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#raredisease — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #raredisease, aggregated by home.social.

  1. Doctors say that old people are full of regrets.

    I'm trying not to have regrets.

    I tend not to watch things like mountain climbing where abled bodied people achieve such bc I start to have feelings of regret.

    I have a disability - autism - so I'm happy to watch productions where people overcome their conditions or disabilities.

    #raredisease #pwd #disabled #blackdisabled #blackpwd #neurodivergent #blackneurodivergent #blackautistic #blackmastodon

  2. 📣 Just heard that the Cilia2024 conference is almost fully booked! 😊 :happy:

    Hurry and grab the last on-site spots for the world's biggest cilia meeting in beautiful Dublin!

    Last-minute industry sponsors are welcome!

    Online participation in this hybrid meeting is, of course, not limited.

    Webpage: cilia2024.ie/

    #Cilia2024 #Ciliopathies #RareDisease #ADPKD #PCD #BBS #NPHP #Centrosome #Centriole #CellBiology #DevelopmentalBiology #Nephrology #Neurology #EMBO @cilia @cellbiology

  3. Register now for the amazing hybrid centrosome conference in Istanbul, hosted by Elif Nur Firat-Karalar!

    Sharing this announcement on the fediverse. Unsure if Elif has joined Mastodon yet…

    Some of us might see this as the basal body meeting 😉

    @cilia
    #Centrosome2023
    #cilia #centrosome #centriole #Embo #EmboWorkshop #Science #zilien #RareDisease #ScienceMastodon #Zentrosom #developmentalbiology #biology @nephrology #CellBiology #Ciliopathy

  4. 📣📣📣
    Okay, here it is, the #Cilia group:

    @cilia

    My first attempt didn't work, most likely because of the "&" within the former group-name.

    The way I understand this: everyone can now follow this group. If the group is mentioned in a post " @cilia ", this is shared with everyone in the group.

    Deeply sorry that the name is now only "cilia" - it is meant for maximum inclusion!!!

    It should include everyone:
    #raredisease #ciliopathies #centrosome #centriole #devbiol

    Please join!!! 🙂🙂🙂

  5. #HelloMstdn

    Hello fellow Mastodons!

    I'm a graduate student amazed by the entanglement of intuition, imagination and science! 😁 I work on #cilia #centrosome dynamics in the #skeletal #muscle at Jyotsna Dhawan's lab at CSIR-CCMB, India.

    In support of #raredisease research and communities.