Live and recent posts from across the Fediverse tagged #hidradenitissuppurativa, aggregated by home.social.
How GLP-1 Drugs May Help Psoriasis and Hidradenitis Suppurativa
IntroductionEarly clinical benefits in psoriasis and HSWeight loss-dependent vs. independent effectsFuture directionsReferencesFurther reading What happens to inflamed skin…
#NewsBeep #News #Health #AU #Australia #clinicalresearch #dermatology #glp1 #GLP1ReceptorAgonists #HidradenitisSuppurativa #Immunodermatology #metabolichealth #Psoriasis #semaglutide #SkinInflammation
https://www.newsbeep.com/au/937504/
Incyte Data at the European Academy of Dermatology and Venereology (EADV) Congress Underscore the Breadth of Incyte’s Inflammation and Autoimmunity Portfolio
WILMINGTON, Del., September 22, 2026–(BUSINESS WIRE)–Incyte (Nasdaq:INCY) today announced that data from across its Inflammation and Autoimmunity (IAI)…
#Europe #EU #atopicdermatitis #EADV #European #hidradenitissuppurativa #Incyte #prurigonodularis #RuxolitinibCream
https://www.europesays.com/europe/143937/
https://www.europesays.com/ch/133473/ Novartis receives positive CHMP opinion for Cosentyx® in polymyalgia rheumatica (PMR) #Cosentyx #EuropeanMedicinesAgency #HidradenitisSuppurativa #Novartis #pediatric patients #PolymyalgiaRheumatica #PsoriaticArthritis #TreatmentArms
https://www.europesays.com/ch/133149/ Novartis receives positive CHMP opinion for Cosentyx® in polymyalgia rheumatica (PMR) #Cosentyx #EuropeanMedicinesAgency #HidradenitisSuppurativa #Novartis #pediatric patients #PolymyalgiaRheumatica #PsoriaticArthritis #rheumatology #TreatmentArms
https://www.europesays.com/ch/132803/ Novartis receives positive CHMP opinion for Cosentyx® in polymyalgia rheumatica (PMR) #Cosentyx #EuropeanMedicinesAgency #HidradenitisSuppurativa #Novartis #pediatric patients #PolymyalgiaRheumatica #PsoriaticArthritis #rheumatology #TreatmentArms
https://www.europesays.com/ch/128673/ Diagnosing Hidradenitis Suppurativa: A New Tool to Help Patients #Dermatology #diagnosis #gynecology #HidradenitisSuppurativa #HS #Novartis
$240 needed ⚠️
URGENT help needed!
Unable to work, living 26% BELOW the pov line and estranged from family!
Breakdown below⤵️
$60/$150 - food needed now
$0/$100 - 2 co pays due july 15th
$0/$50 - phone due july 20th
Anything helps. Tysm!
V: d_fay
P: peach77
#Mutualaid #disabled #lgbtq #queer #DisabilityCrowdfund #directaid #MutualAidRequest #artist #MutualAidSavesLives #poverty #diabetes #hidradenitissuppurativa #Kyphosis #pcos #cptsd @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected]
https://www.europesays.com/si/132424/ Kalvarija voditelja Radia Aktual: Zdravniki se s takim primerom še niso srečali #Entertainment #HidradenitisSuppurativa #MattiasStojanović #SI #Slovene #Slovenia #Slovenija #Slovenščina #vnetje #Zabava
https://www.europesays.com/ch/77798/ New Survey Reveals 4 Things Patients with HS Really Need #AcneInversa #AHSID #ChronicInflammatorySkinCondition #Detroit #HidradenitisSuppurativa #HS #HSCommunity #Novartis #SkinCondition
https://www.europesays.com/ch/76693/ Novartis presents new data on early symptom relief and long-term control in complex skin diseases at AAD 2026 #AAD #ChronicDiseases #ChronicSpontaneousUrticaria #Cosentyx #DataIntegrity #DataPrivacy #EfficacyData #HidradenitisSuppurativa #Novartis #OralPresentation
RE: https://mastodon.social/@ellespeaks/116363324311316993
75$ to go for mini goal 2. Due april 14th
Anything helps! No other help besides mutual aid. Disabled, diabetic and queer woman w no family.
Im also sick as hell. Have found a painless abscess in my mouth.
also have #hidradenitissuppurativa spot on my scalp?! havent had one there before. Feeling worn/self conscious
#disabled #disabledartist #mutualaid #MutualAidRequest #MutualAidBoost #MutualAidSavesLives #poverty @[email protected] @[email protected] @disabledvoices @[email protected] @[email protected] @povertyandinequality
https://www.europesays.com/ch/36921/ Novartis presents new data on early symptom relief and long-term control in complex skin diseases at AAD 2026 #AAD #ChronicDiseases #ChronicSpontaneousUrticaria #Cosentyx #DataIntegrity #DataPrivacy #EfficacyData #HidradenitisSuppurativa #Novartis #OralPresentation
https://www.europesays.com/ch/32580/ Novartis Cosentyx® receives FDA approval for pediatric patients aged 12+ with moderate to severe hidradenitis suppurativa #Cosentyx #FDA #HidradenitisSuppurativa #Novartis #pediatric patients #PsoriaticArthritis #TreatmentOption #TreatmentOptions
https://www.europesays.com/ch/31642/ Novartis Cosentyx® receives FDA approval for pediatric patients aged 12+ with moderate to severe hidradenitis suppurativa #Cosentyx #FDA #HidradenitisSuppurativa #Novartis #pediatric patients #PsoriaticArthritis #TreatmentOption #TreatmentOptions
Four Indications Now Reimbursed in Ireland – A Milestone for Patients and Clinicians
Article developed and sponsored by UCB UK & Ireland – Prescribing Information and Adverse Event reporting procedure can…
#Ireland #IE #Europe #Europa #EU #advertorialfeature #axialspondyloarthritis #bimekizumab #Bimzelx #hidradenitissuppurativa #Inflammation #ireland #UCBCares
https://www.europesays.com/2766126/
https://www.europesays.com/2766126/ Four Indications Now Reimbursed in Ireland – A Milestone for Patients and Clinicians #AdvertorialFeature #AxialSpondyloarthritis #bimekizumab #Bimzelx #HidradenitisSuppurativa #Inflammation #ireland #UCBCares
Unser @DHLPaket-Mensch denkt wahrscheinlich auch, wir wären süchtig nach Online-Shopping oder sowas. 😬
Acne is a common skin condition, but what if those persistent bumps, painful lumps, or recurring skin lesions aren’t acne at all?
https://retroworldnews.com/is-it-really-acne-understanding-hidradenitis-suppurativa-and-how-to-manage-it/
#HidradenitisSuppurativa #AcneAwareness #SkinHealth #ChronicSkinCondition #HSManagement #Dermatology #SkinCareTips #HealthEducation #InflammatorySkinDisease #PatientSupport #SkinConditions #AcneVsHS #LivingWithHS #SkinCareCommunity #DermatologistAdvice #HealthAndWellness #SelfCare #SkinAwareness #ChronicIllness #MentalHealthMatters #beauty
Boils for 10 years?! The shocking truth doctors miss
Christopher Sayed is a dermatologist.
https://youtube.com/shorts/aRQhvxCgYkI
Listen here: https://kevinmd.com/podcast
#diagnosednotdismissed #HSwarrior #misdiagnosedforyears #findyourhscommunity #flareFighter #livetheihadhs #youarenotalone #morethanboils #healthtok #earlydiagnosismatters #HidradenitisSuppurativa
Hidradenitis suppurativa: The silent suffering no one talks about
Christopher Sayed is a dermatologist.
https://youtube.com/shorts/bweGkusPG6o
Listen here: https://kevinmd.com/podcast
#HidradenitisSuppurativa #SkinCondition #ChronicPain #Dermatology #InvisibleIllness #HealthAwareness #Stigma #Support #LivingWithHS #SkinHealth #HiddenStruggles
Request for Mutual Aid
(Links at end of post)
.
My partner and spouse wrote this fundraiser for our family because I haven't the brain power to do this.
.
Please read, if you can:
.
