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#postural-orthostatic-tachycardia-syndrome — Public Fediverse posts

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  1. CW: Medical gaslighting, medical abuse(?), PH-, MH-

    So I go to the doctor with documentation and data (self-administered NASA Lean Test, showing textbook POTS), and also same data when tested during the appointment, yet got sent away with nothing.

    The doctor said he acknowledged that the physiology and symptoms matched, and that I'm clearly being affected by it daily, but he wouldn't refer me anywhere, because "there's no point, since there's no treatment within the Danish system", which is a straight up lie.

    So no referral to tilt table test, no cardiology, no neurology. Nothing... This is the 2nd time I've tried raising this issue - which at this point is causing me to have to lay down for hours a day, to recover - and both times I've been rejected (and both times by a man).

    I'm at a loss at this point. I can keep doctor hopping, to try and find someone who will actually help me, but every time I switch, it counts against me.

    #POTS #PosturalOrthostaticTachycardiaSyndrome #MedicalGaslighting #MedicalAbuse

  2. Steve Kerr admits ‘stupid mistake’ for calling misinformation on Warriors C Kristaps Porziņģis’ POTS diagnosis

    Golden State Warriors head coach Steve Kerr issued a mea culpa on Saturday after appearing to question one…
    #NewsBeep #News #NBA #AtlantaHawks #AU #Australia #bloodcirculation #BostonCeltics #GoldenStateWarriors #KristapsPorzingis #LosAngelesClippers #LosAngelesLakers #NBATradeDeadline #posturalorthostatictachycardiasyndrome #sports #stevekerr
    newsbeep.com/au/511241/

  3. Post-translational modifications within fibrinaloid microclot complexes distinguish Pre-COVID-19 POTS, Long COVID, & Long COVID-POTS & reveal disease-specific molecular pathways

    biorxiv.org/content/10.64898/2

    Screenshot from latest Science for ME weekly update

    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  4. Post-translational modifications within fibrinaloid microclot complexes distinguish Pre-COVID-19 POTS, Long COVID, & Long COVID-POTS & reveal disease-specific molecular pathways

    biorxiv.org/content/10.64898/2

    Screenshot from latest Science for ME weekly update

    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  5. Post-translational modifications within fibrinaloid microclot complexes distinguish Pre-COVID-19 POTS, Long COVID, & Long COVID-POTS & reveal disease-specific molecular pathways

    biorxiv.org/content/10.64898/2

    Screenshot from latest Science for ME weekly update

    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  6. Post-translational modifications within fibrinaloid microclot complexes distinguish Pre-COVID-19 POTS, Long COVID, & Long COVID-POTS & reveal disease-specific molecular pathways

    biorxiv.org/content/10.64898/2

    Screenshot from latest Science for ME weekly update

    @longcovid
    #LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
    #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  7. (US)
    Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia

    archive.ph/8Vci2

    #Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  8. (US)
    Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia

    archive.ph/8Vci2

    #Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  9. (US)
    Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia

    archive.ph/8Vci2

    #Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  10. (US)
    Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia

    archive.ph/8Vci2

    #Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots

  11. (US)
    Another piece on the important recent federal court ruling that judges in disability cases shouldn't rely solely on objective medical evidence in some scenarios such as with fibromyalgia

    archive.ph/8Vci2

    #Fibromyalgia #Fibro #FMS #chronicillness #Spoonie #MEcfs @mecfs #LongCovid @longcovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots