#criptax — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #criptax, aggregated by home.social.
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I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
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I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
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I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
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I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
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I think I’m officially giving up and admitting defeat with my moldy clothes. I’m losing my baseline so fast because my caregivers are spending all their time trying to salvage items that probably can’t be salvaged.
It’s almost my entire wardrobe.
The stress of thinking about how to replace it is also tough on my baseline… but I’ve got to tell myself mold is simply not worth the risk. Especially with severe MCAS.
This is another great example of the “crip tax”. If it weren’t for my disability, I wouldn’t need specific types of clothes. I would be able to soak and salvage them myself. I wouldn’t be restricted to only online shopping. I wouldn’t be on a fixed income.
This feels like a disaster, but it’s better than making myself sicker.
Let me know your best suggestions for affordable all cotton clothing (tshirts, zip up sweaters, sweat pants, socks)
#clothing #mold #mcas #disability #chronicillness #ableism #criptax
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Ich habe gerade fast 310 € „crip tax“ bezahlt.
Beitragsservice. Briefe vergessen oder nicht aufmachen können. Ich hatte seit Juni 2021, seit ich wieder ALG II beziehe, immer wieder verbaselt, die Befreiung einzureichen. Weil zu viel anderes war. Weil die Kapazitäten nicht reichen.
Aber is' schon gut, liebe Pflegekasse, ich brauch natürlich keine Unterstützung. Und is' gut liebes „Sozialamt“, laßt Euch mit dem GdB ruhig noch weitere Monate Zeit, das ist alles nicht so wichtig. 😬
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Ich habe gerade fast 310 € „crip tax“ bezahlt.
Beitragsservice. Briefe vergessen oder nicht aufmachen können. Ich hatte seit Juni 2021, seit ich wieder ALG II beziehe, immer wieder verbaselt, die Befreiung einzureichen. Weil zu viel anderes war. Weil die Kapazitäten nicht reichen.
Aber is' schon gut, liebe Pflegekasse, ich brauch natürlich keine Unterstützung. Und is' gut liebes „Sozialamt“, laßt Euch mit dem GdB ruhig noch weitere Monate Zeit, das ist alles nicht so wichtig. 😬
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CW: food
Ich habe ein leckeres Brot gekauft.
Ich habe das Brot durch den Laden geworfen, als ich es eintüten wollte.Ich habe noch ein leckeres Brot gekauft. ._. Ist das schon #criptax?
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it is frustrating the ever-lovin' shit out of me that I cannot come up with an affordable way to get this recumbent shipped to me. And that whether I take the risk of shipping it from the US or switch tack and get something from AZUB in Czechia (with lower weight capacity), I am going to be pushed into spending $5 - 6K more. And I hadn't crowdfunded anywhere near the old amount I needed. 😭
I fucking hate the constant costs of being disabled. #Recumbent #Accessibility #BikeTooter #CripTax
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Für den überwiegenden Teil der Behinderten heißt ihr Leben Arbeit, Arbeit, Arbeit, für die es keinen Cent gibt, Urlaub gibt es auch nicht. #Criptax #Criptime
Klingt schlimm? Ist es, der Kampf gegen #Ableismus. Wen interessiert da noch meine Diagnose. -
Für den überwiegenden Teil der Behinderten heißt ihr Leben Arbeit, Arbeit, Arbeit, für die es keinen Cent gibt, Urlaub gibt es auch nicht. #Criptax #Criptime
Klingt schlimm? Ist es, der Kampf gegen #Ableismus. Wen interessiert da noch meine Diagnose. -
Für den überwiegenden Teil der Behinderten heißt ihr Leben Arbeit, Arbeit, Arbeit, für die es keinen Cent gibt, Urlaub gibt es auch nicht. #Criptax #Criptime
Klingt schlimm? Ist es, der Kampf gegen #Ableismus. Wen interessiert da noch meine Diagnose. -
Für den überwiegenden Teil der Behinderten heißt ihr Leben Arbeit, Arbeit, Arbeit, für die es keinen Cent gibt, Urlaub gibt es auch nicht. #Criptax #Criptime
Klingt schlimm? Ist es, der Kampf gegen #Ableismus. Wen interessiert da noch meine Diagnose. -
Derweil schaut doch sonst noch mal rüber in meine zwei Threads von letztem Jahr zum Thema #CripTime und #CripTax - die sind immer aktuell.
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Derweil schaut doch sonst noch mal rüber in meine zwei Threads von letztem Jahr zum Thema #CripTime und #CripTax - die sind immer aktuell.
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Derweil schaut doch sonst noch mal rüber in meine zwei Threads von letztem Jahr zum Thema #CripTime und #CripTax - die sind immer aktuell.
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Derweil schaut doch sonst noch mal rüber in meine zwei Threads von letztem Jahr zum Thema #CripTime und #CripTax - die sind immer aktuell.
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Derweil schaut doch sonst noch mal rüber in meine zwei Threads von letztem Jahr zum Thema #CripTime und #CripTax - die sind immer aktuell.
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Did I make a fatal mistake by not paying the money to ship the quadricycle to Albania?
I didn't know where I'd be living or if there'd be a shed big enough for it.
Even within the US, where it was made, there are few that will service it.
OTOH, it held my weight and was really great when it was working and it sold for less than 1/10 what I'd put into it and now anything better that takes my weight will cost at least $10K I don't have... #CripTax #BikeTooter #MoveOrBust
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If you think disabled people:
Need to “try harder” to survive
Can magically find money where none exists
Are exaggerating the lack of help available
Are getting needs met by the governmentRead the article linked below
The government just raised 25k to protect one of their own.
Why did they do this?
Because they KNOW disabled people in Canada are kept below the poverty line. They know it’s impossible for us to survive without help.
So when one of their own became disabled - they ponied up
The rest of us who don’t have a bunch of financially secure government colleagues to give us money?
We’re left to beg for scraps. To spend our days suffering, stressing and defending our existence to friends and family
We’re left relying on mutual aid from a community of other disabled people - most of whom are struggling themselves.
Or relying on abusive family/partners who treat us badly in exchange for “helping”
We’re stripped of our autonomy and agency by punitive policies that make it so we can’t earn any extra money. We can’t marry without losing benefits. They try and force us to become “someone else’s problem”
All these politicians who donated could choose to lobby for a universal basic income. Or to make the Canada disability benefit large enough to lift us out of poverty.
They could remove barriers to support and strike down punitive rules that keep us from getting ahead
They could admit that we have a problem with lack of support that extends to almost ALL disabled people in this country.
There was nothing unique about their colleague. Disability and homelessness can happen to anyone.
The only thing unique about this situation is that he was able to raise so much money so quickly.
He had connections with deep pockets. That’s all that separates him from many of us facing medically assisted death or homelessness ourselves
When we beg you to protect your health - this is why.
Too many people think disability is a vacation and some will even say how “lucky” we are.
They don’t realize how impossible it is to survive. How degrading it is to beg for help. How exhausting our existence is
If you don’t have a wealthy spouse or family, if you’re not independently wealthy yourself, permanent disability will wreck your finances in the blink of an eye.
Being sick is expensive - and we are not given the necessary support
It doesn’t have to be like this. If every person who donated to this campaign stood up and demanded better for disabled people across the country - we might be able to see real change.
They won’t - because we don’t matter
Please remember this the next time you’re scolding someone for needing help. Or telling them that they must be wrong, missing something and/or “not trying hard enough”.
Disabled people are the strongest people I know. We fight every day for ourselves & each other
It’s the system that’s the problem. It’s people in our lives who CAN help and choose not to because they blame us for our illnesses.
It’s systemic ableism that reinforces the notion we’re “better off dead.”
We deserve better. Many of us are only alive because of the kindness of others within the community who step up and help.
Start demanding accountability from politicians. From the wealthy among us.
