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#medical-art — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #medical-art, aggregated by home.social.

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  1. Symptom: Social Security Disability Rejection

    61% of Social Security applicants are denied after their first application. I am now on the second appeal, when 49% of remaining applicants are approved, and have hired a lawyer (disability lawyers are only paid if they win your case).

    I set a new goal on ko-fi, in order to get more illmarks pieces into the world. The fundraising would cover framing two Med Art Advocacy pieces, and submission fees + professional scanning for the Mütter Medical Museum, a Senior Living Center, a Health Care Center & 3 other shows.

    If you are able to comfortably, please buy me a ko-fi. We’re 1/3 of the way to the goal!

    https://www.illmarks.com/symptom-social-security-disability-rejection/

    #artmuseum #BetterFutures #bodyHorror #chronicIllness #chronicIllness #chronicPain #crowdfund #disability #disabilityart #disabilityJustice #FederalGovernment #kofi #longcovid #medicalArt #MillionsMissing #pwLC #pwme #redesignSystems #socialSecurity #SocialSecurityReform #SSI #systemsFailing #TransformativeFutures #UniversalBasicIncome #US #usa #ushealthcare

  2. Hi #PortfolioDay !

    I'm a health&care advocacy designer and artist.

    My current project is
    @illmarks . I began utilizing body mapping art to log my symptoms, but then expanded the practice to include emotional, systemic, and interpersonal aspects of disability.

    I most recently partnered with the University of Washington’s School of Nursing as part of a study on healthcare equity and community tools. I taught a virtual workshop to fellow disabled community members on using symptom mapping art to validate their bodily experiences, which was immensely rewarding.

    I hope to expand how I can apply my creativity and help my communities, and would love to collaborate!

    (The thing I most miss about my work from before I got more disabled and can no longer work full time is interpersonal collaboration, so I'm slowly trying to bring more collaborations back into my life.)

    Please reach out:
    [email protected]

    #Portfolio #Healthcare #DisabilityArt #MedicalArt #SciArt #SciComms #PublicHealth

  3. Diagnosis: Hypermobile Ehlers-Danlos Syndrome

    After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

    Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

     

    Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

    Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

    Final close up.

    https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

    #art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

  4. Symptom: Arthralgia and Arthritis

    I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

    Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

    • Health & Care Advocacy Designer
    • Mast Cell Artist Syndrome
    • Chronically ill-ustrating Health Advocacy
    • Plague Artist

    Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

    • Notorious Self-Diagnoser
    • Health Insurance Reform Enthusiast
    • Creatinine-level Checking Creative
    • Medical System Subverter
    • Bruh They’re a Totally Sick Designer
    • Mario’s Brother Appreciator

    https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

    #art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

  5. 2025_8_19 The symptoms are coming from inside the house.

    2026-3-9 edit: A previous version of this page held steps you can take during the acute infection to lower your risk of Long Covid, or lower the severity of how a reinfection will worsen your existing Long Covid.

    Information on supporting a FULL recovery from SARS-CoV-2 is now more accessible on its own permalink page here, or from the top bar: Information > Got a Covid Infection?

    https://www.illmarks.com/symptoms-are-coming-long-covid-prevention-tips/

    #allergy #art #backToSchool #backtoschool #besafe #bodyHorror #bodyMapping #cdc #chronicIllness #covid #covidIsAirborne #covidIsNotOver #covid19 #covid19 #covidcompetent #CovidIsntOver #environmental #health #healthcare #longCovid #longcovid #maskUp #maskup #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medArt #medart #medblog #medicalArt #MillionsMissing #pwme #SaltingTheVibes #SaltingTheVibes #sarsCov2 #sars2 #sciArt #SciArt #WearAMask #WearARespirator

  6. Symptom: MCAS Brain Fog

    This post comes to you with a reminder that while “Brain Fog,” is an apt descriptor, it should not be used to undermine the severity of the condition.

    “These are fairly identical functional symptoms that people with Long COVID have, to the symptoms that people within a traumatic brain injury have,” says Dr James C Jackson, psychologist specializing on cognitive rehabilitation and Long Covid.