We are a family of five living in Bath, #Michigan. All five of us are disabled in different ways, but we have found a way to get by and thrive for many years. However, one parent had a sudden severe downturn of health at the beginning of this summer that has left us unable to continue getting the income that we need. The parent has several chronic medical conditions, #HidradenitisSuppurativa , Elhers Danslos Syndrome, and #POTS, as well as #autism
An infection brought home from school in May has led to a cascading series of medical emergencies, which resulted in hospitalization and a surgical procedure for a deep abscess in the thigh which will take months to heal, as well as physical therapy. The parent was bedbound for over a month, causing me to lose my job. I will still be unable to get a job for several more weeks, but I will be able to resume substitute teaching once the school year begins again and the children return to school in September.
We have to get through one month without being able to work, and we are asking for help to support our family through this difficult period, so that the parent can remain on bed rest and fully recover from the medical procedure.
Our family's chronic health conditions require a very specific diet to prevent events like this. Our children also have many severe food #Allergies This makes us unable to utilize food banks. I have already tried going to many different pantries. There was only one thing that we could eat, and we could not choose what we got, so we ended up with a lot of food that we had to throw away. This is the first abscess like this that the parent has had in four years, and it came when we were low on food and had to eat something we normally would not.
We greatly appreciate any who take the time to read this. We are also unable to get basic household needs and are having to get by without many medications and other essentials. We have an Amazon wish list with household items that we need but will not be able to buy for several months, which you can find here:
#Trans #Disability #Disabled #COVID #Autistic #MentalHealth #Crisis #MutualAid #Fundraiser #CommunityCare #ChronicIllness
https://www.amazon.com/hz/wishlist/ls/2JWR2Z5DYS03F?ref_=wl_share
For direct funds here is our
PayPal link:
After waiting 8 (!) Months for the appointment, I met my dermatologist today and YAY im gonna get my immunosuppressants again, starting tomorrow! 🎉🎊
My autoimmune disease #hidradenitissuppurativa was flaring up badly since September, had to get surgery twice, was away from work for 6 weeks...
Let's hope this puts an end to this!
What the hell? The Pads i need for my #hidradenitissuppurativa cost DOUBLE now than they did 3 months ago?!
😳😭😳
I have #hidradenitissuppurativa thanks to which I get abscesses all the time.
Most of them go away on its own, some unfortunately require surgery
The scar of my last #hidradenitissuppurativa surgery is very swollen and hurts, and I feel pretty sick, like a flu. No fever though, but I kinda never ever have fever.
But I don't want to go to the doctor, because then they cut another fist sized hole into my butt 😬🙈😞
My autistic grandfather dutifully cared for his wife (the grandmother I never got to meet) at the end of her fight with breast cancer.
Grandma Mary really wanted marijuana joints to cope with her pain, but the doctors only permitted her to use morphine (this was in the late 1970's). She couldn't administer it to herself so my grandfather injected it into her veins for her.
He told me this story one summer day when I was over at his apartment with my father. I was 10 years old at that time .
What prompted the story was grandpa Bill giving us a tour of his tackle box. I saw a syringe next to the rubber worms, and I asked what it was for. He explained that the fake worms injected with air made them seem life like to the fish, they'd wriggle about in the water, and were more likely to get a bite.
Then, he paused and told the story of that needle, and what it was originally for. After grandma Mary died, he kept all those remnant from that time, and everything seemed to have a repurpose . I watched him grimace as he took the morphine syringe in his hand and he angrily snapped it in two, and threw it away.
That was the first time I ever seen the gentle man look angry, actually, full of rage.
Only now, as I lay here in the hospital bed, after having a dose of Dilaudid, as the burning hot pain relief sears through my veins and breaks open my weary heart. I feel my grandmother, and I didn't have to meet her, to begin to feel her pain.
I feel grandpa's pain too. Repurposing the hurtful memories, the tools we are are actually given , when what we needed was something totally different. The autistic tendency to survive and "make due" with rampant unfairness.
#memories #pain #chronicIllness #cancer #autism #GoldenGeneration #millenials #thoughts #family #FamilyHistory #hidradenitisSuppurativa
Again #hidradenitissuppurativa makes that I feel really ill and my whole body hurts 😭
I SO hope to get humira soon.