Start helping us find a sustainable way to survive and thrive.
#ableism #poverty #disability #disabilityrights #criptax #chronicillness #spoonie
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People make insensitive comments about disability ALL the time. Implying we’re “lucky” that we don’t have to work, that they wish they could “lay around” etc.
They don’t understand the “crip tax”.
It’s expensive being chronically ill. And no one teaches you HOW to cope.
Even if you’re fortunate to have good insurance and/or live somewhere with universal healthcare (like Canada)… the costs add up quick.
Take Canada for example - seeing a doctor is covered - medications, dental and vision aren’t.
If you have complex chronic illness - prescription costs alone can quickly spiral out of control.
Even if you have private coverage - many things aren’t covered. Almost half of what I take wouldn’t be covered by insurance - even with specialist prescription.
Other costs people don’t consider:
💰 Special diet (mine is incredibly restrictive)
💰 Medical and first aid supplies, home healthcare supplies etc
💰 Delivery, homecare, cleaning services, transportation, mobility aids.
If you have MCAS and/or Long Covid or are covid cautious … you can add a whole bunch more expenses to the list:
💰Air purifiers
💰Specialized body & oral care products
💰MCAS safe cleaning products
💰Respirators
💰Rapid testsThe bottom line is being disabled is expensive. Losing your autonomy and independence costs money.
Juggling everything we need to stay alive and maintain a baseline while also trying to ensure we keep a roof over our heads is a full time job.
As if that wasn’t enough - we also have to chase down doctors, follow up on tests, deal with medical gaslighting, covid risk in hospitals, HCWs who won’t mask etc. We do this while suffering the pain of being abandoned by family, friends & society.
It’s not lucky. It’s hard.
There’s other costs people never even consider - like the cost of relying on delivery services that more often than not get it wrong.
In my case - my diet is so restrictive that if a shopper brings the wrong item - it’s going to go to waste.
When you only have about ten safe foods and your delivery screws up five of them - you’re either going to go hungry for a week OR you have to place another order.
But orders have minimum spends and you have to tip a shopper twice. That adds up FAST.
I can’t tell you how much I miss being able to just pop to the store and get my own groceries. Grab a single ingredient without having to meet a minimum spend.
Many non disabled people see grocery shopping as a chore - I see it as a luxury I no longer have.
These are the types of issues you have to deal with when you become disabled that NO ONE teaches you about. 1/2 🧵
#CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #MaskBans #NoMaskBans #bullying #CleanAirClassrooms #criptax
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Nuts, my magnesium drops are running out, here comes another #CripTax :(
At least one of today's jobs is to submit a private health insurance claim for my leggings, but then I also have to pay for the kiddo's school extension program thingies, too 🤷🏼♀️ -
Gonna have to do some budgeting stuff soon - just sitting down and calculating how much we're spending in various categories each month - and I legit very much do not want to, purely because I do not want to see how many dollars it is costing to live with my illnesses, and to reduce our exposure to covid 🥲
#CripTax -
I wish the Medicare rebate for the kiddo's autism assessment would hurry up, I need to go spend $500 (after PHI rebate 😳) on new compression leggings 😭
#CripTax -
@catrinity Danke für diesen wichtigen Beitrag. Nicht alle Behinderungen sind sichtbar, nicht alle von uns wollen sich ganz oder teilweise "outen" oder gar "jammern", aber die #criptax trifft uns.
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Am Ende auch noch einmal der Hinweis - der ganz, ganz überwiegende Großteil von Behinderungen ist nicht angeboren, sondern wird im Lauf des Lebens erworben. Und spätestens im Alter werden mehrere der genannten Beispiele auf euch und eure Liebsten zutreffen. Es sollte also unser aller Anliegen sein, uns dafür einzusetzen, dass Hilfsmittel schnell und unbürokratisch bezahlt werden, dass Städte, Gebäude, Verkehrsmittel barrierefrei zugänglich sind, usw.
