#hyperacusis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #hyperacusis, aggregated by home.social.
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#Hyperacusis is a profoundly debilitating condition in this world ruled by puerile, stubborn individualism. Narcissistic, loud people are in permanent broadcast mode, screaming into an imagined (or real) live feed camera. Those of us who need quiet are shit out of luck, waltzed over like road kill.
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#Hyperacusis is a profoundly debilitating condition in this world ruled by puerile, stubborn individualism. Narcissistic, loud people are in permanent broadcast mode, screaming into an imagined (or real) live feed camera. Those of us who need quiet are shit out of luck, waltzed over like road kill.
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Yes. The world should be different.
Yes. There should be all care for all people.
But there just isn't.
As a disabled, chronically ill person with severe, debilitating #hyperacusis i can only reach one conclusion. There is no place for me to live in this world, especially now during a fascist turn. -
Yes. The world should be different.
Yes. There should be all care for all people.
But there just isn't.
As a disabled, chronically ill person with severe, debilitating #hyperacusis i can only reach one conclusion. There is no place for me to live in this world, especially now during a fascist turn. -
To have #hyperacusis in a time when more and more people think it is "fun" to "trigger the libs", whatever this may mean in this instance, amounts to torture.
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To have #hyperacusis in a time when more and more people think it is "fun" to "trigger the libs", whatever this may mean in this instance, amounts to torture.
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Woken by a throbbing migraine, so getting into my Sunday morning benedryl, caffeine, cannabis routine. In a couple of hours the volume should be lowered and the throbbing gone.
I would normally workout, lift and fly the cortisol away, but I need a rest day. The early morning UK interviews screwed up my schedule.
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Woken by a throbbing migraine, so getting into my Sunday morning benedryl, caffeine, cannabis routine. In a couple of hours the volume should be lowered and the throbbing gone.
I would normally workout, lift and fly the cortisol away, but I need a rest day. The early morning UK interviews screwed up my schedule.
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"an investigation into headphones has found every single pair tested contained substances hazardous to human health, including chemicals that can cause cancer, neurodevelopmental problems and the feminisation of males.
Even products by market-leading brands such as Bose, Panasonic, Samsung and Sennheiser were found to contain harmful chemicals in the formulation of the plastics from which they are made."
Great news for us who have #hyperacusis.
https://www.theguardian.com/technology/2026/feb/18/hazardous-substances-headphones
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"an investigation into headphones has found every single pair tested contained substances hazardous to human health, including chemicals that can cause cancer, neurodevelopmental problems and the feminisation of males.
Even products by market-leading brands such as Bose, Panasonic, Samsung and Sennheiser were found to contain harmful chemicals in the formulation of the plastics from which they are made."
Great news for us who have #hyperacusis.
https://www.theguardian.com/technology/2026/feb/18/hazardous-substances-headphones
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@darrellpf @actuallyautistic A year ago I developed #hyperacusis something I had no idea existed (improved a lot in recent months, but still I place dishes and cups down gently on hard surfaces). One therapy said to help is special music playlists. I recognized they were mostly New Age and Ambient ,which I listen to all the time.
On the flip side, having a TV on, even with the sound turned down too low for me to follow it has always been comforting, but that comes from old work environmments.
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@darrellpf @actuallyautistic A year ago I developed #hyperacusis something I had no idea existed (improved a lot in recent months, but still I place dishes and cups down gently on hard surfaces). One therapy said to help is special music playlists. I recognized they were mostly New Age and Ambient ,which I listen to all the time.
On the flip side, having a TV on, even with the sound turned down too low for me to follow it has always been comforting, but that comes from old work environmments.
