#raredisease — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #raredisease, aggregated by home.social.
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https://www.europesays.com/ie/681410/ Blood protein profiling could improve rare disease diagnosis #blood #Éire #ExomeSequencing #Gene #Genes #Genetic #GeneticInformation #Genome #Genomic #genomics #Healthcare #IE #Ireland #Laboratory #medicine #Protein #Proteomics #RareDisease #Research #Science
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https://www.europesays.com/ch/127437/ Novartis sees another setback, this time with neuromuscular drug #DrugDevelopment #Novartis #Pharmaceuticals #RareDisease #STAT+
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I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!
I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.
Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!
#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry
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@EU_Commission @EpiCARE_ERN And we are working towards a stronger EU response to #RareDiseases
The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion
More: https://health.ec.europa.eu/european-reference-networks_en
🐦🔗: https://n.respublicae.eu/EU_Health/status/1639934963003817984
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With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
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Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯
Support #RareDiseaseDay and join the discussion to raise awareness!
#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
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Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.
➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!