#stemcelltransplant — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #stemcelltransplant, aggregated by home.social.
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Mutual aid: call for stem cell donors.
TL; DR: please register in your local stem cell donors center
A kid in a friend's daycare is currently suffering from leukaemia and needs a stem cell transplant to have a chance to survive. Yannis is from Afro-European descent and, as such, is struggling to find a donor as only 3% of the registered donors in the words are from multi-ethnic descent while 70% are white.
To know more, in German: https://www.dkms.de/aktiv-werden/online-aktionen/yannis
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Mutual aid: call for stem cell donors.
TL; DR: please register in your local stem cell donors center
A kid in a friend's daycare is currently suffering from leukaemia and needs a stem cell transplant to have a chance to survive. Yannis is from Afro-European descent and, as such, is struggling to find a donor as only 3% of the registered donors in the words are from multi-ethnic descent while 70% are white.
To know more, in German: https://www.dkms.de/aktiv-werden/online-aktionen/yannis
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Twin sisters discover they are identical after one is diagnosed with leukaemia
📰 Original title: 'I wanted to save her life'
🤖 IA: It's clickbait ⚠️
👥 Usuarios: It's clickbait ⚠️View full AI summary: https://killbait.com/posts/post/b3486bfc-2dd5-4eaa-99b8-bb5534213ceb
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CW: a huge flaw in Pluribus, spoilers up to S1E6
(I did not think this would be a regular feature, but here we are...)
In this episode, Diabaté tells Carol that they cannot be turned without their consent. He explains that's because the "others" need stem cells, and that would involve sticking a large needle into the bone of the hip.
:why:
I've got a stem cell transplant for my cancer treatment. I can assure you that my stem cells were harvested without inserting a needle into the bone of my hip.
They could have kept the explanation to the idea that the "others" would have to submit the humans that weren't turned yet to a medical procedure, and that this would require consent. It's already been well established by that time that they don't want to do stuff without consent.
Why gild the lily with poo by over explaining?
Yes, it is possible to harvest stem cells by sticking a needle into the bone marrow, but that's a procedure that is no longer *normally* used, because it is highly invasive.
My stem cells were harvested as follows. In the days prior to the day of harvest, I injected myself with a product that would stimulate the production of stem cells and push them into my bloodstream. Then I spent one morning at the hospital hooked to a machine that looks like a dialysis machine. This machine took the stem cells out of my blood. Much less invasive than having a needle stuck into your hipbone.
😩
I still like the show, but man...
#plur1bus #pluribus #StemCellTransplant #StemCells #cancer #CancerSurvivor
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Yeah, I'm so great at remembering anniversaries that I even forgot the anniversary of my cancer diagnosis.
I blame.... chemo brain! 😂
Yeah, it was on Nov 17th 2020 that they performed the brain biopsy that diagnosed me with a PCNS lymphoma. The next day, the oncologist they had assigned to me gave me the news. I gave my assent to treatment, and they immediately rolled me from neurology to oncology because I was *this* close to being dead.
We started chemo. After two rounds of it, I entered remission, but I had to go through all 8 rounds of it (or 9 rounds depending on how you count), and later I had a stem cell transplant.
Five years after this ordeal, I'm still alive. 🥳
#CancerSurvivor #cancer #ChemoBrain #chemo #StemCellTransplant
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A nice thing about getting a stem cell transplant is that after the procedure, you have to be revaccinated against everything. So I don't have to wonder whether I've been vaccinated against the measles.
"Are there other nice things about a stem cell transplant?"
Well.... there's the fact that it most likely saved you from death. That's a plus. Other than this, no. There's nothing else. It is a procedure that may kill you and which is replete with pain and misery.
#StemCellTransplant #cancer #vaccination #NiceThings #PainAndMisery
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A nice thing about getting a stem cell transplant is that after the procedure, you have to be revaccinated against everything. So I don't have to wonder whether I've been vaccinated against the measles.
"Are there other nice things about a stem cell transplant?"
Well.... there's the fact that it most likely saved you from death. That's a plus. Other than this, no. There's nothing else. It is a procedure that may kill you and which is replete with pain and misery.
#StemCellTransplant #cancer #vaccination #NiceThings #PainAndMisery
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I‘m really not in the mood to read about the spread of Measles infections in the US and their probable global spread as my kid isn’t vaccined and still needs to wait another year to get the shot as a follow-up of her stem-cell transplant.
#measles #StemCellTransplant -
I‘m really not in the mood to read about the spread of Measles infections in the US and their probable global spread as my kid isn’t vaccined and still needs to wait another year to get the shot as a follow-up of her stem-cell transplant.
#measles #StemCellTransplant -
One of the things that bring joy in my life is to cook and ferment foods. At the moment I have a couple of misos in progress plus my first batch of shoyu.
2 years ago I became a father of a kid with #HurlerSyndrome (MPS 1), a rare, poorly documented and treated degenerative sickness. She's been through a #StemCellTransplant and is spending a lot of time in the hospital. I will post about this topic too.
I boost toots a lot, so be ready to see a lot of posts by others when you follow me.
2/2
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One of the things that bring joy in my life is to cook and ferment foods. At the moment I have a couple of misos in progress plus my first batch of shoyu.
2 years ago I became a father of a kid with #HurlerSyndrome (MPS 1), a rare, poorly documented and treated degenerative sickness. She's been through a #StemCellTransplant and is spending a lot of time in the hospital. I will post about this topic too.
I boost toots a lot, so be ready to see a lot of posts by others when you follow me.
2/2
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CW: Sick child, pictures
Now that our kid mostly recovered from her stem cells transplant, from the chemo that came at its beginning and from the months of sickness and denutrition that followed, we, her parents, came to realize that we couldn't really see in her face how much she was sick when this all happened. It‘s only now that she looks healthy again that, when scanning pictures of the past year, we can finally see how sick she actually looked like, and it's heartbreaking.
#stemcelltransplant -
CW: Sick child, pictures
Now that our kid mostly recovered from her stem cells transplant, from the chemo that came at its beginning and from the months of sickness and denutrition that followed, we, her parents, came to realize that we couldn't really see in her face how much she was sick when this all happened. It‘s only now that she looks healthy again that, when scanning pictures of the past year, we can finally see how sick she actually looked like, and it's heartbreaking.
#stemcelltransplant -
My 18 months old daughter, slowly in remission from her stem cell transplant of last October, just mastered crawling on her four legs and I think she desserves at least a gold medal for it.
#MPS #myMPSkid #stemcelltransplant -
My 18 months old daughter, slowly in remission from her stem cell transplant of last October, just mastered crawling on her four legs and I think she desserves at least a gold medal for it.
#MPS #myMPSkid #stemcelltransplant -
:headache:
Jesus H Fucking Christ on a pogo stick! The ignorance about Catherine's appearance is, indeed, appalling.
I got 8 rounds of methotrexate that went straight to my brain. This treatment was so hard on my body that I had to be hospitalized with every round. I puked. I shat my diapers.
Did I lose my hair?
Heck no!
Even when I had my stem cell transplant, I did not really "lose" my hair. I experienced a very partial loss, and then my hair merely stopped growing for a while.
Good for her if her treatment allows her to be in public, and to have a full head of hair.
The naysayers are worms, pure and simple! This is bullshit of the highest order.
:why:
#cancer #CancerSurvivor #chemo #StemCellTransplant #worms #bullshit
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:headache:
Jesus H Fucking Christ on a pogo stick! The ignorance about Catherine's appearance is, indeed, appalling.
I got 8 rounds of methotrexate that went straight to my brain. This treatment was so hard on my body that I had to be hospitalized with every round. I puked. I shat my diapers.
Did I lose my hair?
Heck no!
Even when I had my stem cell transplant, I did not really "lose" my hair. I experienced a very partial loss, and then my hair merely stopped growing for a while.
Good for her if her treatment allows her to be in public, and to have a full head of hair.
The naysayers are worms, pure and simple! This is bullshit of the highest order.
:why:
#cancer #CancerSurvivor #chemo #StemCellTransplant #worms #bullshit
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It is about this time three years ago that my oncologist told me that the tumor that was in my brain had been kicked out after two rounds of chemo.
My cancer was an PCNS lymphoma. It nearly killed me.
The tumor was gone, but it was just the beginning of my chemo. This chemo was going to be followed by a stem cell transplant.
Well, I'm still alive. :catjam:
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Genetic Findings of Potential Donor Origin following #Hematopoietic Cell Transplantation: Recommendations on #Donor Disclosure and Genetic Testing from the World Marrow Donor Association (WMDA)
#wmda #htc #hematopoietic #marrow #bethematch #genetictesting #ethics
#stemcelltransplant #stemcell #CellularTherapy
https://www.astctjournal.org/article/S2666-6367(23)01708-6/fulltext -
Genetic Findings of Potential Donor Origin following #Hematopoietic Cell Transplantation: Recommendations on #Donor Disclosure and Genetic Testing from the World Marrow Donor Association (WMDA)
#wmda #htc #hematopoietic #marrow #bethematch #genetictesting #ethics
#stemcelltransplant #stemcell #CellularTherapy
https://www.astctjournal.org/article/S2666-6367(23)01708-6/fulltext -
#TheMetalDogArticleList
#BLABBERMOUTH
DEF LEPPARD's VIVIAN CAMPBELL Updates On Hodgkin's Lymphoma Fight
On "Lymphoma Voices" podcast, Vivian Campbell discusses his ongoing struggle with Hodgkin's lymphoma since 2013, sharing his experiences and current status.#VivianCampbell
#HodgkinsLymphoma
#Cancer
#CancerTreatment
#StemCellTransplant
#LivingwithCancer -
#TheMetalDogArticleList
#BLABBERMOUTH
DEF LEPPARD's VIVIAN CAMPBELL Updates On Hodgkin's Lymphoma Fight
On "Lymphoma Voices" podcast, Vivian Campbell discusses his ongoing struggle with Hodgkin's lymphoma since 2013, sharing his experiences and current status.#VivianCampbell
#HodgkinsLymphoma
#Cancer
#CancerTreatment
#StemCellTransplant
#LivingwithCancer -
If you want to see me cry, narrate to me the story of a kid who had to deal with life-altering hardship.
Cancer stories are the hardest.
Yep, I'm crying. I watched the video I'm linking to below. I know some people will watch it and think "why the tears?" I'm crying because I've been there, and it was so bloody hard on me. I was 48 for most of my treatment. I cannot imagine how difficult it would be for younger folks, especially kids.
Charlotte had more or less the same treatment that I did. The chemo was probably done with a different agent. However, she did get a stem cell transplant (They call it bone marrow transplant in the video.) Mine was autologous. They gave me back my stem cells. Hers I think was allogeneic. From what I get of the video, her brother gave her the stem cells. The allogeneic process is much rougher on the body.
In her case, it sounds like she got the transplant when her cancer came back. In my case, they did not wait for the cancer to come back. The type of cancer that I had is pretty much guaranteed to come back if you don't do a transplant.
I've been there. It was so hard. That's why I cry when I see kids having to go through hardships like this.
#cancer #tears #crying #hardship #CancerSurvivor #chemo #StemCellTransplant #BoneMarrowTransplant
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If you want to see me cry, narrate to me the story of a kid who had to deal with life-altering hardship.
Cancer stories are the hardest.
Yep, I'm crying. I watched the video I'm linking to below. I know some people will watch it and think "why the tears?" I'm crying because I've been there, and it was so bloody hard on me. I was 48 for most of my treatment. I cannot imagine how difficult it would be for younger folks, especially kids.
Charlotte had more or less the same treatment that I did. The chemo was probably done with a different agent. However, she did get a stem cell transplant (They call it bone marrow transplant in the video.) Mine was autologous. They gave me back my stem cells. Hers I think was allogeneic. From what I get of the video, her brother gave her the stem cells. The allogeneic process is much rougher on the body.
In her case, it sounds like she got the transplant when her cancer came back. In my case, they did not wait for the cancer to come back. The type of cancer that I had is pretty much guaranteed to come back if you don't do a transplant.
I've been there. It was so hard. That's why I cry when I see kids having to go through hardships like this.
#cancer #tears #crying #hardship #CancerSurvivor #chemo #StemCellTransplant #BoneMarrowTransplant
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@ICM very cool - wasn't aware of this as a thing at all!
#CriticalCare #ICU #sepsis #stemcelltransplant #EndothelialActivation(PS. link doesn't work - needs copy paste)
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@ICM very cool - wasn't aware of this as a thing at all!
#CriticalCare #ICU #sepsis #stemcelltransplant #EndothelialActivation(PS. link doesn't work - needs copy paste)
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Advice For People Dealing With Cancer, Or A Possible Diagnosis
How to go through this ordeal, without completely losing your mind.
@adelinej prompted me to write this one. It was written quickly. If you see spelling mistakes or other issues, please tell me.
May all sentient beings benefit from my own suffering!
#YourAutisticLife #ActuallyAutistic #AutisticWriters #cancer #chemo #SilverLinings #CancerDiagnosis #misdiagnosis #complaints #SecondOpinions #feelings #StemCellTransplant
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Advice For People Dealing With Cancer, Or A Possible Diagnosis
How to go through this ordeal, without completely losing your mind.
@adelinej prompted me to write this one. It was written quickly. If you see spelling mistakes or other issues, please tell me.
May all sentient beings benefit from my own suffering!
#YourAutisticLife #ActuallyAutistic #AutisticWriters #cancer #chemo #SilverLinings #CancerDiagnosis #misdiagnosis #complaints #SecondOpinions #feelings #StemCellTransplant
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People with Basque heritage :
If you have a similar ethnicity to Leo shown below (Half Filipino and Half Jewish/English/French/Spanish/Basque), you could be a potential bone marrow/stem cell donor.
You can donate in over 54 countries and the team at Be The Match will be able to match you thanks to the Global Registry: https://wmda.info/become-a-donor/?src=mastodon
#wmdd #wmda #stemcelltransplant
#Euskadi -
People with Basque heritage :
If you have a similar ethnicity to Leo shown below (Half Filipino and Half Jewish/English/French/Spanish/Basque), you could be a potential bone marrow/stem cell donor.
You can donate in over 54 countries and the team at Be The Match will be able to match you thanks to the Global Registry: https://wmda.info/become-a-donor/?src=mastodon
#wmdd #wmda #stemcelltransplant
#Euskadi -
Cada año miles de personas necesitan un donante de #médulaósea para recuperar su salud y no cuentan con un donante compatible en su familia por lo que deben recurrir a un donante no emparentado. Por eso existen en el mundo los Registros de Donantes.
Aqui un video de #incucai en #argentina
#stemcell #stemcelltransplant #wmdd #wmda #THANKYOUDONOR #thankyoudonors
Full video https://youtu.be/D0ClzhEhpRY -
Cada año miles de personas necesitan un donante de #médulaósea para recuperar su salud y no cuentan con un donante compatible en su familia por lo que deben recurrir a un donante no emparentado. Por eso existen en el mundo los Registros de Donantes.
Aqui un video de #incucai en #argentina
#stemcell #stemcelltransplant #wmdd #wmda #THANKYOUDONOR #thankyoudonors
Full video https://youtu.be/D0ClzhEhpRY -
I have a bit of a sore throat this morning. Nothing worrisome. I think that's the first infection I get after my stem cell transplant. I guess it is a sign that my immune system is working. 👍
It did keep me up last night for a while, however. Stupid sensory issues. 😩
#SoreThroat #Infection #StemCellTransplant #ImmuneSystem #cancer
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Tomorrow, I'm going to be at Johns Hopkins for most of the day for some sort of psychiatric evaluation. It was ordered by my oncologist, so it is a cancer thing more than an #autism thing. The cancer, the brain biopsy, the chemo, and the stem cell transplant that I got can do a number on your brain.
Of course, I'm also going to surprise them with my self-diagnosed autism. I plan to go with my Chromebook in my backpack. (My laptop is just too cumbersome.) I have recorded in a document all the points that make me think that I'm #ActuallyAutistic.
If they want to fight me on this, I'm ready. Johns Hopkins saved my life. I'm grateful for this. However, it is also a business, and it is a business with blinders on sometimes.
#JohnHopkins #cancer #BrainBiopsy #chemo #StemCellTransplant #PhysicalHealth #MentalHealth -
@missingbrighton @tanquist @google I got my first and only #Chromebook so far when I was in the hospital. I checked the dates and that was a few weeks before I started chemo.
I was in a really pitiful state, but I did not know that I had #cancer yet. Still, I knew that I was in bad shape and that I'd probably visit the hospital very often. My #Debian laptop is too bulky and heavy, especially in the weak state I was in.
So I decided to get a Chromebook. It is smaller than my laptop and much lighter. It served me well during my #chemo and my stem cell transplant. It allowed me to stay in contact with people, especially given that no visitors were allowed due to #COVID.
It is now my main workhorse, but my old laptop has given signs of wanting to kick the bucket. Maybe the new laptop will be my workhorse now.
(I still used the old laptop for compiling software or video editing, as these require more CPU.)
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#HIV #StemCellTransplant
In remission from HIV, a sixth person could join the club of those possibly cured"All received stem cell transplants to treat cancer, but — unlike the others — this man’s donor did not have a rare genetic resistance to HIV."
https://www.nbcnews.com/nbc-out/out-health-and-wellness/hiv-remission-stem-cell-transplant-blood-cancer-rcna94989 -
Have you signed up as a stem cell donor already? There is no risk, no cost, and you might help save a life!
Here is a list of where you can register in your country:
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Son still in #hospital tonight. Meds changed to see if that allows his kidneys to recover. Hope this doesn't mess up the plan for #StemCellTransplant in February... 🤞
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Treating lymphoma with HIV-resistant stem cells “cures” another patient - Enlarge / Artist's conception of HIV attached to a cell. (credit: Ohio State)
The identification ... more: https://arstechnica.com/?p=1468899 #stemcelltransplant #stemcells #lymphoma #medicine #science #biology #hiv