#rrms — Public Fediverse posts

Tonight thanks to my local MS support group I learned about progression independent of relapse activity, or PIRA. I'm blown away by how much this speaks to my experience with MS since last year. From the way my neurologist said my symptoms were atypical, to my last MRI showing no new brain lesions, even though I haven't been feeling 100%. The idea that demyelination is a by-product of the neurodegeneration caused by PIRA is very interesting. I'm so grateful for my support group right now. ❤️
#RRMS #MultipleSclerosis
https://www.nationalmssociety.org/news-and-magazine/momentum-magazine/research-and-science/understanding-pira-in-ms

DATE: October 03, 2024 at 08:30AM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

Setpoint receives IDE for neuromodulation therapy for MS

https://t.co/ARSfXl8svk

#medtech @SetPointMed #TheSetPointAdvantage #MultipleSclerosis #RRMS #Autoimmune

Here are any URLs found in the article text:

https://t.co/ARSfXl8svk

#medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech

DATE: October 02, 2024 at 06:30PM
SOURCE: BioWorld MedTech

Direct article link at end of text block below.

Setpoint receives IDE for neuromodulation therapy for MS

https://t.co/ARSfXl90kS

#medtech @SetPointMed #TheSetPointAdvantage #MultipleSclerosis #RRMS #Autoimmune

Here are any URLs found in the article text:

https://t.co/ARSfXl90kS

#medtech

Articles can be found by scrolling down the page at https://www.bioworld.com/topics/85-bioworld-medtech .

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Private, vetted email list for mental health professionals: https://www.clinicians-exchange.org
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NYU Information for Practice puts out 400-500 good quality health-related research posts per week but its too much for many people, so that bot is limited to just subscribers. You can read it or subscribe at @PsychResearchBot
.
Since 1991 The National Psychologist has focused on keeping practicing psychologists current with news, information and items of interest. Check them out for more free articles, resources, and subscription information: https://www.nationalpsychologist.com
.
EMAIL DAILY DIGEST OF RSS FEEDS -- SUBSCRIBE:
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#healthcare #healthtech #healthcaretech #healthtechnology #medgadget #medicine #doctor #hospital #medtech

It is almost funny how I thought I was not going to be anxious about my #rituxan infusion today. I almost made it to go time without an #anxiety spike, but the IV steroids put an end to that dream. #MultipleSclerosis #MSSucks #pwms #rrms #ChronicIllness #AnxietyDisorder #infusion #rituximab

I like to play a little game with myself after getting out of the shower called “did I seriously only shave one leg?” as I discover which area of my body I completely missed. #shorttermmemoryloss is wild #multiplesclerosis #rrms #invisibleillness #disabilaty

@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities

#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia

@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities

#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia

@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities

#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia

@sburall
migraines... f**k**g b***s**t

could be a presyptom for an MS-Attack (my experienc since 10y after 1st Diagnosis)
if ye'r gut tell ye s.thing is wrong... go to hospital w/out Doc's consent and they should check ye with a contrast magnetic resonance imaging and pump ye cortison in yr veins..
*period*
only w/ this ye can stop the progress on #RRMS

tomorrow morning ye call ☎️⬇️to recommend ye a propper Neurologist who knows about #multipleSclerosis

https://mstrust.org.uk/?utm_medium=ppc&utm_source=adwords&utm_campaign=SS+%7C+Search+%7C+Multiple+Sclerosis&utm_term=multiple%20sclerosis&hsa_acc=6635963470&hsa_src=g&hsa_grp=3052377317&hsa_kw=multiple%20sclerosis&hsa_ver=3&hsa_tgt=kwd-15607912&hsa_mt=p&hsa_ad=532174523409&hsa_net=adwords&hsa_cam=82218077&gclid=Cj0KCQiAvqGcBhCJARIsAFQ5ke4Qj67WOjm1wXlJwyhjTGi4QYYluv2A4_A9IdZabU1bw__nxFtZGxEaAnbxEALw_wcB

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne