#fuckms — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #fuckms, aggregated by home.social.
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That was parkrun #314 and volunteer credit #284 (I took some photos). I shouldn’t think I’ll make 500 runs (I now can’t actually get on my bike on my weaker side now and running is a slog of dragging my body around using mainly willpower), but I will get there with volunteer credits.
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That was parkrun #314 and volunteer credit #284 (I took some photos). I shouldn’t think I’ll make 500 runs (I now can’t actually get on my bike on my weaker side now and running is a slog of dragging my body around using mainly willpower), but I will get there with volunteer credits.
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The wife was racing at Stourport in an 8 today, so I took advantage of her absence to earn my Lake Legend badge: cycle, run, swim, sauna.
Cycle over the new bridge over the Trent and straight into the park, parkrun, swim, sauna. Lovely. The running is the hard bit now, but I staggered round with my leg brace in a shade under 35 minutes.
Anything for a badge, eh?
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The wife was racing at Stourport in an 8 today, so I took advantage of her absence to earn my Lake Legend badge: cycle, run, swim, sauna.
Cycle over the new bridge over the Trent and straight into the park, parkrun, swim, sauna. Lovely. The running is the hard bit now, but I staggered round with my leg brace in a shade under 35 minutes.
Anything for a badge, eh?
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And here’s some pictures of my now concluded running career.
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And here’s some pictures of my now concluded running career.
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Reluctantly concluding that I can’t really run anymore. The physical strain on my body is just too much as the #MS related weakness means I’m basically dragging one half of my body around rather than really running. Perhaps this should have been obvious years ago and I’m just unusually stubborn, but here it is and I’m having to adjust to losing something that’s been a huge part of my life.
Oh well. Onward. I took up rowing a few years back as this day was always likely to come. My legs are getting significantly worse at the moment, as is my balance, but I’ll try to take whatever comes in my stride and keep buggering on.
Honestly, what other choice is there?
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Reluctantly concluding that I can’t really run anymore. The physical strain on my body is just too much as the #MS related weakness means I’m basically dragging one half of my body around rather than really running. Perhaps this should have been obvious years ago and I’m just unusually stubborn, but here it is and I’m having to adjust to losing something that’s been a huge part of my life.
Oh well. Onward. I took up rowing a few years back as this day was always likely to come. My legs are getting significantly worse at the moment, as is my balance, but I’ll try to take whatever comes in my stride and keep buggering on.
Honestly, what other choice is there?
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Can I ask any German #parkrun peeps whether they think Nidda #parkrun will be running on German Unity Day this year? Thinking of that as a possible target 😃
#fuckMS
#fickcancer -
Can I ask any German #parkrun peeps whether they think Nidda #parkrun will be running on German Unity Day this year? Thinking of that as a possible target 😃
#fuckMS
#fickcancer -
Middle stage of SM? Leg's muscles pain and lacking words aka brain fog. Oh, and quick being tired.
Dunno if "middle".
#multiplesclerosis #fuckms -
Yes. It’s a thing.
Godammit. -
Yes. It’s a thing.
Godammit. -
My left ankle has lost a lot of dorsiflexion over the years and I don’t pick it up very well as I’ve lost a lot of muscle strength in that leg. Just recently, it’s been quite locked up too. Is that a thing with #MS ?
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My left ankle has lost a lot of dorsiflexion over the years and I don’t pick it up very well as I’ve lost a lot of muscle strength in that leg. Just recently, it’s been quite locked up too. Is that a thing with #MS ?
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Groggy with numb hands and arms today. Good times.
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Groggy with numb hands and arms today. Good times.
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New tattoo, and a sketch of it my sweet June bug did for me
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New tattoo, and a sketch of it my sweet June bug did for me
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World #MS Day was established in 2009 by the International Multiple Sclerosis Federation (MSIF) and partner organizations. It is observed in dozens of countries worldwide and its official date is May 30th.
The symbol of solidarity with diagnosed individuals is the color orange and the orange ribbon.
#multiplesclerosis #fuckms #msawareness -
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I’m wearing shorts today (obvs) but got a good look at my walking gait as I approached the doors at M&S. A bit disconcerted to see how much I “throw” my left leg (instead of driving it normally). I knew I did this when running, but trousers must hide the extent of it in a way that shorts do not. It’s made me feel a bit sad, tbh. Nothing has changed and I’ve probably been walking like this for months, but seeing it really drives home how much mobility I’m losing
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I’m wearing shorts today (obvs) but got a good look at my walking gait as I approached the doors at M&S. A bit disconcerted to see how much I “throw” my left leg (instead of driving it normally). I knew I did this when running, but trousers must hide the extent of it in a way that shorts do not. It’s made me feel a bit sad, tbh. Nothing has changed and I’ve probably been walking like this for months, but seeing it really drives home how much mobility I’m losing
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For reference, I pay about £80 for 2 month’s supply of oil, plus £50 consultation fee every 6 months. That’s a private clinic, so it would be a lot cheaper for the NHS to supply and, I’d argue, would actually save money. It’s political, isn’t it? They won’t allow it to be prescribed because it’s political.
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For reference, I pay about £80 for 2 month’s supply of oil, plus £50 consultation fee every 6 months. That’s a private clinic, so it would be a lot cheaper for the NHS to supply and, I’d argue, would actually save money. It’s political, isn’t it? They won’t allow it to be prescribed because it’s political.
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I used to be on a disease modifying drug that cost ££££ a month on the NHS. I’m not on that anymore, but they still aren’t able to prescribe a perfectly legal and proven therapy. Why??
The law was changed by Theresa May, and it perhaps won’t surprise you to learn that her husband is one of Europe’s biggest investors in cannabis cultivation.
Make it available, FFS.
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I used to be on a disease modifying drug that cost ££££ a month on the NHS. I’m not on that anymore, but they still aren’t able to prescribe a perfectly legal and proven therapy. Why??
The law was changed by Theresa May, and it perhaps won’t surprise you to learn that her husband is one of Europe’s biggest investors in cannabis cultivation.
Make it available, FFS.
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I have #MultipleSclerosis which causes muscle spasms in my legs that keep me awake. I take drugs to try and control this: baclofen, gabapentin. None work as well as cannabis. It’s legal in this country, but next to impossible to get on NHS prescription. When I finally convinced my neurologist to write me a (private) prescription, the estimated cost for 2 months supply was nearly £1000. I now use a private clinic at a fraction of that cost, but it’s absurd.
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I have #MultipleSclerosis which causes muscle spasms in my legs that keep me awake. I take drugs to try and control this: baclofen, gabapentin. None work as well as cannabis. It’s legal in this country, but next to impossible to get on NHS prescription. When I finally convinced my neurologist to write me a (private) prescription, the estimated cost for 2 months supply was nearly £1000. I now use a private clinic at a fraction of that cost, but it’s absurd.
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Popped out for a slow and painful 5k. Halfway round, another runner stops me:
“What on earth is that contraption?” (Points to my brace, pictured)
“Oh, I have #MS and it’s to help me flex my ankle so I can run without falling over.” He sets off again.
“Good on you”
“I think my marathon days might be behind me now”
“Never mind that. It’s all about doing what you can!”Amen, brother. I’m more than 50% slower than I was and it’s not pretty, but that’s 5k done.
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My Facebook memories this time of the year are filled with marathons. I can’t run much any more, but although #MS has taken a lot from me, it will never take these memories away.
(And, let’s be honest, marathons are bloody hard work).
If you’re running this weekend, best of luck and, whatever happens, remember to try and enjoy it. There’s a million people out there and they’re cheering just for you!
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My Facebook memories this time of the year are filled with marathons. I can’t run much any more, but although #MS has taken a lot from me, it will never take these memories away.
(And, let’s be honest, marathons are bloody hard work).
If you’re running this weekend, best of luck and, whatever happens, remember to try and enjoy it. There’s a million people out there and they’re cheering just for you!
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It’s #MS Awareness Week.
If you aren’t aware, #MultipleSclerosis is a chronic, incurable condition. It’s progressive, can affect any part of the body and can be devastating.
Progression was initially slow for me, but it’s picking up speed and is now taking more and more away from me.
I do as much as I can and remain positive, but it’s a motherfucker.
Here’s a film made a few years ago that always makes me well up & is so beautifully made. Please enjoy.
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It’s #MS Awareness Week.
If you aren’t aware, #MultipleSclerosis is a chronic, incurable condition. It’s progressive, can affect any part of the body and can be devastating.
