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#patientrights — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #patientrights, aggregated by home.social.

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  1. Italy's Garante fines IQVIA €7m over data on 1m patients it called anonymous: Patient codes that followed people for years, with records back to 2001, sank IQVIA's anonymity claim. Does the SRB ruling still shield pseudonymised data? ppc.land/italys-garante-fines- #DataPrivacy #Healthcare #GDPR #PatientRights #Anonymity

  2. FYI: Italy fines IQVIA €7M over health data of 1M patients it called anonymous: Records from 800 GPs kept one fixed code per person that regulators say enabled re-identification. IQVIA has 120 days to rebuild the flow or let doctors do it. ppc.land/italy-fines-iqvia-eur #HealthData #Privacy #DataProtection #HealthCare #PatientRights

  3. A few extra notes to share from the hospital today - not all directly about my Mom's health. In point form because that works best for me, when my brain is overloaded daily.

    - I reprimanded 1 doctor & 1 student doctor today, for being part of the hospital team that was responsible for dangerous early discharge, on September 8th. I straight up told them - they almost killed Mom with that bullying/forced discharge, that they're responsible for her having her first stroke & I'm documenting everything & telling thousands of people online how they practiced eugenics fail care, using highly vulnerable patients as pawns. I said none of that is OK at all. They kept apologizing. Again, had to say stop apologizing & start to do better, every day!

    - I had to tell one HCA that her saying elderly people can eat anything they want is dangerous, untrue & can kill a lot of elderly with conditions that need specialized diets. I reminded that ignorant LPN that proper, patient specific nutrition is key to successful recoveries & anyone who doesn't know that, doesn't really belong in health care work. She wasn't happy about me being direct like that. I don't care - she deserves to be told these things.

    - A husband of one of Mom's roommates was glad that I wasn't budging & being very direct with staff. After staff left, he told me - I heard everything that you talked about with both of those staff. You are a strong advocate. I'm going to start documenting with photos & audio recordings too. I learned how to protect & advocate for my wife more, listening to how you handled those people. I noticed they were very uncomfortable when you looked at them in the face & said: I will not allow hospital staff to kill another of my parents. Do better, starting now.

    - I had a nice 15 minutes reunion with the lovely, always masked Black family with the autistic young son. He wore my floral jacket with my purple hat for his photos at the hospital today. That family is wonderful & I love bumping into them at RJH ❤️

    #Medical #Health #ProtectPatients #Hospitals #HealthCareWorkers #HCWs #HealthCare #StopEugenics #AntiAbleism #LeadByExample #PatientRights #SpeakUp #UseYourVoice #DoBetter

  4. 75% of hospitals employ chaplains. 29% of Americans have no religious affiliation. That math hasn't been reconciled yet — and patients in crisis are living in the gap.

    onlys.ky/who-comforts-the-secu

    #Secularism #Healthcare #HumanistChaplain #PatientRights #Medicine

  5. Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group

    KUALA LUMPUR, Sept 8 — Patients who believe they were harmed by medical treatment need an independent place…
    #EuropeSays #Britain #Europe #EU #UK #medicalharm #patientrights #patientsafety #UnitedKingdom
    europesays.com/britain/119697/

  6. Beyond Litigation: What Malaysia Can Learn From A UK Patient Safety Group

    KUALA LUMPUR, Sept 8 — Patients who believe they were harmed by medical treatment need an independent place…
    #UnitedKingdom #UK #Europe #EU #GreatBritain #medicalharm #Patientrights #patientsafety
    europesays.com/3239209/

  7. 75% of hospitals employ chaplains. 29% of Americans have no religious affiliation. That math hasn't been reconciled yet — and patients in crisis are living in the gap.

    onlys.ky/who-comforts-the-secu

    #Secularism #Healthcare #HumanistChaplain #PatientRights #Medicine

  8. Breast Cancer Scandal: Victims Demand Inquiry Amidst Medical Information Gaps

    Victims of breast cancer scandals in London are demanding an inquiry due to confusing medical information and unclear risk factors. Find out what changes.

    #BreastCancerInquiry, #LondonHealth, #MedicalInfo, #CancerRisk, #PatientRights

    newsletter.tf/breast-cancer-in

  9. Victims in London are demanding an inquiry into breast cancer information gaps. This follows confusion about personal risk and health decisions.

    #BreastCancerInquiry, #LondonHealth, #MedicalInfo, #CancerRisk, #PatientRights
    newsletter.tf/breast-cancer-in

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