#long-covid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #long-covid, aggregated by home.social.
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71.5% Reporting Fatigue. Connect the Dots — Let’s Talk About Long COVID.
#LongCOVID #COVIDisNotOver #COVIDisAirborne
Source: https://x.com/PenGwenWithLC/status/2101673462074880488
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71.5% Reporting Fatigue. Connect the Dots — Let’s Talk About Long COVID.
#LongCOVID #COVIDisNotOver #COVIDisAirborne
Source: https://x.com/PenGwenWithLC/status/2101673462074880488
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71.5% Reporting Fatigue. Connect the Dots — Let’s Talk About Long COVID.
#LongCOVID #COVIDisNotOver #COVIDisAirborne
Source: https://x.com/PenGwenWithLC/status/2101673462074880488
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71.5% Reporting Fatigue. Connect the Dots — Let’s Talk About Long COVID.
#LongCOVID #COVIDisNotOver #COVIDisAirborne
Source: https://x.com/PenGwenWithLC/status/2101673462074880488
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71.5% Reporting Fatigue. Connect the Dots — Let’s Talk About Long COVID.
#LongCOVID #COVIDisNotOver #COVIDisAirborne
Source: https://x.com/PenGwenWithLC/status/2101673462074880488
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From Sweden 🇸🇪
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study
https://www.sciencedirect.com/science/article/pii/S2666956026000899
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #NeuroPASC #COVIDBrain -
From Sweden 🇸🇪
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study
https://www.sciencedirect.com/science/article/pii/S2666956026000899
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #NeuroPASC #COVIDBrain -
From Sweden 🇸🇪
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study
https://www.sciencedirect.com/science/article/pii/S2666956026000899
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #NeuroPASC #COVIDBrain -
From Sweden 🇸🇪
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study
https://www.sciencedirect.com/science/article/pii/S2666956026000899
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #NeuroPASC #COVIDBrain -
From Sweden 🇸🇪
Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study
https://www.sciencedirect.com/science/article/pii/S2666956026000899
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #NeuroPASC #COVIDBrain -
Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-723117
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-723117
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-723117
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-723117
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-723117
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CW: open letter about that dubious Telegraph article
From the Overlapping Illness Alliance:
"We are asking The Telegraph to review the framing and factual basis of the article and ensure future coverage of complex chronic illness and disability draws on appropriate evidence, clinical expertise and the voices of people directly affected. ...
"These issues deserve scrutiny. But that scrutiny should focus on the evidence, gaps in care and research, and the systems that are failing people, rather than questioning the legitimacy of those living with illness."
#disability #ableism #media #Telegraph #PoTS #MECFS #LongCovid #EhlersDanlos #MastCellActivationSyndrome #EpistemicInjustice
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CW: open letter about that dubious Telegraph article
From the Overlapping Illness Alliance:
"We are asking The Telegraph to review the framing and factual basis of the article and ensure future coverage of complex chronic illness and disability draws on appropriate evidence, clinical expertise and the voices of people directly affected. ...
"These issues deserve scrutiny. But that scrutiny should focus on the evidence, gaps in care and research, and the systems that are failing people, rather than questioning the legitimacy of those living with illness."
#disability #ableism #media #Telegraph #PoTS #MECFS #LongCovid #EhlersDanlos #MastCellActivationSyndrome #EpistemicInjustice
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CW: open letter about that dubious Telegraph article
From the Overlapping Illness Alliance:
"We are asking The Telegraph to review the framing and factual basis of the article and ensure future coverage of complex chronic illness and disability draws on appropriate evidence, clinical expertise and the voices of people directly affected. ...
"These issues deserve scrutiny. But that scrutiny should focus on the evidence, gaps in care and research, and the systems that are failing people, rather than questioning the legitimacy of those living with illness."
#disability #ableism #media #Telegraph #PoTS #MECFS #LongCovid #EhlersDanlos #MastCellActivationSyndrome #EpistemicInjustice
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CW: open letter about that dubious Telegraph article
From the Overlapping Illness Alliance:
"We are asking The Telegraph to review the framing and factual basis of the article and ensure future coverage of complex chronic illness and disability draws on appropriate evidence, clinical expertise and the voices of people directly affected. ...
"These issues deserve scrutiny. But that scrutiny should focus on the evidence, gaps in care and research, and the systems that are failing people, rather than questioning the legitimacy of those living with illness."
