#diagnosis — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #diagnosis, aggregated by home.social.
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New post: It Was in the File
https://lanie.work/advocacy/it-was-in-the-file/
#Disability #Autism #Idd-Services #Long-Term-Care #Executive-Function #Diagnosis #Group-Home #Advocacy
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New post: It Was in the File
https://lanie.work/advocacy/it-was-in-the-file/
#Disability #Autism #Idd-Services #Long-Term-Care #Executive-Function #Diagnosis #Group-Home #Advocacy
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New post: It Was in the File
https://lanie.work/advocacy/it-was-in-the-file/
#Disability #Autism #Idd-Services #Long-Term-Care #Executive-Function #Diagnosis #Group-Home #Advocacy
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New post: It Was in the File
https://lanie.work/advocacy/it-was-in-the-file/
#Disability #Autism #Idd-Services #Long-Term-Care #Executive-Function #Diagnosis #Group-Home #Advocacy
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New post: It Was in the File
https://lanie.work/advocacy/it-was-in-the-file/
#Disability #Autism #Idd-Services #Long-Term-Care #Executive-Function #Diagnosis #Group-Home #Advocacy
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This Is Why It Seems Like Everyone Has ADHD Right Now Including You
Confiding in a friend of mine after I was first diagnosed with ADHD, I opened up to her about my lifelong struggles with time blindness, lateness, general disorganisation, and emotional dysregulation. I was relieved to finally have a label for what I’d been experiencing. ‘But isn’t it normal to get a little bit distracted sometimes? I probably have ADHD too, if that’s the case’ she said to me. My heart sank, feeling both rejected and my experiences diminished in one simple […] -
https://www.europesays.com/ie/538866/ An AI-based symptom checker integrated into MomConnect maternal healthcare platform: a prospective, observational mixed-methods study #diagnosis #Éire #general #Health #HealthCare #HealthEconomics #HealthPromotionAndDiseasePrevention #HealthPsychology #Healthcare #IE #Ireland #MaternalAndChildHealth #Medicine/PublicHealth #PatientEducation #PublicHealth #ReproductiveDisorders #RiskFactors
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An AI-based symptom checker integrated into MomConnect maternal healthcare platform: a prospective, observational mixed-methods study
Study design and setting This prospective, observational mixed-methods…
#NewsBeep #News #Healthcare #AU #Australia #diagnosis #general #Health #healtheconomics #HealthPromotionandDiseasePrevention #HealthPsychology #MaternalandChildHealth #Medicine/PublicHealth #patienteducation #publichealth #Reproductivedisorders #Riskfactors
https://www.newsbeep.com/au/740897/ -
An AI-based symptom checker integrated into MomConnect maternal healthcare platform: a prospective, observational mixed-methods study
Study design and setting This prospective, observational mixed-methods…
#NewsBeep #News #Healthcare #AU #Australia #diagnosis #general #Health #healtheconomics #HealthPromotionandDiseasePrevention #HealthPsychology #MaternalandChildHealth #Medicine/PublicHealth #patienteducation #publichealth #Reproductivedisorders #Riskfactors
https://www.newsbeep.com/au/740897/ -
https://www.europesays.com/uk/1030960/ An AI-based symptom checker integrated into MomConnect maternal healthcare platform: a prospective, observational mixed-methods study #Diagnosis #general #Health #HealthEconomics #HealthPromotionAndDiseasePrevention #HealthPsychology #Healthcare #MaternalAndChildHealth #Medicine/PublicHealth #PatientEducation #PublicHealth #ReproductiveDisorders #RiskFactors #UK #UnitedKingdom
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🔪 A scalpel that can diagnose? Scientists unveil a 'Lab-on-a-Scalpel' for real-time surgical insights
https://medicalxpress.com/news/2025-10-scalpel-scientists-unveil-lab-real.html
#instrument #diagnosis #scalpel #surgery #medicine #healthcare #manufacturing #engineering #biomedical
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International Ataxia Awareness Day.
#ataxia #johnfrusciante #redhotchilipeppers #az #trickfinger #rhcp #disability #flea #ataxiaawareness #chadsmith #frusciante #softspokenwithabrokenjaw #johnanthonymotherfuckingfruscianteeeeeeeeeeeeee #genetics #hospital #child #pedia #congenital #anamoly #genes #dna #diagnose #diagnosis #facitis #guess #medicalnotes #nectrotising #necrosis #mswarrior #cremastric Today is International Ataxia Awareness Day. Ataxia is a disease that…
https://itsmostamazingindia.wordpress.com/2025/09/25/international-ataxia-awareness-day/
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A quotation from Oliver Wendell Holmes, Sr.
You can never be too cautious in your prognosis, in the view of the great uncertainty of the course of any disease not long watched, and the many unexpected turns it may take.
I think I am not the first to utter the following caution : —
Beware how you take away hope from any human being. Nothing is clearer than that the merciful Creator intends to blind most people as they pass down into the dark valley. Without very good reasons, temporal or spiritual, we should not interfere with his kind arrangements. It is the height of cruelty and the extreme of impertinence to tell your patient he must die, except you are sure that he wishes to know it, or that there is some particular cause for his knowing it. I should be especially unwilling to tell a child that it could not recover; if the theologians think it necessary, let them take the responsibility. God leads it by the hand to the edge of the precipice in happy unconsciousness, and I would not open its eyes to what he wisely conceals.Oliver Wendell Holmes, Sr. (1809-1894) American poet, essayist, scholar
Speech (1859-03-10), Valedictory Address, Harvard University School of MedicineSourcing, notes: wist.info/holmes-sr-oliver-wen…
#quote #quotes #quotation #qotd #bedsidemanner #diagnosis #hope #hopelessness #ignorance #information #medicalcare #medicine #prognosis #terminal #doctor
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#RobertBilder -# Neurosychology: #MentalHealth and #Illness
https://www.youtube.com/watch?v=E_JaJSUuFko
#Philosophy #PhilosophyOfPsychology #Psychology #Psychiatry #Medicine #NeuroPsychiatry #Syndromes #Diagnosis #Biology #MentalDisorder #MentalDisorders #Wellness #PsychoPathology #Brain #BrainImaging #Imaging #Consciousness #PhilosophyOfConsciousness #CloserToTruth #RobertKuhn
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The Italian #guideline on diagnosis and treatment of #dementia and mild cognitive impairment
"...Evidence-based #recommendations aimed at reducing the variability and ensuring the appropriateness of clinical practices throughout the whole care process from identification and #diagnosis to the #endoflife for people with dementia or #MCI and their families/#caregivers..."
#Geriatrics #Neurology #Alzheimer #Brain #Cognition #Care
https://academic.oup.com/ageing/article/53/11/afae250/7900556 -
Does your Autism get mistaken for TQ+?
Autistic Not QueerSend me your experiences about having autism go unrecognised, misdiagnosed or ignored, by the professionals and civilians.
Do you feel autism has become second place to identity politics in autism spaces?
https://auntieautism.wordpress.com/2024/07/31/autistic-not-queer/
#GenderClinic #autism #AutismDiagnosis #Autistic #Diagnosis #Disability #gender #GenderCritical #GenderCriticalAutistics #GenderDysphoria #genderIdentity #GenderIdeology #identity #identityPolitics
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Autism could be diagnosed with stool sample, scientists say | Medical research | The Guardian
https://www.theguardian.com/science/article/2024/jul/08/autism-could-be-diagnosed-with-stool-sample-microbes-research#Autism
#Diagnosis
#AutismDiagnosis
#GutMicrobes
#GutMicrobiome
#AutismGutMicrobiomeBiomarker
#Genetics
#StoolSamples
#Poo
#MetabolicPathways -
Why I Don’t Seek Formal Diagnosis
It is likely to end up being pointless in the USA.
Once in a while I run into someone who insists that I should get a formal diagnosis. If you live in the USA, this is often a futile, frustrating, and expensive endeavor. It is not worth it if you are unlikely to get accommodations.
I live in the USA. One distinguishing feature of this country is its appalling health care system. I have tons of stories about how world-class institutions have mistreated me time and again. I have tons of stories about how the billing system in the USA is maddening. Most of our costs are not due to the medical acts performed on us, but due to administrative overhead. This is stupid and ridiculous.
What I’m describing above is the general landscape. When it comes to being diagnosed with autism as an adult in the USA, the situation is even more stupid and ridiculous. I am not a rich man by any measure. I don’t have money to throw around with wild abandon. My insurance would not cover the cost of an adult diagnosis. These can easily run into the multiple thousands of dollars. Right off the bat, it looks bad.
Add to this that some practitioners hold onto outdated models of what autism should be. I know I don’t fit those outdated models. I don’t want to piss away money on someone who will tell me that I’m not autistic only due to the fact that I don’t fit those outdated models. Anybody who insists on a formal diagnosis should read Unmasking Autism by Devon Price.
