I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

    #AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

  11. This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

    I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

    Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

    I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

    If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

    True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

    I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

    #AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

  12. This account, this corner of the fediverse, has become one of the places I let those questions be noisy in public. What does healing mean when the conditions that harmed you are not gone, only rearranged into more respectable shapes? What actually happens inside a counselling relationship when disability or neurodivergence is present but unnamed, or misnamed, or politely ignored? How do we begin to notice the ways power and unspoken norms travel through even the most well-intentioned helping professions? How do we hold culture as something we are constantly creating and being created by, something we may need to grieve and interrogate and occasionally celebrate, often all at once, sometimes in the space of a single conversation?

    I keep circling back to the interior labour of this work. The slow, repetitive practice of building emotional regulation when your nervous system's default setting is red alert. The awkwardness of learning self-compassion when sharp self-criticism has been your most reliable survival tool. The moments that feel like failure because you find yourself reacting in an old way, when in reality this is precisely how recovery moves, looping back on itself, revisiting old ground with slightly different eyes. The way trauma and joy can sit shoulder to shoulder in the same hour, the same therapy session, the same breath, and how unnerving and holy that can feel.

    Rauch and Ansari suggest that silence can be deliberate and strategic, a form of self-regulation rather than withdrawal, a boundary rather than an absence. I think about this in relation to the freeze response, to the moments in my own history when going quiet was not giving up but holding on. The body stills because there are no safe words yet. Sometimes the silence is the story. And learning to hear it as such, to receive it without rushing to fill or fix it, is one of the things I am still practising, in music and in therapy and in the ordinary, unglamorous dailiness of trying to stay present in a life that sometimes arrives all at once.

    I am not arriving anywhere with a finished theory of how any of this is supposed to work. I am coming, again and again, with fragments and questions and a stubborn intention to tell the truth as I understand it in the moment I am writing. That truth is often partial, often shifting. My understanding of myself, of trauma, of disability, of care, keeps moving, and I want it to. I would rather be inconsistent and alive to new information than seamless and rigidly wrong.

    If you are still reading, you are already participating in something I care about. A space that treats complexity as ordinary rather than excessive. Where being too much is not an accusation but raw material. Where intense feeling and rigorous thought are both welcome at the same table. Where healing is not a linear journey toward a fixed destination but something more like learning to live inside unresolved chords without pretending they have resolved. Where music is both metaphor and method, both a way of speaking about change and a way of practising it in the body.

    True silence does not exist. What we call silence is simply what we have not yet learned to hear. The fullness of life in quieter tones. The heartbeat of thought. The whispered rhythm of resilience. The steady murmur of healing is underway. And when we learn to tune into the music between the notes and into the truth held in breath, we do more than survive. We begin to sing again. This time, in a voice that is entirely our own.

    I am not here to introduce myself so much as to keep turning up alongside you. To keep writing from the middle of things, not only from the rare polished moments that look good in hindsight. To keep noticing the small, ordinary, unglamorous ways humans find their way back to themselves, even inside systems that were never set up with them in mind. If any of these threads brush against something in your own story, then you are part of the imagined audience I write towards. And maybe, in a slow, imperfect, occasionally dissonant way, part of the choir that is still learning how to hear itself.

    #AuDHD #Neurodivergent #Blind #Deafblind #Disabled #DisabilityJustice #MadStudies #Psychology #Counselling #Therapy #Trauma #TraumaRecovery #Neurodiversity #MentalHealth #ChronicStress #Healing #WindowOfTolerance #LivedExperience #CareWork #Culture #Power #Normality #Access #Inclusion #Ableism #Music #ClassicalMusic #ChoralMusic #Choir #Singing #Writing #PersonalEssay #Silence #LongPost #Fediversea (2/2)

  13. Why do people talk about "lived experience"? What are you supposed to take away from that phrase that you wouldn't understand from the single word "experience"? Is there really such a big risk of confusing it with the experience of dead people?

    #Tautology #Jargon #LivedExperience

  14. CW: Personal journey: trauma, medical injustice, and poverty

    I carry many traumas, religious conditioning, family abuse, and the weight of workplace injustice. For years, I feared my own queerness, trapped by a world that told me who to be.

    It took a near fatal illness to break that shell. Facing death did not just change my health, it shifted my soul. It moved me from a world of self-concern to one of deep empathy. I went back to school, unlearned old patterns, and found my voice.

