#disabilitymastodon — Public Fediverse posts

#NowReReading2026 YEAR OF THE TIGER: AN ACTIVIST'S LIFE by my friend the late @sfdirewolf
whom I miss everyday via
@vintagebooks
imbibed at Chapter 1 Coffee #Coffee #Books @bookstodon #BookStodon #BookMastodon #DisStodon #DIsability #CoffeeStodon #CoffeeMastodon #DisabilityMastodon

#NowReReading2026 YEAR OF THE TIGER: AN ACTIVIST'S LIFE by my friend the late @sfdirewolf
whom I miss everyday via
@vintagebooks
imbibed at Chapter 1 Coffee #Coffee #Books @bookstodon #BookStodon #BookMastodon #DisStodon #DIsability #CoffeeStodon #CoffeeMastodon #DisabilityMastodon

#MadLiterature
Available for pre order:

A Mad Turn
Edited by Phil Smith

Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

https://autonomous-press.myshopify.com/products/a-mad-turn

Hashtags & Group mentions below
#LivingMad
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

——

@MadMovementMastodon @[email protected] @disability @[email protected]
@disabilityhistory @neurodivergence

#MadLiterature
Available for pre order:

A Mad Turn
Edited by Phil Smith

Written by Mad scholars, A Mad Turn explores the field of Mad Studies in theory and practice, and what Mad Studies can bring to academia and to other social institutions. What does it mean to “do” Mad Studies? What are the field’s intersections with disability justice, Mad justice, and gender and queer studies? This book is a bold step toward the Mad Studies yet-to-come—a Mad Studies that Mad people will build, twisting and turning and singing and dancing, a new realm of thinking-being-doing-knowing. Step into it with us.

https://autonomous-press.myshopify.com/products/a-mad-turn

Hashtags & Group mentions below
#LivingMad
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

——

@MadMovementMastodon @[email protected] @disability @[email protected]
@disabilityhistory @neurodivergence

I’m interested in memoirs, blogs etcetera telling stories of resilience, surviving psychiatry, trauma (developmental). Please share them if you know any.
#MadLiterature

Lisa Wallace on why she left psychiatric care and why she may return one day

https://www.psychiatrymargins.com/p/guest-post-a-psychiatric-survivor?r=c50ah&utm_medium=ios&utm_campaign=post

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

The Soteria model relies on personal relationships, interactive activities, and minimal use of psychiatric medication within a comfortable “living community” as opposed to a conventional psychiatric setting.

#MadLiterature
How Does the Soteria House Heal?
The alternative treatment model of Soteria helps individuals suffering from schizophrenia without relying on medication or coercion.

https://www.madinamerica.com/2019/09/soteria-house-heal/

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth #instutionalization #PeerSupport #asylum
——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

#MadLiterature
Searching for the “Psychiatric Yeti”: Schizophrenia Is Not Genetic
https://www.madinamerica.com/2024/01/psychiatric-yeti-schizophrenia-genetic/?mc_cid=91cea752ff&mc_eid=1b94bba8b7

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice #AltMentalHealth
——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

#MadLiterature

Empire of Normality
Neurodiversity and Capitalism
by Robert Chapman

This is a priority read for me!

I’m looking forward to how Chapman explains the emergence and rise of the pathology paradigm and its entanglement with the fundamental logic of capitalism. Specifically how the medical and scientific definitions of illness, disability, and normality have grown in response to economic and ideological developments.

https://www.plutobooks.com/9780745348667/empire-of-normality/?utm_source=substack&utm_medium=email

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation #SystemicInjustice

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

…the need to offer a positive account of mental illness—one that does not define the essence of mental illness exclusively as the absence, lack, or failure of the power of reasoning…

On the Importance of Conceptual Contrasts Madness, Reason, and Mad Pride
Awais Aftab

https://muse.jhu.edu/pub/1/article/916209 (open source)
#MadLiterature

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

#MadLiterature

Mad Pride and Neurodiversity
Personal Perspective: Parallel movements of lived experience.

https://www.psychologytoday.com/us/blog/beyond-mental-health/202312/mad-pride-and-neurodiversity?fbclid=IwAR0u8DfRIP4cLRQu_t0uA7MqwJfNTE9WQPwUFHzms7AQ7hbS9z4B226gDko_aem_Abdvn_RWjUPuiUr977ry7-2Dm1fT1OTQR4WSHVutATg7Y9n0HiugSwNLeguoMzZY_x0

