#invisibledisabilities — Public Fediverse posts

2025-2-12 Starting imatinib for resistant mast cell symptoms.

https://www.illmarks.com/2025-2-12-starting-imatinib-for-resistant-mast-cell-symptoms/

#art #bodyHorror #bodyMapping #chemo #chronicIllness #chronicIllnessArt #disabilityArt #gleevec #glivec #imatinib #invisibleDisabilities #invisibleIllness #invisibleIllnesses #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastocytosis #meCfs #mecfs #medart #medicalArt #MillionsMissing #nausea #pwLC #pwme #SciArt #scienceArt #tki

Thinking of Lois Curtis today and remembering her resilience and determination. She is deserving of every person's respect. If you don't know who she is, take some time to discover.

“To The Brave And Strong: Lois Curtis” https://outofexileidr.vivaldi.net/2024/11/03/to-the-brave-and-strong-lois-curtis/

💚 If you like my work, please consider buying me a coffee on ko-fi: https://ko-fi.com/outofexile_idr

👉🏼 View my other work or send support via stripe here: https://outofexileidr.vivaldi.net/dona

#disability #ActuallyAutistic #InvisibleDisabilities #ADA #MentalHealth #freedom #community #resilience #LoisCurtis #InvisibleDisabilityRights

@disabilityjustice @disability @disabledvoices @actuallyautistic

If you're disabled, and you only consider and accommodate people with your particular disability, you might be an ablest... Strike that, you are! I'm not always Pollyanna, sometimes I'm Oscar the grouch. Please don't take the lid off my can.

“With Gentle Affect – Surviving Trauma” https://outofexileidr.vivaldi.net/2024/11/02/with-gentle-affect-surviving-trauma/

#DisabilityCommunity #disability #DisabilitySolidarity #CPTSD #ActuallyAutistic #ADHD #InvisibleDisabilities #InvisibleDisabilityRights
@actuallyautistic @disabilityjustice @disability

#MadLiterature
Available for pre order:

A Mad Turn
Edited by Phil Smith

Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

https://autonomous-press.myshopify.com/products/a-mad-turn

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

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@disabilityhistory @neurodivergence

Sunday! SUNDAY! SUNDAAAAAY!
Eh, maybe Saturday.

@disabilityjustice @[email protected] @actuallyautistic
@DisabledInSTEM
@[email protected]
@OutOfExile_IDR_Voice

#WritingCommunity #poetry #neurodivergent #blog #InvisibleDisabilities #ActuallyAutistic #disability #InvisibleDisabilityRights #WritingCommunity

https://kolektiva.social/@OutOfExile_IDR_Voice/113014092688174468

People with Disabilities and Extreme Heat
"Deaths of People with Disabilities Surge in Spain, As Does the Heat" – Human Rights Watch

People with physical and invisible disabilities are affected by heat in many different ways. Extreme heat in Spain, has taken the lives of approximately 1200 people since mid-July. The number of which are disabled, is unclear, but during the 2021 "heat dome" in British Columbia, Canada, 91% of those who died were disabled or chronically ill. I know heat certainly affects me. How does it affect you in relation to your disabilities?

The "Human Rights Watch" article linked below, reports on "the serious physical and mental health consequences heat has for people with disabilities". During their study of disabled residents of Andalusia, they found issues including: "gaps in public responses to protect the disabled... A lack of outreach services… and lack of data" about people with disabilities.