    I have known the cruelty of a "wallet biopsy" and the sting of being judged by doctors who didn’t see my humanity. I have stood in line for expired food and felt the bone deep cold of poverty. I know that poverty is a trauma that kills, I have lived it.

    But today, I am no longer afraid. I will shout in the face of the oppressors. I will continue to speak truth to power.

    #Queer #Survivor #MutualAid #SocialJustice #PovertyAwareness #MedicalJustice #PovertyTrauma #SpeakTruthtoPower #ReligiousTrauma #QueerJoy #MedicalTrauma #PovertyTrauma #SocialJustice #Resilience #ClassWar #EatTheRich #EconomicJustice #LivedExperience #Deconstruction #Exvangelical #PostReligious #PoliticalEvolution #LateBloomerQueer #Pride #LGBT #LGBTQIA #UniversalHealthcare #HealthcareIaHumanRight

  15. Love in The Light
    By Crissy Bliss Addams

    They kiss me like no one’s watching,
    and adore me like everyone is.
    Because
    I am not a secret.
    I am a celebration.

    Their hands know my history,
    but they worship my body now.
    I am chosen in daylight
    Beloved in all seasons
    not just desired in shadows.

    This is a love that lingers in doorways,
    that memorizes my tea,
    that speaks my name with reverence
    with respect and pure tranquility.

    I am the perfect fit
    I am their glorious sky.
    And they look up in awe
    every time.

    I am loved: fully, fiercely, without edit.
    Not in silence.
    Not in hiding.
    But in the light
    where I was always meant to be.

    #QueerJoy #OriginalPoem #LoveStory #LivedExperience #LoveOutLoud

  16. The only people who have ever told me that I'm wrong about race are people who also chose to explicitly identify as white to me.

    I'm not sure what that means, but I'm sure it means something.

    🤔

    #LivedExperience #WhiteFragility #WhitePrivilege #ListenToPoC #AntiRacism #Racism #Musings #Observations

  17. Your #LivedExperience matters. Sharing your story of mental health challenges, suicidal thoughts, or loss can bring hope to others❤️‍🩹 📣Learn how 988lifeline.org/storytelling-for-suicide-prevention-checklist #SuicidePreventionMonth #PeerSupport

  18. Fedi, I have a question:

    If you were going to do a presentation about lived experience of persistent pain to a team of (primarily) health based academics putting together a research grant proposal, what would you include?

    Please boost for reach.

    #Pain #research #LivedExperience #academia #AskFedi #ChronicPain

  19. Conducting the ‘broken orchestra’ of my life means surviving chronic pain, systemic neglect, and endless paperwork, while being told I’m ‘too complex’ for help.

    My new piece on Medium is a call for true inclusion and understanding.

    #DisabilityJustice #Spoonie #Poverty #ActuallyAutistic #NDIS #LivedExperience #NothingAboutUsWithoutUs #auspol #DisabledBySociety

    medium.com/@dwtutoringeducatio

  20. Are policymakers more likely to reply to #email messages that narrate #livedExperience?

    A high-powered series of rapid-cycle randomized control trials (Ns ≅ 6000-11000) found mixed results (positive, negative, and null).

    doi.org/10.1016/j.dadr.2024.10

    #policy #advocacy #SciComm #health #substanceUse #drugPolicy

  21. #MadLiterature
    Available for pre order:

    A Mad Turn
    Edited by Phil Smith

    Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

    autonomous-press.myshopify.com

    Hashtags & Group mentions below
    #LivingMad
    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

    ——

    @MadMovementMastodon @[email protected] @disability @[email protected]
    @disabilityhistory @neurodivergence

  22. #MadLiterature
    Available for pre order:

    A Mad Turn
    Edited by Phil Smith

    Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

    autonomous-press.myshopify.com

    Hashtags & Group mentions below
    #LivingMad
    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

    ——

    @MadMovementMastodon @[email protected] @disability @[email protected]
    @disabilityhistory @neurodivergence

  23. #MadLiterature
    Available for pre order:

    A Mad Turn
    Edited by Phil Smith

    Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

    autonomous-press.myshopify.com

    Hashtags & Group mentions below
    #LivingMad
    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

    ——

    @MadMovementMastodon @[email protected] @disability @[email protected]
    @disabilityhistory @neurodivergence

  24. #MadLiterature
    Available for pre order:

    A Mad Turn
    Edited by Phil Smith

    Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

    autonomous-press.myshopify.com

    Hashtags & Group mentions below
    #LivingMad
    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

    ——

    @MadMovementMastodon @[email protected] @disability @[email protected]
    @disabilityhistory @neurodivergence

  25. #MadLiterature
    Available for pre order:

    A Mad Turn
    Edited by Phil Smith

    Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

    autonomous-press.myshopify.com

    Hashtags & Group mentions below
    #LivingMad
    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

    ——

    @MadMovementMastodon @[email protected] @disability @[email protected]
    @disabilityhistory @neurodivergence

  26. In this episode with David, we wanted to talk with him about the work he has been doing since leaving the prison system. We cover his work at the Freedom Project and the Black Rose Collective.

    David knows first-hand the impacts of mass incarceration, after receiving a life sentence at the age 16. In his words, “being thrown away at 16 years old wasn’t the event. It was an exclamation point” on the consistent messaging he’s been receiving his whole life from systems that failed to see his humanity. He was released after serving 24 years, following legislative reform of juvenile sentencing standards due to a new understanding of youth brain science.

    podcasts.apple.com/us/podcast/

    #Seattle #Blackrosecollective #homelessness #LivedExperience #reintegration #housing

  27. CW: new research UK menstrual injustice, mh

    New #UK research "..patients in psychiatric hospitals are often insufficiently supported with their #MenstrualHealth, which was described as degrading, dehumanising & distressing. This failure to meet patients’ needs could be viewed as amounting to neglect & #MenstrualInjustice,.."

    Link to report, summary and guidelines, plus alternative formats at this page:
    nsun.org.uk/resource/menstrual

    Launch event Weds 12 June 2024 2-3pm UK, Zoom
    Registration Info: nsun.org.uk/news/launch-event-

    Includes a Guidelines for Services: Menstrual health in #PsychiatricInpatient settings
    nsun.org.uk/wp-content/uploads

    #LivedExperience #SurvivorResearch Authored by #HatPorter
    Commisioned by #NSUN National Survivor User Network
    #Menstruation #MentalHealth #mh #BloodyGoodPeriod #WISH #MenstrualProducts

  28. @glnews_mirror

    Let's compare this new way with pre-1800 in-home-extended-multigeneration-family care?

    #AgedInHome
    #AgeInFamiliarSurrounds
    #AgeWithFamily
    #AgingAndEducating family about the process of #Aging and #Dieing using #ExperientialLearning and #LivedExperience
    #Aging and contributing to the #HistoryAndCulture of a #Family
    The #AgedPerson treated as relevant and valued.

    Widespread siloing of the aged in #CommercialAgedCare is a marker of #CulturalFailure.

    #HyperIndividualism

  29. #MadLiterature

    Empire of Normality
    Neurodiversity and Capitalism
    by Robert Chapman

    This is a priority read for me!

    I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

    plutobooks.com/9780745348667/e

    Hashtags & Group mentions below

    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice

    ——

    @MadMovementMastodon
    @[email protected]
    @disability
    @[email protected]
    @disabilityhistory
    @neurodivergence

  30. #MadLiterature

    Empire of Normality
    Neurodiversity and Capitalism
    by Robert Chapman

    This is a priority read for me!

    I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

    plutobooks.com/9780745348667/e

    Hashtags & Group mentions below

    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice

    ——

    @MadMovementMastodon
    @[email protected]
    @disability
    @[email protected]
    @disabilityhistory
    @neurodivergence

  31. #MadLiterature

    Empire of Normality
    Neurodiversity and Capitalism
    by Robert Chapman

    This is a priority read for me!

    I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

    plutobooks.com/9780745348667/e

    Hashtags & Group mentions below

    #Madness #MadMastodon #MadPride #MadThought
    #MadMovement #MadStudies #Mad #Madodon #TransMad

    #Ablesim #DisabilityCommunity #InvisibleDisabilities
    #PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
    #LivedExperience #PsychSurvivor #ChronicPain
    #DisabilityMastodon #Neurodivergent #RadicalMentalHealth
    #CripCamp #DisabilityRights #NeuroDiversity
    #Sanism #Disability #DisabilityStudies
    #Stories #isolation #SystemicInjustice

    ——

    @MadMovementMastodon
    @[email protected]
    @disability
    @[email protected]
    @disabilityhistory
    @neurodivergence