#fibro — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fibro, aggregated by home.social.
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(Spain)
Court Grants Disability Pension to Cleaner with Fibromyalgia: 63-year-old cleaner denied disability pension: court's final decision -
Good news, my safe foods I’d been reacting to these last few weeks has gone back to lower reaction. It’s my last lot of antibiotics tomorrow, so looks like being ill made everything worse, which makes sense.
When I went to the drs last week, they were surprised I didn’t know I had strep throat. I said I’m just used to feeling really ill and being told it’s fibromyalgia, or just something I have to deal with, I hadn’t even gone about my sore throat snd earache 😂 This was a sympathetic locum, who said it shouldn’t be like this.
#ChronicIllness #Fibromyalgia #Fibro #ME #CFSME #ChronicPain #MCAS #Anxiety #Perimenopause #Depression #Agoraphobia #ADHD #AuDHD #Autistic #Palpatations probably more
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#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
#artists , I know this is a long shot, but instead of complaining forever I will just ask:
Are there any artists here with #MEcfs #longcovid #fibro or energy limiting illness, or those who are aware what this is like, that know how to practice mark making when essentially almost bedbound?
Because obviously i can't have the "objectively" good posture and do the whole drawing from the arm thing when half lying propped up on pillows, in bed, with my tablet in my lap.
If anyone else has any ideas I welcome them.
My lines (and generally, fundamentals) are shit and I want to change that.
Not sure what to tag, #neisvoid ? #artlearning ? -
Large Dutch study:
Who receives a diagnostic label for fibromyalgia, chronic fatigue syndrome, and irritable bowel syndrome? A study in the lifelines cohorthttps://www.sciencedirect.com/science/article/pii/S0022399926000930
Only 25% with FM, 14% with CFS [Fukuda], and 48% with IBS received a formal diagnosis.
I need to read full paper to check their interpretations
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#IrritableBowelSyndrome #IBS
#Fibromyalgia #Fibro #FMS #FM
@mecfs -
From Turkey
"Patients with a history of COVID-19 showed significantly higher odds of meeting ACR 2016 fibromyalgia criteria"
https://www.mdpi.com/2077-0383/15/3/1098
Screenshot from latest Science for ME weekly update
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#Fibromyalgia #Fibro #FMS #FM -
Well done to the Fibromyalgia Support Group of Winnipeg for its donation of $40,000 to new research project led by Dr Alain Moreau 👏
Would be great to see more money being raised privately for fibromyalgia research
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2/
"10 Rules for Those who Love ME/CFS and FM Patients"https://massmecfs.org/disease-information/coping-self-care/ten-rules/
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
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"10 Rules for Those who Love ME/CFS and FM Patients"
From the Massachusetts ME/CFS and FM Association
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS @mecfs
1 of 2
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The Emotional Toll of Chronic Illness: Naming the Invisible Grief | Grief is the New Normal
https://www.youtube.com/watch?v=pgqi2W9dmLc
From February 2026 Massachusetts ME/CFS & FM Association newsletter
https://massme.monkeypod.io/mailcoach/webview/campaign/05601954-e0f2-44eb-af44-5aca96c2b253
Comment: I haven't watched it myself so far
#chronicillness #chroniclife #Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#MEcfs #CFS #PwME
@mecfs @longcovid
#LongCovid #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
“Fibromyalgia is now recognized as a disability, expanding rights in Brazil.
Law No. 15.176/2025 guarantees preferential treatment, inclusion in the job market, and other benefits.” -
Been listening to #Ren's latest Tale on loop and it's getting harder to talk about his videos because in the earlier days you'd listen to a song, be very impressed, watch the video be in awe but the way he's making this series now I'm stunned. he speaks directly to my core, the production is every bit as clever and on the beat as anything #EdgarWright's done. He's literally the reason I feel I can get through all this #MECFS #Fibro crap.
https://youtube.com/playlist?list=PLDa_ZTVQ7MTZJnsAIiQ47DR9NN9-_xOMM&si=jc6iGSmvJ4BRxkDb
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Pain relief by targeting nonrestorative sleep in fibromyalgia: a phase 3 randomized trial of bedtime sublingual cyclobenzaprine
https://academic.oup.com/painmedicine/article/27/1/86/8193722Also
https://www.ajmc.com/view/by-improving-sleep-tnx-102-sl-reduces-pain-and-fatigue-in-fibromyalgiaNote: most of these authors work for the drug company
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#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
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#GifsArtidote: i am just starting to watch this video of the #POVchannel searching for the #GlenCanyon in the #GrandCanyon where human secrets lie thousands of years old.
if i can ever safely enter #TurtleIsland, i want to go there.
#MENtalhealth #recovery #CPTSD #BPD #DysthymicDisorder #fibro
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Many with ME/CFS and other chronic illnesses may be able to relate some if not many of these
This was posted as a comment on my FB page today, but I'm not sure who created it originally.
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #hiddenillness #invisibleillness
#ChronicIllnesses #Spoonies #Spoonie #POTS @pots #Fibromyalgia #Fibro #FMS #FM -
"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to"
https://onelifelivedwell.substack.com/p/reimagining-you
Blog post by a sympathetic and knowledgeable occupational therapist who specialises in ME/CFS and long Covid.
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #chronicillness #ChronicIllnesses #Spoonies #Spoonie #ChronicallyIll #Fibromyalgia #Fibro #FMS #FM #POTS @pots -
(US)
Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia#Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
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I don't suppose anyone knows an #electrician/ #network engineer in the #Perthshire (#crieff) area who does home #ethernet installations, it's the type of thing I used to do myself but since the health ended I think it's best if I get someone in to put a patch panel in the understairs cupboard and #cat6e sockets in each of the bedrooms and the living room. #spoonies #mecfs #fibro
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(USA only)
Solve M.E. and The Brain Inflammation Collaborative Launch the Unified Platform to Advance Research Across 30+ Chronic Conditions
https://unhidenow.org/Full article here:
https://solvecfs.org/wp-content/uploads/2025/12/December2025Chronicle.pdf#chronicillness @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @longcovid @pots #LongCovid #Fibromyalgia #Fibro #FMS #FM #POTS #Migraine -
(US) "[Federal] Circuit court rules that subjective testimony must be considered in cases with disabilities that can’t be detected by objective medical tests"
Relevant for ME/CFS, Long Covid, etc.
Court ruling:
https://www.ca4.uscourts.gov/opinions/232259.P.pdf@longcovid
#LongCovid @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #chronicillness
#ChronicPain #hiddenillness #invisibleillness #POTS @pots -
You know you’re chronically ill when the drs is always selected whenever you open your contacts 😂
Absolute nightmare getting through this morning, I managed a to get a telephone appointment, I’ll go to walk in/A&E if anything gets worse.
#Fibromyalgia #Fibro #Type2Diabetic #CFSME #CFS #ME #Depression #Anxiety #Agoraphobia #AuDHD #ADHD #Autistic #Allergies #MCAS #HistamineIntolerance
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Just clearing out some old files and came across this for around 25 years ago in case of interest to anyone: "How to Evaluate a CFIDS/FM Treatment".
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @mecfs #chronicillness #Fibromyalgia #Fibro #FMS #FM
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"Good Sleep Practices for Chronic Fatigue Syndrome and Fibromyalgia"
Comment: I'm not convinced exercising helps sleep in ME/CFS but that is only one of many suggestions
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #Fibromyalgia #Fibro #FMS
@mecfs -
Feeling alot better today, managed to make lasagne from scratch and I don't even feel that exhausted. Another thing that's improved is my balance. #mecfs #fibro #mpn #chronicillness
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ENG: A 1:1 blend of THC:CBD (10mg/ml each cannabinoid) taken for three months caused significant improvement in pain scores, stiffness levels, sleep quality and fibromyalgia symptom scores:
https://www.sciencedirect.com/science/article/abs/pii/S0003496725033758
ESP: Mezcla 1:1 de THC:CBD (10mg/ml de cada cannabinoide) tomada x tres meses causó una mejora significativa en las puntuaciones de dolor, niveles de rigidez, calidad del sueño y las puntuaciones de los síntomas de la fibromialgia
#fibromyalgia #viral #bacterialdisease
#Lupus #RheumatoidArthritis #depression #depressiontreatment
#mooddisorders #chronicpain
#thc #cbd #cannabismedicine
#cannabinoidresearch #fibro
#cannabismedical #marijuana
#immunefunction #autoimmune
#LongCovid #chronicillness -
Dysregulation of lipid metabolism, energy production, and oxidative stress in myalgic encephalomyelitis/chronic fatigue syndrome, Gulf War Syndrome and fibromyalgia
https://www.frontiersin.org/journals/neuroscience/articles/10.3389/fnins.2025.1498981/full
From the latest Science for ME weekly update
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #GulfWarSyndrome #GulfWarIllness #GWI -
Today's intentionally been a no-productivity day. And, it felt weird. But my #fibro pain has been more manageable.
I probably need to check in with my blog's Patreon crew tomorrow as I get paranoid when I don't. I am still in desperate need of rest time. My body hates me. So, apart from necessary housework, I'll be on gaming and drawing or woodwork tomorrow.
Take care friends.
There's a lotta hate out there. Don't add to it.
#StaySafe // #BeKind // #BeDifferent
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Today's intentionally been a no-productivity day. And, it felt weird. But my #fibro pain has been more manageable.
I probably need to check in with my blog's Patreon crew tomorrow as I get paranoid when I don't. I am still in desperate need of rest time. My body hates me. So, apart from necessary housework, I'll be on gaming and drawing or woodwork tomorrow.
Take care friends.
There's a lotta hate out there. Don't add to it.
#StaySafe // #BeKind // #BeDifferent
-
Today's intentionally been a no-productivity day. And, it felt weird. But my #fibro pain has been more manageable.
I probably need to check in with my blog's Patreon crew tomorrow as I get paranoid when I don't. I am still in desperate need of rest time. My body hates me. So, apart from necessary housework, I'll be on gaming and drawing or woodwork tomorrow.
Take care friends.
There's a lotta hate out there. Don't add to it.
#StaySafe // #BeKind // #BeDifferent
-
Today's intentionally been a no-productivity day. And, it felt weird. But my #fibro pain has been more manageable.
I probably need to check in with my blog's Patreon crew tomorrow as I get paranoid when I don't. I am still in desperate need of rest time. My body hates me. So, apart from necessary housework, I'll be on gaming and drawing or woodwork tomorrow.
Take care friends.
There's a lotta hate out there. Don't add to it.
#StaySafe // #BeKind // #BeDifferent
-
Today's intentionally been a no-productivity day. And, it felt weird. But my #fibro pain has been more manageable.
I probably need to check in with my blog's Patreon crew tomorrow as I get paranoid when I don't. I am still in desperate need of rest time. My body hates me. So, apart from necessary housework, I'll be on gaming and drawing or woodwork tomorrow.
Take care friends.
There's a lotta hate out there. Don't add to it.
#StaySafe // #BeKind // #BeDifferent
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CW: spoonie, whining, kidney pain?
If you follow my blog, you know that I am in limbo waiting on some tests to determine if I am going to have surgery for failure to completely empty my bladder. You also know I have chronic pain from #fibro and I have "fluctuating #CKD".
This morning, I woke to a dull aching pain in my back, but only where my left kidney is located. So, did I just sleep wrong? Did the bladder problem get worse?
1/2
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Understanding Arrhythmia: My Recent Experience
https://janetannelogan.com/2024/12/02/understanding-arrhythmia-my-recent-experience/
#Afib, #Fibro, #Fibromyalgia, #PrematureAtrialContractions, #Spoonie
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CW: spoonie, eyes, fibro flare
Had an eye exam today. It's been over two years since my last exam. Nothing major, but for the first time ever, I've been told that I have the beginning of cataracts. Just something to check regularly.
Still can't see clearly, and it's been almost two hours since the dilation. Also not that unusual. Ordered new (progressive) glasses.
And my fibro is flaring. I was out about two hours.
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I just spent a little over 3 hours in an ER because of a prolonged #AFib episode. I tried to wait it out for a couple of hours before giving in and going. I don't think I'll wait that long next time. I'm exhausted and I think I've triggered another #fibromyalgia flare.
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Jarred Younger: Research priorities for the second half of 2024
In this short video (9 minutes) Dr. Younger lists the major projects he is running in the second half of 2024.https://www.youtube.com/watch?v=vePEtCKjkfA
#MEcfs #CFS #PwME #GulfWarIllness #GWI #Fibromyalgia #Fibro #FMS #FM @fibromyalgia @mecfs
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Jarred Younger:
A large remote clinical trial grant on low-dose naltrexone ( #LDN ) & cannabidiol ( #CBD ) for #GulfWarIllness was rejected. If you want to hear a bit about how I feel about rejected grants & how I handle them...https://www.youtube.com/watch?v=9fkfvFIDyWI
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #GWI @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM -
New video where Jarred Younger PhD says he is moving from local to remote clinical trials [within the US].
"I already have an ongoing remote trial for #GulfWarIllness and hope to expand to #fibromyalgia, #LongCOVID, and #MECFS"
https://www.youtube.com/watch?v=KeGlH3oEjTM
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PwLC @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #GulfWarSyndrome #GulfWarIllness #GWI -
Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia
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I found this on the ex-bird site. Could be useful, maybe important, to others of our #ND (#NeuroDiverse) community?
SEDSConnective
@SEDSConnective
If you have some of these symptoms or conditions but feel not believed you might want to connect to us
http://sedsconnective.org
#EDS #HSD #SymptomaticHypermobility #JH #neurodivergence #Autism #ADHD #Dyspraxia #Tourettes #IBS #Fatigue #fibro #allergies #Palpitations #anxiety -
I found this on the ex-bird site. Could be useful, maybe important, to others of our #ND (#NeuroDiverse) community?
SEDSConnective
@SEDSConnective
If you have some of these symptoms or conditions but feel not believed you might want to connect to us
http://sedsconnective.org
#EDS #HSD #SymptomaticHypermobility #JH #neurodivergence #Autism #ADHD #Dyspraxia #Tourettes #IBS #Fatigue #fibro #allergies #Palpitations #anxiety -
I found this on the ex-bird site. Could be useful, maybe important, to others of our #ND (#NeuroDiverse) community?
SEDSConnective
@SEDSConnective
If you have some of these symptoms or conditions but feel not believed you might want to connect to us
http://sedsconnective.org
#EDS #HSD #SymptomaticHypermobility #JH #neurodivergence #Autism #ADHD #Dyspraxia #Tourettes #IBS #Fatigue #fibro #allergies #Palpitations #anxiety -
Collector of #books + fat cells + #truecrime podcasts + creative curse words. Feisty, fierce, #feminist, #liberal AF, 🏳️🌈 ally, #BLM. I’m #GenX, a small biz owner, former web dev, stationery + sticker creator on Etsy, old school #penpal,#StephenKing’s #1 fan, #bookworm, #ambivert, #fibro warrior, and incredibly lucky wife and mom of three amazing boys. I love #walking, taking amateur #nature, #wildlife and pet photos with my phone, posting about #KansasCity, #bloomscrolling, and #birdwatching.
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Me whenever I meet anyone new IRL or online anywhere 😂 #meme #thoughtoftheday #wednesdaythoughts #randomthoughts #bpd #BPDfam #MadMastodon #MadTwitter #disability #disabled #chronicillness #chronicpain #chronicfatigue #chronicfatiguesyndrome #neurodivergent #neurodiverse #mentalhealth #mentalillness #spoonie #fibromyalgia #fibro #twittermigration
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I feel like crap on a stick. My own fault, but still suffering. I even paid for the pleasure at a private hospital. I want to talk, but I hardly have the strength to breathe. This is when I feel the most lonely as a chronic pain sufferers, those days when you desperately need companionship, but can't handle it.
#ChronicPain #pain #fibro #fibromyalgia #lonelyness #mentalhealth #badmentalhealth #physicalpain
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Creative, just like a train, if you have stopped moving forward, it takes a LOT more power to get you going again.
But if on those wrong days, those hard days, you keep moving forward, then when your brain comes back online - which it will - you'll find it so much easier to put on speed.
Don't stop. Creation IS inertia. #CreateIt22
#writerslife #writerscommunity #artists #artistsofmastodon #chronicillness #fibro #keepmovingforward
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Slowly figuring out how to make the Fitbit work better for #pacing. It's set up to be constantly all "rah! rah! climb those stairs! burn that fat! get that heart rate up!" quite aggravating, to say the least.
But I think I got most of its little cheers turned off, and I figured out I can set my own maximum heart rate. The fitbit still thinks I should be in higher "zones" as much as possible, which is annoying.
I just programmed a custom zone, though, which goes from 10bpm above my resting rate to 5 below my max. Hopefully I'll be able to see on the graph when I've been exerting a little but not too much.
#PEM #PESE #PENE #MECFS #ME #CFS #fibromyalgia #Fibro #ChronicIllness #LongCOVID #LongHauler
