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#housebound — Public Fediverse posts

Live and recent posts from across the Fediverse tagged #housebound, aggregated by home.social.

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  1. CW: Chronic illness, ME/CFS, voted!

    I usually vote by mail because I've been housebound with severe #MECFS for two years. I missed the timeline for returning my absentee ballot for an election Tuesday, in large part because of being #housebound--these days a calendar is something that happens to other people.

    So Jalan drove me yesterday to vote curbside (i.e., through the car window) at an early-voting site. We also needed to pick up prescriptions. We were out about an hour, with me never getting out of the car.

    Notably, the last time I was out of the house (other than an emergency hospitalization in November) was to vote curbside in early October last year.

    Friends and neighbors, going out broke me. Most days, I spend most of the time in my lift chair in the living room before moving to the bedroom sometime late afternoon or evening, where we have, in addition to bed, another, very comfortable, recliner.

    Yesterday, though, we were home by around 2pm, I couldn't leave the bedroom the rest of the day. Sometimes sleeping, constantly in pain (more than baseline), hypersensitive to sound and light, all the terrible.

    I hate this.

    #NEISVoid

  2. CW: Chronic illness, ME/CFS, voted!

    I usually vote by mail because I've been housebound with severe #MECFS for two years. I missed the timeline for returning my absentee ballot for an election Tuesday, in large part because of being #housebound--these days a calendar is something that happens to other people.

    So Jalan drove me yesterday to vote curbside (i.e., through the car window) at an early-voting site. We also needed to pick up prescriptions. We were out about an hour, with me never getting out of the car.

    Notably, the last time I was out of the house (other than an emergency hospitalization in November) was to vote curbside in early October last year.

    Friends and neighbors, going out broke me. Most days, I spend most of the time in my lift chair in the living room before moving to the bedroom sometime late afternoon or evening, where we have, in addition to bed, another, very comfortable, recliner.

    Yesterday, though, we were home by around 2pm, I couldn't leave the bedroom the rest of the day. Sometimes sleeping, constantly in pain (more than baseline), hypersensitive to sound and light, all the terrible.

    I hate this.

    #NEISVoid

  3. CW: Chronic illness, ME/CFS, voted!

    I usually vote by mail because I've been housebound with severe #MECFS for two years. I missed the timeline for returning my absentee ballot for an election Tuesday, in large part because of being #housebound--these days a calendar is something that happens to other people.

    So Jalan drove me yesterday to vote curbside (i.e., through the car window) at an early-voting site. We also needed to pick up prescriptions. We were out about an hour, with me never getting out of the car.

    Notably, the last time I was out of the house (other than an emergency hospitalization in November) was to vote curbside in early October last year.

    Friends and neighbors, going out broke me. Most days, I spend most of the time in my lift chair in the living room before moving to the bedroom sometime late afternoon or evening, where we have, in addition to bed, another, very comfortable, recliner.

    Yesterday, though, we were home by around 2pm, I couldn't leave the bedroom the rest of the day. Sometimes sleeping, constantly in pain (more than baseline), hypersensitive to sound and light, all the terrible.

    I hate this.

    #NEISVoid

  4. CW: Chronic illness, ME/CFS, voted!

    I usually vote by mail because I've been housebound with severe #MECFS for two years. I missed the timeline for returning my absentee ballot for an election Tuesday, in large part because of being #housebound--these days a calendar is something that happens to other people.

    So Jalan drove me yesterday to vote curbside (i.e., through the car window) at an early-voting site. We also needed to pick up prescriptions. We were out about an hour, with me never getting out of the car.

    Notably, the last time I was out of the house (other than an emergency hospitalization in November) was to vote curbside in early October last year.

    Friends and neighbors, going out broke me. Most days, I spend most of the time in my lift chair in the living room before moving to the bedroom sometime late afternoon or evening, where we have, in addition to bed, another, very comfortable, recliner.

    Yesterday, though, we were home by around 2pm, I couldn't leave the bedroom the rest of the day. Sometimes sleeping, constantly in pain (more than baseline), hypersensitive to sound and light, all the terrible.

    I hate this.

    #NEISVoid

  5. Currently sitting in the phlebotomy waiting room with Emerson.

    I haven’t had a blood draw in so long because it’s so damn difficult to get up here. I’m full of surprises, I guess…

    They’re drawing for a thyroid level on me. I didn’t know this, so this should be interesting. I’ll let you know how it goes.

    -Allēna

    #chronicillness #eepy #Emerson #housebound #limitedmobility #NEISvoid #phlebotomy

  6. Currently sitting in the phlebotomy waiting room with Emerson.

    I haven’t had a blood draw in so long because it’s so damn difficult to get up here. I’m full of surprises, I guess…

    They’re drawing for a thyroid level on me. I didn’t know this, so this should be interesting. I’ll let you know how it goes.

    -Allēna

    #chronicillness #eepy #Emerson #housebound #limitedmobility #NEISvoid #phlebotomy

  7. Challenges

    Ah yes. An interesting prompt.

    What is the biggest challenge you will face in the next six months?

    Staying alive, in all honesty. We live in a hellscape and I’m under a lot of stress right now being a repository of knowledge and stress buffer/mediator for a lot of people. It’s so bad right now that I don’t know how I feel personally about a lot of the situations I’m the human DMZ in, and I am currently too exhausted to try. Alexithymia and chronic fatigue are bitches and a half.

    I’m still trying to care for myself as best as possible in all of this, finding a balance is just…. Difficult. It’s one of the reasons my phone is eternally on Do Not Disturb. It gives me some semblance of artificially manufactured peace and quiet amidst all the chaos.

    I think in another life, I would have made a great emergency medical technician.

    -Allēna

    #actuallyAuDHD #ChronicPain #chronicfatigue #chronicillness #contemplation #CripplePunk #dailyprompt #dailyprompt1854 #eepy #housebound #jointpain #MECFS #NEISvoid #Spoonie #strokesurvivor

  8. Challenges

    Ah yes. An interesting prompt.

    What is the biggest challenge you will face in the next six months?

    Staying alive, in all honesty. We live in a hellscape and I’m under a lot of stress right now being a repository of knowledge and stress buffer/mediator for a lot of people. It’s so bad right now that I don’t know how I feel personally about a lot of the situations I’m the human DMZ in, and I am currently too exhausted to try. Alexithymia and chronic fatigue are bitches and a half.

    I’m still trying to care for myself as best as possible in all of this, finding a balance is just…. Difficult. It’s one of the reasons my phone is eternally on Do Not Disturb. It gives me some semblance of artificially manufactured peace and quiet amidst all the chaos.

    I think in another life, I would have made a great emergency medical technician.

    -Allēna

    #actuallyAuDHD #ChronicPain #chronicfatigue #chronicillness #contemplation #CripplePunk #dailyprompt #dailyprompt1854 #eepy #housebound #jointpain #MECFS #NEISvoid #Spoonie #strokesurvivor

  9. What’s this? Another prompt I want to actually take somewhat seriously?

    Who are your favorite people to be around?

    People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

    I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

    I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

    -Allēna

    #charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

  10. What’s this? Another prompt I want to actually take somewhat seriously?

    Who are your favorite people to be around?

    People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

    I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

    I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

    -Allēna

    #charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

  11. @innervisioner Made me lol as I assume you are being ironic. A
    But on a serious note: as a , for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other folk.

  12. @innervisioner Made me lol as I assume you are being ironic. A
    But on a serious note: as a #pwME #SevereME, for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other #housebound #ChronicallyIll folk.

  13. @innervisioner Made me lol as I assume you are being ironic. A
    But on a serious note: as a #pwME #SevereME, for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other #housebound #ChronicallyIll folk.

  14. @innervisioner Made me lol as I assume you are being ironic. A
    But on a serious note: as a #pwME #SevereME, for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other #housebound #ChronicallyIll folk.

  15. @innervisioner Made me lol as I assume you are being ironic. A
    But on a serious note: as a #pwME #SevereME, for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other #housebound #ChronicallyIll folk.

  16. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

  17. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

  18. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

  19. A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
    Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
    Hace años el aislamiento debería ser aún más duro.

    #EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

  20. 2/
    A reply on the bird site which I can relate to:

    "My ME first world problem was that I had no idea how much things cost in shops.

    It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

    #homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

  21. 2/
    A reply on the bird site which I can relate to:

    "My ME first world problem was that I had no idea how much things cost in shops.

    It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

    #homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

  22. 2/
    A reply on the bird site which I can relate to:

    "My ME first world problem was that I had no idea how much things cost in shops.

    It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

    #homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

  23. 2/
    A reply on the bird site which I can relate to:

    "My ME first world problem was that I had no idea how much things cost in shops.

    It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

    #homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

  24. 2/
    A reply on the bird site which I can relate to:

    "My ME first world problem was that I had no idea how much things cost in shops.

    It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

    #homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

  25. 🚨 #PSA for #Housebound folks!

    Do you know about window-swap.com? It's a chance to look through someone's #window & there are #windows all over the world, in both #urban & #rural locations! 😃

    Basic service (opening random windows) is free, but there is also a subscription service for more features (like saving your favourite windows).

    Also - perhaps *you* could offer a window for someone else! 😊

    #Outdoors #LongCovid #MECFS #POTS #ME #Spoonies #Spoonie #COPD

  26. 🚨 #PSA for #Housebound folks!

    Do you know about window-swap.com? It's a chance to look through someone's #window & there are #windows all over the world, in both #urban & #rural locations! 😃

    Basic service (opening random windows) is free, but there is also a subscription service for more features (like saving your favourite windows).

    Also - perhaps *you* could offer a window for someone else! 😊

    #Outdoors #LongCovid #MECFS #POTS #ME #Spoonies #Spoonie #COPD

  27. 🚨 #PSA for #Housebound folks!

    Do you know about window-swap.com? It's a chance to look through someone's #window & there are #windows all over the world, in both #urban & #rural locations! 😃

    Basic service (opening random windows) is free, but there is also a subscription service for more features (like saving your favourite windows).

    Also - perhaps *you* could offer a window for someone else! 😊

    #Outdoors #LongCovid #MECFS #POTS #ME #Spoonies #Spoonie #COPD

  28. 🚨 #PSA for #Housebound folks!

    Do you know about window-swap.com? It's a chance to look through someone's #window & there are #windows all over the world, in both #urban & #rural locations! 😃

    Basic service (opening random windows) is free, but there is also a subscription service for more features (like saving your favourite windows).

    Also - perhaps *you* could offer a window for someone else! 😊

    #Outdoors #LongCovid #MECFS #POTS #ME #Spoonies #Spoonie #COPD

  29. CW: Minor spoilers for “Housebound”

    Housebound - 15

    - Scary: 1
    - Plot: 3
    - Memorability: 2
    - Enjoyability: 3
    - Effects: 6

    New Zealand #horror! Unconfirmed, but I think the actor who played the grumpy Hobbitses (“Proudfeet!”) in “Fellowship of the Ring” is in this. The mother and parole officer characters were great. But I watched on 1.5 speed for much of it.

    #Cinemastodon #Housebound

  30. CW: Minor spoilers for “Housebound”

    Housebound - 15

    - Scary: 1
    - Plot: 3
    - Memorability: 2
    - Enjoyability: 3
    - Effects: 6

    New Zealand #horror! Unconfirmed, but I think the actor who played the grumpy Hobbitses (“Proudfeet!”) in “Fellowship of the Ring” is in this. The mother and parole officer characters were great. But I watched on 1.5 speed for much of it.

    #Cinemastodon #Housebound