    “Strictly speaking, this is not a traumatic brain injury (TBI) because there’s no external trauma. Which is why if we go down deep, this will be not a TBI that people experience. It would be something called an ABI, the lesser-known cousin of a TBI. Acquired Brain Injuries (ABI) happen often due to internal processes, not external medical processes, inflammation, the 101 other mechanisms that drive these injuries. And when we look at the brains of some Long COVID patients, we see brain damage on MRIs, we see indicators that are not dissimilar from those of people with mild cognitive impairment or a mild TBI.

    Dr Jackson is the author of Clearing the Fog: a book on navigating life with the cognitive and mental health impairments that often accompany Long Covid.

    Quotes from Dr Jackson’s appearance on the Me Myself & TBI podcast, edited for clarity & brevity.

    https://www.illmarks.com/symptom-mcas-brain-fog/

    #abi #allergy #art #autoimmune #bodyHorror #bodyMapping #brainFog #brainfog #chemicallySensitive #chronicIllness #cognitive #cognitiveImpairment #cognitiveImpairments #longCovid #longcovid #mastCell #mastcell #medArt #medart #medical #medicalArt #MillionsMissing #neuro #neurology #neuropsych #psychiatry #Psychology #pwLC #pwme #tbi

  7. 2025-8-9 Is this MCAS anaphylaxis, anxiety, or anaphylaxis from anxiety?

    I almost didn’t want to share this one, because I’m in a bit of a nervous state, and I was worried about the people who think people with Long Covid are psychological malingerers, etc. When I had to leave work, and filed for US Social Security Disability, I kept my Generalized Anxiety Disorder out of my initial application, afraid of getting the dreaded “just anxiety,” dismissal that many complex chronic illness kin are familiar with. (I was later told this was a bad move, and to definitely include all mental health and neurodivergence things, which I did for the ongoing process.)

    Even as I’m having less anaphylaxis risk, it’s taking time to recover psychologically. I told my therapist how I felt like I backslid over a decade in mental health work overnight from the first recent anaphylaxis episode. She kindly said that while I might feel as scared and threatened as I often did back then, that the trigger was different. I was not feeling that anxious about an email, I was feeling that way about a literal life and death situation, one which I still don’t fully understand the triggers of.

    A decade ago, de-stigmatizing mental healthcare was really important to me too. Now, I’m especially aware of how much these issues intersect, so heck yeah, publishing the medical art about anxiety.

    Lastly, I wanted to include few examples of the ways in which these issues intersect. These are absolutely the tip of the iceberg.

    • Postural Orthostatic Tachycardia Syndrome, or POTS, is a form of autonomic dysfuntction (when things your body normally does automatically stop behaving normally), and is a part of my Long Covid. It involves a high heart rate, and often symptoms like room spinning or lightheadedness, trembling or shaking, shortness of breath, and poor bloodflow. POTS is often misdiagnosed as anxiety, and The Disabled Ginger wrote about it here.

    Theories that diseases are caused by mental states and can be cured by will power are always an index of how much is not understood about the physical terrain of a disease.

    Moreover, there is a peculiarly modern predilection for psychological explanations of a disease, as of everything else. Psychologizing seems to provide control over the experiences and events (like grave illnesses) over which people have in fact little or no control. Psychological understanding undermines the ‘reality’ of a disease. That reality has to be explained.

    Susan Sontag, illness as metaphor (New York: Farrar, Straus and Giroux, 1977), p. 55.

    p.s. mental health is physical health and physical health is mental health. you got a literal brain in your body and all of your body is involved in everything that you do. please take care of yourselves and each other. <3

    https://www.illmarks.com/2025-8-9-is-this-mcas-anaphylaxis/

    #allergy #anaphylaxis #anxiety #art #autoimmune #bodyHorror #bodyMapping #chronicIllness #gad #generalizedAnxiety #immune #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medart #medblog #medicalArt #medwriting #mentalHealth #MillionsMissing #pwLC #pwme #SciArt #sciblog #sciwriting #symptom