#invisibledisabilities — Public Fediverse posts

Ah nuts. Guess who has four paws and forgot her heart meds last night?

Yup, @QueenieDeerhart. Totally her fault!

See, it might be MY handle on #eloton, but it’s totally her picture… right?

#invisibledisabilities #lqts.

#fursuitfriday

The biggest problem for those with invisible disabilities is not to be believed. And because we aren't #believed, we aren't #trusted either.

This applies to all ND people, but also those with physical, but invisible, conditions, such as #MS, etc.

#Autism
#ADHD
#AuDHD
#neurodiversity
#neurodivergence
#invisibledisabilities

Very helpful article (and the whole site) if you're wondering/ thinking you might have me/cfs or long covid!

https://howtogeton.wordpress.com/myalgic-encephalomyelitis-chronic-fatigue-syndrome-symptoms-dianosis/

#mecfs #longCovid #chronicIllness #invisibleDisabilities #Disabilities

I'm so tired of being tired. I've been on antibiotics for a week, and the interplay between them and my IBS has me feeling like I'm thinking and moving through mud. I hope I get some energy soon. #ChronicIllness #InvisibleDisabilities #exhaustion #IBS

Some days are harder than others, and none of them are easy. I try not to mourn who I was, nor hate who I've become. Today was harder, hate was easy, the mourning as sure as sunrise. When the last comes there will be no rest, no glorious meeting. Just an end with no credits and a 5% on the Tomatometer.

#poetry #disability #trauma #braininjury #InvisibleDisabilities

@jordgubben @DopeGhoti

It could be generalised, I think, but the point is specific, not general: people don't BELIEVE me when I tell them I can't do things. It's a plea for BELIEF! 👍 😉

#InvisibleDisabilities

#zebrasofmastodon #ehlersdanlossyndrom #edsawareness #eds #invisibledisabilities

Why do we harp on about #InvisibleDisabilities, when nearly all disabilities, diseases, and similar conditions, are invisible?

#Autism
#ADHD
#AuDHD
#neurodiversity
#disability

2/

"Akin to the ideal victim, the ideal claimant of hidden disability must navigate a system built by (and from the perspective of) those with specific preconceived notions of what it means to be a person with a disability and to present as one."

#MEcfs #invisibleillness #hiddenillness #spoonie @mecfs #hiddendisability #invisibledisabilityawareness #invisibledisability #invisibledisabilities

Click below to listen to 💔our story 🫶 Free on Spotify podcast episode:
https://open.spotify.com/show/5ReKUbmJjZG8fbGSg9byRh?si=ykgIEf7vRZe8lxCgj-Ncyw

#disabilityrights #ptsd #anxiety #trauma #civilrights #diversity #donate #share #like #americandisabilityassociation #ADAAcommadation
#Justice4ToniAndChanele #loveislove #lgbt #invisibledisabilities #spotify #podcast

A prominent and wonderful person on Babka posts pictures of her cat with a physical disability.

I occasionally post pictures of my cat Crispin d' Familiar, who has some kind of neurological impairment/executive dysfunction (like me)

#InvisibleDisabilities

This is a moment of real struggle. Trying to remain calm while my body-mind is running maintenance tasks that should have been run while I was asleep last night. From the lack of access to mental capacity, working, and long-term, memory, it's probably maintaining a bunch of those. The light glasses I made to help me not fucking lose it when it gets bad. They send wakefulness signals, stimulating the optic nerve, and also help boost serotonin production.
#disabilities #invisibledisabilities #narcolepsy #narcolepsysucks

"In just six months, eighteen law enforcement agencies across Colorado have adopted Blue Envelope programs. By the end of the summer, the Denver Police Department will add to the list.

"The programs are meant to improve interactions between officers and people with invisible disabilities that might make communication difficult. The namesake blue envelopes contain information about the person's condition — such as explaining that they have autism, Tourette syndrome or are deaf — and how that might impact their behavior or needs. Participants fill out the envelope ahead of time and present it to officers during traffic stops or other police interactions."

