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#trigeminalneuralgia — Public Fediverse posts

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  1. Which nerve is most commonly affected in trigeminal neuralgia?
    A. Vagus nerve
    B. Sciatic nerve
    C. Trigeminal nerve
    D. Facial nerve
    #trigeminalneuralgia #neuralgia #nervepain #neurology ... Continue to: facebook.com/1130092409221646/

  2. Day 30.

    Pain level sitting at a solid 8 or 9, edging towards 10.

    All sound hurts.

    Breathing hurts.

    Movement hurts.

    Swallowing hurts.

    Being anything less than unconscious hurts.

    Even then, I woke up with pain anytime I moved my head or readjusted in bed while trying to sleep.

    #trigeminalneuralgia
    #multiplesclerosis
    #invisiblediseases
    #atypicalmigraine

  3. Nerve compression - trigeminal neuralgia

    Oh yay! Treatable, but likely incurable.

    I mean, here's to hoping this explains the years of unexplained migraines at least.

    I'm out here collecting new Autoimmune issues like they're Pokémon! Gotta catch them all!

    #TMJ
    #TrigeminalNeuralgia
    #autoimmunedisease

  4. Edmonton clinical trial offers hope to people suffering ‘most severe pains known to mankind’

    A group of Edmonton researchers is recruiting dozens of patients across the province to take part in a…
    #NewsBeep #News #Health #CA #Canada #GammaKnife #gammaknifesurgery #HealthMattersEdmonton #trigeminalneuralgia
    newsbeep.com/ca/543933/

  5. Like a screwdriver in my face – Life with ‘the world’s most painful known medical condition’

    It felt like a screwdriver in the side of his face, with the pain so bad Gerwyn Tumelty…
    #NewsBeep #News #Health #CA #Canada #GerwynTumelty #screwdriver #severepain #trigeminalneuralgia
    newsbeep.com/ca/450473/

  6. Salman Khan recalls struggles with trigeminal neuralgia: Took hour to eat breakfast

    Salman Khan opened up about his struggles with trigeminal neuralgia, a chronic nerve disorder known to cause intense…
    #NewsBeep #News #Movies #BattleofGalwan #CA #Canada #chronicfacialpain #Entertainment #gammaknifesurgery #healthstruggles #nervedisorder #Partnermovie #SalmanKhan #suicidaldisease #trigeminalneuralgia #TwoMuchtalkshow
    newsbeep.com/ca/168152/

  7. Salman Khan reveals he 1st felt trigeminal neuralgia pain while shooting with Lara Dutta: ‘She removed strand of hair…’

    Actor Salman Khan has revealed that he first experienced the excruciating pain of trigeminal neuralgia while shooting for…
    #NewsBeep #News #Headlines #chronicpaindisorder #Latvia #LV #Partnermovie #salmankhan #SalmanKhansuicidedisease #SuicidalDisease #Trigeminalneuralgia
    newsbeep.com/144692/

  8. Living with sudden, electric shock–like facial pain can feel overwhelming. Trigeminal Neuralgia (TN) is often misunderstood, leaving patients searching for real answers and support.

    If you or a loved one is dealing with TN, this guide will give you clarity and hope.

    drchetandhongade.com/science-a

    #TrigeminalNeuralgia
    #ChronicPain
    #FacialPain
    #HealthTips
    #PainRelief
    #Neurology
    #DentalCare
    #MentalHealth
    #Ayurveda
    #WellnessJourney
    #SelfCare
    #PatientSupport
    #DrChetanDhongade

  9. ATTENTION #MATH PEOPLE!

    Please help me do the calculations. I'm hopeless.
    I am hoping a fellow interwebber can help figure out how many other people have #TrigeminalNeuralgia in Canada. The only info I can ever find is how many are diagnosed.
    So here is the break down:

  10. I have discovered that in my journey to learn ASL with my family, in order to deal with my selective mutism, my children and I have learned *So Many* ways to swear.

