#chronic-migraine — Public Fediverse posts

2026_2_16 “Botox for Migraine” Injection Set #2, and 5 Hour Drive to/from Appt

https://www.illmarks.com/2026_2_16-botox-for-migraine-injection-set-2-and-5-hour-drive-to-from-appt/

#2 #art #bodyHorror #bodyMapping #bodyart #bodymapping #chronicIllness #chronicIllness #chronicmigraine #disability #disabilityart #DisabledArtist #eds #healthcare #heds #longCovid #longcovid #mcas #medart #medical #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme #queer #QueerArt #QueerArtist #SciArt #SciComms #trans #transArt #TransPride

2025-11-17 I fell and severely injured myself on the am before 31 migraine medication injections

https://www.illmarks.com/2025-11-17-i-fell-and-severely-injured-myself-on-the-am-before-31-migraine-medication-injections/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicmigraine #heds #longCovid #longcovid #medicalArt #migraine #MillionsMissing #mobilityAid #mobilityaid #neurology #orthopedics #pwLC #pwme

Overdid things somewhat yesterday tidying the garden in the fresh air. 🍃 🌿

As a result, I slept soundly, but now have an awful migraine that I can't shift. :blobcat_headache:

Moral of the story: Never work too hard or you'll suffer, even if you achieve results.

#Work #Gardening #ChronicMigraine

2025_8_18 I booked a hotel to try to identify/isolate variables. As soon as I walked in the hotel room, I felt my head swell.

https://www.illmarks.com/2025_8_18-i-booked-a-hotel-to-try-to-identify-isolate-variables-as-soon-as-i-walked-in-the-hotel-room-i-felt-my-head-swell/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #chronicmigraine #covidIsNotOver #CovidIsntOver #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mcas #meCfs #mecfs #medArt #medart #medblog #medicalArt #migraine #MillionsMissing #neurology #POTS #pwLC #pwme

2025-8-11 My migraines are triggered by drinking water

https://www.illmarks.com/2025-8-11-my-migraines-are-triggered-by-drinking-water/

#art #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #disability #disabled #longCovid #longcovid #mastcell #mcas #medBlog #medart #medicalArt #medicalBlog #migraine #MillionsMissing #neurology #pwLC #pwme #sciBlog #SciArt

2025-7-28 My migraines ignore other negative symptom patterns, and healing patterns.

https://www.illmarks.com/2025-7-28-my-migraines-ignore-other-negative-symptom-patterns-and-healing-patterns/

#art #aura #bodyHorror #bodyMapping #chronicIllness #chronicMigraine #chronicPain #headache #healing #longCovid #longcovid #medart #medicalArt #migraine #MillionsMissing #neuro #neurology #pwLC #pwme #SciArt

I dont know whats going on but since 1st August when I had my Ajovy it has not helped, so far I've had 7 migraine, 2 with vomiting and my normal on Ajovy is 4 or 5. Vomiting with migraine was normal for me prior to amitriptyline. Really hoping that my next shot on 31st August gets me back to only 4 or 5 migraines a month, I do not wish to go back to pre-Ajovy levels, that was pure hell.

#Migraine #Ajovy #ChronicMigraine

Imagine an electric grid that's running over-loaded for nearly 20 years. My migraines are the flickering lights, my brain zaps are short-circuits.

Your unsolicited health advice is nice, but it's neither a load relief nor a hardware upgrade. So shut the fuck up.

#ChronicIllness #ChronicPain #ChronicMigraine #Migraine

Always love it when the nausea from the migraine is more annoying than any head pain. Taken my Prochlorperazine and so the burping begins. #Migraine #ChronicMigraine #NigraineNausea

Meditation for Migraine Relief: Find Your Calm

Migraine can be incredibly debilitating, often leaving individuals feeling utterly helpless and overwhelmed by discomfort. It’s truly distressing to deal with such pain, which can disrupt daily life, making even the simplest tasks feel insurmountable. The throbbing sensations, accompanied by light sensitivity and nausea, create an atmosphere of distress that is hard to escape.

Meditation for Migraine

Sometimes, incorporating meditation into your routine can be a gentle way to ease some of the pain and stress that come with this condition. By setting aside just a few moments each day, you allow yourself to embark on a journey of self-care and relaxation. Let’s take a moment together to engage in a healing meditation specifically crafted for migraine relief. By allowing ourselves this time to quiet our minds and turn inward, we can tap into the nurturing power of mindfulness and visualization, helping to soothe our symptoms and cultivate a profound sense of calm and healing throughout our bodies.