Hashtags & Group mentions below

#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

#MadLiterature
from lived experience to theory
Open access article

The Lived Experiences of Family Members and
Carers of People with Psychosis: A Bottom-Up
Review Co-Written by Experts by Experience and
Academics

https://pubmed.ncbi.nlm.nih.gov/36689938/

Hashtags & Group mentions below

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Alternative ways to understand psychiatric differences

#MadLiterature

Mind Freedom International library of information about mental health, psychiatry, human rights & alternatives

https://mindfreedom.org/knowledgebase/

thank you @leftvu
Hashtags & Group mentions below

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

industrial culture / capitalism depends on the “have-nots”

#MadLiterature

Lifting Families out of Poverty May Prevent Psychosis
https://www.madinamerica.com/2023/09/jama-psychiatry-lifting-families-out-of-poverty-may-prevent-psychosis/

thank you @leftvu

Hashtags & Group mentions below
#SystemicInjustice
#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Philosophy and Madness a combination that makes me smile!!!
#MadLiterature
Too mad to be true II - The promises and perils of the first-person perspective

https://www.psychiatrieenfilosofie.nl/too-mad-to-be-true-ii

The second Too Mad To Be True conference that was dedicated to exploring the various links between philosophy and madness. The atmosphere was vibrant and it initiated new ways of thinking and communicating around issues of madness and philosophy. The central theme was both relevant to philosophical and mad theories and practices: ' The promises and perils of the first-person perspective'. The conference was hybrid: both in person, in Ghent, Belgium, as well as online. 

Hashtags & Group mentions below

#PeerSupport #AltMentalHealth
#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Sanism is normalized in relationships with institutions.
It’s not talked about.
It’s woven tightly into unquestioned assumptions (common sense knowledge)
It’s a tool for power and control.

#MadLiterature
The Wildflower Alliance

Grassroots Peer Support, Advocacy, and Training organization with a focus on harm reduction and human rights.
https://wildfloweralliance.org/

Thank you @leftvu 😍

Hashtags and groups below

#PeerSupport #AltMentalHealth #instutionalization
#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Two waves (1950s & 1970s) of systemic deinstitutionalisation and there are more “beds” than before; they just look different.

#MadLiterature

Busting the Deinstitutionalization Myth: We Actually Have More Beds Than Ever Before
New data upends common beliefs about asylum closures, deinstitutionalization, and rates of psychiatric coercion.

https://www.madinamerica.com/2023/08/busting-deinstitutionalization-myth/?utm_source=substack&utm_medium=email

Hashtags & Group mentions below
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#eugenics #asylum #CarceralAbleism
#AntiBlackSanism #instutionalization

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Mad Crip doula: offering holistic and emotional spiritual bodymind care, mixed with practical and crisis support (and plant medicine). moving from a liberation-centered and anti-oppressive lens. a transition doula with skills in: abortion, death, grief, Madness, and Disability.

#MadLiterature

https://www.stefaniekaufman.com/madcripdoula

endorsing: non-carceral, peer-led mental health care systems that exist outside of the state, reimagining everything we’ve come to learn about madness, and intervening in systems that oppress, disappear, and kill Disabled and mad folks.

Please Note: I don’t know Them in any capacity and They sure look bad-ass

Hashtags & Group mentions below
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#CarceralAbleism
#instutionalization

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories #isolation

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

Hashtags & Group mentions below
#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Disability doula. Peer support. Social support. Physical support. Cultural roots.

#MadLiterature
Newly disabled people aren’t given a ‘how-to’ guide. Disability doulas are closing those gaps.
The community care practice, pioneered by queer women of color, reorients newly disabled people to a different life

https://19thnews.org/2023/07/disability-doulas-support-newly-disabled-people/

Hashtags & Group mentions below
#AntiBlackSanism
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Open Minded Online
sharing ideas and resources about holistic approaches to emotional and social wellbeing

We are two people who both have a great passion for holistic approaches to mental health. This passion has grown out of our own experiences of receiving traditional psychiatric treatment and finding it lacking.

We believe that it is possible to make sense of intense states of mind often described as psychosis.

#MadLiterature
https://openmindedonline.com/resources/

Hashtags & Group mentions below
#asylum #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

This phenomenon makes me SO mad, and it feels SO ableist.

How do you think it feels every time I have to figure out whether it matters that my 10 surgeries don’t fit in the one line you gave me?

Or that my rare genetic conditions don’t fit in that tiny “other” line?

Or checking boxes for symptoms I know you’ll ignore because I deal with chronic illness?

I optimize for large medical systems to minimize paperwork.

#disabilityMastodon #disabilitydon #serviceDesign

https://mstdn.social/@erictopol/110848788295322602

This phenomenon makes me SO mad, and it feels SO ableist.

How do you think it feels every time I have to figure out whether it matters that my 10 surgeries don’t fit in the one line you gave me?

Or that my rare genetic conditions don’t fit in that tiny “other” line?

Or checking boxes for symptoms I know you’ll ignore because I deal with chronic illness?

I optimize for large medical systems to minimize paperwork.

#disabilityMastodon #disabilitydon #serviceDesign

https://mstdn.social/@erictopol/110848788295322602

#MadLiterature in progress:
RD Laing, David Cooper, Ervin Goffman, & Thomas Szaz
Interesting. History.
——
Hashtags & Group mentions below

#eugenics #asylum #CarceralAbleism.
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected] @disabilityhistory @neurodivergence

Worked on an Excel timeline of events and I’m near 200 lines and we only just landed in Atlanta 🙃 I want to make sure I write my article from the facts. Most lines in the first day are backed up by a timestamp or screenshot in a support text or app. That’s on top of the Tweets. I believe this is what’s commonly referred to as “having the receipts”. #DisabilityMastodon #travel #delta #discrimination

Worked on an Excel timeline of events and I’m near 200 lines and we only just landed in Atlanta 🙃 I want to make sure I write my article from the facts. Most lines in the first day are backed up by a timestamp or screenshot in a support text or app. That’s on top of the Tweets. I believe this is what’s commonly referred to as “having the receipts”. #DisabilityMastodon #travel #delta #discrimination

Alexa, play music for bringing a giant airline to account for breaking the law #discrimination #disability #DisabilityMastodon #travel #delta

https://twitter.com/funnygodmother/status/1680747630874460165?s=46&t=k42F6THqZl4XtJYzr7yT4Q

Alexa, play music for bringing a giant airline to account for breaking the law #discrimination #disability #DisabilityMastodon #travel #delta

https://twitter.com/funnygodmother/status/1680747630874460165?s=46&t=k42F6THqZl4XtJYzr7yT4Q

Enclosure and debilitating restriction.
Enmeshing of care & treatment & dehumanization and loss of agency.

#MadLiterature
Institutions Often Treat Disability and Mental Health Not With Care But Violence
by George Yancy
https://truthout.org/articles/institutions-often-treat-disability-and-mental-health-not-with-care-but-violence/

——
Hashtags & Group mentions below

#eugenics #asylum #CarceralAbleism.
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Nonnormativity.
Resist compulsory able-mindedness.
Chronically dysregulated.
Tenderness.
Inclusive neuroqueer feminist communities.

#MadLiterature
Neuroqueer Feminism: Turning with Tenderness toward Borderline Personality Disorder

By: Merri Lisa Johnson
https://sci-hub.ru/10.1086/712081

#Neuroqueer #Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

Hear me out. I'm #autistic, #ADHD, and have a #MoodDisorder so what about BipAuDHD? Pronounced "bipod". Although "bipodded" sounds cool too, don't you think?
#DisabilityMastodon
#sarcasmintended

Hear me out. I'm #autistic, #ADHD, and have a #MoodDisorder so what about BipAuDHD? Pronounced "bipod". Although "bipodded" sounds cool too, don't you think?
#DisabilityMastodon
#sarcasmintended

I just tried to reorder some first aid supplies on Amazon using my FSA card, and it wouldn't let me choose that as a payment option. I chatted with their customer service, who told me that Amazon currently has a problem where they can't process payments on FSA cards, no ETA for a fix. Hopefully they'll fix it soon, but I'm just imagining the mess behind the scenes over there! I wonder how much money they'll lose by the time this is all done.

