#mast-cell-disease — Public Fediverse posts

Symptom: Mast Cell Itching

https://www.illmarks.com/symptom-mast-cell-itching/

#allergicreactions #Allergies #allergy #art #bodyHorror #bodyMapping #buildingSafety #chonicillness #chronicIllness #claws #eds #ehlersdanlossyndrome #environmentalIllness #environmentalillness #fingers #formaldehyde #heds #hypermobile #hypermobility #hypermobilityspectrumdisorder #immunology #itched #itching #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mastcellactivationsyndrome #mastcelldisease #mastocytosis #mcas #medicalArt #MillionsMissing #nails #POTS #prop65 #publicHealth #publicHealth #pwLC #pwme #scratched #scratching #scratchy #severeallergy #vocs

2025-8-30 Post-Exertional Symptom Exacerbation & MCAS Environmental Illness

https://www.illmarks.com/2025-8-30-post-exertional-symptom-exacerbation-mcas-environmental-illness/

#allergy #art #bodyHorror #bodyMapping #bodymapping #buildingbiology #cfs #chronicIllness #ChronicFatigueSyndrome #chronicIllness #environmentalillness #envrionmentalIllness #healthcare #healthcarereform #healthinsurance #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastcellactivationsyndrome #mastcelldisease #mcas #me #mecfs #medicalArt #medicalactivism #medicalart #medicalblog #medicalreform #MillionsMissing #MyalgicEncephalomyelitis #pem #pese #pwLC #pwme #SciArt #scienceart #usahealthcare #ushealthcare

Symptom: Environmental Mast Cell Activation Syndrome Hypothesis – Mold

https://www.illmarks.com/symptom-enviro-mcas-hypothesis-mold/

#allergy #art #blackmold #bodyHorror #bodyMapping #buildingBiology #buildingbiology #chronicIllness #evironmental #fountainPen #fountainpen #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medicalArt #MillionsMissing #pnw #pwLC #pwme

the big question is after we've managed to cook the whole house to tolerable formaldehyde/VOCs, how long will it take my #MCAS to stabilize?

It'll probably have been a about year of environmental exposure by the time we finish the cookouts, so I'm guessing the answer is on the longer side.

#mastCellDisease #MastCells

Anyone who’s been a medium- or long-term vegetarian with #MCAS tried a DAO supplement?

How did it go digestion wise? Was it helpful?

#mastCellDisease #mastCell

2025_8_19 The symptoms are coming from inside the house.

2026-3-9 edit: A previous version of this page held steps you can take during the acute infection to lower your risk of Long Covid, or lower the severity of how a reinfection will worsen your existing Long Covid.

Information on supporting a FULL recovery from SARS-CoV-2 is now more accessible on its own permalink page here, or from the top bar: Information > Got a Covid Infection?

https://www.illmarks.com/symptoms-are-coming-long-covid-prevention-tips/

#allergy #art #backToSchool #backtoschool #besafe #bodyHorror #bodyMapping #cdc #chronicIllness #covid #covidIsAirborne #covidIsNotOver #covid19 #covid19 #covidcompetent #CovidIsntOver #environmental #health #healthcare #longCovid #longcovid #maskUp #maskup #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medArt #medart #medblog #medicalArt #MillionsMissing #pwme #SaltingTheVibes #SaltingTheVibes #sarsCov2 #sars2 #sciArt #SciArt #WearAMask #WearARespirator

2025_8_18 I booked a hotel to try to identify/isolate variables. As soon as I walked in the hotel room, I felt my head swell.

https://www.illmarks.com/2025_8_18-i-booked-a-hotel-to-try-to-identify-isolate-variables-as-soon-as-i-walked-in-the-hotel-room-i-felt-my-head-swell/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #chronicmigraine #covidIsNotOver #CovidIsntOver #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mcas #meCfs #mecfs #medArt #medart #medblog #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme

2025_8_14 I feel better out of the house, which is incongruous with ME/CFS Long Covid.

https://www.illmarks.com/2025_8_14-i-feel-better-out-of-the-house-which-is-incongruous-with-me-cfs-long-covid/

#art #autoimmune #bodyHorror #bodyMapping #cfs #chronicIllness #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mcas #me #meCfs #mecfs #medArt #medart #medicalArt #medicine #migraine #MillionsMissing #neurology #pwLC #pwme #rheumatology

2025-8-9 Is this MCAS anaphylaxis, anxiety, or anaphylaxis from anxiety?

I almost didn’t want to share this one, because I’m in a bit of a nervous state, and I was worried about the people who think people with Long Covid are psychological malingerers, etc. When I had to leave work, and filed for US Social Security Disability, I kept my Generalized Anxiety Disorder out of my initial application, afraid of getting the dreaded “just anxiety,” dismissal that many complex chronic illness kin are familiar with. (I was later told this was a bad move, and to definitely include all mental health and neurodivergence things, which I did for the ongoing process.)

Even as I’m having less anaphylaxis risk, it’s taking time to recover psychologically. I told my therapist how I felt like I backslid over a decade in mental health work overnight from the first recent anaphylaxis episode. She kindly said that while I might feel as scared and threatened as I often did back then, that the trigger was different. I was not feeling that anxious about an email, I was feeling that way about a literal life and death situation, one which I still don’t fully understand the triggers of.

A decade ago, de-stigmatizing mental healthcare was really important to me too. Now, I’m especially aware of how much these issues intersect, so heck yeah, publishing the medical art about anxiety.

Lastly, I wanted to include few examples of the ways in which these issues intersect. These are absolutely the tip of the iceberg.

• Mast Cell Activation Snydrome (often MCAS for space, in my art) can trigger so, so many pyschological symptoms. Mast Attack has a great overview of the topic, and while I haven’t been able to read the study fully because of the severe brain fog, Prevalence and treatment response of neuropsychiatric disorders in mast cell activation syndrome caught my eye.

• Anaphylaxis, or near anaphylaxis, has many symptoms in common with anxiety, from chest tightness to clammy skin, and “a feeling of impending doom”. While MCAS is not allergies, All Things Allergies has an easy intro to anxiety & anaphylaxis, and here’s a study The impact of anaphylaxis on the quality of life and mental health of adults.

• Ehlers-Danlos Syndrome co-occurs with many mental health issues, and I really appreciate how this article lists suspected mechanisms, misattributions, and related factors.

• Postural Orthostatic Tachycardia Syndrome, or POTS, is a form of autonomic dysfuntction (when things your body normally does automatically stop behaving normally), and is a part of my Long Covid. It involves a high heart rate, and often symptoms like room spinning or lightheadedness, trembling or shaking, shortness of breath, and poor bloodflow. POTS is often misdiagnosed as anxiety, and The Disabled Ginger wrote about it here.

Theories that diseases are caused by mental states and can be cured by will power are always an index of how much is not understood about the physical terrain of a disease.

Moreover, there is a peculiarly modern predilection for psychological explanations of a disease, as of everything else. Psychologizing seems to provide control over the experiences and events (like grave illnesses) over which people have in fact little or no control. Psychological understanding undermines the ‘reality’ of a disease. That reality has to be explained.

Susan Sontag, illness as metaphor (New York: Farrar, Straus and Giroux, 1977), p. 55.

p.s. mental health is physical health and physical health is mental health. you got a literal brain in your body and all of your body is involved in everything that you do. please take care of yourselves and each other. <3

https://www.illmarks.com/2025-8-9-is-this-mcas-anaphylaxis/

#allergy #anaphylaxis #anxiety #art #autoimmune #bodyHorror #bodyMapping #chronicIllness #gad #generalizedAnxiety #immune #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medart #medblog #medicalArt #medwriting #mentalHealth #MillionsMissing #pwLC #pwme #SciArt #sciblog #sciwriting #symptom

2025-2-12 Starting imatinib for resistant mast cell symptoms.

https://www.illmarks.com/2025-2-12-starting-imatinib-for-resistant-mast-cell-symptoms/

#art #bodyHorror #bodyMapping #chemo #chronicIllness #chronicIllnessArt #disabilityArt #gleevec #glivec #imatinib #invisibleDisabilities #invisibleIllness #invisibleIllnesses #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mastocytosis #meCfs #mecfs #medart #medicalArt #MillionsMissing #nausea #pwLC #pwme #SciArt #scienceArt #tki

Hey, here's a fun new development. I have successfully reintroduced (the occasional) Diet Coke into my diet.

Also, Coke Zero now makes me violently ill. So I have a new thing to be super obnoxious about when ordering at restaurants.

#MCAS #MastCellDisease #MastCellActivationSyndrome

Because of my MCAS, when I order a coffee it has to be dairy-free, sugar-free, and decaf. Any of those things will make me sick for 2-3 days. I always repeat it back to them after they've made the coffee, to be sure.

PSA for those with allergies: Most coffee shops get it right, but Starbucks misses one of those requirements at least 50% of the time.

#MCAS #MastCellActivationSyndrome #MastCellDisease #Allergies #DairyFree #SugarFree

@weareintolerant 👋 I have this, too. It sucks, and I'm sorry you're going through this. There is definitely hope, though.

Everyone has different triggers. If you can, do a full MCAS-friendly elimination diet and then reintroduce things one at a time, "safest" foods first. The whole process can take 2-3 months, but knowing your triggers will give you back a huge amount of freedom.

#MCAS #MastCellActivationSyndrome #MastCellDisease
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A question for others with MCAS. I'm very new into a low histamine diet and struggling more than I have with restrictions in the past. I successfully navigated being vegan and gluten free for many years but this is really over the top. I feel like I'm spending so much time in the kitchen preparing every meal individually.

Any tips on how you plan ahead, or convenient quick ready-meals we can eat? (I'm in the UK)

#MCAS #MastCellDisease #MastCellActivationSyndrome #EhlersDanlos #EDS #POTS