#orthostaticintolerance — Public Fediverse posts

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Baroreflex sensitivity impairment in Long-COVID patients: a diagnostic
tool for classifying the autonomic dysfunction spectrum

https://www.frontiersin.org/journals/cardiovascular-medicine/articles/10.3389/fcvm.2026.1830347/full

Screenshot from latest Science for ME weekly update

#LongCovid #OrthostaticIntolerance

@longcovid @mecfs

The 17 minutes refers to a passive standing test. The former elite athlete was diagnosed with POTS, with treatment resulting in a return to full function.

Unfortunately treatment for orthostatic intolerance is often less successful.

https://closler.org/lifelong-learning-in-clinical-excellence/chronic-fatigue-17-minutes-can-change-a-life

#POTS #Fatigue #OrthostaticIntolerance @pots

@thegardendude
My orthostatic intolerance (OI) is part of ME/CFS. I do get increased heart rate but more nausea, short of breath, & other pre-syncope (pre-fainting) symptoms. Fainted on tilt test.

2 videos on OI in ME/CFS (not sure if OI is same for other illnesses)

"What is Orthostatic Intolerance in ME/CFS?"

Part 1 - Diagnostic Workup
https://www.youtube.com/watch?v=X3Ym8rnYk_4

Part 2 - Management
https://www.youtube.com/watch?v=GIkS4w3tIg8

#OrthostaticIntolerance #ME/CFS #POTS

US research

Monocyte Oxidative Stress Underlies Persistent Immune Activation in Long-COVID Postural Orthostatic Tachycardia Syndrome

https://www.medrxiv.org/content/10.64898/2026.05.08.26352776v1

Screenshot from science for ME weekly update

#LongCovid #POTS #dysautonomia #OrthostaticIntolerance  @pots @longcovid

(7 minutes)
10-minute NASA lean: passive standing test demonstration

https://www.youtube.com/watch?v=96GCnYWX8D4

Screenshot from AMMES June 2026 newsletter

#LongCovid #MEcfs #PwME #dysautonomia #POTS #OrthostaticIntolerance @longcovid @mecfs @pots

Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance: insights from a systematic review

https://link.springer.com/article/10.1186/s12967-025-06954-w

Screenshot from AMMES May 2026 Newsletter

#MEcfs #OrthostaticIntolerance  #PwME #ME #MyalgicE
@mecfs

New blog post from Bateman Horne Center talking about orthostatic intolerance. Just because you don't have POTS doesn't mean you don't have some other form of orthostatic intolerance.

https://batemanhornecenter.org/when_its_not_pots/

@mecfs @longcovid

#MEcfs #LongCovid #POTS #OrthostaticIntolerance #Dysautonomia

2/ With my feet up and on my cushion. I find I can sit up longer using both.

#MEcfs #OrthostaticIntolerance
@IrishMECFSAssociation @mecfs

This 2-part video series from the Bateman Horne Center about Orthostatic Intolerance in ME/CFS is very helpful:

"What is Orthostatic Intolerance in ME/CFS?"

Part 1 - Diagnostic Workup

https://www.youtube.com/watch?v=X3Ym8rnYk_4

Part 2 - Management

https://www.youtube.com/watch?v=GIkS4w3tIg8

11/n

@mecfs @longcovid

#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #BatemanHorne

I'm back! 😁

Next I'll share some resources.

I'll start by talking about Orthostatic Intolerance (OI). This is when folks get symptoms when in an upright posture, most often from standing, but also when sitting upright. This condition is common in both ME/CFS and Long Covid.

Sadly, many doctors don't know about OI even though it's an optional diagnostic criteria for ME/CFS.

https://www.cdc.gov/me-cfs/pdfs/toolkit/What-are-MECFS-Symptoms_508.pdf

10/n

@mecfs @longcovid

#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia

From the US 🇺🇸

Dysautonomia in Long COVID is Prevalent and Could Explain the Frequency of Symptoms

https://www.clinmedres.org/content/clinmedres/24/1/28

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #PostCovidSyndrome #LC #Covidlonghaulers #longhaulers #COVIDBrain #NeuroPASC
#dysautonomia #POTS @pots #OI #OrthostaticIntolerance

From Japan:

" #COVID19 infection shows significant association with increased autonomic dysfunction pharmacotherapy initiation, with a 36% rise in prescriptions over 8 months."

https://www.tandfonline.com/doi/abs/10.1080/07853890.2026.2618323

Screenshot from Science for ME update

#LongCovid #PASC #dysautonomia #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#Coronavirus #COVID #COVID_19 #COVIDー19 #SARSCoV2

Some tips on showering and washing from a sympathetic & knowledgeable occupational therapist who specialises in ME/CFS, Long Covid & other energy-limiting chronic conditions

https://onelifelivedwell.substack.com/p/showers-shouldnt-cost-your-energy

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #LongCovid #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance #Spoonies #Spoonie

The Relation Between Cardiac Output and Cerebral Blood Flow in ME/CFS Patients with a POTS Response During a Tilt Test

https://www.mdpi.com/2077-0383/14/11/3648

Screenshot from the January 2026 AMMES newsletter

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #POTS #OrthostaticIntolerance @mecfs @pots

"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness"

https://themighty.com/topic/fibromyalgia/feeling-not-disabled-enough-chronic-illness

"How many of you who have fibromyalgia or similar #chronicillness sometimes feel like you’re judged for not being 'disabled enough?'”