My acne AND my #hidradenitissuppurativa are acting up right now, and now my body decided to add body aches to the mix... wonderfull 😭
I hope I get Humira again when I have the appointment in August, I can't take this anymore 🙈👍😬
Cautiously "good" news:
My partner checked the area and redness has gone down. It is swollen but not as red. No streaking. Took my 12th dose of Keflex (40 doses total is the full course). Basically, the point at which I was going to go to the hospital is if there was no positive change in the direction of healing or it got worse.
To go to the hospital, we are looking for signs of worsening such as :
1) Increased redness + increased swelling
2) Red streaks moving outward to new tissue
3) fever
4) disorientation
The reason why it's wait and see at home, has to do with the fact that my immune system has been put to sleep from the Prednisone (why healing from infection has been so slow), and so I can catch a plethora of things at the hospital including COVID.
This could be so so so much worse,
KNOCK ON WOOD.
Please still keep me in your thoughts, I'm not out of the hot water quite yet 🥺
Let's hope for reduced swelling by tomorrow morning 🤞
#HidradenitisSuppurativa #Immunocompromised #immuneSystem #cellulitis #ChronicIllness #Pain #anxiety #hospital #HealthCare
Another coloring/activity sheet:
"All the feels inside
PAIN
you can write them here"
How you write them is up to you-- pain as an acronym, all the P, A, I, N words in each respective letter... I dunno, whatever you wanna do with it.
I'm going to be filling this out for myself later.
#ColoringPages #ActivitySheet #Pain #ChronicIllness #Emotions #HidradenitisSuppurativa #Lonely #Healing #FreeArt
Here's another #ColoringSheet
I made for anyone who wants it.
Some of the nuts have text bubbles, so you can fill in what you want them to say.
"Ahhh nuts"
"Is it that kind of day?"
#ChronicIllness #stress #anxiety #pain #HidradenitisSuppurativa #coloringPages
The world is too much right now. I been trying to cope with all the sorts of pain I got rushing through me today. It's wanting to come through as self-soothing art.
I made a coloring page for you to color, if you want to.
Remember, somebody loves you 💜🌻
#Pain #HidradenitisSuppurativa #anxiety #fear #grief #ChronicIllness #love #coloringPages
I decided to CW this post because it's got some "OUCHIE" pictures, and I decided to educate you using my own body (please be kind 🙏)
So, I have #HidradenitisSuppurativa. Feel free to Google it, but beware it's rough to learn about. I cried when I first researched it after getting dxed in 2010.
ANYWAYS:
notice how in the 1rst picture, I have it labeled "stage 1" , and I drew a white arrow that points to a red line, or streak, that forms on the skin. Usually in HS, the streak goes from one lesion/spot and travels to form another spot, before the two just merge into one swollen, red-hot bit of hell that just keeps expanding and spreading (people can lose affected body parts from it).
Notice in picture 2 it's labeled "stage 2"
This is when the two have merged.
This is the point I have buckled and chose to seek virtual urgent care, because it's very difficult to walk and sit in an office for 3 hours like this. I was able to show the doc this picture on the screen and they got the point real quick.
This CANNOT, should not be lanced, as there is no head anyways. It will just spread infection into the bloodstream and risk getting sepsis (that's happened to me before, in 2018, and I am LUCKY to be here!)
I was prescribed Keflex and an increased dose on my Prednisone. I already have an appointment with my specialist on the 12th, so hopefully it will be better or close to gone and we can decide on next steps.
I hope this can educate anyone who is unsure about what to do, or when to get care. I honestly shoulda gotten care right when I saw the line. That would've been even better timing.
I'm leaving this helpful, informative article about cellulitis here for you. It's got information on what it is, it's stages and symptoms and what treatment entails and how long to expect to be sick with it:
https://www.dispatchhealth.com/blog/how-long-does-it-take-for-cellulitis-to-heal/
I'll keep you posted on how I'm doing.
Fingers crossed 🤞
How many people with worsening #HidradenitisSuppurativa flares because of this polluted air?
My skin is weeping
I can't show you pictures because they are graphic and they are where the sun don't shine.
My lungs are a mess, my GI tract is a mess, my skin is scaring me.
FYI --
#KarlMarx had HS, and the worst places he had it was right up around his scrotum and cheeks. He was freaking miserable. There's lots written on his condition. He lived next to heavily polluted areas too.
Also, I wish the worst case of HS on the world's #Billionaires
#Marxism #Communism #industrialization #consequences #pain #pollution #ClimateCrisis #ClimateChange
I make it a point to point out how incredibly fucked up everything is.
I now pass the time, in my long hours upon hours of level 10 pain, "trolling" executives and HR people on LinkedIn with reality. I also make posts with hashtags on LinkedIn with stuff I've screenshotted from you.
These people need their bubble popped. This societal abscess needs drained already. Speaking of which, the stress from all their Bullshit gives me literal genital abscesses. I know TMI, I have #HidradenitisSuppurativa and stress makes it flare as does pollution. That's another thing, the amount of health problems I have because of executive asshole colonizers.
I never let them forget it.
@jeanoappleseed @Radical_EgoCom
I agree. I been abused multiple times by the EMS. I been mistreated and abused in ERs based on things EMS said about me when they dropped me off.
I never call the EMS anymore.
I don't even go to the hospital.
Last time I was hospitalized was from a botched emergency surgery the surgeon performed OUTSIDE the OR which caused antibiotic resistant kidney infection (resistant klebsiella pneumoniae)
The surgery was a deroofing procedure for infected #HidradenitisSuppurativa that was in the vicinity of my nethers (that's how the infectious material got into my urinary tract
). This was in a rural hospital -- Lower Umpqua Hospital, Reedsport Oregon, January 7, 2019.
I'm on Medicaid and am disabled.
Even my extended family had problems with the medical system. My mother's death was speeded up by the hospital. (her mother died because of negligence too) And then, my big sister died in her own home because she was too afraid to call the EMS (her children watched her die in her own bed. Everyone begged her to go to the hospital.) She was having complications from a surgery+ wrong medication. Pulmonary embolism, 2 blood clots in the lungs.
1/2 Just moved instances so it's time for another #introduction. I'm a multiply #disabled #Christian woman. Also #asexual/#aromantic. I'm #blind, #autistic, and have lots of #ChronicIllnesses including #IdiopathicIntracranialHypertension, #EmptySellaSyndrome, #HidradenitisSuppurativa, and #fibromyalgia, as well as an undiagnosed stomach disorder. I live with my mom, stepdad, 5 dogs, lots of cats, and a chicken. We're in southeast Texas near Houston now but about to move to near San Antonio.
As someone with #hidradenitissuppurativa it kinda feels a bit bad that in medical tv shows the abcess patients are always the butt of the joke and have to be treated by the doctor who needs to be punished or lost rock paper scissors...
It's cool that my constant pain amuses you👍😬😡 /s
The misery of hidradenitis suppurativa and the importance of raising awareness
It's surprising that more people aren't aware of hidradenitis suppurativa (HS) when it's such a debilitating disease. HS is characterized by painful nodules or abscesses that can resemble boils.
Christopher Sayed is a dermatologist.
Listen here: https://kevinmd.com/podcast
#HidradenitisSuppurativa #Awareness #SilentSuffering #SkinConditions #RaiseAwareness #PatientCare #MedStudent #MedSchool
Unlocking the secrets of hidradenitis suppurativa: a journey to help underserved patients
As medical professionals, we all entered this field with the goal of helping patients. But sometimes, despite our best efforts, we encounter patients who struggle with conditions that seem impossible to manage.
Christopher Sayed is a dermatologist.
https://youtube.com/shorts/66_Q5e6Lwkg
Listen here: https://kevinmd.com/podcast
My #hidradenitissuppurativa did a bad bad thing and I feel like shit and am a bit afraid that in gonna get a sepsis 😖😬 (one of my big fears with HS)
I have no fever, so it's still okay, but I'm going to the doctor tomorrow....
... and if im unlucky im gonna need surgery again 😖
I hate this shit 🥺
So much body pain today and for the last few days. No matter what I do it hurts, painkillers do nothing.
And my #hidradenitissuppurativa is also acting up, can barely sit upright...
Fun with #mecfs and no end in sight 😖