#carer — Public Fediverse posts

#Introduction

I’m severely #disabled by #ChronicIllness.

I have #SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS/ #Dysautonomia #ChronicPain & more, topped off by #LongCovid. Hi #NEISvoid

Interests now include not being #exhausted, in #pain, or rejected by doctors for being too complex a patient. (Know good #doctors #GPs in #Melbourne taking pain patients?)

Need help with #housing #NDIS #GP #carer/ #caregiver & navigating the system. LMK!

1/

@princelysum

From my introduction.

My #disabilities/ #ChronicIllness include:

#SevereME
Which looks like this: (not me but my state of illness https://aus.social/@halcionandon/109372707273081815) #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid.

My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)
I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.

I’m trying to escape #abuse and #neglect.

https://www.twitter.com/Halcionandon for backstory.

@mecfs
@chronicillness

#Introduction time.
This isn’t great because I’m ill but I’d like to find my people here. Edit: I like abled people too! :)

I’m #Disabled by #ChronicIllness which is pretty bad at the moment. I have
#SevereME #AdrenalDisease #Hypothyroidism #HyperParathyroidism #Endometriosis #Migraine #POTS / #Dysautonomia #ChronicPain & more, all topped off with #LongCovid. Hello #NEISvoid.

My interests now include not being deathly exhausted, in pain, or being rejected by doctors for being too complex a patient. (If you know good #doctors in #Melbourne #Australia still taking patients, let me know! I’ve tried contacting literally hundreds. Yes tried NIIM, wary now.)

I’m also looking for an #advocate to help with #accommodation #NDIS getting a good #GP #carer / #caregiver & navigating the system. I can’t find good healthcare & running out of energy for this so I’m writing before I can’t reach out. Happened before & hell it’s scary to have no energy to even open your eyes. For months.

Oh, also trying to escape #abuse. Didn’t want to say that because I’ll wear it forever but hi.

Normally interests include #Auspol #healthcare #science #MedicalResearch #MMT #CulturalStudies #philosophy #film #FilmPhotography #music #writing & remembering what I’m interested in… Being sick & in survival mode ruins your leisure time.

https://www.twitter.com/Halcionandon for backstory.

It’s nice to be here.
Hope this place stays cosy.

(More tags: #MECFS #PwME #PwLC #MyalgicE #MyalgicEncephalomyelitis #Spoonie)