The "HRW" also cites a "LACK OF PARTICIPATION OF PEOPLE WITH DISABILITIES IN SHAPING RESPONSES". People's hesitance to share disability related info for statistics is understandable, but advocacy and activism from the community is a key part in bringing change. Stand up, speak out and unite for disability rights and climate change. #DisabilitySolidarity

Human Rights Watch article By Jonas Bull: https://www.hrw.org/news/2024/08/15/deaths-people-disabilities-surge-spain-does-heat

Image courtesy of AstroGraphics_Visuals: https://pixabay.com/users/astrographix_visuals-2249158/

#Disability #ChronicIllness #ClimateChange #InvisibleDisabilities #ExtremeHeat #HeatDome #InvisibleDisabilityRights #HumanRights
@disability @disabilityjustice

I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any.
#MadLiterature

Lisa Wallace on why she left psychiatric care and why she may return one day

https://www.psychiatrymargins.com/p/guest-post-a-psychiatric-survivor?r=c50ah&utm_medium=ios&utm_campaign=post

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

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The Soteria model relies on personal relationships, interactive activities, and minimal use of psychiatric medication within a comfortable “living community” as opposed to a conventional psychiatric setting.

#MadLiterature
How Does the Soteria House Heal?
The alternative treatment model of Soteria helps individuals suffering from schizophrenia without relying on medication or coercion.

https://www.madinamerica.com/2019/09/soteria-house-heal/

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#LivedExperience #PsychSurvivor #ChronicPain
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#MadLiterature
Searching for the “Psychiatric Yeti”: Schizophrenia Is Not Genetic
https://www.madinamerica.com/2024/01/psychiatric-yeti-schizophrenia-genetic/?mc_cid=91cea752ff&mc_eid=1b94bba8b7

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth
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#MadLiterature

Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman

This is a priority read for me!

I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

https://www.plutobooks.com/9780745348667/empire-of-normality/?utm_source=substack&utm_medium=email

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#Madness #MadMastodon #MadPride #MadThought
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#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice

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…the need to offer a positive account of mental illness—one that does not define the essence of mental illness exclusively as the absence, lack, or failure of the power of reasoning…

On the Importance of Conceptual Contrasts Madness, Reason, and Mad Pride
Awais Aftab

https://muse.jhu.edu/pub/1/article/916209 (open source)
#MadLiterature

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

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@disability
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#MadLiterature

Mad Pride and Neurodiversity
Personal Perspective: Parallel movements of lived experience.

https://www.psychologytoday.com/us/blog/beyond-mental-health/202312/mad-pride-and-neurodiversity?fbclid=IwAR0u8DfRIP4cLRQu_t0uA7MqwJfNTE9WQPwUFHzms7AQ7hbS9z4B226gDko_aem_Abdvn_RWjUPuiUr977ry7-2Dm1fT1OTQR4WSHVutATg7Y9n0HiugSwNLeguoMzZY_x0

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#Madness #MadMastodon #MadPride #MadThought
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#LivedExperience #PsychSurvivor #ChronicPain
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#Sanism #Disability #DisabilityStudies
#Stories #isolation

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Two waves (1950s & 1970s) of systemic deinstitutionalisation and there are more “beds” than before; they just look different.

#MadLiterature

Busting the Deinstitutionalization Myth: We Actually Have More Beds Than Ever Before
New data upends common beliefs about asylum closures, deinstitutionalization, and rates of psychiatric coercion.

https://www.madinamerica.com/2023/08/busting-deinstitutionalization-myth/?utm_source=substack&utm_medium=email

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#eugenics #asylum #CarceralAbleism
#AntiBlackSanism #instutionalization

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#Stories #isolation

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Mad Crip doula: offering holistic and emotional spiritual bodymind care, mixed with practical and crisis support (and plant medicine). moving from a liberation-centered and anti-oppressive lens. a transition doula with skills in: abortion, death, grief, Madness, and Disability.

#MadLiterature

https://www.stefaniekaufman.com/madcripdoula

endorsing: non-carceral, peer-led mental health care systems that exist outside of the state, reimagining everything we’ve come to learn about madness, and intervening in systems that oppress, disappear, and kill Disabled and mad folks.

Please Note: I don’t know Them in any capacity and They sure look bad-ass

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#CarceralAbleism
#instutionalization

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#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

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@MadMovementMastodon
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@disability
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@neurodivergence

Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

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#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
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@disability
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@neurodivergence