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I'm again thinking about how the sort of #hyperacusis I seem to experience (stuff around 4-8 KHz gets stressful quickly) is probably a side effect of evolutionary pressure to be really good at locating predators or prey making small movements
I'm very curious if anyone has ever looked into this hypothesis
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I'm again thinking about how the sort of #hyperacusis I seem to experience (stuff around 4-8 KHz gets stressful quickly) is probably a side effect of evolutionary pressure to be really good at locating predators or prey making small movements
I'm very curious if anyone has ever looked into this hypothesis
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#DEI is alive & well at the #VA. :dogelaugh: I was just informed that a #healthcare #contractor had canceled my referral because I told them that their wait music is #triggering to people who have #hyperacusis
I mean the VA literally just told me that is the reason that was given— I complained about their hold music. It could have been worse, but something so easy to fix⸮
DEI and Die might have something in common, with this #government
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#DEI is alive & well at the #VA. :dogelaugh: I was just informed that a #healthcare #contractor had canceled my referral because I told them that their wait music is #triggering to people who have #hyperacusis
I mean the VA literally just told me that is the reason that was given— I complained about their hold music. It could have been worse, but something so easy to fix⸮
DEI and Die might have something in common, with this #government
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CW: migraine hyperacusis description
migraine is strong today after two clear days. lots of stress yesterday during the fires is probably a big contributor. air quality is Medium and the Santa Anas are kicking up again outside right now.
sometimes they happen fast and i will go from fine to horrible without knowing it happened. triggers are very clear. usually it's sound when a certain harmonic range is excited - like the human voice, tinfoil, cheap plastic produce bags, two-stroke motors, AC units.
but long-onset migraines come on so slowly and so patchy and gradual and then slide over a ridge into full hyperacusis, i can listen to the whole progression happen, like listening to reverse fractals.
the trigger is never clear, it's more like an orchestration of various filters being removed until all that's left is a bright, shimmery reflection of all sound - like a tiny speaker being overdriven.
to my perception, it is like taking the soundscape (which includes ever present tinnitus) and mixing a louder and distorted version of that soundscape on top of itself.
my hearing, and the ingress of it, is not damaged. but the hyperacusis and tinnitus will create a wall of sound that is a lot like the static you experience with shortwave radio. It is so loud and thick that it filters out an entire spectrum of sound.
and it takes a looooong time to cool down. which means it gets reactivated quite easily, and i become some kind of walking metastable function.
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CW: migraine hyperacusis description
migraine is strong today after two clear days. lots of stress yesterday during the fires is probably a big contributor. air quality is Medium and the Santa Anas are kicking up again outside right now.
sometimes they happen fast and i will go from fine to horrible without knowing it happened. triggers are very clear. usually it's sound when a certain harmonic range is excited - like the human voice, tinfoil, cheap plastic produce bags, two-stroke motors, AC units.
but long-onset migraines come on so slowly and so patchy and gradual and then slide over a ridge into full hyperacusis, i can listen to the whole progression happen, like listening to reverse fractals.
the trigger is never clear, it's more like an orchestration of various filters being removed until all that's left is a bright, shimmery reflection of all sound - like a tiny speaker being overdriven.
to my perception, it is like taking the soundscape (which includes ever present tinnitus) and mixing a louder and distorted version of that soundscape on top of itself.
my hearing, and the ingress of it, is not damaged. but the hyperacusis and tinnitus will create a wall of sound that is a lot like the static you experience with shortwave radio. It is so loud and thick that it filters out an entire spectrum of sound.
and it takes a looooong time to cool down. which means it gets reactivated quite easily, and i become some kind of walking metastable function.
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[P] I think tinnitus & hyperacusis reveal how common low-empathy sociopathy actually is in the human population. If one can do something to spare another long-term pain, suffering, and anguish, but instead they'd choose to hurt another so severely for an iota of pleasure and/or convenience? That's telling. It's an experience living on this world and not being "most people," or should I say most monsters? That's how it feels.
#psychology #actuallyautistic #hyperacusis #tinnitus #humans #monsters
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I hate not being able to listen to podcasts.
Not being able to play music really fucking sucks, but not being able to feel included also really fucking sucks.
#Hyperacusis #Migraine #Tinnitus #ChronicPain #ChronicMigraine
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I hate not being able to listen to podcasts.
Not being able to play music really fucking sucks, but not being able to feel included also really fucking sucks.
