#patientrights — Public Fediverse posts

FYI: Italy's Garante fines IQVIA €7m over data on 1m patients it called anonymous: Patient codes that followed people for years, with records back to 2001, sank IQVIA's anonymity claim. Does the SRB ruling still shield pseudonymised data? https://ppc.land/italys-garante-fines-iqvia-eur7m-over-data-on-1m-patients-it-called-anonymous/ #DataPrivacy #GDPR #HealthcareData #PatientRights #DataProtection

ICYMI: Italy's Garante fines IQVIA €7m over data on 1m patients it called anonymous: Patient codes that followed people for years, with records back to 2001, sank IQVIA's anonymity claim. Does the SRB ruling still shield pseudonymised data? https://ppc.land/italys-garante-fines-iqvia-eur7m-over-data-on-1m-patients-it-called-anonymous/ #DataPrivacy #GDPR #PatientRights #DataProtection #IQVIA

Italy's Garante fines IQVIA €7m over data on 1m patients it called anonymous: Patient codes that followed people for years, with records back to 2001, sank IQVIA's anonymity claim. Does the SRB ruling still shield pseudonymised data? https://ppc.land/italys-garante-fines-iqvia-eur7m-over-data-on-1m-patients-it-called-anonymous/ #DataPrivacy #Healthcare #GDPR #PatientRights #Anonymity

🛡️ New California Laws Protect Sensitive Health Records
The measures give California stronger tools to respond to certain out-of-state subpoenas and inquiries involving reproductive or gender-affirming healthcare.
www.oag.ca.gov/news/press-r...

#HealthPrivacy #PatientRights

FYI: Italy fines IQVIA €7M over health data of 1M patients it called anonymous: Records from 800 GPs kept one fixed code per person that regulators say enabled re-identification. IQVIA has 120 days to rebuild the flow or let doctors do it. https://ppc.land/italy-fines-iqvia-eur7m-over-health-data-of-1m-patients-it-called-anonymous/ #HealthData #Privacy #DataProtection #HealthCare #PatientRights

ICYMI: Italy fines IQVIA €7M over health data of 1M patients it called anonymous: Records from 800 GPs kept one fixed code per person that regulators say enabled re-identification. IQVIA has 120 days to rebuild the flow or let doctors do it. https://ppc.land/italy-fines-iqvia-eur7m-over-health-data-of-1m-patients-it-called-anonymous/ #HealthData #DataPrivacy #PatientRights #HealthTech #MedicalRecords

🛡️ Know Your Reproductive Health Rights
Illinois’ new statewide hub gives patients clearer information about reproductive healthcare, legal protections, providers, and financial assistance.
www.publicnow.com/view/98B5E2C...

#PatientRights #ReproductiveHealth

Italy fines IQVIA €7M over health data of 1M patients it called anonymous: Records from 800 GPs kept one fixed code per person that regulators say enabled re-identification. IQVIA has 120 days to rebuild the flow or let doctors do it. https://ppc.land/italy-fines-iqvia-eur7m-over-health-data-of-1m-patients-it-called-anonymous/ #HealthData #DataPrivacy #PatientRights #DigitalHealth #HealthcareRegulations

A few extra notes to share from the hospital today - not all directly about my Mom's health. In point form because that works best for me, when my brain is overloaded daily.

- I reprimanded 1 doctor & 1 student doctor today, for being part of the hospital team that was responsible for dangerous early discharge, on September 8th. I straight up told them - they almost killed Mom with that bullying/forced discharge, that they're responsible for her having her first stroke & I'm documenting everything & telling thousands of people online how they practiced eugenics fail care, using highly vulnerable patients as pawns. I said none of that is OK at all. They kept apologizing. Again, had to say stop apologizing & start to do better, every day!

- I had to tell one HCA that her saying elderly people can eat anything they want is dangerous, untrue & can kill a lot of elderly with conditions that need specialized diets. I reminded that ignorant LPN that proper, patient specific nutrition is key to successful recoveries & anyone who doesn't know that, doesn't really belong in health care work. She wasn't happy about me being direct like that. I don't care - she deserves to be told these things.

