#mschat — Public Fediverse posts

Evaluation of Effectiveness of Gottman`s Group Couple Therapy on Marital Satisfaction in Multiple Sclerosis Patients

https://irct.behdasht.gov.ir/trial/80260

#MSchat #Neurology #MultipleSclerosis #ClinicalTrial #botsFightMS

It's Multiple Sclerosis Awareness Week. Here's an inspiring blog post from a participant in a clinical trial for #MS.

"I scored my clinical trial experience as a win because I gained a new network of professionals that provided useful tips that I continue to apply and shapes my life with MS for the better."

https://momentummagazineonline.com/blog/ms-clinical-trials-and-unlocking-your-inner-fighter/

#MSchat #MultipleSclerosis #MSawareness #disability

@Griffax hello, there is #mschat if you want to talk about #SPMS otherwise there are many other interesting and smart people to share your interests with. Use # and keywords. Wish you a nice day ☀️🌞

@Griffax hello, there is #mschat if you want to talk about #SPMS otherwise there are many other interesting and smart people to share your interests with. Use # and keywords. Wish you a nice day ☀️🌞

@morekindness

6 months since 1st transfusion.

At my visit 11/18 the EDSS rater said I was much improved from last rating.

I’ve noticed less fatigue, less spasticity, walking distance and pace better // from 1/4 mile to 1 mile. Average total of 2 miles per day.

Cognitively sharper. Reading graduate level monographs and reteaching myself Latin (I took 3 years in high school).

For me it’s a win. But I am blinded to whether I have active drug.

#ATA188 #MultipleSclerosis. #MSChat

@morekindness

6 months since 1st transfusion.

At my visit 11/18 the EDSS rater said I was much improved from last rating.

I’ve noticed less fatigue, less spasticity, walking distance and pace better // from 1/4 mile to 1 mile. Average total of 2 miles per day.

Cognitively sharper. Reading graduate level monographs and reteaching myself Latin (I took 3 years in high school).

For me it’s a win. But I am blinded to whether I have active drug.

#ATA188 #MultipleSclerosis. #MSChat

#MultipleSclerosis #MSChat

#ATA188 trial update

👉🏼Update after EDSS exam.

EDSS examiner thought my exam looked much better than last time he saw me; but no specific details.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

#MultipleSclerosis #MSChat

#ATA188 trial update

👉🏼Update after EDSS exam.

EDSS examiner thought my exam looked much better than last time he saw me; but no specific details.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

@LomelindiMS

The study
is to find the first ever medication for nonactive Ptogressive MS.

The drug trial Is by Atara Biotherapeutics anti EBV T cell transfusions. #ATA188

They are starting a trial for relapsing #MS. See. Link. https://multiplesclerosisnewstoday.com/ata188/

#MultipleSclerosis #MSChat

@LomelindiMS

The study
is to find the first ever medication for nonactive Ptogressive MS.

The drug trial Is by Atara Biotherapeutics anti EBV T cell transfusions. #ATA188

They are starting a trial for relapsing #MS. See. Link. https://multiplesclerosisnewstoday.com/ata188/

#MultipleSclerosis #MSChat

@StephZihms

I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.

I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.

Retrained as a counseling psych but left for good in 2016 after bad relapse.

Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.

@StephZihms

I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.

I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.

Retrained as a counseling psych but left for good in 2016 after bad relapse.

Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.

@StephZihms

I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.

I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.

Retrained as a counseling psych but left for good in 2016 after bad relapse.

Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.

#MultipleSclerosis #MSChat #ATA188 trial update.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.

The sidewalks are covered with 3” snow and there’s a severe weather alert!

Both my Neuro + Study Manager took off early for T-day.

I need to find out if the substitutes + MRI tech will make it in for EDSS.

AAGH! Bit of a whinge.

#MultipleSclerosis #MSChat #ATA188 trial update.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.

The sidewalks are covered with 3” snow and there’s a severe weather alert!

Both my Neuro + Study Manager took off early for T-day.

I need to find out if the substitutes + MRI tech will make it in for EDSS.

AAGH! Bit of a whinge.

#MultipleSclerosis #MSChat #ATA188 trial update.

Day 185 since 1st infusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.

The sidewalks are covered with 3” snow and there’s a severe weather alert!

Both my Neuro + Study Manager took off early for T-day.

I need to find out if the substitutes + MRI tech will make it to the hospital.

AAGH! Bit of a whinge.

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS, #Researchers #FediScience #Neuros

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for boosting.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS.

UPDATE UPDATE UPDATE

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we use

👉🏼 #MultipleSclerosis 👈🏼 AND #MSChat

for #MS related stuff

AND STILL use a subtopic hashtag to introduce folks to the wide variety of topics and interests.

I hoping we get some #researchers, #scientists, and #neuros in the loop.

Thank for for your suggestions, past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related and still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello #PWMS

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #PPMS #MSRunner. Etc.

Can we try consolidating under #MultipleSclerosis AND #MSChat For all things #MultipleSclerosis related

AND still use a subtopic hashtag to introduce folks to the wide variety?

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

@Adlai

No worries.

You can always use #MSChat plus more specialized hashtags so folks can find your post in the larger #MSCommunity and in the subtopic group that interests you.

I’ve had #MS since 1984 and am just recently getting into creating #MSArt.

The picture is a card I made for my #Neuro for “target practice” on where the LP goes. 🤣

I’ve had 3 LPs this year as part of the #ATA188 trial for nonactive #SPMS.

Thank you for your insight!

#MultipleSclerosis

❤️Anne

@Adlai

No worries.

You can always use #MSChat plus more specialized hashtags so folks can find your post in the larger #MSCommunity and in the subtopic group that interests you.

I’ve had #MS since 1984 and am just recently getting into creating #MSArt.

The picture is a card I made for my #Neuro for “target practice” on where the LP goes. 🤣

I’ve had 3 LPs this year as part of the #ATA188 trial for nonactive #SPMS.

Thank you for your insight!

#MultipleSclerosis

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Hello!

I’ve seen several hashtags using variations of #MultipleSclerosis, #MS, #RRMS, #SPMS, #LifeWithMS, #MSRunner. Etc.

Can we try consolidating under #MSChat For all things #MultipleSclerosis related.

I hoping we get some of the post bird #researchers, #scientists, and #neuros in the loop.

Thank for for your past boosts of my posts and following me.

❤️Anne

Heat and #ColdSensitivity in #MultipleSclerosis:A patient-centred perspective on triggers, symptoms, and thermal resilience practices https://www.sciencedirect.com/science/article/pii/S2211034822005831

#MS #SPMS #MSChat. (New hashtag to consolidate info).

Let’s connect! #FollowMe