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#non24 — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #non24, aggregated by home.social.

  1. Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

    Totally Circadian

  2. Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

    Totally Circadian

  3. Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

    Totally Circadian

  4. Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

    Totally Circadian

  5. When making important appointments (dental, medical), I need to advocate by educating about Sighted #Non24. The script: “My child’s sleep schedule shifts forward an hour each day due to a Circadian Rhythm Disorder called Non-24. This makes it difficult to book appointments too far in advance, as wake times change over weeks. We’d prefer to schedule 1-2 weeks out if possible.”

  6. Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

    begins
    -hour circadian rhythm

  7. Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

    #BritishSummerTime begins
    #non24-hour circadian rhythm

  8. Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

    #BritishSummerTime begins
    #non24-hour circadian rhythm

  9. For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

    Totally Circadian

  10. For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

    Totally Circadian

  11. For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

    Totally Circadian

  12. For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

    Totally Circadian

  13. I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

  14. I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

  15. I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

  16. I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

  17. I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

  18. Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

  19. Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

  20. Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

  21. Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

  22. Non-24-Hour Sleep-Wake Disorder (Non-24) is real. For many totally blind people, the body's internal clock can't reset daily without light. This means the sleep cycle constantly shifts, leading to periods of severe insomnia and daytime sleepiness. It's not just "bad sleep hygiene", it's a chronic condition.
    #Non24 #BlindnessAwareness #CircadianRhythm #SleepDisorders

  23. @spiegelmama
    "Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

    Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
    No irl friends since... school really. 😭

    Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

    #ActuallyAutistic #Non24 #ActuallyPDA

  24. @spiegelmama
    "Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

    Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
    No irl friends since... school really. 😭

    Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

    #ActuallyAutistic #Non24 #ActuallyPDA

  25. @spiegelmama
    "Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

    Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
    No irl friends since... school really. 😭

    Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

    #ActuallyAutistic #Non24 #ActuallyPDA

  26. @spiegelmama
    "Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

    Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
    No irl friends since... school really. 😭

    Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

    #ActuallyAutistic #Non24 #ActuallyPDA

  27. @spiegelmama
    "Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

    Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
    No irl friends since... school really. 😭

    Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

    #ActuallyAutistic #Non24 #ActuallyPDA

  28. @nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

    I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

    The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

    In the rare times it happens, my only concern is being able to get back to sleep quickly.

    #sleepparalysis
    @_L1vY_

  29. @nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

    I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

    The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

    In the rare times it happens, my only concern is being able to get back to sleep quickly.

    #sleepparalysis
    @_L1vY_

  30. @nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

    I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

    The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

    In the rare times it happens, my only concern is being able to get back to sleep quickly.

    #sleepparalysis
    @_L1vY_

  31. @nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

    I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

    The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

    In the rare times it happens, my only concern is being able to get back to sleep quickly.

    #sleepparalysis
    @_L1vY_

  32. @nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

    I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

    The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

    In the rare times it happens, my only concern is being able to get back to sleep quickly.

    #sleepparalysis
    @_L1vY_

  33. I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

  34. I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

  35. I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

  36. I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

  37. I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

  38. 6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

    Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

  39. 6/ A huge knock-on win has been fixing my -hour circadian rhythm. Held steady for the longest time since university (2008), or before.

    Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

  40. 6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

    Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

  41. 6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

    Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

  42. 6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

    Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

  43. CW: re: Selftaught/Career/Finance Woes

    @gfxstrand
    I have the capability to provide beneficial work for others.
    I do not have the capability to wake up and go to sleep at the same time every day indefinitely as my commitments demand, like regular people. *My body will shut down if I try*

    The way I see it, there's no place for a person like me in modern societal structure, where every job, every event, is a daily scheduled "time slot".

    It has denied me a social life and higher education too. #non24