#rarediseases — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #rarediseases, aggregated by home.social.
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UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
UNC Healthcare: UNC Awarded Up to $35 Million to Lead Landmark Initiative to Build World’s Largest Data Resource for Rare Disease AI. “To address the challenges of rare disease diagnosis, the UNC School of Medicine and Emory University are leading a first-of-its-kind research initiative to build a comprehensive data resource. Designed to power AI-driven insights, new and existing tools will […]
https://rbfirehose.com/2026/09/06/unc-healthcare-unc-awarded-up-to-35-million-to-lead-landmark-initiative-to-build-worlds-largest-data-resource-for-rare-disease-ai/ -
This is the first step to do the amazing at CSL Plasma. Your help is essential to create life-saving medicines for patients in need. Use my link and we both get rewarded.
https://rewards.cslplasma.com/referral/referral-unique-code/eyJkb25vcklEIjoiMDBFQzNTOSIsImNvZGUiOiI5OU1GN0JNS1ZEIiwicmVnaW9uU2hvcnROYW1lIjoidXMifQ#CSL #Donate #DonatePlasma #PlasmaDonation
#PlasmaDonor #SaveLives #BloodPlasma #GivePlasma #BeAHero
#CommunitySupport #MakeADifference #HelpOthers
#PayItForward #PlasmaTherapy
#MedicalResearch
#ChronicIllnessSupport #Healthcare
#RareDiseases #SideHustle #ExtraCash #PaidToSaveLives -
I’ll attend the #EuroNDD Workshop in Warsaw in April. Anyone around the Fediverse going there as well? —> let’s connect!
I’m looking forward to present our work at https://www.findme2care.de AND hear about all the other projects.
Also: I’ll be co-hosting an educational session and roundtable discussion titled „Building Patient Registries under the GDPR – The Good, the Bad and the Ugly“ —> there are a few seats left for conference attendees!
#humangenetics #genetics #RareDiseases #RareDisease #ERN #ERNIthaca #patientregistry
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Gene therapy revolutionizes medicine by correcting defective genes and treating inherited diseases, cancers, and rare disorders with advanced biotechnology innovations.
#GeneTherapy #Biotechnology #GeneticEngineering #MedicalInnovation #PrecisionMedicine #CancerResearch #RareDiseases #BiotechStudents #LifeSciences #BioResire -
Scientific Director
CureGRIN FoundationCureGRIN is looking for a brilliant, driven, junior PhD who will work remotely with researchers, clinicians, industry and patient families.
See the full job description on jobRxiv: https://jobrxiv.org/job/curegrin-foundation-27778-scientific-director/
#clinicaltrial #communityengagement #preclinical #rarediseases #Translationalmedicine #ScienceJobs #hiring #research
https://jobrxiv.org/job/curegrin-foundation-27778-scientific-director/?fsp_sid=3847 -
Scientific Director
CureGRIN FoundationCureGRIN is looking for a brilliant, driven, junior PhD who will work remotely with researchers, clinicians, industry and patient families.
See the full job description on jobRxiv: https://jobrxiv.org/job/curegrin-foundation-27778-scientific-director/
#clinicaltrial #communityengagement #preclinical #rarediseases #Translationalmedicine #ScienceJobs #hiring #research
https://jobrxiv.org/job/curegrin-foundation-27778-scientific-director/?fsp_sid=3742 -
Using machine learning to repurpose old drugs, researchers found a treatment for a rare disease — and it worked. #AI #DrugRepurposing #Healthcare #RareDiseases #MachineLearning
nytimes.com/2025/03/20/hea... -
Using machine learning to repurpose old drugs, researchers found a treatment for a rare disease — and it worked.
https://www.nytimes.com/2025/03/20/health/ai-drug-repurposing-rare-diseases.html
#AI #DrugRepurposing #Healthcare #RareDiseases #MachineLearning -
In the inaugural issue of the new #ScienceOpen OA journal, #DrugRepurposing: #Patent Landscaping for #rarediseases 2010–2023
https://drugrepocentral.scienceopen.com/hosted-document?doi=10.58647/DRUGREPO.24.1.0012 -
Intersex and rare diseases: a flag for intersex people who have rare diseases, whether because their intersex variation is a rare disease, or because in addition to being intersex they have a rare disease (e.g. EDS).
The zebra is a common symbol of rare diseases. The design of replacing the ring of the intersex flag with a zebra head was created by queercripintersex on Tumblr in 2022. This version has a different zebra head on it.
Origin: www.tumblr.com/queercripintersex/680738028875038720/i-made-a-few-more-intersex-disabled-iconsflags
#intersex #disability #RareDiseases #zebraDiseases #EDS #pride #PrideMonth #IntersexPride #CreativeCommons #newFlag -
Esclerosis Sistémica Progresiva 🌻 A menudo se diagnostica ya avanzada. Yo tuve la "suerte" de estar en estudio de otras enfermedades #autoinmunes e hizo que lo que pudo ser una #esclerodermia quedara en pre-esclerodermia desde 2015🤞
#246 A la sombra de un girasol 🐺 https://domandoallobo.blogspot.com/2017/06/246-esclerodermia-Sjogren-Raynaud.html #blog #mastoblogs #mastobloguers
#29Junio #DiaMundialDeLaEsclerodermia 🌻#WorldSclerodermaDay#EnfermedadesRaras #EERR #RareDiseases #disabled #dependence #autoimmune #discapacidad #dependencia