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#misdiagnosis — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #misdiagnosis, aggregated by home.social.

  1. Smartphone photos may be misleading doctors and putting patients at risk – new research

    New #research from our team suggests the answer is often the latter. #Smartphone #cameras and software routinely alter images in ways that can mislead #doctors, and in some cases, put #patients at risk of #misdiagnosis.

    theconversation.com/smartphone

    #medical #HealthCare #GPs #Remote #RemoteConsultations #diagnosis

  2. 6/

    “A little over half reported it [a psychosomatic or psychiatric misdiagnosis] had led to long-term distrust in doctors, and 72% continued to feel upset about the misdiagnosis today (P < .001).”

    #misdiagnosis #doctorpatient
    @lupus @eds @fibromyalgia @ibs @mecfs @longcovid @chronicillness @spoonies

  3. A quotation (not) from Groucho Marx

    Politics is the art of looking for trouble, finding it everywhere, diagnosing it incorrectly and applying the wrong remedies.

    Groucho Marx (1890-1977) American comedian [b. Julius Henry Marx]
    (Misattributed)

    Sourcing, notes: wist.info/marx-groucho/6810/

    #quote #quotes #quotation #qotd #correction #grouchomarx #fix #misdiagnosis #politics #problemsolving #remedy #trouble

  4. (1/?) Had a scary low blood sugar incident last night. I was up late, and realized that I was A: hungry so I ate some cheese crackers because that's what I had handy. But then I started feeling gassy and bloated, an Ozempic side effect. Went to the bathroom hoping to relieve things, but started to feel worse. MUCH worse. Nauseous and unwell. Suddenly paranoid I was finally coming down with covid or flu. (Spoiler: No)
    cont...
    #diabetes #healthScare #misdiagnosis

  5. It is not uncommon for patients to distrust #healthcare providers or diagnoses, but do patients' concerns track experts' concerns?

    Two blinded clinicians independently reviewed the charts of 467 primary care patients "identified as at-risk for diagnostic concerns" by a medical portal algorithm.

    "Missed opportunities in diagnosis (MODs)" were predicted by patients' distrust and sense of #misdiagnosis, sometimes even above and beyond other potentially confounding factors.

    doi.org/10.1007/s11606-024-090

    #medicine #statistics #assessment #psychology #health

  6. Here is Part Two in my Series on POTS and Dysautonomia! This post focuses on the LONG road to diagnosis - and the gaslighting and barriers patients face along the way. The accusations of anxiety, the minimization of symptoms and of course the dreaded 'it's all in your head'.

    I lost track of how many doctors worked me up - saw my very serious physical symptoms - and still said "What do you want ME to do about it?"

    The answer was obvious - I wanted them to do their job. I needed them to think outside the box. To believe me when I said I wasn't anxious. To recognize that 'anxiety' isn't postural in nature. To figure out what was wrong.

    It took years to get my diagnosis - and I hope my articles can help patients avoid some of the pitfalls and traps I fell in to. I want healthcare workers to read these posts and consider POTS the next time a patient comes in with unexplained symptoms like dizziness, tachycardia, fatigue and fainting.

    There is hope. Things can and do get better. You learn how to manage symptoms, minimize setbacks and adapt to living life horizontally!

    disabledginger.com/p/its-just-

    CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare #gaslighting #misdiagnosis #dysautonomiaawarenessmonth

  7. “Don’t worry sweetie - they’re not as ugly as you think. I promise no one is looking at them THAT much.”

    Doctors - this is NOT a diagnosis. How did I end up here?

    I’ve got a strange problem with my ankles - they appear to be turning copper. It’s likely some kind of iron or blood staining - but that’s highly unusual in someone my age and could indicate a bigger problem.

    I saw FOUR doctors - all of whom were concerned - none of whom could make a diagnosis.

    So I waited 18 months for “the guy”. The top specialist who I was promised WOULD have the answers and be able to help.

    Finally saw “the guy” and what did he tell me? That they’re not “that ugly”.

    Rage. Blinding rage. Doctors - please stop doing this! It makes your patient feel awful, gives us the icks and is woefully unhelpful. Why?

    - I never thought they WERE ugly

    - I’m incredibly sick and don’t give a whit if people are looking at me or not. When you can barely stand up or feed yourself - vanity goes out the window pretty quickly

    - Don’t call me sweetie. I’m a grown ass woman who’s older than you. Address me by my name

    - Don’t assume that the only reason I could care about a health problem is “looks”

    - Four other doctors were concerned about this as it could indicate a heart and/or vascular problem. “Not ugly” is NOT a diagnosis.

    Needless to say I walked out with zero answers (unless you count knowing that this one random man doesn’t think my ankles are ugly as an answer).

    I have to go BACK on another wait list which will likely be even longer because you’re penalized for not deigning to accept misogynistic bullshit as treatment.

    Me and my “not ugly” ankles will be over here seething with rage and frustration - working on an article about dismissiveness and misogyny in medicine and how much it harms the patient.

    #misogyny #misogynyinmedicine #medicine #healthcare #misdiagnosis #CovidIsAirborne #CovidCautious #CovidIsNotOver #CleanAir #WearaMask #Disability #LongCovid #Ableism #Denial #CleanAir #Pandemic #PublicHealth #InfectionControl #Eugenics #SafeHealthcare #N95 #Respirators #MasksWork #MaskUp #Spoonie #Discrimination #Dysautonomia #mecfs #pots #mcas #communitycare #wearamask #chronicillness #keepmasksinhealthcare

  8. What’s happened to curiosity in medicine? A story of two appointments.

    If you’re a healthcare worker and your patient says they’re in pain, a medication isn’t working or something doesn’t seem right … listen to them. If what they’re saying seems “odd”… don’t dismiss them out of hand. Get curious. Ask questions. Listen to the patient.

    The human body is incredible and unique. We all respond in different ways - and we learn more about the human condition every day. If something isn’t “adding up”… it could be a missed diagnosis.

    Here’s one of my most frustrating examples:

    I go to the doctor with a strange type of infection that is usually only seen in end stage AIDS patients.

    Doctor: “Have you been tested for HIV?”

    Me: “Yes - it was negative.”

    Doctor: “huh. You sure? Let’s test you again.”

    It comes back negative AGAIN

    Me: “so what now?”

    Doctor: “I don’t know. That’s really weird. Here’s the medication we would give you IF you had AIDS.”

    That was IT. No follow up. Zero curiosity. No testing to determine WHY I had an infection only seen in AIDS patients when I did not have AIDS. Heck they wouldn’t even run an immune panel to take a closer look at my CD4 and CD8 count. It was just “sorry about your luck but this is not my problem.”

    Contrast that with one of my BEST experiences with a VERY curious doctor:

    I was there for suspected POTS which I was diagnosed with. In the process the cardiologist found an aneurysm and felt that given my age, lifestyle and persistently LOW blood pressure it was “odd” for me to have one.

    She gave me a huge questionnaire of seemingly unrelated questions to fill out - about everything from dental issues to gynaecology and what I was like as a young child.

    She reviewed the questionnaire with me and really took the time to LISTEN. We talked about previous illnesses, injuries, surgeries and how I felt in my body. I was treated like the expert - which had never happened before.

    I left that appointment exhausted and stunned as it was the first time a doctor had worked so collaboratively with me. I was referred to genetics where I was finally given the diagnosis that put all the missing pieces together - EDS (Ehlers Danlos Syndrome).

    The signs had been there for years - but no one ever slowed down and spoke to me long enough to realize it. No one was curious enough. No one asked me what it was like to be in MY body.

    It seems so simple - yet it’s a skill many healthcare workers lack.

    My ask of them tonight is to listen to your patient. Let them be partners in their care. Respect that while they may not have a medical degree - they are the experts in their own body and can help you if you let them.

    Be curious. Always.

    #curiousity #medicine #healthcare #misdiagnosis #gaslighting #believepatients #believewomen #chronicillness #zebra #EDS #ehlersdanlossyndrome #pots #mcas #DysautonomiaAwarenessMonth #Dysautonomia #ableism #disability #disabled #misogyny

  9. #PrivateHospital under fire for #misdiagnosis
    "31-yr-old IT technician lost her job aft she was left partially #blinded .. went to a privately run #hospital in #PhahonYothin to seek #treatment.. A Dr told her she had tonsillitis & gave her an antihistamine injection b4 telling her to go home.. she spent 7 days in #ICU & wasn't getting better. The hospital in question then referred her to another, where a different doctor diagnosed her w advanced #StevensJohnson #Syndrome"
    bangkokpost.com/thailand/gener

  10. #PrivateHospital under fire for #misdiagnosis
    "31-yr-old IT technician lost her job aft she was left partially #blinded .. went to a privately run #hospital in #PhahonYothin to seek #treatment.. A Dr told her she had tonsillitis & gave her an antihistamine injection b4 telling her to go home.. she spent 7 days in #ICU & wasn't getting better. The hospital in question then referred her to another, where a different doctor diagnosed her w advanced #StevensJohnson #Syndrome"
    bangkokpost.com/thailand/gener

  11. #PrivateHospital under fire for #misdiagnosis
    "31-yr-old IT technician lost her job aft she was left partially #blinded .. went to a privately run #hospital in #PhahonYothin to seek #treatment.. A Dr told her she had tonsillitis & gave her an antihistamine injection b4 telling her to go home.. she spent 7 days in #ICU & wasn't getting better. The hospital in question then referred her to another, where a different doctor diagnosed her w advanced #StevensJohnson #Syndrome"
    bangkokpost.com/thailand/gener

  12. #PrivateHospital under fire for #misdiagnosis
    "31-yr-old IT technician lost her job aft she was left partially #blinded .. went to a privately run #hospital in #PhahonYothin to seek #treatment.. A Dr told her she had tonsillitis & gave her an antihistamine injection b4 telling her to go home.. she spent 7 days in #ICU & wasn't getting better. The hospital in question then referred her to another, where a different doctor diagnosed her w advanced #StevensJohnson #Syndrome"
    bangkokpost.com/thailand/gener

  13. When I was a teenager - my mom’s pancreatic cancer was misdiagnosed as “anxiety.” The experience shaped my view of the healthcare system & the damage that bias, gaslighting and psychologizing illnesses can cause.

    Pancreatic cancer is among the most deadly cancers - and is almost always diagnosed too late. My mom had led a very healthy life with few medical setbacks until she suddenly presented with intense itching, bruising and some back pain.

    She was literally black and blue from scratching and completely unable to stop because of its severity. So she went to the doctor.

    The diagnosis? Anxiety.

    I remember her coming home from the doctors and telling me they said she was just anxious because it was the start of a new school year (she was a teacher). I was livid on her behalf because I could see the severity of the bruises - this was clearly NOT anxiety.

    This was before the internet and social media - so it was harder to research these things on your own or talk to other patients. Challenging doctors was fairly unheard of. So she continued on and we even put oven mitts on her hands at night to avoid damaging her skin.

    A few weeks later she woke up jaundiced so we took her back to the doctor. He immediately ran labs and the results were so bad she was admitted to hospital for urgent testing.

    They discovered a blockage in her bile duct which was causing the itching AND the jaundice. We could tell from the speed everyone was moving it was likely bad news - but tried to remain hopeful that perhaps it was something benign.

    When the results came back that it was pancreatic cancer the whole family was shocked. Mom was only 47 with no major risk factors and in good health. How could she have terminal cancer?

    She fought for 9 months before succumbing to cancer in 2001. During that time I learned - the hard way - how easily some doctors can dismiss patients with "anxiety". Especially women. I learned to be a fierce advocate for myself because of what happened to her.

    It is troubling that something as serious as terminal pancreatic cancer was fluffed off because they saw a healthy, petite, slightly anxious middle aged woman. It never should have happened & caused a lot of trauma when the diagnosis was revealed. 1/2

    #medicalgaslighting #gaslighting #misdiagnosis #trauma #disability #advocacy #cancer #believepatients #CovidIsNotOver #CovidIsAirborne #Ableism #PancreaticCancer

  14. Nearly 1 in 4 hospital patients who died or were transferred to intensive care had experienced a diagnostic error.

    Nearly 18% of misdiagnosed patients were harmed or died.

    In all, an estimated 795,000 patients a year die or are permanently disabled because of #misdiagnosis, according to a study published in July in the BMJ Quality & Safety periodical.
    Some patients are at higher risk than others.
    #Women and racial and ethnic #minorities are 👉 20% to 30% more likely than white men to experience a misdiagnosis, said David Newman-Toker, a professor of neurology at Johns Hopkins School of Medicine and the lead author of the BMJ study. “That’s significant and inexcusable,” he said.
    kffhealthnews.org/news/article

  15. Medical mistakes are more likely in women and minorities

    Hundreds of thousands of U.S. patients are harmed or die each year because of #diagnosticerrors. #Women and #minorities are up to 30% more likely to be misdiagnosed than white men.

    #misdiagnosis #medicalmistake

    nbcnews.com/health/health-news

  16. Advice For People Dealing With Cancer, Or A Possible Diagnosis

    How to go through this ordeal, without completely losing your mind.

    @adelinej prompted me to write this one. It was written quickly. If you see spelling mistakes or other issues, please tell me.

    May all sentient beings benefit from my own suffering!

    #YourAutisticLife #ActuallyAutistic #AutisticWriters #cancer #chemo #SilverLinings #CancerDiagnosis #misdiagnosis #complaints #SecondOpinions #feelings #StemCellTransplant

    open.substack.com/pub/yourauti

  17. Medical gaslighting and misdiagnosis are real problems. I've experienced both, often at the hands of ER doctors.

    I've sometimes written articles about it, like the one I link to below. (Not my article, by the way.)

    Or I produce skits about it, like this skit of doctors at the ER gaslighting their patients.

    #MentalHealth #PhysicalHealth #gaslighting #MedicalGaslighting #misdiagnosis #doctors #medicine

    youtu.be/B9xgj7d2nUo

    theconversation.com/medical-ga

  18. #Misdiagnosis kills, disables an alarming number of Americans each year

    Johns Hopkins report: 795,000 Americans a year die or are permanently disabled after being misdiagnosed. "A public #health emergency"
    usatoday.com/story/news/health