#mschat — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #mschat, aggregated by home.social.
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Quick note, we just added BASE to our monitoring of #MultipleSclerosis Research for @gregory_ms
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Early to be conclusive, but managed to use Claude to explore the data of #ClinicalTrials for #MultipleSclerosis from the 3 DBs: CTG,CTIS,ICTRP.
Preliminary:
EU trials are 61.5% industry, and 36.5% academic.
US trials are 75,5% from academic sponsors, vs 21.6%https://github.com/brunoamaral/mswarriors/tree/main/analysis_2020_2025/charts #MSchat
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Email from a listener:
"As a person with MS, if I hadn't read Debra Lee already, I would after listening. Your comments about epilepsy confirm my sense that chronic disability holds some similar challenges for people no matter what the cause — MS, epilepsy, etc. Kudos to you for a tough decision about medicine!"
https://soundcloud.com/msnewstoday/jenn-sits-with-author-katherine-pickett
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I was recently a guest on the MS News Today podcast talking about MS and my new book, Debra Lee Won't Break. The episode just went live!
I had such a good conversation with host Jenn Powell. I hope you'll take a listen.
https://soundcloud.com/msnewstoday/jenn-sits-with-author-katherine-pickett
Please boost!
#MSchat #podcast #Books @bookstodon #Writers #WritingCommunity
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Today I had Ocrevus via a subcutaneous injection. It’s been fine so far. No marks or trace of it by the evening. I had the premeds orally, so the side effects hit me a bit differently. Being faster is a great advantage for me so I’m a convert.
#MSChat #Ocreluzimab #Ocrevus -
471. That's how many emails were sent by @gregory_ms to inform subscribers of new clinical trials and new research for #MultipleSclerosis. You can get these alerts by subscribing at https://gregory-ms.com/
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Help me bring my novel to audiobook listeners with MS!
*Debra Lee Won't Break* features a woman with MS who undertakes a 150-mile bike ride before it's too late. Many people with MS prefer to listen to their books, as reading requires too much focus, attention, and visual acuity.
Donate to my GoFundMe so they can enjoy this book too!
Please boost to reach more people!
https://www.gofundme.com/f/support-the-debra-lee-wont-break-audiobook-project
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Mind Body Medicine – Ganzheitliche Gesundheit fördern | Uni Zürich
Entdecken Sie Mind Body Medicine der Universität Zürich – Ansätze zur Förderung von Gesundheit und Wohlbefinden durch Geist-Körper-Verbindung.
https://digital-health-space.ch/gap-map-english
#clinical-trials #health #mschat #multiplesclerosis #open-science #review #science -
Word on LinkedIn: New #MultipleSclerosis drug going into stage 2 #ClinicalTrials. It's called Dioprotectome and it's done by NeuOrphan. I checked, and there are no papers or trials on @gregory_ms Can someone help or point me in the right direction?
#MSchat -
We are a small team, but we are still here to support you. https://gregory-ms.com/support/ @gregory_ms #MSchat #MultipleSclerosis
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@gregory_ms had a bug in ordering authors by number of published papers. fixed it now. https://gregory-ms.com/authors/ranking/
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The observatory page now loads faster and has a failsafe to make sure we load all #MultipleSclerosis medications, treatments, and topics. https://gregory-ms.com/observatory/ #MSchat #neurology #neurosky @gregory-ms.com
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You may notice @gregory_ms posting less. This is because I increased the requirements to consider an article as relevant. We use 3 #AI models that score each paper from 0 to 1, and now Gregory only posts the ones where the 3 give a score ≥ 0.9 #MSchat #NeuroSky #MultipleSclerosis #Neurology
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I just moved @gregory_ms from Med-Mastodon to the main Mastodon.social. Expect some glitches, again. 😬
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To be transparent, we added a new page listing all the data sources where @gregoryMS searches for articles and clinical trials.
https://gregory-ms.com/sources/#MSchat #botsFightMS #MultipleSclerosis #academic #research #openscience #opensource
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I was wondering who published more research related to #ocrelizumab. @gregoryMS has the answer: https://gregory-ms.com/observatory/category/ocrelizumab
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I was wondering who published more research related to #ocrelizumab. @gregoryMS has the answer: https://gregory-ms.com/observatory/category/ocrelizumab
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I was wondering who published more research related to #ocrelizumab. @gregoryMS has the answer: https://gregory-ms.com/observatory/category/ocrelizumab
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I was wondering who published more research related to #ocrelizumab. @gregoryMS has the answer: https://gregory-ms.com/observatory/category/ocrelizumab
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I was wondering who published more research related to #ocrelizumab. @gregoryMS has the answer: https://gregory-ms.com/observatory/category/ocrelizumab
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We are testing a new page to monitor #multipleSclerosis treatments. Will you take a look and give us some feedback?
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Please boost! Today, Monday, June 30, is the last day to get 15% off the debut novel DEBRA LEE WON'T BREAK when you shop on Bookshop.org!
Use code LOVEBOOKSELLERS at checkout.
#Books #Book #fiction #disability #MSchat #BikeTooter #indie #support #cycling
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Our feed for #MultipleSclerosis trials just got better https://gregory-ms.com/trials/ It's updated in real time. #MSchat @gregoryMS #ClinicalTrials
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It's late here, but you know what is good? I just added a better search page to @gregoryMS Now you can search over 35k #MultipleSclerosis papers and more than 8k #ClinicalTrials.
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We have exciting news for medical research! We have added tracking of pre-prints from bioRxiv & medRxiv, with added filters to focus more on your research.
