#long-covid — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #long-covid, aggregated by home.social.
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.
https://s4me.info/threads/news-in-brief-september-2026.52320/#post-721450
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#LongCovid Geen biomarker? Geen excuus. Schade aan het zenuwstelsel, verminderde zuurstofopname en PEM zijn wetenschappelijk te meten via o.a. kanteltafeltesten en CPET-scans. Ziekte is niet pas echt als een standaard bloedtest groen kleurt. 📈
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CW: :boosts_ok: Trans Mutual Aid
If you don't already know me, I'm a heavily disabled poc trans woman who's been bedridden by long covid and me/cfs for the last year (and dealing with long covid for 3ish). I was hoping not to have to make this post but with the way everything is getting more and more expensive in the US right now, I need to.
I'm trying to raise 500 for food and 200 for miscellaneous daily expenses to tide me over for the next few months :frog_blush:
(best option for me) Venmo: OctaviaConAmore
Paypal: https://paypal.me/OctaviaConAmore
Ko-fi: https://ko-fi.com/octaviaconamore
(remember to click the one-time option unless you really want to donate every month :mew_giggle: )(Unfortunately, options other than Venmo take pretty annoying chunks out, but if Venmo isn't an option, they're there as backup.)
Current total: 250/700
If you can't help by donating, please consider helping this post get around by boosting it :hug_love
#MutualAid #TransMutualAid #DisabilityMutualAid #CrowdFund #TransCrowdFund #DisabilityCrowdFund #HelpFolksLive2026 #Covid #LongCovid #MECFS
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Polly Patterson - Supporting Clients Through Medical Gaslighting
https://chroniclivingtherapy.com/supporting-clients-through-medical-gaslighting/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MedicalGaslighting #MEcfs #PwME #LongCovid #chronicillness
@mecfs @longcovid #chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll -
From Singapore
Case Report: Post-Mortem Analysis of Long-Term Inflammation After Mild COVID-19
https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1913045/full
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #auscovid19 #CovidIsNotOver -
Therapy via Messaging
https://chroniclivingtherapy.com/insights-text-based-therapy/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MEcfs #Spoonies #PwME #Spoonie #SevereME #LongCovid #CFS #chronicillness
@mecfs @longcovid #POTS @pots -
From Switzerland
Measurement properties of the 30-second sit-to-stand test in post COVID-19 condition: Results from the PYCNOVID randomised controlled trial
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0348275
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
Watch for free a 15-minute fictional film on person with an unspecified invisible chronic illness
https://www.underground-cinema.com/screening-room?wix-vod-video-id=e133c0f3001b4d09ad9e8ed8aab8c804&wix-vod-comp-id=comp-mtueb2ju*just create a login & scroll to see Warrior Short Film until midnight Sun 13
As someone who took 5+ years to get diagnosed, sadly I can relate
#chronicillness #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #pots @pots #LongCovid @longcovid #invisibleillness #chronicpain
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Die Zeiten (2024-2025), wo es bei mir zwischen sommerlicher PAIS und Winterdepression jeweils noch ein viertel Jahr Pause gab, sind wohl vorbei.
#pais #mecfs #PostCovid #LongCovid #WinterDepression #depression
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Media gaslighting = patient harm
https://chroniclivingtherapy.com/brain-retraining-merry-go-round/
Screenshot from latest edition of the Chronic Living Therapy email bulletin
#MEcfs #PwME #LongCovid #CFS #chronicillness
@mecfs @longcovid -
Microbiome dysbiosis in long COVID: a scoping review of mechanistic insights, symptom associations, and therapeutic targets
Screenshot from latest Science for ME weekly update
https://link.springer.com/article/10.1186/s13099-026-00853-1
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers -
"ME, CFS and Long Covid Service Care and Support Plan (CSP)"
3-page document, one of a number of potentially useful files available here:
https://suffolkfed.org.uk/healthcare-services/me-cfs-long-covid/This service development used a lot of patient input
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From Turkey
Persistent fibroblast-related tissue activity in long COVID after moderate-to-severe acute COVID-19 assessed by [⁶⁸Ga]Ga-FAPI PET/CT
Screenshot from latest Science for ME weekly update
https://www.sciencedirect.com/science/article/pii/S2253808926000662
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC -
CW: disability
I think anyone who has followed me for more than a month has a better grasp of what severe disability can look like than the average person, but just in case, here's a little reading :hug_love:
(I prefer referring to them as spell-slots instead of spoons, but referring to them as spoons does come with the benefit that I eventually get to talk about sporks :cat_giggle: )
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My fatigue has changed. Before my body had energy but my brain wouldn't work properly and felt foggy if I got pem. This week I feel generally fatigued like it's bedtime at the start of the day. Hopefully I can have a nap. Feels like I'm doing too much but I also felt bored yesterday and probably struggling a bit with season change.
I also wonder how much of this is thinking about work and PIP ending in two months. I may get it again but it's far from guaranteed.
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A pneumologist, who supposedly is specialized on #LongCOVID, giving me an appointment for a three hour session?! Yup.
They may well have never heard of #PEM and the need for #Pacing. -
For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief
> Long Covid saps the strength and vitality of patients, who have little recourse to fight it. A team of specialists—including an afflicted researcher working mostly from her bed—is looking for answers
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Ireland: A 22-year-old student first caught COVID in 2022, then developed Long COVID after reinfection the following year, forcing her to drop out of university. Calling for greater support, she said: “As a young person, it can be quite hard to be taken seriously by medical professionals”
Archive link: https://archive.md/q6McV
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From the UK 🇬🇧
Using hyperpolarised xenon magnetic resonance imaging to explore breathlessness in long COVID: results from the EXPLAIN study
https://publications.ersnet.org/content/erjor/12/5/00040-2026
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers
#CovidLung -
Misschien een rare vraag, maar wie weet. Ik proef momenteel weer helemaal niets sinds een week, en het kost me erg veel moeite om iets te eten. Hebben jullie misschien ideeën, probeer eens dit of dat? Het hoeft niet iets verstandigs te zijn, maar als het het eten maar iets makkelijker maakt. Ik heb zelf bedacht om overal mosterd op te smeren, maar meer dan dat het een klein beetje prikkelt in neus en keel levert dat niet op. Maar het is iets. Morgen komt Appie, dus roept u maar!
#LongCovid -
CW: COVID News Pandemic Long COVID
#PandemicRoundup: September 10, 2026 by @violetblue
https://www.patreon.com/violetblue/posts/pandemic-roundup-169126335
#Measles: Still increase in US, now starting in Japan
#Cyclosporiasis: CDC, FDA & US states stopped counting because “season” ended August 31
#Ebola: 3,267 deaths out of 6,757 cases
#COVID: Cases rising just about everywhere, please wear masks, folks!
And much more.
"Stay apart, stand together, mask up, & stay strong."
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Studies on the connection between autoimmune diseases and conditions like POTS and Long Covid might lead to better treatment for Long Covid.
#COVID #LongCovid
https://www.nationalgeographic.com/health/article/pots-long-covid-autoimmune -
Goh, op 1 dag 4 mensen treffen die van LongCovid gehoord hebben, dat enorm ruk vinden, ongeveer weten dat je leven daarvan op de kop staat en waarvan eentje zelfs over pots en pem begint. Moet niet gekker worden.
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Vier mensen hebben vorig jaar voor euthanasie gekozen met postcovid als hoofdreden. Bij zes andere euthanasiegevallen speelde postcovid ook een rol, maar was dat niet de hoofdreden.
#LongCovid We laten mensen ziek worden, bieden geen bewezen behandeling én weigeren de basisinfrastructuur (luchtkwaliteit) aan te pakken. Euthanasiecijfers bij post-covid laten zien hoe ernstig het systeem faalt. Preventie is geen luxe-optie, het is een noodzakelijke bescherming van mensenlevens.
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Ik heb deze blog online weten te krijgen ondanks dat Wordpress evenveel meewerkte als mijn zenuwstelsel
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Zorgkosten rijzen de pan uit en uitval op de arbeidsmarkt groeit. De goedkoopste oplossing ligt voor het oprapen: wettelijk verplichte CO2-meters en #Luchtreiniging in publieke ruimtes. #Preventie bespaart miljarden. 💶
https://locovid.nl/weekbericht-covid19-2026-36/
Groei van aantal arbeidsongeschikten
Er is echter ook een andere manier om de enorme impact van #LongCovid aannemelijk te maken. Als er in Nederland namelijk al 45 miljoen infecties zijn geweest, dan zou 4-35% daaraan langdurige klachten hebben overgehouden, en een kwart daarvan, zeker 1%, zou daardoor ernstig beperkt zijn, invalide dus. Hetgeen zou neerkomen op 450.000 extra invaliden in 6 jaar tijd!