#housebound — Public Fediverse posts

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

Recap: "Support Group: Navigating Loneliness and Rebuilding Connection"

https://batemanhornecenter.org/wp-content/uploads/2026/02/20260120-Support-Group-Recap-.pdf

Conditions like ME/CFS can be very socially isolating. I found it nice to read how others deal with this.

#MEcfs #Spoonielife #LongCovid #chronicillness #CFS #PwME #homebound #housebound #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs
@longcovid #POTS @pots

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

A topic of interest to some in #chronicillness community who could benefit from home visits

News Release
Primary care home visits for older adults declined after payment policy changes & COVID-19 in Ontario
https://www.eurekalert.org/news-releases/1114111

https://www.annfammed.org/content/24/1/44

#Homebound #Housebound #SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
@mecfs #chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#Disabled
#Disability

‘M3GAN 2.0’ Filmmaker Gerard Johnstone Won’t Be Surprised If There’s “Another Five of These Movies”
#MovieFeatures #Movies #GerardJohnstone #Housebound #M3GAN #M3GAN20

https://www.hollywoodreporter.com/movies/movie-features/m3gan-2-0-filmmaker-gerard-johnstone-sequels-1236297385/

What’s this? Another prompt I want to actually take somewhat seriously?

Who are your favorite people to be around?

People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

-Allēna

#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

What’s this? Another prompt I want to actually take somewhat seriously?

Who are your favorite people to be around?

People who are straightforward, honest, and the only bullshit they give me is the joking kind. Preferably, they can see shit about me that I can’t, and can do shit that I can’t without making me feel like shit for it. They don’t talk my ear off constantly about meaningless shit and believe that words have as much power as actions and use both in tandem.

I’m very picky about the people I surround myself with, and it’s a high bar because I have made peace with solitude most days, being mostly housebound and all, to the point where if I prefer being alone more than I enjoy spending time with a person, I simply won’t engage with them if I don’t have to. I am too tired and have too much shit to do (as well as people I actually like) to pay the people I dislike much mind. My energy is precious and I don’t have much of it. So I do my best to use it wisely. My favorite people get that and go to great lengths to help me protect the little energy I have.

I’m not proud of a lot of the way my life has gone, and there’s a lot that happened that’s entirely outside of my control. However, I’m damn proud of the fact that I picked great people.

-Allēna

#charisma #chronicfatigue #chronicillness #community #CripplePunk #dailyprompt #dailyprompt1854 #Disabled #eepy #friends #hopeposting #housebound #jointhypermobility #jointpain #MECFS #NEISvoid #neurodivergence #partners #queer #socialtime #Spoonie #strokesurvivor #winning

Unfortunately for some people with mobility issues, problems being upright (#OrthostaticIntolerance) mean they can't use traditional #wheelchairs or if they do, they can't be upright for long. This looks a interesting idea!

Not sure the context!

I found it here:
https://www.tumblr.com/mathew/765339413020622848?source=share

@chronicillness
@spoonies
@disability
#Disability #Spoonie #MEcfs #Bedbound #SevereME @severeme
#SevereME
@longcovid
#LongCovid #dysautonomia @dysautonomia #POTS @pots
#homebound
#housebound
#Disabled

DWP WCA reforms WILL happen as Labour look to cut £1.3bn
https://www.thecanary.co/uk/analysis/2024/10/18/dwp-wca-changes/

#Incontinence
#Mobility
#Housebound
#WorkBeingRisky
#WCA
#UniversalCredit
#Labour
#LongTermSick
#Disabled

@innervisioner Made me lol as I assume you are being ironic. A
But on a serious note: as a #pwME #SevereME, for me it is very much about what help & assistance can be offered in my own home too - zilch currently. Also the same for other #housebound #ChronicallyIll folk.

Housebound (2014) Hysterical New Zealand Horror https://mikesfilmtalk.com/2015/05/31/housebound-2014-hysterical-new-zealand-horror/ #AustralianCinema, #CameronRhodes, #GerardJohnstone, #GlenPaulWaru, #Housebound, #MorganaOReilly, #NewZealandCinema, #RumTeWiata

A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.

#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.

#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.

#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.

#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune

2/
A reply on the bird site which I can relate to:

"My ME first world problem was that I had no idea how much things cost in shops.

It was like a famous person being asked by Smash Hits how much a pint of milk cost. 🤷‍♀️"

#homebound #housebound @mecfs @severeme #MEcfs #CFS #PwME

🚨 #PSA for #Housebound folks!

Do you know about https://www.window-swap.com? It's a chance to look through someone's #window & there are #windows all over the world, in both #urban & #rural locations! 😃

Basic service (opening random windows) is free, but there is also a subscription service for more features (like saving your favourite windows).

Also - perhaps *you* could offer a window for someone else! 😊

#Outdoors #LongCovid #MECFS #POTS #ME #Spoonies #Spoonie #COPD

From Janet Dafoe:

This short film is so good. Please watch it and vote for it For The Better

https://boundlessfilmfestival.com/for-the-better/
My comment:
3 minutes

Nice movie. I can relate to an extent except being severely affected nearly 29 years now, I don’t share her expectation of getting better so do wish I never got ill

No mention of ME or #CFS though sounds like what she has after #viralencephalitis

#spoonie #housebound #homebound @spoonie @chronicillness

From Janet Dafoe:

This short film is so good. Please watch it and vote for it For The Better

https://boundlessfilmfestival.com/for-the-better/
My comment:
3 minutes

Nice movie. I can relate to an extent except being severely affected nearly 29 years now, I don’t share her expectation of getting better so do wish I never got ill

No mention of ME or #CFS though sounds like what she has after #viralencephalitis

#spoonie #housebound #homebound @spoonie @chronicillness

From Janet Dafoe:

This short film is so good. Please watch it and vote for it For The Better

https://boundlessfilmfestival.com/for-the-better/
My comment:
3 minutes

Nice movie. I can relate to an extent except being severely affected nearly 29 years now, I don’t share her expectation of getting better so do wish I never got ill

No mention of ME or #CFS though sounds like what she has after #viralencephalitis

#spoonie #housebound #homebound @spoonie @chronicillness

From Janet Dafoe:

This short film is so good. Please watch it and vote for it For The Better

https://boundlessfilmfestival.com/for-the-better/
My comment:
3 minutes

Nice movie. I can relate to an extent except being severely affected nearly 29 years now, I don’t share her expectation of getting better so do wish I never got ill

No mention of ME or #CFS though sounds like what she has after #viralencephalitis

#spoonie #housebound #homebound @spoonie @chronicillness

From Janet Dafoe:

This short film is so good. Please watch it and vote for it For The Better

https://boundlessfilmfestival.com/for-the-better/
My comment:
3 minutes

Nice movie. I can relate to an extent except being severely affected nearly 29 years now, I don’t share her expectation of getting better so do wish I never got ill

No mention of ME or #CFS though sounds like what she has after #viralencephalitis

#spoonie #housebound #homebound @spoonie @chronicillness

Hey friends. I know I already have a general post up, but I'm really behind on everything at the moment and can't pay my internet bill. Being mostly housebound the internet is my lifeline to the outside world. If you could help out in any way it would mean a lot. Thank you ❤️

75/75 thanks friends 😘

https://paypal.me/JadziaBenntley?country.x=AU&locale.x=en_AU

#housebound #mutualaid #help #bills

@MarkMaguire @kevinteljeur @SarahDelahunty @lucyweirphd I am still on Twitter because more #pwME & #pwFM & #pwLC and #disabilities in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am #housebound & #bedridden: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many #disabled groups will move elsewhere.

@MarkMaguire @kevinteljeur @[email protected] @lucyweirphd I am still on Twitter because more #pwME & #pwFM & #pwLC and #disabilities in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am #housebound & #bedridden: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many #disabled groups will move elsewhere.

@MarkMaguire @kevinteljeur @SarahDelahunty @lucyweirphd I am still on Twitter because more #pwME & #pwFM & #pwLC and #disabilities in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am #housebound & #bedridden: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many #disabled groups will move elsewhere.

@MarkMaguire @kevinteljeur @SarahDelahunty @lucyweirphd I am still on Twitter because more #pwME & #pwFM & #pwLC and #disabilities in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am #housebound & #bedridden: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many #disabled groups will move elsewhere.

@MarkMaguire @kevinteljeur @SarahDelahunty @lucyweirphd I am still on Twitter because more #pwME & #pwFM & #pwLC and #disabilities in general are over there. I have been connecting slowly with folk here, but, with one or two wonderful exceptions, there is almost no interaction here. I am #housebound & #bedridden: SM is my only social-life, or help-point. Unless matters deteriorate drastically it is unlikely that many #disabled groups will move elsewhere.

2/

“Isolation is a way of life in the wastelands. You are too exhausted to go anywhere, to do anything, to meet anyone. The possibility of holding down a job is consigned to history. Travel is a privilege which others enjoy.”