#FSA #FSACard #Amazon #MedicalSupplies #Disability #DisabilityMastodon

Politics of madness;
racism. institutionalization. story of place. history of schizophrenia.
#MadLiterature
The Protest Psychosis: How Schizophrenia Became a Black Disease
by Jonathan Metzl

——
Hashtags & Group mentions below

#eugenics #history #michigan #asylum
#AntiBlackSanism #instutionalization
#Madness #MadMastodon #MadPride #MadThought
#MadMovement #MadStudies #Mad #Madodon #TransMad

#Ablesim #DisabilityCommunity #InvisibleDisabilities
#PsychiatricSurvivor #AntiPsychiatry #DisabilityJustice
#LivedExperience #PsychSurvivor #ChronicPain
#DisabilityMastodon #Neurodivergent #RadicalMentalHealth
#CripCamp #DisabilityRights #NeuroDiversity
#Sanism #Disability #DisabilityStudies
#Stories

——

@MadMovementMastodon
@[email protected]
@disability
@[email protected]
@disabilityhistory
@neurodivergence

If you see people on Mastodon talking about "spoons" in a way that doesn't seem to make sense, they are probably making a reference to "Spoon Theory," a great analogy for limited & unpredictable personal resources.

Here's the original Spoons essay that started it all, which is well worth a quick moment to read.

https://web.archive.org/web/20191117210039/https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

#Spoons #SpoonTheory #DisabilityMastodon #Etymology #LongCovid

@[email protected] I think whatever we become we'll really only have 'succeeded' if #Calckey leads the way with #FediverseSafety ahead of features and scale.

The Calckey I see would
- have a diverse team of folks that has the time to listen to the safety discourses, and the lived experience to know why safety matters, and informs their #development decisions.
- make importing #blocklists or integrating third party #moderation tools easypeasy, so no user finds themselves on an new server that's open to dogpiled by the worst elements of the #Fediverse.
- have robust #accessibility features that are as important to promote as #quoteposts and #MFM.
- have granular user controls for #safety - opt-in & opt-out; and features - like turning down/off MFM when it's overwhelming without a user needing to resort to CSS scripts.
- not really care to be a birdsite or #Mastodon alternative. Let's work to be a better secret third thing, or fourth, or fifth thing.

If we really have to duplicate the big influencer account thing, I'd like to see more non-White, autistic, disabled, queers, and women voices. They're here, but they're often forced to be critics of a newer hegemony. Let's be listening for how can Calckey become the main service of choice for Black, POC and Indigenous women to join, spin up servers, become developers, and have prominent voices on. The rest of the good stuff will follow that.

I think we can do that, but only if we prioritise, and promote minority voices, and do the structural work to support them coming to the service.

#FindAServer #Disability #DisabilityMastodon #Queer #structuralbarriers #structural

Hey #NEISvoid would anyone be interested in a thread on lever drives? They're a type of power assist for wheelchairs, and something I hope to get for myself. If so, what times would be best to post it? Looking to make sure maximum amount of folk can find it

#ChronicPain #disability #BlackTwitter #DisabilityTwitter #BlackFedi #DisabledFedi #DisabledCreator #BlackArt #BlackMastodon #ChronicIllness #DisabilityMastodon

I am sick of being put on a pedestal by people I know, which actively results in them pulling away and providing less support when I need it most. I am sick of the whole “but you’re so strong” argument - I have had no choice, and everyone has their breaking point. Past performance is no indicator of future results, and if you’re failing to acknowledge the current situation you’re objectifying me to make yourself more comfortable. #DisabilityMastodon #WomenInSTEM #gamedev

Important read to boost your data literacy and ability to protect yourself online when seeking mental health care. There are significant gaps in HIPAA that allow companies like BetterHelp to skirt the lines of unethical behavior without significant repercussions. Tons of very sensitive data was shared with Facebook and data brokers at multiple companies. #disabilityMastodon https://www.businessinsider.com/online-therapy-mental-health-apps-betterhelp-talkspace-cerebral-dark-side-2023-4

All this to say it sucks right now in my little bubble AND I can’t imagine how hard it is for the many folks with these conditions who do not have some of these supports. US disability support is a travesty, and there are lots of employers where it’s dangerous or impossible to be open at all. Not to mention the time and emotional drain every day, planning and managing care. I see you. I’m sorry. It sucks. #DisabilityMastodon #LongCOVID

