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#vestibular-migraine — Public Fediverse posts

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  1. I finally landed on what's been going on with me for the past year (two years, really, with symptoms much much worse this year)—vestibular migraines. Really regular vestibular migraines with varying degrees of intensity. And then failing to take care of myself appropriately leading to a blur of migraines blended into one another with no clear beginning or end.

    I'm finally eating more regularly. I have to use timers and I have to be careful about meal planning.

    ... It's so strange to me how much easier it is to take care of myself now that I know what's going on because I have a full understanding of what is happening and why. These solutions are, to me, very intuitive; the body will tell you what it needs. But. Without actual lines drawn between the dots it just felt like chaos despite the intuition. I was chasing solutions instead of calmly choosing what I could feel was needed…

    ... Which is weird for me to experience, but is nevertheless how it is. Part of this is #alexithymia adding to the confusion and chaos. Another part, I think, stems a bit from a lack of self-trust and the confidence that I actually know what I need. That has been a theme for me lately: trusting myself in terms of what I need instead of listening to what others tell me that I need and what I'm doing 'wrong.’

    #vestibularmigraine #actuallyautistic #audhd

  2. Meditation for Migraine Relief: Find Your Calm

    Migraine can be incredibly debilitating, often leaving individuals feeling utterly helpless and overwhelmed by discomfort. It’s truly distressing to deal with such pain, which can disrupt daily life, making even the simplest tasks feel insurmountable. The throbbing sensations, accompanied by light sensitivity and nausea, create an atmosphere of distress that is hard to escape.

    Meditation for Migraine

    Sometimes, incorporating meditation into your routine can be a gentle way to ease some of the pain and stress that come with this condition. By setting aside just a few moments each day, you allow yourself to embark on a journey of self-care and relaxation. Let’s take a moment together to engage in a healing meditation specifically crafted for migraine relief. By allowing ourselves this time to quiet our minds and turn inward, we can tap into the nurturing power of mindfulness and visualization, helping to soothe our symptoms and cultivate a profound sense of calm and healing throughout our bodies.

    How Meditation Helps

    Meditation can assist in coping with migraines by promoting relaxation and reducing stress, which are often triggers for migraine attacks. It encourages mindfulness, allowing us to focus on our breathing and physical sensations, helping to create a sense of calm. By engaging in regular meditation practices, we may experience decreased anxiety and improved emotional resilience, potentially lessening the frequency and intensity of migraine episodes. Additionally, visualization techniques used in meditation can help in managing pain perception, making it easier to cope during difficult moments.

    Finding Solace

    Meditation has helped me immensely cope with chronic migraine, as it allows me the space to observe the impermanent nature of my suffering, recognizing that I am not defined by it. In those moments of stillness, I connect with the essence of my being, transcending the pain and embracing the compassionate teachings of Buddhism. I find solace in understanding the interconnectedness of all experiences, realizing that even within suffering, there exists an opportunity for growth and mindfulness. Each breath becomes a reminder of the present moment, where I can cultivate compassion not only for myself but for all beings who endure similar struggles, ultimately transforming my suffering into a path of enlightenment.

    Give yourself the gift of relaxation and ease the suffering of migraines with a free guided meditation designed to lessen the symptoms by bringing focus to healing. This meditation not only helps alleviate pain but also allows you to reconnect with your body and mind. By centering your thoughts and cultivating a tranquil environment, you can create a sanctuary where stress melts away. As you listen, you’ll discover the power of mindfulness, which helps shift your perception of pain and encourages a deeper state of calm. Engaging in this practice regularly will not only help manage migraines but also contribute to your overall well-being, providing you with a valuable tool to navigate life’s challenges with greater ease and resilience. Join us on this transformative journey and embark on the path to healing and tranquility.

    If you want to learn more about migraines, including their symptoms and common triggers, check out The Peculiar Symptoms & Triggers of Migraines. This article explains the complexities of migraines and how they can differ among individuals. With clear information and extra resources, you’ll find useful tips to help manage this condition. It’s a great read for those seeking to gain a deeper understanding of migraines and discover effective coping strategies.

    #awareness #balance #buddhist #chronicMigraine #experience #flow #healing #hemipleagicMigraine #interconnected #meditate #meditation #migraine #migraineRelief #mindful #mindfulness #moments #practice #relax #vestibularMigraine

  3. I stopped the beta blocker (Toprol) last night, only half a pill, and I cannot tell you how much more emotionally stable I feel today.

