Thank all the deity, the maxalt melt aka Rizatriptan worked its magic! Head pain gone and nausea kicked to the kerb, helped along by the hubbys superb pizza for lunch.
#chronic-migraine โ Public Fediverse posts
Live and recent posts from across the Fediverse tagged #chronic-migraine, aggregated by home.social.
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Urgh, migraine plus nausea, so fun ๐คฆ๐ผโโ๏ธ meds onboard but I might have a triptan to properly kill it.
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What do half a thyroid & chronic migraine have in common ๐ they're both epic at making me go hot & cold like it's a roller coaster ๐คฆ๐ผโโ๏ธ๐คฆ๐ผโโ๏ธ we were watching the #F2 feature race 2 & scarf on, hoodie on to scarf off, hoodie off literally every 2 minutes ๐คฆ๐ผโโ๏ธ๐
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Oof, my head was very not happy about lying down, sat up & it's slightly better, time for pain meds. I don't think it warrants an abortive, seems more tension headache than migraine.
My new flat back studs should be here today though ๐๐ will post pics later.
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Stabbage done, not too spicy, thankfully, that's that done for another 30 days.
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Tomorrow will be Ajovy day & I've had another great month of not a lot of migraine ๐ช๐ผ๐ช๐ผ
It's been really great.
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Woken again at 3.30am by head pain, yesterday morning was exactly the same time & head pain, took a Maxalt abortive both times, hoping that's enough coz now I can't have any more Maxalt as the limit is 2 within a 7 day period. Am gonna have some pain meds, it's been a good run this last while though.
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Woohoo ๐๐ช๐ผ๐ช๐ผ๐ช๐ผ๐ฑ
Look at those stats!!Ajovy doing an amazing job this month ๐ช๐ผ
#AjovyWorks #Ajovy #ChronicMigraine #Migraine #MigraineStats #August2026
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A haiku for my chronic migraines
My chronic migraines
Are a huge pain in the ass
Please kindly fuck off -
Well, I threw up both the mug of tea, coca cola & crisps ๐คท๐ผโโ๏ธ but I feel so much better. The weirdness of the human migraine body ๐คท๐ผโโ๏ธ
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Oof, I so enjoy being woken up by my brain going we can't lie down any longer (hit the pain button) you couldn't have just sent a wake up signal ๐ pain meds on boarded, hoping that as I move around abet slowly until the pain goes away, will also have a coca cola & crisps.
It's also Ajovy stab day ๐
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There are aspects of my migraines that feel like odd superpowers. Somehow, my nervous system is very aware of the thunderstorm pressure moving overhead. I am my own live weather map.
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I'm having a hard day. In a lot of pain. So stressed and overwhelmed I can't breathe.
This is helping though.
https://takeosuzuki.bandcamp.com/album/ambient-buddhism-japanese-ambient-album
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Did my Ajovy for the month, dang that was spicy, its a good job this stuff works otherwise I would not be a fan of doing this every month.
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My head is really pissed off with this rain, so much head pain.
Literally mad a barometric pressure changes.
Time for the carbs and caffeine routine.
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Early warning continual yawning, pain meds & a coca cola to speed up absorption & activation.
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Pain has been super high today. It's one of those days where I worry most about my very active dog - no walk today for Finn because I literally can't. So Sorry buddy.
Here's a pic from happier times.
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It was Ajovy day today & oof! It was a spicy one ๐คฃ good job it's an auto injector & it's quick.
Plus it's only once a month.
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Log. Now. In three taps.
During an attack, the app asks for three taps. Timestamp is recorded the moment you start โ not when you finish the form, because during an attack, you might not finish. The form stays there when you feel better. The log is already done.
All data stays on your device.
4migraine.app.robspace.de
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Meh, I was sat outside, but I've come in, head is being an arse & stomach wants to join the shite party, I've told them both to fuck off & thrown some pills at them.
Gonna watch some true crime as brain isn't up for reading words. -
Its soon to be Ajovy time :) this April has been outstandingly good re the head pain.
The arthritis not so much lol
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Its gonna be Ajovy day on Thursday, today one is feeling a little delicate so one is implementing the three Cs protocol, Coca Cola (caffeine), Crisps (carbs) and a Cocodamol, trying to stop this head pain from progressing to a migraine and alleviate the slight nausea as well.
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I did my Ajovy last night, not spicy & didn't hit anything ๐ช๐ป
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2026_2_16 โBotox for Migraineโ Injection Set #2, and 5 Hour Drive to/from Appt
https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/
#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride
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Today wasn't too bad, started with a bit of head pain, but then hubby started playing Recall by Plaid from his Polymer album & my brain went NOPE! had to get hubby to stop it.
When in migraine mode my brain hates certain sounds/rhythms. -
If it was still February today I would have 12 migraine days for the month, which is luckily about 2-3 days less after I started regular swimming. Although this month I missed out on 2 weeks swimming due to a long flu. Basically the migraines keep being on the same level the past 2-3 years, but swimming can sometimes offset the attack a little, or just improve my mood and bring some temporary relief. #chronicmigraine #perimenopause
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Migraine stats for February were great ๐๐ #Ajovy is a life changer, so grateful ๐๐ป
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Spicy Ajovy tonight lol
But it's done for another month -
Head pain woke me st 5am, took some pain meds, lay in bed semi asleep until a pain spike, took my abortive at 6.39am, pain slowly receding. It's also Ajovy day ๐๐๐ค which is good.
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Ohh, checked my calendar & it's Ajovy this weekend ๐ช๐ป๐ช๐ป this also might explain the annoying head pain.
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Prochlorperazine deployed, no head pain (yet) but stomach is not happy.
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I was woken up by needing to pee & next doors Rugrats but my head is also unhappy, time for migraine meds.
Hopefully the rizatriptan kicks in quick (it usually does)
The Ajovy should start to work within the next few days as well.
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๐ so fun when you get a message from a well meaning but totally deluded family member that some salt & a glass of water will stop that migraine. Told them thanks, then sent them the link to The Migraine Trust, telling them what a migraine actually is.
It's not just a headache! It's not called an attack for nothing either.
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When the #MigraineNausea turns into #MigraineHurl on the plus side, I should now start to feel a bit better.
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2025-11-17 I fell and severely injured myself on the am before 31 migraine medication injections
#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicmigraine #heds #longCovid #longcovid #medicalArt #migraine #MillionsMissing #mobilityAid #mobilityaid #neurology #orthopedics #pwLC #pwme
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The alarm went off 12minutes ago, i was already awake, my head is sore, time for pain meds & an abortive.
Still not heard anything about getting my Ajovy & I am petrified they've decided to stop it ๐ฌ๐ฌ
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Protocol Three C's has been activated.
Carbs in the form of crisps
Coca Cola - can
CocodamolLets see if I can get rid of this nausea/migraine attack.
I really dont like this time of year, its too changable with the barometric pressure and it messes with my migraine brain way too much.
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Overdid things somewhat yesterday tidying the garden in the fresh air. ๐ ๐ฟ
As a result, I slept soundly, but now have an awful migraine that I can't shift. :blobcat_headache:
Moral of the story: Never work too hard or you'll suffer, even if you achieve results.
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2025_8_18 I booked a hotel to try to identify/isolate variables. As soon as I walked in the hotel room, I felt my head swell.
#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #chronicmigraine #covidIsNotOver #CovidIsntOver #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mcas #meCfs #mecfs #medArt #medart #medblog #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme
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2025-8-11 My migraines are triggered by drinking water
https://www.illmarks.com/2025-8-11-my-migraines-are-triggered-by-drinking-water/
#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #disability #disabled #longCovid #longcovid #mastcell #mcas #medBlog #medart #medicalArt #medicalBlog #migraine #MillionsMissing #neurology #pwLC #pwme #sciBlog #SciArt
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2025-7-28 My migraines ignore other negative symptom patterns, and healing patterns.
#art #aura #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #headache #healing #longCovid #longcovid #medart #medicalArt #migraine #MillionsMissing #neuro #neurology #pwLC #pwme #SciArt
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I dont know whats going on but since 1st August when I had my Ajovy it has not helped, so far I've had 7 migraine, 2 with vomiting and my normal on Ajovy is 4 or 5. Vomiting with migraine was normal for me prior to amitriptyline. Really hoping that my next shot on 31st August gets me back to only 4 or 5 migraines a month, I do not wish to go back to pre-Ajovy levels, that was pure hell.
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Imagine an electric grid that's running over-loaded for nearly 20 years. My migraines are the flickering lights, my brain zaps are short-circuits.
Your unsolicited health advice is nice, but it's neither a load relief nor a hardware upgrade. So shut the fuck up.
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Always love it when the nausea from the migraine is more annoying than any head pain. Taken my Prochlorperazine and so the burping begins. #Migraine #ChronicMigraine #NigraineNausea
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Meditation for Migraine Relief: Find Your Calm
Migraine can be incredibly debilitating, often leaving individuals feeling utterly helpless and overwhelmed by discomfort. Itโs truly distressing to deal with such pain, which can disrupt daily life, making even the simplest tasks feel insurmountable. The throbbing sensations, accompanied by light sensitivity and nausea, create an atmosphere of distress that is hard to escape.
Meditation for Migraine
Sometimes, incorporating meditation into your routine can be a gentle way to ease some of the pain and stress that come with this condition. By setting aside just a few moments each day, you allow yourself to embark on a journey of self-care and relaxation. Letโs take a moment together to engage in a healing meditation specifically crafted for migraine relief. By allowing ourselves this time to quiet our minds and turn inward, we can tap into the nurturing power of mindfulness and visualization, helping to soothe our symptoms and cultivate a profound sense of calm and healing throughout our bodies.
How Meditation Helps
Meditation can assist in coping with migraines by promoting relaxation and reducing stress, which are often triggers for migraine attacks. It encourages mindfulness, allowing us to focus on our breathing and physical sensations, helping to create a sense of calm. By engaging in regular meditation practices, we may experience decreased anxiety and improved emotional resilience, potentially lessening the frequency and intensity of migraine episodes. Additionally, visualization techniques used in meditation can help in managing pain perception, making it easier to cope during difficult moments.
Finding Solace
Meditation has helped me immensely cope with chronic migraine, as it allows me the space to observe the impermanent nature of my suffering, recognizing that I am not defined by it. In those moments of stillness, I connect with the essence of my being, transcending the pain and embracing the compassionate teachings of Buddhism. I find solace in understanding the interconnectedness of all experiences, realizing that even within suffering, there exists an opportunity for growth and mindfulness. Each breath becomes a reminder of the present moment, where I can cultivate compassion not only for myself but for all beings who endure similar struggles, ultimately transforming my suffering into a path of enlightenment.
Give yourself the gift of relaxation and ease the suffering of migraines with a free guided meditation designed to lessen the symptoms by bringing focus to healing. This meditation not only helps alleviate pain but also allows you to reconnect with your body and mind. By centering your thoughts and cultivating a tranquil environment, you can create a sanctuary where stress melts away. As you listen, youโll discover the power of mindfulness, which helps shift your perception of pain and encourages a deeper state of calm. Engaging in this practice regularly will not only help manage migraines but also contribute to your overall well-being, providing you with a valuable tool to navigate lifeโs challenges with greater ease and resilience. Join us on this transformative journey and embark on the path to healing and tranquility.
If you want to learn more about migraines, including their symptoms and common triggers, check out The Peculiar Symptoms & Triggers of Migraines. This article explains the complexities of migraines and how they can differ among individuals. With clear information and extra resources, youโll find useful tips to help manage this condition. Itโs a great read for those seeking to gain a deeper understanding of migraines and discover effective coping strategies.
#awareness #balance #buddhist #chronicMigraine #experience #flow #healing #hemipleagicMigraine #interconnected #meditate #meditation #migraine #migraineRelief #mindful #mindfulness #moments #practice #relax #vestibularMigraine
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Well that was a *fun* Ajovy injection! Could feel the med going into my leg and it was spicy, very glad the injection is very quick.
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Woke up at 5.37am needing to pee, got up, then head kicked off, so took some pain meds, when I got back into bed, Ellie was very good and flopped out on my left shoulder purring up a storm. The nausea kicked in about 7am so took my nausea meds, have also taken am abortive as head pain was getting worse. Have made myself popcorn too, its great if I have nausea as I can nibble, weirdly eating can help with nausea. #Migraine #ChronicMigraine
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Nurturing Yourself: The Benefits of Solitude
The Power of Solitude in Nurturing Ourselves
Photo by Taryn Elliott on Pexels.comIn an overwhelmingly busy world, solitude emerges as a sanctuary for self-care and rejuvenation. Embracing harmony through solitude allows us to step back from the chaos, offering a precious opportunity to reconnect with ourselves and our deepest needs. It is within these quiet moments that we can cultivate a profound sense of peace, enabling us to navigate the ebbs and flows of life, especially when faced with chronic conditions.
Solitude for balance
Solitude becomes a powerful tool, fostering introspection and self-discovery while serving as a nurturing space to replenish our energy and ignite our inner creativity. By recognizing the value of these solitary moments, we lay the foundations for a healthier and more balanced life, inviting a renewed sense of harmony to permeate our daily existence.
My Weekday Routine
My weekday mornings are a gift of solitude as my husband and I have our own unique way of awakening for the day ahead. This mutual respect routine is essential for our physical and mental well-being as we commute together and have worked together for over 20 years. So, my weekday self-care routine is a blend of simplicity and rejuvenation, infusing my day with positivity while effortlessly tackling the challenges of chronic hemiplegic migraines and lupus. Each migraine-free weekday, I rise at 5:15 am, embarking on a morning ritual that lays a gentle foundation for what lies ahead. This routine begins with oral hygiene and a revitalizing shower, followed by hydration with filtered water and a comforting cup of coffee. I embrace the nourishing solitude of the morning through peaceful meditation or prayer, allowing tranquility to wash over me, followed by a slow, mindful movement that keeps my body attuned to its needs. I cherish each moment spent with my beloved dog, who brings joy and warmth to my mornings, before stepping out the door by 6:35 am. This nurturing practice elevates my spirits and plays a critical role in managing my symptoms.
Sacred Space
I have made my routine as simple as possible by creating a tiny area deemed my sacred space, which serves as a daily reminder to engage in various practices that nourish my mind, body, and spirit. This personal sanctuary includes elements like a view of the outdoors, inspiring books, a statue of Buddha, and a few nature offerings such as feathers I have collected or crystals. By dedicating this space to my well-being, I find that it greatly aids my consistency, encouraging me to take moments for mindfulness and self-care daily. Each visit to my sacred space is a beautiful reminder of how blessed my life is, allowing me to reflect on my journey and express gratitude for the abundance around me. I have discovered that this intentional practice not only enhances my mental clarity but also deepens my connection to myself and the world, fostering a greater sense of peace and joy in my everyday life and allowing me to live peacefully with chronic illness.
