#clusterheadaches — Public Fediverse posts

The mystery and misery of headaches - Think
Tom Zeller Jr. joins Krys to talk about the science, treatment, and social stigma of headaches.

#KERA #KeraThink #KrysBoyd #Headaches #ClusterHeadaches #migraines
https://think.kera.org/2025/07/29/the-mystery-and-misery-of-headaches/

The mystery and misery of headaches - Think
Tom Zeller Jr. joins Krys to talk about the science, treatment, and social stigma of headaches.

#KERA #KeraThink #KrysBoyd #Headaches #ClusterHeadaches #migraines
https://think.kera.org/2025/07/29/the-mystery-and-misery-of-headaches/

The mystery and misery of headaches - Think
Tom Zeller Jr. joins Krys to talk about the science, treatment, and social stigma of headaches.

#KERA #KeraThink #KrysBoyd #Headaches #ClusterHeadaches #migraines
https://think.kera.org/2025/07/29/the-mystery-and-misery-of-headaches/

The mystery and misery of headaches - Think
Tom Zeller Jr. joins Krys to talk about the science, treatment, and social stigma of headaches.

#KERA #KeraThink #KrysBoyd #Headaches #ClusterHeadaches #migraines
https://think.kera.org/2025/07/29/the-mystery-and-misery-of-headaches/

The mystery and misery of headaches - Think
Tom Zeller Jr. joins Krys to talk about the science, treatment, and social stigma of headaches.

#KERA #KeraThink #KrysBoyd #Headaches #ClusterHeadaches #migraines
https://think.kera.org/2025/07/29/the-mystery-and-misery-of-headaches/

Finally got the Nasal spray sumatriptan today - it is out of stock at the nearest CVS pharmacy. I got it transferred to another one and they have it!

Last night was tough. I got woken up by the headache around 1am, and it was so bad that it felt like a drill was being used on my brain. My body was sweating and sheet was soaked in half an hour.

Hopefully it doesn’t happen again tonight! But if it does, I know the sumatriptan will help me.

If it keeps going like this for a week or so, I’ll have to get Verapamil (a calcium channel blocker) to help control the frequency it happens, together with the sumatriptan.

Wish me luck 🍀

#ClusterHeadaches

I haven’t finished reading this article because I have to work or whatever (ugh) but it’s interesting so far.

https://share.inquirer.com/NjgxT5

#GiftLink #psilocybin #ClusterHeadaches

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

The 20 ‘most painful' health conditions, according to the NHS
https://www.msn.com/en-gb/health/medical/the-20-most-painful-health-conditions-according-to-the-nhs/ar-AA1kSjMR?cvid=0891b67d26254255841cf61460de207b&ocid=winp2fptaskbarhover&ei=7

#Pain
#NHS
#Endometriosis
#SlippedDisc
#Appendicitis
#BrokenBones
#Shingles
#FrozenShoulder
#ClusterHeadaches
#ComplexRegionalPainSyndrome
#CRPS
#HeartAttack
#KidneyStones
#Arthritis
#Gout
#SickleCellDisease
#SickelCell
#Fibromyalgia
#Migraine
#Sciatica
#TrigeminalNeuralgia
#AcutePancreatitus
#StomachUlcer
#PáinAfterSurgery

Woman sues hospital for denying care because she’s ‘childbearing age’ | The Independent
https://www.independent.co.uk/news/world/americas/new-york-hospital-childbearing-age-b2425613.html

#Women
#Healthcare
#ChildbearingAge
#ClusterHeadaches
#AffordableCareAct
#CivilRightsAct
#HIPAA
#NewYorkStatePatientBillOfRights
#FederalRegulations

Woman sues hospital for denying care because she’s ‘childbearing age’ | The Independent
https://www.independent.co.uk/news/world/americas/new-york-hospital-childbearing-age-b2425613.html

#Women
#Healthcare
#ChildbearingAge
#ClusterHeadaches
#AffordableCareAct
#CivilRightsAct
#HIPAA
#NewYorkStatePatientBillOfRights
#FederalRegulations

Woman sues hospital for denying care because she’s ‘childbearing age’ | The Independent
https://www.independent.co.uk/news/world/americas/new-york-hospital-childbearing-age-b2425613.html

#Women
#Healthcare
#ChildbearingAge
#ClusterHeadaches
#AffordableCareAct
#CivilRightsAct
#HIPAA
#NewYorkStatePatientBillOfRights
#FederalRegulations

Woman sues hospital for denying care because she’s ‘childbearing age’ | The Independent
https://www.independent.co.uk/news/world/americas/new-york-hospital-childbearing-age-b2425613.html

#Women
#Healthcare
#ChildbearingAge
#ClusterHeadaches
#AffordableCareAct
#CivilRightsAct
#HIPAA
#NewYorkStatePatientBillOfRights
#FederalRegulations

As promised, here's a thread of art I produced while treating my cluster-headache condition following a stroke with LSD (upon reading of its application as a prophylactic for said condition in studies done between Harvard University and Sandoz Laboratories, which I'll link to at the end of this thread).

TW/CW in advance for images and image descriptions later in this thread concerning suicidal ideation, childhood sexual abuse, phallic imagery.

This image here is simply titled, "Cluster Headache."

#ClusterHeadaches #PsychedelicArt #LSD #Painting

Well, this is bullshit. All progress towards treatment, especially affordable treatment, has been community driven. #disabilty #disabled #DisabilityPrideMonth #ClusterHeadaches

For any other headache suffers out there, this week’s episode (S2 E4) of #StrangeNewWorlds has a loud piercing sound randomly throughout. :blobcatnotlike:

#StarTrek #StarTrekStrangeNewWorlds #disability #ClusterHeadaches

I’ve been on Mastodon for 6 months, just changed servers, and — given the prevalent “this is it” feeling of other Twitter castaways this week — it feels a good time to re-re-introduce myself.

I am a survivor of clergy sexual abuse from Greater Boston — I was one of them kids. My writing sprouts rhizomatically from there and then through autofiction based on 16 years of dream-journaling, episodic dissociation, recalls of abuse, alcohol addiction and recovery, a sensitivity to ephemera and eternal return.

Following a stroke 12 years ago I became a certified personal trainer. Further into recovery I co-hosted wellness seminars for fellow survivors of sexual abuse. Ambulatorily-disabled upon being hit by a 65+mph car 5+ years ago, I now walk with the assistance of a shillelagh. I continue to train in San Miguel Eskrima.

I’m on social media primarily out of concern over COVID and fascism. A recluse, offline I keep to myself. But I’ve also never met a stranger.

...

Interests & Concerns: #Beckett #Camus #MaggieNelson #PattiSmith #Deleuze #DeleuzeAndGuattari #SituationistInternational #Semiotics #Semiotexte #JudithButler #cptsd #nonbinary #demisexual
#ClergySexualAbuseSurvivor #ClusterHeadaches #Stroke
#zazen #QiGong #Eskrima #dissociation #NearDeathExperiences #OutOfBodyExperiences #SleepParalysis
#Kanashibari #DreamJournaling #autofiction #anarchism #antifascism #AntiCapitalism #ACAB #JapaneseCinema #Oshima #JeanLucGodard #Osaka #Berlin #BuenosAires #StillMasking #AmbulatoryDisability #kettlebell #BodyweightCalisthenics
#chess
#MonoNoAware #WabiSabi

...

“Ever tried. Ever failed. No matter. Try again. Fail again. Fail better.” — Samuel Beckett

"Life, willing to surpass itself, is the good life, and the good life is the courageous life." — Paul Tillich

"All suffering is formative of the identity that endures it." — Catherine Malabou

"To make trouble was, within the reigning discourse of my childhood, something one should never do precisely because that would get one in trouble. The rebellion and its reprimand seemed to be caught up in the same terms, a phenomenon that gave my first critical insight into the subtle ruse of power: the prevailing law threatened one with trouble, even put one in trouble, all to keep one out of trouble. I concluded that trouble is inevitable and the task how best to make it, what best way to be in it." —Judith Butler

"‘Everything develops, and I myself develop as well; and why this is so will one day be apparent,’ was the formula I was obliged to adopt." — Tolstoy

"I feel that it is necessary and ordained that I should be alone, a stranger and an exile in relation to every human circle without exception." — Simone Weil

"At that stage in a piece of writing where people used to look for explanations, I would like them from now on to find a settling of scores." — Raoul Vaneigem

"The only two things that motivate me and that matter to me are revenge and guilt." —Elvis Costello.

"There is a battle going on, more or less conscious, between Duty and Desire. The part of me which belongs to the world wishes to do its duty : the part of me which belongs to God wishes simply to fulfill what is required and which is un-stateable." — Henry Miller

“I do not believe in God and I am not an atheist.” — Albert Camus

I’ve been on Mastodon for 6 months, just changed servers, and — given the prevalent “this is it” feeling of other Twitter castaways this week — it feels a good time to re-re-introduce myself.

I am a survivor of clergy sexual abuse from Greater Boston — I was one of them kids. My writing sprouts rhizomatically from there and then through autofiction based on 16 years of dream-journaling, episodic dissociation, recalls of abuse, alcohol addiction and recovery, a sensitivity to ephemera and eternal return.

Following a stroke 12 years ago I became a certified personal trainer. Further into recovery I co-hosted wellness seminars for fellow survivors of sexual abuse. Ambulatorily-disabled upon being hit by a 65+mph car 5+ years ago, I now walk with the assistance of a shillelagh. I continue to train in San Miguel Eskrima.

I’m on social media primarily out of concern over COVID and fascism. A recluse, offline I keep to myself. But I’ve also never met a stranger.

...

Interests & Concerns: #Beckett #Camus #MaggieNelson #PattiSmith #Deleuze #DeleuzeAndGuattari #SituationistInternational #Semiotics #Semiotexte #JudithButler #cptsd #nonbinary #demisexual
#ClergySexualAbuseSurvivor #ClusterHeadaches #Stroke
#zazen #QiGong #Eskrima #dissociation #NearDeathExperiences #OutOfBodyExperiences #SleepParalysis
#Kanashibari #DreamJournaling #autofiction #anarchism #antifascism #AntiCapitalism #ACAB #JapaneseCinema #Oshima #JeanLucGodard #Osaka #Berlin #BuenosAires #StillMasking #AmbulatoryDisability #kettlebell #BodyweightCalisthenics
#chess
#MonoNoAware #WabiSabi

...

“Ever tried. Ever failed. No matter. Try again. Fail again. Fail better.” — Samuel Beckett

"Life, willing to surpass itself, is the good life, and the good life is the courageous life." — Paul Tillich

"All suffering is formative of the identity that endures it." — Catherine Malabou

"To make trouble was, within the reigning discourse of my childhood, something one should never do precisely because that would get one in trouble. The rebellion and its reprimand seemed to be caught up in the same terms, a phenomenon that gave my first critical insight into the subtle ruse of power: the prevailing law threatened one with trouble, even put one in trouble, all to keep one out of trouble. I concluded that trouble is inevitable and the task how best to make it, what best way to be in it." —Judith Butler

"‘Everything develops, and I myself develop as well; and why this is so will one day be apparent,’ was the formula I was obliged to adopt." — Tolstoy

"I feel that it is necessary and ordained that I should be alone, a stranger and an exile in relation to every human circle without exception." — Simone Weil

"At that stage in a piece of writing where people used to look for explanations, I would like them from now on to find a settling of scores." — Raoul Vaneigem

"The only two things that motivate me and that matter to me are revenge and guilt." —Elvis Costello.

"There is a battle going on, more or less conscious, between Duty and Desire. The part of me which belongs to the world wishes to do its duty : the part of me which belongs to God wishes simply to fulfill what is required and which is un-stateable." — Henry Miller

“I do not believe in God and I am not an atheist.” — Albert Camus

Everyday is progress! 🙏🏻 #ClusterHeadaches #disability https://migrainecollaborative.org/promising-signs-for-psychedelic-use-in-cluster-headache

living in New England, I am absolutely counting down until we #springforward I need more daylight in my life 😭 #DaylightSavingTime

as someone with #ClusterHeadaches, I cannot handle the disruption. hopefully this year will be easier on me 🤞🏻

YES! I will volunteer, but they aren’t going to make any progress with 0.15mg though. I can’t believe the hell I’ve been for over ten years and only recently remembered what it feels like to have a normal brain. #ClusterHeadaches https://www.psypost.org/2023/02/scientists-are-finally-taking-a-serious-look-at-psilocybin-for-the-treatment-of-cluster-headaches-68269

an #introduction?
I was a goth kid who grew up to become a goth adult. I love most types of media with #horror being a top genre. #videogames #books #movies.

My real favorite is #music. I love #stonerrock #progrock #riotgrrrl #metal

I have an adorably cute #cat named Sebastian. I suffer from #ClusterHeadaches and #chaos

“i killed the teen dream, deal with it.” #jawbreaker

Then tried everything I hadn't yet tried in my headache toolkit, sadly without success (WTF?!). Damn I hate life as a human doing, longing to be a human being again. Some days--and sadly some weeks and months--it's just not meant to be. #hemicraniacontinua #clusterheadaches #chronic