#long-covid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #long-covid, aggregated by home.social.
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· Repeat SARS-C0V-2 infections were linked to a higher odds of new health conditions
[https://www.canada.ca/en/public-health/services/reports-publications/canada-communicable-disease-report-ccdr/monthly-issue/2026-52/issue-9-september-2026/associations-between-self-reported-sars-cov-2-infections-diagnosis-new-health-conditions.html]· #LongCOVID, myalgic encephalomyelitis #ME, and post-treatment #Lyme disease are included as priorities in the new NIAID 2026-2030 Strategic Plan
[https://www.niaid.nih.gov/sites/default/files/niaid-strategic-plan-2026.pdf]· Bezisterim may help with some Long COVID symptoms
[https://thesicktimes.org/2026/09/15/bezisterim-may-help-with-some-long-covid-symptoms-drugs-developer-reports-in-early-trial-results/]https://thesicktimes.org/2026/09/15/research-updates-september-15/
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A new study from Karolinska Institutet 🇸🇪 found that people
with #longCovid experienced increased fatigue, slower reactions, and reduced blood flow in several parts of the brain, possibly linked to cognitive difficulties after COVID-19.
Brain blood flow linked to fat... -
CW: disability, expenses, long covid, POTS
being disabled is always expensive (I have to pay more for things I can use instead of being able to do it myself), but here's an example of a cost that might not be obvious:
I have POTS (postural orthostatic tachycardia syndrome), which means my heartrate spikes when not laying flat :psyduck_sweat:
one tool used to mitigate some of the effects is compression leggings (from my ankles to the bottom of my ribcage), which were $30~40 for a decent pair...
which now doesn't compress my butt and torso very well because I've lost so much of my musculature over the last year of being bedridden :frog_sus:
I've been contemplating having to get a new pair that fits a bit better, but I'm also unsure how long that would last :bear_shrug:
#Disability #Covid #LongCovid #MECFS #POTS
p.s. if you're not disabled, I need you to take in this information, use it to fuel your empathy for disabled people (you will join us one day, as a note), and act on that empathy :hug_love:
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And the missing words. Yet again.
Long Covid.
The govt took decisions that led to a big increase in the number of people with disabilities.
As long as they and the media ignore key reasons, IE long COVID and NHS waiting lists, then we are all threatened by the narrative they promote. -
"The dopamine loss is different from ordinary dips in mood or motivation, Meyer said. It reflects an actual reduction in the density of nerve terminals, not simply lower dopamine output from nerves that remain intact. Whether that’s reversible is still unclear."
https://fortune.com/2026/09/14/long-covid-brain-fog-symptoms-dopamine-nerve-terminals/
via https://mastodon.world/@MJmusicinears/117274431859625905
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From the Netherlands 🇳🇱
A brief report: absence of elevated circulating NETosis markers in long-term long COVID
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
In den vergangenen Jahren habe sich bereits viel bewegt. Ihr Fazit: „Es darf nicht aufhören, und es muss weitergehen.“
Mehr Informationen findet ihr auf unserer Website unter: https://www.fatigatio.de/aktuelles
#MECFS #LongCovid #Patientenbeteiligung #Gesundheitspolitik #Versorgung #Fatigatio
(3/3)
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CW: on Long Covid & motivation / task initiation
Wow, that's really interesting.
I didn't get the kind of "brain fog" where you e.g. can't concentrate enough to read or write, but I did have a phase when my ability to get moving and do things was really noticeably lower than ever before. It was distinct from being exhausted, specifically a task-initiation thing, mitigatable if someone else was available to give me a little bit of help to get started. It went on for months.
Come to think of it, I think I'm still not fully back to my pre-covid baseline on that variable, though I am _mostly_ back, compared with that dip.
And till seeing this info, I'd never put that together as having probably been part of the Long Covid. Wow.
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From Poland 🇵🇱
Microvascular Dysfunction and Redox Imbalance in Long COVID
https://onlinelibrary.wiley.com/doi/10.1111/micc.70085
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
Here's the latest News in Brief (Sept. 7 - 13) from the Science for ME forum, a weekly summary of ME/CFS & Long Covid news including research, advocacy, and coming events.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
Public posts on the forum can be read by anyone, but if you'd like to join the discussion then you'll need to become a forum member. It's free 😁
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Long Covid Kids have developed resources for children and parents including an Individual Healthcare Plan (IHCP) template, available for download as Word or PDF
https://www.longcovidkids.org/download-resources
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#LongCovidKids #PASC -
@whn
I'm wearing my mask, the contractor is wearing theirs, and 2 air purifiers are running (different rooms) while some repairs are being done inside our house.I know nothing is 100% safe but that doesn't mean taking precautions is useless!
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Meine Kolumne für das Mo Magazin für Menschenrechte über ME/CFS
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2/
“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”
#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
@mecfs @longcovid -
Seen in the Dr. Ruth report: "...Shionogi states on their website that Ensitrelvir [Xocova] contains gluten which is very important for Celiac patients to know."
Link to site, though it redirects if you select that you are not a medical professional: https://www.shionogimedical.com/search?product=00P00000000H001&t=0&key_w=gluten
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Conspirituality 325: Long COVID Profiteers
The second half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments such as the Lightning Process, the weak scientific methods behind trials as FALCON, SMILE and PACE and more.
https://www.conspirituality.net/episodes/326-long-covid-updateHaven't listened so far but saw praise for it
#MEcfs #LongCovid #PwME #CFS @mecfs @longcovid
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Very recent videopresentation about ME/CFS and potential treatment using novel molecule IVO-21, from dr Jay H. Chung lab.
#MECFS #BrainFog #LongCovid #Mitochondria #ChronicFatigue
https://www.youtube.com/watch?v=IBXYhRInY0o -
NINDS & MECFSnet - ME/CFS Exchange Webinar Series
Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ETRegister
https://rtiorg.zoom.us/webinar/register/WN_7FrDcz58QtWn0IfMo9AWLQ#/registration -
Film "Stand van Zaken; verhalen van mensen met longcovid." (55 minuten)
Alleen op vimeo gepost door de maker.
Wachtwoord:
vanderhoop85 -
My stitch marker refused to slip to the other needle just because there still was an unknitted stitch before it.
I think this is very rude and I will punish it by having a little food and a big nap.
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ME Research UK:
A study led by Prof. Dmitri Pchejetski has found “shared biology” in five fatigue-related illnesses: ME/CFS, long COVID, PTSD, MS, and RA. However, there are important methodological limitations that must be considered. More info: https://bit.ly/4xPOzid
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