- A husband of one of Mom's roommates was glad that I wasn't budging & being very direct with staff. After staff left, he told me - I heard everything that you talked about with both of those staff. You are a strong advocate. I'm going to start documenting with photos & audio recordings too. I learned how to protect & advocate for my wife more, listening to how you handled those people. I noticed they were very uncomfortable when you looked at them in the face & said: I will not allow hospital staff to kill another of my parents. Do better, starting now.

- I had a nice 15 minutes reunion with the lovely, always masked Black family with the autistic young son. He wore my floral jacket with my purple hat for his photos at the hospital today. That family is wonderful & I love bumping into them at RJH ❤️

#Medical #Health #ProtectPatients #Hospitals #HealthCareWorkers #HCWs #HealthCare #StopEugenics #AntiAbleism #LeadByExample #PatientRights #SpeakUp #UseYourVoice #DoBetter

The UnitedHealth Story: Private Insurance, Public Money and Single Payer

Public research helps create medicines while private firms develop, market and price them. UnitedHealth’s growth adds urgency to the healthcare-financing debate.

Your doc ignoring your symptoms? Document everything, seek second opinions, & talk to a legal expert if needed. Your health can't wait. Have experience in being ignored by healthcare? Let’s connect below. #PatientRights #MedicalMalpractice

75% of hospitals employ chaplains. 29% of Americans have no religious affiliation. That math hasn't been reconciled yet — and patients in crisis are living in the gap.

https://onlys.ky/who-comforts-the-secular/?utm_source=mastodon&utm_medium=social&utm_campaign=evergreen

#Secularism #Healthcare #HumanistChaplain #PatientRights #Medicine

ICYMI: Explaining HIPAA: HIPAA: the 1996 US law governing protected health information, which decides what health signals may legally reach an advertising platform, and on what terms. https://ppc.land/hipaa/ #HIPAA #HealthPrivacy #DataProtection #HealthcareCompliance #PatientRights

Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group

KUALA LUMPUR, Sept 8 — Patients who believe they were harmed by medical treatment need an independent place…
#EuropeSays #Britain #Europe #EU #UK #medicalharm #patientrights #patientsafety #UnitedKingdom
https://www.europesays.com/britain/119697/

https://www.europesays.com/britain/119697/ Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group #MedicalHarm #PatientRights #PatientSafety #UK #UnitedKingdom

Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group https://www.byteseu.com/2346370/ #GreatBritain #MedicalHarm #PatientRights #PatientSafety #UnitedKingdom

Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group

KUALA LUMPUR, Sept 8 — Patients who believe they were harmed by medical treatment need an independent place…
#UnitedKingdom #UK #Europe #EU #GreatBritain #medicalharm #Patientrights #patientsafety
https://www.europesays.com/3239209/

https://www.europesays.com/uk/1192486/ Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group #Britain #England #GreatBritain #MedicalHarm #NorthernIreland #PatientRights #PatientSafety #Scotland #UK #UnitedKingdom #Wales

https://www.europesays.com/3239209/ Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group #GreatBritain #MedicalHarm #PatientRights #PatientSafety #UnitedKingdom

Greg Abbott Got Millions—Then Helped Shut the Courthouse Door on Injured Texans

Greg Abbott secured lifelong payments after a catastrophic injury, then backed caps, immunities and courtroom barriers that restrict compensation for injured Texans.

America Already Pays for Medicare for All—Wall Street Keeps the Difference

America pays more for worse healthcare because corporate middlemen extract wealth from illness. Medicare for All offers universal care at a lower total cost.

https://www.europesays.com/uk/1133716/ Chandigarh notifies Mental Healthcare Rules; registration mandatory ##MentalHealthAct ##MentalHealthAuthority ##MentalHealthEstablishments ##MentalHealthRules ##PatientRights ##TransparentHealthcare #Chandigarh #Health #HealthcareRegulation #MentalHealth #MentalHealthCare #PatientCentricCare #UK #UnitedKingdom

NHS apologises and admits Palantir have access to identifiable patient data

https://www.publictechnology.net/2026/08/03/health-and-social-care/nhs-apologises-and-admits-palantir-engineers-have-access-to-identifiable-patient-data/

Comments: https://news.ycombinator.com/item?id=49165775

#HackerNews #NHS #Palantir #Data #Privacy #Healthcare #PatientRights #Technology #Ethics

Restrictions on Telemedicine Access Highlight Patient Struggles

📰 Original title: The doctor who helped save her is in another state, and telemedicine follow-up is prohibited

🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅

View full AI summary https://en.killbait.com/restrictions-on-telemedicine-access-highlight-patient-struggles.html?utm_source=mastodon_world&utm_medium=social&utm_campaign=killbait.mastodon_world

#health #telemedicine #healthcareaccess #patientrights

Restrictions on Telemedicine Access Highlight Patient Struggles

📰 Original title: The doctor who helped save her is in another state, and telemedicine follow-up is prohibited

🤖 IA: It's not clickbait ✅
👥 Users: It's not clickbait ✅

View full AI summary https://en.killbait.com/restrictions-on-telemedicine-access-highlight-patient-struggles.html?utm_source=mastodon_social&utm_medium=social&utm_campaign=killbait.mastodon_social

#health #telemedicine #healthcareaccess #patientrights

Medicine can sequence your DNA. It still decides whether your pain is real based on whether you seem upset enough — but not too upset — about it.

https://onlys.ky/the-morality-play-of-chronic-pain/?utm_source=mastodon&utm_medium=social&utm_campaign=fresh

#ChronicPain #Disability #Healthcare #PatientRights #MedicalBias

Why does a dental cleaning require filling out forms about heart issues and diabetes? 🙄 Feels more like an intrusive survey than healthcare. Apparently, consent isn't optional anymore. Grr. 😿 At least the treatment was not bad 🦷

#DentalCare #PatientRights #Privacy

75% of hospitals employ chaplains. 29% of Americans have no religious affiliation. That math hasn't been reconciled yet — and patients in crisis are living in the gap.

https://onlys.ky/who-comforts-the-secular/?utm_source=mastodon&utm_medium=social&utm_campaign=fresh

#Secularism #Healthcare #HumanistChaplain #PatientRights #Medicine

Breast Cancer Scandal: Victims Demand Inquiry Amidst Medical Information Gaps

Victims of breast cancer scandals in London are demanding an inquiry due to confusing medical information and unclear risk factors. Find out what changes.

#BreastCancerInquiry, #LondonHealth, #MedicalInfo, #CancerRisk, #PatientRights

https://newsletter.tf/breast-cancer-inquiry-london-info-gaps/

Victims in London are demanding an inquiry into breast cancer information gaps. This follows confusion about personal risk and health decisions.

#BreastCancerInquiry, #LondonHealth, #MedicalInfo, #CancerRisk, #PatientRights
https://newsletter.tf/breast-cancer-inquiry-london-info-gaps/

A device in the wall. Always listening. No camera. No button. No guaranteed consent. Before your family says yes, read this.
nathaliefrias.net
#ElderCare #NursingHomeReform #PatientRights #HealthData #SilentVoices

https://nathaliefrias.net/2026/05/29/the-ear-in-the-room-who-really-benefits-when-ai-listens-to-your-loved-one/?utm_source=mastodon&utm_medium=jetpack_social

REPORT: STRICTER RULES EMERGE FOR LATE-TERM ABORTIONS AS HOSPITALS RECEIVE NEW GUIDANCE

Hospitals now need special permission for abortions after 24 weeks. This follows new rules for later pregnancy care. Find out how it affects patients.

#AbortionLaws, #HealthcareAccess, #PatientRights, #LateTermAbortion, #MedicalGuidance

https://newsletter.tf/hospitals-need-permission-abortions-after-24-weeks/

Hospitals must now get explicit permission for abortions after 24 weeks of pregnancy, a change from previous rules. This adds a new step for patients needing late-term care.

#AbortionLaws, #HealthcareAccess, #PatientRights, #LateTermAbortion, #MedicalGuidance
https://newsletter.tf/hospitals-need-permission-abortions-after-24-weeks/

Learn
𝗛𝗼𝘄 𝗧𝗵𝗲 𝗠𝗲𝗻𝘁𝗮𝗹 𝗛𝗲𝗮𝗹𝘁𝗵 𝗔𝗰𝘁 𝟮𝟬𝟮𝟱 𝗖𝗵𝗮𝗻𝗴𝗲𝘀 𝗬𝗼𝘂𝗿 𝗥𝗶𝗴𝗵𝘁𝘀 (𝗔𝗻𝗱 𝗪𝗵𝗮𝘁 𝗬𝗼𝘂 𝗠𝘂𝘀𝘁 𝗞𝗻𝗼𝘄)
in just 7 minutes

https://youtu.be/R11pZmGfFm4

#MentalHealthAct2025 #MentalHealthLaw #PatientRights #UKLaw #AutismAdvocacy #HumanRightsAct #HealthcareLaw #MentalHealthUK #NominatedPerson #LegalMasterclass

https://www.europesays.com/africa/132887/ Doctors demand apology in Chimamanda son’s death case #ChimamandaNgoziAdichie #DoctorSuspension #DoctorsSuspended #Doctors'Suspension #EuracareHospital #HealthcareNigeria #MedicalAndDentalCouncilOfNigeria #MedicalEthics #MedicalMalpractice #MedicalNegligence #Nigeria #NigeriaHealthcare #NigerianDoctors #NigerianHealthcare #NkanuAdichieEsege #PatientRights #PatientSafety #ProfessionalMisconduct

https://www.europesays.com/uk/810025/ A deadly risk for patients #FraudulentSurgeries #Health #Healthcare #HealthcareFraud #HealthcareInNigeria #HospitalMalpractice #HospitalNegligence #HospitalSafety #LaboratoryTests #MedicalEthics #MedicalMalpractice #MedicalNegligence #misdiagnosis #NigerianHealthcare #PatientRights #PatientSafety #PublicHealth #UK #UnitedKingdom #UnnecessarySurgery

Family Accuses Doctors of Pressuring Son Towards Assisted Suicide in Canada

A Canadian family claims doctors pressured their 26-year-old son, who was not terminally ill, to use the Medical Assistance in Dying (MAID) program. This raises questions about safeguards.

#AssistedDying, #CanadaMAID, #MedicalEthics, #PatientRights, #EndofLifeCare

https://newsletter.tf/family-alleges-doctors-pushed-son-assisted-death-canada/

A family in Canada is concerned about their son's death through the Medical Assistance in Dying program. They say doctors may have pushed him towards this choice, even though he was not terminally ill. This brings up important questions about how the program is used and if enough care is taken to protect people.

#AssistedDying, #CanadaMAID, #MedicalEthics, #PatientRights, #EndofLifeCare

https://newsletter.tf/family-alleges-doctors-pushed-son-assisted-death-canada/

My opinion is informed by my experience as a patient. I recently tried to get my own records: months of requests, fees to multiple providers, and eventually driving to a hospital to pay for paper records in person.

In 2026, this is a policy failure. Interoperability that excludes the patient isn’t interoperability. 2/4

#CDNhealth #PatientRights

https://www.europesays.com/uk/704609/ Husband Blames Medical Negligence for Wife’s Death in Kano #AbubakarBinji #AishatuUmar #GrievingHusband #Health #Healthcare #HealthcareInNigeria #HealthcareNigeria #HospitalMalpractice #HospitalNegligence #Kano #KanoHospital #LegalAction #Malpractice #MedicalMalpractice #MedicalNegligence #NigerianHealthSector #NigerianHealthcare #PatientRights #PatientSafety #PatientStory #SurgicalError #UK #UnitedKingdom #WrongfulDeath

Nigeria’s Medical Negligence Crisis: A Call for Action

Patients across the country are flocking to public and private hospitals in search of healing, only for some…
#NewsBeep #News #Healthcare #CA #Canada #ChimamandaAdichie #Health #healthregulation #healthcareinNigeria #hospitalnegligence #medicalerrors #medicalmalpractice #Nigeriandoctors #PatientRights #patientsafety #systemicfailures
https://www.newsbeep.com/ca/416613/

This is how propagandist sentences look: "I recently read ’s newsletter. If I get sick, I’m moving to Malaysia, about the nightmare of navigating the US healthcare system." (-E.T. 2025s).

Maybe they haven't read my article yet, which explains how healthcare institutions here endlessly refuse their responsibilities.

https://kalvin.my/the-silent-torture-how-the-system-watched-me-suffer-from-akathisia-for-two-years-and-why-an-ai-had-to-assess-me/

#Healthcare #Malaysia #MedicalNegligence #Akathisia #Propaganda #PublicHealth #MentalHealth #PatientRights #Gaslighting #SystemicFailure

For two years, the system misdiagnosed my Akathisia as "panic." The truth? A chatbot identified the drug overdose, forcing me to become my own advocate.

https://kalvin.my/the-silent-torture-how-the-system-watched-me-suffer-from-akathisia-for-two-years-and-why-an-ai-had-to-assess-me/

#Akathisia #MentalHealth #MedicalGaslighting #Psychiatry #SystemicFailure #HumaneTech #AIinHealthcare #Advocacy #Neurodiversity #Olanzapine #SideEffects #PatientRights #Malaysia #HealthEquity #Truth #SilentTorture #Diagnosis #HealthcareSystem

One thing I’ve never quite understood is the reluctance of certain doctors to provide medical imaging to patients in a digital format.

As someone with interests in photography, programming, data, and my own health, I find the RAW-like DICOM image file format fascinating. So, even if it comes on a CD-R and costs 2500 JPY, I always try to get my own medial imagery whenever possible. (These are also extremely helpful to have in advance if an issue recurs and you need to show the progression to a new clinic.)

I’ve had good luck getting endoscopy, X-ray, and MRI data over the years, but the doctor at the colonoscopy clinic today was a hard no. They’ll only provide the photos they took of the inside of my own body to another doctor, not to me, myself, the subject in question.

(They did provide a printout of a few key moments for my reference. Why this is available when the actual image data is not remains a mystery to me.)

#opendata #DICOM #digitalrights #patientrights #medicalimaging #japan

Groundbreaking survey exposes widespread harm from electroconvulsive therapy: 84% report memory loss, 60% claim inadequate informed consent. International health bodies call for urgent reform. #MentalHealth #PatientRights

This comes right on the heels of #BCgovernment trying to shutdown / stop funding the only #LongCovid clinic for patients in #VictoriaBC - which serves patients on the island & surrounding Gulf Islands.
This #BCNDP government is failing patients on multiple fronts.

#BCHealth #BCMedical #PublicHealth #BCNewDeathParty #HealthcareCrisis #FireBonnieHenry #FailureToProtect #Healthcare #MedicalCare #BCpoli #PatientRights #CDNpoli #YYJ #PeopleWithDisabilities #Eugenics #Ableism #HumanRights

**They don't mention that many kids who got #covid (then #LongCovid) ended up at this clinic! Expect more #failures from #BCPublicHealth when they have #eugenist #BonnieHenry calling the #PublicHealthSafety shots. I'm not surprised with this news at all.**

#Pediatric unit closing, #physicians say they are overwhelmed by demand.

A memo from the #pediatricians to their non-ER physician colleagues said that the Urgent Pediatric Assessment Clinic will close on Sept. 1.

The memo advises that patients requiring urgent pediatric consultation — within 24 hours — should be sent to Victoria General’s emergency department, where they can be assessed by an ER doctor with a subsequent on-call pediatric referral as needed.

For patients needing semi-urgent pediatric consultation — within four weeks — the pediatrician on call at Victoria General can assist with the referral and triaging.

https://www.timescolonist.com/local-news/pediatric-unit-closing-physicians-say-they-are-overwhelmed-by-demand-11104220

#BCpoli #ChildrensHealth #CovidIsNotOver #BCNDP #BCNewDeathParty #CDNpoli #FailureToProtect #ChildrensRights #PatientRights #Medical #Health #FireBonnieHenry #VictoriaGeneralHospital #WearAMask #MaskUpSaveLives

@kim_harding There is an urgent need to recognise Patient Data Theft. Creating billionaire oligarchs from the automated control of information is driving us towards something far worse than medieval serfdom. Why create billionaire wage slaves, or the hopelessness of being a recipient on the trickle down benefits from the billionaires tax theft? #PatientRights #NHS #PatientDataTheft #PDT

I want to remind everyone that you have every right to speak up & stand up against any #medical staff who is violating #HippocraticOath. It is our duty to speak up & stand up against any #eugenics enabling BS. Don't fucking keep complaining if you're unwilling to push back against eugenics enablers.

