#rarediseases — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #rarediseases, aggregated by home.social.
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UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
This is the first step to do the amazing at CSL Plasma. Your help is essential to create life-saving medicines for patients in need. Use my link and we both get rewarded.
https://rewards.cslplasma.com/referral/referral-unique-code/eyJkb25vcklEIjoiMDBFQzNTOSIsImNvZGUiOiI5OU1GN0JNS1ZEIiwicmVnaW9uU2hvcnROYW1lIjoidXMifQ#CSL #Donate #DonatePlasma #PlasmaDonation
#PlasmaDonor #SaveLives #BloodPlasma #GivePlasma #BeAHero
#CommunitySupport #MakeADifference #HelpOthers
#PayItForward #PlasmaTherapy
#MedicalResearch
#ChronicIllnessSupport #Healthcare
#RareDiseases #SideHustle #ExtraCash #PaidToSaveLives -
I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!
I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.
Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!
#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry
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👋 Say hello to our new IHI project, PaLaDIn! Their goal is to develop a platform that collects innovative, real-world data #RWD from people with #RareDiseases. 👉 More: https://www.ihi.europa.eu/news-events/newsroom/paladin-project-puts-rare-disease-patients-centre-data-collection-platform #IHITransformingHealth #EUResearch #HealthResearch #Health #Research #EU #Data
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📣 📣 📣 There are less than nine months remaining until Cilia2024, happening from September 10th to 13th in Dublin! 🇮🇪 :happy:
Remember to mark your calendars! What an amazing lineup of programs and speakers!
For more information, visit http://cilia2024.ie/
Registration opens in February.
@cilia @cellbiology @cellbio
#CellBiology #DevelopmentalBiology #DevBio #Nephrology #Ciliopathies #cilia #Science #Conference #RareDiseases #Kidney #Biology #Flagella #PCD #ADPKD #BBS #NPHP #CKD #PKD -
After a wonderful kick-off meeting of TheRaCil time to chill by Copenhagen‘s canals 🌬️🥶😊🌬️
@cilia #cilia #Ciliopathy #RareDiseases #Zilien #Nephrology #Nephrologie
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#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?
Support #RareDiseaseDay and join the discussion to raise awareness!