#gastroparesis — Public Fediverse posts

Yay, I got the ok today from my stomach surgeon about my gastroparesis to have no diet restrictions! I just have to listen closely to my body on what food can be handled. That’ll be a bit tricky with my alexithymia.

Also, I now know I can see improvement until the end of the third month, and then it’ll be as good as it gets. Fingers still crossed that it is life changing in being able to largely eat whole food plant based meals! 😁

#Gastroparesis #Alexithymia #WFPB #VeganFood

Yay, I got the ok today from my stomach surgeon about my gastroparesis to have no diet restrictions! I just have to listen closely to my body on what food can be handled. That’ll be a bit tricky with my alexithymia.

Also, I now know I can see improvement until the end of the third month, and then it’ll be as good as it gets. Fingers still crossed that it is life changing in being able to largely eat whole food plant based meals! 😁

#Gastroparesis #Alexithymia #WFPB #VeganFood

Yay, I got the ok today from my stomach surgeon about my gastroparesis to have no diet restrictions! I just have to listen closely to my body on what food can be handled. That’ll be a bit tricky with my alexithymia.

Also, I now know I can see improvement until the end of the third month, and then it’ll be as good as it gets. Fingers still crossed that it is life changing in being able to largely eat whole food plant based meals! 😁

#Gastroparesis #Alexithymia #WFPB #VeganFood

Yay, I got the ok today from my stomach surgeon about my gastroparesis to have no diet restrictions! I just have to listen closely to my body on what food can be handled. That’ll be a bit tricky with my alexithymia.

Also, I now know I can see improvement until the end of the third month, and then it’ll be as good as it gets. Fingers still crossed that it is life changing in being able to largely eat whole food plant based meals! 😁

#Gastroparesis #Alexithymia #WFPB #VeganFood

Yay, I got the ok today from my stomach surgeon about my gastroparesis to have no diet restrictions! I just have to listen closely to my body on what food can be handled. That’ll be a bit tricky with my alexithymia.

Also, I now know I can see improvement until the end of the third month, and then it’ll be as good as it gets. Fingers still crossed that it is life changing in being able to largely eat whole food plant based meals! 😁

#Gastroparesis #Alexithymia #WFPB #VeganFood

THE DOUBLE-EDGED SWORD OF OZEMPIC

Ozempic users in the USA are reporting severe stomach issues like gastroparesis. Lawsuits claim the drug causes NAION. Learn about the risks.

#OzempicLawsuit, #DrugSideEffects, #Gastroparesis, #NAION, #NovoNordisk

https://newsletter.tf/ozempic-lawsuits-allege-serious-side-effects-usa/

THE DOUBLE-EDGED SWORD OF OZEMPIC

Ozempic users in the USA are reporting severe stomach issues like gastroparesis. Lawsuits claim the drug causes NAION. Learn about the risks.

#OzempicLawsuit, #DrugSideEffects, #Gastroparesis, #NAION, #NovoNordisk

https://newsletter.tf/ozempic-lawsuits-allege-serious-side-effects-usa/

New lawsuits are being filed against Ozempic makers due to serious stomach problems. This is happening as more people use it for weight loss.

#OzempicLawsuit, #DrugSideEffects, #Gastroparesis, #NAION, #NovoNordisk
https://newsletter.tf/ozempic-lawsuits-allege-serious-side-effects-usa/

New lawsuits are being filed against Ozempic makers due to serious stomach problems. This is happening as more people use it for weight loss.

#OzempicLawsuit, #DrugSideEffects, #Gastroparesis, #NAION, #NovoNordisk
https://newsletter.tf/ozempic-lawsuits-allege-serious-side-effects-usa/

🌙 When the virus departs, why does the midnight coughing remain? Families navigate unexplained reflux symptoms months after infection, searching for answers in the pre-dawn hours.

✍️ Research explores pathways that may link viral illness to lasting digestive disruption: https://TPC8.short.gy/0b7ETNSB

🌅 Dawn always comes, but understanding arrives on its own timeline.

#PostViralReflux #Gastroenterology #Gastroparesis #GERD #DigestiveHealth #PediatricHealth #HealthScience #ChronicReflux #STEM #TPC8

🌙 When the virus departs, why does the midnight coughing remain? Families navigate unexplained reflux symptoms months after infection, searching for answers in the pre-dawn hours.

✍️ Research explores pathways that may link viral illness to lasting digestive disruption: https://TPC8.short.gy/0b7ETNSB

🌅 Dawn always comes, but understanding arrives on its own timeline.

#PostViralReflux #Gastroenterology #Gastroparesis #GERD #DigestiveHealth #PediatricHealth #HealthScience #ChronicReflux #STEM #TPC8

@AncTreat5358

First, you mentioning gastroparesis and that you have a lot of medical conditions I would ask if you've talked to a doctor about Ehlers Danlos. If not, I would suggest it.

Secondly, it's not fun. I don't know exactly what my chart says I have but gastroparesis is certainly something that I deal with but is one of the lesser things I've focused on though I think it's starting to show it's self a lot more recently. A few things I've noticed helping is hydration (if you are able to get saline IVs somewhere especially), marijuana (specifically it seems CBG helps me more), and Huperzine A (a supplement you can get OTC but you absolutely should let your doctor know you are taking it). Additionally I have noticed a histamine component but I'm not sure if it's a general gastroparesis thing or if it's a me thing but Cromolyn Sodium (Gastrocrom) helps a lot but it's unfortunately an expensive medicine.

I'm happy to talk more about it but don't want to just infodump

#Gastroparesis #AskFedi

Hi everyone. How are you tonight?

It’s been a rough few months, and I wanted to share an update since I haven’t posted in a while.

A few months ago, I was officially diagnosed with Rheumatoid Arthritis, something we’ve suspected for a while, so it was nice to finally get confirmation. My rheumatologist started me on Methotrexate, and that’s when things took a turn for the worse.

I was prescribed 6 tablets once a week and took them for 6 weeks. But I started getting extremely sick with flu-like symptoms, worsened gastroparesis, painful sores all over my body, and more. When we looked up Methotrexate side effects, I had around 20 of the ones that say to seek medical attention immediately.

We later found out that, due to my other health conditions, I should never have been prescribed Methotrexate in the first place. I also should’ve been monitored weekly, which wasn’t happening. Things got so bad we nearly went to the hospital several times, but since I’m immunocompromised and Methotrexate suppresses the immune system, we were afraid I’d catch something in the ER.

We tried contacting my doctors, but no one responded. So we stopped the medication ourselves. It’s been about 3 weeks since I stopped, and I’m still recovering, but I’m slowly getting stronger. Unfortunately, my RA is flaring badly in my hands and feet since it’s currently untreated.

A few days ago, I did end up going to the hospital because I wasn’t improving. They found my blood sugar was dangerously high, diagnosed me with diabetes, gave me fluids, and discharged me. Ironically, I started feeling better the next day. Now we’re unsure if I truly have diabetes or if it’s a lingering effect of the Methotrexate, which can mess with blood levels.

I was so sick I had to take a C in my theology course because I couldn’t finish the final paper, and I had to drop the next class I was supposed to start. My next course begins August 25, and I’m doing everything I can to be well enough to take it.

This whole experience showed me how broken my care coordination is. My primary care doctor didn’t know what was happening and wasn’t communicating with my other specialists. No one was checking my chart to make sure treatments wouldn’t conflict with my other conditions. I have a meeting next week with my Medicaid service coordinator to talk about better coordinated care and possibly enrolling in dual Medicare/Medicaid, which I’ve been told I qualify for.

This could have killed me. I’m grateful to be alive and slowly healing, but I’m also angry and frustrated that this happened at all.

Thanks for reading. I appreciate all of you.

#ChronicIllness #disability #RheumatoidArthritis #Methotrexate #Gastroparesis #Diabetes #Medicaid #Medicare #HealthcareSystem #PatientSafety #CareCoordination #Immunocompromised #DisabledAndProud #Survivor #Spoonie #SpoonieLife #HealthUpdate #ChristianSpoonie

I deviated from my usual eating patterns for my birthday party on Sunday and am still dealing with the repercussions today. I love birthday cake, strawberry daiquiris, and snacking all day, but my GI tract does not. It went on strike.

I was so bloated last night that I looked third-trimester pregnant. I'm considerably smaller today after deplorable bathroom shenanigans taking place throughout the night courtesy of a teeny weeny pill, but I have no appetite. I have been sipping on tea and avoiding the gym. Hopefully I'll be recovered enough for @Knightky 's work party tomorrow. Phew! #IBS #Diverticulosis #Gastroparesis #Dyspepsia #ChronicIllness

Gastroparesen skenar just nu. Har fortfarande fett att ta av men märker hur utmattad jag lätt blir. Hur hjärtat skenar. Hur jag är konstant illamående och kräks. Att det gör ont efter att ha ätit.

Och det jobbigaste, att jag får små blackouts när jag försöker pressa kroppen. Tänk som flimrande lysrör.

Jag är mer aktiv än på många år men det kräver en hel del för att kunna hålla tempot uppe.
#gastroparesis #disability #funkisliv

Young woman with Ehlers-Danlos discusses her experience with gastroparesis -

What made my GASTROPARESIS better?!
https://youtu.be/ujtdwrGvne0?si=7dCWlo23xRCnNYdc

#Gastroparesis #vomiting #nausea #EhlersDanlos #hEDS

Gastroparesis Awareness Month. Gastroparesis is often associated with Ehlers-Danlos syndrome, EDS, and ME/CFS.
https://www.thecanary.co/uk/news/2024/08/13/gastroparesis/?__s=9bm2sty5aen2kqh2i4ez

#Gastroparesis
#EhlersDanlosSyndromes
#EDS
#ME
#CFS

Currently debating if I should spend $250 on trying acotiamide, a medication that is approved for postprandial distress syndrome in Japan and India.

Not that it will help with blood pooling into my stomach due to #POTS or avoid post-exertional malaise from eating more than I can tolerate, but if it can make digestion somewhat less painful…

😮‍💨

#MECFS #NEISvoid #gastroparesis

Wife developed #gastroparesis really bad & saw many specialists over the past several years & it just got worse. So bad that they were talking about options like a stimulator or a drain tube, which would be ironic because I have a feeding tube. We joked, "I would have one for input, she would have one for output."

A new #nurse practitioner determined it was her #Trulicity causing it, took her off of it &added mealtime insulin

Gastroparesis mostly gone; glucose numbers much better than ever now

Here is a summary (https://bit.ly/46OpN4J) of the new #SystematicReview on #ExocrinePancreaticInsufficiency in #type1diabetes and #type2diabetes including:

1. EPI 101
2. Why people with diabetes & healthcare providers should care
3. How many people w/ T1D & T2D get EPI
4. #PERT safety in #diabetes
5. PERT effect on #glucose
6. EPI vs #celiac and #gastroparesis in people with diabetes (you might be surprised, #gastrodon !)
7. If you suspect EPI...what should you do?

📢New article!

"A Systematic Review of Exocrine Pancreatic Insufficiency Prevalence and Treatment in Type 1 and Type 2 Diabetes"

https://doi.org/10.1089/dia.2023.0157

(Find an author copy + access all of my research at DIYPS.org/research!)

Or read my summary here: https://bit.ly/46OpN4J

#diabetes #type1diabetes #type2diabetes #EPI #PEI #exocrinepancreaticinsufficiency #gastrodon #gastroparesis #celiac

I would think that my oral health doesn’t suffer much from me being able to brush my #teeth only once a day, because I just consume some liquids and jello (I can’t eat solid food due to #gastroparesis). But I’m trying to look after it, so I’ve started chewing #xylitol gum 3 times a day for 15-20 minutes at a time, as per the instructions on the label.

It sounds like nothing but it still is a non negligible effort with severe #MECFS. Hope I can keep it up, my mouth does feel fresher and cleaner.

An ingestible #sensor whose location can be monitored as it moves through the #digestive tract, an advance that could help #doctors more easily diagnose #gastrointestinal motility disorders such as #constipation, #gastroesophageal reflux disease, and #gastroparesis.
#Engineering #Medical #sflorg
https://www.sflorg.com/2023/02/eng02132301.html

A recent review of the evidence on #erythromycin for #gastroparesis from the NHS’ Specialist Pharmacy Service: https://www.sps.nhs.uk/articles/what-is-the-optimal-prokinetic-dose-of-erythromycin-in-adults-2/

TL;DR: “Long term oral use is limited by poor tolerance, modest efficacy and the development of tachyphylaxis (rapidly diminishing response to drug therapy).”

My GP prescribed it to me so I’ll give it a shot, but I won’t stay on it. It also interacts with diazepam, to which I’m very sensitive because of physical dependence.

#MECFS #pwME #NEISvoid

A recent review of the evidence on #erythromycin for #gastroparesis from the NHS’ Specialist Pharmacy Service: https://www.sps.nhs.uk/articles/what-is-the-optimal-prokinetic-dose-of-erythromycin-in-adults-2/

TL;DR: “Long term oral use is limited by poor tolerance, modest efficacy and the development of tachyphylaxis (rapidly diminishing response to drug therapy).”

My GP prescribed it to me so I’ll give it a shot, but I won’t stay on it. It also interacts with diazepam, to which I’m very sensitive because of physical dependence.

#MECFS #pwME #NEISvoid

A recent review of the evidence on #erythromycin for #gastroparesis from the NHS’ Specialist Pharmacy Service: https://www.sps.nhs.uk/articles/what-is-the-optimal-prokinetic-dose-of-erythromycin-in-adults-2/

TL;DR: “Long term oral use is limited by poor tolerance, modest efficacy and the development of tachyphylaxis (rapidly diminishing response to drug therapy).”

My GP prescribed it to me so I’ll give it a shot, but I won’t stay on it. It also interacts with diazepam, to which I’m very sensitive because of physical dependence.

#MECFS #pwME #NEISvoid

Intro. Hi all. Spoonie with sizable herd of zebras. I'm hoping for this to be a place to get important info on COVID and other crises, connect with other disabled people, and grow my advocacy skills. My current focus is to make actionable changes toward the therapy field being less ableist and creating more chronic illness competent therapists. Imma get comfy before posting much but grateful for follow suggestions.
#CRPS #IIH #Gastroparesis #Migraines #Therapy #Disabled #MaskUp #CovidIsAirborne

Nice to see the #psychology #mentalheath growing on 🐘 Looking to connect with #healthpsychologiy folks specifically if you’re here 👋

My specialty is a new-ish field called paychogastroenterology or #gastropsych on the bird app. We focus on the intersection of mental health and digestive illness like #IBD #IBS #GERD #gastroparesis #achalasia #EoE

I research #medicaltrauma #PTSD and also the role of #HRV and hypervigilance in diseases affecting the esophagus. If you’re out there say hi 😊