#non24 — Public Fediverse posts

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

Totally Circadian

For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

Totally Circadian

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

slept from 11:00 to 20:00 (9 hours)
#sleep #non24 #non24hoursleepwakedisorder

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.

Updated website for Sighted Non-24. #CircadianRhythm #SleepDisorders #Non24 #DSPD www.sightednon-24.org

Updated website for Sighted Non-24. #CircadianRhythm #SleepDisorders #Non24 #DSPD www.sightednon-24.org

Wheel of circadian turn turn turn, tell us the daylight that we should burn. #non24 #animaniacs

https://www.sleepfoundation.org/non-24-sleep-wake-disorder/symptoms-diagnosis

https://rarediseases.org/rare-diseases/non-24-hour-sleep-wake-disorder/ bullshit I think most ADHD people have it

https://jcsm.aasm.org/doi/abs/10.5664/jcsm.7054

https://www.webmd.com/sleep-disorders/non-24hour-sleep-wake-disorder

https://my.clevelandclinic.org/health/diseases/12115-circadian-rhythm-disorders

https://sleepeducation.org/sleep-disorders/non-24-hour-sleep-wake-rhythm/

#N24hr #n24h #n24 #Non24 sleep circadian rhythm disorder aaaaaaaaaaaaaaa let me sleep

@Elizabeth3 @semiotic_pirate @neversosimple @actuallyautistic My partner sleeps in multiple rounds too. She also has #Non24, so that plays a part in it for her I think.

@intransitivelie how’d you find some doctors who were knowledgeable? I’m not confirmed, but I’ve been alternately sleepy and wide awake at all times of day ever since I was a teenager. My wife was the one who figured out I had a pattern of following a 26 hour day.

I always thought my weird sleep pattern was an expression of ADHD until my wife identified that I had a pattern and I read about #Non24.

I’ve been extremely lucky to have a life that tolerates my erratic sleep schedule, but I have been having thoughts to look for expert consult to see if there’s anything I could try.

Do you do anything to help you manage?

The most helpful thing I’ve done was wear a Fitbit to track my sleep times and heart rate. It helps me figure out when I should probably be sleeping, but it’s still a lot of guesswork once I veer off my cycle.

Indeed this is rough! I met other sighted N24’s in a Facebook support group once and so many of them could barely lead anything resembling a life. It was depressing to see.

@intransitivelie how’d you find some doctors who were knowledgeable? I’m not confirmed, but I’ve been alternately sleepy and wide awake at all times of day ever since I was a teenager. My wife was the one who figured out I had a pattern of following a 26 hour day.

I always thought my weird sleep pattern was an expression of ADHD until my wife identified that I had a pattern and I read about #Non24.

I’ve been extremely lucky to have a life that tolerates my erratic sleep schedule, but I have been having thoughts to look for expert consult to see if there’s anything I could try.

Do you do anything to help you manage?

The most helpful thing I’ve done was wear a Fitbit to track my sleep times and heart rate. It helps me figure out when I should probably be sleeping, but it’s still a lot of guesswork once I veer off my cycle.

Indeed this is rough! I met other sighted N24’s in a Facebook support group once and so many of them could barely lead anything resembling a life. It was depressing to see.

@Uair I got through six years of college by sleeping a few hours here and there whenever I could, but I can't do that anymore. Now if I try to segment my sleep, I'm just tired all the time and I often end up spending extra time asleep and not getting much benefit from it.

Have you ever sought help for it? There is supposedly a leading expert on sighted #Non24 not too far away from me and I'm thinking of looking that doctor up sometime soon.

When I was younger, I could just force myself to stay awake a full 24 hours to figure out where my sleep clock was, but that's too hard on my body now.

Do you have any strategies for keeping your sleep segments in advantageous intervals or do you just always end up with the equivalent of 4 hours of sleep at night and a 4 hour nap everyday?

@Uair I got through six years of college by sleeping a few hours here and there whenever I could, but I can't do that anymore. Now if I try to segment my sleep, I'm just tired all the time and I often end up spending extra time asleep and not getting much benefit from it.

Have you ever sought help for it? There is supposedly a leading expert on sighted #Non24 not too far away from me and I'm thinking of looking that doctor up sometime soon.

When I was younger, I could just force myself to stay awake a full 24 hours to figure out where my sleep clock was, but that's too hard on my body now.

Do you have any strategies for keeping your sleep segments in advantageous intervals or do you just always end up with the equivalent of 4 hours of sleep at night and a 4 hour nap everyday?

@mvilain I'm not sure if I would ever have discovered this w/o my wife. I've had odd sleep habits ever since I was a teen & could alternately fall asleep anywhere or be wide awake for great lengths of time.

