#chronicmigraine — Public Fediverse posts

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2025-11-17 I fell and severely injured myself on the am before 31 migraine medication injections

https://www.illmarks.com/2025-11-17-i-fell-and-severely-injured-myself-on-the-am-before-31-migraine-medication-injections/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicmigraine #heds #longCovid #longcovid #medicalArt #migraine #MillionsMissing #mobilityAid #mobilityaid #neurology #orthopedics #pwLC #pwme

2025_8_18 I booked a hotel to try to identify/isolate variables. As soon as I walked in the hotel room, I felt my head swell.

https://www.illmarks.com/2025_8_18-i-booked-a-hotel-to-try-to-identify-isolate-variables-as-soon-as-i-walked-in-the-hotel-room-i-felt-my-head-swell/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #chronicmigraine #covidIsNotOver #CovidIsntOver #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mcas #meCfs #mecfs #medArt #medart #medblog #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme

2025-8-11 My migraines are triggered by drinking water

https://www.illmarks.com/2025-8-11-my-migraines-are-triggered-by-drinking-water/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #disability #disabled #longCovid #longcovid #mastcell #mcas #medBlog #medart #medicalArt #medicalBlog #migraine #MillionsMissing #neurology #pwLC #pwme #sciBlog #SciArt

2025-7-28 My migraines ignore other negative symptom patterns, and healing patterns.

https://www.illmarks.com/2025-7-28-my-migraines-ignore-other-negative-symptom-patterns-and-healing-patterns/

#art #aura #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #headache #healing #longCovid #longcovid #medart #medicalArt #migraine #MillionsMissing #neuro #neurology #pwLC #pwme #SciArt

Meditation for Migraine Relief: Find Your Calm

Migraine can be incredibly debilitating, often leaving individuals feeling utterly helpless and overwhelmed by discomfort. It’s truly distressing to deal with such pain, which can disrupt daily life, making even the simplest tasks feel insurmountable. The throbbing sensations, accompanied by light sensitivity and nausea, create an atmosphere of distress that is hard to escape.

Meditation for Migraine

Sometimes, incorporating meditation into your routine can be a gentle way to ease some of the pain and stress that come with this condition. By setting aside just a few moments each day, you allow yourself to embark on a journey of self-care and relaxation. Let’s take a moment together to engage in a healing meditation specifically crafted for migraine relief. By allowing ourselves this time to quiet our minds and turn inward, we can tap into the nurturing power of mindfulness and visualization, helping to soothe our symptoms and cultivate a profound sense of calm and healing throughout our bodies.

How Meditation Helps

Meditation can assist in coping with migraines by promoting relaxation and reducing stress, which are often triggers for migraine attacks. It encourages mindfulness, allowing us to focus on our breathing and physical sensations, helping to create a sense of calm. By engaging in regular meditation practices, we may experience decreased anxiety and improved emotional resilience, potentially lessening the frequency and intensity of migraine episodes. Additionally, visualization techniques used in meditation can help in managing pain perception, making it easier to cope during difficult moments.

Finding Solace

Meditation has helped me immensely cope with chronic migraine, as it allows me the space to observe the impermanent nature of my suffering, recognizing that I am not defined by it. In those moments of stillness, I connect with the essence of my being, transcending the pain and embracing the compassionate teachings of Buddhism. I find solace in understanding the interconnectedness of all experiences, realizing that even within suffering, there exists an opportunity for growth and mindfulness. Each breath becomes a reminder of the present moment, where I can cultivate compassion not only for myself but for all beings who endure similar struggles, ultimately transforming my suffering into a path of enlightenment.

Give yourself the gift of relaxation and ease the suffering of migraines with a free guided meditation designed to lessen the symptoms by bringing focus to healing. This meditation not only helps alleviate pain but also allows you to reconnect with your body and mind. By centering your thoughts and cultivating a tranquil environment, you can create a sanctuary where stress melts away. As you listen, you’ll discover the power of mindfulness, which helps shift your perception of pain and encourages a deeper state of calm. Engaging in this practice regularly will not only help manage migraines but also contribute to your overall well-being, providing you with a valuable tool to navigate life’s challenges with greater ease and resilience. Join us on this transformative journey and embark on the path to healing and tranquility.

If you want to learn more about migraines, including their symptoms and common triggers, check out The Peculiar Symptoms & Triggers of Migraines. This article explains the complexities of migraines and how they can differ among individuals. With clear information and extra resources, you’ll find useful tips to help manage this condition. It’s a great read for those seeking to gain a deeper understanding of migraines and discover effective coping strategies.

#awareness #balance #buddhist #chronicMigraine #experience #flow #healing #hemipleagicMigraine #interconnected #meditate #meditation #migraine #migraineRelief #mindful #mindfulness #moments #practice #relax #vestibularMigraine

Nurturing Yourself: The Benefits of Solitude

The Power of Solitude in Nurturing Ourselves

In an overwhelmingly busy world, solitude emerges as a sanctuary for self-care and rejuvenation. Embracing harmony through solitude allows us to step back from the chaos, offering a precious opportunity to reconnect with ourselves and our deepest needs. It is within these quiet moments that we can cultivate a profound sense of peace, enabling us to navigate the ebbs and flows of life, especially when faced with chronic conditions.

Solitude for balance

Solitude becomes a powerful tool, fostering introspection and self-discovery while serving as a nurturing space to replenish our energy and ignite our inner creativity. By recognizing the value of these solitary moments, we lay the foundations for a healthier and more balanced life, inviting a renewed sense of harmony to permeate our daily existence.

My Weekday Routine

My weekday mornings are a gift of solitude as my husband and I have our own unique way of awakening for the day ahead. This mutual respect routine is essential for our physical and mental well-being as we commute together and have worked together for over 20 years. So, my weekday self-care routine is a blend of simplicity and rejuvenation, infusing my day with positivity while effortlessly tackling the challenges of chronic hemiplegic migraines and lupus. Each migraine-free weekday, I rise at 5:15 am, embarking on a morning ritual that lays a gentle foundation for what lies ahead. This routine begins with oral hygiene and a revitalizing shower, followed by hydration with filtered water and a comforting cup of coffee. I embrace the nourishing solitude of the morning through peaceful meditation or prayer, allowing tranquility to wash over me, followed by a slow, mindful movement that keeps my body attuned to its needs. I cherish each moment spent with my beloved dog, who brings joy and warmth to my mornings, before stepping out the door by 6:35 am. This nurturing practice elevates my spirits and plays a critical role in managing my symptoms.

Sacred Space

I have made my routine as simple as possible by creating a tiny area deemed my sacred space, which serves as a daily reminder to engage in various practices that nourish my mind, body, and spirit. This personal sanctuary includes elements like a view of the outdoors, inspiring books, a statue of Buddha, and a few nature offerings such as feathers I have collected or crystals. By dedicating this space to my well-being, I find that it greatly aids my consistency, encouraging me to take moments for mindfulness and self-care daily. Each visit to my sacred space is a beautiful reminder of how blessed my life is, allowing me to reflect on my journey and express gratitude for the abundance around me. I have discovered that this intentional practice not only enhances my mental clarity but also deepens my connection to myself and the world, fostering a greater sense of peace and joy in my everyday life and allowing me to live peacefully with chronic illness.

What I have left behind

My morning routines shifted considerably after my health deteriorated. Managing symptoms such as pain and fatigue meant I could no longer do intense workouts in the morning, which had previously been a crucial part of my day. Instead, I adapted my exercise regimen to incorporate gentler activities like yoga and stretching, allowing me to maintain some physical fitness without overexerting myself. I also left behind unnecessary makeup and hair routines, opting instead for simpler styles that I can easily manage. This transition has saved me time each morning and encouraged me to embrace a more natural look, fostering greater self-acceptance. Furthermore, these changes have instilled a sense of mindfulness as I approach my days focusing on health and well-being rather than societal expectations.

Compassionate Self-Care

Incorporating simple practices into my current schedule allows me to enjoy self-care rituals that are vital for coping with my chronic conditions. Activities like meditation help to calm my mind and reduce the stress that can exacerbate migraines and lupus flare-ups. Whether starting the day with a few moments of mindfulness, taking a leisurely walk during my lunch break, or unwinding in the evening with a good book, these small practices bring balance and peace to my life. By prioritizing self-care, I can better manage the demands of daily life, especially when navigating the complexities of my health, and maintain a positive outlook. This commitment benefits my well-being and enables me to be more present and supportive of those around me.

Weekend Mornings

On the weekends, I immerse myself in the bliss of extra sleep, soaking in the rejuvenating sensations that fuel my creativity. Saturday and Sunday mornings are sacred, dedicated to crafting captivating articles and essays for my website or pouring my heart and soul onto a canvas—creating the perfect backdrop for my ideas to blossom. These creative pursuits serve as a therapeutic escape, a delightful distraction from life’s pains and discomforts, allowing me to vividly express my thoughts and experiences.

Inner Reflection

These moments of solitude are a sanctuary for my mind, allowing it to settle and embrace the beautiful stillness. As thoughts of chronic pain gently fade away, I find myself whole, fully immersed in a state of creative bliss. Solitude emerges as a powerful catalyst for personal growth and self-care. By intentionally carving out time for ourselves, we open the door to reflection, recharging our spirits, and reconnecting with our deepest thoughts and feelings. In a fast-paced world that often values constant connectivity and busyness, cherishing these moments of solitude empowers us to cultivate profound inner harmony and nurture our overall well-being.

Maintaining Consistency

Being consistent with self-care is a rewarding yet challenging journey, especially when navigating chronic conditions. Simplifying my routine helps, and having a dedicated space in my home for my practice is essential. This small area, whether for reflection, creativity, or prayer, becomes a gentle reminder to slow down and reconnect with myself. Embracing this space enriches my self-care experience and fosters a deeper sense of well-being.

Finding solitude paves the way for profound self-care by allowing us to center ourselves, re-energize, and foster a deeper connection with our inner being. This quiet time is essential for managing the fluctuations that come with chronic conditions. The beauty of being alone lies in the potential to restore our balance, rejuvenate our spirits, and ignite the flame of self-love within us. So, let’s cherish these moments of tranquility, as they are the cornerstone of our well-being.

Are you ready to embark on an inspiring journey to nurture your soul? Dive deep into the transformative Sacred Space Course, your ultimate guide to creating a self-care ritual that revitalizes your mind, body, and spirit. Embrace this opportunity to unlock your inner peace and elevate your well-being!

https://dandeliondoorways.com/course/creating-sacred-space/

A sacred space is lovingly regarded as a special area or environment that holds profound spiritual significance. It can take form as a physical location, such as a temple, church, shrine, or a serene natural site, or it might blossom within the comforting confines of a person’s home or mind. These sacred spaces are cherished for their role in embracing religious or spiritual practices, rituals, prayer, meditation, and moments of reflection. Many believe these places are filled with a unique energy or presence that helps individuals connect with the divine, find inner peace, and embark on journeys of personal transformation.

#anxietyRelief #awareness #balance #chronicIllness #chronicIllnessRoutine #chronicMigraine #endometriosos #experience #fibromyalgia #healing #lupus #meditation #mentalHealth #mentalWellbeing #mindful #mindfulness #moments #morningRoutine #practice #sacredSpace #selfCare #solitude #stressRelief

I hate not being able to listen to podcasts.

Not being able to play music really fucking sucks, but not being able to feel included also really fucking sucks.

#Hyperacusis #Migraine #Tinnitus #ChronicPain #ChronicMigraine

This most recent arm of research into testosterone and migraine led me to including High Intensity Interval Training (HIIT) into my daily Yoga/Core routine. I need to build strength and testosterone, with a running theory that my very low T is coupled with the chronic migraine.

A few days recently I've woken with a bad migraine and doing the HIIT exercising *noticeably* reduced the migraine activity. It is momentary, but it definitely happens.

Yet again, this pathway of discovery is turning up all kinds of synchronicity with my condition. This is a paper that did a study on the effect of aerobic versus HIIT training on migraines:

https://pubmed.ncbi.nlm.nih.gov/36229774/

#ChronicMigraine #Migraine #Hyperacusis #Testosterone #Fitness #Mindfulness

Patients in England to be offered daily pill that can halve migraine frequency | National Institute for Health and Care Excellence | The Guardian
https://www.theguardian.com/society/2024/apr/11/patients-in-england-to-be-offered-daily-pill-that-can-halve-migraine-frequency

#Migraine
#PillForMigraines
#MigrainePrevention
#NHSApprovedMedicine
#NICE
#NICEApproved
#Atogepant
#Aquipta
#AbbVie
#CalcitoninGeneRelatedPeptide
#CGRP
#ChronicMigraine
#EpisodicMigraine
#MigraineTrust
#ScottishMedicinesConsortium

question: does anyone know if any neurologists or headache experts would be interested in my notes and observations surrounding my migraines? like in an scientific/academic sense?

one of my scientist friends who i shared them with said i should consider reaching out to somebody since theyre so in-depth and ive been documenting my migraines for years. but idk how to do that or if there would actually be any interest lol

boosts appreciated! 🙏
#askFedi #askFediverse #askMastodon #neurology #MigraineChat #migraine #migraines #chronicMigraine #chronicMigraines #chronicPain #chronicIllness

Going to bed with the start of a pain that is clearly going to be 11× worse upon waking is shit for a few reasons, but today will feel about 60 hours long as a result of the bad sleep that I managed last night. The right side of my head feels like it’s on fire, yet simultaneously submerged deep under water. All because of a change in the weather.

Barometric pressure is a wanker and doesn’t have any friends. Pass it on.

#FuckMigraine #ChronicFatigue #ChronicMigraine #BarometricPressure

@lunar_fang Changes around low pressure weather cause bad things to happen in my head. Sometimes it can feel like someone has pumped several gallons of sea water into my skull, or like my head is submerged 500m into a load of sewage.

#ChronicMigraine #BarometricPressure

Felt weird all day yesterday. Checked the weather for today: no rain. Migraine wiped me out during the evening. Woke up to find the pain had increased × 5. Checked the weather app: no rain scheduled. Staggered around the house super early, fed cat, took drugs (migraine variety), fixed coffee, arrived at desk. It started raining.

Migraine superpower. ⛈️

#ChronicIllness #ChronicMigraine #BarometricPressure #FuckMigraine

I had 114 #migraine attacks in 2022

That feels like a miracle from my perspective. For context I had 192 attacks in 2020. The difference is monthly engineered therapeutic antibody injections.

#monoclonalAntibodies #chronicillness #chronicmigraine

I’ve never been one to celebrate #newyearseve I dunno why 🤷‍♀️ Running pubs kills the celebrations and I guess each year is just the same now as one before and the ones arriving #chronicmigraine #aneurysm