#idiopathicintracranialhypertension — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #idiopathicintracranialhypertension, aggregated by home.social.
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@spiegelmama
I'm always happy to see validation of this. Some health sites are finally starting to cover it too (https://www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/symptoms-causes/syc-20354031) but I'm still frustrated that Ehlers Danlos still is "too rare" for physicians to link it to at least some of the cases. Chiari Malformation is even "more rare"I really hope the visibility of all these "rare" conditions increase and the wider medical community starts connecting the dots so that all of us can stop having to fight and actually get the research and treatment we need.
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@spiegelmama
I'm always happy to see validation of this. Some health sites are finally starting to cover it too (https://www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/symptoms-causes/syc-20354031) but I'm still frustrated that Ehlers Danlos still is "too rare" for physicians to link it to at least some of the cases. Chiari Malformation is even "more rare"I really hope the visibility of all these "rare" conditions increase and the wider medical community starts connecting the dots so that all of us can stop having to fight and actually get the research and treatment we need.
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@spiegelmama
I'm always happy to see validation of this. Some health sites are finally starting to cover it too (https://www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/symptoms-causes/syc-20354031) but I'm still frustrated that Ehlers Danlos still is "too rare" for physicians to link it to at least some of the cases. Chiari Malformation is even "more rare"I really hope the visibility of all these "rare" conditions increase and the wider medical community starts connecting the dots so that all of us can stop having to fight and actually get the research and treatment we need.
-
@spiegelmama
I'm always happy to see validation of this. Some health sites are finally starting to cover it too (https://www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/symptoms-causes/syc-20354031) but I'm still frustrated that Ehlers Danlos still is "too rare" for physicians to link it to at least some of the cases. Chiari Malformation is even "more rare"I really hope the visibility of all these "rare" conditions increase and the wider medical community starts connecting the dots so that all of us can stop having to fight and actually get the research and treatment we need.
-
@spiegelmama
I'm always happy to see validation of this. Some health sites are finally starting to cover it too (https://www.mayoclinic.org/diseases-conditions/pseudotumor-cerebri/symptoms-causes/syc-20354031) but I'm still frustrated that Ehlers Danlos still is "too rare" for physicians to link it to at least some of the cases. Chiari Malformation is even "more rare"I really hope the visibility of all these "rare" conditions increase and the wider medical community starts connecting the dots so that all of us can stop having to fight and actually get the research and treatment we need.
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1/2 Just moved instances so it's time for another #introduction. I'm a multiply #disabled #Christian woman. Also #asexual/#aromantic. I'm #blind, #autistic, and have lots of #ChronicIllnesses including #IdiopathicIntracranialHypertension, #EmptySellaSyndrome, #HidradenitisSuppurativa, and #fibromyalgia, as well as an undiagnosed stomach disorder. I live with my mom, stepdad, 5 dogs, lots of cats, and a chicken. We're in southeast Texas near Houston now but about to move to near San Antonio.
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@spiegelmama
All of this probably sounds really weird but I've always felt like I couldn't hear really well despite hearing tests always showing I can hear fine so I assume there is something in my (our?) brains that process audio in a weird way#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
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@spiegelmama
Auditory is a weird one for me.... There were times that I could have swore I was hearing music that wasn't there but over time I've come to realize a few things. First is I've found that sometimes I'm far more prone to hear background tracks in TV shows and movies. For me I never had realized how much atmospheric sounds are added to movies and TV shows because I never heard it before. Honestly I never realized this until one time I was high watching a TV show I watched over and over again and noticed it.... It matched some of what I thought I was hearing before. The second thing I noticed is that my brain has a habit of "filling in the blanks" where I hear something at a super low volume... Even as much as a slight air sound (like a draft or something) but my brain tries to interpret it and I process it as music.#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
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Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia
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@spiegelmama
All of this probably sounds really weird but I've always felt like I couldn't hear really well despite hearing tests always showing I can hear fine so I assume there is something in my (our?) brains that process audio in a weird way#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
All of this probably sounds really weird but I've always felt like I couldn't hear really well despite hearing tests always showing I can hear fine so I assume there is something in my (our?) brains that process audio in a weird way#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
All of this probably sounds really weird but I've always felt like I couldn't hear really well despite hearing tests always showing I can hear fine so I assume there is something in my (our?) brains that process audio in a weird way#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
All of this probably sounds really weird but I've always felt like I couldn't hear really well despite hearing tests always showing I can hear fine so I assume there is something in my (our?) brains that process audio in a weird way#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
Auditory is a weird one for me.... There were times that I could have swore I was hearing music that wasn't there but over time I've come to realize a few things. First is I've found that sometimes I'm far more prone to hear background tracks in TV shows and movies. For me I never had realized how much atmospheric sounds are added to movies and TV shows because I never heard it before. Honestly I never realized this until one time I was high watching a TV show I watched over and over again and noticed it.... It matched some of what I thought I was hearing before. The second thing I noticed is that my brain has a habit of "filling in the blanks" where I hear something at a super low volume... Even as much as a slight air sound (like a draft or something) but my brain tries to interpret it and I process it as music.#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
Auditory is a weird one for me.... There were times that I could have swore I was hearing music that wasn't there but over time I've come to realize a few things. First is I've found that sometimes I'm far more prone to hear background tracks in TV shows and movies. For me I never had realized how much atmospheric sounds are added to movies and TV shows because I never heard it before. Honestly I never realized this until one time I was high watching a TV show I watched over and over again and noticed it.... It matched some of what I thought I was hearing before. The second thing I noticed is that my brain has a habit of "filling in the blanks" where I hear something at a super low volume... Even as much as a slight air sound (like a draft or something) but my brain tries to interpret it and I process it as music.#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
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@spiegelmama
Auditory is a weird one for me.... There were times that I could have swore I was hearing music that wasn't there but over time I've come to realize a few things. First is I've found that sometimes I'm far more prone to hear background tracks in TV shows and movies. For me I never had realized how much atmospheric sounds are added to movies and TV shows because I never heard it before. Honestly I never realized this until one time I was high watching a TV show I watched over and over again and noticed it.... It matched some of what I thought I was hearing before. The second thing I noticed is that my brain has a habit of "filling in the blanks" where I hear something at a super low volume... Even as much as a slight air sound (like a draft or something) but my brain tries to interpret it and I process it as music.#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
@spiegelmama
Auditory is a weird one for me.... There were times that I could have swore I was hearing music that wasn't there but over time I've come to realize a few things. First is I've found that sometimes I'm far more prone to hear background tracks in TV shows and movies. For me I never had realized how much atmospheric sounds are added to movies and TV shows because I never heard it before. Honestly I never realized this until one time I was high watching a TV show I watched over and over again and noticed it.... It matched some of what I thought I was hearing before. The second thing I noticed is that my brain has a habit of "filling in the blanks" where I hear something at a super low volume... Even as much as a slight air sound (like a draft or something) but my brain tries to interpret it and I process it as music.#ComplexAuditoryHallucinations #AuditoryCharlesBonnet #IntracranialHypertension #IIH #IdiopathicIntracranialHypertension #ChronicIllness #Disability
-
Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia
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Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia
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Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia
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Frequency of idiopathic intracranial hypertension with ultrasound in patients with fibromyalgia: Relation with function, central sensitization, and neuropathic pain
https://onlinelibrary.wiley.com/doi/abs/10.1111/1756-185X.15066
#IdiopathicIntracranialHypertension #IIH #Fibromyalgia #Fibro #FMS #FM @fibromyalgia