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Noch mal ein Crosspost, denn ich hab mir nach den vielen Reaktionen auf meinen Thread zu #CripTime auch noch ein zweites Thema vorgenommen, nämlich #CripTax.
Ich hab ehrlich gesagt ein bisschen damit gehadert, ob ich diesen Beitrag mache, denn ich selbst bin glücklicherweise nicht armutsbetroffen (aktuell, für die Zukunft weiß man das ja nie). Aber da zum Beitrag über "Crip Time" so viele Reaktionen kamen, die sagten, sie hören den Begriff zum ersten Mal ...
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It's just frustrating. I've tried fundraisers before, they never worked. There's not nearly as many resources to help people get mobility aids etc as abled people think. It isn't a straightforward process to get on disability either and that's a pittance anyway.
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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And getting insurance to pay for these things is usually more trouble than it's worth. For one thing, the specialists that would argue my case are not doctors I trust. They're fatphobic, saneist & racist & their negligence & arrogance is the primary reason I'm suffering so much as it is
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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Meanwhile, my joints are getting worse, my pain is getting worse, and I don't go out and socialize, work or exercise, because it's too painful and exhausting. I still think about going to the museum with my kid & nephews & the difference next day between using my chair for 1 trip & not the other
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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But I can't use my chair as much as I need, bcuz I'm not strong enough. I can't use it bcuz I have joint & nerve pain that's worsened by pushing, & nobody wants to help me build strength, stamina or make sure my technique is correct, they just want to take my chair from me bcuz I'm still ambulatory
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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Right now I'm still mostly trapped in my house. Most of that is a structural issue: my home is not accessible, my block is not accessible, the only public transit route I can take to my kid's school is inaccessible and there's no alternative, but I could still go out more if I could use my chair!
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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Started watching a wheelchair YouTuber & she's testing an accessory called the LapStacker. It's a strap to keep things from falling off your lap, retractable, etc. It's 120 damn dollars. The little electric motor I'm looking at? 4,250. I'm poor ffs ppl
#disability #disabled #WheelchairUser #CripTax #DisabledFedi
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#NoIPReG
Hab bei meiner KK die Kostenübernahme für einen Trachealkanülenmanagement-Kurs beantragt, damit ich mein Team behaltenkann, wenn ich mich Ende des Jahres operieren lasse.
Gerade kam die Zusage, dass 70% der Kosten übernommen werden.
30% obliegen mir also privat. Wenn das fürs #arbeitgebermodell im SGB 5 Usus werden sollte, entsteht für ganz viele, einiges an #CripTax.
Da ab November neue Qualifikationsanforderungen für die #AKI angewendet werden, die WBs erfordern, wird das spannend. -
I'm surprised it finally passed.
One of the nice things about no self-serve in Oregon was that everyone paid the same price. There wasn't an extra "crip tax" on disabled folks who can't do self-serve (can't pump their own gas so they have to pay more for full service gas).
I wonder how long it will take for the prices to go up?
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UC knows their charges are high and that UC doesn't pay student workers enough to not be at-risk. Disabled ppl tend to be impoverished by ableism anyway so it's even worse. We made a "Benefits Counseling" document to find help you may already qualify for.
https://docs.google.com/document/d/1Um9UEJizN_3-kEvkDedRdaPwOyR5PsLv3JKslFI-djg/edit?usp=sharing
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Disabled folks face #criptax quite a bit, but a less obvious one is interviewing, especially in tech with long and complicated interviewing rituals.
I need some pretty basic and straightforward accommodations, but some companies drag out the process, asking me to prove my #disability or engage in the interactive process and try things I already know don't work. I don't expect everything to be perfect when I show up, but the amount of red tape needed to even get in the door is frustrating. 1/3
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No more #CripTax for being disabled! Disabled workers no longer have to fight UC's Disability Cop bureaucracy alone!
#FairUCNow #UCAccessNow #Accessibility #a11y #Disability #strike #labor #HigherEd #DisabilityLaw