#methotrexate — Public Fediverse posts

https://www.theguardian.com/us-news/2026/jun/08/illinois-hospital-ectopic-pregnancy. The absolutely appalling consequences of the scrapping of Roe v. Wade in #America, even in a supposedly abortion-friendly State like #Illinois, @DoomsdaysCW. Harmonie Perrone needed #methotrexate to treat her #ectopic #pregnancy, but was refused it by Advocate Good Shepherd (https://www.advocatehealth.com/gshp), a religiously affiliated #hospital. #Religion is a complete menace - especially in the #USA!

Hi everyone. How are you tonight?

It’s been a rough few months, and I wanted to share an update since I haven’t posted in a while.

A few months ago, I was officially diagnosed with Rheumatoid Arthritis, something we’ve suspected for a while, so it was nice to finally get confirmation. My rheumatologist started me on Methotrexate, and that’s when things took a turn for the worse.

I was prescribed 6 tablets once a week and took them for 6 weeks. But I started getting extremely sick with flu-like symptoms, worsened gastroparesis, painful sores all over my body, and more. When we looked up Methotrexate side effects, I had around 20 of the ones that say to seek medical attention immediately.

We later found out that, due to my other health conditions, I should never have been prescribed Methotrexate in the first place. I also should’ve been monitored weekly, which wasn’t happening. Things got so bad we nearly went to the hospital several times, but since I’m immunocompromised and Methotrexate suppresses the immune system, we were afraid I’d catch something in the ER.

We tried contacting my doctors, but no one responded. So we stopped the medication ourselves. It’s been about 3 weeks since I stopped, and I’m still recovering, but I’m slowly getting stronger. Unfortunately, my RA is flaring badly in my hands and feet since it’s currently untreated.

A few days ago, I did end up going to the hospital because I wasn’t improving. They found my blood sugar was dangerously high, diagnosed me with diabetes, gave me fluids, and discharged me. Ironically, I started feeling better the next day. Now we’re unsure if I truly have diabetes or if it’s a lingering effect of the Methotrexate, which can mess with blood levels.

I was so sick I had to take a C in my theology course because I couldn’t finish the final paper, and I had to drop the next class I was supposed to start. My next course begins August 25, and I’m doing everything I can to be well enough to take it.

This whole experience showed me how broken my care coordination is. My primary care doctor didn’t know what was happening and wasn’t communicating with my other specialists. No one was checking my chart to make sure treatments wouldn’t conflict with my other conditions. I have a meeting next week with my Medicaid service coordinator to talk about better coordinated care and possibly enrolling in dual Medicare/Medicaid, which I’ve been told I qualify for.

This could have killed me. I’m grateful to be alive and slowly healing, but I’m also angry and frustrated that this happened at all.

Thanks for reading. I appreciate all of you.

#ChronicIllness #disability #RheumatoidArthritis #Methotrexate #Gastroparesis #Diabetes #Medicaid #Medicare #HealthcareSystem #PatientSafety #CareCoordination #Immunocompromised #DisabledAndProud #Survivor #Spoonie #SpoonieLife #HealthUpdate #ChristianSpoonie

This is my first allergy season on super mega doses of immune suppressants. So I guess I get to pick from getting sores from using non-lotion tissues, and they'll eventually get infected, or I can get pimples from using lotion-y tissues. yay. Both hurt. #NEISvoid #Inflectra #Methotrexate #PsoriaticArthritis #Pollen

I saw my #Rheumatologist in person today for the first time since #Humira caused my liver and kidney debacle. She listened to me. She explained why she isn't keen on what I want (my #Methotrexate back), but she understands why I want it. In the end, she came up with a treatment plan that is aggressive (more #Inflectra more often and a wee methotrexate dose) but will hopefully not send my liver and kidneys into a spiral. I left her office feeling heard. 🩷 Such a gift to a patient. #NEISVoid

Methotrexate works well
For pain relief in osteoarthritis
Hope for new treatment

#methotrexate #arthritis #painrelief #osteoarthritis #haiku #poetry

http://www.medicalnewstoday.com/articles/common-drug-may-help-manage-osteoarthritis-symptoms-and-pain

OMG I DON'T HAVE TO BE SICK WITH #METHOTREXATE SIDE EFFECTS TODAY!!!!!! I feel a little disoriented as my Thursdays have been "gone" for me for so many weeks now. What to do with my time? (I need to do billable work is what to do!)

cursing the STUNNING weather out there with the blue sky and mid-70s (F) sunshine and cool breezes bc today is my #methotrexate day so I just don't feel up to moving out of my bed. yes, I could go sit outside but that feels too complicated when anytime I move I feel so nauseated I can hardly bear it. ughhhhhhh

today is #methotrexate day and it's very strange to also be on #prednisone (short duration) because I actually have an appetite through the nausea! my body is so confused.