#LawEnforcement #InvisibleDisabilities #Accessibility

https://www.westword.com/news/denver-police-blue-envelope-notes-disabilities-24965098

Flashback to 2008 in the Circus Room, Kitchener, when I was touring with Left Spine down and H-427. This is me with H-427 and my former roommate. You can't tell, but I was dreadfully sick here. I ended up in the emergency room the next day because of asthma attacks caused by constantly being around second-hand smoke on tour. #Flashback #IndustrialMusic #InvisibleDisabilities

Hey, folk who have #invisibledisabilities…. How do you explain to people that you don’t have the same body capabilities/endurance/needs as folk who don’t have the same challenges you do?

I’ve been thinking a lot lately about how to better explain to folk that my body is always operating at reduced capacity because my #donotdie medicine slows my heart rate and thus, while I’m fit and strong, my body tires more easily than it might otherwise do.

I can say “oh, I have #LQTS” but folk don’t really get the implications. I can say “remember that person who died from drinking an energy drink/super caffeinated beverage/too much coffee?” And they get that… but… It doesn’t translate to “I GET FUCKING TIRED EASILY AND SOMETIMES I JUST CAN’T FOR A FEW DAYS BECAUSE THE MEDICINE THE KEEOS ME FROM HAVING A CARDIAC ARREST ALSO GIVES ME SUPER LOW BLOOD PRESSURE AND LOW HEART RATE”

I’ve had some friendships end because people thought I was always bouncing because I didn’t want to hang but the reality was I was just exhausted… and some folk don’t get that I sometimes have to change plans because body…

I can’t be the only one

Thoughts?

I went looking online for contraindications to the new med I presumably have to take for the rest of my life, and found out that cannabis is on that list. I've been using cannabis to deal with chronic pain (no pun intended), and one of the side effects of the new med is widespread muscle pain and upset stomach. So I guess I'm just supposed to rawdog chronic pain now. Oof.

I wonder why I wasn't warned about this.

This is gonna suck.
#ChronicPain #Cannabis #InvisibleDisabilities

#GifsArtidote: like the #narcissist in my life mu$k is suffering with #grandiosity, which is an aspect of #NPD #NarcissisticPersonalityDisorder and #ASPD #AntiSocialPersonalityDisorder which I think he has at the extreme end, knowing a little about his family history
#press #educate #organise #resist #news #ablism #InvisibleDisabilities #denial #analysis #psychology
https://youtu.be/_-SDDO7zFjU?si=mJxpB0GwMyHcj9Xe

#GifsArtidote: like the #narcissist in my life mu$k is suffering with #grandiosity, which is an aspect of #NPD #NarcissisticPersonalityDisorder and #ASPD #AntiSocialPersonalityDisorder which I think he has at the extreme end, knowing a little about his family history
#press #educate #organise #resist #news #ablism #InvisibleDisabilities #denial #analysis #psychology
https://youtu.be/_-SDDO7zFjU?si=mdhmzfzqRPBzG1dF

2025-2-12 Starting imatinib for resistant mast cell symptoms.

https://www.illmarks.com/2025-2-12-starting-imatinib-for-resistant-mast-cell-symptoms/

#art #bodyHorror #bodyMapping #chemo #chronicIllness #chronicIllnessArt #disabilityArt #gleevec #glivec #imatinib #invisibleDisabilities #invisibleIllness #invisibleIllnesses #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastocytosis #meCfs #mecfs #medart #medicalArt #MillionsMissing #nausea #pwLC #pwme #SciArt #scienceArt #tki

Well, figured out what's going on with my neck/shoulder/arm. I've been diagnosed as being in the early stages of frozen shoulder. Apparently, menopausal folks are more prone to it for unknown reasons. Yay?

So I have about a year and a half until this issue goes away, and it will get worse before it gets better. The good news is that when that awful pain happens, I'm not causing myself damage. Apparently, a cortisone shot early on will help prevent some of that pain. So will continuing to exercise regularly, although I will have to avoid exercises which bring on the pain (which is sudden and intense). Massages will also help, because the surrounding muscles will lock up from that pain.

Looks like I have a rocky road ahead of me.
#FrozenShoulder #ChronicPain #InvisibleDisabilities #menopause

When I first started back at the gym three years ago, I made fantastic progress. I regained a lot of lost strength and mobility. But since I had COVID in October 2023 I have been in decline. First it was with my endurance. I went from being able to hold a >5 minute plank. A year after COVID, I struggled to hold one for 40 seconds.

Now I'm noticing a lot of old injuries have reappeared for no apparent reason. Though I haven't been doing running and jumping, my Achilles tendonopathy from several years ago has returned. My clicking hip syndrome has shown up on my good hip. The patella femoral syndrome of my youth is threatening a comeback.

And now there's something very wrong with my shoulder/neck/arm. I can no longer put on a sports bra without pain.

I find myself gripping the bannister when going down stairs. I have more frequent headaches.

I don't know if this is all related to long COVID, or if I'm just old.

I don't know what to put down for a fitness goal as I've failed every one of them for the past two years. Its disheartening, to say the least. I mourn the loss of my excellent strength and fitness.

At least I'm able to walk without exhausting myself. I'll take that as a win. There have been a few times in my life when I was too disabled to walk very much at all.
#disability #InvisibleDisabilities #ChronicPain #LongCovid #Covid #aging

Starting the day with laundry.

#DailyLabor #Homemaker #invisibledisabilities

I’m good-crying, legos have been a godsend hobby for me with #LongCovid. I am able to be visually creative and watch a thing come together even on severe brain injury and fatigue days.

https://hdsunflower.com/insights/post/the-lego-group-joins-hidden-disabilities-sunflower

#InvisibleDisabilities #Disability

On International Day of People with #Disabilities, I thought I'd share this article on #invisibledisabilities.

This individual has ME/CFS & ulcerative colitis
https://meassociation.org.uk/2021/10/invisible-disabilities-week-2021-jessica-logan/

#IDPD #IDPD2024 #IDPD24 #IDPWD #invisibledisability #Hiddendisability
#Hiddendisabilities @chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
#ulcerativecolitis
@ibd #ibd

The DWP is currently screwing over disabled people once more.

Because the tories screwed everyone for 14yrs, underfunded and lost countless judicial reviews where they tried to deny people things like Personal Independence Payments (PIP), they currently have a backlog of around 450,000 claims that are due to renewal.

Except they're not even bothering to do them because they're only doing 'new' claims because they've had a backlog of about 220,000 of those too.

When your PIP comes up for renewal, you have to fill out a form... the easiest way to do that is to answer all questions with 'No change since the last assessment' because the chances are that unless there's a major change to your condition or you develop a major new one, saying things are 10% worse isn't going to help you at all... they'll demand extra proof and try to trip you up, so they can deny your claim.

Best ting to do if you get it, 'No change since the last assessment'

Because if they try to deny you now, they'll lose the appeal because it was ok before, so they've moved the goalposts to try and remove people from the benefit.

They are at least continuing to pay the PIP to those people on the backlog... so they're not losing the money.

But what it does mean is that those who have a blue badge to enable free parking, or the use of parking spaces close to where they want to be... which for some people, is the difference between being able to go out, or being stuck at home and isolated.... Those badges are issued for the same amount of time as the PIP award... which has now expired for hundreds of thousands of people.

You can't get a new badge from your local council, without a letter from the DWP saying that you've been awarded the benefit for another 3-4yrs (is the normal time). They've not even issued extension letters to disabled people, so they can get an extension and replacement badge for about the next 12 months.

The backlog is estimated at 10 months for renewal claims.

That's 10 months people will be basically unable to go out for some, as often for others. Because parking in a disabled bay without a valid blue badge, is up to a £1000 fine.

I personally know people suffering with this problem.

#Disability
#DisabilityAwareness
#PIP
#DWP
#InvisibleDisabilities

Have you ever been out of spoons the minute you woke up?

Have you ever looked in the bathroom mirror first thing, only to see that your brain hung a sign across your forehead reading:

"OUT TO LUNCH UNTIL FURTHER NOTICE – KEEP OUT! THIS MEANS YOU!"

You know, the kind of morning where you're going to the bathroom and think to yourself, "If I went ahead and pissed on myself to get it over with, maybe the rest of the world won't piss on me today. Should I try to beat them to the punch?" Then, not actually meaning to, you actually do it.

It's the kind of morning when, before you even eat breakfast, your body feels like you already devoured a heaping bowl of Post-Kellogs' new Crunchy Vertebrae Cereal, with Mini Degenerative Disc Marshmallows, and a painful prize inside the box.

