#disability-art — Public Fediverse posts

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

Symptom: Social Security Disability Rejection

61% of Social Security applicants are denied after their first application. I am now on the second appeal, when 49% of remaining applicants are approved, and have hired a lawyer (disability lawyers are only paid if they win your case).

I set a new goal on ko-fi, in order to get more illmarks pieces into the world. The fundraising would cover framing two Med Art Advocacy pieces, and submission fees + professional scanning for the Mütter Medical Museum, a Senior Living Center, a Health Care Center & 3 other shows.

If you are able to comfortably, please buy me a ko-fi. We’re 1/3 of the way to the goal!

https://www.illmarks.com/symptom-social-security-disability-rejection/

#artmuseum #BetterFutures #bodyHorror #chronicIllness #chronicIllness #chronicPain #crowdfund #disability #disabilityart #disabilityJustice #FederalGovernment #kofi #longcovid #medicalArt #MillionsMissing #pwLC #pwme #redesignSystems #socialSecurity #SocialSecurityReform #SSI #systemsFailing #TransformativeFutures #UniversalBasicIncome #US #usa #ushealthcare

Hi #PortfolioDay !

I'm a health&care advocacy designer and artist.

My current project is
@illmarks . I began utilizing body mapping art to log my symptoms, but then expanded the practice to include emotional, systemic, and interpersonal aspects of disability.

I most recently partnered with the University of Washington’s School of Nursing as part of a study on healthcare equity and community tools. I taught a virtual workshop to fellow disabled community members on using symptom mapping art to validate their bodily experiences, which was immensely rewarding.

I hope to expand how I can apply my creativity and help my communities, and would love to collaborate!

(The thing I most miss about my work from before I got more disabled and can no longer work full time is interpersonal collaboration, so I'm slowly trying to bring more collaborations back into my life.)

Please reach out:
[email protected]

#Portfolio #Healthcare #DisabilityArt #MedicalArt #SciArt #SciComms #PublicHealth

#ArtVsArtist2025: @illmarks edition!

here’s the first one of these where I kept it only to art I did this year

I think it’s intriguing to see the themes change/evolve. This year involved more Chronic Migraine, GI, and Mast Cell Activation Syndrome issues.

#NonbinaryFashion #disabilityArt #DisabledArt #Migraine #MCAS #GI #IBS #ArtVsArtist #2025artVsArtist

2025_5 and 2025_6 don’t be afraid (to) begin again again

I thought after my beyond-words-awful Migraine and GI flare which kept me from drawing, I would only have to begin again once, and then I would be back in the swing of this project. That was far from accurate, but I’m trying to be gentle with myself.

https://www.illmarks.com/2025_5-and-2025_6-dont-be-afraid-to-begin-again-again/

#art #artist #bodyMapping #chronicIllness #disabilityArt #longCovid #longcovid #medicalArt #mentalHealth #MillionsMissing #pwLC

Art exhibit in Tokyo! 31 May – 14 June, as part of the HERALBONY Art Prize. An unpublished illmarks triptych is one of the finalists, and is on display.

Heralbony Art Prize Exhibition:
May 31, 2025 – June 14, 2025
in Tokyo at the Earth Garden on the 1st floor of the Sumitomo Mitsui Banking Corporation East Building
(Address: 1-3-2 Marunouchi, Chiyoda-ku, Tokyo)

https://artprize.heralbony.jp/en

The HERALBONY Art Prize is an international art award established in 2024 to provide a platform for artists with disabilities from around the world, regardless of their professional status, age, or nationality, to showcase their creative power and support the blossoming of their careers.The prize includes a Grand Prize and Jury Awards selected by professionals such as curators and gallery directors, as well as Corporate Awards sponsored by companies that align with HERALBONY’s vision of reshaping the image of “disability and art.” The exhibition of award-winning works will present unique creations expressed through diverse materials, techniques, and styles, delivering the power of expression to a wide audience.

“The symbol mark,formed by merging the “H” from HERALBONY and the “A” from Art, is inspired by the concept of a “spotlight” highlighting the “artists in the lead” within the HERALBONY Art Prize. We anticipate that the unique expressions of each individual will broaden the platform where they radiate, fostering the emergence of new talents.”

https://www.illmarks.com/see-illmarks-in-tokyo/

#art #artExhibit #artPrize #artexhibit #artprize #chiyoda #chronicIllness #disability #disabilityArt #Fashion #japan #japaneseStreetFashion #longCovid #longcovid #MillionsMissing #pwLC #pwme #tokyo

Little goofy art for Autism awareness/acceptance month!

#Autism #Autistic #AutisticRights #AutisticArtist #AutisticArt #ActuallyAutistic #AutismAwareness #AutismAcceptance #Acceptance #AutismPride #Disability #DisabilityRights #DisabledArtist #DisabilityArt #Art #MastoArt #Krita #Furry #FurryArt #FurryArtist

2025-2-12 Starting imatinib for resistant mast cell symptoms.

https://www.illmarks.com/2025-2-12-starting-imatinib-for-resistant-mast-cell-symptoms/

#art #bodyHorror #bodyMapping #chemo #chronicIllness #chronicIllnessArt #disabilityArt #gleevec #glivec #imatinib #invisibleDisabilities #invisibleIllness #invisibleIllnesses #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastocytosis #meCfs #mecfs #medart #medicalArt #MillionsMissing #nausea #pwLC #pwme #SciArt #scienceArt #tki

