#fibro — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fibro, aggregated by home.social.
-
The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
-
The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
-
The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
-
The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
-
The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
-
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
-
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
-
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
-
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
-
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
-
#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
From Turkey
"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"
https://www.mdpi.com/2077-0383/15/3/1098
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM -
Well done to the Fibromyalgia Support Group of Winnipeg for its donation of $40,000 to new research project led by Dr Alain Moreau 👏
Would be great to see more money being raised privately for fibromyalgia research
-
2/
"10 Rules for Those who Love ME/CFS and FM Patients"https://massmecfs.org/disease-information/coping-self-care/ten-rules/
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
-
"10 Rules for Those who Love ME/CFS and FM Patients"
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
1 of 2
-
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
“Fibromyalgia is now recognized as a disability, expanding rights in Brazil.
Law No. 15.176/2025 guarantees preferential treatment, inclusion in the job market, and other benefits.” -
Been listening to #Ren's latest Tale on loop and it's getting harder to talk about his videos because in the earlier days you'd listen to a song, be very impressed, watch the video be in awe but the way he's making this series now I'm stunned. he speaks directly to my core, the production is every bit as clever and on the beat as anything #EdgarWright's done. He's literally the reason I feel I can get through all this #MECFS #Fibro crap.
https://youtube.com/playlist?list=PLDa_ZTVQ7MTZJnsAIiQ47DR9NN9-_xOMM&si=jc6iGSmvJ4BRxkDb
-
Pain relief by targeting nonrestorative sleep in fibromyalgia: a phase 3 randomized trial of bedtime sublingual cyclobenzaprine
https://academic.oup.com/painmedicine/article/27/1/86/8193722Also
https://www.ajmc.com/view/by-improving-sleep-tnx-102-sl-reduces-pain-and-fatigue-in-fibromyalgiaNote: most of these authors work for the drug company
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
-
Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #hiddenillness #invisibleillness
#ChronicIllnesses #Spoonies #Spoonie #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to"
https://onelifelivedwell.substack.com/p/reimagining-you
Blog post by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid.
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll #Fibromyalgia #Fibro #FMS #FM #POTS @pots -
(US)
Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia#Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
-
I don't suppose anyone knows an #electrician/ #network engineer in the #Perthshire (#crieff) area who does home #ethernet installations, it's the type of thing I used to do myself but since the health ended I think it's best if I get someone in to put a patch panel in the understairs cupboard and #cat6e sockets in each of the bedrooms and the living room. #spoonies #mecfs #fibro
-
I don't suppose anyone knows an #electrician/ #network engineer in the #Perthshire (#crieff) area who does home #ethernet installations, it's the type of thing I used to do myself but since the health ended I think it's best if I get someone in to put a patch panel in the understairs cupboard and #cat6e sockets in each of the bedrooms and the living room. #spoonies #mecfs #fibro
