#crps — Public Fediverse posts

I got a positive differential diagnosis today for the rare condition of CRPS only because I didn’t have a crush injury and it’s lower extremity bilateral instead of one side. I did easily meet the Budapest criteria. Autonomic neuropathy may be the primary for this, to be validated next month by a neurologist.

#CRPS #AutonomicNeuropathy

I finally got round to sending my statement and evidence about the accident at work I had in November (fell down an open drain left by a contractor).

Writing it, I realised why I'd put off for so long: the anxiety I've felt about my CRPS returning because of the injury to my foot and leg. I made it abundantly clear that this was the main mental anguish I've been suffering since November. Not to mention the physical pain every time I walk.

Feels good to have gotten it done.
#CRPS #RSD

3/
From first link:
“Law No. 15.176, of July 23, 2025, establishes the basis for the creation of a national program to protect the rights of people affected by fibromyalgia, chronic fatigue syndrome, complex regional pain syndrome, and other related diseases.”

#MEcfs #CFS #Fibromyalgia #CRPS @mecfs

Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.

https://pubmed.ncbi.nlm.nih.gov/30747906/

https://doi.org/10.1097/j.pain.0000000000001520

Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.

https://pubmed.ncbi.nlm.nih.gov/30747906/

https://doi.org/10.1097/j.pain.0000000000001520

Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.

https://pubmed.ncbi.nlm.nih.gov/30747906/

https://doi.org/10.1097/j.pain.0000000000001520

Complex regional pain syndrome (CRPS) goes along with secondary #hyperparathyroidism. Our group was the first to describe this. The mechanism leading to #sHPT is unclear, but it may contribute to the loss of bone substance in #CRPS.

https://pubmed.ncbi.nlm.nih.gov/30747906/

https://doi.org/10.1097/j.pain.0000000000001520

I'm at my mom's, and it saddens me to see her in much pain from #CIRVA / #CRPS, a chronic condition where the whole arm is getting extremely painful, for years after vaccination. For her it started immediately after getting the flu vaccine and later the covid one on the same arm (her other arm had no problem). I feel guilty that I was pushing her to get the covid vaccine back then. Her condition is very rare, but it does happen occasionally.

#health #greece #vaccine #vaccines #covid #flu

Ever feel like the world is conspiring against you?
Phone call from the (very good) NHS pain clinic secretary to let me know that I can't have any more ketamine infusions until the issue with my heart is sorted out as it's a contraindication. I was due the next in three weeks as I have them every month.

OK. But.

The echocardiogram I was meant to have privately was cancelled by the referring anaesthetist because my arm surgery is in the process of being transferred to the NHS - under the same surgical team. If the pre-surgery assessment ECG shows up anything amiss they will do the echo then.

I have no date for the surgery, hence no date for a pore-surgical assessment, hence no Ketamine infusions for, quite possibly, many months.

Oh well, it's only excruciating chronic pain - nothing to see here. When it's decided if/if not my heart really is an issue and my pain consultant (if not) can do the infusions again, it will take at least 4-6 weeks to arrange, pushing it even further into the foggy future.

Is it too early to start drinking?

#CRPS #chronicillness #pain

im a little worried. the other day i had an unusually intense pain. when i came to, i could not hear in my left ear and my right sounded like i was underwater.

it took about a day and a half for everything to get back to normal.

i cant get an appointment with my neuro until november. has anything like this happened to you? if you dont want to reply, dm.

#crps

better this morning. #crps leaves me with a narrow temperature window where i dont feel crushed.

cant imagine actually getting covid. i dont think id make it.

Our smartphone-based 📱 #research with #CRPS patients, in collaboration with Heike Rittner and Claudia Sommer, uncovers gender differences in social #support on pain intensity: while men benefit more from solicitous support, women benefit from emotional support.

https://doi.org/10.1186/s12883-024-03792-z

when i come out of the other side of #crps, i will remember to ignore all the people who have ignored me.

i have often tried to convey how much i hurt, every day. i have #crps. i woke up from a surgery on a foot i had broken 15 years before to searing pain i though was normal.

i was told to be successful i had to walk on my foot, so i did.

i often try to convey to people my foot often hurts so bad it feels like i was just kneed in the balls.

me, unrecovered, from being kneed in the balls in 2004.

Wow, this is seriously good news for people with Chronic Pain like CRPS (which I had and am in "remission" from) and other autoimmune diseases. I hope it allows people to finally find peace.

https://www.nature.com/articles/d41586-024-01259-2

#CRPS #ChronicPain #autoimmunedisease

CRPS is a hell og a condition. #crps

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

People with #ChronicPain that gets flared by hot weather, what methods have you found to cope, other than the obvious ones like cold showers, ice packs and freeze sprays?

Have a week long 30C+ stretch and want to find ways to get through it with less pain.

#NEISvoid #Fibromyalgia #CRPS

9/10 pain day. jebus this hurt. #crps

#TheMetalDogArticleList
#BLABBERMOUTH
MICK MARS On His Battle With Degenerative Disease Ankylosing Spondylitis: 'I'm Almost A Solid Bone Now'

https://blabbermouth.net/news/mick-mars-on-his-battle-with-degenerative-disease-ankylosing-spondylitis-im-almost-a-solid-bone-now

#MickMars
#DegenerativeDisease
#AnkylosingSpondylitis
#BassGuitarist
#CRPS
#BackPain
#Osseointegration
#MetalHealth
#MötleyCrüe
#MusicalLegacy

#crps #celestial

It's crazy to me I have all this tech around me including ham radios but I feel the most alone I have ever been. I would love to fly fish again, least it was fun being alone then. #CRPS #divorce

"a single SNP in each of the genes ANO10, P2RX7, PRKAG1 and SLC12A9 was associated with developing chronic Complex regional #pain #syndrome type 1 (CRPS-1), with more males than females expressing these rare alleles. Our work suggests the possibility that a permissive genetic background is an important factor in the development of CRPS-1."

https://jmg.bmj.com/content/early/2023/09/15/jmg-2023-109236

#CRPS #chronicPain

‘I’m being burnt alive Mum’: Young woman diagnosed with ‘suicide disease’ faces race against time | The Independent
https://www.independent.co.uk/news/health/suicide-disease-crps-pain-gofundme-b2371384.html

#CRPS
#SuicideDisease
#ComplexRegionalPainSyndrome

„Ein besonderer Moment ist der wenn meine Leichtigkeit wie eine Feder über den Asphalt schwebt.“
~
Dankbar für mittlerweile 9 Jahre auf zwei Beine, laufend, durch die Straßen. Dankbar für Menschen die diese Wege begleiteten, für Zuspruch, Geduld, Verständnis.💜 #thankful #morbussudeck #crps #handicap #schmerzsyndrom #trauma #newshoes #happy

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFleak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFleak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFleak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISVoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFleak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

Here are some of the communities; fandoms & things I love:

#GoodOmens
#NeilGaiman
#Discworld
#StudioGhibli
#Disney
#AusLit
#YA
#AnimalCrossing
#Pokemon
#Nevermoor
#PostCrossing
#Crochet
#DisneyDreamlightValley
#WoodWideWeb

I live with multiple #DynamicDisablity (ies) including #FND , #CRPS , #ADHD , #Fibromyalgia (and a few others!). The #NEISVoid has been an incredible support. I’m #HighRiskCovid19 and recovering from a recent infection. I’m apart of the #NeurodiverseSquad . 2/2

Here are some of the communities; fandoms & things I love:

#GoodOmens
#NeilGaiman
#Discworld
#StudioGhibli
#Disney
#AusLit
#YA
#AnimalCrossing
#Pokemon
#Nevermoor
#PostCrossing
#Crochet
#DisneyDreamlightValley
#WoodWideWeb

I live with multiple #DynamicDisablity (ies) including #FND , #CRPS , #ADHD , #Fibromyalgia (and a few others!). The #NEISVoid has been an incredible support. I’m #HighRiskCovid19 and recovering from a recent infection. I’m apart of the #NeurodiverseSquad . 2/2

Here are some of the communities; fandoms & things I love:

#GoodOmens
#NeilGaiman
#Discworld
#StudioGhibli
#Disney
#AusLit
#YA
#AnimalCrossing
#Pokemon
#Nevermoor
#PostCrossing
#Crochet
#DisneyDreamlightValley
#WoodWideWeb

I live with multiple #DynamicDisablity (ies) including #FND , #CRPS , #ADHD , #Fibromyalgia (and a few others!). The #NEISVoid has been an incredible support. I’m #HighRiskCovid19 and recovering from a recent infection. I’m apart of the #NeurodiverseSquad . 2/2

Here are some of the communities; fandoms & things I love:

#GoodOmens
#NeilGaiman
#Discworld
#StudioGhibli
#Disney
#AusLit
#YA
#AnimalCrossing
#Pokemon
#Nevermoor
#PostCrossing
#Crochet
#DisneyDreamlightValley
#WoodWideWeb

I live with multiple #DynamicDisablity (ies) including #FND , #CRPS , #ADHD , #Fibromyalgia (and a few others!). The #NEISVoid has been an incredible support. I’m #HighRiskCovid19 and recovering from a recent infection. I’m apart of the #NeurodiverseSquad . 2/2

Intro. Hi all. Spoonie with sizable herd of zebras. I'm hoping for this to be a place to get important info on COVID and other crises, connect with other disabled people, and grow my advocacy skills. My current focus is to make actionable changes toward the therapy field being less ableist and creating more chronic illness competent therapists. Imma get comfy before posting much but grateful for follow suggestions.
#CRPS #IIH #Gastroparesis #Migraines #Therapy #Disabled #MaskUp #CovidIsAirborne

But I guess on the plus side I watched Atlantis and the original Mary Poppins last night and it was wonderful, comforting viewing. Do you have a favourite comfort movie or tv show? Would love to know yours! #NEISVoid #DisabilityTwitter #DisabilityMastodon #ChronicIllness #CRPS #DisabledAndCute