#Hyperacusis #Migraine #Tinnitus #ChronicPain #ChronicMigraine
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Right now I have one of those elevated tinnitus states where it isn't quite migraine-level but is "whispery" located in the center of my hearing, against the background of my metastable tinnitus, which I perceive as "higher" and "stereo separated".
Migraines are never stereoscopic for me. That's one huge way I can tell when I "just have tinnitus" and when I have full blown hyperacusis (sigh... maybe someday Apple will add my sickness to their spelling dictionary).
It is my regular day-off from working out, but this is the kind of condition that exercise helps reduce. So I may use tomorrow as a break day, and do some extended stuff today instead.
#migraine #tinnitus #hyperacusis #hearing #HIIT #exercise #mindfulness
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Right now I have one of those elevated tinnitus states where it isn't quite migraine-level but is "whispery" located in the center of my hearing, against the background of my metastable tinnitus, which I perceive as "higher" and "stereo separated".
Migraines are never stereoscopic for me. That's one huge way I can tell when I "just have tinnitus" and when I have full blown hyperacusis (sigh... maybe someday Apple will add my sickness to their spelling dictionary).
It is my regular day-off from working out, but this is the kind of condition that exercise helps reduce. So I may use tomorrow as a break day, and do some extended stuff today instead.
#migraine #tinnitus #hyperacusis #hearing #HIIT #exercise #mindfulness
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Severe #tinnitus and #hyperacusis are extremely unforgiving conditions. Many conditions are, of course, but I only know those from a distance. It seems the smallest mistake can cause a massive long term worsening - but years of being careful results in merely somewhat slowing a decline or maintenance at best.
People who have lasted with unpredictable, reactive, unmaskable tinnitus have my respect!
[Note; I’m talking about severe varieties here. Mild - moderate tinnitus can indeed be habituated to, and moderate hyperacusis or sometimes even severe hyperacusis on its own seems to be able go away entirely. I’ve experienced both; my mild tinnitus was severely worsened by other conditions and situations, and is a whole other creature to what it began as.]
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Severe #tinnitus and #hyperacusis are extremely unforgiving conditions. Many conditions are, of course, but I only know those from a distance. It seems the smallest mistake can cause a massive long term worsening - but years of being careful results in merely somewhat slowing a decline or maintenance at best.
People who have lasted with unpredictable, reactive, unmaskable tinnitus have my respect!
[Note; I’m talking about severe varieties here. Mild - moderate tinnitus can indeed be habituated to, and moderate hyperacusis or sometimes even severe hyperacusis on its own seems to be able go away entirely. I’ve experienced both; my mild tinnitus was severely worsened by other conditions and situations, and is a whole other creature to what it began as.]
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Noise is so difficult for me to deal with. I wasn't a huge fan of noise before, but it has gotten actually painful ever since #LongCOVID. Noise can often lead to crashes. Someone once told me that i might have #Hyperacusis. Don't know if that's true, since it is very difficult to diagnose it and i have to avoid medical facilities anyway, i might never know.
The world is a noisy place.
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Noise is so difficult for me to deal with. I wasn't a huge fan of noise before, but it has gotten actually painful ever since #LongCOVID. Noise can often lead to crashes. Someone once told me that i might have #Hyperacusis. Don't know if that's true, since it is very difficult to diagnose it and i have to avoid medical facilities anyway, i might never know.
The world is a noisy place.
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Another intense workout another reduced migraine.
My verapamil ran out two weeks ago and it is clear it was doing practically nothing.
I could get used to this.
#AtypicalMigraine #Migraine #Hyperacusis #MovementIsMedicine #yoga #HIIT #Minfulness #DeepListening
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Another intense workout another reduced migraine.
My verapamil ran out two weeks ago and it is clear it was doing practically nothing.
I could get used to this.
