#non24 — Public Fediverse posts

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

I'm #non24, and my life is arranged around it. I compulsively work because I cannot turn my brain off. I thought I would have a workstation and my own room, but now I won't have my own room and he even suggested we travel out to the coast for the weekend and get a hotel room. Like, no, I need to be able to get up at 4AM, have some tea with sucralose and a soylent, and use a computer for 4 hours while everyone else sleeps. I need to be able to go to bed at 7PM, maybe 3PM, who knows? It'll be a surprise.

Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

Totally Circadian

Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

Totally Circadian

Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

Totally Circadian

Sharing my Blogger page again! For anyone interested in Sighted Non-24 lived experiences, my blog includes interviews with others navigating it. #Non24 #Sleep totally-circadian.blogspot.com

Totally Circadian

When making important appointments (dental, medical), I need to advocate by educating about Sighted #Non24. The script: “My child’s sleep schedule shifts forward an hour each day due to a Circadian Rhythm Disorder called Non-24. This makes it difficult to book appointments too far in advance, as wake times change over weeks. We’d prefer to schedule 1-2 weeks out if possible.”

Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

#BritishSummerTime begins
#non24-hour circadian rhythm

Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

#BritishSummerTime begins
#non24-hour circadian rhythm

Today has been 2.6 hours shorter than my body would natively expect it to be (without my early-dose melatonin regiment)... 😞

#BritishSummerTime begins
#non24-hour circadian rhythm

For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

Totally Circadian

For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

Totally Circadian

For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

Totally Circadian

For anyone who missed it earlier: my latest interview on Sighted Non-24 is up on the blog. Grateful for the chance to share these important perspectives! #WorldSleepDay #Non24 totally-circadian.blogspot.com

Totally Circadian

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

I suffer from a condition known as Non 24-Hour Sleep Wake Disorder, which from my experience is not something most people seem to have heard of before. So, I thought for the sake of spreading awareness I might do a thread explaining what exactly this disorder IS and how it works #n24 #non24 #non24hoursleepwakedisorder

Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

Sleep specialists are not always accepting that #Non24 happens in sighted people. They've only heard of it happening in blind people (70% of blind people have Non24). So it's still difficult to get an accurate diagnosis. Thankfully, for the past 8 years I've seen changes.

slept from 11:00 to 20:00 (9 hours)
#sleep #non24 #non24hoursleepwakedisorder

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@spiegelmama
"Icy wind" often doesn't even begin to describe my feelings of social isolation and being stuck in "pre-adulthood life".

Cant find money freelancing anymore, cant find professional mental/life help to help me find+keep a job, lately I really just feel abandoned by everyone.
No irl friends since... school really. 😭

Often I wish I lived in some small town without cars and all this complicated technological/societal mess that's demanded of us.

#ActuallyAutistic #Non24 #ActuallyPDA

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

@nekoow7 yeah, sleep paralysis really sucks. I had it on an almost nightly basis for the better part of a decade starting in my early teens. With me, I suspect it’s related to #Non24 disorder and it has largely gone away ever since I stopped trying to follow a normal 24 hour day.

I still get it once in a while, but they stopped being scary after the first decade. After that they were just uncomfortable. These days, they rarely happen and they’re more annoying than anything else.

The monsters with hot feet standing on me are long gone. I even breathe just fine. There’s no pressure on my chest. I just can’t move.

In the rare times it happens, my only concern is being able to get back to sleep quickly.

#sleepparalysis
@_L1vY_

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

(I did not make, stolen from the Non24 discord server)

#ActuallyAutistic #Non24 #non24sleepwakedisorder #nightowl #sleep #SleepDisorders #meme #graveyardshift #night #morning #noise #NoisePollution #sleepcycle

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

I’ve barely slept all week, but slept so much today that my cat is looking jealously at me. #Non24 #SleepDisorders

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

6/ A huge knock-on win has been fixing my #non24-hour circadian rhythm. Held steady for the longest time since university (2008), or before.

Something (minerals, avoidance, antihistamines..?) has let me tolerate melatonin. Not destroying next-day function. Dopamine suppression?

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.

I'd like to go to the big #protest tomorrow, but I don't think I will. I have #non24, and I went to sleep today 3 hours before the protest tomorrow starts. I'd be exhausted. The person who was likely to give me a ride has to work now, so I'd have to negotiate transport with someone I don't know, which I really don't want to do when I'm very tired.