My wife had a rule that if I got caught up working on projects as I do, I had to make time to have dinner with her. I would always miss dinner for a few nights every other week and it pissed her off to no end, but she noticed a pattern and planned to be solo every 10 days or so.

When the NASA Mars mission was the big news, there were stories about how the mission managers followed 26 hour Mars days to maximize their opportunity. She joked I'd be perfect for that job.

Then I saw an article about a baseball quant for the Red Sox who was a mysterious figure of the team's analytics department. Everyone knew him, but few ever saw him. His day-night schedule was too erratic.

His #Non24 is way more severe than mine, but it sounded like my story. Combined with all of the above, it was the big Ah-ha moment.

@mvilain I'm not sure if I would ever have discovered this w/o my wife. I've had odd sleep habits ever since I was a teen & could alternately fall asleep anywhere or be wide awake for great lengths of time.

My wife had a rule that if I got caught up working on projects as I do, I had to make time to have dinner with her. I would always miss dinner for a few nights every other week and it pissed her off to no end, but she noticed a pattern and planned to be solo every 10 days or so.

When the NASA Mars mission was the big news, there were stories about how the mission managers followed 26 hour Mars days to maximize their opportunity. She joked I'd be perfect for that job.

Then I saw an article about a baseball quant for the Red Sox who was a mysterious figure of the team's analytics department. Everyone knew him, but few ever saw him. His day-night schedule was too erratic.

His #Non24 is way more severe than mine, but it sounded like my story. Combined with all of the above, it was the big Ah-ha moment.

I'm a little bit late, but happy Daylight Savings Time to America or as I like to call it, #Non24 Day!

Today's the day when everyone gets to experience for one day what I experience on an everyday basis. On this day, people get to feel what it's like when their body clock is forced to wake up an hour earlier and go to sleep an hour earlier.

People who have Non24 have circadian rhythms that aren't sensitive to sunlight so we can't follow normal 24 hour days... not easily at least. My normal day is 26 hours long so every single day I have to go to bed and wake up 2 hours later or it becomes impossible to get any quality sleep.

Mostly it sucks, but there is one limited advantage to having Non24. I'm able to naturally stay awake for 1-2 additional hours without fatigue. This is usually more than negated by the chaos created by not being able to sleep well, but when facing urgent deadlines, the extra hour of clarity gives you more time to be at peak effectiveness.

#DST #sleep

I'm a little bit late, but happy Daylight Savings Time to America or as I like to call it, #Non24 Day!

Today's the day when everyone gets to experience for one day what I experience on an everyday basis. On this day, people get to feel what it's like when their body clock is forced to wake up an hour earlier and go to sleep an hour earlier.

People who have Non24 have circadian rhythms that aren't sensitive to sunlight so we can't follow normal 24 hour days... not easily at least. My normal day is 26 hours long so every single day I have to go to bed and wake up 2 hours later or it becomes impossible to get any quality sleep.

Mostly it sucks, but there is one limited advantage to having Non24. I'm able to naturally stay awake for 1-2 additional hours without fatigue. This is usually more than negated by the chaos created by not being able to sleep well, but when facing urgent deadlines, the extra hour of clarity gives you more time to be at peak effectiveness.

#DST #sleep

Der Mann ohne Zeit - wenn die innere Uhr durchdreht
#Non24 #podcast
⏰🛌
https://pca.st/episode/9a643620-a8f6-4266-80c0-1c389b3b0078

@cowtan I've gone stretches of sleeping a normal 24, but like your son, it was very easy to knock me off.

Even when I managed, I had incredible daytime sleepiness. I did a lot of napping. It didn't matter how many hours I got at night, I could either be barely awake on a full night's sleep or wide awake on 3 hours.

I was a student and worked a traditional job when I was following a 24 cycle so napping wasn't easy. I slept anywhere I could... face down over my arms in a coffeeshop, on a strip of grass, in class, in my car, under my desk at work.

Now that I attempt to follow a 26 hours schedule, I rarely nap, but it's not always easy to know what the schedule is once you have to deviate from it for more than a couple of days because it's hard to know when you're perfectly on schedule. I can be 8 hours off, but by sleeping 2 hours later each day, it's still tenable. It'd be like a normal person training to sleep at 6pm or 6am daily, except I don't know what time my body thinks it is.

#Non24

Thinking I should try getting #Non24 added to my diagnosis: https://en.wikipedia.org/wiki/Non-24-hour_sleep%E2%80%93wake_disorder

@sysop408 good morning Sheldon - so sorry you had a rude awakening. And - thank you!!! I am a curious person and looked at your profile. Found #Non24 and tumbled down a rabbit hole. My husband has a brain injury and a very disrupted sleep cycle. You may have just helped me find an explanation. "In some cases, non-24-hour sleep-wake disorder in sighted people may be linked to a traumatic brain injury." https://www.sleepfoundation.org/non-24-sleep-wake-disorder