#bedbound — Public Fediverse posts
Live and recent posts from across the Fediverse tagged #bedbound, aggregated by home.social.
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New video posted on The Panicked Diaries Channel!
Kind of a silly topic I suppose, but a lot of us bedridden/bedbound folks have plushies to keep us company.
I go over different collections, and which ones I think are the best!
"Different Stuffed Animal Collections for Bedbound and Bedridden People"
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New video posted on The Panicked Diaries Channel!
Kind of a silly topic I suppose, but a lot of us bedridden/bedbound folks have plushies to keep us company.
I go over different collections, and which ones I think are the best!
"Different Stuffed Animal Collections for Bedbound and Bedridden People"
-
New video posted on The Panicked Diaries Channel!
Kind of a silly topic I suppose, but a lot of us bedridden/bedbound folks have plushies to keep us company.
I go over different collections, and which ones I think are the best!
"Different Stuffed Animal Collections for Bedbound and Bedridden People"
-
New video posted on The Panicked Diaries Channel!
Kind of a silly topic I suppose, but a lot of us bedridden/bedbound folks have plushies to keep us company.
I go over different collections, and which ones I think are the best!
"Different Stuffed Animal Collections for Bedbound and Bedridden People"
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I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞
It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏https://www.chuffed.org/project/161937-help-anna-escape
From Crowdfund:
🚨EMERGENCY🚨
Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too
#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.
She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.
This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl
As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.
There are no steady rules, just excuses for her #abuse.
** Her doctor fears staying in this environment will kill her.**
Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.
**Anna's Critical Needs***
- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.
- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.
- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.
- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.
Read more about Anna's story:
"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse
And they keep passing the buck"
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
Please donate, share, or offer direct help now!
If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com
Thanks. ❣️
-
I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞
It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏https://www.chuffed.org/project/161937-help-anna-escape
From Crowdfund:
🚨EMERGENCY🚨
Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too
#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.
She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.
This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl
As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.
There are no steady rules, just excuses for her #abuse.
** Her doctor fears staying in this environment will kill her.**
Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.
**Anna's Critical Needs***
- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.
- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.
- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.
- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.
Read more about Anna's story:
"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse
And they keep passing the buck"
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
Please donate, share, or offer direct help now!
If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com
Thanks. ❣️
-
I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞
It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏https://www.chuffed.org/project/161937-help-anna-escape
From Crowdfund:
🚨EMERGENCY🚨
Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too
#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.
She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.
This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl
As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.
There are no steady rules, just excuses for her #abuse.
** Her doctor fears staying in this environment will kill her.**
Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.
**Anna's Critical Needs***
- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.
- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.
- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.
- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.
Read more about Anna's story:
"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse
And they keep passing the buck"
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
Please donate, share, or offer direct help now!
If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com
Thanks. ❣️
-
I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞
It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏https://www.chuffed.org/project/161937-help-anna-escape
From Crowdfund:
🚨EMERGENCY🚨
Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too
#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.
She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.
This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl
As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.
There are no steady rules, just excuses for her #abuse.
** Her doctor fears staying in this environment will kill her.**
Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.
**Anna's Critical Needs***
- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.
- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.
- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.
- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.
Read more about Anna's story:
"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse
And they keep passing the buck"
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
Please donate, share, or offer direct help now!
If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com
Thanks. ❣️
-
I’m really unwell. Please 🔄SHARE my pinned crowdfund &💸 GIVE if you can. Share on all social media platforms you’re on. I can’t get to many.l 😞
It’s not looking great. Doctor confirmed I’m slowly dying in this environment. I don’t even get regular food.
I need to escape ASAP. PLEASE HELP 🙏https://www.chuffed.org/project/161937-help-anna-escape
From Crowdfund:
🚨EMERGENCY🚨
Anna, an #Australian woman battling severe #MyalgicEncephalomyelitis (#ME) for over 20 years, is trapped in a toxic home with #abusive family members. She has multiple chronic illnesses too
#Bedbound & forced to stay in a dark room, she is very vulnerable and that is taken advantage of. She is not allowed to access #disabilityaids or supportworkers & needs approval for all mailed items including food, which may be binned or sold regardless. She faces deliberate exposure to sensory overload, days without food, constant yelling, gaslighting, called every insult, stolen belongings - the list is endless.
She has been infected with #COVID 3 times in 15 months due to unmasked family members, who have ignored the pleas of her doctor to be Covid conscious. She now has #LongCovid as well.
This is compounded by #endometriosis, #hypothyroidism, #POTS, #chronicpain, & more. She was forced to decline surgery to remove endometriosis after her family denied her after care & would not allow support workers to assist. One of many examples where medical care was denied by #CoersiveControl
As a result of all this her health is deteriorating rapidly. She is living in "survival mode” but can’t for much longer.
There are no steady rules, just excuses for her #abuse.
** Her doctor fears staying in this environment will kill her.**
Australia's #healthcare, #disability, & #domesticviolence systems have failed her catastrophically, This systemic #neglect has created a #lifethreatening crisis – & for Anna, it's already too late to wait.