#Spoonie #PwME #MEcfs #ELCI #homebound #housebound @spoonies @chronicillness

Battling with the first thing Monday health centre phone queue. Still neurologically flaring so would struggle hugely to come in today. Huge thanks to the district nurse coming instead of my practice nurse appointment. I rarely have to switch re bloods but it can be a huge help. #NHS #NHSTayside #Housebound #Nursing #Medicine #HealthCentre #GP #neuro #flare #vasculitis

5 Horrorfilms voor een vrolijke Blue Monday! https://denachtvlinders.nl/top-5-happy-horror-blue-monday/

#bluemonday #Housebound #IdleHands #ReadyorNot #ShaunoftheDead #ThePeopleUnderTheStairs #Top5 #WhatWeDointheShadows

5 Horrorfilms voor een vrolijke Blue Monday! https://denachtvlinders.nl/top-5-happy-horror-blue-monday/

#bluemonday #Housebound #IdleHands #ReadyorNot #ShaunoftheDead #ThePeopleUnderTheStairs #Top5 #WhatWeDointheShadows

If you're in Australia, many public libraries have a FREE homebound book delivery program for people who can't physically get to the library. Volunteers drop books around every 14 days, and take the old books away, and you can do it without face-to-face contact (just leave the books in a rainproof plastic box on your doormat the night before.) You choose the books that you want via the libraries online catalogue, or you can ask "choose some graphic novels for me" "choose some science fiction for me" etc and let the library pick your books.

If this is you, it's worth contacting your local library and asking.

#PublicLibraries
#Libraries
#HouseBound
#Homebound
#Books
#Isolating

If you're in Australia, many public libraries have a FREE homebound book delivery program for people who can't physically get to the library. Volunteers drop books around every 14 days, and take the old books away, and you can do it without face-to-face contact (just leave the books in a rainproof plastic box on your doormat the night before.) You choose the books that you want via the libraries online catalogue, or you can ask "choose some graphic novels for me" "choose some science fiction for me" etc and let the library pick your books.

If this is you, it's worth contacting your local library and asking.

#PublicLibraries
#Libraries
#HouseBound
#Homebound
#Books
#Isolating

If you're in Australia, many public libraries have a FREE homebound book delivery program for people who can't physically get to the library. Volunteers drop books around every 14 days, and take the old books away, and you can do it without face-to-face contact (just leave the books in a rainproof plastic box on your doormat the night before.) You choose the books that you want via the libraries online catalogue, or you can ask "choose some graphic novels for me" "choose some science fiction for me" etc and let the library pick your books.

If this is you, it's worth contacting your local library and asking.

#PublicLibraries
#Libraries
#HouseBound
#Homebound
#Books
#Isolating

If you're in Australia, many public libraries have a FREE homebound book delivery program for people who can't physically get to the library. Volunteers drop books around every 14 days, and take the old books away, and you can do it without face-to-face contact (just leave the books in a rainproof plastic box on your doormat the night before.) You choose the books that you want via the libraries online catalogue, or you can ask "choose some graphic novels for me" "choose some science fiction for me" etc and let the library pick your books.

If this is you, it's worth contacting your local library and asking.

#PublicLibraries
#Libraries
#HouseBound
#Homebound
#Books
#Isolating

If you're in Australia, many public libraries have a FREE homebound book delivery program for people who can't physically get to the library. Volunteers drop books around every 14 days, and take the old books away, and you can do it without face-to-face contact (just leave the books in a rainproof plastic box on your doormat the night before.) You choose the books that you want via the libraries online catalogue, or you can ask "choose some graphic novels for me" "choose some science fiction for me" etc and let the library pick your books.

If this is you, it's worth contacting your local library and asking.

#PublicLibraries
#Libraries
#HouseBound
#Homebound
#Books
#Isolating

Almost out of new #jigsaw puzzles 😬 and they are hella spendy to restock. Might have to dip into the stash of classics until the bank account refills. Can't be #housebound without a puzzle on the table.

May interest #bedridden &/or #housebound, “A hot bath has benefits similar to exercise” (link below) per #LoughboroughUniversity, who “showed changes to the inflammatory response similar to that following exercise. The #AntiInflammatory response to #exercise is important as it helps to protect us against infection and illness… This suggests that repeated passive heating may contribute to reducing chronic inflammation.”
https://theconversation.com/a-hot-bath-has-benefits-similar-to-exercise-74600

Honest question do other #spoonies have day pyjamas and night pyjamas? #housebound #mecfs #NEISvoid

Hello #introductions

I'm interested in art, knitting, dogs, laughter, friends and disability.

I have ME and PoTS. I'm housebound & social media is a lifeline.

I'm in Cannock, Staffordshire.

With some politics, accessibility, pandemic and nerd stuff.

#Art #Creative #NaiveArt #Disability
#EnergyLimitingCondition #pwME #MEcfs #PoTS #Housebound
#Lichfield, #Burntwood, #Cannock #Staffordshire #Midlands
#Politics #SocialJustice #HumanRights #Accessibility #a11y #LongCovid

Ugh… the fires south of Eagle Creek had burned out! They were gone yesterday, I swear! I just wanna get some exercise and I don’t know why I can’t do it…

Glad I live in the “lee of the stone” equivalent of this area… the air’s only life threatening rather than incredibly life threatening. 210 where I am, 310 about 13 miles away across the Wilamette. 387 down in Salem…

#fire #smoke #housebound #fml