#fibro — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fibro, aggregated by home.social.
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I'm having a fibro flare. Worse than usual because I spent too much time pushing through when more caffeine and a short rest let me recharge just a bit.
Eventually that stops working and this week is the week.I squeezed in one last meeting with my brain at half efficiency yesterday morning. That was the final straw.
I've been losing words and losing my balance for days - the bruises are spectacular.Now I can hardly get out of bed.
Luckily home help prepped salad and made scones.I had to reload a spell checker to post anything readable.
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I'm having a fibro flare. Worse than usual because I spent too much time pushing through when more caffeine and a short rest let me recharge just a bit.
Eventually that stops working and this week is the week.I squeezed in one last meeting with my brain at half efficiency yesterday morning. That was the final straw.
I've been losing words and losing my balance for days - the bruises are spectacular.Now I can hardly get out of bed.
Luckily home help prepped salad and made scones.I had to reload a spell checker to post anything readable.
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I'm sorry to hear that.
I only have to watch it from the sidelines as it's my wife who has #fibro and other issues.
Unfortunately it's similar in Canada. Some great doctors but also some absolute assholes who insist it's all in her head.
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I'm sorry to hear that.
I only have to watch it from the sidelines as it's my wife who has #fibro and other issues.
Unfortunately it's similar in Canada. Some great doctors but also some absolute assholes who insist it's all in her head.
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"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"
https://journals.sagepub.com/doi/10.1177/21501319261458748
Screenshot from Science for ME update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM -
"The predominance of cerebral hypometabolism in [Long covid] patients with PEM draws important corollaries to similar changes seen in patients with FM & ME/CFS in prior neuroimaging studies"
https://journals.sagepub.com/doi/10.1177/21501319261458748
Screenshot from Science for ME update
#MEcfs #PwME #ME #MyalgicE
@mecfs
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC #Fibromyalgia #Fibro #FMS #FM -
It's been a literally disabling day of #pain. At the start of the day, I forced myself out for a shorter than normal walk.
But I've had awful brain fog, and the pain in my neck and shoulders, which creeps into my head, has been far, far too much to handle.
So, I've only occasionally moved off the sofa. I want to write, but can't think. I want to draw, but can't concentrate.
At this rate, my #fibro will be out of control...
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It's been a literally disabling day of #pain. At the start of the day, I forced myself out for a shorter than normal walk.
But I've had awful brain fog, and the pain in my neck and shoulders, which creeps into my head, has been far, far too much to handle.
So, I've only occasionally moved off the sofa. I want to write, but can't think. I want to draw, but can't concentrate.
At this rate, my #fibro will be out of control...
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Medscape:
“Low-dose naltrexone (LDN) failed to outperform placebo in reducing pain or improving secondary outcomes in women with fibromyalgia”
https://www.medscape.com/viewarticle/low-dose-naltrexone-fails-outperform-placebo-pain-2026a1000iy0 -
Medscape:
“Low-dose naltrexone (LDN) failed to outperform placebo in reducing pain or improving secondary outcomes in women with fibromyalgia”
https://www.medscape.com/viewarticle/low-dose-naltrexone-fails-outperform-placebo-pain-2026a1000iy0 -
If you've messaged me here, or replied to a part and felt I have missed or ignored you, I'm sorry.
I'm not coping with my #fibro pain, and I'm struggling to do much beyond house jobs, a walk and family role things.
Though, I've done a bit of writing at least.
The brain fog and fatigue are awful, and I just can't catch a break. I've even tried pulling sleep time back a bit and nothing's changed.
So, I don't aim to be rude, but I just have limited capacity. More limited than normal, I mean.
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If you've messaged me here, or replied to a part and felt I have missed or ignored you, I'm sorry.
I'm not coping with my #fibro pain, and I'm struggling to do much beyond house jobs, a walk and family role things.
Though, I've done a bit of writing at least.
The brain fog and fatigue are awful, and I just can't catch a break. I've even tried pulling sleep time back a bit and nothing's changed.
So, I don't aim to be rude, but I just have limited capacity. More limited than normal, I mean.
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The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
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The hardest thing with my chronic illness these last couple days is the major self-esteem hit. It's so depressing to want to be able to create and do and enjoy when I'm too afflicted with muscle and joint pain, fatigue, and brain fog to do so. And it's so hard not to internalize that all to mean I'm defective or something. Fuck this ableist system that has made me think like that.
I gotta find more ways to enjoy myself on days like these.
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(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
it is very difficult to do my job when the pain in my shoulders is so intense and my arms are too heavy for my body to hold up.
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it is very difficult to do my job when the pain in my shoulders is so intense and my arms are too heavy for my body to hold up.
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Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
Saw my GP about the rejected Gyno referral which said my hormonal issues are likely perimenopause & recommended HRT so have a trial of that.
I also picked up my referral letter for rheumatology (as medical evidence for PIP & DSA) & it says #fibro. The GP has basically said "pretty sure it's fibro, please confirm."
I've been crying in a coffee shop with my beautiful girlfriend. It's a lot to process & I was kinda hanging onto it being #LongCovid as there is at least a chance that might improve.
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Saw my GP about the rejected Gyno referral which said my hormonal issues are likely perimenopause & recommended HRT so have a trial of that.
I also picked up my referral letter for rheumatology (as medical evidence for PIP & DSA) & it says #fibro. The GP has basically said "pretty sure it's fibro, please confirm."
I've been crying in a coffee shop with my beautiful girlfriend. It's a lot to process & I was kinda hanging onto it being #LongCovid as there is at least a chance that might improve.
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From Turkey
"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"
https://www.mdpi.com/2077-0383/15/3/1098
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM -
From Turkey
"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"
https://www.mdpi.com/2077-0383/15/3/1098
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM -
I am crashing inordinately hard today and it is not fun.
Luckily my amazing girlfriend is looking after me so I can just lay in bed making pain noises.
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I am crashing inordinately hard today and it is not fun.
Luckily my amazing girlfriend is looking after me so I can just lay in bed making pain noises.
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Via wifey, or neighbour gave me a new insight into how people perceive my #chronicpain.
They basically thought I was getting better because they saw me doing my daily walk.
That's cute, but I walk in pain, like everything else. I have to do stuff despite pain. I distract myself from it sometimes, and walking does that.
But more exercise usually means more pain and an energy crash afterwards. There are other benefits like fresh air, views and... Pokestops.
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Via wifey, or neighbour gave me a new insight into how people perceive my #chronicpain.
They basically thought I was getting better because they saw me doing my daily walk.
That's cute, but I walk in pain, like everything else. I have to do stuff despite pain. I distract myself from it sometimes, and walking does that.
But more exercise usually means more pain and an energy crash afterwards. There are other benefits like fresh air, views and... Pokestops.
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I got my dates mixed up. My medication review is next Wednesday, not tomorrow.
Just have to survive another week of pointless high pain and no answers, and hope the doctors can advise medication changes. The pain is still pointless, but hopefully the plan can change.
I've lost 1 stone of weight and doubled my physical activity since my last review, so they can't blame it on those two things.
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I got my dates mixed up. My medication review is next Wednesday, not tomorrow.
Just have to survive another week of pointless high pain and no answers, and hope the doctors can advise medication changes. The pain is still pointless, but hopefully the plan can change.
I've lost 1 stone of weight and doubled my physical activity since my last review, so they can't blame it on those two things.
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Well done to the Fibromyalgia Support Group of Winnipeg for its donation of $40,000 to new research project led by Dr Alain Moreau 👏
Would be great to see more money being raised privately for fibromyalgia research
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Well done to the Fibromyalgia Support Group of Winnipeg for its donation of $40,000 to new research project led by Dr Alain Moreau 👏
Would be great to see more money being raised privately for fibromyalgia research
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"10 Rules for Those who Love ME/CFS and FM Patients"https://massmecfs.org/disease-information/coping-self-care/ten-rules/
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
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"10 Rules for Those who Love ME/CFS and FM Patients"https://massmecfs.org/disease-information/coping-self-care/ten-rules/
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
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"10 Rules for Those who Love ME/CFS and FM Patients"
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
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"10 Rules for Those who Love ME/CFS and FM Patients"
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
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Few people know, but the new law recognizing fibromyalgia as a disability grants up to 16 immediate rights, official benefits, and priorities that millions of Brazilians can now claim - CPG Click Petróleo e Gás
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2/
Few people know, but the new law recognizing fibromyalgia as a disability grants up to 16 immediate rights, official benefits, and priorities that millions of Brazilians can now claim - CPG Click Petróleo e Gás
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The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM
