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#lipedema — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #lipedema, aggregated by home.social.

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  1. Sewists, I need assistance. I'm drafting basic blocks, and I'm trying to draft sleeves from measurements, but I'm completely stuck because my bicep measurement (with ease added) is larger than my armscythe. I also tried @dressdeveloper 's sleeve pattern kit, but this also drafts from armscythe length, with no bicep measurement input.

    I don't plan to actually use a fitted sleeve anytime soon, but I'd like a complete set of blocks. #sewing #patterndrafting #lipedema #plussizeproblems

  2. Yasmin Brunet relembra comentário de desconhecido na rua que antecedeu diagnóstico de lipedema: Yasmin Brunet, 37, compartilhou uma história inusitada sobre o período que antecedeu seu diagnóstico de lipedema. Em publicação nas redes... aloalobahia.com/noticias/2026/ #YasminBrunet #Lipedema

  3. Yasmin Brunet diz que morador de rua descobriu sua doença antes dos médicos: A modelo Yasmin Brunet revelou ter descoberto que sofria com lipedema após ser alertada sobre as pernas inchadas por um morador de rua noticiasdatv.uol.com.br/notici #Lipedema #YasminBrunet

  4. Yasmin Brunet - 'bêbado' percebeu lipedema antes de médicos - 29/05/2026 - Celebridades: Homem embriagado comentou sobre inchaço nas pernas da ex-BBB durante a noite no Rio f5.folha.uol.com.br/celebridad #YasminBrunet #Lipedema

  5. Yasmin Brunet revela que descobriu lipedema de forma inusitada; veja: Modelo compartilha sua jornada com a condição inflamatória nas pernas cnnbrasil.com.br/entreteniment #YasminBrunet #lipedema

  6. Yasmin Brunet conta que 'bêbado na rua' percebeu lipedema antes dos médicos: Yasmin Brunet recorda episódio em que pessoa em situação de rua notou sintomas de seu lipedema antes dos médicos uol.com.br/splash/noticias/202 #YasminBrunet #Lipedema

  7. Yasmin Brunet revela que ‘morador de rua’ notou seu lipedema antes dos médicos: Modelo relembrou situação inusitada na rua e contou que comentário sobre suas pernas a incentivou a buscar ajuda médica entretenimento.r7.com/prisma/f #YasminBrunet #Lipedema

  8. Yasmin Brunet diz que foi diagnosticada com doença por morador de rua: A influenciadora Yasmin Brunet disse que “descobriu” lipedema após comentário feito por homem bêbado na rua: “Antes dos médicos” metropoles.com/colunas/fabia-o #YasminBrunet #Lipedema

  9. CW: Lipedema - this news article is a bit shallow

    Rare that #lipedema is on a news site with a simple explanatory article.

    It’s harder to treat when you have other inflammatory and autoimmune conditions (PsA/SSc). And it doesn’t just affect legs.

    Földiklinik here diagnosed me with pure lipedema (no lymphedema) in arms and legs at stage 3-4 back in 2016, most likely triggered by Visanne and all the other endometriosis medications. Legs worsened after the breast cancer op though, as I lost my tummy as the main fat store. Lumpy legs makes it difficult to get the arthritis injections in too.

    Ahhh the joys of multi-severe-diseases.

    theguardian.com/wellness/2026/

  10. Lipedema - Yasmin Brunet mostra perda de 25kg após tratamento; veja os sintomas da doença que atinge 1 a cada 5 mulheres: Condição é caracterizada por um acúmulo de gordura geralmente confinado às pernas, coxas, quadris e parte superior dos braços oglobo.globo.com/saude/noticia #Lipedema #Saúde

  11. CW: Financial and physical ouch expected

    Not a welcome Christmas present - not welcome at any time - failed roadworthy ‘cos steering bearings are shot. Geordie passed its annual physical only a couple of months ago though! (That’s not on the check list)

    Glad it was caught before any accident. But this does mean I now need to walk to physio tomorrow - about 3 months sooner than the training plan. And walk back home. Eeep.

    Will take it slowly, and clear the calendar for several days.

    #spoonies #SystemicSclerosis #spondyloarthritis #lipedema

  12. CW: Financial and physical ouch expected

    Not a welcome Christmas present - not welcome at any time - failed roadworthy ‘cos steering bearings are shot. Geordie passed its annual physical only a couple of months ago though! (That’s not on the check list)

    Glad it was caught before any accident. But this does mean I now need to walk to physio tomorrow - about 3 months sooner than the training plan. And walk back home. Eeep.

    Will take it slowly, and clear the calendar for several days.

    #spoonies #SystemicSclerosis #spondyloarthritis #lipedema

  13. CW: Health question - lymphedema

    Wrestled myself into compression again today. Does high levels of anger and frustration affect (trigger) lymphedema?

    I normally have pure lipedema - no pitting or water storage - and compression doesn’t help with that. This is the first return of lymph swelling since my cancer ops and stopping Visanne.

    #lymphedema #lipedema

  14. @helenczerski
    Read about #lipedema if you want an example of something women have that is ignored by doctors.

  15. @helenczerski
    Read about #lipedema if you want an example of something women have that is ignored by doctors.

  16. Itziar Castro: "#lipedema una enfermedad crónica, hormonal y progresiva, hereditaria que sufrimos el 11% de las #mujeres en el mundo, que no entra por la #SeguridadSocial y que hasta el 2018 no fue reconocida como enfermedad por la OMS y es por ello que muchos médicos no saben diagnosticarla ni tratarla, por ello es muy importante ir a médicos especialistas".
    Te vamos a extrañar 💔

    “Con el lipedema la grasa se acumula y no se elimina ni con #dieta ni #ejercicio
    farodevigo.es/pontevedra/2022/

  17. @GottaLaff
    I have a women's health issue that 11% of women have called #lipedema This is fat (mostly legs but not exclusively) that is 100% resistant to diet and exercise.

    The Inflation Reduction Act enabled me to get an intermittent pneumatic compression (IPC) pump through my health insurance.

    Lipedema is progressive, knowing you have it is the first step. At this time only vascular doctors are trained to diagnose lipedema.

  18. @GottaLaff
    I have a women's health issue that 11% of women have called #lipedema This is fat (mostly legs but not exclusively) that is 100% resistant to diet and exercise.

    The Inflation Reduction Act enabled me to get an intermittent pneumatic compression (IPC) pump through my health insurance.

    Lipedema is progressive, knowing you have it is the first step. At this time only vascular doctors are trained to diagnose lipedema.

  19. @RickiTarr

    I am putting this out there because I have #Lipedema, diagnosed 9 years ago. My calves ate most affected.

    No doctors in Maryland treat lipedema. As of now, a vascular surgeon is the only way to get diagnosed.

    The #InflationReductionAct, passed in Dec, 2022, requires Medicare to treat lymphedema.

  20. @RickiTarr

    I am putting this out there because I have #Lipedema, diagnosed 9 years ago. My calves ate most affected.

    No doctors in Maryland treat lipedema. As of now, a vascular surgeon is the only way to get diagnosed.

    The #InflationReductionAct, passed in Dec, 2022, requires Medicare to treat lymphedema.

  21. @RickiTarr
    #Lipedema, which almost exclusively effects women, is fat that's completely resistant to diet and exercise, primarily occurring in the lower body but not necessarily. Arms are commonly involved. It is progressive and potentially debilitating.

    11% of women have this "condition?". It is rarely treated in the US, although it was first described by the #MAYO clinic in 1940. WAL liposuction has been performed with great success in pain relief.

    #TheMoreYouKnow

  22. @RickiTarr
    #Lipedema, which almost exclusively effects women, is fat that's completely resistant to diet and exercise, primarily occurring in the lower body but not necessarily. Arms are commonly involved. It is progressive and potentially debilitating.

    11% of women have this "condition?". It is rarely treated in the US, although it was first described by the #MAYO clinic in 1940. WAL liposuction has been performed with great success in pain relief.

    #TheMoreYouKnow

  23. Using my vibration plate to help with my Lipedema - Jarvis likes to “help”! He kept pushing buttons with his nose. #Lipedema #Vibration #DogsOfMastodon #LipedemaRevolution

  24. CW: Sewing progress

    I think I put off sewing because I know I'll have to alter patterns massively, and that scares me.

    The Jalie yoga pants pattern needs an extra 20cm of fabric at the centre back to cover my bum and avoid a massive tradie crevasse, the waistband is attached.

    An extra 5-8cm in the thighs would be more comfy too.

    I'll have to re-work the pattern to include more fabric for next time.

    Lipedema figure is hard to fit.

    #sewing #lipedema

  25. CW: Sewing progress

    I think I put off sewing because I know I'll have to alter patterns massively, and that scares me.

    The Jalie yoga pants pattern needs an extra 20cm of fabric at the centre back to cover my bum and avoid a massive tradie crevasse, the waistband is attached.

    An extra 5-8cm in the thighs would be more comfy too.

    I'll have to re-work the pattern to include more fabric for next time.

    Lipedema figure is hard to fit.

    #sewing #lipedema

  26. GO TO THE THING! You don't need to be in a wheelchair to get Accessible Seating! I cried in pain through Lizzo's show in expensive TINY seats. So when I went to see JVN this month I bought the Accessible Seats! REAL CHAIRS that I fit in. That didn't kill my knees or bruise my hips. Having Lipedema, I've been in agony at events for years. NO MORE!
    & now Accessible Taylor Swift tickets are mine!! #Accesibility #Lipedema #JVN #Lizzo #TaylorSwift #tickets #events #comfort #deserving #fatacceptance

  27. GO TO THE THING! You don't need to be in a wheelchair to get Accessible Seating! I cried in pain through Lizzo's show in expensive TINY seats. So when I went to see JVN this month I bought the Accessible Seats! REAL CHAIRS that I fit in. That didn't kill my knees or bruise my hips. Having Lipedema, I've been in agony at events for years. NO MORE!
    & now Accessible Taylor Swift tickets are mine!! #Accesibility #Lipedema #JVN #Lizzo #TaylorSwift #tickets #events #comfort #deserving #fatacceptance

  28. Could I be the first post on #lipedema on this wooly mammoth? It’s a connective tissue disorder/disease that results in permanent, painful and progressive fibrotic fat that deposits most often in the hips and legs abut can grow anywhere. It sucks. Some researchers believe 1 in 10 women are affected. If you think it could be you, you aren’t alone. I write about it - www.lipedemarevolution.com . #lipedemarevolution

  29. Could I be the first post on #lipedema on this wooly mammoth? It’s a connective tissue disorder/disease that results in permanent, painful and progressive fibrotic fat that deposits most often in the hips and legs abut can grow anywhere. It sucks. Some researchers believe 1 in 10 women are affected. If you think it could be you, you aren’t alone. I write about it - www.lipedemarevolution.com . #lipedemarevolution