When you try to focus and plan your day, the only thing your brain can make out is the sound of Charlie Brown's parents. " Wha Wa Wa Wha...". Even holding the container of cat food to fill the bowl, all three cats flick their nose in the air with their paw, then turn and walk away. The outside cats moved across the street.

Then, your spouse/partner/loved one/roommate/coworker looks at you, realizing the kind of day you're having, and tells you they are there, if you need them. Even with all the love in your heart, your mouth still says "I know that you're here for me. Now go away please."

I'm calling this phenomenon Wednesday.

#Spoonie #disability #InvisibleDisabilities #fibromyalgia #TBI #ADHD #ChronicPain #humor

Thinking of Lois Curtis today and remembering her resilience and determination. She is deserving of every person's respect. If you don't know who she is, take some time to discover.

“To The Brave And Strong: Lois Curtis” https://outofexileidr.vivaldi.net/2024/11/03/to-the-brave-and-strong-lois-curtis/

💚 If you like my work, please consider buying me a coffee on ko-fi: https://ko-fi.com/outofexile_idr

👉🏼 View my other work or send support via stripe here: https://outofexileidr.vivaldi.net/dona

#disability #ActuallyAutistic #InvisibleDisabilities #ADA #MentalHealth #freedom #community #resilience #LoisCurtis #InvisibleDisabilityRights

@disabilityjustice @disability @disabledvoices @actuallyautistic

When I was a little kid, I fell down a lot, and it wasn't because I was clumsy. I remember going to school and being confused by how all the other kids could run quickly and not fall down. My knees bonked together. My left foot turned inward so that I tripped over it all the time.

I wore orthopedic shoes throughout my early years to correct it. I never kneeled back to sit on my feet because that made matters worse. My doctor caught me doing it once and slapped me, saying I must never sit that way.

By the time I was in grade two or three, I could walk fine. But then I went through a massive growth spurt in grade five which wrecked my knee cartilage. I didn't run because it hurt.

In grade six, my teacher called me lazy because I was so slow at running. In grade seven gym class, I was the slowest. My teacher scolded me for running more slowly than the kid with crutches and a broken leg.

By the time I was in my teens, I ignored the pain and ran everywhere. My knees were black and blue and swollen, but I ran anyway. I just couldn't squat without awful pain, and even the lightest tap on my knee could drop me.

I never got over the knee pain until I started martial arts in my late 20s, and then I had massive foot pain. My right foot has been swollen since 1999. I once spent an entire month not putting weight on that foot to see if it would help. It didn't. My swollen foot is 1.5 sizes larger than the other foot, which makes getting good-fitting shoes difficult.

And in 2012, when I was a professional dancer and a competitive athlete (weightlifting and cross country running), my hip had a massive flareup. Ends up the hip issue is congenital and was what caused my foot issue as a little kid.

I was afraid I'd never be able to walk properly again, let alone run.

I got most of my mobility back, but then I started having issues with my SI joint, also caused by the hip thing. And then I got Achilles tendonopathy.

I have almost always looked fit and strong, but have been managing invisible disabilities all my life. And I haven't even touched on my neurological, GI tract, dental, vision, PTSD, or respiratory issues.
#InvisibleDisabilities #disability #mobility #ChronicPain

Thinking of Lois Curtis today and remembering her resilience and determination. She is deserving of every person’s respect. If you don’t know who she is, take some time to discover.

Without her heroic efforts, there would be no Olmstead Act protecting the right to freedom for people with invisible disabilities (IDs) and mental health challenges. Lois, and her co-plaintif Elaine Wilson, took the battle against societal, and institutionalized ableism all the way to the Supreme Court and won. There is, however, much that still needs to be accomplished on the trail that Lois blazed.

Lois Curtis was born in Georgia, on July 14, 1967, with developmental/cognitive disabilities, and was later diagnosed with schizophrenia. Until the age of 11, she lived with her family and attended public school which she loved, but behavioral issues stemming from her disabilities soon caused her to be institutionalized. Lack of understanding and lack of services in the community for individuals with invisible disabilities and mental health challenges are the main reasons that Lois spent most of her life essentially incarcerated in institutions for a health issue.

By age 11, Lois was repeatedly in and out of Georgia Regional Hospital, and not long after was institutionalized in other similar facilities throughout her adolescence, as well as most of her life. She was regularly sedated through her teen years. Her outlook only continued to darken as her misery grew–she was trapped in a “healthcare” prison due to lack of understanding and accommodation. The use of weaponized pharmaceuticals and other inhumane treatments to “control” individuals unnecessarily has been the fate of many with invisible disabilities throughout history. If you think this has changed entirely, you are sadly mistaken about the medical “industry”. If there’s no individual accommodation for each person’s specific disabilities, the system is fundamentally broken and actively harmful.

Eventually, doctors concurred that Lois no longer needed, nor did she fit the criteria for, involuntary institutional “incarceration”, but there were no home/residential settings or home care supports for her and others with similar disabilities affecting the mind. Because the entire community surrounding people with invisible disabilities did, and continues to, ignore and drop the ball regarding our need for proper services, Lois was basically an inmate in a prison disguised as a hospital for decades of her life. Imagine if you were diagnosed with brain cancer. Would the best treatment be to lock you up and throw away the key? What are those without these types of disabilities doing to change the rules, fight for fair pay, accommodate, and remove the stigmatude1, leaving only love and acceptance in its wake? Real change won’t happen without action from the abled.

During the many years that Lois Curtis was held prisoner because of her health, she developed a close friendship with another “patient” named Elaine Wilson. Together, the two of them stood in defiance against an ivory tower of injustice for the invisibly disabled community. With the help of, surprisingly, a Legal Aid Society attorney, they took their fight all the way to the Supreme Court, but not until Lois continuously, politely badgered attorney Sue Jameison, melting her heart and convincing her to take the case.

Having much personal history dealing with state disability protection agencies, legal aid societies and their funders like Legal Services Corp.gov LSC.gov, polite badgering seems to be the only way for many people with invisible disabilities to get accommodation and legal representation to protect themselves. I’ve had to play this legal wrangling game many times.

Finally, in 1995, Lois and Elaine Wilson’s determination paid off and Atlanta Legal Aid filed a case against Georgia Department of Human Resources Commissioner, Tommy Olmstead. The complaint reasoned that the state was violating their rights pursuant to the Americans with Disabilities Act (ADA section 504), arguing that people with invisible disabilities cannot be forcibly institutionalized. The decision also requires municipalities and state governments to provide community-based services, affording individuals like Lois Curtis the right to live in their own home, and enjoy full “community integration”. The ruling applies to any facility/institution that receives federal funding.

Four years after filing, the decision was handed down in 1999, and Lois Curtis and Elaine Wilson won their freedom, and the right to freedom for every person with developmental and invisible disabilities. The decision is touted as the “Brown Vs. Board of Education” of Invisible Disability Rights. In the years following this historic Supreme Court case, Lois worked with the US Department of Health and Human Services Office of Civil Rights (HHS OCR) on other Olmstead cases. She was also an honored guest at the White House during the Obama administration.

Despite the circumstances throughout her life, Lois always seemed to light every room she entered. Her thankful and simple approach to life, is an example everyone could learn from. Lois in her own words:

“Well, I make grits, eggs, and sausage in the morning and sweep the floor. I go out to eat sometimes. I take art classes. I draw pretty pictures and make money. I go out of town and sell me artwork. I go to church and pray to the Lord. I raise my voice high! In the summer I go to the pool and put my feet in the water. Maybe I’ll learn to swim someday. I been fishing. I seen a pig and a horse on a farm. I buy clothes and shoes. I have birthday parties. They a lot of fun. I’m not afraid of big dogs no more. I feel good about myself. My life a better life.”

– Lois Curtis, faams.org

Unfortunately, like so many with disabilities, Lois lived in poverty all of her life and on November 3, 2022, she died in poverty. I remember seeing the mutual aid requests for her on social media just before her passing. The strength and courage of Lois Curtis will always inspire me to keep fighting for IDR. She was a champion of change for invisible disability rights and forever will be. Thank you, Lois.

1. “My brain is not always helpful, but this flub combining two words was.
   Stigmatude: The attitude personified by lack of understanding and acceptance of people living with invisible disabilities and mental illness, that ableists and many others perpetuate.”
   -OutOfExile_IDR™
   ↩︎

OutOfExile_IDR™ © 2024

All writings, images, graphics, logos, and other content by: OutOfExile_IDR™ unless credited otherwise.

All Rights Reserved. No Scraping.

Image Courtesy of Anthesis

Sources:

Olmsted Rights: https://www.olmsteadrights.org/iamolmstead/history/

Lois Curtis on Life After Olmstead: https://publications.ici.umn.edu/impact/28-1/lois-curtis-on-life-after-olmstead

Families as Allies: https://publications.ici.umn.edu/impact/28-1/lois-curtis-on-life-after-olmstead

Wikipedia: https://en.wikipedia.org/wiki/Lois_Cur

National Women’s History Museum: https://www.womenshistory.org/education-resources/biographies/lois-curtis

https://outofexileidr.vivaldi.net/2024/11/03/to-the-brave-and-strong-lois-curtis/

#Disability #InvisibleDisabilities #MentalHealth #ActuallyAutistic #InvisibleDisabilityRights #LoisCurtis #SupremeCourt

If you're disabled, and you only consider and accommodate people with your particular disability, you might be an ablest... Strike that, you are! I'm not always Pollyanna, sometimes I'm Oscar the grouch. Please don't take the lid off my can.

“With Gentle Affect – Surviving Trauma” https://outofexileidr.vivaldi.net/2024/11/02/with-gentle-affect-surviving-trauma/

#DisabilityCommunity #disability #DisabilitySolidarity #CPTSD #ActuallyAutistic #ADHD #InvisibleDisabilities #InvisibleDisabilityRights
@actuallyautistic @disabilityjustice @disability

“With Gentle Affect – Surviving Trauma”

2024 update to a piece originally published December 15, 2022

Written with gentle affect and love for all:

Words can be a powerful thing. Sometimes we may say something unintentionally that can open the wounds of another. The range of emotion conjured when this occurs, may sometimes be manifest in response. Sometimes this reaction is purely instinctual. In this scenario, I have been both the receiver, and unknowingly, the offender. In the role of the latter, I was in no position to cop an attitude with the person informing me about my offense. I listened, apologized, and corrected myself to accommodate the individual’s disability, emotion, or trauma.

In a world that has become so full of hate, there are many that have survived great trauma. Words that may seem innocent, can be like thrusting the sharpest of double-edged swords, slashing open the heart’s healing scars. Sometimes, if one pokes the hive, the bee is likely to sting out of instinctual self-preservation. It’s important to be mindful of others we encounter. Only they may know the shadows that haunt within them.

Being an advocate is not an easy task–essentially, you’re telling people that what they do may not be right. But without advocacy, where does change lie? Because of the cards I’ve been dealt, I’ve been a magnet for every type of discrimination, ableism, and injustice a disabled person might experience. And because of my recovery and resilience, I feel a responsibility to stand firm for people that may not have the strength, or fear speaking out. If one day, doing so may help to prevent others with invisible disabilities from being subjected to any of the many things I have experienced, how could I remain silent?

With that said, the last time I checked, I’m human, complete with a brain, a heart, and everything else, including emotions. I also don’t harbor bitterness or resentment… It messes up the atmosphere inside. Having multiple physical and invisible disabilities, including two brain injuries and autism, I don’t always pick up on everything and sometimes struggle with social cues. A civil, patient conversation usually removes any misunderstandings.

I originally wrote this in December 2022, in response to a situation in which somebody reopened a scar 0f mine with careless banter, though unintentionally. In that case, rather than communicate in a civilized manner, they instead flew off the handle. In my opinion, this is not the way to tear down the walls that separate. Unfortunately, after this person stirred up traumatic emotions in me, they became angry when I made them aware. It’s my trauma, and I’m not sorry I spoke up about their unnecessary statement, which was best left unsaid.

If something I’ve said was misinterpreted or seemed offensive, I’ve always been open to civilized correction and conversation about it. I am not open to aggressive, assumptive bellowing, badgering, or spewing of unfounded facts or accusations.

Update 2024

The original post from 2022 came about after someone made a comment about a disability limitation that bothered me very much. This person, who also has invisible disabilities, was oblivious to the pain they caused, and decided to block me instead of communicate. C’est la vie. I wrote the piece above, and moved on.

A couple of weeks ago, that same person followed me again, but I didn’t recognize them from two years ago. A couple of my invisible disabilities are accompanied by occasional memory issues. As I often do, I copied their handle and went to my other profile to follow them from there, as well. When I went to their page, they had me blocked, which confounded me. After a few days of consideration, I wrote a polite, but frank DM just to ask why they had me blocked, and clear my confusion. I still had no idea who it was until I received their response.

The person went semi-ballistic, making unfounded assumptions about my character and motivations, adding that they had “had run-ins” with me before. I knew exactly who this person was from two years ago–the one who insulted me about limitations of my disabilities, and behaved in a similar manner back then. Perhaps their agitated state is a symptom of a disability that I am unaware of. Either way, I will accommodate them. I didn’t feel the need to waste my time replying, so I updated this piece for my blog instead.

I would caution every member of the disabled community (and anyone outside of it) with this last bit of advice:

If you’re disabled, and you only consider and accommodate people with your particular disability, you might be an ablest… Strike that, you are! I’m not always Pollyanna, sometimes I’m Oscar the grouch. Please don’t take the lid off my can.

“If one breaks one’s leg, they may have trouble walking. Patience and understanding is key. The same is true for the brain.” – @OutOfExile_IDR

OutOfExile_IDR™ – © 2024

All writings, images, graphics, logos, and other content by: OutOfExile_IDR™ unless credited otherwise.

All Rights Reserved. No Scraping.

Feature Image by finemayer

Source: Living my life

https://outofexileidr.vivaldi.net/2024/11/02/with-gentle-affect-surviving-trauma/

#ActuallyAutistic #ADHD #Conflict #CPTSD #Disability #DisabilityCommunity #DisabilitySolidarity #Equality #Healing #InvisibleDisabilities #InvisibleDisabilityRights #Kindness #MentalHealth #Peace #PTSD #Sensitivity #TBI #Trauma

If you’re disabled, and you only consider and accommodate people with your particular disability, you might be an ableist… Strike that, you are!

I’m not always Pollyanna, sometimes I’m Oscar the grouch. Please don’t take the lid off my can.

#disability #TBI #InvisibleDisabilities #trauma #pain C-#PTSD #peace @disability @actuallyautistic

I met with a new physiotherapist today for an assessment, and she thinks I should get tested for EDS. I mean, I do have a lot of the symptoms, but... ugh. #EDS #ChronicPain #hypermobility #InvisibleDisabilities

A few years ago, I developed Achilles tendonopathy. It manifested as a feeling like I had a bad blister on the back of my heels, only there was no blister. Everything looked normal. But it took me a year of daily physio and not being able to jump or move faster than a slow walk before the pain went away.

It's started to feel like that again recently, and I have no idea what could have caused it.

When I had it before, it was an overtraining injury. I was practicing Thai kickboxing several times a week. It has a LOT of hopping. And our warmups were lots of rope jumping. Double-unders and such. I loved kickboxing until my tendons wouldn't let me do it anymore.

This time, I haven't been running. I haven't been jumping. I am not overtraining at all. No idea what is causing it. I really hope it isn't returning, because the pain was often excruciating.

I'm going to a physiotherapist tomorrow. It's for something else, but hopefully they can check out my Achilles tendons and help me figure out what's going on.

My body sure loves trolling me. And I sure do miss martial arts.
#ChronicPain #tendonopathy #AchillesTendon #Injuries #InvisibleDisabilities #MartialArts
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/achilles-tendonitis

Again with the "Misogynistic Ablest Trans/Homophobic Racist Troll – Not a Love Story" PART 2?
(CW) Content Warning : Screenshots below contain slurs

Guess who's back on a new server, and seemingly targeting me, and other autistic and disabled people. Today, they butted into a conversation like a stalker, to call me the "R" slur. there was also a video posted "@ me", of some preacher, or something. I didn't bother to watch it.

Interestingly enough, A screenshot taken from one of my instances, shows this account is suspended. A screenshot taken from one of my other instance where this occurred, shows this account is still active. After the day and week I've already had, I don't need this shit.

First incident: https://kolektiva.social/@OutOfExile_IDR_Voice/113185194625094599

#Fediblock #Ableism #disability #racism #homophobia #misogyny #transphobia #InvisibleDisabilities #fascism #bigotry #hate
@actuallyautistic @disability @disabilityjustice @Vivaldi @OutOfExileIDR