#invisibledisabilities — Public Fediverse posts

2/

"Akin to the ideal victim, the ideal claimant of hidden disability must navigate a system built by (and from the perspective of) those with specific preconceived notions of what it means to be a person with a disability and to present as one."

#MEcfs #invisibleillness #hiddenillness #spoonie @mecfs #hiddendisability #invisibledisabilityawareness #invisibledisability #invisibledisabilities

2025-2-12 Starting imatinib for resistant mast cell symptoms.

https://www.illmarks.com/2025-2-12-starting-imatinib-for-resistant-mast-cell-symptoms/

#art #bodyHorror #bodyMapping #chemo #chronicIllness #chronicIllnessArt #disabilityArt #gleevec #glivec #imatinib #invisibleDisabilities #invisibleIllness #invisibleIllnesses #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastocytosis #meCfs #mecfs #medart #medicalArt #MillionsMissing #nausea #pwLC #pwme #SciArt #scienceArt #tki

On International Day of People with #Disabilities, I thought I'd share this article on #invisibledisabilities.

This individual has ME/CFS & ulcerative colitis
https://meassociation.org.uk/2021/10/invisible-disabilities-week-2021-jessica-logan/

#IDPD #IDPD2024 #IDPD24 #IDPWD #invisibledisability #Hiddendisability
#Hiddendisabilities @chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#ulcerativecolitis
@ibd #ibd

Two waves (1950s & 1970s) of systemic deinstitutionalisation and there are more “beds” than before; they just look different.

#MadLiterature

Busting the Deinstitutionalization Myth: We Actually Have More Beds Than Ever Before
New data upends common beliefs about asylum closures, deinstitutionalization, and rates of psychiatric coercion.

https://www.madinamerica.com/2023/08/busting-deinstitutionalization-myth/?utm_source=substack&utm_medium=email

Hashtags & Group mentions below
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#eugenics #asylum #CarceralAbleism
#AntiBlackSanism #instutionalization

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

Hashtags & Group mentions below
#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

#MadLiterature in progress:
RD Laing, David Cooper, Ervin Goffman, & Thomas Szaz
Interesting. History.
——
Hashtags & Group mentions below

#eugenics #asylum #CarceralAbleism.
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected] @disabilityhistory @neurodivergence

Enclosure and debilitating restriction.
Enmeshing of care & treatment & dehumanization and loss of agency.

#MadLiterature
Institutions Often Treat Disability and Mental Health Not With Care But Violence
by George Yancy
https://truthout.org/articles/institutions-often-treat-disability-and-mental-health-not-with-care-but-violence/

——
Hashtags & Group mentions below

#eugenics #asylum #CarceralAbleism.
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Politics of madness;
racism. institutionalization. story of place. history of schizophrenia.
#MadLiterature
The Protest Psychosis: How Schizophrenia Became a Black Disease
by Jonathan Metzl

——
Hashtags & Group mentions below

#eugenics #history #michigan #asylum
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

What to do with the mad people?
Outta sight outta mind.
History. Treatments. Surgery. Sterilization.
#MadLiterature
The Rise and Fall of the Asylum
PBS series: Mysteries of Mental Illness
About an hour long
Aired: 06/23/21
Expires: 07/22/24
https://www.pbs.org/video/the-rise-and-fall-of-the-asylum-mbvisj/

——
Hashtags & Group mentions below

#DorotheaDix #eugenics #Galton #darwin #MoralTreatment #history
#documentary #asylum
#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Super cool resource & literature. Need more time in a day!!! I just read the interview with Sofia Jeppsson
—
The series is designed to provide a public venue for discussion with disabled philosophers about a range of topics, including their philosophical work on disability; the place of philosophy of disability vis-à-vis the discipline and profession; their experiences of institutional exclusion and personal and structural gaslighting in philosophy, in particular, and in academia, more generally; resistance to ableism, racism, sexism, and other apparatuses of power; accessibility; and anti-oppressive pedagogy.

#MadLiterature
BIOPOLITICAL PHILOSOPHY: Dialogues on Disability

https://biopoliticalphilosophy.com/dialogues-on-disability/

——
Hashtags & Group mentions below

#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

carceral logics.
carceral sanism.
victim-blaming.
coercive policy approaches.

assumes black, poor and unhoused people are disposable—
specifically those in “mental health crisis.”

Article includes links to multiple intersectional grassroots organizations.

#MadLiterature
Psychiatric Incarceration Isn’t Treatment — It’s Violence, Survivors Say

https://truthout.org/articles/psychiatric-incarceration-isnt-treatment-its-violence-survivors-say/

——
Hashtags & Group mentions below

#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Sanism is nested within and alongside neoliberal virtues. Colonization. Ableism. Racism. and and and.
State violence is the central theme
Upholds the normal/abnormal binary
Historical pathologization of marginalized groups

#MadLiterature

Radical Disability Allyship, Mad Activism, and Black Mental Health

https://www.invisibledisabilityproject.org/new-blog/2020/6/29/radical-disability-allyship-mad-activism-and-black-mental-health-xb4cy
——
Hashtags & Group mentions below

#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Mad Studies (or the organization of mad people around literature and learning) needs to be more than just wypipo with wypipo ideas and wypipo histories

Anti-black violence has a long history with sanism

#MadLiterature
https://truthout.org/articles/jordan-neely-is-being-blamed-for-his-own-death-due-to-sanism-and-racism/
——
Hashtags & Group mentions below

#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

“I couldn't really imagine, what it's like to not imagine…” 

PHOTOREALISTIC IMAGINATION - APHANTASIA - HYPERPHANTASIA

Imagine…rather picture.. no, visualize a place in your m.....

What if none of these were an option for your brain?  No going to your happy place, where the flowers are in bloom and the tea is hot?  No being comforted by the golden sunset on the beach, or the vista from atop the mountain in your minds eye.  Yes, “I couldn't really imagine what it's like to not imagine…”

The experience of those that live with Aphantasia, can be accompanied by memory issues and difficulty remembering faces. This is not to say, that these individuals cannot retain information, or remember intricate detail.  When giving descriptions, people with Aphantasian will often cite detailed facts and data, rather than using imagery. Many are likely to be introverted, as well.

Some information on Aphantasia, dates back to the1880s but, there hasn’t been a lot of attention on the subject until recent years. The brain’s cerebral cortex is thought to function differently, causing interference with mental visualization. One view on Aphantasia considers, it may only be a different way of thinking; suggesting the Neurodivergent, rather than the neurological.

With Hyperphantasia, some people experience powerful imagery generation within the mind; or being said to have “Photorealistic Imagination”.

"Typically, individuals with hyper-imagination are able to construct imagery that is beyond detailed and brightly outlined—resulting in some individuals having the capability even to experience a 360-degree vision.."

Paul Deretskiy

The contrast between Aphantasia and Hyperphantasia, is just another fascinating reflection of the human mind.  The links below are definitely a rabbit hole worth exploring. It seems I may know a bit about photorealistic imagery, as well as little more about myself.   Imagining what one with Aphantasia may experience, I’m at a loss...

I imagine it may feel… like “being blind in your mind”.  I couldn’t imagine, “what it’s like not to imagine”.

"Brain" Artwork below by John Hain: Buy him a cup?

https://pixabay.com/images/id-1000062/

Paul Deretskiy’s piece:
https://memoryos.com/article/hyperphantasia-revealing-the-truth-about-photorealistic-imagination

Photorealistic  Imagination:
https://www.magneticmemorymethod.com/hyperphantasia/

Aphantasia:
https://www.stemata.org/blog/what-is-the-loss-of-the-minds-eye-or-aphantasia

UK Aphantasia discussion:
https://www.bbc.com/news/health-34039054

When you are blind in your mind:
https://www.verywellmind.com/aphantasia-overview-4178710

What is Aphantasia:
https://aphantasia.com/what-is-aphantasia/

#PhotorealisticImagination #Aphantasia #Hyperphantasia #aphasia #WernickesArea #BrocasArea #visualization
#DisabilitySolidarity #Imagination #CrossDisabilitySupport #ActuallyAutistic #BrainInjury #VisualImpairment #VisualCortex
#NeurodivergentThinking
#InvisibleDisabilities #equality
#InvisibleDisabilityRights #imagine
#HashtagsNobodyWillEverSearch