What I have left behind
My morning routines shifted considerably after my health deteriorated. Managing symptoms such as pain and fatigue meant I could no longer do intense workouts in the morning, which had previously been a crucial part of my day. Instead, I adapted my exercise regimen to incorporate gentler activities like yoga and stretching, allowing me to maintain some physical fitness without overexerting myself. I also left behind unnecessary makeup and hair routines, opting instead for simpler styles that I can easily manage. This transition has saved me time each morning and encouraged me to embrace a more natural look, fostering greater self-acceptance. Furthermore, these changes have instilled a sense of mindfulness as I approach my days focusing on health and well-being rather than societal expectations.
Compassionate Self-Care
Incorporating simple practices into my current schedule allows me to enjoy self-care rituals that are vital for coping with my chronic conditions. Activities like meditation help to calm my mind and reduce the stress that can exacerbate migraines and lupus flare-ups. Whether starting the day with a few moments of mindfulness, taking a leisurely walk during my lunch break, or unwinding in the evening with a good book, these small practices bring balance and peace to my life. By prioritizing self-care, I can better manage the demands of daily life, especially when navigating the complexities of my health, and maintain a positive outlook. This commitment benefits my well-being and enables me to be more present and supportive of those around me.
Weekend Mornings
Photo by Ann poan on Pexels.comOn the weekends, I immerse myself in the bliss of extra sleep, soaking in the rejuvenating sensations that fuel my creativity. Saturday and Sunday mornings are sacred, dedicated to crafting captivating articles and essays for my website or pouring my heart and soul onto a canvasโcreating the perfect backdrop for my ideas to blossom. These creative pursuits serve as a therapeutic escape, a delightful distraction from lifeโs pains and discomforts, allowing me to vividly express my thoughts and experiences.
Inner Reflection
These moments of solitude are a sanctuary for my mind, allowing it to settle and embrace the beautiful stillness. As thoughts of chronic pain gently fade away, I find myself whole, fully immersed in a state of creative bliss. Solitude emerges as a powerful catalyst for personal growth and self-care. By intentionally carving out time for ourselves, we open the door to reflection, recharging our spirits, and reconnecting with our deepest thoughts and feelings. In a fast-paced world that often values constant connectivity and busyness, cherishing these moments of solitude empowers us to cultivate profound inner harmony and nurture our overall well-being.
Maintaining Consistency
Photo by Photo By: Kaboompics.com on Pexels.comBeing consistent with self-care is a rewarding yet challenging journey, especially when navigating chronic conditions. Simplifying my routine helps, and having a dedicated space in my home for my practice is essential. This small area, whether for reflection, creativity, or prayer, becomes a gentle reminder to slow down and reconnect with myself. Embracing this space enriches my self-care experience and fosters a deeper sense of well-being.
Finding solitude paves the way for profound self-care by allowing us to center ourselves, re-energize, and foster a deeper connection with our inner being. This quiet time is essential for managing the fluctuations that come with chronic conditions. The beauty of being alone lies in the potential to restore our balance, rejuvenate our spirits, and ignite the flame of self-love within us. So, letโs cherish these moments of tranquility, as they are the cornerstone of our well-being.
Are you ready to embark on an inspiring journey to nurture your soul? Dive deep into the transformative Sacred Space Course, your ultimate guide to creating a self-care ritual that revitalizes your mind, body, and spirit. Embrace this opportunity to unlock your inner peace and elevate your well-being!
https://dandeliondoorways.com/course/creating-sacred-space/
A sacred space is lovingly regarded as a special area or environment that holds profound spiritual significance. It can take form as a physical location, such as a temple, church, shrine, or a serene natural site, or it might blossom within the comforting confines of a personโs home or mind. These sacred spaces are cherished for their role in embracing religious or spiritual practices, rituals, prayer, meditation, and moments of reflection. Many believe these places are filled with a unique energy or presence that helps individuals connect with the divine, find inner peace, and embark on journeys of personal transformation.
