#ehlersdanlossyndromes — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #ehlersdanlossyndromes, aggregated by home.social.
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I'm finding perimenopause with MCAS, Ehlers-Danlos (just hypermobile), and AuDHD hard as fuck. Anyone got survival tips? #perimenopause #ActuallyAutistic #ADHD #MCAS #EhlersDanlosSyndromes
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'#EhlersDanlosSyndromes and Related Disorders: Diagnostic Challenges and the Need for an Interdisciplinary Patient Care in Germany' - a Karger: #Dermatology #Research article on #ScienceOpen: https://www.scienceopen.com/document?vid=733d87e8-21cb-4b72-acb9-a19bf258be23
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Is there anything about POTS, MCAS, EDS or chronic illness in general that you’ve always wanted to know? Something that you don’t think gets discussed enough?
I’m building out a series of posts on these difficult conditions - and open to any and all suggestions!
#chronicillness #EDS #POTS #MCAS #Dysautonomia #EhlersDanlosSyndromes #spoonie #mastcells #disabilty
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Gastroparesis Awareness Month. Gastroparesis is often associated with Ehlers-Danlos syndrome, EDS, and ME/CFS.
https://www.thecanary.co/uk/news/2024/08/13/gastroparesis/?__s=9bm2sty5aen2kqh2i4ez -
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny -
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny -
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny -
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny -
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny