#crps — Public Fediverse posts

#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD​
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFleak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

Here are some of the communities; fandoms & things I love:

#GoodOmens
#NeilGaiman
#Discworld
#StudioGhibli
#Disney
#AusLit
#YA
#AnimalCrossing
#Pokemon
#Nevermoor
#PostCrossing
#Crochet
#DisneyDreamlightValley
#WoodWideWeb

I live with multiple #DynamicDisablity (ies) including #FND , #CRPS , #ADHD , #Fibromyalgia (and a few others!). The #NEISVoid has been an incredible support. I’m #HighRiskCovid19 and recovering from a recent infection. I’m apart of the #NeurodiverseSquad . 2/2

Intro. Hi all. Spoonie with sizable herd of zebras. I'm hoping for this to be a place to get important info on COVID and other crises, connect with other disabled people, and grow my advocacy skills. My current focus is to make actionable changes toward the therapy field being less ableist and creating more chronic illness competent therapists. Imma get comfy before posting much but grateful for follow suggestions.
#CRPS #IIH #Gastroparesis #Migraines #Therapy #Disabled #MaskUp #CovidIsAirborne