How Meditation Helps

Meditation can assist in coping with migraines by promoting relaxation and reducing stress, which are often triggers for migraine attacks. It encourages mindfulness, allowing us to focus on our breathing and physical sensations, helping to create a sense of calm. By engaging in regular meditation practices, we may experience decreased anxiety and improved emotional resilience, potentially lessening the frequency and intensity of migraine episodes. Additionally, visualization techniques used in meditation can help in managing pain perception, making it easier to cope during difficult moments.

Finding Solace

Meditation has helped me immensely cope with chronic migraine, as it allows me the space to observe the impermanent nature of my suffering, recognizing that I am not defined by it. In those moments of stillness, I connect with the essence of my being, transcending the pain and embracing the compassionate teachings of Buddhism. I find solace in understanding the interconnectedness of all experiences, realizing that even within suffering, there exists an opportunity for growth and mindfulness. Each breath becomes a reminder of the present moment, where I can cultivate compassion not only for myself but for all beings who endure similar struggles, ultimately transforming my suffering into a path of enlightenment.

Give yourself the gift of relaxation and ease the suffering of migraines with a free guided meditation designed to lessen the symptoms by bringing focus to healing. This meditation not only helps alleviate pain but also allows you to reconnect with your body and mind. By centering your thoughts and cultivating a tranquil environment, you can create a sanctuary where stress melts away. As you listen, you’ll discover the power of mindfulness, which helps shift your perception of pain and encourages a deeper state of calm. Engaging in this practice regularly will not only help manage migraines but also contribute to your overall well-being, providing you with a valuable tool to navigate life’s challenges with greater ease and resilience. Join us on this transformative journey and embark on the path to healing and tranquility.

If you want to learn more about migraines, including their symptoms and common triggers, check out The Peculiar Symptoms & Triggers of Migraines. This article explains the complexities of migraines and how they can differ among individuals. With clear information and extra resources, you’ll find useful tips to help manage this condition. It’s a great read for those seeking to gain a deeper understanding of migraines and discover effective coping strategies.

#awareness #balance #buddhist #chronicMigraine #experience #flow #healing #hemipleagicMigraine #interconnected #meditate #meditation #migraine #migraineRelief #mindful #mindfulness #moments #practice #relax #vestibularMigraine

Well that was a *fun* Ajovy injection! Could feel the med going into my leg and it was spicy, very glad the injection is very quick.

#ChronicMigraine #Migraine

Nurturing Yourself: The Benefits of Solitude

The Power of Solitude in Nurturing Ourselves

In an overwhelmingly busy world, solitude emerges as a sanctuary for self-care and rejuvenation. Embracing harmony through solitude allows us to step back from the chaos, offering a precious opportunity to reconnect with ourselves and our deepest needs. It is within these quiet moments that we can cultivate a profound sense of peace, enabling us to navigate the ebbs and flows of life, especially when faced with chronic conditions.

Solitude for balance

Solitude becomes a powerful tool, fostering introspection and self-discovery while serving as a nurturing space to replenish our energy and ignite our inner creativity. By recognizing the value of these solitary moments, we lay the foundations for a healthier and more balanced life, inviting a renewed sense of harmony to permeate our daily existence.

My Weekday Routine

My weekday mornings are a gift of solitude as my husband and I have our own unique way of awakening for the day ahead. This mutual respect routine is essential for our physical and mental well-being as we commute together and have worked together for over 20 years. So, my weekday self-care routine is a blend of simplicity and rejuvenation, infusing my day with positivity while effortlessly tackling the challenges of chronic hemiplegic migraines and lupus. Each migraine-free weekday, I rise at 5:15 am, embarking on a morning ritual that lays a gentle foundation for what lies ahead. This routine begins with oral hygiene and a revitalizing shower, followed by hydration with filtered water and a comforting cup of coffee. I embrace the nourishing solitude of the morning through peaceful meditation or prayer, allowing tranquility to wash over me, followed by a slow, mindful movement that keeps my body attuned to its needs. I cherish each moment spent with my beloved dog, who brings joy and warmth to my mornings, before stepping out the door by 6:35 am. This nurturing practice elevates my spirits and plays a critical role in managing my symptoms.

Sacred Space

I have made my routine as simple as possible by creating a tiny area deemed my sacred space, which serves as a daily reminder to engage in various practices that nourish my mind, body, and spirit. This personal sanctuary includes elements like a view of the outdoors, inspiring books, a statue of Buddha, and a few nature offerings such as feathers I have collected or crystals. By dedicating this space to my well-being, I find that it greatly aids my consistency, encouraging me to take moments for mindfulness and self-care daily. Each visit to my sacred space is a beautiful reminder of how blessed my life is, allowing me to reflect on my journey and express gratitude for the abundance around me. I have discovered that this intentional practice not only enhances my mental clarity but also deepens my connection to myself and the world, fostering a greater sense of peace and joy in my everyday life and allowing me to live peacefully with chronic illness.

What I have left behind

My morning routines shifted considerably after my health deteriorated. Managing symptoms such as pain and fatigue meant I could no longer do intense workouts in the morning, which had previously been a crucial part of my day. Instead, I adapted my exercise regimen to incorporate gentler activities like yoga and stretching, allowing me to maintain some physical fitness without overexerting myself. I also left behind unnecessary makeup and hair routines, opting instead for simpler styles that I can easily manage. This transition has saved me time each morning and encouraged me to embrace a more natural look, fostering greater self-acceptance. Furthermore, these changes have instilled a sense of mindfulness as I approach my days focusing on health and well-being rather than societal expectations.

Compassionate Self-Care

Incorporating simple practices into my current schedule allows me to enjoy self-care rituals that are vital for coping with my chronic conditions. Activities like meditation help to calm my mind and reduce the stress that can exacerbate migraines and lupus flare-ups. Whether starting the day with a few moments of mindfulness, taking a leisurely walk during my lunch break, or unwinding in the evening with a good book, these small practices bring balance and peace to my life. By prioritizing self-care, I can better manage the demands of daily life, especially when navigating the complexities of my health, and maintain a positive outlook. This commitment benefits my well-being and enables me to be more present and supportive of those around me.

Weekend Mornings

On the weekends, I immerse myself in the bliss of extra sleep, soaking in the rejuvenating sensations that fuel my creativity. Saturday and Sunday mornings are sacred, dedicated to crafting captivating articles and essays for my website or pouring my heart and soul onto a canvas—creating the perfect backdrop for my ideas to blossom. These creative pursuits serve as a therapeutic escape, a delightful distraction from life’s pains and discomforts, allowing me to vividly express my thoughts and experiences.

Inner Reflection

These moments of solitude are a sanctuary for my mind, allowing it to settle and embrace the beautiful stillness. As thoughts of chronic pain gently fade away, I find myself whole, fully immersed in a state of creative bliss. Solitude emerges as a powerful catalyst for personal growth and self-care. By intentionally carving out time for ourselves, we open the door to reflection, recharging our spirits, and reconnecting with our deepest thoughts and feelings. In a fast-paced world that often values constant connectivity and busyness, cherishing these moments of solitude empowers us to cultivate profound inner harmony and nurture our overall well-being.

Maintaining Consistency

Being consistent with self-care is a rewarding yet challenging journey, especially when navigating chronic conditions. Simplifying my routine helps, and having a dedicated space in my home for my practice is essential. This small area, whether for reflection, creativity, or prayer, becomes a gentle reminder to slow down and reconnect with myself. Embracing this space enriches my self-care experience and fosters a deeper sense of well-being.

Finding solitude paves the way for profound self-care by allowing us to center ourselves, re-energize, and foster a deeper connection with our inner being. This quiet time is essential for managing the fluctuations that come with chronic conditions. The beauty of being alone lies in the potential to restore our balance, rejuvenate our spirits, and ignite the flame of self-love within us. So, let’s cherish these moments of tranquility, as they are the cornerstone of our well-being.

Are you ready to embark on an inspiring journey to nurture your soul? Dive deep into the transformative Sacred Space Course, your ultimate guide to creating a self-care ritual that revitalizes your mind, body, and spirit. Embrace this opportunity to unlock your inner peace and elevate your well-being!

https://dandeliondoorways.com/course/creating-sacred-space/

A sacred space is lovingly regarded as a special area or environment that holds profound spiritual significance. It can take form as a physical location, such as a temple, church, shrine, or a serene natural site, or it might blossom within the comforting confines of a person’s home or mind. These sacred spaces are cherished for their role in embracing religious or spiritual practices, rituals, prayer, meditation, and moments of reflection. Many believe these places are filled with a unique energy or presence that helps individuals connect with the divine, find inner peace, and embark on journeys of personal transformation.

#anxietyRelief #awareness #balance #chronicIllness #chronicIllnessRoutine #chronicMigraine #endometriosos #experience #fibromyalgia #healing #lupus #meditation #mentalHealth #mentalWellbeing #mindful #mindfulness #moments #morningRoutine #practice #sacredSpace #selfCare #solitude #stressRelief

So two weeks ago, my meds stopped working? And I’ve been in a lot of pain ever since. This morning feels better and apparently all I wanna do is sit and read. Is that a viable treatment option? #ChronicMigraine

One thing I've noticed with regular HIIT workouts is that my heart rate doesn't go as high when I get to the intense stuff, but I am still working as hard - maybe harder. It also recovers to a lower rate much quicker.

#HIIT #ChronicMigraine

Finally feeling human again, although very exhausted. Threw up again just after 2pm having eaten my crisp sandwich. It's so odd that throwing up because of migraine makes you feel better.

#Migraine #ChronicMigraine

I hate not being able to listen to podcasts.

Not being able to play music really fucking sucks, but not being able to feel included also really fucking sucks.

#Hyperacusis #Migraine #Tinnitus #ChronicPain #ChronicMigraine

I stopped the beta blocker (Toprol) last night, only half a pill, and I cannot tell you how much more emotionally stable I feel today.

The massive migraine that came with it is still kicking, but gone is that gray sunken feeling that makes it seem like I am trying to operate while underwater wrapped in seaweed and walking in a foot of silt.

I feel bad that my doctor said it would make me feel so much better and do good things for my migraine and Cptsd at the same time it was supposed to lower my blood pressure and it did none of this.

#CPTSD #BetaBlockerFail #Migraine #AtypicalMigraine #VestibularMigraine #MaleMigraine #ChronicMigraine

This most recent arm of research into testosterone and migraine led me to including High Intensity Interval Training (HIIT) into my daily Yoga/Core routine. I need to build strength and testosterone, with a running theory that my very low T is coupled with the chronic migraine.

A few days recently I've woken with a bad migraine and doing the HIIT exercising *noticeably* reduced the migraine activity. It is momentary, but it definitely happens.

Yet again, this pathway of discovery is turning up all kinds of synchronicity with my condition. This is a paper that did a study on the effect of aerobic versus HIIT training on migraines:

https://pubmed.ncbi.nlm.nih.gov/36229774/

#ChronicMigraine #Migraine #Hyperacusis #Testosterone #Fitness #Mindfulness

As I continue my discovery of prostate cancer and lowered testosterone, I'm starting to find all kinds scientific studies that associate low T in men with chronic migraine.

My T is in the green, barely (330 on a scale of 300-1000). My doc and I agreed that it's OK, but needs raising (I am also over 50 and the prostate trouble is contributing). So I'm integrating a few sets of weight lifting into my yoga / resistance / stretching every day.

#ChronicMigraine #Testosterone

Here's just one of them, many others of different styles and hypotheses come to the same conclusion:

"men with chronic migraine had statistically significant lower total testosterone levels compared to an age-matched normative population."

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6589638/

Hi, #Pokemon fans & fellow #ChronicMigraine peeps! I'm excited to share this personal essay about why Psyduck is my new mascot for the chronic pain life!

https://bonus-action.com/feature/psyduck-is-my-chronic-migraine-icon/

#VideoGames #WritersOfMastodon

Sometimes the questions insurance wants answered feel nonsensical: like "how many headache days do I have per month?"
"...All of them. I'm still never NOT in pain. Always pain, all the time."
Migraine days? THAT I could answer at least.

Anyway, I'm finally on a preventative for #ChronicMigraine again, and while I haven't seen a reduction in frequency yet, I HAVE seen a reduction in intensity (my abortives work now, what?!) and that's so, so nice.

#ChronicallyIll #ChronicIllness #migraine

ME/CFS: Change The Definition

https://chng.it/CJG7zctByV

Please sign and share this petition. This directly impacts me, and many others.

#MECFS #ChronicIllness #ChronicPain #ChronicMigraine

Patients in England to be offered daily pill that can halve migraine frequency | National Institute for Health and Care Excellence | The Guardian
https://www.theguardian.com/society/2024/apr/11/patients-in-england-to-be-offered-daily-pill-that-can-halve-migraine-frequency

#Migraine
#PillForMigraines
#MigrainePrevention
#NHSApprovedMedicine
#NICE
#NICEApproved
#Atogepant
#Aquipta
#AbbVie
#CalcitoninGeneRelatedPeptide
#CGRP
#ChronicMigraine
#EpisodicMigraine
#MigraineTrust
#ScottishMedicinesConsortium

Aaaaand the #migrane is back. The extent it shuts down my life is very frustrating.
#ChronicMigraine #spoonie