I'm between medications. I still take #methotrexate bc my rheum dr wants to keep giving it time to possibly help. I guess the Symponi Aria (sp?) was doing something bc this is BRUTAL, this pain. All over. Mostly hands-through-wrists and feet-through-ankles but all over, too. When I start the Enbrel I bet it'll take a while before it starts doing something.

...and it's #methotrexate day! part of why I'm so Very Online bc I've found that if I stay very still I can use my computer and not feel too sick. I get a lot done, it turns out, on this 24-36 hours of feeling seasick!

trying out several different "twitter replacements" (#mastodon seems like more than that) and it's only here that I feel okay about sharing my complain about the side effects of #methotrexate (new sores in my mouth this morning ughhhhh) so my gut is saying this is a space for Humanity.

we white people need to get our acts together and clean away the anti-Black and anti-Indigenous garbage as a part of our humanity.

#WhitenessRecovery

It’s a little bit empowering to find some techniques that make #methotrexate side effects more tolerable. One of the worst parts about autoimmune disease is how much is not in my control.

Taking it at night; not moving much (computer work doesn’t seem to make it much worse!); remembering the anti-nausea med.

#ChronicPain #RheumatoidArthritis #NEISvoid

• A 24-year-old woman fled her home state of #Wisconsin to get an #abortion in #Chicago, only to find out that, upon her return, the abortion may not have worked. Before Roe’s overturning, the doctor could have immediately helped her but now, with abortion banned in WI the woman had to wait, bleeding and at risk of going into deadly #sepsis. 

• In #Louisiana, another woman was not able to get in-state abortions even though her #fetus was #nonviable. She had to travel about 1,400 miles to get an abortion in #NewYork.

• In #Ohio two children had recently fled to #Michigan & #Indiana for abortions after getting pregnant through #rape.

• Ohio, 2 women couldn’t get treatment for #cancer while pregnant.

• In #Arizona, a 14-year-old who used methotrexate to control her #RheumatoidArthritis had her prescription denied because, her doctor believes, #methotrexate can be used to end a #pregnancy.

2/n

Anti-nausea medication (and "Sea Bands") is definitely making the #methotrexate more tolerable, but I still feel like hot garbage. Closer to functioning, though, which frustratingly makes it harder for me to rest the way I know my body wants me to. Blergh. Self-care is hard. #NEISVoid

#methotrexate morning! (imagining myself singing this)

ahhhhhh knowing I'm going to feel like hot garbage in the next few hours...

I realized that telling people who don't live with chronic pain that 36-48 hours of knock-me-into-bed-weakness-and-nausea every week would be a worthwhile trade off if the rest of my days weren't as painful as they are now shares pretty well about how horrible it is to live with this #ChronicPain.

In #yoga today the #methotrexate side effects were too much so I lay down (corpse pose?) for much of our class. This was big work for me, to not try to push through when it was so clear moving a lot was making it worse. In a way, the yucky side effects helped me practice listening to myself and doing what I needed to do (I'm often anxiety-led by thinking about other people/meeting expectations).

Back on methotrexate starting today. Last time I was on it I was totally convinced the side effects would be unbearable. I mean, I'm taking a (very low dose of a) chemotherapy drug and that feels really serious.

In hindsight, I'm pretty sure my anxiety about possibly feeling crappy was more of the issue than my actual feeling crappy. So, different attitude (we'll see what happens!) might give me a different experience?

#ChronicIllness #RheumatoidArthritis #Methotrexate #anxiety

@PattyHanson Agreed. Next they will stop selling birth control pills and critical drugs used for multiple diseases such as #methotrexate. #walgreens will feel no pain until millions of customers go elsewhere for all their various purchases.

Few Alternatives for Women Denied #Methotrexate...
Since the #Dobbs decision eliminating federal protections from #Roe v Wade, more and more women are reporting being denied access to methotrexate, an anti-inflammatory treatment for #arthritis, other #autoimmune conditions, and #cancer that is sometimes also used in medication #abortion.
https://patient.practicalpainmanagement.com/treatments/medications/methotrexate-alternatives