From August 2020 to May 2021, I needed 4 *major* surgeries: reconstruction of my right arm/hand due to debilitating EDS pain, reconstruction of my left arm/hand due to debilitating EDS pain, an emergency appendectomy, and then a toupet fundoplication (reinforcement of the esophegeal joint with the stomach) to treat sudden severe GERD that was starting to risk damage to my vocal cords. I have 28 scars from those 10 months. The timing of all that… was sus. #DisabilityMastodon

This is what I mean when I say I’m disabled. I can’t control when i am able to fully engage with society. There are days when it is not practical or safe for me to leave the home. There are days when I can’t really manage most solid food. I have 6 doctors in LA and I am on many maintenance prescriptions to keep me treading water. The flares are not for lack of trying. The flares are a sign the trying is working, as without the trying it’d be that way *always*. #DisabilityMastodon

I lost so much of my free time this week to disability flares. No one really sees this but my husband, but it is so demoralizing. Sometimes migraines that don’t respond to meds. Sometimes nerve pain when I sit so I have to lie down. Sometimes completely inexplicable 4/10+ abdominal pain that isn’t tied to any specific food. (These aren’t the only types.) ALL THREE of those hit this week separately. Tested negative for COVID twice this week with multiple swabbing sites. #DisabilityMastodon #hEDS

ME: hey it hurts to breathe and I don't have COVID

xray: totes normal, BTW surgical clips visualized in abdomen

ME: wut

*furiously looks for 740 page medical history files to see surgical reports*

#DisabilityMastodon

and this is on top of an appointment next week for an ENTIRELY SEPARATE issue, and an appointment 2 weeks from now for a THIRD ENTIRELY SEPARATE genetic condition.

This is why I can't respond to the 100 totally generic requests in my inbox asking to "pick my brain" or "get to know me" about breaking into UX. I barely get time to eat, breathe, work, and sleep on top of all of that. Writing is the only way I can be efficient in helping others. #DisabilityMastodon #uxdesign

Took another series of messages and calls because the specialist referral was booking out in AUGUST and wouldn't even pencil me in. I can't even. I'm booked now (for tomorrow and 2wks from now), but took all morning, while in pain, while balancing my meetings, to get into specialists I was prescribed to see for an emergent issue that a nurse said required ER treatment last night. And this is basically the best case scenario where I could get initial intake within 24 hours. #DisabilityMastodon

NURSE: yeah that’s not a good set of symptoms you should go to urgent care
DOCTOR: yeah agreed super weird you need an ultrasound
ULTRASOUND SCHEDULERS: great, so your appointment is for the middle of June…

What the ACTUAL F. This is why I don’t bother seeking treatment for so much of my chronic pain. Even when it does get taken seriously, the obstacles to diagnosis can be absurd. At that point if there’s something urgently wrong it’ll be too late. #DisabilityMastodon

I want to break the Twitter habit, but many folks I value are still only there. And there’s a weird dynamic where I will wake up in pain and go engage in conversations with other people over there in bulk. I don’t post a lot of unique content over there - usually that comes here - but it still means a lot of posting because I’m in a lot of pain and there’s a lot of spice to be had in #UXDesign. #DisabilityMastodon

Had a lovely "well THAT'S not supposed to be physically possible" symptom scare this morning and I'll be waiting all day to hear from doctor whether it's urgent care or normal appointment territory. Because if I went every day I had pain or symptoms I would be unemployed, and we need to separate signal from noise. Just another day on #disabilitymastodon

This week I had a lot of spicy opinions. I started by trying to share here, but my Mastodon app Tooot kept erroring out when I submitted alt text, blowing everything out. With my disability, ironically, trying to cope with the bug in the accessibility feature became a physical risk so I went back over to Twitter to talk about things.

I have other clients - Ivory, etc - but they have other issues. I really like Mastodon, but this is what #DisabilityMastodon meant about accessibility. #uxdesign

Iconic Jewish disability rights leader Judy Heumann died on Shabbat.

It’s #Purim, the holiday where we laugh because it hurts too much not to.

Let’s honor her memory with disability humor and funny stories.

#Mazeldon #DisabilityMastodon #JudyHeumann

I want to read some middle grades books with disabled characters, especially if they are #OwnVoices. Anyone have recommendations?
#kidlit #DisabilityMastodon