Progression was initially slow for me, but it’s picking up speed and is now taking more and more away from me.
I do as much as I can and remain positive, but it’s a motherfucker.
Here’s a film made a few years ago that always makes me well up & is so beautifully made. Please enjoy.
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I had a terrible night with leg spasms last night. Very little sleep and just the awful inability to get comfortable, never mind to nod off. After pumping all night, they’re then so fatigued the next day too. Better today (I even managed some rowing this morning), but I now find myself dreading going to bed in case it happens again. It feels so arbitrary and all the gabapentin, baclofen, analgesics and medical cannabis in the world sometimes just won’t touch it.
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I had a terrible night with leg spasms last night. Very little sleep and just the awful inability to get comfortable, never mind to nod off. After pumping all night, they’re then so fatigued the next day too. Better today (I even managed some rowing this morning), but I now find myself dreading going to bed in case it happens again. It feels so arbitrary and all the gabapentin, baclofen, analgesics and medical cannabis in the world sometimes just won’t touch it.
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My left ankle has seized up and my legs are fucked. It’s my day off exercise today, so it beats me why they’re playing up now. Just another gift from #MultipleSclerosis.
Well, #FuckMS, I’m going to sit here in a comfy chair by a radiator with my feet up and just read my book. There’s fuck all you can do about that.
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Funny couple of days with the #MS. Did a 5k time trial on the rowing machines at rate 28. Felt okay, and I kept the rate alright (which I wouldn’t have been able to do last year)… but I was about 30 seconds slower than last month. Oh well. Today, I was coaching at the track. I don’t do the session, but I do trot around to offer coaching at strategic points. Today, it felt hard. My legs don’t want to work. I’m generally very philosophical and positive about this, but it’s fucking hard.
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Funny couple of days with the #MS. Did a 5k time trial on the rowing machines at rate 28. Felt okay, and I kept the rate alright (which I wouldn’t have been able to do last year)… but I was about 30 seconds slower than last month. Oh well. Today, I was coaching at the track. I don’t do the session, but I do trot around to offer coaching at strategic points. Today, it felt hard. My legs don’t want to work. I’m generally very philosophical and positive about this, but it’s fucking hard.
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I’ve just noticed quite how wasted my left thigh muscle is now in that photo. Jeez.
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Is it mad that my brain is telling me
I look fat in this photo? -
I picked up my shiver squad badge at the lake this morning. 30 winter swims from the beginning of November. I absolutely love swimming in the winter and it’s a pleasure to be a part of this wonderful community.
I don’t even like cold showers, for goodness sake. This is my third year in a row getting this badge.
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I picked up my shiver squad badge at the lake this morning. 30 winter swims from the beginning of November. I absolutely love swimming in the winter and it’s a pleasure to be a part of this wonderful community.
I don’t even like cold showers, for goodness sake. This is my third year in a row getting this badge.
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Well, #MultipleSclerosis certainly is a motherfucker.
https://www.theguardian.com/books/2026/mar/01/christina-applegate-ms-diagnosis-memoir-autobiography
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Well, #MultipleSclerosis certainly is a motherfucker.
https://www.theguardian.com/books/2026/mar/01/christina-applegate-ms-diagnosis-memoir-autobiography
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I might try adaptive skiing next time (seated skiing). There’s a school that specialises in that in Zell and apparently #MultipleSclerosis is one of the conditions they see quite often. I love the mountains, and this might help prolong my enjoyment of them in winter.
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I might try adaptive skiing next time (seated skiing). There’s a school that specialises in that in Zell and apparently #MultipleSclerosis is one of the conditions they see quite often. I love the mountains, and this might help prolong my enjoyment of them in winter.
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I’m having a lovely week in the mountains but, as I feared, skiing has become a real challenge. I’m a decent skier, but my legs are now too weak to really handle turns with any confidence on even the simplest of slopes with the most forgiving snow. Knowing this just undermines my confidence further. I’ve only fallen twice, both times heavily but not catastrophically. My wife is very patient, but it’s depressing and I hate feeling so vulnerable.
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Up for #parkrun this morning. Running is something of a struggle now, but I dragged my way round and then sat with a flask of coffee waiting for the last finisher. I’m run director on Saturday, so picked up the kit and then headed home for a shower, then lit a fire and had a nap. A good 2026 so far!
