#raredisease — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #raredisease, aggregated by home.social.

Switzerland @[email protected] · 2026-09-08 · 08:05 UTC

https://www.europesays.com/ch/127437/ Novartis sees another setback, this time with neuromuscular drug #DrugDevelopment #Novartis #Pharmaceuticals #RareDisease #STAT+

#stat #raredisease #pharmaceuticals #novartis #drugdevelopment
Christian Gebhard @[email protected] · 2026-03-26 · 13:00 UTC

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!
I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.
Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!
#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

#eurondd #humangenetics #genetics #rarediseases #raredisease #ern