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#rarediseases — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #rarediseases, aggregated by home.social.

  1. UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]

    https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/
  2. UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]

    https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/
  3. UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]

    https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/
  4. UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]

    https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/
  5. UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]

    https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/
  6. I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!

    I’m looking forward to present our work at findme2care.de AND hear about all the other projects.

    Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!

    #humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry

  7. Intersex and rare diseases: a flag for intersex people who have rare diseases, whether because their intersex variation is a rare disease, or because in addition to being intersex they have a rare disease (e.g. EDS).

    The zebra is a common symbol of rare diseases. The design of replacing the ring of the intersex flag with a zebra head was created by queercripintersex on Tumblr in 2022. This version has a different zebra head on it.

    Origin:
    www.tumblr.com/queercripintersex/680738028875038720/i-made-a-few-more-intersex-disabled-iconsflags

    #intersex #disability #RareDiseases #zebraDiseases #EDS #pride #PrideMonth #IntersexPride #CreativeCommons #newFlag

  8. Esclerosis Sistémica Progresiva 🌻 A menudo se diagnostica ya avanzada. Yo tuve la "suerte" de estar en estudio de otras enfermedades #autoinmunes e hizo que lo que pudo ser una #esclerodermia quedara en pre-esclerodermia desde 2015🤞

    #246 A la sombra de un girasol 🐺 domandoallobo.blogspot.com/201 #blog #mastoblogs #mastobloguers

    #29Junio #DiaMundialDeLaEsclerodermia 🌻#WorldSclerodermaDay#EnfermedadesRaras #EERR #RareDiseases #disabled #dependence #autoimmune #discapacidad #dependencia