#AtypicalMigraine #Migraine #Hyperacusis #MovementIsMedicine #yoga #HIIT #Minfulness #DeepListening
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"A long-term study conducted by SoundSense has identified a correlation between a person's sensitivity to loud noises or specific tones that were often inaudible to others, and that person's state of ill health or a health condition"
https://www.ingentaconnect.com/contentone/ince/incecp/2024/00000269/00000001/art00047
@hyperacusis #NoiseSensitivity #SoundSensitivity #Hyperacusis
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"A long-term study conducted by SoundSense has identified a correlation between a person's sensitivity to loud noises or specific tones that were often inaudible to others, and that person's state of ill health or a health condition"
https://www.ingentaconnect.com/contentone/ince/incecp/2024/00000269/00000001/art00047
@hyperacusis #NoiseSensitivity #SoundSensitivity #Hyperacusis
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Postdrome the past two days. Full-body nausea since yesterday.
I haven't had a migraine since sometime'ish Thursday / Friday, Saturday it was crushed by an abortive and Sunday it was completely gone. Today tinnitus is very present, which is tricky because it can be very loud and intense and not be a migraine. The nausea helped decide that one for me.
Zofran to the rescue. Although I think I feel the migraine inching back through this fan/AC-induced tinnitus.
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Postdrome the past two days. Full-body nausea since yesterday.
I haven't had a migraine since sometime'ish Thursday / Friday, Saturday it was crushed by an abortive and Sunday it was completely gone. Today tinnitus is very present, which is tricky because it can be very loud and intense and not be a migraine. The nausea helped decide that one for me.
Zofran to the rescue. Although I think I feel the migraine inching back through this fan/AC-induced tinnitus.
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It's been an entire week that I haven't had migraine activity.
Yesterday the migraine was scratching at the edges and I was keeping it at bay with caffeine and benedryl. The tinnitus from the AC is hard to push down, but it hasn't tipped all the way into migraine.
Abortive treatment like that comes with a big rebound migraine after they've run their course for me, i.e. I am chronic and it comes right back. I suck it up because it's worth the relief, if just for one day.
This morning I thought... "ok here comes the rebound. I hear some tickling and heavier tinnitus..." and did my yoga and core stretches and pushed a bit harder in my HIIT sets...
The migraine never showed up. It's not here. The longest span I have ever had of no migraine and then not having it the next day since - and I shit you not - 2019.
The only thing I've changed is the intense exercise. Everything else has stayed the same, but it's like the HIIT is dropping the cortisol <so much> that the other things I'm doing finally feel like a working set of things, so that this past week the bucket is getting completely emptied when I exercise.
#Migraine #Tinnitus #HIIT #Exercise #AtypicalMigraine #Hyperacusis #VestibularMigraine
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It's been an entire week that I haven't had migraine activity.
Yesterday the migraine was scratching at the edges and I was keeping it at bay with caffeine and benedryl. The tinnitus from the AC is hard to push down, but it hasn't tipped all the way into migraine.
Abortive treatment like that comes with a big rebound migraine after they've run their course for me, i.e. I am chronic and it comes right back. I suck it up because it's worth the relief, if just for one day.
This morning I thought... "ok here comes the rebound. I hear some tickling and heavier tinnitus..." and did my yoga and core stretches and pushed a bit harder in my HIIT sets...
The migraine never showed up. It's not here. The longest span I have ever had of no migraine and then not having it the next day since - and I shit you not - 2019.
The only thing I've changed is the intense exercise. Everything else has stayed the same, but it's like the HIIT is dropping the cortisol <so much> that the other things I'm doing finally feel like a working set of things, so that this past week the bucket is getting completely emptied when I exercise.
#Migraine #Tinnitus #HIIT #Exercise #AtypicalMigraine #Hyperacusis #VestibularMigraine
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This most recent arm of research into testosterone and migraine led me to including High Intensity Interval Training (HIIT) into my daily Yoga/Core routine. I need to build strength and testosterone, with a running theory that my very low T is coupled with the chronic migraine.
A few days recently I've woken with a bad migraine and doing the HIIT exercising *noticeably* reduced the migraine activity. It is momentary, but it definitely happens.
Yet again, this pathway of discovery is turning up all kinds of synchronicity with my condition. This is a paper that did a study on the effect of aerobic versus HIIT training on migraines:
https://pubmed.ncbi.nlm.nih.gov/36229774/
#ChronicMigraine #Migraine #Hyperacusis #Testosterone #Fitness #Mindfulness
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This most recent arm of research into testosterone and migraine led me to including High Intensity Interval Training (HIIT) into my daily Yoga/Core routine. I need to build strength and testosterone, with a running theory that my very low T is coupled with the chronic migraine.
A few days recently I've woken with a bad migraine and doing the HIIT exercising *noticeably* reduced the migraine activity. It is momentary, but it definitely happens.
Yet again, this pathway of discovery is turning up all kinds of synchronicity with my condition. This is a paper that did a study on the effect of aerobic versus HIIT training on migraines:
https://pubmed.ncbi.nlm.nih.gov/36229774/
#ChronicMigraine #Migraine #Hyperacusis #Testosterone #Fitness #Mindfulness
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Interesting article about noise sensitivity. Very recognizable. I couldn't live without my noise-cancelling headphones and earbuds anymore. They've made my life less stressful.
https://www.wired.com/story/noise-sensitive-how-to-tell/
#noise #sound #audio #ear #ears #hearing #NC #NoiseCancelling #loud #stress #silence #sensitivity #hyperacusis #misophonia #article #reading #read #interesting
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Interesting article about noise sensitivity. Very recognizable. I couldn't live without my noise-cancelling headphones and earbuds anymore. They've made my life less stressful.
https://www.wired.com/story/noise-sensitive-how-to-tell/
#noise #sound #audio #ear #ears #hearing #NC #NoiseCancelling #loud #stress #silence #sensitivity #hyperacusis #misophonia #article #reading #read #interesting
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I have released The Hum, my first completed music recording since 2015. It's been a long slow road to get to this point, but I can now say I'm a composer again.
You can hear a sample and buy the entire 11 minute track on my Ko-fi https://ko-fi.com/s/872acbb154
I also wrote about my process for creating this piece, including recovering enough from #MECFS -induced #hyperacusis to play music again. https://liapas.com/2024/03/15/the-hum/
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I have released The Hum, my first completed music recording since 2015. It's been a long slow road to get to this point, but I can now say I'm a composer again.
You can hear a sample and buy the entire 11 minute track on my Ko-fi https://ko-fi.com/s/872acbb154
I also wrote about my process for creating this piece, including recovering enough from #MECFS -induced #hyperacusis to play music again. https://liapas.com/2024/03/15/the-hum/
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In spite every attempt to make sure that my phone would not go off with today’s #EmergencyAlert signal #test, my #iPhone screamed, when I later took it out of #AirplaneMode.
#Hyperacusis triggered, and I felt like I was jolted by about 50k volts of electricity, right down my spine
My body didn’t know how to respond for a moment, and it was all I could do to turn off the phone. My knees buckled!
From now on, I won’t be allowing emergency alerts on my phone. It’s entirely too #painful 😔
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In spite every attempt to make sure that my phone would not go off with today’s #EmergencyAlert signal #test, my #iPhone screamed, when I later took it out of #AirplaneMode.
#Hyperacusis triggered, and I felt like I was jolted by about 50k volts of electricity, right down my spine
My body didn’t know how to respond for a moment, and it was all I could do to turn off the phone. My knees buckled!
From now on, I won’t be allowing emergency alerts on my phone. It’s entirely too #painful 😔
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@kagan #hyperacusis is not a joke. It’s good to see you recognize/acknowledge it
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@kagan #hyperacusis is not a joke. It’s good to see you recognize/acknowledge it
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I know I was complaining about noise a bunch last week. Things could be so much worse, though. I was just cranky. I'm fairly sure I don't actually have #hyperacusis — and my heart goes out to those who do. All my sympathy. Trying to live in #NewYorkCity with hyperacusis sounds difficult, and I salute those who do. (Though, as the article says, there are noises even in rural places.) https://www.curbed.com/2023/08/hyperacusis-noise-living-new-york-city.html
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Many probably know this but I just heard there are some quiet hair dryers on the market now. Could be useful for households where there is somebody with #soundsensitivity e.g. people with #MyalgicEncephalomyelitis, #autism, etc.