We gather the research so you have more time to focus on your insights. -
Action observation combined with motor imagery of the upper extremities for people with multiple sclerosis
http://drks.de/search/en/trial/DRKS00036270
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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I had a wonderful time at the book launch party for my debut novel, Debra Lee Won't Break!
It was wonderful to see so many old friends and supporters all in one place.
Watch the video of my reading here:
https://shorturl.at/4CqxYRead the recap and see photos here: https://katherinepickettauthor.com/2025/06/03/book-launch-party-recap/
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🧠⚡ World #MultipleSclerosis Day and @gregoryMS brings hope!
Our latest upgrade, co-built with Nova SBE, delivers sharper algorithms, multi-subject support & per-topic models (“MS + DMTs”, “MS + Myelin”). Less noise & quicker insights for researchers, clinicians, patients & carers.
Please boost so more people hear on #WorldMSDay.
Details ➡️ https://gregory-ms.com/post/gregory-ai-update-better-algorithms-ms-researchers/
Support ➡️ https://lnkd.in/df3aZkeH -
The Debra Lee Won’t Break launch party is THIS SUNDAY, June 1, from 7 to 8:30 p.m. at Kensington Row Bookshop in Kensington, Maryland.
Don’t be shy. Come out and celebrate the publication of my debut novel. Even if we haven't met yet, I would love to see you.
Dress is casual or business casual. Light refreshments will be served.
It’s sure to be a great time!
#books @bookstodon #NewFiction #NewBook #fiction #disability #MSchat
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Educational Programs Based on Healthy Habits to Improve Quality of Life and Psychosocial Profile in Women with Neurodegenerative Diseases: the ADVICE Protocol Study (Phase 2)
https://clinicaltrials.gov/study/NCT06884579?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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MALAT1 promotes microglia activation and neuronal apoptosis through via the miR-124-3p/ SGK1 axis mediating experimental autoimmune encephalomyelitis disease progression in mice
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A Randomized, Double-blind, Parallel-group Study to Compare Pharmacokinetics, Pharmacodynamics, Clinical Effects, and Safety between ABP 692 and Ocrevus® (Ocrelizumab) in Subjects with Relapsing-remitting Multiple Sclerosis
https://euclinicaltrials.eu/search-for-clinical-trials/?lang=en&EUCT=2024-512914-16-00
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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A single-arm, prospective, multicentre, open-label study to evaluate ofatumumab treatment effectiveness and patient-reported outcomes (PRO) in patients with relapsing multiple sclerosis (RMS) transitioning from fumarate-based RMS approved therapies or fingolimod.
https://euclinicaltrials.eu/search-for-clinical-trials/?lang=en&EUCT=2023-507493-41-00
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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TANDem-2: Closing the Gap to Interventions for TAND
https://clinicaltrials.gov/study/NCT06879665?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Improving Cognitive Recovery in Multiple Sclerosis
https://clinicaltrials.gov/study/NCT06877273?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Amyloid‐β Dysregulates Oligodendroglial Lineage Cell Dynamics and Myelination via <scp>PKC</scp> in the Zebrafish Spinal Cord
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Effect of Training With Reaction Systems on Cognitive Functions in Individuals With Multiple Sclerosis
https://clinicaltrials.gov/study/NCT06874764?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Reliability and Validity of the Turkish Version of General Sleep Disturbance Scale (GSDS-T) in Multiple Sclerosis
https://clinicaltrials.gov/study/NCT06875908?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Evaluation of the Efficacy of Transcranial Direct Current Stimulation in Reducing Fatigue and Improving Quality of Life in Patients With Multiple Sclerosis: A Randomized Clinical Trial
https://clinicaltrials.gov/study/NCT06873464?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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P3-IMU-838-RMS-01 - A Multi-Center, Randomized, Double-Blinded Phase 3 Study to Evaluate the Efficacy, Safety, and Tolerability of IMU-838 versus Placebo in Adults with Relapsing Multiple Sclerosis (ENSURE-1)
https://euclinicaltrials.eu/search-for-clinical-trials/?lang=en&EUCT=2024-514618-11-00
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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A Phase 3, Multicenter, Double Blind, Active-Controlled Study to Evaluate the Efficacy, Safety, Tolerability, Pharmacokinetics, and Pharmacodynamics of Oral Ozanimod Compared to Oral Fingolimod in Children and Adolescents with Relapsing Remitting Multiple Sclerosis
https://euclinicaltrials.eu/search-for-clinical-trials/?lang=en&EUCT=2022-501332-42-00
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Telerehabilitation for Multiple Sclerosis
https://clinicaltrials.gov/study/NCT06871072?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Pharmacokinetics, Pharmacodynamics, Safety and Tolerability of a New Maintenance Dosing Regimen of Ofatumumab
https://clinicaltrials.gov/study/NCT06869785?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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A Study of LCAR-AIO CAR-T Cells for Treating Relapsed/Refractory Neurological Autoimmune Diseases
https://clinicaltrials.gov/study/NCT06869278?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Frequency of FCGR3A Gene Polymorphisms in Patients with Neuromyelitis Optica Spectrum Disorders, Anti-oligodendrocyte Myelin Protein Antibody Disease, and Multiple Sclerosis.
https://clinicaltrials.gov/study/NCT06865274?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Exploration of Novel Imaging Biomarkers on OCT for Ublituximab Treatment Response in Multiple Sclerosis
https://clinicaltrials.gov/study/NCT06864936?cond=Multiple+Sclerosis
#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS
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Six months has come around really quickly. This may be my last infusion as I’ve been offered the subcutaneous injection.
#Ocreluzimab
#Ocrevus
#MultipleSclerosis
#MSChat