    I'm not sure if we should be proud or not 🤔🫠

    #TNWARRIOR #TrigeminalNeuralgia #parenting #NEISVOID #chronicpain

  11. Shout out to my friends, who when trying to communicate with me via #ASL, notepads, and a few slurred words, will continue conversation without missing a beat as if I was speaking all out loud and clear.

    My tribe brings me strength.

    #TNWARRIOR #TrigeminalNeuralgia #chronicpain #mute
    #NEISVOID

  12. It's been raining, snowing & sleeting for like three days straight. My joints hurt so bad. Sour weather & cold air trigger my trigeminal neuralgia too. My face burns like a cut with lemon juice & peroxide & my teeth hurt like they're being drilled 😩 I haven't been able to eat all day cuz of my face & teeth hurting. I can't lie down & sleep cuz I hurt too much & I'm hungry.
    #disabled #NEISvoid #TrigeminalNeuralgia #disabled #NEISvoid #TrigeminalNeuralgia

  13. An update about online classes this month. You're going to need support with all the migraines we're going to have the next 4 years, so get on this! :) ko-fi.com/post/Class-U... #MigrainTreatment #TMJ #TrigeminalNeuralgia #Headache #selfcare

    Class Update for this month!

  14. Registration for 12/07 is now over. We need 1 more signup for 12/10's self care class at 7pm-9pm to host it. Mailing list gets tickets for $35. otherwise it's $55 to learn my tried & true #IntraOral and other advanced Oralfacial techniques for #TrigeminalNeuralgia, #TMJD, #MigraineTreatment

  15. Outside in the cold air for less than ten minutes and my face has been hurting for hours since 😭 I haven't eaten dinner yet and am drinking tepid water bcuz eating and cold drinks can make it worse. This sucks. #TrigeminalNeuralgia #ChronicPain #NEISvoid

  16. Ugh, my face started hurting after taking my sister's trash out 😭 late fall & winter is always so hard cuz cold air is my biggest trigger. I was only outside for like 45 seconds too.

    #TrigeminalNeuralgia #RareDisease #NEISvoid

  17. At what point does the literal definition of insanity outweigh the benefits of trying again and again?

    Much like an addict, I understand that tools and techniques like this work. But, when they stop, a similar to "falling off the wagon" mentality kicks in, and theoretically, I should start over and try again 🧵

    #chronicpain #TNWarriors #TrigeminalNeuralgia #cbtechnique

  18. Well today isn't going to be easy. I'm being #dismissed on #medical grounds. No surprise.
    I'm trying to get the #illhealth #retirement #forms completed (it is complex and #stressful).
    In spite of knowing it's still awful. #Training for the #job was long, stressful and meant 7 years on next to no #money. At least I've had practice for being #broke, except this time it's worse as there's still 3 years to go to my #statepension
    #sicknessabsence #sickness #trigeminalneuralgia #work #poverty #pay

  19. Images on the #photograpy hashtags bring me #joy. Sometimes I trawl through my own pictures & post one.
    I only go out #masked as a #covidzero determined never to catch #covid. No longer able to #work owing to #trigeminalneuralgia I don't #socialise at all. It always seems to include #eating, #drinking or #noise. #Warmer #weather makes #masking hell so then even #walks stop being #fun.

    #Images #art
    #fensterfreitag #silentsunday #CatsOfMastodon #photo #foto #Fotografie

  20. @plaguepoems My mom's doctor has said flat out that Long Covid is why she's been having so many heart issues. And mine alluded it to my "lost year" last year for aggravating my pre-existing neurological issues. So much for the "mild" versions we both had ... :/

    #LongCovid #neurological #TrigeminalNeuralgia #neisvoid #Fibromyalgia #chronicpain #MyalgicEncephalomyelitis #chronicfatigue #heartattack

  21. @amberage it's much the same when the visibility is intermittent. With my #TrigeminalNeuralgia at times I look normal, and others the face is red, drooped, pinched etc etc. Still in various levels of pain either way, but the normal looking days people assume that I'm now cured and get confused when it's "back." They don't get it's #chronicpain

  22. @MatWright I wear the cloth ones regularly outside because the wind sets my #TrigeminalNeuralgia off. I've lost count how many "experts" shake their head at me because either a) The cloth isn't good enough to make a difference, or b) The 'pandemic is over- quit being so paranoid' argument. They both can't conceive there are other #health issues people deal with 🤦‍♀️

  23. I had a horrible #trigeminalneuralgia flare up last night, lasted until around 7:30am. I will never get used to this shit and it's been almost 6 years since being diagnosed.

    #chronicillness is really something else. I was eating pain meds like it was candy and only getting a mild buffer. So thankful that today is a better day.

  24. Full on #TrigeminalNeuralgia. So today is an Eleanor Roosevelt day: “You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do.”

    I can not do this. But apparently I am.

    The quote sounds so noble, but there's no choice here. It's just fucking happening. It's being terrified that there is no relief, it's being scared that friends will get fed up, coz you are such a bloody flake, + you must be rotten company moaning all the damn time.

    Also, TN usually improves for me in warmer weather, so I'm so disheartened atm, it's possible that things have deteriorated.

  25. When you struggle with #chronicpain it's so important to stay in the present moment. Because when you're finally having a good pain day it's easy to not even enjoy it because you're anticipating/anxious of when the pain will come back. Or sad over what you weren't able to accomplish while you were in it.
    To be present, you have to learn to flow like water and embrace each pain free day/moment fully. And it's hard to do sometimes...
    #trigeminalneuralgia #blackmastodon #blackfedi #health

  26. These are the #CBD gummies btw (or rather, the company that makes them).

    moonwlkr.com/?afmc=34n

    Full disclosure that's an affiliate link. I think it does 10 bucks. They have vapes, and tinctures too, also some with #delta9 THC. Pretty much the only thing that helps with my #TrigeminalNeuralgia or my insomnia. Also helps with nerve pain in my joints and limbs. Flavors are pretty good too.

    I'm in pain real bad right now, and don't have anymore, hence the help request above 😭

  27. Why is it ok to make such a song + dance about how much weight I've lost?! My secret? It's this One Weird Trick called having #TrigeminalNeuralgia + not eating enough. Oh + ta for making me realise what you REALLY thought of me before. I take ZERO joy in your 'celebration'.

    f.o.

    *cries*

  28. I recently discovered an app for micro #podcasting and finally recorded my first one. My voice is a bit groggy from pain meds (FU #trigeminalneuralgia) but if any night owls are up for a #tarot and #oracle reading or just have 5 mins to burn— check it out! swellcast.com/t/STapBzSID2nDdH

    #divination #podcast #tarotreading #latenight

  29. Hello loves, I realise I've committed a bit of a Mastodon faux pas and not done an #Introduction so let me offer you a belated one.

    Recently aquiring a #disability/ #chronichealth condition in #TrigeminalNeuralgia has upended my life. To that end I was 'rescued' by my forbears in the shape of the 200+ love letters they left behind - so I turned them into the #podcast 'My Love Letter Time Machine' and now spend large chunks of my life in the 1880s. Mainly to escape the pain, but also in the hope that it might eventually keep me and the cat fed. I love #gardening when I can manage it, bit of a #coffee snob, and adore #music. Learning to play the #piano and have a mild (cough) #fanfic addiction. I love playing #Zelda and #jrpgs. Recently divorced. I live in West #Wales and can get by in #Welsh. I'm bi, and #TransRightsAreHumanRights

    V happy to chat and make new friends.

    #Intro #TwitterMigration #mastodonintro

  30. My face every time someone complains about business mask mandates being "hard to breathe."
    Dude, I'm dressed for -25 and it's only -2! At least snowmobile gear is on sale this time of year 🙃
    Happy Tuesday #TNWarriors

    (Side note: not meant as a political or 'Vid thread so please don't go there. I'll just delete it )

    #TrigeminalNeuralgia #facialpain #chronicpain #tuesday #NEISVoid

  31. I forgot to add, that you may find me also speaking up/ranting about ( ) along with the failings of health care. Also

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