#disability #ableism #media #Telegraph #PoTS #MECFS #LongCovid #EhlersDanlos #MastCellActivationSyndrome #EpistemicInjustice
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CW: open letter about that dubious Telegraph article
From the Overlapping Illness Alliance:
"We are asking The Telegraph to review the framing and factual basis of the article and ensure future coverage of complex chronic illness and disability draws on appropriate evidence, clinical expertise and the voices of people directly affected. ...
"These issues deserve scrutiny. But that scrutiny should focus on the evidence, gaps in care and research, and the systems that are failing people, rather than questioning the legitimacy of those living with illness."
#disability #ableism #media #Telegraph #PoTS #MECFS #LongCovid #EhlersDanlos #MastCellActivationSyndrome #EpistemicInjustice
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Sharing my #mutualaid request again since I'm unfortunately still in need, and I'm sorry ugh 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖💖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness #fedihelp #mutualaidspace #poverty #povertycrowdfund
RE: https://plasmatrap.com/notes/arc2btyjx2 -
Sharing my #mutualaid request again since I'm unfortunately still in need, and I'm sorry ugh 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖💖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness #fedihelp #mutualaidspace
RE: https://plasmatrap.com/notes/arc2btyjx2 -
Sharing my #mutualaid request again since I'm unfortunately still in need, and I'm sorry ugh 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖💖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness #fedihelp #mutualaidspace
RE: https://plasmatrap.com/notes/arc2btyjx2 -
Sharing my #mutualaid request again since I'm unfortunately still in need, and I'm sorry ugh 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖💖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness #fedihelp #mutualaidspace #poverty #povertycrowdfund
RE: https://plasmatrap.com/notes/arc2btyjx2 -
Sharing my #mutualaid request again since I'm unfortunately still in need, and I'm sorry ugh 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖💖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness #fedihelp #mutualaidspace
RE: https://plasmatrap.com/notes/arc2btyjx2 -
@luja Definitiv.
Bei #LongCOVID scheint es zum Teil auch die Hoffnung zu geben, #Lithium könne vorbeugend und / oder heilend wirken.
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@luja Definitiv.
Bei #LongCOVID scheint es zum Teil auch die Hoffnung zu geben, #Lithium könne vorbeugend und / oder heilend wirken.
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@luja Definitiv.
Bei #LongCOVID scheint es zum Teil auch die Hoffnung zu geben, #Lithium könne vorbeugend und / oder heilend wirken.
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@luja Definitiv.
Bei #LongCOVID scheint es zum Teil auch die Hoffnung zu geben, #Lithium könne vorbeugend und / oder heilend wirken.
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@luja Definitiv.
Bei #LongCOVID scheint es zum Teil auch die Hoffnung zu geben, #Lithium könne vorbeugend und / oder heilend wirken.
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From Japan 🇯🇵
FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full
"No group difference or partial correlation remained significant after correction for multiple testing."
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From Japan 🇯🇵
FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full
"No group difference or partial correlation remained significant after correction for multiple testing."
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From Japan 🇯🇵
FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full
"No group difference or partial correlation remained significant after correction for multiple testing."
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From Japan 🇯🇵
FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full
"No group difference or partial correlation remained significant after correction for multiple testing."
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From Japan 🇯🇵
FreeSurfer-based amygdala subfield volumetry in long COVID and ME/CFS: clinical and immunological correlations
https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2026.1913553/full
"No group difference or partial correlation remained significant after correction for multiple testing."
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Wat nieuwe coronavarianten met long covid doen: de risico’s van herbesmetting
https://www.duurzaamnieuws.nl/long-covid-nieuwe-coronavarianten-risicos-van-herbesmetting/
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Wat nieuwe coronavarianten met long covid doen: de risico’s van herbesmetting
https://www.duurzaamnieuws.nl/long-covid-nieuwe-coronavarianten-risicos-van-herbesmetting/
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Wat nieuwe coronavarianten met long covid doen: de risico’s van herbesmetting
https://www.duurzaamnieuws.nl/long-covid-nieuwe-coronavarianten-risicos-van-herbesmetting/
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CW: good story about airborne illness precautions etc
"‘Outdated’ health policies surrounding Covid still pose a danger today, says U of C researcher" – CTVNews
It's an indictment of other news outlets that stories like this are remarkable and unusual!
• Saying plainly that covid is airborne, and Ebola might be
• Advocating "Precautionary principle"
• Photos of people wearing the proper kind of mask (rare)
• Short illustrative story of someone with Long Covid
"As a result, we wound up trying to stop an airborne disease with hand washing, and that’s obviously not going to be very effective"
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CW: good story about airborne illness precautions etc
"‘Outdated’ health policies surrounding Covid still pose a danger today, says U of C researcher" – CTVNews
It's an indictment of other news outlets that stories like this are remarkable and unusual!
