#potsie — Public Fediverse posts

#POTSie looking for a salt daddy

2026-1-7 Worst POTS day ever

https://www.illmarks.com/2026-1-7-worst-pots-day-ever/

#anatomy #art #bodyHorror #bodyMapping #bodyhorror #cfs #chronicIllness #CovidIsntOver #Dysautonomia #FediArt #illustration #ink #longCovid #longcovid #mastoart #me #mecfs #medart #medicalArt #MillionsMissing #Patient #PatientLed #POTS #potsie #publicHealth #pwLC #pwme #SciArt #SciComms

Symptom: Neurogenic Inflammation and POTS Blood Pooling

https://www.illmarks.com/symptom-neurogenic-inflammation-and-pots-blood-pooling/

#art #autonomicDysfunction #AutonomicFailure #autonomicNervousSystem #bloodpooling #BloodPressure #bodyHorror #bodyMapping #bodyart #bodyhorror #cardiology #chronicIllness #dinet #dystautonomia #hypotension #longCovid #medart #medicalArt #medicalart #MillionsMissing #neurogenicInflammation #neurogenicInflammation #neurology #orthostaticHypotension #orthostaticIntolerance #posturalOrthostaticTachycardiaSyndrome #POTS #potsie #pwLC #pwme #SciArt #SciComms #SymptomMap #SymptomArt #SymptomMap #tinitus #tinnitus

Looks like my Teepublic shop is on sale once again! Silly puns, original art, webcomic merch and more! You definitely deserve a sticker, at least. You know it. ✨

https://www.teepublic.com/user/radiochio

#indieartist #shopsmall #originalart #potssyndrome #potsie #salty #tribbles #startrek #webcomics #pumpkinspice

I don’t know if there is much more exciting for me as a #Potsie than having a perfect stand week! #POTS

I’m improving… every day… just a little bit. I’ve been fighting this for nearly three years now.

Sorry I have been so quiet lately. Things have been wild RL.

A couple of days ago, I was diagnosed with POTS. And suddenly a lot of my symptoms I have been having that prevent me from working finally make sense.

I had no idea... I have been to several doctors who just didnt know what to do. Ran many tests over the years for different things and nothing was really found. But then my doctor who I have been seeing the past few years has been really amazing and keeping track of my symptoms as they have worsened and she really cares and listens. We talked about POTS before, but something made her sure and she got me in to a tilt table test. I didnt expect much because most eveyrthing else turned up nothing. But they didnt even need to do the full test. As soon as they sat me up, my heart rate shot up and they were certain.

I still dont know how to feel. I feel relieved but also scared. But I hope I can finally start to take steps to feel and manage my symptoms better

#POTS #potsie #health #disability #disabled

Doing some finances (since unemployed and job hunting) today and calculated that the peak cost per day of my #POTS medication is $8.

$56 a week.

It's not the only medication that I take and it's a take as needed medicine so I can skip days/times where I have the space to deal with the symptoms. But ouch. I wish that was covered under the PBS. #Australia #potsie

Honestly hate how connected the gut is to #POTS . Had a decent lunch and now I'm having to lay down since it caused my symptoms to flare up. #potsie #dysautonomia

I didn't get any formal exercise today but I worked at the food bank and hauled a bunch of food into the building and down to the basement. Got 52 zone minutes on my #fitbit and my 5000+ steps in. I feel confident that I got cardio and weight training done. I also felt #POTSie today. Lightheaded, feeling like I needed to sit, anxious, cold extremities & foggy brained. I put on compression socks & my ab binder & felt better within an hour.

#KickingTheShitOutOfPOTS

All of the #yoga stretching that I'm doing has opened up my cervical spine. I knew the muscles in my neck & shoulders would get stiff when my #POTS flared but I didn't get how tight everything was until I started doing intentional movement for my neck.

If you're a #POTSie, I strongly suggest yoga stretching. I know, I know. Movement hurts. Yup. It does. Start slow but be consistent, even when it hurts. You're deconditioned, not dead. You can do these laying in bed.

#KickingTheShitOutOfPOTS

Today I rowed 528 strokes with #DarkHorseRowing, 25 minutes of #yoga stretching.

Attempted standing weight training. It didn't go well. Dizzy. Nauseous.

Feeling #Potsie. It's a hard thing to describe because there's no outward illness. I had a hard time getting out of bed, didn't feel really awake until hours later, my head was swimmy, just... off all morning. But I'm doing so much better now. I'm not going to beat myself up too much over the weights. I'll keep trying! #KickingTheShitOutOfPOTS

627 #rowing strokes in 32 minutes with #DarkHorseRowing and 31 minutes of #yoga stretches with Cheryl at Your Journey Yoga. Beautiful workout. I'm shaky but I think I'll be ok once I eat. I never not eat before working out. Not making it a habit after today.

I uploaded the workout to my #fitbit 77 zone minutes so far today. With #SquareDancing later I bet I can top 100.

#POTS
#POTSie
#KickingTheShitOutOfPOTS

35 mins of #Pilates.

If you've never done it I say give it a try, especially if you're a #POTSie. I never would have thought I could do it but I started small- my first few YT classes were 10-15 mins long & there were times that really were uncomfortable. Consistency is key. Keep showing up for yourself. If you can't do 10, shut it off at the 5-7 minute mark. You'll progress. Just keep showing up for yourself. (I guess this is the motivation I was looking for.)
#KickingTheShitOutOfPOTS

I also reduced my beta blocker to 1 pill/day. I'll do this until my body feels no longer totally out of control. That should be 7-9 days, then I'll start taking it every other day. My heart rate is all over the place still but as long as I sit down if I start feeling buzzy in the head, I feel like it's ok. Once the propranolol is totally out of my system I should be able to ramp my workouts up & my system won't be battling pharmaceuticals. #POTS #POTsie

🧵
I’ve seen a lot of praise for this article

National Geographic:
What is POTS? This strange disorder has doubled since the pandemic

An article about #POTS & the need for re-evaluation of exercise as treatment

https://tinyurl.com/2fm3v9kx

#potsie #potsies #POTSlife #POTSparents #potssubtypes #PosturalTachycardiaSyndrome #posturalorthostatictachycardia #PosturalOrthostaticTachycardiaSyndrome @pots @mecfs
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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