Live and recent posts from across the Fediverse tagged #misdiagnosis, aggregated by home.social.
Christina Applegate says she was misdiagnosed with MS
Christina Applegate has revealed her doctor says she does not have multiple sclerosis (MS) and was misdiagnosed. The…
#NewsBeep #News #Celebrities #applegate #AU #Australia #christina #diagnosis #Entertainment #Jamie-LynnSigler #messy #Misdiagnosis #multiple #podcast #Sclerosis
https://www.newsbeep.com/au/935669/
"Christina Applegate says she was misdiagnosed with multiple sclerosis"
Yep, been there, done that. I was misdiagnosed with MS, when what I had was a PCNS Lymphoma (cancer).
I've read the article, and I recognize myself in her reactions.
My cancer diagnosis came as a relief, not because "yay cancer!", but because before that we did not know what the FUCK was wrong with me.
I nearly died from it.
#ChristinaApplegate #MS #MultipleSclerosis #cancer #CancerSurvivor #misdiagnosis
A study of 62.5 million people reveals what broad ethnic labels miss about rare diseases
Researchers examined millions of NHS health records to investigate how ethnicity relates to rare disease prevalence and…
#NewsBeep #News #Health #AU #Australia #coronavirus #covid-19 #Diagnostic #Genetic #Healthcare #Hospital #KawasakiDisease #Laryngomalacia #Lupus #LupusErythematosus #Misdiagnosis #PolymyalgiaRheumatica #raredisease #Retinopathy #RetinopathyofPrematurity
https://www.newsbeep.com/au/934537/
A study of 62.5 million people reveals what broad ethnic labels miss about rare diseases
Researchers examined millions of NHS health records to investigate how ethnicity relates to rare disease prevalence and wh…
#NewsBeep #News #Health #CA #Canada #Coronavirus #COVID-19 #Diagnostic #Genetic #Healthcare #hospital #KawasakiDisease #Laryngomalacia #Lupus #LupusErythematosus #misdiagnosis #PolymyalgiaRheumatica #raredisease #Retinopathy #Retinopathyofprematurity
https://www.newsbeep.com/ca/939580/
https://www.europesays.com/videos/109350/ NHS Scandal: 9-year-old dies preventable death after nurses replace doctors | Exclusive #Appendicitis #child #children #ChildrenAndHealthcare #DoctorsAndNurses #DylanCope #family #Health #hospital #journalism #medical #misdiagnosis #Newport #news #nhs #NHSDoctor #NHSNurse #NhsScandal #Reporting #Telegraph #TheTelegraph
https://www.fogolf.com/us/1664/ Cassie Porter’s LPGA journey: ‘A misdiagnosis cost me 18 months of golf ’ | Golf News and Tour Information #CassiePorter #CassiePortersLpgaTourJourneyAMisdiagnosisCostMe18MonthsOfGolf #GolfHealth #journeys #magazine #misdiagnosis #PGA #PGATOUR #plus #story #women
Cassie Porter’s LPGA Tour journey: ‘A misdiagnosis cost me 18 months of golf ’ | Golf News and Tour Information
Tennis was my first love. My dad is a tennis professional and taught at a local school. Golf…
#Golf #News #CassiePorter #cassieporterslpgatourjourneyamisdiagnosiscostme18monthsofgolf #golfhealth #journeys #magazine #misdiagnosis #plus #story #women
https://www.europesays.com/golf/70063/
UiA research project develops mobile app to combat world’s most neglected tropical diseases
A research project at UiA is working to combat one of the world’s most neglected tropical diseases. A…
#NewsBeep #News #Health #AU #Australia #Cancer #cervicalcancer #Healthcare #Misdiagnosis #NeglectedTropicalDisease #research #ResearchProject #schistosomiasis #Skin #TropicalDisease
https://www.newsbeep.com/au/855346/
https://www.europesays.com/ie/637379/ UiA research project develops mobile app to combat world’s most neglected tropical diseases #cancer #CervicalCancer #Éire #Health #Healthcare #IE #Ireland #Misdiagnosis #NeglectedTropicalDisease #Research #ResearchProject #Schistosomiasis #skin #TropicalDisease
When Doctors Disagree: New Study Raises Questions About the Reliability of Psychiatric Diagnosis
Despite decades of refinement to diagnostic manuals, questions persist about the consistency and scientific basis of psychiatric diagnosis.…
#NewsBeep #News #Mentalhealth #AU #Australia #diagnosis #Health #icd #Inter-RaterReliability #InternationalClassificationofDiseases #MentalHealth #Misdiagnosis #Reliability #validity
https://www.newsbeep.com/au/843173/
When Doctors Disagree: New Study Raises Questions About the Reliability of Psychiatric Diagnosis
Despite decades of refinement to diagnostic manuals, questions persist about the consistency and scientific basis of psychiatric diagnosis.…
#NewsBeep #News #Mentalhealth #Diagnosis #Health #ICD #Inter-RaterReliability #InternationalClassificationofDiseases #MentalHealth #misdiagnosis #Reliability #UK #UnitedKingdom #validity
https://www.newsbeep.com/uk/727171/
Leading autism expert calls for splitting the spectrum to prevent misdiagnosis
📰 Original title: Autism expert warns spectrum may have become ‘too broad’
🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅
Misdiagnosis Leads to Severe Illness After 111 Advice
📰 Original title: '111 told my sister to take paracetamol
🤖 IA: It's clickbait ⚠️
👥 Users: It's clickbait ⚠️
View full AI summary https://en.killbait.com/misdiagnosis-leads-to-severe-illness-after-111-advice.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait.mastodon_world
Misdiagnosis Leads to Severe Illness After 111 Advice
📰 Original title: '111 told my sister to take paracetamol
🤖 IA: It's clickbait ⚠️
👥 Users: It's clickbait ⚠️
View full AI summary https://en.killbait.com/misdiagnosis-leads-to-severe-illness-after-111-advice.html?utm_source=mastodon_social&utm_medium=social&utm_campaign=killbait.mastodon_social
A wife’s account reveals the hidden burden of young-onset Alzheimer’s caregiving
Behind one rare dementia diagnosis lies a midlife caregiving story shaped by misdiagnosis, objects that seem to disappear,…
#NewsBeep #News #Health #AU #Australia #Children #Dementia #eye #Misdiagnosis #Syndrome
https://www.newsbeep.com/au/805578/
A wife’s account reveals the hidden burden of young-onset Alzheimer’s caregiving
Behind one rare dementia diagnosis lies a midlife caregiving story shaped by misdiagnosis, objects that seem to disappear,…
#NewsBeep #News #Health #CA #Canada #Children #Dementia #eye #misdiagnosis #Syndrome
https://www.newsbeep.com/ca/807183/
https://www.europesays.com/ie/589857/ A wife’s account reveals the hidden burden of young-onset Alzheimer’s caregiving #children #dementia #Éire #eye #Health #IE #Ireland #Misdiagnosis #Syndrome
CW: mental health, self-harm, checking out
On Thursday the Mental Health Services episode of my podcast The Autistic Rant Hour went online. And then I got a phone call from my mother’s cousin, a beloved elderly family member, where he heartbreakingly informed me of the passing of his 27 year old eldest grandson. It was self-inflicted and preceded by a lifetime in the Mental Healthcare system of a North-European country, with all the available resources at his disposal. I‘ve never met my first cousin twice removed, may his memory be a blessing, and I very barely know his father. So I cannot tell you whether he, like Rey, the wonderful guest on the podcast’s Mental Health Services episode, was also a misdiagnosed autistic person who got the wrong treatment for his condition, no accommodations, and often suffered extremely harmful neglect. Maybe he had a totally different mental struggle, maybe he did get the treatment he needed. I have no way of knowing. All I do know is that on his computer, his father found a document detailing the research he conducted regarding the recovery rate of people with the condition he was diagnosed with and about the kinds of help he could expect from Mental Health Services in his country. He came to the conclusion that his only way was the way out, and started planning his escape from life on a weekend off the ward he had coming.
Rey Rissanen, my guest on The Autistic Rant Hour’s 4th episode, was thankfully luckier. After years in and out of therapy and psych wards, they realized they were in fact, autistic, rather than depressive with a borderline personality disorder. This helped them understand that all their efforts to recover by following the prescribed treatment did not fail because they were a terrible person nor a terrible patient, but because they got the wrong diagnosis and the wrong treatment, if they even got any treatment at all. They learned to advocate for themself and figured out how to shape their life in a way that would enable them to pursue goals such as moving and attending university. There, they will also know how to request the accommodations they need and seek appropriate help in case of trouble.
Such a future was not to be for the family member we have lost, and we are left to mourn and wonder why.
I would like to dedicate this episode to his memory, and hope that those of you who need to hear a story of hope rather than despair, can get that from this episode. Whether you choose to listen to it or not, please know that there might be an explanation to your plight that Mental Health professionals are often woefully misinformed about, and that if you feel your treatment is failing, it might very well not be because of your shortcomings, but that of the system. Figuring out what is at the root of your suffering can make a world of difference and help you forwards and upwards. I hope you and your loved ones who may be struggling right now can find hope in this message, and maybe give yourself a few more years to try and figure this out before making any irreversible decisions.
You are very welcome to share your experiences with Mental Health Services on this thread, but please remember to add content warnings. Also please keep in mind that neither I nor most of the people reading this can give you professional help, so in case of emergency, please contact your local crisis center and try to advocate for your needs as best you can.
You can find The Autistic Rant Hour wherever you get your podcasts.
Here’s a link to the podcast on Aut2Aut’s website, where you can find a human-proofread transcript: https://prepped.to/podcasts/autistic-rant-hour
#ActuallyAutistc #MentalHealth #misdiagnosis #selfharm #AutismAwareness
About 3 months ago I noticed something odd: when I chewed something hard on the left, my preferred chewing side, it sometimes caused a piercing pain that went right down my backmost lower left molar. So I went to the dentist. I have a nice dentist. When I went to see him for the first time, I was wearing my sunflower lanyard, and he asked me what invisible disability I was wearing it for. When I said I was autistic, he asked me how he could accommodate me, and I said I was very light sensitive, so I'd be wearing my yellow protective glasses during our session. He didn’t raise an eyebrow, and he did make sure that the terrible light dentists usually blind me with was pointed at my mouth, not my eyes. I never realized that was an option! Mind = blown! And also, before each step, he told me what he was going to do and the kind of noises and tactile experience it would cause. The guy’s a total gem 😻 (is what I think about what should probably be just standard practice in an autistic-friendly world).
So when I went to him with the weird intermittent tooth-ache, he knocked on the tooth and blew some air on it, warning me in advance and then asking me what it felt like. I said it was nothing compared to eating a nut with that tooth. He took an X-ray, and showed me the image on his screen. There was nothing there. So he said he thought it might be a gum inflammation and sent me home with some specific mouth-wash. He said to come back if it was still going on in a month or two. I did the mouth wash routine he recommended, which my gums did appreciate, but to no avail, toothwise. So 6 weeks later I was back in his chair. He looked at the X-ray again, repeated the whole tapping, air-blowing, gum-checking routine, and told me that he couldn’t see anything, but would I please get a longer appointment at the desk, and come back for him to remove a filling I had on that tooth, so he could look under it. I did that, and two weeks later I went to that longer appointment, where he took the old filling out, and to his utter astonishment, found a massive cavity going straight down, on the next tooth over where the two teeth met. He told me he was shocked that such a large cavity hadn’t shown on X-Ray, and went on to perform the necessary two fillings.
I thanked him for not just sending me home because the cavity hadn’t shown on X-Ray. “Not every dentist would believe me something was actually wrong and start digging around in there,” I said. He then confessed that if it weren’t for that old filling indicating something had previously already been afoot over there, he would have in fact sent me home without treatment. Had he done that, the cavity would have no doubt turned into a root canal. I know, because I have two of those from when teeth just didn’t hurt that much until the damage was already too bad for a filling. I guess my interoception of tooth cavities just isn’t the same as other folks’. I’ve also been known to walk around for a month with bone fractures orthopedic doctors couldn’t see on X-Ray. And to be sent home by medical professionals who just didn’t seem to be able to figure out what was wrong with me. And this is what the 3rd episode of my podcast The Autistic Rant Hour is about: Medical Gaslighting. Or as I like calling it: We’ve Run All the Tests and there’s Nothing Wrong with You.
In this episode I’m joined by Simo_tier (pronouns: it/they), a multimedia artist and activist I got to know on a local queer autistic meetup it organizes. Together we share some anecdotes about all those times we went to the doctor only to be met with disbelief, ignorance, discrimination and sometimes plain incompetence. We discuss the notorious pain scale, misdiagnoses, missing tests and wrong prescriptions, compounded discrimination of multiply marginalized patients, and the real life and death outcomes of everything autistic people have to endure when seeking medical services, including that moment when you just can’t deal with it all anymore, and don’t even seek those services.
I’d love to hear from you about your experiences with medical care, and whether you have some autistic life-hacks that make things better.
You can find The Autistic Rant Hour wherever you get your podcasts, or see here for links, player and transcripts: https://prepped.to/podcasts/autistic-rant-hour
#ActuallyAutistc #MedicalGaslighting #misdiagnosis #DentalCare #Podcast #Podcasting
https://www.europesays.com/uk/985135/ UK hospitals are doomed if NHS doesn’t make two crucial changes for all patients | UK | News #Health #Healthcare #HealthcareHierarchy #Hospital #misdiagnosis #NHS #PatientCare #UK #UnitedKingdom
UK hospitals are doomed if NHS doesn’t make two crucial changes for all patients | UK | News
The NHS needs two crucial changes (Image: Getty) Surviving in the UK in 2026 involves knowing who you…
#NewsBeep #News #Healthcare #Health #healthcare #healthcarehierarchy #Hospital #misdiagnosis #NHS #patientcare #UK #UnitedKingdom
https://www.newsbeep.com/uk/602794/
Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.
Doctors kept dismissing her persistent cough. One heroic nurse refused to let it go.
https://www.europesays.com/ie/459577/ Overdiagnosis of autism wrong response to problems of living #ADHD #anxiety #Autism #BreakingNews #BreakingNews #FeaturedNews #FeaturedNews #Headlines #LatestNews #LatestNews #MainNews #MainNews #MisDiagnosis #News #OverDiagnosis #TopStories #TopStories #World #WorldNews #WorldNews
ADHD is often misdiagnosed sometimes missed,
https://de320.isrefer.com/go/startsqac8day/Stuartn/
#ADHD #Misdiagnosis #Neurodiversity #MentalHealth #TraumaInformed #ThinkandGrowEducation #UNTHINKABLE #QAC
AI misdiagnosis raises concerns among health care professionals | Health https://www.byteseu.com/1939796/ #ArtificialIntelligence #ArtificialIntelligenceInMentalHealth #BaptistHealth #Health #HeartAttack #JohnCecil #KeithHoffman #Kentucky #MedicalDiagnosis #misdiagnosis #OpenAI #PatientSafety
Kylian Mbappe reportedly suffered a misdiagnosis after wrong leg scan, raising concerns, though he insists he is fully fit. https://english.mathrubhumi.com/sports/football/kylian-mbappe-injury-misdiagnosis-wrong-leg-scan-real-madrid-world-cup-iunh44ie?utm_source=dlvr.it&utm_medium=mastodon #Mbappe #Misdiagnosis #WorldCup2026 #FIFAWorldCup2026 #FootballNews
https://www.europesays.com/uk/810025/ A deadly risk for patients #FraudulentSurgeries #Health #Healthcare #HealthcareFraud #HealthcareInNigeria #HospitalMalpractice #HospitalNegligence #HospitalSafety #LaboratoryTests #MedicalEthics #MedicalMalpractice #MedicalNegligence #misdiagnosis #NigerianHealthcare #PatientRights #PatientSafety #PublicHealth #UK #UnitedKingdom #UnnecessarySurgery
Smartphone photos may be misleading doctors and putting patients at risk – new research
New #research from our team suggests the answer is often the latter. #Smartphone #cameras and software routinely alter images in ways that can mislead #doctors, and in some cases, put #patients at risk of #misdiagnosis.
#medical #HealthCare #GPs #Remote #RemoteConsultations #diagnosis
Vila Franca de Xira Doctor Misdiagnoses Patient Watching Man Utd-Chelsea Game
#Chelsea #footballmatch #manchesterunited #Misdiagnosis #VilaFrancadeXiraHospital
https://blazetrends.com/vila-franca-de-xira-doctor-misdiagnoses-patient-watching-man-utd-chelsea-game/?fsp_sid=128126
A 37-year-old father from Killarney, County Kerry, has issued a sobering warning about the risks of relying on artificial intelligence for medical advice, after ChatGPT told him it was “highly unlikely” he had cancer — only for him to later be diagnosed with stage four oesophageal cancer. https://english.mathrubhumi.com/news/world/irish-man-misdiagnosed-cancer-chatgpt-oxv4n140?utm_source=dlvr.it&utm_medium=mastodon #ChatGPT #AI #medicaladvice #cancer #misdiagnosis
6/
“A little over half reported it [a psychosomatic or psychiatric misdiagnosis] had led to long-term distrust in doctors, and 72% continued to feel upset about the misdiagnosis today (P < .001).”
#misdiagnosis #doctorpatient
@lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies
A quotation (not) from Groucho Marx
Politics is the art of looking for trouble, finding it everywhere, diagnosing it incorrectly and applying the wrong remedies.
Groucho Marx (1890-1977) American comedian [b. Julius Henry Marx]
(Misattributed)
Sourcing, notes: wist.info/marx-groucho/6810/
#quote #quotes #quotation #qotd #correction #grouchomarx #fix #misdiagnosis #politics #problemsolving #remedy #trouble
(1/?) Had a scary low blood sugar incident last night. I was up late, and realized that I was A: hungry so I ate some cheese crackers because that's what I had handy. But then I started feeling gassy and bloated, an Ozempic side effect. Went to the bathroom hoping to relieve things, but started to feel worse. MUCH worse. Nauseous and unwell. Suddenly paranoid I was finally coming down with covid or flu. (Spoiler: No)
cont...
#diabetes #healthScare #misdiagnosis
It is not uncommon for patients to distrust #healthcare providers or diagnoses, but do patients' concerns track experts' concerns?
Two blinded clinicians independently reviewed the charts of 467 primary care patients "identified as at-risk for diagnostic concerns" by a medical portal algorithm.
"Missed opportunities in diagnosis (MODs)" were predicted by patients' distrust and sense of #misdiagnosis, sometimes even above and beyond other potentially confounding factors.
Here is Part Two in my Series on POTS and Dysautonomia! This post focuses on the LONG road to diagnosis - and the gaslighting and barriers patients face along the way. The accusations of anxiety, the minimization of symptoms and of course the dreaded 'it's all in your head'.
I lost track of how many doctors worked me up - saw my very serious physical symptoms - and still said "What do you want ME to do about it?"
The answer was obvious - I wanted them to do their job. I needed them to think outside the box. To believe me when I said I wasn't anxious. To recognize that 'anxiety' isn't postural in nature. To figure out what was wrong.
It took years to get my diagnosis - and I hope my articles can help patients avoid some of the pitfalls and traps I fell in to. I want healthcare workers to read these posts and consider POTS the next time a patient comes in with unexplained symptoms like dizziness, tachycardia, fatigue and fainting.
There is hope. Things can and do get better. You learn how to manage symptoms, minimize setbacks and adapt to living life horizontally!
https://www.disabledginger.com/p/its-just-anxiety-or-perhaps-theyve
CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #gaslighting #misdiagnosis #dysautonomiaawarenessmonth
“Don’t worry sweetie - they’re not as ugly as you think. I promise no one is looking at them THAT much.”
Doctors - this is NOT a diagnosis. How did I end up here?
I’ve got a strange problem with my ankles - they appear to be turning copper. It’s likely some kind of iron or blood staining - but that’s highly unusual in someone my age and could indicate a bigger problem.
I saw FOUR doctors - all of whom were concerned - none of whom could make a diagnosis.
So I waited 18 months for “the guy”. The top specialist who I was promised WOULD have the answers and be able to help.
Finally saw “the guy” and what did he tell me? That they’re not “that ugly”.
Rage. Blinding rage. Doctors - please stop doing this! It makes your patient feel awful, gives us the icks and is woefully unhelpful. Why?
- I never thought they WERE ugly
- I’m incredibly sick and don’t give a whit if people are looking at me or not. When you can barely stand up or feed yourself - vanity goes out the window pretty quickly
- Don’t call me sweetie. I’m a grown ass woman who’s older than you. Address me by my name
- Don’t assume that the only reason I could care about a health problem is “looks”
- Four other doctors were concerned about this as it could indicate a heart and/or vascular problem. “Not ugly” is NOT a diagnosis.
Needless to say I walked out with zero answers (unless you count knowing that this one random man doesn’t think my ankles are ugly as an answer).
I have to go BACK on another wait list which will likely be even longer because you’re penalized for not deigning to accept misogynistic bullshit as treatment.
Me and my “not ugly” ankles will be over here seething with rage and frustration - working on an article about dismissiveness and misogyny in medicine and how much it harms the patient.
#misogyny #misogynyinmedicine #medicine #healthcare #misdiagnosis #CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare
What’s happened to curiosity in medicine? A story of two appointments.
If you’re a healthcare worker and your patient says they’re in pain, a medication isn’t working or something doesn’t seem right … listen to them. If what they’re saying seems “odd”… don’t dismiss them out of hand. Get curious. Ask questions. Listen to the patient.
The human body is incredible and unique. We all respond in different ways - and we learn more about the human condition every day. If something isn’t “adding up”… it could be a missed diagnosis.
Here’s one of my most frustrating examples:
I go to the doctor with a strange type of infection that is usually only seen in end stage AIDS patients.
Doctor: “Have you been tested for HIV?”
Me: “Yes - it was negative.”
Doctor: “huh. You sure? Let’s test you again.”
It comes back negative AGAIN
Me: “so what now?”
Doctor: “I don’t know. That’s really weird. Here’s the medication we would give you IF you had AIDS.”
That was IT. No follow up. Zero curiosity. No testing to determine WHY I had an infection only seen in AIDS patients when I did not have AIDS. Heck they wouldn’t even run an immune panel to take a closer look at my CD4 and CD8 count. It was just “sorry about your luck but this is not my problem.”
Contrast that with one of my BEST experiences with a VERY curious doctor:
I was there for suspected POTS which I was diagnosed with. In the process the cardiologist found an aneurysm and felt that given my age, lifestyle and persistently LOW blood pressure it was “odd” for me to have one.
She gave me a huge questionnaire of seemingly unrelated questions to fill out - about everything from dental issues to gynaecology and what I was like as a young child.
She reviewed the questionnaire with me and really took the time to LISTEN. We talked about previous illnesses, injuries, surgeries and how I felt in my body. I was treated like the expert - which had never happened before.
I left that appointment exhausted and stunned as it was the first time a doctor had worked so collaboratively with me. I was referred to genetics where I was finally given the diagnosis that put all the missing pieces together - EDS (Ehlers Danlos Syndrome).
The signs had been there for years - but no one ever slowed down and spoke to me long enough to realize it. No one was curious enough. No one asked me what it was like to be in MY body.
It seems so simple - yet it’s a skill many healthcare workers lack.
My ask of them tonight is to listen to your patient. Let them be partners in their care. Respect that while they may not have a medical degree - they are the experts in their own body and can help you if you let them.
Be curious. Always.
#curiousity #medicine #healthcare #misdiagnosis #gaslighting #believepatients #believewomen #chronicillness #zebra #EDS #ehlersdanlossyndrome #pots #mcas #DysautonomiaAwarenessMonth #Dysautonomia #ableism #disability #disabled #misogyny
For nine years I was told my endometriosis was IBS - woman describes pain of misdiagnosis | The Independent
https://www.independent.co.uk/news/health/endometriosis-diagnosis-symptoms-womens-health-pain-b2625965.html
#Endometriosis
#IBS
#Misdiagnosis
#Pain
#PelvicPain
#HeavyPeriods
#BetweenPeriodsBleeding
#Bloating
#PrivateHospital under fire for #misdiagnosis
"31-yr-old IT technician lost her job aft she was left partially #blinded .. went to a privately run #hospital in #PhahonYothin to seek #treatment.. A Dr told her she had tonsillitis & gave her an antihistamine injection b4 telling her to go home.. she spent 7 days in #ICU & wasn't getting better. The hospital in question then referred her to another, where a different doctor diagnosed her w advanced #StevensJohnson #Syndrome"
https://www.bangkokpost.com/thailand/general/2862317/hospital-under-fire-for-misdiagnosis
Why British women are the saddest in Europe | The Independent
https://www.independent.co.uk/life-style/women-mental-health-uk-europe-sadness-b2542377.html
#ToryBritain
#FemaleWellbeing
#Wellbeing
#HologicGlobalWomensHealthIndex
#Sadness
#Stress
#CostOfLivingCrisis
#WomensHealth
#WomensHealthcare
#ChronicallyIll
#IllHealth
#Misdiagnosis
#LackOfDiagnosis
#Endometriosis
#NHS
#TreatmentWaitingTimes
#WaitingLists
#IVF
#WorkingCulture
#WorkLifeBalance
#Childcare
When I was a teenager - my mom’s pancreatic cancer was misdiagnosed as “anxiety.” The experience shaped my view of the healthcare system & the damage that bias, gaslighting and psychologizing illnesses can cause.
Pancreatic cancer is among the most deadly cancers - and is almost always diagnosed too late. My mom had led a very healthy life with few medical setbacks until she suddenly presented with intense itching, bruising and some back pain.
