#neuralgia — Public Fediverse posts

Hey folks :FediverseSymbol:

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

• Using a TCA like amitriptyline or nortriptyline.
• Using pregabalin.
• Combining a TCA with a gabapentinoid like pregabalin or gabapentin.
• Using an opioid like tramadol.
• Stronger opioids.
• Lidocaine patches.
• Some form of cannabinoid (or a mix of different ones) in various forms.
• Non-prescription methods.

Thank you in advance for any answers 🫶 :DisabilityPrideButterfly:

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys

Hey folks :FediverseSymbol:

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

• Using a TCA like amitriptyline or nortriptyline.
• Using pregabalin.
• Combining a TCA with a gabapentinoid like pregabalin or gabapentin.
• Using an opioid like tramadol.
• Stronger opioids.
• Lidocaine patches.
• Some form of cannabinoid (or a mix of different ones) in various forms.
• Non-prescription methods.

Thank you in advance for any answers 🫶 :DisabilityPrideButterfly:

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys

Hey folks :FediverseSymbol:

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

• Using a TCA like amitriptyline or nortriptyline.
• Using pregabalin.
• Combining a TCA with a gabapentinoid like pregabalin or gabapentin.
• Using an opioid like tramadol.
• Stronger opioids.
• Lidocaine patches.
• Some form of cannabinoid (or a mix of different ones) in various forms.
• Non-prescription methods.

Thank you in advance for any answers 🫶 :DisabilityPrideButterfly:

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys

Hey folks :FediverseSymbol:

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

• Using a TCA like amitriptyline or nortriptyline.
• Using pregabalin.
• Combining a TCA with a gabapentinoid like pregabalin or gabapentin.
• Using an opioid like tramadol.
• Stronger opioids.
• Lidocaine patches.
• Some form of cannabinoid (or a mix of different ones) in various forms.
• Non-prescription methods.

Thank you in advance for any answers 🫶 :DisabilityPrideButterfly:

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys

Hey folks :FediverseSymbol:

This is a query targeted at any folks who experience any kind of neuropathic pain for any reason(s), to any degree, and with any frequency, and who've found meds and/or treatment options to reduce, manage, or otherwise cope with the pain.

Please note that we're not asking for ourselves, but for friends who have various forms of this and seem to be having no luck getting decent or timely care through official medical routes 🥺😔

Our own experience of pain has been very different, so we cannot extrapolate anything that has worked for our own issues to neuropathic pain. Relatively-speaking, we've been very fortunate.

We are aware of what the medical organisations say, but we'd much rather hear from folks with personal experiences of any kind, particularly atypical ones that work where others have failed.

As we understand it, commonly-prescribed meds like duloxetine (or any similar SNRI) and gabapentin are often ineffective in many folks, though please correct us if we're wrong there.

We don't have any insight on things like:

• Using a TCA like amitriptyline or nortriptyline.
• Using pregabalin.
• Combining a TCA with a gabapentinoid like pregabalin or gabapentin.
• Using an opioid like tramadol.
• Stronger opioids.
• Lidocaine patches.
• Some form of cannabinoid (or a mix of different ones) in various forms.
• Non-prescription methods.

Thank you in advance for any answers 🫶 :DisabilityPrideButterfly:

#NeuropathicPain #disability #disabled #ChronicPain #AskFedi #healthcare #TCA #SNRI #gabapentinoids #gabapentin #pregabalin #neuralgia #meds #GenuinelyAsking #NoReplyGuys