#iacc — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #iacc, aggregated by home.social.
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This is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more. -
This is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more. -
This is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more. -
This is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more. -
This is my favourite podcast on complex chronic conditions so far:
🎙️Make Visible: Chronic Illness Explored
Homepage:
https://madevisible.podbean.com/Themes included:
ME/CFS
Long Covid
Ehlers Danlos ( #EDS )
#Fibromyalgia
#POTS
Mast Cell Activation Syndrome ( #MCAS )
Chronic Lyme
Infection Associated Chronic Conditions ( #IACC ) and more. -
True!
Quote from a 2022 paper:
"SARS-CoV-2 is not unique in its ability to cause post-acute sequelae; certain acute infections have long been associated with an unexplained chronic disability in a minority of patients."
This paper uses the term Post-Acute Infection Syndrome (PAIS). Another umbrella term I've heard is Infection Associated Chronic Conditions (IACC).
Link:
https://www.nature.com/articles/s41591-022-01810-6
#LongCovid #MEcfs #PASC #PAIS #IACC #ChronicIllness #Disability
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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Well worth reading this article, especially if you've experienced medical gaslighting, minimizing, dismissal, or abuse. And if you haven't, still worth reading -- the chronic illness and disability communities are two that any person can join at any time, without warning.
https://drzedzha.substack.com/p/the-patient-with-the-splinter
#LongCovid #ComplexChronicIllness #MECFS #undiagnosedillness #IACC #InfectionAssociatedChronicConditions #PostViralIllness #spoonie #disability #medicalgaslighting
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By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
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By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
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By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
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By @RTHM_Health
"A new study suggests that exercise doesn’t clear microclots in people with Long COVID—it just fragments them into smaller ones. These smaller clots are linked to increased inflammation and impaired oxygen transport, which may help explain post-exertional malaise (PEM) and post-exertional symptom exacerbation (PESE)—a worsening of symptoms after even mild physical or mental effort."
"Researchers observed these microclot and inflammatory changes even after submaximal exertion, highlighting the need for caution when recommending exercise-based therapies."
Want more research breakdowns like this? Sign up for our email list at https://linktr.ee/rthm_health
🔗 DOI: https://doi.org/10.21203/rs.3.rs-6717727/v1
#LongCOVID #ChronicFatigue #pwLC #PostCOVID #rthm_health #LongCOVIDResearch #PESE #PEM #IACC #COVID19 #Microclots @auscovid19
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David Putrino's 🎯 🧵 below connects a lot of dots and many top researchers/scientists in this space👇 threadreaderapp.com/thread/19334... 🙏 @putrinolab.bsky.social #LongCOVID, #MECFS, #Lyme, #IACI, #IACC
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Doctors as Patients
(subtitled)In this film, five medical doctors open up about living with #PAIS / #IACC conditions like ME, #longCOVID, and chronic #Lyme. [...] They speak candidly about their experiences with illness, what they were taught (or not taught) in medical school, and how that shaped their own treatment decisions—sometimes even leading to harm. They reflect on how becoming patients themselves radically changed their views on medicine, science, and what needs to change in healthcare. It’s raw, honest, and incredibly insightful—for medical professionals, researchers, politicians, and patients alike.
(YT)
https://www.youtube.com/watch?v=J0ywwLIfH_w(Shared by @venite : who is right about many things, but especially this documentary)
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LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
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LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
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LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
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LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
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LongCovid and MECFS - WEBINAR WILL DR. DAVID PUTRINO
#IACC #LongCOVID #LongCOVIDResearch #MECFS #POTS #MCAS #COVID19 #COVIDisNotOver #rthm_health #LongCOVIDTreatments #ChronicIllnessCare
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#Clinician's Roundtable with Tania Dempsey, MD on March 14th
Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid, followed by a 15-minute Q&A .
Register now at https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration
#iacc #chronic #illness #infectious #MD #clinician #medX #patientled #millionsmissing #nesvoid #pwME
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#Clinician's Roundtable with Tania Dempsey, MD on March 14th
Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid, followed by a 15-minute Q&A .
Register now at https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration
#iacc #chronic #illness #infectious #MD #clinician #medX #patientled #millionsmissing #nesvoid #pwME
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#Clinician's Roundtable with Tania Dempsey, MD on March 14th
Dr. Dempsey will give a 45-minute lecture on #vector-borne illnesses often seen as co-infections in #MECFS and #LongCovid, followed by a 15-minute Q&A .
Register now at https://us06web.zoom.us/webinar/register/2117347281730/WN_qDphjDHhQa-OXwLpvxgEAw#/registration
#iacc #chronic #illness #infectious #MD #clinician #medX #patientled #millionsmissing #nesvoid #pwME
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The threat to #publichealth has never been greater. Your support helps push back against rising obstacles, sustain progress, & ensure the #LongCOVID & #IACC communities are seen, supported, & empowered. Please stand w/ us as we #FightforOurFuture!
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If national authorities are unwilling or unable to take action against serious cases of #corruption an International Anti-Corruption Court #IACC should step in and end impunity. A campaign for the creation of such a court was launched by Integrity Initiatives International a couple of years ago. As an important step in defending #democracy the project is endorsed by Democracy Without Borders and many other pro-democracy groups. Read more about it on our blog: https://www.democracywithoutborders.org/32898/
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#LongCOVID is an Infection-Associated Chronic Condition (#IACC); a chronic health issue after a bacterial, viral, fungal, or parasitic infection that can reduce QoL & result in disability.
Visit longhauler-advocacy.org/longcovidad24 for more actions, tag us & share using #LongCOVIDAD24
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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If you could give the world a message about #longcovid in 1-2 sentences, what would you say?
#PSA #C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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What have you developed as a result of #LongCOVID?
#LongCOVID is systemic and results in a collection of associated conditions, making care extremely difficult to find and/ or coordinate. These specialties lack interest and therefore clinicians and researchers within. We need more clinician education and research into these conditions!
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #med #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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The only way to #preventlongcovid is to prevent #Covid. How do you prevent infection?
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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What type of medical provider have you found most helpful in managing your #longCovid (if found).
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #COVID #disability
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#LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability
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#LongCOVID is a complex and systemic illness, requiring multi-specialty care and coordination. The underlying mechanism of #longCOVID has not yet been proven, but several theories have risen to the top of the list. Preventing #COVID -19 is the only way to prevent #LongCovid.
#C19LAP #Longhauler #IACC #InfectionAssociatedChronicIllness #medtok #COVID #disability