PUSH BACK. SPEAK OUT. WE NEED MORE #COURAGE & LESS #COWARDICE!

#PatientRights #PeopleWithDisabilities #BCpoli #FireBonnieHenry #BCNDP #BCNewDeathParty

I have sent this email to the medical clinic & CCed news media too. I am direct as fuck.

#Covid #MasksArmy #MasksAreCommunityCare #MaskUpSaveLives #CovidIsNotOver #CovidSafety #DemandBetter #FireBonnieHenry #BCpoli #PeopleWithDisabilities #DisabledLivesMatter #BCHealth #PublicHealth #BCMedical #PatientRights #Eugenics #AgoraHealth

I blast highway to hell, almost every time I have to go to hospital for work or personal related reasons. It's hellish for #ZeroCovid disabled folks like me because our hospitals aren't really covid safe & they haven't been safe for a few years now. It is where Dad & big Auntie were infected. Mask policy returned to hospitals recently but almost all staff just wear the flimsy surgical blue masks. I wear my own N95s & use a nasal spray for additional protection.
I'll be playing highway to hell again at 10am because I have to go to VGH for a client meeting.

#BCCovid #HealthCareWorkers #BCpoli #CovidIsNotOver #WorkplaceSafety #UnsafeHospitals #FireBonnieHenry #BCMedical #BCHealth #StopEugenics #Covid #PatientRights

European Patients’ Forum developing new patient involvement barometer to improve healthcare  https://www.euractiv.com/section/health-consumers/news/european-patients-forum-developing-new-patient-involvement-barometer-to-improve-healthcare/?utm_source=dlvr.it&utm_medium=mastodon #accesstohealthcare #EUPharmaPackage #PatientRights

The revelations about the government’s numbers were also frustrating for Green Party Leader Sonia Furstenau.

“This government — and in particular when it comes to anything to do with health care — loves rolling out a whole bunch of numbers that they think are going to somehow convince people that what they're experiencing in their communities isn't real,” she told the IJF.

But she said she was exhausted by the other parties’ deflection on the issue, and by their shared push for involuntary care. She described secured treatment facilities as the “the most expensive end of the continuum of care” for substance use disorders, and said they are not well supported by the evidence.

“We are starving for access to preventive and proactive mental health care services in this province, and we hear again and again from parents who say ‘I couldn't get help from my child when they needed it,’” Furstenau said.

“The response of both Eby and Rustad is to say, well, we'll wait until that person is in absolutely the worst state of crisis and then we'll force them into involuntary care. It makes no sense.”

https://theijf.org/bc-parties-trade-blame-after-addiction-treatment-bed-investigation

#BCpoli #ElectionsBC2024 #BCVotes2024 #BCElection2024 #ImVotingGreen #NeverVoteConservative #NeverVoteNeoliberal #EthicalVoters #BritishColumbia #CDNpoli #PublicHealth #AddictionsTreatment #MentalHealth #MedicalCare #HumanRights #HealthCare #PatientRights #BCGreenParty #BCgovernment #HarmReductionSavesLives #FundMentalHealthCare #FundTransitionalHousing #FundCommunityCareVillages

How does one (who is still needing multiple blood tests a day to ensure they don’t end up back in the ICU) refuse the hospital’s decision to discharge them to a nursing home? #medical #Hospital #PatientRights #advice

Patient organizations urge the government not to approve the provision that would restrict online medicine reservations. They believe it would be a step back for patients. Currently, 30% of pharmacy purchases in Ukraine are made through online platforms, which offer discounts. These platforms do not sell medicines, only reserve them for pickup at the chosen pharmacy. #PatientRights #OnlineMedicineReservation