#mastcells — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mastcells, aggregated by home.social.
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I think salting my food increases my reactivity. It's disappointing, since I don't have a lot of variety in my food or options for seasoning it. However, I went salt-free last night at dinner and I enjoyed it - the onions were still quite good.
Though the focus is often on the sodium in table salt, in this case I think the issue might be chloride, so switching to KCl salt substitute would not help - but perhaps I should try it as a test.
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There was an asthma medication that worked well for me.
It was based on sodium cromoglycate / cromolyn / CAS 15826-37-6.King Pharmaceuticals stopped selling their inhalable mixes of it for the western markets.
The brand name was Intal.It appears to have gone out of fashion. I read that a Scandinavian didn't like it.
Base chemical looks to be still manufactured in China. But I don't know if it is made as an asthma drug.
It calmed #MastCells.
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Because of my POTS - I find it very difficult to spend time in the kitchen. Standing in general is difficult - but that’s compounded in a big way by the heat and smells generated by cooking.
Fainting while cooking is far more dangerous than fainting in most other scenarios (with the exception of the shower) and I’ve had a few close calls.
One day I was roasting sweet potato in my oven and when I opened the oven door to pull out the baking tray - I lost consciousness. I came to with the oven door still open, the apartment was a sauna and the sweet potato wedges were all over me and the floor.
It’s a miracle I wasn’t badly burned - though my food was well and truly ruined 😂.
Needless to say I do most cooking in my microwave now - or rely on carers to do my food prep for me.
Still - I found I needed to do something to help my brain not associate kitchen with danger. I had to change the narrative somehow.
So I got a high stool that I can sit on and still reach the counter - and I created a little “inspiration corner” that’s visible from all parts of my kitchen.
Two signs with quotes that make me smile - and my favourite New York Grand Central Terminal clock (so that I always know what time it is!)
#pots #dysautonomia #chronicillness #spoonie #longcovid #mcas #mastcells #mecfs #covidisairborne #CovidIsNotOver #disability #ableism #disabilityrights #decor #fainting
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Because of my POTS - I find it very difficult to spend time in the kitchen. Standing in general is difficult - but that’s compounded in a big way by the heat and smells generated by cooking.
Fainting while cooking is far more dangerous than fainting in most other scenarios (with the exception of the shower) and I’ve had a few close calls.
One day I was roasting sweet potato in my oven and when I opened the oven door to pull out the baking tray - I lost consciousness. I came to with the oven door still open, the apartment was a sauna and the sweet potato wedges were all over me and the floor.
It’s a miracle I wasn’t badly burned - though my food was well and truly ruined 😂.
Needless to say I do most cooking in my microwave now - or rely on carers to do my food prep for me.
Still - I found I needed to do something to help my brain not associate kitchen with danger. I had to change the narrative somehow.
So I got a high stool that I can sit on and still reach the counter - and I created a little “inspiration corner” that’s visible from all parts of my kitchen.
Two signs with quotes that make me smile - and my favourite New York Grand Central Terminal clock (so that I always know what time it is!)
#pots #dysautonomia #chronicillness #spoonie #longcovid #mcas #mastcells #mecfs #covidisairborne #CovidIsNotOver #disability #ableism #disabilityrights #decor #fainting
-
Because of my POTS - I find it very difficult to spend time in the kitchen. Standing in general is difficult - but that’s compounded in a big way by the heat and smells generated by cooking.
Fainting while cooking is far more dangerous than fainting in most other scenarios (with the exception of the shower) and I’ve had a few close calls.
One day I was roasting sweet potato in my oven and when I opened the oven door to pull out the baking tray - I lost consciousness. I came to with the oven door still open, the apartment was a sauna and the sweet potato wedges were all over me and the floor.
It’s a miracle I wasn’t badly burned - though my food was well and truly ruined 😂.
Needless to say I do most cooking in my microwave now - or rely on carers to do my food prep for me.
Still - I found I needed to do something to help my brain not associate kitchen with danger. I had to change the narrative somehow.
So I got a high stool that I can sit on and still reach the counter - and I created a little “inspiration corner” that’s visible from all parts of my kitchen.
Two signs with quotes that make me smile - and my favourite New York Grand Central Terminal clock (so that I always know what time it is!)
#pots #dysautonomia #chronicillness #spoonie #longcovid #mcas #mastcells #mecfs #covidisairborne #CovidIsNotOver #disability #ableism #disabilityrights #decor #fainting
-
Because of my POTS - I find it very difficult to spend time in the kitchen. Standing in general is difficult - but that’s compounded in a big way by the heat and smells generated by cooking.
Fainting while cooking is far more dangerous than fainting in most other scenarios (with the exception of the shower) and I’ve had a few close calls.
One day I was roasting sweet potato in my oven and when I opened the oven door to pull out the baking tray - I lost consciousness. I came to with the oven door still open, the apartment was a sauna and the sweet potato wedges were all over me and the floor.
It’s a miracle I wasn’t badly burned - though my food was well and truly ruined 😂.
Needless to say I do most cooking in my microwave now - or rely on carers to do my food prep for me.
Still - I found I needed to do something to help my brain not associate kitchen with danger. I had to change the narrative somehow.
So I got a high stool that I can sit on and still reach the counter - and I created a little “inspiration corner” that’s visible from all parts of my kitchen.
Two signs with quotes that make me smile - and my favourite New York Grand Central Terminal clock (so that I always know what time it is!)
#pots #dysautonomia #chronicillness #spoonie #longcovid #mcas #mastcells #mecfs #covidisairborne #CovidIsNotOver #disability #ableism #disabilityrights #decor #fainting
-
Because of my POTS - I find it very difficult to spend time in the kitchen. Standing in general is difficult - but that’s compounded in a big way by the heat and smells generated by cooking.
Fainting while cooking is far more dangerous than fainting in most other scenarios (with the exception of the shower) and I’ve had a few close calls.
One day I was roasting sweet potato in my oven and when I opened the oven door to pull out the baking tray - I lost consciousness. I came to with the oven door still open, the apartment was a sauna and the sweet potato wedges were all over me and the floor.
It’s a miracle I wasn’t badly burned - though my food was well and truly ruined 😂.
Needless to say I do most cooking in my microwave now - or rely on carers to do my food prep for me.
Still - I found I needed to do something to help my brain not associate kitchen with danger. I had to change the narrative somehow.
So I got a high stool that I can sit on and still reach the counter - and I created a little “inspiration corner” that’s visible from all parts of my kitchen.
Two signs with quotes that make me smile - and my favourite New York Grand Central Terminal clock (so that I always know what time it is!)
#pots #dysautonomia #chronicillness #spoonie #longcovid #mcas #mastcells #mecfs #covidisairborne #CovidIsNotOver #disability #ableism #disabilityrights #decor #fainting