Symptom: Icicle Stabbing Spondylitis

https://www.illmarks.com/symptom-icicle-stabbing-spondylitis/

#anatomical #anatomy #anatomyArt #bodyHorror #bodyMapping #chronicIllness #chronicPain #chronicillnesss #chronicPain #climateArt #climateChange #disabilityArt #disabilityart #longcovid #medicalArt #MillionsMissing #pwLC #pwme

Symptom: Derealization

https://www.illmarks.com/symptom-derealization-2/

#bodyHorror #bodyMapping #chronicIllness #derealization #disabilityArt #dissociation #longCovid #longcovid #medicalArt #mentalHealth #MillionsMissing #pwLC #pwme

2025-1-22: Fire & Ice

https://www.illmarks.com/025-1-22-fire-ice/

#bodyHorror #chronicIllness #chronicPain #disabilityArt #Dysautonomia #GI #GIpain #ibs #longCovid #longcovid #mcas #mecfs #medart #medicalArt #MillionsMissing #POTS #pwLC #pwme #SciArt #temperaturedysregulatiion

Symptom: Coat Hanger Pain

I only learned about this term very recently, from yumpsuit on the Fediverse. Thank you so much for letting me know about it!

I am almost disproportionately thankful to have a handy description for letting people know what I’m feeling, as well as how to look for ways to try to mitigate the pain. Reading about Coat Hanger Pain resonated deeply, in a way similar to how I often feel when I get a diagnosis: a feeling of relief, connection, community, and hope.

Many people who have not been chronically ill see a diagnosis as a negative. Indeed, many disabled people are never told their diagnoses, and are never told they are disabled. This needs to change, because as Granite and Sunlight explained:

Many people are disabled for a long time before they get a diagnosis which explains what is happening to them, and there is a resistance in the medical profession to giving long-term diagnoses, especially for young people and for women with chronic conditions which lack good treatment options, because of an outdated belief that labels are limiting and they don’t want people to ‘see themselves as disabled’. The fact they are already disabled, already struggling, is why disability justice advocates are trying to help medical professionals change their approach to this. Most people just want answers and context for what is happening to them – not having a name for it doesn’t mean it isn’t affecting their lives. Diagnosis gives people access to context, support and community who can help a person manage the condition better, but these are not built into the medical response to disability. Despite these delays, the person is still disabled all that time, and still needs access to the support and adaptations which can help them live good lives managing their conditions.

For more information about this, I recommend Brianne of No End In Sight’s TEDx Talk, Disease Begins Before Diagnosis.

https://www.illmarks.com/symptom-coat-hanger-pain/

#art #bodyHorror #chronicIllness #chronicPain #coatHangerPain #coathangerpain #disabilityArt #disabilityJustice #Dysautonomia #eds #heds #longCovid #longcovid #medicalArt #MillionsMissing #neis #NEISvoid #POTS #pwLC #pwme #spoonie

2024_10_4

https://www.illmarks.com/2024_10_4-aching-beneath-my-shoulder-blades/

#advocacyArt #bodyHorror #chronicIllness #disabilityArt #disabled #longCovid #medicalArt #MillionsMissing #postViralIllness #pwLC #pwme

Watercolour painting based on theme of "Forest" based on a photograph by Joshua Earle that I found on Unsplash so much thanks to him. done with the All4Art Group organised by @disabled_life_2b_lived thank you Sarah and @all4inclusion all 4 inclusion is a club set up to help disabled people meet and support each other.

#BarbaraHulmeFineArtist #PortraitPainter #WatercolourPortrait #PortraitArtist #DisabilityArt #DisabledArtist #DisabilityInclusion #ArtForSale #MentalHealth #InternationalArtist

2024_9_28 Unsure if sore throat is caused by new digetive supplements, or?

https://www.illmarks.com/2024_9_28-sore-throat/

#art #bodyHorror #chronicIllness #chronicIllnessArt #disabilityArt #inkArt #longCovid #medicalArt #MillionsMissing #mixedMediaArt #pencilArt #pwLC #pwme

2024-9-21 Treatment: Meditation Retreat (Zen Sesshin)

Slipped away to write this note to myself during the retreat amongst the evergreen grove, with a mug of oolong tea.

https://www.illmarks.com/2024-9-21-treatment-meditation-retreat-zen-sesshin/

#chronicIllness #chronicIllnessArt #disability #disabilityArt #healingArt #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme #spoonie #spoonieArt

Treatment: Microdosing

https://www.illmarks.com/treatment-microdosing/

#art #chronicIllness #connection #cwdrugs #disabilityArt #drugs #longCovid #longcovid #medicalArt #microdosing #MillionsMissing #nature #pwLC #pwme

Symptom: Shame
for not living up to my past standards and abilities

https://www.illmarks.com/symptom-shame/

#art #bodyHorror #chronicIllness #disabilityArt #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

2024_9_17 SPLITTING headache

https://www.illmarks.com/2024_9_17-splitting-headache/

#art #bodyHorror #bodyMapping #chronicIllness #disabilityArt #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

2024_9_7 Sore throat, chest tension, low back pain

https://www.illmarks.com/2024_9_7-sore-throat-chest-tension-low-back-pain/

#bodyHorror #bodyMapping #chronicIllness #disabilityArt #disabled #longCovid #medicalArt #MillionsMissing #pwLC #pwme #SciArt

2024_9_5 Hand, Wrist & Low Back Pain

https://www.illmarks.com/2024_9_5-hand-wrist-low-back-pain/

#bodyHorror #bodyMapping #chornicIllness #chronicPain #disabilityArt #ink #longCovid #mecfs #medicalArt #pwLC #pwme #scienceArt