Live and recent posts from across the Fediverse tagged #psoriaticspondylitis, aggregated by home.social.
@samhainnight I am—I have to come off my meds for #PsoriaticSpondylitis for 10 days (5 before, 5 after) to vax, so I try to do them all at once.
Good luck with MediCal—it’s a pain signing up, but it’s worth it. My m-i-law is on it. I love this state. ❤️
The drug I take for #PsoriaticSpondylitis is nearly $9k a month from CVS Caremark. If it weren’t for insurance (which covers 80%), I’d just have to die. #BigPharma
From: @cbarbermd
https://med-mastodon.com/@cbarbermd/113156720998945848
It’s been about a yr since I’ve done a hashtag post—I think it’s time! #RockAndRoll #SoCal #DesertLife #EVs #ChronicIllness #AutoImmuneIllness #PsoriaticSpondylitis #Rinvoq #Dogs #DogsOfMastodon #Abortion #AbortionRightsAreHumanRights #AbortionIsHealthcare #Adoption #AdopteesOfMastodon #AdopteeVoices #AdopteeRightsAreHumanRights #FamilyPreservation #ERA #CancelStudentDebt #FreeEducationForAll #CleanEnergy #ReadBannedBooks #BLM #PunchANazi #Resist #EatTheRich #VoteBlue #HarrisWalz2024
I really really REALLY want an #UnfittedKitchen. When we first moved here, we rented an apt in San Diego w/ a huge kitchen. It had a big empty wall—I think most ppl put a kitchen table+chairs there, but I lined up tall industrial shelves instead, & I LOOOVED IT. It makes cooking so much easier, especially for someone like me, who has #PsoriaticSpondylitis (loads less bending/stooping). https://www.apartmenttherapy.com/unfitted-kitchen-37423264
@dangerousmeta Good to know--thank you. I'll tell him. Has your wife had it? I had to come off my #PsoriaticSpondylitis meds for 2 full wks, which srsly sucked. I have to stop taking them 5 days before & 5 days after every COVID vax, too. BLEH.
@Brian_Mahoney I never used cannabis when I was young--I tried it when I was 15 or so, & I hated the way it made me feel. But none of the meds I've used for #PsoriaticSpondylitis help me very much, so I started supplementing with gummies (with my docs' full approval) so that I can at least sleep at night, & they've REALLY helped.
A mani recommendation!
You guys know I have #PsoriaticSpondylitis , which is basically #PsoriaticArthritis that affects my spine & SI joints. Outside of that, it rly jacks w/ a couple of organs (liver & lungs) & my nails. Oh, my poor nails. They're a MESS--brittle, thin, weak, & w/ ridges that constantly split & bleed. I used to wear acrylic nails, but they're just so unhealthy. Plus, they're expensive & require a 3 hr round trip to have them done every month. +
This is such an important thread.
I have #PsoriaticSpondylitis . The drug I take for that costs apprx $10k /month—our health insurance covers 80% of that. Before #Obamacare , my illness would’ve been a pre-existing condition, & they’d have covered 0%. ZERO. None of my rheum appts would’ve been covered. No x-rays, no scans, no nothing. If a doc visit or procedure pertained to my illness, I would’ve had to have paid for it out of pocket—or simply skip it. #HealthInsurance https://mstdn.social/@mcnado/112078115372241814
It’s prolly a good day for some hashtags, huh!
#GenerationJones #SouthernCalifornia #SoCal #DesertLife #EVs #ElectricVehicles #ChronicIllness #AutoImmuneIllness #PsoriaticSpondylitis #Rinvoq #Dogs #DogsOfMastodon #Abortion #AbortionRightsAreHumanRights #AbortionIsHealthcare #Adoption #AdopteesOfMastodon #AdopteeVoices #AdopteeRightsAreHumanRights #FamilyPreservation #BLM #Resist #ERA #CancelStudentDebt #FreeEducationForAll #ReadBannedBooks #PunchANazi
A 🧵!
I went back & forth about whether I should share this, bc it's not only gross, it's rly embarrassing. But it's common knowledge I have no filter. So. You may be wondering why I haven't shared any photos of the beautiful CA coastline. Well, it's because there aren't any. I think most of you know I have #PsoriaticSpondylitis . With PS comes #UlcerativeColitis . Fortunately #Rinvoq has had my UC pretty much under control for quite some time. But when Maddy & I were leaving SF, it decided to +
I feel so, so rough today. So weary. I think I’ll share a photo of my sweet Teddi getting her ears scritchied & hit the hay. I hate this illness. #PsoriaticSpondylitis #DogsOfMastodon
Too sick to play today. Back to bed. 😘 #PsoriaticSpondylitis #AutoImmuneIllness #ChronicIllness
On Wednesdays, we post hashtags! #baldpride #dogs #dogsofmastodon #birds #birdsofmastodon #fineart #originalart #ravens #roadrunners #electricvehicles #psoriaticspondylitis #Rinvoq #chronicillness #autoimmunedisease
On Wednesdays, we post hashtags--except yesterday was pure chaos (I'm in the middle of buying a car--IT'S SUCH A TIME & ENERGY SUCK), so this week, we post hashtags on Thursday! #rocknroll #adopteevoices #adoption #adopteerights #adoptoverse #abortionisessential #abortionishealthcare #reproductiverightsarehumanrights #dogs #dogsofmastodon #birds #birdsofmastodon #ravens #roadrunners #EVs #psoriaticspondylitis #chronicillness #autoimmunedisease #lactoseintolerant
On Wednesdays, we post hashtags--except we got too busy yesterday & forgot, so this week, we post hashtags on Thursday! #adopteevoices #adoption #adopteerights #adoptoverse #abortionisessential #abortionishealthcare #prochoiceisprolife #dogs #dogsofmastodon #birds #birdsofmastodon #ravens #roadrunners #EVs #outsiderart #psoriaticarthritis #akylosingspondylitis #psoriaticspondylitis #Rinvoq #chronicillness #autoimmunedisease
I switched ankylosing spondylitis/psoriatic spondylitis meds today. I've been on Cimzia for a few months; it didn't really help me. I started taking Rinvoq this morning. One pill a day instead of an injection every 2 wks--I like that. Pls cross your fingers this drug works. I'm running out of options. #worryandfear #fearandworry #psoriaticspondylitis
On Wednesdays, we post hashtags! #dogs #dogsofmastodon #birds #birdsofmastodon #ravens #roadrunners #LedZeppelin #electricvehicles #EdwardHopper #psoriaticspondylitis #Rinvoq #chronicillness #autoimmunedisease