    The massive migraine that came with it is still kicking, but gone is that gray sunken feeling that makes it seem like I am trying to operate while underwater wrapped in seaweed and walking in a foot of silt.

    I feel bad that my doctor said it would make me feel so much better and do good things for my migraine and Cptsd at the same time it was supposed to lower my blood pressure and it did none of this.

    #CPTSD #BetaBlockerFail #Migraine #AtypicalMigraine #VestibularMigraine #MaleMigraine #ChronicMigraine

  4. I had been feeling very unwell today - it's finally dawned on me it's an attack of Vestibular Migraine.
    This is something that comes to me rarely, much less often than the Ocular Migraine / Migraine with Aura - but somehow related.

    It's all tiredness and anxiety / stress related - except I'm supposed to be relaxing on holiday.

    Thankfully it seems to have cleared away (at least for today)

    #migraine #vestibularMigraine #migraineWithAura

  5. It's been an entire week that I haven't had migraine activity.

    Yesterday the migraine was scratching at the edges and I was keeping it at bay with caffeine and benedryl. The tinnitus from the AC is hard to push down, but it hasn't tipped all the way into migraine.

    Abortive treatment like that comes with a big rebound migraine after they've run their course for me, i.e. I am chronic and it comes right back. I suck it up because it's worth the relief, if just for one day.

    This morning I thought... "ok here comes the rebound. I hear some tickling and heavier tinnitus..." and did my yoga and core stretches and pushed a bit harder in my HIIT sets...

    The migraine never showed up. It's not here. The longest span I have ever had of no migraine and then not having it the next day since - and I shit you not - 2019.

    The only thing I've changed is the intense exercise. Everything else has stayed the same, but it's like the HIIT is dropping the cortisol <so much> that the other things I'm doing finally feel like a working set of things, so that this past week the bucket is getting completely emptied when I exercise.

    #Migraine #Tinnitus #HIIT #Exercise #AtypicalMigraine #Hyperacusis #VestibularMigraine

  6. Current #tinnitus vibe: Pressing an ear to the interior wall of an airplane in flight, with a hint of screaming. Everything may be on fire.

    #VestibularDisorder #MenieresDisease #VestibularMigraine

  7. Had a nasty drop attack earlier today, the first I’ve had in 2.5 weeks. I’d not long returned from being in town. Super glad it didn’t land while I was on the bus… #Vertigo #VestibularMigraine #ChronicIllness

  8. It occurs to me to document this #LongCOVID issue. I keep getting these #Vestibularmigraine level heafaches.

    But I experience often immediate relief from putting my oxygen on. I wonder if other people with #LongCOVID are having these terrible headaches.

    But can't access the treatment I have from also having #cancer.

    If you know my backstory, you know that as I refused to leave the hospital without assistance, I was sent home on oxygen.

  9. One thing I enjoy about last-of-the-day hospital appointments, when it's just you, a reception staff of one and you can hear the radio selection from the office and it's 🔥

    #MRI #vestibularmigraine #Disability

  10. A very fascinating thing happened to me today. I got a #migraine. I rarely get them, so I did what I recommend to my patients: look for triggers. The only thing out of the ordinary was that I went to the playground with my 5yo and played on the spinning seat.

    I gave myself 100% physiologic #nystagmus--and hours later got a migraine.

    #neurology #neurotology #vertigo #vestibular #VestibularMigraine #MedMastodon

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  11. Last week the Neurologist really said bring your pain medication usage down to zero, and it's Day 4 of this Migraine and I am NOT BUILT FOR IT BABES.

    But they wanna rule out MOH(Medicine Overuse Headaches )so....here we are, staring pain in the eye and daring it to blink.

    #vestibularmigraine #disability #pain

  12. Boots being on Deliveroo is truly one of the greatest inventions known to humankind.

    Real talk though, it took Lockdown-living for people to understand what people with chronic illness and or disabilities have been yelling about for years…access to medications and pain relief is torturously slow, truncated and woefully inefficient.
    Healthify and Scription are working on solving Rx supplies, that's what we need.
    #disability #vestibularmigraine #blackFedi