#pwms — Public Fediverse posts

There’s nothing truly like an Occupational Therapy appointment to make you face your challenges. It’s so much easier to just feel sad and useless. #MultipleSclerosis #PwMS #venting

If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

Powered by #SnapSurveys:

https://revealingreality.welcomesyourfeedback.net/s/xpiun1

If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

Powered by #SnapSurveys:

https://revealingreality.welcomesyourfeedback.net/s/xpiun1

If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

Powered by #SnapSurveys:

https://revealingreality.welcomesyourfeedback.net/s/xpiun1

If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

Powered by #SnapSurveys:

https://revealingreality.welcomesyourfeedback.net/s/xpiun1

If you have any kind of #neurological condition (e.g. #pwME, #pwFM, #pwMS, etc.) or are a #carer for someone with such a condition, please consider completing the anonymous 2024/5 survey.

Powered by #SnapSurveys:

https://revealingreality.welcomesyourfeedback.net/s/xpiun1

Gosh, I’m grateful got #Valium. That was the easiest MRI yet. Hope the results are as straightforward and good. #MultipleSclerosis #MRI #claustrophobia #pwms

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Feeling pretty solid and human about 48 hours after my #rituxan infusion for #MultipleSclerosis. Here’s to hoping I stay relapse free for another six months! #ChronicIllness #MS #PwMS #rituximab #MSSucks

It is almost funny how I thought I was not going to be anxious about my #rituxan infusion today. I almost made it to go time without an #anxiety spike, but the IV steroids put an end to that dream. #MultipleSclerosis #MSSucks #pwms #rrms #ChronicIllness #AnxietyDisorder #infusion #rituximab

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

I survived my first infusion! Woohoo!!! Was gone 7 hours total. I’m home now and I’m going to nap and hydrate and keep my fingers crossed for no side effects. #multiplesclerosis #pwms #rituximab #rituxan #fums

Fuuuuuccckkk. First #rituximab infusion ever is today. In an hour. I’m so nervous and all my psychosomatic bs is in full effect. #rituxan #multiplesclerosis #pwms #ms

New research on potential influence of gut bacteria on #multiplesclerosis. I find this interesting. Maybe it will lead to new treatments for those of us with #ms? #PwMS #chronicillness
https://pubmed.ncbi.nlm.nih.gov/36604748/

@KPED Other adaptive technologies you might want to consider for #PwMS are cooling vests. Heat sensitivity is a big thing for many, and when I get out cycling in summer heat, ebike or no, a cooling vest makes a HUGE difference.

@sburall

If you don't have a neuro already, then going through your general practitioner and working your way into a referral is your best move, but it looks like you've already done that.

I know some #PwMS just go straight to the ER... but it's the worst time of the year to do that, and, well, there's a Tripledemic on right now...

I'm sorry you're going through all that. You need relief! Sending you healing wishes that symptoms subside quickly!

I vote that every time I’m too sick to work for a few days that I get to have the #WorldCup to keep me company. Can we make that an official thing?
Then again, I got through my first major bout with #multiplesclerosis by binging Game of Thrones. So maybe just stuff I find engaging to watch is fine…)
#worldcup2022 #distraction #covid #covidthoughts #PwMS

@ahimsa_pdx I believe this is true for #PwMS (people with #MS/#MultipleSclerosis)

@berdandy I’d never seen that hashtag. I dig it. Thanks for sharing. #PwMS

I seem to be in the minority, but I vastly prefer #PwMS (person/people-with-multiple-sclerosis) over #MS (Microsoft?) or the lengthy #MultipleSclerosis.

I think I picked up that terminology habit from the ms-selfie newsletter - a good resource if #PwMS haven’t heard of it. With the caveat that the author is a UK neurologist, so not always applicable: https://open.substack.com/pub/gavingiovannoni

#noxp

My first #FollowBackFriday! If you’re a professional #VideoGame or #ttrpg #GameDev definitely say hi. Amateur too, as I’m not terribly professional most of the time anyways.

Also people in the #queer community, #PwMS / #MultipleSclerosis, or #GuildWars2 addicts. You’re my people.

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave

Med appointment today for #multiplesclerosis. I’m so lucky to have the family medical leave act to back me up for the amount of time I have to take for appointments because of my #MS. How do folks without #FMLA manage? #chronicillness #pwms #familymedicalleave