**Anna's Critical Needs***
- **Safe #Housing ASAP:** Anna desperately needs a quiet #room in a COVID-conscious (masking) home in #Melbourne. She can pay rent $250 per week,funded meals & limited care hours; long-term help may qualify for Carer's Allowance. You’re not required to be a carer but can choose to.
- **Secure Relocation:** Ambulance transport to reduce infection risks & reduce further stress & worsening of symptoms.
- **Expert Advocacy:** A #disabilityadvocate for complex cases to navigate the system with her. She can’t do this alone.
- **Communication Help (#Australia, preferably #Victoria):** Someone to handle phone tasks – all info provided. She can’t use the #phone due to the severity of her illness.
Read more about Anna's story:
"Australia’s state & services are trapping a woman living with #severeME in #domesticabuse
And they keep passing the buck"
https://www.thecanary.co/global/world-analysis/2025/04/01/anna-severe-me-cfs/
Please donate, share, or offer direct help now!
If you can provide housing, advocacy, or calls, contact immediately - Halcionandon at gmail dot com
Thanks. ❣️
-
**Premium OF** Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽 Full video on OF #MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
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**Premium OF** Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽 Full video on OF #MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
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**Premium OF** Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽 Full video on OF #MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
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**Premium OF** Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽 Full video on OF #MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
-
**Premium OF** Bedbound life is hard, but I have to admit knowing that if I toss my belly the rest of me follows is hot 🐽 Full video on OF #MegaChub #Chub #SuperChub #FatPositive #BodyPositive #BedBound #Gainer
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Unfortunately for some people with mobility issues, problems being upright (#OrthostaticIntolerance) mean they can't use traditional #wheelchairs or if they do, they can't be upright for long. This looks a interesting idea!
Not sure the context!
I found it here:
https://www.tumblr.com/mathew/765339413020622848?source=share@chronicillness
@spoonies
@disability
#Disability #Spoonie #MEcfs #Bedbound #SevereME @severeme
#SevereME
@longcovid
#LongCovid #dysautonomia @dysautonomia #POTS @pots
#homebound
#housebound
#Disabled -
A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune
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A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune
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A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune
-
A veces se hace duro ver tanta vida fuera, dejando pasar la mía entre estas paredes.
Y a la vez agradecer poder estar al día de cosas que nunca vería o sabría si no fuera por una pantalla.
Hace años el aislamiento debería ser aún más duro.#EncefalomielitisMialgicaSevera #EncefalomielitisMialgica #MEcfs #EMsfc #SFCem #severeME #encamada #confinamiento #pacientes #cronicos #bedbound #housebound #aislamiento #isolation #soledad #lonely #Lonelines #autoimmunes #Metabólicas #autoimmune
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‘It feels like contempt’: DWP tells 85-year-old dementia patient to repay £13k | Benefits | The Guardian
https://www.theguardian.com/society/article/2024/may/27/it-feels-like-contempt-dwp-asks-85-year-old-dementia-patient-to-repay-13k#DWP
#Dementia
#BedBound
#SiaKasparis
#SevereDisabilityPremium
#Pension
#Overpayment
#Parkinsons
#CarersAllowance
#Thornberry
#Labour
#Benefits -
@lucyllewy
I've seen folding laptop desks (online only, I've never tried one!) that are adjustable to multiple angles. Several look like they can anchor the laptop in place vs. being a surface that relies on gravity, so there's be a larger range for angling the screen to suit you.Some links below - no idea if any of these products are good but it should get you started. I hope you find something!
https://www.hobbr.com/furrino-lying-down-laptop-desk-station/
https://fupping.com/zakparker/2021/02/10/the-best-laptop-stands-for-lying-in-bed-expert-guide/
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So #disability fedi, what do you all recommend for holding a laptop in bed when you're #bedbound? I need something to hold my laptop at an angle to raise the screen up but retain the keyboard at the same height so I don't need to lift my arms up more than I currently do. I really think something to hold my lappy like this photo would help me. I get a bit of #neckstrain while using it resting on my chest atm. I want something I can use for long periods cos #pem from #mecfs keeps me in bed a lot
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Thank you to the person who bought the #zine I made last #WorldMEday https://aldercone.itch.io/help-me-zine-for-world-me-day-2023
it was really horrible to make on all the levels. i was going thru a crash at the time, but I was also so fucking angry that it give me the will to make it anyway. I couldn't figure out how to make an epub at the time (still need to).
It means a lot when folks give me even a few bux for it. --😈
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Huge relief is hearing today that I'm permanently excused from #jury service on medical grounds. I had an unexpected call last week to serve on a jury, but with a #progressive #neuro disease leaving me largely #bedbound and #sleeping up to 18 hours per day I was totally unfit for this. Being in #Scotland I needed a medical letter/certificate from my #GP supporting this. All sorted now, and confirmed today by the #Forfar #court. Thanks so much. Big relief. #juryDuty #juryService #Law #Courts #NHS