You’ll learn that the prevalent model among autism specialists was very narrow in scope. I actually find that I, a man, have more in common with what is called “female autism” in the book. Note that this label is both outdated and bullshit, and the book does a good job explaining why it is both outdated and bullshit, but that’s the shortest way I know for now to describe myself. I do not fit the old obsolete model of what autism should be.
So I could find a doctor who holds onto such outdated models, and declares that I’m not autistic. What do I do then? Do I seek another diagnosis until I find one doctor who agrees that I am in fact autistic? This won’t look good to anyone who knows that I’m doing this, because this looks exactly like doctor shopping. I may have a good reason to seek another diagnosis, but people won’t know this. If I need more than one diagnosis, how much money will I throw at the problem before I get what I want?
Come to think of it, I’m glad that nobody accused me of doctor shopping when I had my cancer, because that thing was misdiagnosed a bunch of times, and I almost died from it. The first diagnoses I got were a series of eye diseases. Then I had my attack. Then I was diagnosed with a stroke. Then with multiple sclerosis. Then I sought a second opinion at Johns Hopkins. That doctor said that he did not know what I had, but that it was not multiple sclerosis. Multiple tests later and another doctor said I probably had cancer. Then we did the brain biopsy and found that I indeed have cancer.
In the case of cancer, the test was mostly a black and white thing: either I had it or not. Moreover, this test is the same for everyone suspected of having my cancer. It is much more complicated with autism. There’s a saying among autistic people:
When you’ve met one autistic person, you’ve met one autistic person.
The implication here is that autistic people manifest in the world in diverse ways. What goes for one autistic person, won’t go for another autistic person. It is a mistake to see one autistic person and assume that all other autistic people will present the same set of characteristics.
Then there is the fact that even if I come back with a positive diagnosis, it won’t mean much in my day-to-day life. I cannot see what kind of accommodations I’d benefit from. I don’t need to be isolated. I don’t like phone calls, but I still do them. I really don’t see how spending money on a formal diagnosis would benefit me.
I do talk to other autistic people every day, however, and maybe one day I’ll see a benefit. I don’t see one now. So I’m reevaluating my life, through the lens of autism, and finding that the signs were there, but nobody put two and two together.
#AutismDiagnosis #diagnosis #YourAutisticLife
https://www.yourautisticlife.com/2023/08/06/why-i-dont-seek-formal-diagnosis/
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If I asked you to name the most common causes of exocrine pancreatic insufficiency (EPI/PEI), what would you list?
And why?
Food for thought on what medical literature commonly - incorrectly - states as the most common cause of EPI: https://bit.ly/43E9wg5
#Gastrodon #gastrointestinal #diagnosis #screening #Gastroenterologist #pancreas #pancreaticcancer #pancreatitis #chronicpancreatitis #CysticFibrosis #exocrinepancreaticinsufficiency #PEI #EPI
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This week I explore early motherloss, neurodivergent friendships and the magic of animation in animated classic The Land Before Time! 🦕 🦕🦕
You can read more here ⬇
https://autcasts.substack.com/p/see-with-your-heart
If you like what you read, please consider subscribing (for free), it's such a boost for my writing!
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #movies #films #landbeforetime #animation #donbluth
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🚨Neurodivergent reads spotlight!🚨My round up of neurodivergent reads finishes today with I Will Die on This Hill by Jules Edwards and Meghan Ashburn!
Read more from the review and recommendations for other neordivergent books below! ⬇
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis#outcasts #pride #pridemonth #books #advocacy #bookreview #unmaskingautism
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Sincerely Your Autistic Child'!
Read more from the review and recommendations for other neordivergent books here:
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Neuroqueer Heresies'!
Read more from the review and recommendations for other neordivergent books here:
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round-up continuing with 'Unmasking Autism'!
Read more from the review and recommendations for other neordivergent books below!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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🚨Neurodivergent reads spotlight!🚨
Over the next couple of weeks I’ll be highlighting books featured in the recent neurodivergent reads round up-starting this week with 'We’re not Broken'!
Read more from the review and recommendations for other neordivergent books below!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis#outcasts #pride #pridemonth #books #writers #advocacy #bookreview
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To wrap up NeuroPride month, I decided to do a short round-up of some of my favourite neurodivergent reads starting with my favourite advocacy books!
You can read the full round up here or at the link in my bio!
https://autcasts.substack.com/p/autcasts-recommends-neurodivergent-0ff
Happy Neuropride and Happy Reading!
#autism #actuallyautistic #ADHD #neurodivergent #neurokin #neuropride #autcasts #diagnosis #autismdiagnosis #outcasts #pride #pridemonth #books #advocacy
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For once, an #AI issue where I *can* speak with a certain amount of authority.
I've been hearing "expert systems outperform human #diagnostics, so pretty soon human #physicians will be obsolete" for a few years now. It's closely akin to "#airliners fly themselves these days, so what do we need #pilots for?" In both cases, people are paying attention to the best-case scenario with no understanding of the *enormous* number of how many and various the worse cases really are.
This is complicated by the fact that in most of #medicine (although not necessarily #emergency medicine, the author's specialty) and in nearly all of air travel, the best case is also the normal case. Most of the time, whatever is wrong with you can be diagnosed and treated. Almost all the time, when you get on a plane, you'll walk off at the other end of the trip as healthy as when you boarded. It's reasonable to expect those outcomes.
Not-best and not-normal cases add up really fast.
Without any false modesty whatsoever: as a #medic, I learned a truly impressive degree of clinical judgement. From the first moment I saw a patient, I had a pretty good idea of #diagnosis, #treatment, and #prognosis. (Sadly, if my initial call was "this one's not going to make it," I was almost always right. The exceptions kept me going.) I learned from the best—one of my mentors had learned *his* trade in rural Guatemala, where resources were terribly sparse and human judgement was the only line between life and death. He held back death for decades, and it came for him far too early. Gene Gibbs, RIP.
I can't code that. Neither can anyone else, and if they tell you they can, they're lying.
As a #researcher, I've done a fair amount of work in #clinical #decision #support (#CDS). The idea is simple, and valid: no human, or team of humans, can remember everything they need to know. There's simply too much knowledge for the brain to hold and recall on demand. Subtle relationships exist between disparate types of data that *nobody* knows, until we tease out the numbers. We're doing this, right now. It is saving lives and relieving suffering, right now.
The key word there is "support." Humans still absolutely, positively, 100% need to be in the loop.
Maybe that will change, someday. I'm not saying it's impossible, for two reasons. First, any time anyone says "computers will never be able to ___" they're usually proven wrong. Second, I don't want to limit my and my colleagues' imaginations. We need to stay focused, but it is a *good thing* for our reach to slightly exceed our grasp. That's how #science happens!
Just not this day, and not for many days to come. Right now, we need to keep muddling along. There's not much more human than that.
https://www.fastcompany.com/90863983/chatgpt-medical-diagnosis-emergency-room
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Why is getting diagnosed with autism so difficult?
https://emergentdivergence.com/2023/02/01/why-is-getting-diagnosed-with-autism-so-difficult/
#neurodiversityparadigm #diagnosticcriteria #pathologyparadigm #NeuroqueerTheory #atreatiseonchaos #actuallyautistic #neuroqueertheory #neurodivergence #neurodiversity #neurodivergent #Neuroqueering #Chaoticself #neuroqueer #diagnosis #autistic #identity #paradox #Autism -
It’s time to embrace ‘profound autism’
https://www.spectrumnews.org/opinion/viewpoint/its-time-to-embrace-profound-autism/
#adultswithautism #profoundautism #Viewpoint #community #diagnosis #autism -
Different forms of autism have opposite problems with brain precursor cells
https://www.spectrumnews.org/news/different-forms-of-autism-have-opposite-problems-with-brain-precursor-cells/
#copynumbervariation #macrocephaly #brainsize #diagnosis #16p11.2 #autism #News -
Trends in autism research 2021
https://www.spectrumnews.org/features/special-reports/trends-in-autism-research-2021/
#whole-genomesequencing #denovomutations #diagnostictests #SpecialReports #geneexpression #Xchromosome #aggression #sequencing #attention #community #diagnosis #mosaicism #autism #sex -
Autism is not a defense mechanism
https://embrace-autism.com/autism-is-not-a-defense-mechanism/
#Doubleempathyproblem #Medicalprofessionals #Personalexperience #Goodenoughparent #Autismdiagnosis #BrunoBettelheim #DonaldWinnicott #FrancescaHappé #GretaThunberg #Medicalsystem #DamianMilton #Heritability #Alexithymia #Diagnosis #Suffering #Etiology #Genetics #Ableism #Trauma