She was literally black and blue from scratching and completely unable to stop because of its severity. So she went to the doctor.
The diagnosis? Anxiety.
I remember her coming home from the doctors and telling me they said she was just anxious because it was the start of a new school year (she was a teacher). I was livid on her behalf because I could see the severity of the bruises - this was clearly NOT anxiety.
This was before the internet and social media - so it was harder to research these things on your own or talk to other patients. Challenging doctors was fairly unheard of. So she continued on and we even put oven mitts on her hands at night to avoid damaging her skin.
A few weeks later she woke up jaundiced so we took her back to the doctor. He immediately ran labs and the results were so bad she was admitted to hospital for urgent testing.
They discovered a blockage in her bile duct which was causing the itching AND the jaundice. We could tell from the speed everyone was moving it was likely bad news - but tried to remain hopeful that perhaps it was something benign.
When the results came back that it was pancreatic cancer the whole family was shocked. Mom was only 47 with no major risk factors and in good health. How could she have terminal cancer?
She fought for 9 months before succumbing to cancer in 2001. During that time I learned - the hard way - how easily some doctors can dismiss patients with "anxiety". Especially women. I learned to be a fierce advocate for myself because of what happened to her.
It is troubling that something as serious as terminal pancreatic cancer was fluffed off because they saw a healthy, petite, slightly anxious middle aged woman. It never should have happened & caused a lot of trauma when the diagnosis was revealed. 1/2
#medicalgaslighting #gaslighting #misdiagnosis #trauma #disability #advocacy #cancer #believepatients #CovidIsNotOver #CovidIsAirborne #Ableism #PancreaticCancer
Nearly 1 in 4 hospital patients who died or were transferred to intensive care had experienced a diagnostic error.
Nearly 18% of misdiagnosed patients were harmed or died.
In all, an estimated 795,000 patients a year die or are permanently disabled because of #misdiagnosis, according to a study published in July in the BMJ Quality & Safety periodical.
Some patients are at higher risk than others.
#Women and racial and ethnic #minorities are 👉 20% to 30% more likely than white men to experience a misdiagnosis, said David Newman-Toker, a professor of neurology at Johns Hopkins School of Medicine and the lead author of the BMJ study. “That’s significant and inexcusable,” he said.
https://kffhealthnews.org/news/article/medical-misdiagnosis-women-minorities-health-care-bias/
Medical mistakes are more likely in women and minorities
Hundreds of thousands of U.S. patients are harmed or die each year because of #diagnosticerrors. #Women and #minorities are up to 30% more likely to be misdiagnosed than white men.
https://www.nbcnews.com/health/health-news/medical-mistakes-are-likely-women-minorities-rcna133726
The USA Is Great At Stunt Medicine, Crap At Caring: Living Proof
I’m the living proof that the USA is great at stunt medicine, but absolute and utter crap at caring.
#YourAutisticLife #AutisticWriters #USHealthcare #StuntMedicine #caring #JohnsHopkins #famotidine #ADABe #cancer #ER #misdiagnosis #PhysicalHealth #MentalHealth
Advice For People Dealing With Cancer, Or A Possible Diagnosis
How to go through this ordeal, without completely losing your mind.
@adelinej prompted me to write this one. It was written quickly. If you see spelling mistakes or other issues, please tell me.
May all sentient beings benefit from my own suffering!
#YourAutisticLife #ActuallyAutistic #AutisticWriters #cancer #chemo #SilverLinings #CancerDiagnosis #misdiagnosis #complaints #SecondOpinions #feelings #StemCellTransplant
Medical gaslighting and misdiagnosis are real problems. I've experienced both, often at the hands of ER doctors.
I've sometimes written articles about it, like the one I link to below. (Not my article, by the way.)
Or I produce skits about it, like this skit of doctors at the ER gaslighting their patients.
#MentalHealth #PhysicalHealth #gaslighting #MedicalGaslighting #misdiagnosis #doctors #medicine
Woman accused of faking symptoms of debilitating illness dies aged 33 | The Independent
https://www.independent.co.uk/news/health/ehlers-danlos-syndrome-stephanie-aston-death-b2405284.html
#EDS
#EhlersDanlosSyndromes
#Misdiagnosis
#MisdiagnosedAsMentalIllness
#NIH
#Endometriosis
#Misogyny