• Saying plainly that covid is airborne, and Ebola might be
• Advocating "Precautionary principle"
• Photos of people wearing the proper kind of mask (rare)
• Short illustrative story of someone with Long Covid
"As a result, we wound up trying to stop an airborne disease with hand washing, and that’s obviously not going to be very effective"
-
CW: good story about airborne illness precautions etc
"‘Outdated’ health policies surrounding Covid still pose a danger today, says U of C researcher" – CTVNews
It's an indictment of other news outlets that stories like this are remarkable and unusual!
• Saying plainly that covid is airborne, and Ebola might be
• Advocating "Precautionary principle"
• Photos of people wearing the proper kind of mask (rare)
• Short illustrative story of someone with Long Covid
"As a result, we wound up trying to stop an airborne disease with hand washing, and that’s obviously not going to be very effective"
-
CW: good story about airborne illness precautions etc
"‘Outdated’ health policies surrounding Covid still pose a danger today, says U of C researcher" – CTVNews
It's an indictment of other news outlets that stories like this are remarkable and unusual!
• Saying plainly that covid is airborne, and Ebola might be
• Advocating "Precautionary principle"
• Photos of people wearing the proper kind of mask (rare)
• Short illustrative story of someone with Long Covid
"As a result, we wound up trying to stop an airborne disease with hand washing, and that’s obviously not going to be very effective"
-
CW: good story about airborne illness precautions etc
"‘Outdated’ health policies surrounding Covid still pose a danger today, says U of C researcher" – CTVNews
It's an indictment of other news outlets that stories like this are remarkable and unusual!
• Saying plainly that covid is airborne, and Ebola might be
• Advocating "Precautionary principle"
• Photos of people wearing the proper kind of mask (rare)
• Short illustrative story of someone with Long Covid
"As a result, we wound up trying to stop an airborne disease with hand washing, and that’s obviously not going to be very effective"
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How to Manage and Treat Post-Exertional Malaise (PEM)
https://www.youtube.com/watch?v=Na5znc92ylY
Screenshot from September AMMES newsletter
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How to Manage and Treat Post-Exertional Malaise (PEM)
https://www.youtube.com/watch?v=Na5znc92ylY
Screenshot from September AMMES newsletter
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How to Manage and Treat Post-Exertional Malaise (PEM)
https://www.youtube.com/watch?v=Na5znc92ylY
Screenshot from September AMMES newsletter
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How to Manage and Treat Post-Exertional Malaise (PEM)
https://www.youtube.com/watch?v=Na5znc92ylY
Screenshot from September AMMES newsletter
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How to Manage and Treat Post-Exertional Malaise (PEM)
https://www.youtube.com/watch?v=Na5znc92ylY
Screenshot from September AMMES newsletter
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I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness
RE: https://plasmatrap.com/notes/arc2btyjx2 -
I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness
RE: https://plasmatrap.com/notes/arc2btyjx2 -
I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness
RE: https://plasmatrap.com/notes/arc2btyjx2 -
I'm embarrassingly boosting my #mutualaid request again since I'm unfortunately still in need, and I'm sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness
RE: https://plasmatrap.com/notes/arc2btyjx2 -
RE: https://disabled.social/@tomkindlon/117294411734528757
Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?
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RE: https://disabled.social/@tomkindlon/117294411734528757
Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?
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RE: https://disabled.social/@tomkindlon/117294411734528757
Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?
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RE: https://disabled.social/@tomkindlon/117294411734528757
Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?
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RE: https://disabled.social/@tomkindlon/117294411734528757
Anyone with ME/CFS or Long COVID "within a 2-hour drive of central Melbourne" with enough spoons and wanting to be part of research?
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Begrudgingly sharing my desperate #mutualaid request again since I'm unfortunately still in need, and I'm so sorry 😓 Any little bit of help, shares, or kind words would be SO appreciated! 😖
#disabilitycrowdfund #chronicpain #hEDS #pEDS #POTS #crowdfund #emergencycrowdfund #spoonie #NEISvoid #MECFS #AuDHD #actuallyautistic #autism #longcovid #marfansyndrome #EDS #MCAS #ADHD #disabled #disability #mutualaidrequest #spooniechat #chronicillness
RE: https://plasmatrap.com/notes/arc2btyjx2 -
"On this page you will find ongoing ME/CFS clinical trials looking for participants"
All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international
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"On this page you will find ongoing ME/CFS clinical trials looking for participants"
All currently look like they are in the US except the Open Medicine Foundation Study ME registry which is international