Live and recent posts from across the Fediverse tagged #postural-orthostatic-tachycardia-syndrome, aggregated by home.social.
From Australia 🇦🇺
Comparative Analysis of Circulating Cytokines & Adrenergic Autoantibodies in Postural Orthostatic Tachycardia Syndrome, Postacute Sequelae of SARS‐CoV‐2, & Healthy Controls
https://www.ahajournals.org/doi/10.1161/JAHA.125.048615
Screenshot from latest Science for ME weekly update
#LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
(Melbourne, Australia)
I was contacted to see would I highlight this as they are struggling to recruit their target.
#MEcfs #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs @longcovid #auscovid19 #PwME #CFS #ME #MyalgicEncephalomyelitis
More young women being diagnosed with POTS but rural patients face extra toll
Piper Makin was living the typical life of a rural teenager. Netball on weekends, high school during the…
#Australia #AU #Austrlia #Auto-immunedisease #healthcare #posturalorthostatictachycardiasyndrome #pots #RegionalSA #SouthAustralia
https://www.europesays.com/australia/75114/
Speaking Your Body’s Truth: Talking to Providers About Post-Exertional Symptom Exacerbation
https://onelifelivedwell.substack.com/p/speaking-your-bodys-truth-talking
Screenshot from AMMES May 2026 Newsletter
#MEcfs @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #PEM #PESE #PwME #ME #MyalgicE
@mecfs #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
https://www.europesays.com/people/8610/ As reports of trouble at Sam Altman’s OpenAI trickle, head of AGI deployment, Fidji Simo goes on medical leave; says in memo: It’s now clear that … #AGIDeploymentAtOpenAI #FidjiSimoMedicalLeave #GregBrockmanOpenAI #HealthIssuesInTechIndustry #OpenAI #OpenAICMODeparture #OpenAIExecutiveReshuffle #OpenAILeadershipChanges #PosturalOrthostaticTachycardiaSyndrome #SamAltman
So I go to the doctor with documentation and data (self-administered NASA Lean Test, showing textbook POTS), and also same data when tested during the appointment, yet got sent away with nothing.
The doctor said he acknowledged that the physiology and symptoms matched, and that I'm clearly being affected by it daily, but he wouldn't refer me anywhere, because "there's no point, since there's no treatment within the Danish system", which is a straight up lie.
So no referral to tilt table test, no cardiology, no neurology. Nothing... This is the 2nd time I've tried raising this issue - which at this point is causing me to have to lay down for hours a day, to recover - and both times I've been rejected (and both times by a man).
I'm at a loss at this point. I can keep doctor hopping, to try and find someone who will actually help me, but every time I switch, it counts against me.
#POTS #PosturalOrthostaticTachycardiaSyndrome #MedicalGaslighting #MedicalAbuse
Steve Kerr admits ‘stupid mistake’ for calling misinformation on Warriors C Kristaps Porziņģis’ POTS diagnosis
Golden State Warriors head coach Steve Kerr issued a mea culpa on Saturday after appearing to question one…
#NewsBeep #News #NBA #AtlantaHawks #AU #Australia #bloodcirculation #BostonCeltics #GoldenStateWarriors #KristapsPorzingis #LosAngelesClippers #LosAngelesLakers #NBATradeDeadline #posturalorthostatictachycardiasyndrome #sports #stevekerr
https://www.newsbeep.com/au/511241/
Steve Kerr admits ‘stupid mistake’ for calling misinformation on Warriors C Kristaps Porzingis’ POTS diagnosis https://www.rawchili.com/nba/631491/ #AtlantaHawks #Basketball #BostonCeltics #ChrisCoduto #GoldenStateWarriors #KristapsPorzingis #LosAngelesClippers #LosAngelesLakers #NBA #NBATradeDeadline #PosturalOrthostaticTachycardiaSyndrome #SteveKerr
Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions
https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie
Roman Josi to play 1,000th NHL game, becoming the first player ever to reach this milestone with Nashville Predators | NHL News https://www.rawchili.com/nhl/422051/ #2026WinterOlympics #Hockey #HockeyDefenseman #HockeyStatistics #Nashville #NashvillePredators #NashvillePredators #NHL #NHLMilestone #NorrisTrophyWinner #PosturalOrthostaticTachycardiaSyndrome #Predators #RomanJosi #SwissHockeyPlayers
"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness"
https://themighty.com/topic/fibromyalgia/feeling-not-disabled-enough-chronic-illness
"How many of you who have fibromyalgia or similar #chronicillness sometimes feel like you’re judged for not being 'disabled enough?'”
#invisibleillness #Spoonie #hiddenillness #Spoonielife #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #MEcfs #
@mecfs
"When a Schedule Stops Working: Learning to Live by Rhythm Instead"
https://onelifelivedwell.substack.com/p/when-a-schedule-stops-working-learning
Another thoughtful blog post from this sympathetic and knowledgeable occupational therapist who specialises in ME/CFS & long Covid
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots
Post-translational modifications within fibrinaloid microclot complexes distinguish Pre-COVID-19 POTS, Long COVID, & Long COVID-POTS & reveal disease-specific molecular pathways
https://www.biorxiv.org/content/10.64898/2025.12.29.696828v1
Screenshot from latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots
Symptom: Neurogenic Inflammation and POTS Blood Pooling
https://www.illmarks.com/symptom-neurogenic-inflammation-and-pots-blood-pooling/
#art #autonomicDysfunction #AutonomicFailure #autonomicNervousSystem #bloodpooling #BloodPressure #bodyHorror #bodyMapping #bodyart #bodyhorror #cardiology #chronicIllness #dinet #dystautonomia #hypotension #longCovid #medart #medicalArt #medicalart #MillionsMissing #neurogenicInflammation #neurogenicInflammation #neurology #orthostaticHypotension #orthostaticIntolerance #posturalOrthostaticTachycardiaSyndrome #POTS #potsie #pwLC #pwme #SciArt #SciComms #SymptomMap #SymptomArt #SymptomMap #tinitus #tinnitus
Blog post about using props (like pillows, bolsters, and wedges) to help promote relaxation, by a sympathetic and knowledgeable occupational therapist who focuses on ME/CFS and long Covid.
https://onelifelivedwell.substack.com/p/repose-the-new-relaxation
@longcovid
#LongCovid #PASC #PwLC #postcovid #MEcfs #chronicillness #Spoonie @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
(US)
Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia
#Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
Years of scapegoating rhetoric & politicians casting #disabled people as “scroungers” have reinforced prejudices about the blue badge parking scheme & led to “envy & resentment” instead of equal access, according to a 4-year research project
#chronicillness #hiddenillness #invisibleillness #Spoonies #Hiddendisability #Hiddendisabilities @mecfs
#MEcfs #CFS #PwME @longcovid
#LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
"Systematic literature review: treatment of postural orthostatic tachycardia syndrome (POTS)" ["with a special focus on POTS therapy in children and people with ME/CFS."]
Free fulltext:
https://link.springer.com/article/10.1007/s10286-025-01172-2
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
Symptom: POTS Blood Pooling (+ Migraine) & Coat Hanger Pain
https://www.illmarks.com/symptom-pots-blood-pooling-coat-hanger-pain/
#art #bloodPooling #bloodpooling #bodyHorror #bodyMapping #bodymapping #cardiology #chronicIllness #chronicIllness #coatHangerPain #coathangerpain #Dysautonomia #headache #longCovid #longcovid #maskUp #mecfs #medArt #medart #medical #medicalArt #medicine #migraine #MillionsMissing #neurology #posturalOrthostaticTachycardiaSyndrome #POTS #pwLC #pwme #SaltingTheVibes #SciArt
Heads-Up! Are You Missing an Easy Way to Improve Your Sleep and Health?
Interesting to read the rationale behind this approach (tilting the head of your bed) but still seems speculative for ME/CFS where "the normal rules often don't apply"
#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance
realizing last time i asked i didnt put any tags on, woops
POTS folks: what were your symptoms like before dx? what was diagnosis like? what kinds of treatment were you offered?
most time-sensitively: what are some things someone who very likely has POTS can do to alleviate it and avoid falling?
high suspicion that mom has POTS, looking for things to try while waiting to see doc
#POTS #PosturalOrthostaticTachycardiaSyndrome #spoonie #chronicillness
Iranian multicentre trial
Using Compression Stockings to Prevent Recurrence of Vasovagal Syncope: A Randomized Sham-Controlled Trial
https://www.jacc.org/doi/10.1016/j.jacc.2025.05.049
"The results do not support routine use of thigh-length ECS [elastic compression stockings]"
#VVS #OrthostaticIntolerance #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI
From Sweden:
Screening for postural orthostatic tachycardia syndrome using 24-hour electrocardiogram recording in patients with long coronavirus disease
https://www.heartrhythmopen.com/article/S2666-5018%2825%2900147-3/abstract
Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@covid19 #Coronavirus
#COVID19 #COVID #COVID_19 #COVIDー19 #SARSCoV2 #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
1/
The Emerge Australia Research Digest (#119) (31/7/2025)
https://www.emerge.org.au/researchdigest/research-digest-issue-119/
Includes an "Easy Read Overview" and audio version for each item
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#MEcfs #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
What Not to Say to People With Complex Chronic Illness
https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft
Image is a screenshot from June 2025 AMMES e-newsletter
Hashtags:
@longcovid
#LongCovid #PASC @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #chronicillness @chronicillness
@spoonies #dysautonomia @dysautonomia
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance
Going to the Doctor When You Have a Chronic Illness
Hashtags:
@longcovid
#LongCovid
#chronicillness #ChronicallyIll #hiddenillness
#invisibleillness @chronicillness
@spoonies
@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #IBS @ibs #PosturalOrthostaticTachycardiaSyndrome #POTS @pots @mecfs
#MEcfs
[3] Secondly, I had a case of mild COVID. At the time I was in my late 20's, otherwise completely healthy. My life was completely flipped in a matter of weeks and months. COVID-19 infection complications for me include POTS (4), #brainfog (5), #migraines, debilitating increase in ADHD symptoms, and #cfs (6). I personally know several others like me. Mild != no consequences
#infection #PosturalOrthostaticTachycardiaSyndrome #chronicfatigue #chronicfatiguesyndrome
🧵
From Chronic Living Therapy e-newsletter:
"Round up of articles spotted online in March/April 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions."
https://chroniclivingtherapy.com/1-elsewhere-web/
@chronicillness
@spoonies @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
#chronicillness #chroniclife #spoonie
1/
(Worcester, Massachusetts)
Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study
Image is from MassME April Newsletter
https://www.massmecfs.org/newsletters/922-2025-04-april-newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome @pots @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
"'It’s like torture': The tilt table test could be risky for many people with Long COVID" [and ME/CFS] in @thesicktimes
Contains quotes from patients and also some experts in the field
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance
(UK)
"I spoke with my friend's husband who's a PIP assessor, for advice about my upcoming PIP review, and was given some useful insights about how the process works from the inside, including specifics about ME & #longCovid ..."
https://threadreaderapp.com/thread/1907029145986421125.html
#MEcfs #chronicillness #Spoonies @mecfs @longcovid @chronicillness
@spoonies
@disability
@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #PosturalOrthostaticTachycardiaSyndrome #POTS @pots
"Showering: self-care or self-sabotage?" short blog post by a woman with #POTS and ME.
https://chronicallycraptastic.com/showering-self-care-or-self-sabotage/
"It sounds counterintuitive, but it pans out for people with ME/POTS, sometimes NOT showering is a form of self-care"
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @chronicillness
@spoonies
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots
From Thailand:
Comparison of the head-up tilt test and the 10-minute NASA lean test for assessing blood pressure and heart rate responses in young individuals with postacute COVID-19 syndrome
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance
Tragus Nerve Stimulation Attenuates Postural Orthostatic Tachycardia Syndrome in Post COVID-19 Infection
https://onlinelibrary.wiley.com/doi/full/10.1002/clc.70110
From the latest Science for ME weekly update
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots
New review by US authors
Cerebral Blood Flow in Orthostatic Intolerance
https://www.ahajournals.org/doi/10.1161/JAHA.124.036752
Has subsections on ME/CFS & long Covid
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #dysautonomia @dysautonomia