#anxietyRelief #awareness #balance #chronicIllness #chronicIllnessRoutine #chronicMigraine #endometriosos #experience #fibromyalgia #healing #lupus #meditation #mentalHealth #mentalWellbeing #mindful #mindfulness #moments #morningRoutine #practice #sacredSpace #selfCare #solitude #stressRelief
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Can someone have a word with my body, head pain woke me up at 5.30ish, Ellie cat flopped on me requesting fuss, managed to get triptan at 5.53am head pain go byebye, stomach went hold my beer, ugh, feck off will ya, i much prefer actual pain to nausea. Took anti nausea meds at 8.32am. Its also jab time on Sunday.
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So obnoxious, my head does not appreciate this pressure shenanigans.
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So two weeks ago, my meds stopped working? And Iโve been in a lot of pain ever since. This morning feels better and apparently all I wanna do is sit and read. Is that a viable treatment option? #ChronicMigraine
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One thing I've noticed with regular HIIT workouts is that my heart rate doesn't go as high when I get to the intense stuff, but I am still working as hard - maybe harder. It also recovers to a lower rate much quicker.
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Finally feeling human again, although very exhausted. Threw up again just after 2pm having eaten my crisp sandwich. It's so odd that throwing up because of migraine makes you feel better.
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I hate not being able to listen to podcasts.
Not being able to play music really fucking sucks, but not being able to feel included also really fucking sucks.
#Hyperacusis #Migraine #Tinnitus #ChronicPain #ChronicMigraine
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I stopped the beta blocker (Toprol) last night, only half a pill, and I cannot tell you how much more emotionally stable I feel today.
The massive migraine that came with it is still kicking, but gone is that gray sunken feeling that makes it seem like I am trying to operate while underwater wrapped in seaweed and walking in a foot of silt.
I feel bad that my doctor said it would make me feel so much better and do good things for my migraine and Cptsd at the same time it was supposed to lower my blood pressure and it did none of this.
#CPTSD #BetaBlockerFail #Migraine #AtypicalMigraine #VestibularMigraine #MaleMigraine #ChronicMigraine
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This most recent arm of research into testosterone and migraine led me to including High Intensity Interval Training (HIIT) into my daily Yoga/Core routine. I need to build strength and testosterone, with a running theory that my very low T is coupled with the chronic migraine.
A few days recently I've woken with a bad migraine and doing the HIIT exercising *noticeably* reduced the migraine activity. It is momentary, but it definitely happens.
Yet again, this pathway of discovery is turning up all kinds of synchronicity with my condition. This is a paper that did a study on the effect of aerobic versus HIIT training on migraines:
https://pubmed.ncbi.nlm.nih.gov/36229774/
#ChronicMigraine #Migraine #Hyperacusis #Testosterone #Fitness #Mindfulness
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As I continue my discovery of prostate cancer and lowered testosterone, I'm starting to find all kinds scientific studies that associate low T in men with chronic migraine.
My T is in the green, barely (330 on a scale of 300-1000). My doc and I agreed that it's OK, but needs raising (I am also over 50 and the prostate trouble is contributing). So I'm integrating a few sets of weight lifting into my yoga / resistance / stretching every day.
#ChronicMigraine #Testosterone
Here's just one of them, many others of different styles and hypotheses come to the same conclusion:
"men with chronic migraine had statistically significant lower total testosterone levels compared to an age-matched normative population."
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Hi, #Pokemon fans & fellow #ChronicMigraine peeps! I'm excited to share this personal essay about why Psyduck is my new mascot for the chronic pain life!
https://bonus-action.com/feature/psyduck-is-my-chronic-migraine-icon/
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Sometimes the questions insurance wants answered feel nonsensical: like "how many headache days do I have per month?"
"...All of them. I'm still never NOT in pain. Always pain, all the time."
Migraine days? THAT I could answer at least.Anyway, I'm finally on a preventative for #ChronicMigraine again, and while I haven't seen a reduction in frequency yet, I HAVE seen a reduction in intensity (my abortives work now, what?!) and that's so, so nice.