#raredisease — Public Fediverse posts

https://www.europesays.com/ch/127437/ Novartis sees another setback, this time with neuromuscular drug #DrugDevelopment #Novartis #Pharmaceuticals #RareDisease #STAT+

I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.

Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

https://www.europesays.com/uk/384103/ Medicines Reimagined – Repurposing Drugs For New Indications #DrugDiscovery #DrugRepurposing #FDA #Health #hpv #IsopropylAlcohol #Malaria #Medication #MotorNeuronDisease #RareDisease #RecurrentRespiratoryPapillomatosis #Remedi4All #UK #UnitedKingdom

Medicines Reimagined – Repurposing Drugs For New Indications

In a group of health-related headlines, one says “Hope for new drug approach. getty As government-supported research in…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Medication #Drugdiscovery #drugrepurposing #FDA #Health #HPV #IsopropylAlcohol #malaria #Motorneurondisease #RareDisease #RecurrentRespiratoryPapillomatosis #Remedi4All
https://www.newsbeep.com/us/117155/

Medicines Reimagined – Repurposing Drugs For New Indications

In a group of health-related headlines, one says “Hope for new drug approach. getty As government-supported research in…
#NewsBeep #News #US #USA #UnitedStates #UnitedStatesOfAmerica #Medication #Drugdiscovery #drugrepurposing #FDA #Health #HPV #IsopropylAlcohol #malaria #Motorneurondisease #RareDisease #RecurrentRespiratoryPapillomatosis #Remedi4All
https://www.newsbeep.com/us/117155/

Medicines Reimagined – Repurposing Drugs For New Indications

In a group of health-related headlines, one says “Hope for new drug approach. getty As government-supported research in…
#NewsBeep #News #Medication #drugdiscovery #drugrepurposing #FDA #Health #HPV #IsopropylAlcohol #Malaria #MotorNeuronDisease #RareDisease #RecurrentRespiratoryPapillomatosis #Remedi4All #UK #UnitedKingdom
https://www.newsbeep.com/uk/99095/

Light-Activated Therapy Improves Vision in Inherited Disease Trial

A clinical trial shows a light-activated #protein from an injected #gene improves visual abilities in people with advanced retinitis pigmentosa, an #inherited #eye disorder.

https://sciencebusiness.technewslit.com/?p=44734

#News #Science #Business #Biotechnology #GeneTherapy #RP #Vision #Genetic #LightActivated #Chemistry #ClinicalTrial #Retina #RareDisease

I will toot also in English on:
#genetics
#genomediting
#CRISPR
#genome
#geneexpression
#development
#embryo
#animalmodels
#RareDisease
#albinism
#retina
#vision
#pigmentation
#melanin
#geneticdiagnose
#ethics
#bioethics
#researchintegrity
#scientificpublication
#education
#popularscience
#sciencepolicy
#evaluation
#researchmanagement
#mentoring
#integration
#solidarity
#patients