#invisibleillness #Spoonie #hiddenillness #Spoonielife #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @longcovid
#LongCovid #MEcfs #
@mecfs

Symptom: Neurogenic Inflammation and POTS Blood Pooling

https://www.illmarks.com/symptom-neurogenic-inflammation-and-pots-blood-pooling/

#art #autonomicDysfunction #AutonomicFailure #autonomicNervousSystem #bloodpooling #BloodPressure #bodyHorror #bodyMapping #bodyart #bodyhorror #cardiology #chronicIllness #dinet #dystautonomia #hypotension #longCovid #medart #medicalArt #medicalart #MillionsMissing #neurogenicInflammation #neurogenicInflammation #neurology #orthostaticHypotension #orthostaticIntolerance #posturalOrthostaticTachycardiaSyndrome #POTS #potsie #pwLC #pwme #SciArt #SciComms #SymptomMap #SymptomArt #SymptomMap #tinitus #tinnitus

@herbster @mecfs

PEM (post exertional malaise) can be difficult to explain. But I think orthostatic intolerance is even harder to explain.

People wonder how just standing still - or even sitting upright but I can do that longer - can be a problem. I have a lot more trouble standing still for a few minutes than walking for a few minutes. I must sit down to shower or brush my teeth.

Two helpful videos:

https://www.youtube.com/watch?v=X3Ym8rnYk_4

https://www.youtube.com/watch?v=GIkS4w3tIg8

#MEcfs #PEM #OrthostaticIntolerance

See post #2 for a vaguely related comment from me on orthostatic intolerance

#POTS @pots #OI #OrthostaticIntolerance #chronicillness #chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid

1/

"Systematic literature review: treatment of postural orthostatic tachycardia syndrome (POTS)" ["with a special focus on POTS therapy in children and people with ME/CFS."]

Free fulltext:
https://link.springer.com/article/10.1007/s10286-025-01172-2

#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Heads-Up! Are You Missing an Easy Way to Improve Your Sleep and Health?

https://www.healthrising.org/blog/2013/06/16/heads-up-are-you-missing-an-easy-way-to-improve-sleep-and-health/

Interesting to read the rationale behind this approach (tilting the head of your bed) but still seems speculative for ME/CFS where "the normal rules often don't apply"

#MEcfs #CFS #PwME @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance

From the blog: A list of some common warning signals of orthostatic intolerance.

#MEcfs #LongCovid #OrthostaticIntolerance #POTS #Dysautonomia #MedEd

Blog post from Bateman Horne Center:

"Living with Orthostatic Intolerance (OI)"

https://batemanhornecenter.org/living-with-orthostatic-intolerance-oi/

"Living with orthostatic intolerance (OI) can turn activities like standing in line, taking a shower, or even sitting for too long—into exhausting tasks. OI happens when your body struggles to regulate blood pressure and heart rate when changing positions, like moving from lying down to sitting or standing."

#MEcfs #PwME #LongCovid #PwLC #OrthostaticIntolerance #POTS #Dysautonomia #MedEd

Iranian multicentre trial

Using Compression Stockings to Prevent Recurrence of Vasovagal Syncope: A Randomized Sham-Controlled Trial

https://www.jacc.org/doi/10.1016/j.jacc.2025.05.049

"The results do not support routine use of thigh-length ECS [elastic compression stockings]"

#VVS #OrthostaticIntolerance #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI

Cerebral blood flow changes in A ME/CFS and OI vs healthy controls, and B ME/CFS with OI vs ME/CFS without OI

From: Mapping cerebral blood flow in ME/CFS and orthostatic intolerance: insights from a systematic review

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06954-w

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #POTS @pots #OI #OrthostaticIntolerance

Mapping cerebral blood flow in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and orthostatic intolerance (OI)

https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-025-06954-w

"CBF (Cerebral Blood Flow) is reduced in ME/CFS and OI alone and having both conditions comorbidly amplifies CBF reductions. Therefore, observing CBF changes in ME/CFS with and without OI may be important in monitoring disease severity."

@mecfs @pots

#MEcfs #PwME #POTS #Dysautonomia #OrthostaticIntolerance #CBF

From ME Research UK:

As promised to a commenter last month, we have published an article clarifying the relationship between blood pressure and PoTS (a common ME/CFS comorbidity): bit.ly/potsandbp

#POTS #OrthostaticIntolerance @pots #mecfs @mecfs

What Not to Say to People With Complex Chronic Illness

https://www.medscape.com/viewarticle/what-not-say-people-complex-chronic-illness-2025a10006ft

Image is a screenshot from June 2025 AMMES e-newsletter

Hashtags:
@longcovid
#LongCovid #PASC @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #chronicillness @chronicillness
@spoonies #dysautonomia @dysautonomia
#PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI #OrthostaticIntolerance

@oftencalledcathy Seems likely.

With my orthostatic intolerance, which is very hard to explain to healthy folks, standing still a few minutes is worse (higher heart rate, dropping blood pressure, nausea, short of breath) than walking a few minutes.

(assuming level ground, cool temperatures, I'm having an okay day, etc)

Even unloading grocery bags from the car is easier than standing still! I think it's about blood flow and/or circulation.

#POTS #OrthostaticIntolerance #MEcfs #LongCovid

5/
"Orthostatic Intolerance Overview" from @bateman_horne_center (page 2 of 2)

https://onedrive.live.com/?authkey=%21AGyjrENR0e9TEoc&cid=94454629DB95DF81&id=94454629DB95DF81%211421619&parId=94454629DB95DF81%21105&o=OneUp

One of the fact sheets we sent to 3612 Irish GPs recently

#OrthostaticIntolerance #MEcfs @mecfs

5/
"Orthostatic Intolerance Overview" (page 1 of 2)

https://onedrive.live.com/?authkey=%21AGyjrENR0e9TEoc&cid=94454629DB95DF81&id=94454629DB95DF81%211421619&parId=94454629DB95DF81%21105&o=OneUp

One of the fact sheets we sent to 3612 Irish GPs recently

#OrthostaticIntolerance  #MEcfs
@mecfs