#rrms — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #rrms, aggregated by home.social.
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It is almost funny how I thought I was not going to be anxious about my #rituxan infusion today. I almost made it to go time without an #anxiety spike, but the IV steroids put an end to that dream. #MultipleSclerosis #MSSucks #pwms #rrms #ChronicIllness #AnxietyDisorder #infusion #rituximab
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CW: Multiple Sclerosis and Anxiety
I can go long periods without my #multiplesclerosis really impacting me, but today it’s rearing its ugly head. Manifesting in some vertigo and tingling in my hands and feet. I’d forgotten how much high anxiety levels can trigger MS. The past week has been ridiculous and my #anxietydisorder is definitely a factor in how I feel today. Luckily I can take the majority of the day off work to recoup. #chronicillness #fums #pwms #rrms
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CW: Multiple Sclerosis Rant
I’m so fucking angry. For the first time since diagnosis I have new lesions. Nearly eight years with nothing new on my #MRI and suddenly multiple new lesions. I’ve had a day to sit with it so I no longer feel like I’ve been punched in the gut. But even still. I’m so disappointed. I’d almost tricked myself into believing it was going away. Fuck you, MS. #fums #rrms #ms #multiplesclerosis #pwms #chronicillness #brainlesions
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@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
@tomkindlon just adding more hashtags to your (great) thread because these are concerns which effect the entire spectrum of disabled/chronic/invisible illness communities
#MultipleSclerosis #RRMS #PPMS #SPMS #DemyelinatingDisease
#LymeDisease #Fibromyalgia #PsoriaticArthritis #RheumatoidArthritis #SleepDisorders #SleepApnea #Narcolepsy #Parasomnia #CircadianRhythmDisorders #non24 #ShiftWorkDisorder #IdiopathicHypersomnia -
Hello #PWMS, #Researchers #FediScience #Neuros
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for boosting.
❤️Anne
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Hello #PWMS, #Researchers #FediScience #Neuros
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for boosting.
❤️Anne
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Hello #PWMS.
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for for your suggestions, past boosts of my posts and following me.
❤️Anne
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Hello #PWMS.
UPDATE UPDATE UPDATE
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we use
👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat
for #MS related stuff
AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.
I hoping we get some #researchers, #scientists, and #neuros in the loop.
Thank for for your suggestions, past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related
AND still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello #PWMS
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.
Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related
AND still use a subtopic hashtag to introduce folks to the wide variety?
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
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Hello!
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related.
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello!
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related.
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello!
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related.
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne
-
Hello!
I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.
Can we try consolidating under #MSChat For all things #MultipleSclerosis related.
I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.
Thank for for your past boosts of my posts and following me.
❤️Anne